Pam Bishop, PhD @pamelarbishop
Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can. United States Joined June 2014-
Tweets7K
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Likes21K
Question for U.S. #MCAS patients taking oral ketotifen--what is the best option for obtaining? My PCP will write the script, but doesn't know where to send it (not available in regular pharmacy). I know some compounding pharmacies may have it, also some online (??) #LongCovid
#LongCovid has given me cerebral small vessel disease, reactive gliosis, endothelial damage, reduced cerebral vasomotor reactivity, & reduced cerebrovascular reserves (lack of blood flow in the brain). This is likely what the vessels in my brain look like. This does not end well.
#LongCovid has given me cerebral small vessel disease, reactive gliosis, endothelial damage, reduced cerebral vasomotor reactivity, & reduced cerebrovascular reserves (lack of blood flow in the brain). This is likely what the vessels in my brain look like. This does not end well.
𝙆𝙚𝙮 𝙨𝙩𝙪𝙙𝙮 "𝗟𝗼𝗻𝗴 𝗖𝗢𝗩𝗜𝗗: 𝗽𝗹𝗮𝘀𝗺𝗮 𝗹𝗲𝘃𝗲𝗹𝘀 𝗼𝗳 𝗻𝗲𝘂𝗿𝗼𝗳𝗶𝗹𝗮𝗺𝗲𝗻𝘁 𝗹𝗶𝗴𝗵𝘁 𝗰𝗵𝗮𝗶𝗻 𝗶𝗻 𝗺𝗶𝗹𝗱 𝗖𝗢𝗩𝗜𝗗-19 𝗽𝗮𝘁𝗶𝗲𝗻𝘁𝘀 𝘄𝗶𝘁𝗵 𝗻𝗲𝘂𝗿𝗼𝗰𝗼𝗴𝗻𝗶𝘁𝗶𝘃𝗲 𝘀𝘆𝗺𝗽𝘁𝗼𝗺𝘀" nature.com/articles/s4138…
@EIFY Yes, we showed a bit about blood vessel disruption in this paper from Oct 2022. But I have a lot more new data I will be showing at the unitetofight2024.world meeting online next month if you are interested :) ncbi.nlm.nih.gov/pmc/articles/P…
#Migraine doesn't have biomarkers: MRI of the brain is typically entirely normal in people with migraine. We make the diagnosis based on clinical history, and we believe the patient that they are indeed IN PAIN and are not making it up for secondary gain! We don't call it "pain…
#Migraine doesn't have biomarkers: MRI of the brain is typically entirely normal in people with migraine. We make the diagnosis based on clinical history, and we believe the patient that they are indeed IN PAIN and are not making it up for secondary gain! We don't call it "pain…
Another 🔥 Tweet from @PutrinoLab
@ssaraviaandre The Bateman Horne Center has produced a video series aimed at clinicians which summarizes the state of scientific knowledge on PEM. youtube.com/playlist?list=…
The Guardian: “We must learn the lessons of Covid before another deadly disease strikes” ‘With new Office for National Statistics datashowing 2 million people reporting long Covid, we need to wake up…’ theguardian.com/theobserver/co…
“This is an ambitious and thorough study that is a good start, reaffirming the pathophysiologic mechanisms in ME/CFS that have been demonstrated in prior studies over the years,” Dr. Blitshteyn said. “While a lot of good testing was done, I would have liked to see the…
“This is an ambitious and thorough study that is a good start, reaffirming the pathophysiologic mechanisms in ME/CFS that have been demonstrated in prior studies over the years,” Dr. Blitshteyn said. “While a lot of good testing was done, I would have liked to see the…
Care to followup @nytimes I am not afraid to tell you the whole truth because there is no glimpse of better as long as we're ignored!
“In this study, it was exhibited that pNfL levels are significantly higher in #LongCovid patients with.. neurocognitive symptoms when compared to healthy controls,.. Additionally, poorer cognitive performance & fatigue correlated with higher pNfL levels.” nature.com/articles/s4138…
Dr. Iwasaki: 'Broadly speaking, there are 4 different hypotheses we've been pursuing. Number one is persistent viral replication, or remnants of virus antigen or RNA hidden way in tissues that are causing chronic inflammation. Second is autoimmunity. When that autoimmune...
