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Tweets148K
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Followers4K
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Likes18K
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Vijay Iyer PhD @vijayiyer312
3K Followers 2K Following Patient advocating science for #mecfs & #dysautonomia (incl via #longcovid & #postvac).👷🏾♂️Support #neuroscience users & use cases of @MATLAB. Tweets my own.
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Dr Satoshi Akima FRAC.. @ToshiAkima
34K Followers 3K Following Nephrology & Internal Medicine. Immunothrombosis incl DIC. @ISTH Member. No Conflicts of Interest. Views my own etc
Harriet Carroll: Long.. @angryhacademic
8K Followers 4K Following #LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots
Herbert Renz-Polster @RenzPolster
8K Followers 504 Following physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS (may also visit: @kinderverstehen: on child development (German)
Erin C. Sanders, MSN,.. @ErinSandersNP
19K Followers 9K Following Proud Mama & Wife | Nurse Practitioner & Clinical Scientist | Prev MIT, Stanford | #Disabled ♿️ | #WomxnsHealth 🧠 | Catalyst | Connector | #JusticeAccomplice
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Amy Proal, PhD @microbeminded2
29K Followers 5K Following Microbiologist at PolyBio Research Foundation: helping research teams collaborate on infection-associated chronic disease #me #longcovid #lyme #eds @polybioRF
Molly Gordon @shaboom
13K Followers 11K Following Elder starlet. Tough canary. Ecstatic cranky. Queer. Grandma. #LongCovid #MECFS @MollyBoom in various places.
Rete Long Covid Press @ReteLongCovid
150 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
Catherine Filion @filionc
16 Followers 222 Following
Octavia Drone @octav_dro
65 Followers 5K Following
Patsy "Dr. Harmony" E.. @HarmonyUsInc
45K Followers 24K Following #Traumatologist #Activist #DrHarmony #MentalHealth #Sexpert #DocAnon #drharmonyarmy #Shoggath #AlchemistArtist
high-powered mutant o.. @amandatoryfigs
791 Followers 973 Following zero redeeming qualities. one of god’s own prototypes. too weird to live, and too rare to die.
Carol Moore @carolmoore1776
263 Followers 1K Following Student of #consciousness, #feminist #antinuke #peacenik #libertarian #decentralist writer. Websites slowly coming back. Facebook/CarolMoore1776
somevelvetmorning @SandraHillier6
41 Followers 299 Following
User101m @User101m158164
48 Followers 119 Following
Scott @Scott52836149
279 Followers 623 Following ♡ Lover of all God's creations ☆ Human from planet earth 🌏 Sinner Awaiting Jesus Christs return.
Rebecca W1986 @W1986Rebecca
175 Followers 406 Following Mum. English Teacher. Lang and Lit Content Creator. MA in Education. Teach First Ambassador. PansPandas advocate.
easternpens @easternpens
60 Followers 200 Following Easternpens is revolutionizing how we work remotely. Track conversations and projects on the go. #easternpens WhatsApp us Today: +254797405682
Greethursl @greethursl85265
0 Followers 197 Following
Mojoroxy 💛🦋#lon.. @roxy_mojo
13K Followers 14K Following Blessed Be 🌕#longcovid since 3/2020 #MECFS #4yearsurvivors
maumiewow @maumiewow
64 Followers 326 Following wider die dystopie /// rechte und schwurbler werden geblockt
ゴルゴB👉アル�.. @ieee1393
4 Followers 19 Following アルツハイマーリスク遺伝子ApoE3/4 本人、薬剤性ジスキネジア （パーキンソンの近縁病） 子供や孫へ向け、アルツ予防に特化したXに！
Adrian @boerscht
1K Followers 177 Following 28y | Ingenieur | Bergsteiger & Fotograf #MECFS seit 01/2023 |
