Nwiss 🇸🇪🇪🇸🇺🇸🇬🇧🇪🇺 @Gronnet
Health & Medical Science (views my own) News and Research on #LongCovid #FBLC #MEspine #EDS Longhauler since March 2020, (3x Covid inf) #MECFS since 2011 Stockholm, Sweden Joined January 2009-
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Who has tried Inuspheresis? How does it differ from HELP Apheresis? inus.health/en/inuspherese…
Throw out hypotheses with me: When I think too hard, my brain swells. I have to keep my head bent forward to not crush my brainstem. What could be going on here physiologically? Im fused C0-C2 and 99% sure I’m not tethered.
Hey #longcovid- do y’all ever get weakness in your neck/base of neck that feels like it’s too hard to hold up your head? Or like you have been using your neck to lift weights?
TIME's list of the 100 Most Influential People in the world is out. I'm honored, delighted, and grateful to be a part of this incredible group #TIME100 🙏🏼🙏🏼🙏🏼 @TIME time.com/6964230/akiko-…
Anyone (#LongCovid #MECFS) tried the combination of Apheresis + IVIG?
From now on: When the FND guys say ”it’s in your head ” - by ”it”, they must surely mean the virus. What a game changer! @TheVertlartnic
From now on: When the FND guys say ”it’s in your head ” - by ”it”, they must surely mean the virus. What a game changer! @TheVertlartnic
Did anyone else have red and bloodshot eyes a few weeks after a COVID infection? I did.
Did anyone else have red and bloodshot eyes a few weeks after a COVID infection? I did.
Do people realize that the retina is actually brain tissue, a piece of the central nervous system in a peripheric location? In the already confirmed olfactory path, #SARSCoV2 has to open some doors to reach the brain. The retina is a door open all the way. Source:…
@polybio 13/ But many more public/private stakeholders should join the space! Recently @NIHDirector you posted abt NIH investment in therapies for #HIV reservoirs. Can you also prioritize the development of #SARS-CoV-2 reservoir diagnostics & therapeutics?
For more context: The team found #SARS-CoV-2 proteins indicative of viral persistence in 25% of people up to 14 months after #COVID. They controlled for vaccination + reinfection. There were very few false positives in the pre-pandemic samples, confirming accuracy of the methods
🦷 Poll Who with #longcovid #LC or covid vaccine side effects #LV is experiencing #crumblingteeth or other unusual dental problems *that don’t appear explainable by poor dental hygiene*? 🦷 please share #longcovidteeth #covidpoll #dentalcare Feel free to elaborate
I'm on day 2 of 3 #Remdesivir #Veklury infusions, treating acute #COVID. I'm doing okay, and have no side effects besides chills and gut upset. I could taste my food last night 😋, but no other improvements. Has anyone else taken this? Not sure what to expect.
Today I’m gonna hide an easter egg for myself, cause I sure as hell won’t remember where I put it tomorrow. #coviddementia Happy Easter y’all 💝
Hale: Your Personal Air Purifier by Airinum — Kickstarter Don't miss out on this early bird offer and save €44 on the original pricing. It's only available for the first 48 hours of the Kickstarter campaign. kickstarter.com/projects/airin…
It's me in the press again. Talking to @Clare_Sansom about #LongCovid. #FolloMe for more. Long COVID: What can help? via @https://twitter.com/BylinesEast eastangliabylines.co.uk/long-covid-wha…
Literally 'for release' on #LongCovidAwarenessDay. Couldn't get more blatant.
Literally 'for release' on #LongCovidAwarenessDay. Couldn't get more blatant.
Autoimmunity in Long Covid and POTS academic.oup.com/ooim/article/4…
🚨Does this look like FND to ANYONE? That's her diagnosis apparently! This is horrific gaslighting. My heart aches for her and her family. 💔 #MedTwitter #Neurology #PANS/PANDAS
🚨 New: American Journal of Medicine: "High Incidence of Autonomic Dysfunction & Postural Orthostatic Tachycardia Syndrome in Patients with Long COVID: Implications for Management and Health Care Planning" 79% of #LongCovid subjects had POTS @amjmed 🧵/1 amjmed.com/article/S0002-…
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Shaney Wright @ShaneyWright
15K Followers 494 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Long Covid SOS @LongCovidSOS
27K Followers 941 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
elle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
Staci Burzlaff @BurzlaffSt7612
67 Followers 5K Following
Cami Escobeo @CEscobeo89771
98 Followers 5K Following
Brianna Rusko @RusBriann
45 Followers 5K Following
Karla Fisk @KarlaFisk
3K Followers 7K Following #BLM Green bldg pro (LEED AP), Organizer: @InwoodLegal Action, member: NMN4$. Grateful to be living with my husband & dog Belle in Inwood, Upstate Manhattan.