Dr. Iwasaki: 'Broadly speaking, there are 4 different hypotheses we've been pursuing. Number one is persistent viral replication, or remnants of virus antigen or RNA hidden way in tissues that are causing chronic inflammation. Second is autoimmunity. When that autoimmune...
"Study reports new compound that halts replication of COVID by targeting 'Mac-1' protein in cell models" "It's a good therapeutic target...' medicalxpress.com/news/2024-04-c…
AMA: 'Akiko Iwasaki on what causes long COVID, brain fog, the Yale Paxlovid study and long COVID treatments' 'Our guest is Akiko Iwasaki, PhD, Sterling Professor of Immunobiology at Yale University.' ama-assn.org/delivering-car…
UniteToFight goes to the international corporations 🌏 Today we had our first #UniteToFight2024 presentation, as part of a theme week, as an external contribution. Participants from Asia, Middle East, Europe and Australia. Now , more people know #LongCOVID and #MECFS. It goes…
The same for me ! Thanks for sharing your thoughts @FrauXausNRW The first thought in the morning is #UniteToFight2024 and the last one before falling asleep as well. I don’t feel fear - because we all are highly professional in what we do. But I am nervous and excited. And…
The same for me ! Thanks for sharing your thoughts @FrauXausNRW The first thought in the morning is #UniteToFight2024 and the last one before falling asleep as well. I don’t feel fear - because we all are highly professional in what we do. But I am nervous and excited. And…
We're thrilled to announce our #WorldMEDay event Bridging Borders – Global Voices from the World ME Alliance on May 10th! We will showcase the committed work of non-profit organisations from across the globe, all building a #GlobalVoiceForME! Register: buff.ly/4b30ugO
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Daniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻
Elyse @LysTrack42
142 Followers 956 Following Wanderer🌊🌎Sunshine☀️🌻🐝Activism✊🏻 Here for medTwitter ❤
Alex Rice @alexrice6975
15 Followers 90 Following
65for65 @65for65
1 Followers 50 Following Raising awareness and money for Long Covid through the 65for65 challenge ✨
Z0mb13 nati0n @Z0mb13nation
678 Followers 5K Following Accepted the gift of salvation. Stand with Israel. Deace Show fan. Bible is my manual. Fighting for our kids future...so they actually have one.
Laila 🌻 @lailamourthe
214 Followers 2K Following Architect / 🏢🔬 . A decade through ME/CFS. #homebound 99% and #bedbound 80%.
290/67-NurseJennifer @NurseJennifer4
255 Followers 1K Following Nurse, Mother, Wife, and Biden/Harris Voter!!
Margita Kleye @KleyeMargita
206 Followers 2K Following
Emmanuel @ejustin46
13K Followers 519 Following Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. William Faulkner
Jessie Lee @jessieleelee99
145 Followers 300 Following
Carma Fiera @CarmaFiera
37 Followers 339 Following zeitgeist surfing. #LongCovid #FuckCancer Tired and retired. Libraries, cats, peace. Kndness first always.
Astrid S @Djinn79
48 Followers 543 Following
tdubster @tdubster
27 Followers 2K Following
singkepe @singkepe
2K Followers 3K Following 𓁹 Reminding you of your power • Awakening your mind and body to your healing potential and purpose • Certified Quantum Healing Hypnosis Tulum #QHHT #Hypnosis
song_bird_ @songbirdserene
814 Followers 3K Following
Curiosity @curiosity_itis
5 Followers 52 Following
Long Covid Educators .. @LCEducatorsUK
76 Followers 177 Following A group of educators seeking justice for injury/ill-health as a result of catching Covid-19 in schools as a direct failure of Gov.
Eric Fraser @thehypnoworks
2K Followers 6K Following Hypno/Psychotherapy in Glasgow. Libertarian, humanist, and generally nice chap.... Medical Autonomy - Free Speech - Limited Government. PLEASE FOLLOW BACK 😍..