Annie5757 @herman_amalie
225 Followers 2K Following Surviving Sjogren’s (Neuro) patient w Dysautonomia, SFN, POTS, MCAS, Chronic Daily Migraines.
Tet @HaqBary
101 Followers 533 Following
Tamara Jade @xTamaraJadex
491 Followers 2K Following Aspie mama of 1 amazing aspie teen girl ♥️...& 2 nutty Staffies🐾😂
🇵🇸😷 @c19_awareness
49 Followers 2K Following
Subrata Roy @RoySubrata_SR
41 Followers 201 Following
Amparo @amparo_cabal
534 Followers 2K Following
Tom Jones @tommyjtookalook
606 Followers 2K Following 5🏒💉,Curious Cat 🦁, #herderofcats, past scout “Be Prepared”, Construction Super , risk assessor,am.entomologist , use all tools in toolbox! 🇨🇦LCMECFS hauler
H.L @sam812023
221 Followers 911 Following
“rp” @solodoc
397 Followers 630 Following Sic itur ad astra. “Life is a series of compromises I will lose precisely zero sleep over.” #alwayslookup
Jesus Castro, Ph.D. @JCastro_Marrero
990 Followers 1K Following PhD senior researcher in the Rheumatology Division (Research Unit in ME/CFS and Long COVID) @VHIR_ at Vall d'Hebron University Hospital Campus @vallhebron
Becky A Robertson @AnciraBecky
4K Followers 6K Following Survivor. Proud mother. Teacher. Philanthropist. Activist. Trying to make a difference. #maskup #longcovidawareness #LCDC #March15 #ValueCognition
Elle ✌🏼Vote Blue.. @Elle07335804
342 Followers 441 Following #VotingRights, #EqualRights, #HealthcareIsAHumanRight, ♥️=♥️, #Veterans, #Kids, #Education, #CleanWater, #NoGMO, #RightsOfNature, #NoMAGA #NoPORN. 🇺🇸🇺🇦🇮🇱
VictorG @VictorG14tdc
418 Followers 4K Following Pendant ce temps-là... Mastodon: @[email protected]
The impatient patient @HalfThePerson
909 Followers 476 Following Ultramarathoner, triathlete & #LongCovidAdvocate I never wanted to be
Lesley W @WorkmanLesley
568 Followers 2K Following I love media, ideas, tech, business, and entrepreneurship. Ever curious about the human experience, the state of the world, creating meaning, connecting.
Helge Sverre Risan @HelgeRisan
157 Followers 468 Following Vitebegjærlig og er veldig glad i ting jeg ikke kan. Kan tenkes at jeg har plukket opp ett og annet på veien :) Familieterapeut. ME
OQ @Nnwwzz124
1K Followers 4K Following
Amy G ✝️🐈🇺�.. @alabeaty
1K Followers 3K Following (Non-MSM)News Junkie, Battling MS, Unapologetic Anti-Vaxer, Naturopathic Medicine follower, Retired IT Developer, Conservative
Aida Buireu @AidaBuireu
15 Followers 194 Following
Rhi @RhiaRhiaRhi
1K Followers 726 Following Any pronouns. Bsc, PgDip Molecular Biology. Neuroscience Nerd & Science Communicator. Eternally trapped at VUW.
Tania Melnyczuk @ekverstania
13K Followers 8K Following Disability rights activist, artist & lifelong learner. Mostly at https://t.co/jlCNiy321g My handle is @alphabetania on Bluesky and Post. 😷
Ale @Aleds1590
3 Followers 58 Following
Markus @raspyvotan
96 Followers 619 Following
MoniqueSteekelenburg @Monique_026
143 Followers 213 Following | Self-consciousness is your model of you which is a part of your model of the world | SARS-CoV2 February 13, 2020 / #LongCovid
AAnu @5am_dreamer
0 Followers 22 Following
Sherley Isler @SherleyI68372
78 Followers 5K Following
Verlene Tomlison @TomlisonVe81509
27 Followers 3K Following
Adela Pickles @AdelaP
651 Followers 3K Following
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Farid Jalali, MD @farid__jalali
24K Followers 1K Following Personal account. Tweets are not Medical Advice. Posts = personal opinions only, not professional opinions. RTs + likes ≠ endorsement.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Vijay Iyer PhD @vijayiyer312
3K Followers 2K Following Patient advocating science for #mecfs & #dysautonomia (incl via #longcovid & #postvac).👷🏾♂️Support #neuroscience users & use cases of @MATLAB. Tweets my own.