Carolin Pastel @PasteCarol
84 Followers 5K Following
Sleffiez @sleffiez7098
2 Followers 49 Following
Catrice Krenzer @CatriceKre55105
119 Followers 5K Following
Joette Sturgeon @joet_joette
58 Followers 5K Following
keanu Reeves @Reeve47331
27 Followers 427 Following My goal is to relate peacefully with my supporters on this platform while upholding 100% respect for each and everyone's support of my works❤️
Manu Bañuelos. @manubanuelos
179 Followers 613 Following #Covid19 #LongCovid #15march #longcovidawareness #covidpersistente #longcovidkids #covidisAirbone #enfermedadcronica #fibromialgia #MECFS #postviral #Salud.
Pia Loner @LonerPia28648
75 Followers 5K Following
Rina Bogart @RinaB12467
93 Followers 5K Following
Madison Rapalo @madiso_rap
27 Followers 5K Following
Michael Alexander @Michaeltikus
947 Followers 2K Following I like animals 🐙 Zoology/Psych PG interested in nature connections, diving and tapirs. Member @Long_Covid / @RenegadeRes Lead contributor @wecrunchme LC-PLAN
Rosalind Lopze @lo_rosali
37 Followers 5K Following
Sri Fontus @SFontus23870
49 Followers 5K Following
Renna Yoneda @yone_renn
71 Followers 5K Following
Rete Long Covid Press @ReteLongCovid
144 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
Carletta Minotti @CarlettaMi79939
83 Followers 5K Following
Bayan Neid @BayanNeid53792
82 Followers 5K Following
Amar Sharif @AmarSharif11
482 Followers 476 Following Consultant Physician Gastroenterologist and Hepatologist MBBS, MRCP, MD, FRCP.
Kelly Edwards @KellyYayalldayy
306 Followers 2K Following
James spader(Raymond .. @Raymondredd14
21 Followers 79 Following Spader is just the coolest guy around. Period. Follow to discover the coolness of The Spades. Also the fashionblogger account for Raymond Reddington.
Brutus Berserk @BrutusBerserk
296 Followers 3K Following
Carlyn Novacek @CarlynNova37810
68 Followers 5K Following
EPIPOLE of Phoenix @EpipoleofPHX
1K Followers 3K Following WRITER, DISABLED, PRO-CHOICE, PRO-WOMAN, FEMINIST, ANTI-EPIDURAL,ANTI-ESI,NOZEMPIC(CSF leak, HT, migraines,EBV, spinal lipoma & BPD)LET’S GET WOMEN TALKING!
Lekisha Arcaro @ArcarLekish
29 Followers 5K Following
Lourdes Pasqua @PasquLourd
76 Followers 5K Following
Emelda Baynham @baynh_emel
33 Followers 5K Following
Anika Prust @AnikaPrus
38 Followers 5K Following
Sun Laduke @LadukeLadu
37 Followers 5K Following
Nela Roseberry @rosebe_n
75 Followers 5K Following
Gideon Peter @GideonPete73740
154 Followers 5K Following
Barry Dorsey @barrydorsey
397 Followers 902 Following Long Covid March 2020 | Filmmaker | Screenwriter | The Citadel ‘91
@marcusfitzsimons.bsk.. @MarcusFitzsimon
21K Followers 23K Following @marcusfitzsimons.bsky.social #ProgressiveAlliance #FBPA #FBPPR #FBPE #FBNHS #ScrapNHSBill #GTTO #Climate #FreePalestine. Be aware: Animal Lover. He him his
Carly Wenstrand @WenstraCar
67 Followers 5K Following
Jasmine Ackermann @AlexSmith750176
15 Followers 103 Following Winters are on their way, and everyone is worried about winter shopping but on a budget. The Movie Fashion offers you a Winter Sale on Jackets, which you can n
Long COVID is a mass .. @lhaztknup
5K Followers 7K Following One of Millions Missing, had severe LC. Now its getting better. I want to help reaching attention f this TERRIBLE illness. No medical advice.