Eric @Eroof5
54 Followers 214 Following Long Covid, Pots, # Suffering from bio-weapon. May God bless us
Laurel @Nana4031659
2K Followers 4K Following I’m a Nana who believes all people are equal! 🪶DESTROYING the 🌍for $ is BS!HAD ENOUGH OF LYING,SMITH/UCP/TBA yet, AB? Join us #ABResistance REMOVE UCP/TBA!
Susan Gantt @atlspg
1 Followers 22 Following
dawn loudenback @DawnLouden91491
5 Followers 50 Following
BigBlueWaveUSA® 🇺.. @BigBlueWaveUSA
155K Followers 146K Following #SaveDemocracy #BidenHarris #BlueCrew #FBR #BlueVoices #DemVoices 💙 #VoteBlue2024 #ConnectBlue #IFB - 2024 is Democracy vs Fascism #TEAMSTALLION
Stine Mari Lyngseth @Stinelyngseth
61 Followers 247 Following On the hunt for causes and cures for Myalgic Encephalomyelitis and Long Covid
Diana @LaraJamar7832
1K Followers 2K Following My name is Diana, and I have extensive experience and resources in investment finance. I like golf, swimming, traveling, and reading.🇺🇲🇺🇲🇺🇲
AmalieButterfly @AmalieButterfly
19 Followers 525 Following
Diana Taylor @dianataylorabz
59 Followers 409 Following
Battle Weary Wombat @3wombats
8K Followers 4K Following Glad you're seated it's a long story. Too long. Arts and Music from Opera to Immigrant U,Dandy Warhols. Living on Wurundjeri land . [email protected] and 🦋
Elizabeth William @Elizabethw30931
27 Followers 695 Following Elon musk manager x .. We the entire body of Tesla and Space X really appreciate your love and support…
Greg J. Marchand MD @MarchandSurgery
203K Followers 96K Following Dual board certified #MIGS & #OBGYN - against #genitalmutilation & #sterilization of kids under 18 for #GenderAffirming Surgery https://t.co/HRJLpqSuxG
herrywood @herrywood01
8 Followers 217 Following Love is not just a feeling; it’s my favorite adventure.❤️❤️❤️❤️❤️❤️🌹🌹🌹🌹🥰🥰🥰🥰
Glitter Resist 🏴�.. @Glitterresist
36 Followers 147 Following Improving healthcare for autistic people & others #autistic #actuallyautistic [email protected]
⚕️🩺Nurse 𝐸�.. @_LADubz
965 Followers 5K Following ER Nurse.HockeyPlayer.DogMom x2. HSP.ISFJ.Enneagram✌🏻w☝🏻.Introvert. #LeafsNation #NurseTwitter .Chronic Illness Multitasker.🚫med. advice.opinions my own
AJ Yalch @ajdontquit
88 Followers 194 Following Mental health warrior, Long covid survivor, Libertarian Anarchist, MMA fan, BJJ blue belt, Animal lover, Tattoo collector, Truthseeker 🇮🇪🇺🇲@KillZoNeTTV
🏊🏾♀️🏊.. @Septmbr26
112 Followers 779 Following
Mike G ☠️ @nolahoubear
368 Followers 963 Following Old lawyer/math/computer nerd. First computer experience was with IBM 1620. Still tinker, but mostly observe and stir up trouble between naps and games
Mel @melwin7777
75 Followers 1K Following
TopazStudios.com @TopazStudiosCOM
2K Followers 5K Following ONE chronic #illness to #disabled—follow @RenegadeRes—#longcovid #ckd #IgG #kidney #mecfs #pots #mcas #dysautonomia #pem #mitochondria $ltnc #lockdin #health
Maria reyes @Mariareyes90238
10 Followers 151 Following
Safe Workplaces Actio.. @Ventil8_Justice
86 Followers 655 Following 🚀 S.W.A.G | Ensuring SARS-Free workplaces by demanding indoor CO2 monitoring, positive-pressure ventilation, CR Boxes, and cutting-edge disinfectant lighting💡
Jimmy Blue A Musical .. @JimmyBlueMusic
266 Followers 1K Following Jimmy Blue: A play featuring the music and lyrics of Del Amitri. I'm over here if anyone needs me. https://t.co/gjAzACTIZa
WereOnOurOwn @letsblamerussia
3K Followers 2K Following https://t.co/ZfeStDneja #BoycottIsrael #CeaseFireNow #AaronBushnellHero