Dr Satoshi Akima FRAC.. @ToshiAkima
34K Followers 3K Following Nephrology & Internal Medicine. Immunothrombosis incl DIC. @ISTH Member. No Conflicts of Interest. Views my own etc
Harriet Carroll: Long.. @angryhacademic
8K Followers 4K Following #LongCovid Scientific Consultant Hon Research Fellow, Lund Uni PhD Nutrition & Metabolism Tweets: nutrition▪health▪all-things-science▪activism▪#TeamClots
Herbert Renz-Polster @RenzPolster
8K Followers 504 Following physician-researcher, paediatrician, ME/CFS since 2016. This account is about science, esp. CFS (may also visit: @kinderverstehen: on child development (German)
Rezwan Siddiquee @RezwanSidd
165 Followers 416 Following Research Associate at Lau Lab @Sydney_Uni in Synthetic Biology/Protein Biochemistry. Easily distracted.
Veera Rajagopal @doctorveera
17K Followers 4K Following MBBS, MD, PhD | GWAS storyteller | Scientist at Regeneron | Human genetics & drug discovery in Neuroscience & Psychiatry | He/Him
Dr. Salomon de Ni Una.. @DrNiUnaDietaMas
110K Followers 2K Following Usen estas 5 ayudas https://t.co/v7lQ01PrQL
Jesus Castro, Ph.D. @JCastro_Marrero
990 Followers 1K Following PhD senior researcher in the Rheumatology Division (Research Unit in ME/CFS and Long COVID) @VHIR_ at Vall d'Hebron University Hospital Campus @vallhebron
Ron @Ron
21K Followers 692 Following ≡ Computer Scientist א Christian ≡ CEO — @BrightLabsTech Open-Source Developer — https://t.co/aJScszApVK
Andy Truman PhD @TrumanLab
6K Followers 5K Following Group leader, Charlotte Group for Proteostasis Research (https://t.co/Ah3o8jadAQ). Interested in the role of Hsp70 PTMs
Tania Melnyczuk @ekverstania
13K Followers 8K Following Disability rights activist, artist & lifelong learner. Mostly at https://t.co/jlCNiy321g My handle is @alphabetania on Bluesky and Post. 😷
Derya Unutmaz, MD @DeryaTR_
290K Followers 4K Following Professor, medical scientist, immunologist @jacksonlab research in aging & cancer immunotherapy. Interests: #longevity #robotics #AI #Scifi #tech #space🇺🇸🇹🇷
ME Action Now @MEActNOW
3K Followers 5K Following https://t.co/Vyrf7yGws7 🌱#Vegan 💙Photography💙Birds💙Animals 🌱Gardening 💙#MECFS LongCovid #POTS #MCAS💙BLM💙Resist💙Equal rights💙Gun Control IFollow
Maple Life TV Vancouv.. @MapleLifeTV_Van
110 Followers 4 Following Fun, Hip, Events, Opinions Entertainment Lifestyle Brand Made in #Canada 🇨🇦 DM for collabs!
NOLACreoleChick @CreoleChick
415 Followers 2K Following Every day is a struggle. #MECFS since 2005 #MCAS #NEISvoid #HOH 8th Generation #NOLA native #LouisianaCreole #MedicallyDisabled Probable:#Chiari #hEDS #CCI
StudyRare 🧬 @studyrare
4K Followers 908 Following Board prep 4 @GeneticCouns students & @TheABMGG fellows. Led by clinical geneticist @dpique12 Monthly 📧 w/ board-style q's at https://t.co/r7TJ7GJZRW
Terraform Industries @TerraformIndies
14K Followers 880 Following We make cheap natural gas from sunlight and air
Casey Handmer, PhD @CJHandmer
28K Followers 3K Following Physicist, Immigrant, Pilot, Dad. Former Caltech, Hyperloop, NASA JPL. Founder @terraformindies. Read scrolls. Build more solar!