Safe Workplaces Actio.. @Ventil8_Justice
86 Followers 656 Following 🚀 S.W.A.G | Ensuring SARS-Free workplaces by demanding indoor CO2 monitoring, positive-pressure ventilation, CR Boxes, and cutting-edge disinfectant lighting💡
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Shaney Wright @ShaneyWright
15K Followers 494 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Gez Medinger @gezmedinger
20K Followers 720 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
The Sick Times @thesicktimes
3K Followers 281 Following Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJx
Robin. STOP HURTING E.. @robinsoped101
2K Followers 4K Following 20 + yr #MECFS. educator, therapist, disabled, retired. https://t.co/LH3gVB18mn / @pandemic_equity / https://t.co/Nj1m2can0R…
Synapticure @synapticure
4K Followers 505 Following Personalized virtual clinical care is finally here for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington's
MIRAME ARTS @MIRAME_ARTS
995 Followers 135 Following Verein zur Förderung der Lebensqualität von #MECFS- und #PostCovid- Patienten durch Privatwirtschaft und Politik. Spenden: siehe -linktr.ee-
Hugo @mx__worldwide
592 Followers 1K Following They/them | 28 | ME/CFS since 2016, (very?) severe since 2022 after covid infection | Severe hyperacusis | Pro disability justice & pro Palestine 🇵🇸
George Monbiot @GeorgeMonbiot
583K Followers 3K Following The corpse at every wedding, the bride at every funeral.
Laura Tabacof, MD @LauraTabacof
203 Followers 29 Following
Takehiro Takahashi, M.. @taka_takehiro
459 Followers 345 Following Associate Research Scientist @YaleIBIO @Virusesimmunity lab
WE&ME Foundation @weandmecfs
3K Followers 50 Following WE&ME Foundation funds and supports collaborative research projects to combat #MECFS and related disorders.
Vipin M. Vashishtha @vipintukur
14K Followers 461 Following Pediatrician, ‘rational’ vaccine thinker, Editor Covid Vaccines, TB on Vaccines & many others, Past-Convener IAP COI, Member-WHO-VSN (https://t.co/eOvazlWULO)
Veronika Hackenbroch @VHackenbroch
874 Followers 602 Following staff medical journalist at the German newsmagazine Der Spiegel, mother, committed to evidence based medicine, always looking for a good story, views are my own
Alberto Imarisio @ImarisioAlberto
83 Followers 224 Following Neurologist and PhD student at @unipv 👨⚕️🧬 Researching #Parkinsons Electronic music 🎧
Markus Eyting @meyting3
249 Followers 333 Following Discrimination, Health, Individual Information Processing & Belief Formation, Psychological Consequences of Poverty https://t.co/qK71zB4XgZ
elle carnitine 🍉 @elle_carnitine
4K Followers 968 Following very sick with covid-induced myalgic encephalomyelitis • kept alive by my beloved @predi_cam_ents • she/her
Vivien Béziat @BeziatV
726 Followers 478 Following Primary immunodeficiencies, hyper-IgE syndrome, papillomaviruses. Still a NK cell aficionados.
Himmat @himmatb15
955 Followers 666 Following Writer and editor on pause due to Long Covid/vaccine injury since 2021. Severe and fully bedbound since 2023. ME/CFS | POTS | hEDS. he/him
Syd @fcknsyd
2K Followers 1K Following 24 year old who’s life is currently on pause because of #LongCovid since April 2022 #POTS #Dysautonomia #MECFS #hEDS @CadAgainstLC
katiana mekka ❤️�.. @katiamek
1K Followers 571 Following 26. Former Architecture student dealing with severe LongCovid and ME/CFS , since 2021. . inst: k_aotic
Amanda Crist @ZebraLoveCo
215 Followers 443 Following Writing about #hEDS 🦓, #muscle, health☕️, genetics, and how I’m trying to walk again🌱 #bedbound #homebound #calfproblems #zoology
🌻Kirsty @Kirstycfsmelife
587 Followers 712 Following CFS/ME 15+ years and POTS 🐼 trying to improve my health and one day fully recover
Pandemic A. Index @pan_accindex
5K Followers 3K Following A public archive of pandemic disinformation actors and biting commentary, supported by readers like you.
Yale Center for Infec.. @YaleCII
1K Followers 91 Following We are the Yale Center for Infection and Immunity, dedicated to understanding how infections cause diseases and to the developing better vaccines.
