Covid Persistente México Comunidad Solidaria @CovidComunidad
Colectivo de pacientes con #LongCovid en lucha por el reconocimiento, protocolos de atención e investigación. Somos un grupo de acompañamiento y solidaridad. facebook.com/groups/2616062… México Joined January 2021-
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#URGENTE UNAM alerta de aumento de sarampión en CDMX:
nature.com/articles/s4138… Los pacientes con #longcovid con deterioro cognitivo y síntomas de fatiga presentan niveles más altos de pNfL en comparación con los pacientes con #covidpersistente sin esos sintomas
@CovidComunidad @D_Bone @dokter_Arf @LauraMiers @InmunoUnicornio @calirunnerdoc @ZariaAbreuF @I_need_a_razor @dbdugger @microbeminded2 @drseanmullen @elisaperego78 @fitterhappierAJ @preguntalearox @LongCovidAdvoc Yes, immuneglobulin deficiencies can get worse over time. Aging and the stress of chronic infection on the immune system can reduce immune system strength. As I said, CVID sometimes won't be obvious until adulthood and the onset of multiple chronic infections.
@CovidComunidad @D_Bone @dokter_Arf @LauraMiers @InmunoUnicornio @calirunnerdoc @ZariaAbreuF @I_need_a_razor @dbdugger @microbeminded2 @drseanmullen @elisaperego78 @fitterhappierAJ @preguntalearox @LongCovidAdvoc Interesting that COVID can cause IgG levels to go lower. So if you had a predisposition to hypogammaglobulinemia before infection, COVID can make that worse. This happens with many chronic infections. ncbi.nlm.nih.gov/pmc/articles/P….
Brain fog in Long COVID linked to damaged blood vessels—a key insight shedding light on this complex condition. Understanding the root cause is crucial for targeted treatments. Let's support research efforts and spread awareness! #ubuffalo #longcovid #covid19 #covid #longhaulers
@CovidComunidad @dokter_Arf @LauraMiers @InmunoUnicornio @calirunnerdoc @ZariaAbreuF @I_need_a_razor @dbdugger @D_Bone @microbeminded2 @drseanmullen @elisaperego78 @fitterhappierAJ @preguntalearox @LongCovidAdvoc It's possible to have low IgG presenting by itself, but more often it's part of Common Variable Immune Deficiency (CVID). CVID means you have low immuneglobulin levels and a poor response to immune challenges, like vaccines or infections. primaryimmune.org/understanding-…
#BreakingNews: We are delighted to announce that the U.S. FDA has authorized our investigational monoclonal antibody for emergency use. Read our press release to learn more about this important new therapeutic option: investors.invivyd.com/news-releases/…. #SARSCoV2
High dose of IVIG. Keep fighting folks. Seguir luchando 💥💣 @LauraMiers @InmunoUnicornio @calirunnerdoc @chydorina @ZariaAbreuF @I_need_a_razor @dbdugger @D_Bone @microbeminded2 @drseanmullen @elisaperego78 @fitterhappierAJ @preguntalearox @LongCovidAdvoc @amymitchellart
¡Aquí tenemos! Sobre el COVID y cómo puedes protegerte: edición de 2024 Traducción al castellano por Maru Florián Padrón @unlocalizedling ¡Todes pueden imprimir estas zines gratis! Puedes leer más aquí: newlevant.com/COVIDzine/es o en el 🧵 abajo
¿Cuál es la probabilidad de que esto se salga de control? @CarpioOrantes23 @rafoji @PedroMtz_ID @JaimeAndradeV @Gronnet @preguntalearox @docramiro @OPSOMSMexico @AIREyVIDA2021 @Amal4Solutions @doctormacias @AlejandroC_IQ @infecto79 @drlangosta @JezMex @dredgarbarragan
¿Cuál es la probabilidad de que esto se salga de control? @CarpioOrantes23 @rafoji @PedroMtz_ID @JaimeAndradeV @Gronnet @preguntalearox @docramiro @OPSOMSMexico @AIREyVIDA2021 @Amal4Solutions @doctormacias @AlejandroC_IQ @infecto79 @drlangosta @JezMex @dredgarbarragan
4/🧵Top SBM Twitter accounts you should be following (cont.) @organichemusic @j_b_kennedy @LongCovidAdvoc @fearnley_k @jfvaughnmd09 @CovidComunidad @1goodtern @LongCovidKids @CounsellingSam @CovidSolidarit1 @PeteUK7 @thephysicsgirl @dysclinic @Yash25571056 @lisa_iannattone
Check out the latest work from our lab by Ira Espuny Camacho biorxiv.org/content/10.110…