Jason Carman @jasonjoyride
21K Followers 2K Following Launching satellites @astranis & weekly startup documentaries via S³
Tara Foti, PhD MPH @TaraFotiPhD
813 Followers 772 Following Perinatal health researcher, Adjunct @usfcoph | Former @kpdor Postdoc, @usfcoph PhD, @URMC MPH | Now #disabled #LongCovid #PostVax #MECFS @RemissionBiome #R50
Laura Boné @2laurabone
288 Followers 890 Following Electric Vehicle Industry /Fighting ME/CFS & Long Covid
María Richardson @_diatoma
2K Followers 5K Following ES-EN. I write, I teach, I draw plants. Chronically ill en la Ciudad de México. #Renegade50 with #RemissionBiome. Ella/she/her.
Ben-Sahra Lab @bensahralab
2K Followers 963 Following #biochemistry, #metabolism, #signaling, #nucleotides, Northwestern University, @NUFeinbergMed, @LurieCancer
Dr. Maria Radzimanows.. @MRadzimanowski
198 Followers 320 Following Epidemiologin, bei der DigitalAgentur Brandenburg #DABB zuständig für Digitalisierung in Gesundheit und Soziales, priv Account&Meinung
Christy Collins 🍉 .. @sun_in_winter12
2K Followers 1K Following #LongCovid #MCAS #Hypermobile Sharing what I've learned on my own journey. Tweets are educational; not medical advice. https://t.co/fQgG5hR9RD
Mica Schachter, MD @neurona_critica
1K Followers 687 Following Neurologist @EmoryNeurology - Neurocritical Care Fellow @EmoryNeuroCrit 🇦🇷🇺🇸 Check my IG posts ⬇️
Johanna Seiden, MD MP.. @JohannaSeidenMD
403 Followers 391 Following Vascular neurologist @NeuroMonteEinst | Passionate about making neuro #MedEd more simple & accessible to all learning types | she/her | all opinions my own
Frontiers - Neurology @FrontNeurol
10K Followers 890 Following Research and updates from all @FrontiersIn journals in the field of neurology. #openaccess
Wilson (Yuqin Wu) @Wilson79078233
546 Followers 4K Following PhD candidate at Monash BDI, study in Glucagon signalling in metabolic control (supervised by Dr Adam Rose, the head of Nutrient Metabolism and Signalling lab)
Pinsolle Typhaine �.. @PinsolleT
40K Followers 894 Following PhD Medical Bacteriology , Dr en Microbiologie Médicale, spécialisée en résistance bactérienne aux antibiotiques #Lyme
Sáfárné Hatrágyi .. @HatragyiSafarne
447 Followers 992 Following Type 1 diabetes science Microbiome Health
Jennifer Hulme @jenniferhulme
4K Followers 2K Following Physician, Assistant Prof @UofT Family & Community Medicine | Health systems | Health equity | Health in all policies | Long COVID/ME/POTS. Tweets are my own
Nancy Delagrave @RougeMatisse
8K Followers 8K Following Société canadienne de la covid, coordonnatrice scientifique de Covid-Stop, physicienne, mathématicienne et citoyenne engagée.
Felicia Kate Solomon @myfacialpain
598 Followers 1K Following Head and Neck Patient seeking a Diagnosis and Medical Treatment for Benign Disease. Writer and Blogger
Bocquet Annelise 🔬.. @AnneliseBocquet
23K Followers 3K Following Docteur en Biologie Santé, enseignante d'hématologie/immunologie. En Science, on ne peut rien affirmer mais on peut tout discuter.