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Shaney Wright @ShaneyWright
15K Followers 494 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Gez Medinger @gezmedinger
20K Followers 720 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Daniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Jenna @Jenna_Lou13
28 Followers 128 Following Dream as if you'll live forever, live every day as if its your last
npi @Illusionist999
306 Followers 302 Following
SunsetWarrior @Namasteprecious
2K Followers 2K Following 💛Sunsets, light through trees.The moon,stars⭐Sea.Bird song💫Yoga/Nidra. LongCovid #Warrior 💙NHS Nurse 20 years🤝Residental Project Worker💙IWish for PEACE🤝🙏
Stacy Case @StacyCase_
12K Followers 3K Following What a Ride❣️ So Grateful: Wife-Mom-Journalist-Believer-Runner-Skier-Gardener-Thankful 🏆 Emmy & Murrow awarded News Anchor-Reporter MS➡️IL➡️IN➡️OH➡️NC➡️NY➡️TN
Lesley Walker @Lesley_Wa
1K Followers 2K Following Professional Learning @EducationScot Mum, Fifer, living with #LongCovid.🌻 Views mine; retweets not endorsements. #EdScotAML
Emmanuel @ejustin46
13K Followers 519 Following Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. William Faulkner
Katie Johnstone @SockFoam
740 Followers 718 Following She/her. Chronically ill with ME. Founder of the ME/CFS Medical Education Campaign, blogger on Substack.
Sophia⁷ @clintinoslucky7
2K Followers 1K Following Let yourself fall, someone might catch you. disabled/#MECFS she/her // @[email protected] . @clintinoslucky7.bsky.social
leurah @leurah_
723 Followers 98 Following love love love 💜 March 2020...in USA LC'er IG: covid_longhaulers_supportgroup
Sajid Javid @sajidjavid
304K Followers 1K Following Rt Hon Sir Sajid Javid MP | Member of Parliament for Bromsgrove | Former Chancellor of the Exchequer
UBuffalo Long COVID R.. @ubuffalocov
237 Followers 21 Following The University at Buffalo helps advance #LongCovid care in #WNY. Get answers, contribute to medical & scientific efforts + sign up for a long COVID registry
Julia MV @julialmv
2K Followers 404 Following Let's increase health equity Now: @AllofUsResearch at @ScrippsRTI & #LongCovid patient-researcher @patientled Then: @RockefellerUniv & @nygenome
Jason M @TheTrueJasonM
3K Followers 3K Following jasonm. bsky. social Still N95 masking. Not fooled by the minimizing propaganda constantly spewed at us by the government ,"health" officials, and the media.
Jessie Lee @jessieleelee99
145 Followers 300 Following
jellyfish 🍉🏳️.. @JellyfishEnby
110 Followers 568 Following chronically ill art appreciator and comics lover :)
Battle Weary Wombat @3wombats
8K Followers 4K Following Glad you're seated it's a long story. Too long. Arts and Music from Opera to Immigrant U,Dandy Warhols. Living on Wurundjeri land . [email protected] and 🦋
Diana Taylor @dianataylorabz
59 Followers 409 Following
Laura ⁷ 𐚁 @xawwwkidx
407 Followers 1K Following she/her , tweets in ger/eng , ND, disabled by covid, feminist @awwwkid.bsky.social will tweet about covid/LC, music, pop culture and cute animals 🏳️🌈
Rachel Hall-Clifford,.. @rahallclifford
1K Followers 867 Following Medical anthropology. Global health. @ Emory University. Parent. Enjoys sightings of the absurd and compassion.
Siham Karajoli @SisiKara94
41 Followers 112 Following 29, I used to be fun, but now I got Long Covid
XY-mecfs @XY21282343
249 Followers 633 Following My life is a parody. MECFS destroys lives, including mine. Former executive & MBA lecturer🇦🇺. Collingwood AFL. 🇺🇦🇮🇱 🇹🇼. Block idiots, fact deniers.