⚠️🐔 En alerta #Hidalgo tras el primer caso de gripe aviar en humano. Información crucial para proteger la salud pública lasillarota.com/hidalgo/estado…
Hay muchas personas que reportan enfermedad viral. En Guadalajara se nota un mayor uso del cubrebocas y mucha gente con cuadro gripal. ¿Influenza aún? ¿Nueva variante de Covid? Sin información es difícil saber tomar decisiones como pacientes. @CarpioOrantes23 @docramiro @rafoji
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.Alejandro Cano @AlejandroC_IQ
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13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #ClimateLong Covid SOS @LongCovidSOS
27K Followers 941 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]Daniel Brittain Dugge.. @dbdugger
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12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyLong Covid Kids - #Lo.. @LongCovidKids
30K Followers 4K Following UK-based, international charity supporting and advocating for families and children living with Long Covid & related illnesses. https://t.co/QjkCJVG3tINaomi Harvey PhD #Wea.. @Naomi_D_Harvey
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970 Followers 1K Following [email protected] Will volunteer for #LongCOVID trials. #HELPHEALUSEs kotzt mich so an @susivili
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129 Followers 350 FollowingDr Francisco Moreno S.. @DrPacoMoreno1
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292K Followers 715 Following Cuenta oficial. Generamos y publicamos información en tiempo real. Somos una fuente de información confiable. *Tuits marcados con asterisco son patrocinados.Benzodiazepine Inform.. @BZInfoCoalition
3K Followers 484 Following Nonprofit educating about the potential adverse effects of benzodiazepines taken as prescribed.MISSD @MISSDFoundation
2K Followers 164 Following MISSD is a nonprofit dedicated to saving lives by increasing awareness of akathisia, an adverse drug effect that can cause violence, suicidality & death.Akathisia Alliance fo.. @AkathisiaAlli
2K Followers 756 Following A nonprofit organization run by people who have experienced akathisia and are working together to help end medication-induced suicide and violenceAdriana-Lucía Vanega.. @doctoravanegas
3K Followers 751 Following Médica internista y reumatóloga Universidad de Antioquia. Hospital Universitario San Vicente Fundación de Medellín. Docente Universidad de Antioquia.Ulrike_longcovid_figh.. @Ulrike_1985
2K Followers 1K Following FW Gesundheit- & Sozialwesen // SPD kommunal // AG Selbst Aktiv Hessen Süd & Bundesvorstand// #MEcfs // #Postcovid // #MaskUp // privat hierJapan Long-COVID Rese.. @Japan_LongCovid
528 Followers 935 Following SHARE medicine, supplement, and the voices of patients of Long-Covid in Japan. and LOCOPEDIA. Japan account→@tako_wata. contact→[email protected]Laurent ARNAUD @Lupusreference
17K Followers 596 Following MD, PhD | Professor of #Rheumatology | #Lupus #SLE | #Digitalhealth | President of @SLEuroSociety | @ERN_ReCONNET Disease Coordinator for Lupus & RP 🇪🇺UNAM advierte incremento de casos de sarampión en la CDMX en las últimas semanas. #Latinus #InformaciónParaTi latinus.us/2024/04/29/una…
Esto es gravísimo, en el boletín epidemiológico de la @SSalud_mx siguen sin aparecer los casos de sarampión importados, pero sospechosamente no hay más, cuando es una de las enfermedades más contagiosas, y ahora la @UNAM_MX saca esto, que está pasando ?
¿Qué sabe la UNAM que la @SSalud_mx no ha informado? El último comunicado fue el 9 de noviembre, informando de 4 casos. ¿Cuántos más hay? ¿De qué edad? 😰 #sarampion
#URGENTE UNAM alerta de aumento de sarampión en CDMX:
Falsely claiming an N95 certification = get rekt by the FTC... 3 years later
Razer’s Pricey Covid Mask Is Costing Them $1 Million In Refunds dlvr.it/T6BHDD
@CovidComunidad @drseanmullen @angryhacademic @LCawarenessInt @MVGutierrezMD @manruipa @microbeminded2 @pamelarbishop @rubyslippahs @TristanVeness @TogetherWeMask I'm sorry to hear that hydroxychloroquine didn't help you much.