Masaki Komiyama, M.D. @kanachan2020
4K Followers 159 Following Ex-Neurosurgeon, HHT specialist, husband and father. I like embryology, functional vascular anatomy, vertebrates, dogs, and flowers. Tweets mine.
HarrisTryon Lab @HarrisTryonLab
1K Followers 812 Following Welcome! We are uncovering how bacteria impact skin health and disease. My views are my own. #dermtwitter. @LHooperLab, @hopkinsmedicine @haverfordedu trained.
Notes to my boy ✉�.. @notestomyboy
4K Followers 2K Following Hi, please see pinned tweet. My beautiful boy fell ill with #PANS #PANDAS when he was 9. I love you Son more than anyone can know and I am proud of you ❤️
Rebecca San Gil @Rebecca_SanGlia
660 Followers 570 Following MND researcher_CRISPR enthusiast_Early Career Postdoc
Madeline Miller @MillerMadeline
48K Followers 2K Following Author of THE SONG OF ACHILLES and novel CIRCE. Latin and Greek teacher, director of Shakespeare plays. She/her.
Sangwoo (Steven) Park @SangwooSPark
233 Followers 563 Following Postdoctoral Fellow @Harvardmed @MGHCancerCenter | Biophysics PhD @Cornell | Physics BS @KAIST | Ambassador @ASCBiology; Glycobiology, Immunotherapy, Biophysics
Kirst @kirstler31
2K Followers 939 Following Severe #MECFS 🛌 #LongCovid - March 2020 #PostVac #POTS #Renegade50 💫 @RemissionBiome
KarenG @tenacious_mumma
1K Followers 832 Following Mum/carer constantly fighting 4 health care 4 my beautiful daughter @spooniesophia bedbound with #lymedisease #severeME #POTS #chronicpain #allodynia #vertigo
Johan Van Weyenbergh @johanvawe
4K Followers 4K Following Researcher in #HTLV #HIV #NTDs respiratory viruses and vaccine response. 'Nothing in #human #immunology makes sense outside the light of #clinical #evolution'
Hector Chinoy @drhectorchinoy
4K Followers 2K Following Professor of Rheumatology & Neuromuscular disease, University of Manchester/Salford Royal, UK. Interests in myositis, running, Newcastle United , views my own!
Rachel Colson @rlcolson
426 Followers 201 Following chronic napper. rare disease patient. disability & chronic illness advocate. writer. #nlrp3/#caps #nlrp12/#fcas2
Rare Autoinflammatory.. @RACC_UK
2K Followers 3K Following A Registered Charity (1184846) for Patients and families affected by Autoinflammatory Conditions, in the UK. Members of @EURORDIS @_ERNRITA @NationalVoices
Autoinflammatory All @AAlliance_SAID
2K Followers 836 Following The Autoinflammatory Alliance (formerly NOMID Alliance) is a 501(c)(3) non-profit improving awareness, care & treatment for autoinflammatory diseases.
Chris Lattner @clattner_llvm
79K Followers 182 Following Building beautiful things like Mojo🔥 and MAX @Modular, lifting the world of production AI/ML software into a new phase of innovation. We’re hiring! 🚀🧠
Modular @Modular
18K Followers 2 Following The future of AI development starts here. Sign up to our 📪 Newsletter → https://t.co/gpuHGRyHTs. We are hiring → https://t.co/cPTAes0HMt 🚀
Vincent Abbott | Deep.. @vtabbott_
3K Followers 200 Following Maker of *those* diagrams for deep learning algorithms | 🇦🇺 | https://t.co/kE2BIGCiMY
Hrefna @hrefnask
1K Followers 869 Following #Mecfs & #Pots since 2012. Currently moderate/severe and mostly housebound. 🏳️🌈 She/her From the river to the sea, Palestine will be free 🇪🇭@renesugar Currently to ill to leave house for any testing so I’m literally just treating based on symptoms for the time being. I’m 95% sure if I’m ever able to I can get the venous testing through my cardiologist 🤞🤞🤞
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@renesugar Thanks Rene. I have been taking the sulodexide for 2 months, aspirin 1 - I haven’t seen any positive changes unfortunately
@renesugar @Friesein @tessfalor @apresj20 @ISlovan @KunstJonas @ChristinaVirgil @TomasoAntonacci @chydorina @Be_Kinderr @ahandvanish @agingdoc1 @microbeminded2 Also has Interstibg properties if your taking a glp1 ir any other incretin mimetic it can cause the apoptosis to shut down in beta cells.