Rita Colistra @ritacolistra
932 Followers 1K Following assoc prof @wvumediacollege | Ph.D. @UNChussman | @BrandJRNY director | PR & IMC consultant | researcher & explorer | earth momma | appalachian
𝗦𝗵𝗼𝘄 𝗠.. @txsalth2o
86K Followers 1K Following Looks like only 6 of us paid attention in stats101. Part of the #altmiddle
Matt, Pre-School Dipl.. @statomattic
11K Followers 1K Following Telephones make strangers out of lovers. Zoom Happy Hour is an oxymoron. Views not my own. Probably funded by dark money. I leave 4-star reviews on Yelp.
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
CoronaHeadsUp @CoronaHeadsUp
12K Followers 737 Following The most important pandemic stories from around the globe. Proudly suppressed and deamplified by Twitter since 2020.
Sarah Goode @sarahgoode_news
247 Followers 137 Following Digital Host @WAVY_news | Formerly @DatelineNBC | DM with your stories.
Hillary Johnson: jour.. @oslersweb
4K Followers 950 Following The Why "Delicious" "Devastating" "Indispensable" Reimagining Ruth "..has a raw power" Osler's Web "A relentless, meticulous, highly persuasive expose."
katiana mekka ❤️�.. @katiamek
1K Followers 570 Following 26. Former Architecture student dealing with severe LongCovid and ME/CFS , since 2021. . inst: k_aotic
Elizabeth Ansell @elizansell
681 Followers 2K Following Founder @njfatigue. Previously at Showtime and ABC News, among other places. Quit career due to #MECFS. This is #NotJustFatigue.
Adam Rowland MSc @oneadds
26K Followers 3K Following Physio/S & C Trainer- 16yrs Pro sport; Ballet ,Rugby, Military, PGA tour, severely injured due to AZ 💉 vaccine
Nicole #KeepMasksInHe.. @chronicoley_me
149 Followers 1K Following PhD in biomedical physics. Disabled, chronically ill: endometriosis, severe ME/CFS, probably more. Mixed race, acespec, avid knitter, former dancer.
Workwell Foundation @4Workwell
3K Followers 2K Following #Nonprofit #research laboratory providing #disability evaluations, #education, and #resources for #MECFS, #LongCOVID, and other #fatigue related illnesses.
Debster, Resister @debstehn
3K Followers 3K Following Let’s just take care of each other, no religion, no borders, just love, art and science. More radical the older I get!#Resist And I’m OLD! Her/She
Tim @TimofejM77894
130 Followers 236 Following Severe myalgic encephalomyelitis triggered by mild COVID
WereOnOurOwn @letsblamerussia
3K Followers 2K Following https://t.co/ZfeStDneja #BoycottIsrael #CeaseFireNow #AaronBushnellHero
ᵉⁿᵗᵉʳᵒᵛ�.. @AtypicalPolioME
725 Followers 1K Following RHOMBENCEPHALITIS+LIMBIC ENCEPHALITIS | EPIDEMIC MYALGIC ENCEPHALOMYELITIS (Enteroviral Encephalomyelitis) (Ramsay M.E.™) | NEUROMUSCULAR DISEASE | DYSAUTONOMIA
Nick #AirborneCovidEx.. @NickAnderegg
2K Followers 867 Following DevRel, Coder, Writer, Raconteur. Masked #LongCovid ally/loudmouth. 🇺🇸in🇨🇦, he, cis, bi/queer. Tweets: public health, cognition, linguistics, ADHD, tech
Rehabilitation Scienc.. @UofTCOVIDRehab
2K Followers 287 Following Leading an international collaborative with the aim to enable innovation and excellence in COVID-19 rehabilitation research. #COVIDRehab
MillionsMissingNL @MMissingHolland
2K Followers 1K Following #Actiegroep #MillionsMissing Holland wil betere #zorg & sociale #gelijkheid voor #ME-#patienten.
Pyke @Pyke_Wielder
750 Followers 879 Following Biologist & non-consenting subject in a global open-air GOF research project, debilitated by SARS2 & watching the world burn. Prior account⚰️. X free speech=lie
Sevda Sarıkaya @drsevdasarikaya
87K Followers 420 Following Neurologist, Behavioral Neuroscience and Dementia 🧠Alzheimer’s School #MECFS Advocate
Phili_the_Eagle @Zero_Long_Covid
5K Followers 4K Following
Alexandra Langton @aklangton
231 Followers 817 Following DC Attorney advising on political law, congressional investigations, and FARA. @GeorgetownLaw alum. Tweets reflect my personal views only.