@CovidComunidad @drseanmullen @angryhacademic @LCawarenessInt @MVGutierrezMD @manruipa @microbeminded2 @pamelarbishop @rubyslippahs @TristanVeness @TogetherWeMask I can't find any evidence that lupus causes low IgG, so remember you also likely have primary immune deficiency. Many patients receiving IG for immune deficiency don't tolerate it at first. Dosage amount, frequency, IG brand, pre-medication, and infusion rate can be adjusted.
@CovidComunidad @drseanmullen @angryhacademic @LCawarenessInt @MVGutierrezMD @manruipa @microbeminded2 @pamelarbishop @rubyslippahs @TristanVeness @TogetherWeMask Hydroxychloroquine is often prescribed for lupus. You could ask your doctor why he thinks rituximab is a better choice than hydroxychloroquine. lupus.org/resources/medi…
@CovidComunidad @drseanmullen @angryhacademic @LCawarenessInt @MVGutierrezMD @manruipa @microbeminded2 @pamelarbishop @rubyslippahs @TristanVeness @TogetherWeMask Also ask your doctor if subcutaneous weekly IG infusions at home might be an alternative to large IV infusions monthly. This is what I do and I avoid aseptic meningitis this way.
@CovidComunidad @drseanmullen @angryhacademic @LCawarenessInt @MVGutierrezMD @manruipa @microbeminded2 @pamelarbishop @rubyslippahs @TristanVeness @TogetherWeMask Searching for rituximab and COVID, I see many results that it increases the risk of COVID most severely of all immune suppressants used for autoimmune conditions. I am not a doctor, but I would be hesitant to take Rituximab for long COVID. x.com/philippedieude…
Rituximab therapy linked to more severe COVID-19 in patients with inflammatory rheumatic & musculoskeletal diseases thelancet.com/journals/lanrh…
@CovidComunidad @drseanmullen @angryhacademic @LCawarenessInt @MVGutierrezMD @manruipa @microbeminded2 @pamelarbishop @rubyslippahs @TristanVeness @TogetherWeMask I have similar immune deficiency to yours. My doctors do not want to further suppress my immune system, even though I have autoimmunity. Instead they have me take hydroxychloroquine 200mg twice daily to modify my immune system. It decreases autoimmunity without immune suppression
@CovidComunidad @DYork1979 @drseanmullen @angryhacademic @LCawarenessInt @MVGutierrezMD @manruipa @microbeminded2 @pamelarbishop @rubyslippahs @TristanVeness @TogetherWeMask Fantastic! I hope the information is of some help to you.
@scientist_rogue @Davemconte @agy_lena IVIG 20% improvement. Now I added Rituximab. If Rituximab fails, I will appeal for daratumumab or belimumab. My Sjogrens started after multiple vaccines.
Ok but how do you get assessed for anything like this? I had Covid Mar 2020, 6 months later my bizarre neuralgia started (somehow worsened by antihistamine overprescribing), and then when I was put on immune suppression (prednisone + Rituximab) my GI + neuro symptoms went kaboom.
I have been seeing the same. #COVID19 is a serious vascular disease.
@RSandra266 Yesterday was my second dose of rituximab for arthritis and Sjögren. Hope it works. The side effects from the first dose lasted a week. Today I am still under the effects of corticosteroids and a little altered. Stay strong! 🙏🏻
If this is the case this single treatment could be enough and only B lymphocytes were „infected“. If not a repetition will be necessary because autoimmune phenomena will increase again by reproduction if B lymphocytes. Will keep you updated ☺️ 5/5
@CovidComunidad @DYork1979 @drseanmullen @angryhacademic @LCawarenessInt @MVGutierrezMD @manruipa @microbeminded2 @pamelarbishop @rubyslippahs @TristanVeness @TogetherWeMask Is this the girl? x.com/rsandra266/sta…
#Rituximab is now running through my body. There is no turning back. We'll see in a few weeks whether this was the best or worst decision of my life🤞🏻 #LongCovid #MECFS (1h ago I got Tavegil, Paracetamol & Cortison to reduce side effects and stabilizing my mast cells.) 1/2
After I got sick w #MEcfs in 2014 I never sold my #triathlon bike, it represented hope that I'd get healthy again. But this past weekend I sold it. It feels like another #loss but I promised myself if I ever get healthy again I'll reward myself w a brand new tri bike.
nature.com/articles/s4138… Los pacientes con #longcovid con deterioro cognitivo y síntomas de fatiga presentan niveles más altos de pNfL en comparación con los pacientes con #covidpersistente sin esos sintomas