@renesugar Yes, there are trials in progress. None have published the results of their research.
@Friesein @tessfalor @apresj20 @ISlovan @laurieallee @renesugar @KunstJonas @ChristinaVirgil @TomasoAntonacci @Be_Kinderr @ahandvanish @agingdoc1 @foundmyfitness @microbeminded2 There is an interesting study (done on Wim Hof and some trained volunteers) where they were injected with E. coli to trigger a infection cascade. In PNAS.
@renesugar @T14TT2 @IamMADELINEpod @nicktsergas @Michelle_Gamage I was put on the Coimbra Protocol years ago, I had incredible results, until the guy in Ireland who was prescribing it & selling the products became too greedy, charging outrageous prices..
@renesugar @Friesein @tessfalor @apresj20 @ISlovan @KunstJonas @ChristinaVirgil @TomasoAntonacci @chydorina @Be_Kinderr @ahandvanish @agingdoc1 @microbeminded2 Thx for posting / linking the JE vaccine story/thread.
@renesugar Ace, got it. That's very interesting! Like you say VZV + SC2 for me, as far as I know.
@saffronandsky @now_grace @RanaAwdish @WesElyMD @DocZing @MDaware @resiapretorius @PutrinoLab @dbkell @sunsopeningband @JanetDafoe @renesugar @RenegadeRes Almost a year and a half
@renesugar @nicktsergas @Michelle_Gamage I very much doubt they even know about it. Nobody's ever mentioned it. I do do trigger point injection for pain. And the pain is not why I started the maid process. It's the certain, but likely very slow, death by mitochondrial failure due to unmanaged #myalgicencephalomyelitis
@renesugar @nicktsergas @Michelle_Gamage Magnesium makes me incredibly sick. I suspect because I'm having difficulty producing glutathione which apparently is needed for magnesium processing
@renesugar @nicktsergas @Michelle_Gamage I have not been offered any treatments or supports for what is clearly looking like chronic active Epstein-Barr or chronic active some other kind of virus. And I can't get anyone to do another course of paxlovid yet. It's incredibly frustrating and infuriating
@renesugar @nicktsergas @Michelle_Gamage The doctors who assessed maid have no power to push for treatments for people pursuing me maid due to lack of supports. Only to assess the quality of life the patient is currently experiencing. There should be an intermediary body making sure people don't fall between the cracks
@now_grace @saffronandsky @RanaAwdish @WesElyMD @DocZing @MDaware @resiapretorius @PutrinoLab @dbkell @sunsopeningband @JanetDafoe UPDATE: Been off LDD x 2 months. CCI has not returned majorly. Several symptoms got much worse at first: - Exhaustion/PEM - POTS! Especially lightheadedness with standing - Insomnia - Skin/acne All improving with time. Thought you may find interesting @renesugar @RenegadeRes
@renesugar @FranceyME I may ask for these, as I get crushing chest pressure (but not chest pain) daily. Thank you.
@waysidewhelp @renesugar I ended up with calcium deposits all over my body and was told it was probably my parathyroid causing it.
@renesugar No, last PTH was Oct 2022, onset of my LC. Normal range at that time & I did not have any calcifications anywhere yet & none of these symptoms. Has not been repeated recently. Will try to see Endo w/ referral. Thanks. 🙏
@renesugar @nicktsergas @Michelle_Gamage My sense of things is no support not even postpolio. Only offer a care home with no disease treatment/support so basically you're going to die fast. They're both long viral diseases where the abdication is profound. While my pain is high it's the fatigue thati know will be deadly
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