Sharon Cohen @SharonC97936831
814 Followers 4K Following #TwitterHaiku; Tulane MBA; LSE; Univ of Wisc Mad; former career financial services; international bus. #chronicillness; #physicaldisability.. 4 NIH studies
Neurologist Mom @NeurologistMom
5K Followers 264 Following A neurologist, M.D. a mother of a 15-year-old girl with severe neuroCOVID/ME/CFS who has been managing her daughter's treatment at home since October2022
Rene Sugar @renesugar
4K Followers 4K Following
PostX @TeamPostX
1K Followers 1K Following Co-Founder of #UniteToFight2024 Program Manager // Pharmacist and Political Scientist //Long Hauler since 2020
Oren Gottfried, MD @OGdukeneurosurg
192K Followers 309 Following Duke University Neurosurgeon / Spine Surgeon / Professor / Vice Chair / TV Advisor, Producer, Writer, & Actor
KC Martin-Stone @KCMartinStone
2K Followers 5K Following Archaeologist. Comedian. Occasionally competent MF. Leaky bag of brain juice. GoFundMe for medical / survival. She/her
Amy Rochlin @amyrochlin
852 Followers 2K Following Executive Director, @MetrodoraFdtn - Proudly working to advance progress for patients living with chronic, multisystem disorders. Opinions are my own.
Metrodora Foundation @MetrodoraFdtn
366 Followers 414 Following Catalyzing scientific collaboration and discovery to find cures for chronic, multisystem disorders.
I🖤 @inadarkroom247
905 Followers 310 Following 25, UK and Dying from covid induced very severe ME. POTS + mild MCAS. FUNCAP 1.2
Whitney Dafoe @DafoeWhitney
10K Followers 38 Following Severe ME/CFS patient and advocate. Photographer, filmmaker, artist, creative. Sick since 2004, bedridden since 2013. Never. Giving. Up. ✊
Isabel Ramirez-Burnet.. @IsabelRamirezRD
3K Followers 1K Following NBC-HWC CEO @renegaderes & Todologa @remissionbiome patient-led, decentralized, human-centered research. #MECFS #longcovid #postinfectious #chronicillness
Steve Chalmers @FStevenChalmers
1K Followers 3K Following Let's tear down silo walls in the data center. Spent a decade each in servers and storage, then networking. Consultant to Daedaelus Corp. Retired from HPE.
Annelise Barron @annelise_b
692 Followers 866 Following Associate Professor of Bioengineering at Stanford University; investigating novel mechanisms of Alzheimer's Disease & human innate immune system dysregulation.
Başar SARIKAYA @basarsarikayamd
3K Followers 1K Following Associate Professor of Neuroradiology, University of Washington, PGY-24, G93.32
Lauren ✨ @dutchlauren
10K Followers 292 Following 28. Stay-at-home cat parent. Ex-YouTuber and book blogger. #ActuallyAutistic & severe ME. Passed away January 27, 2024 🖤 Media enquiries: [email protected]
Greta Karen Wood @gkwood3
1K Followers 1K Following NIHR Academic Clinical Fellow @NIHRresearch Infectious Diseases @LSTMnews/ @LivUni | CRF @covidcns | @RCPLondon Rep | she/her | Views my own
Jim Hoffman @JimHoff4295393
126 Followers 98 Following Advocate for the expanded use of non-injectable heparin whole blood purification for the treatment of many acute and chronic Illnesses.
Scott Shapiro @ScottShap34
11K Followers 1K Following Racing Analyst, Fantasy/Betting: NFL & PGA, University of Wisconsin.
Josh Hirsch @JoshuaAHirsch
4K Followers 448 Following Neuro #IRad @MGHIR1, #Radiologist #MGH @mghimaging with interest in #stroke, #cancer, #spine #healthcare policy #FOAMRad #FOAMEd
Rick MaskDonald MD �.. @Kidsdoc1Rick
11K Followers 3K Following Just a pediatrician. Husband,father to 3 boys & 1 good boi, lost in the woods when I can, cyclist, paddleboarder #Tweetiatrician
Hiroshi Yasuda (保�.. @Yash25571056
35K Followers 592 Following Scientist & Professor (科学者&教授). Tweet is a soliloquy based on my personal views (ツィートは個人の見解に基づく独り言です).