Cristian Serious @CristianSerious
287 Followers 2K Following Sharing my personal journey of navigating life with Chronic Fatigue Syndrome, CCI/AAI, and TC. #cci #mcas #mecfs #mespine
Olivier Clamaron @Cameron20370744
4K Followers 6K Following accompagnant en Energie. all is vibrations. sower of seeds of wellness, Satya, Energy. We are Divine beings incarnated. Know thyself 🙏🕊✌️🌟🌎🌪🌪💙🥰.
Dali L. Yang @Dali_Yang
21K Followers 7K Following William C. Reavis Professor of Political Science, University of Chicago. DMs open
Doctors had no answer or explanations. Jeff leaves behind a wife and four adult children. Covid is not the common cold or flu. It can lead to devastating outcomes. #LongCovid
Attended Celebration of Life yesterday of family friend and artist. Jeff had Covid a "number of times" followed by sleeping and neurological issues that regressed him to a child. He couldn't work. He'd hold brushes no longer able to paint. Tragically took his own life #LongCovid
@pamelarbishop We have an outstanding custom compounding pharmacy near us in Alpharetta GA. I bet they can compound and mail out? If you need the contact data I’ll DM it to you. Ketotifen did not work for Michael. But the pharmacy is top notch!!
@pamelarbishop What were some of the symptoms you were experiencing. I have a friend who seems to be going through a lot of long Covid neuro issues and was curious if this could be the cause
@pamelarbishop I’m allergic to everything green since having Covid. It’s terrible. Give it 90 days. It’s so amazing having energy again.
@ZieglerFrank Thank you Frank. I’ve been coming to terms with it since the day I could no longer work almost 2 years ago. We’ve held out for a long time. I’m trying to think of the positives. 🤷🏼♀️
“If it was THAT bad, they would do something…” Really? 🚨HIV 🚨Asbestos 🚨Miners Lung 🚨Tobacco Historically, governments ALWAYS put short-term financial gains above public health. Studies showed #Covid organ damage in 2020! (Pre vaccines) #LongCovid bmjopen.bmj.com/content/11/3/e…
@pamelarbishop Also, my 16 year old uses Uber and my 13 year old sometimes rides the city bus with his friends.
@pamelarbishop We have had to lean in on other parents.
@pamelarbishop My mother-in-law moved near us and she and my husband do all driving.
@pamelarbishop people want to help and are insanely generous - will go shopping for me too!
@mrzphd @ZieglerFrank @bhanlon15 @pamelarbishop @NorpelSam @barbara_nivens @SabanRollTide ‘Proving it’ and ‘gaslighting’ have been the worst aspects of this illness. I’d rather my hair fall out entirely than have gone through such emotional/psychological abuse & shame from ‘experts,’ family and ‘friends.’
@pamelarbishop Please call several compounding pharmacies because they vary in price dramatically (in my experience).
@ReneeCapo80 @ZieglerFrank @pamelarbishop @AnciraBecky @StacyCase_ @elleW902 @Namasteprecious @barbara_nivens @SabanRollTide These are beautiful, Renée.
@mrzphd @ZieglerFrank @bhanlon15 @pamelarbishop @NorpelSam @barbara_nivens @AnciraBecky Not only are we put on trial to prove our illness, but many lose almost everything they have before a good verdict.
Yes. I still mourn my life precovid. I've gone as far to throw out or donate precovid clothes because they aren't mine anymore. That person doesn't exist. I'm not sure she ever will. I try to embrace my new self. It is difficult. I still mourn my other life. #longcovid
Does anyone else struggle with grieving their old self? One thing healthy people don’t understand about chronic illness is the fact that many of us have to do this. Mourn who we once were. Mourn that certain activities we loved, we may never be able to do again. No one…
@ZieglerFrank @pamelarbishop @NorpelSam @AnciraBecky @StacyCase_ @elleW902 @Namasteprecious @ReneeCapo80 @SabanRollTide Absolutely Beautiful! Thanks for sharing Frank
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