Symptomodyssee @symptomodyssee
2K Followers 3K Following Bessere Diagnostik & Versorgung für Patienten mit untererforschten Krankheitsbildern. "Das ist nur Stress" ist keine Diagnose. 🐘 @[email protected]
Norges ME-forening - .. @ME_Rogaland
984 Followers 1K Following (The Norwegian ME Association - Rogaland) Deler nyheter og aktualiteter om sykdommen ME. Bak spakene: Astrid Meyer-Knutsen Mail: [email protected]
🐸 Froglet @froglet80
2K Followers 1K Following #LongCovid #ImmuneDeficiency #Homeless 4+ yrs w/o real treatment or gov't aid & #Crowdfunding 2 live, 📌 for #MutualAid boosting, #PwLC #FBLC
SARS-CoV-2 Spike Protein Impairs Endothelial Function via Downregulation of ACE 2 | Circulation Research - Never forget, always remember ahajournals.org/doi/10.1161/CI…
I’ve just found myself for the 1st time needing to lie down to relieve shoulder/neck pain. I’m just past my 4th covidversary. Last week I had my 1st episode of sleep paralysis & Im suspicious I’m developing narcolepsy too. Even 4 years on LC/LV is the gift that keeps giving 2/2
I had terrible neck pain around the 2nd year mark which calmed down. It wasn’t “coathanger pain” - it wasn’t position dependent. It was like a constant level of inflammation , a dull achey pain that occasionally got worse to the point where I couldn’t sleep due to it . 1/2
UTTERLY DISGUSTING ABLEISM FROM THE TORIES. theguardian.com/society/2024/a…
@keithgeraghty @RCPhysicians @bodgoddard @NICEComms Only a sick mind could think up something like this.
@keithgeraghty @RCPhysicians @bodgoddard @NICEComms If there was ever an example of why it is absolutely barmy to allow the insidious and downright bizarre over-reach of psych into physical health conditions, this is it. This person is not OK. Subjective MH 'theories' being applied to patients with measurable physical disease.
Of the many things that I learned since getting Long Covid, one of the most shocking ones to someone like me in a field like computer science is that there's an entire community of MDs dedicated to judging sick people.
Warning this slide may upset: please do read this one @RCPhysicians @bodgoddard Are physicains claiming ME/CFS patients gain from having ME/CFS? I think this slide should form the basis of some complaint on this @NICEComms. "unwanted sexual attentions" really?
#BloodySunday Pain Pain Pain - Burning Pain from Head to Toe. Tremors. Feeling of being Poisoned. Head Noises like Turbines and more. #FQAD #CCI #Lyme #POTS #SmallFiber #MCAS #ME
My dad just came from Belgium, aka that land of chocolate and brought me some chocolates. Yum 😋
Sorry if this offends some of my friends… but it’s where I’m at I know many can relate😤💛 #igetknockeddown #butigetupagain
I have a confession to make: Having #LongCovid means that I have to spend a lot of time in bed, not exercising. Having a bit of a tummy (and that's all it is) is adversely affecting my mental health. It's upsetting me. The trouble is, all I crave is unhealthy food!
I hope people understand that in medicine the term “#functional” means “ we just haven’t worked out what causes this yet”
International collaboration is crucial to gathering more reliable clinical evidence for prevention and follow-up treatment. Special attention should be given to the elderly & immunocompromised, as they are more susceptible to the #LongCovid 19/19 frontiersin.org/journals/neuro…
Future development should focus on aggressive post-infection control of inflammation and the development of targeted therapies that target ACE2 receptors, ERK1/2, and Ca2+. 18/18
Although there are currently few reported cases of new neurodegenerative diseases after COVID-19, the increasing number of long COVID patients suggests a potential rise in such cases in the future. 17/
Hypometabolism was observed in the bilateral dorsolateral prefrontal cortex, right caudate nucleus, & bilateral posterior parietal cortex (C). Marked relative hypermetabolism was observed in bilateral middle temporal cortex, basal ganglia, brainstem, and cerebellum (D). 16/
Brain FDG-PET data revealed diffuse cortical hypometabolism with relatively preserved metabolism in the sensorimotor cortex. 15/
Furthermore, the use of FDG-PET is advocated to quantify the relationship between neuroinflammation and psychiatric and cognitive symptoms in patients who have recovered from COVID-19. 14/
FDG-PET imaging can provide a more accurate assessment of the severity of patients with long COVID. Molecular imaging can accurately assess the severity of neurodegenerative diseases in patients with COVID-19 after the acute phase. 13/
The three most commonly used diagnostic methods in #longCOVID: magnetic resonance imaging (MRI) fluorodeoxyglucose positron emission tomography (FDG-PET), and EEG. 12/
Trends for United States
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