Elizabeth Ansell @elizansell
Founder @njfatigue. Previously at Showtime and ABC News, among other places. Quit career due to #MECFS. This is #NotJustFatigue. notjustfatigue.org Greater NYC area Joined December 2017-
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Salon: Can nasal Neosporin fight COVID? Surprising new research suggests it works A potential treatment for COVID-19 may have been hiding in our medicine cabinets, a new study in PNAS has found salon.com/2024/04/27/can…
We’re releasing an additional 10 short educational documentary style videos in 2024…stay tuned…
"'All that frustration looks like opportunity to a growing number of new telehealth companies built around underserved chronic diseases...companies are betting that telemedicine makes practical sense for many patients whose conditions make it hard to get in-person medical care."
"'All that frustration looks like opportunity to a growing number of new telehealth companies built around underserved chronic diseases...companies are betting that telemedicine makes practical sense for many patients whose conditions make it hard to get in-person medical care."
May is a busy month for our community! We wanted to help everyone out by gathering these important US government dates for NIH and CDC meetings -May 2, 6, 15, & 28. #MillionsMissing week is May 3- 12 and #WorldMEDay is May 12th. #pwME #MECFS #NIH #CDC Thread with links ⬇️
Today from @NIH: 'We are excited to announce the upcoming PI-ME/CFS Symposium, which will be held on May 2, 2024 at the NIH Clinical Center in FAES Classrooms 3 & 4.' (Presentation Topics and Panel Discussions embedded) mregs.nih.gov/channels/F1P5-…
The Hill: 'Sanders’ long COVID funding bill misses opportunity to aid a similar chronic condition' By Maureen Hanson & Hillary Johnson "We ask that Sanders specifically name ME/CFS in his bill and include a generous budget for ME/CFS research..." thehill.com/opinion/461560…
Stop telling people with Long Covid that you just know they’ll get better soon. No bitch, you don’t know that. Hopes & wishes & empty greetings won’t get us anywhere. Instead of sending pointless messages with weird GIFs & too many emojis, send an email to your local politician.
Thank you to everyone who provided feedback to @SenSanders on the Long COVID Moonshot draft legislation. Today is the final day to provide feedback at [email protected]. Have any questions? I'm here as a resource if you have any.
Thank you to everyone who provided feedback to @SenSanders on the Long COVID Moonshot draft legislation. Today is the final day to provide feedback at [email protected]. Have any questions? I'm here as a resource if you have any.
GTFOH. Is this for real? Do physicians actually think we want to be like this? Financial benefits??? I lost a very lucrative career bc of this monster illness, much worse off now financially. Mystique?? Did a middle schooler make this up? #LongCovid #MECFS
GTFOH. Is this for real? Do physicians actually think we want to be like this? Financial benefits??? I lost a very lucrative career bc of this monster illness, much worse off now financially. Mystique?? Did a middle schooler make this up? #LongCovid #MECFS
I'm just gonna go ahead & document some of my primary losses: - Lost my work for years - Even now, can work 1/4 if that of what I used to, costing me £100ks+ - Lost my girlfriend I was in love with and thought I was probably going to marry - Years of physical torture, some so…
‼️ “The NIH study shows how much is altered in these individuals, with respect to pathophysiology,” Dr. Blitshteyn added. “Based on their data, #MECFS is clearly a CNS disorder, and fatigue is defined by autonomic dysfunction unrelated to psychological or psychiatric causes.”
‼️ “The NIH study shows how much is altered in these individuals, with respect to pathophysiology,” Dr. Blitshteyn added. “Based on their data, #MECFS is clearly a CNS disorder, and fatigue is defined by autonomic dysfunction unrelated to psychological or psychiatric causes.”
One big takeaway that I noticed with my 5 Congressional meetings this week - each staffer expressed they had a personal connection with someone close to them that was impacted by either LC, ME or POTS. All 5 meetings.
One big takeaway that I noticed with my 5 Congressional meetings this week - each staffer expressed they had a personal connection with someone close to them that was impacted by either LC, ME or POTS. All 5 meetings.
Met with @SpeakerPelosi & @RepSwalwell offices in last 24 hrs for @PlzSolveCFS advocacy week — both staff members were much more informed on #LongCovid than last year, & Swalwell has reached out to @NIH on behalf of constituents “many times” times in last year: “We’re not happy”
4/18, Neurology Today: 'Are Myalgic Encephalomyelitis/Chronic Fatigue Syndrome & Long COVID Part of the Same Disorder? A New NIH Initiative Aims to Find Out' 'We hypothesize that these changes are driven by antigen persistence of the infectious pathogen" journals.lww.com/neurotodayonli…
I'm incredibly excited about our analysis of the massive omics data we've collected from #MECFS patients over the past 6 years. Just wrapping up our latest paper, about the links between immune parameters, metabolomics, & symptoms. I think it’ll make a major impact in the field😊
Toughez @Toughez875475
0 Followers 145 Following
Raheel Hasan @theraheelhasan
38K Followers 23K Following CEO, 1App. Instant access to mobile apps on any platform via edge computing. Angel investor. I tweet about startups, VC, AI, cloud computing, crypto, & gaming.
me_ots @te_rztoo
553 Followers 1K Following ME/CFS (chronic fatigue-syndrome) since 2018/19. We need basic + therapeutic research ! #PEM
Gloria @gloriabarr72
115 Followers 3K Following
NoMedal4ME @NoMedal4ME
3 Followers 43 Following Just like all the healthy people who 'don't have time to be sick', neither do I; unfortunately, though, I don't have the health to be well. ME/CFS for 28 years.
Sunshine 🌵 @dlloyd26
2K Followers 5K Following COVID long hauler. Angels baseball fan. Pro-choice. Joe Montana is the true GOAT.
Sharrie Williams @SWMaybelline
39K Followers 37K Following I'm Maybelline Founder, Tom Lyle Williams, great-niece and Author of The Maybelline Story.
Sarah @00SarahBear00
610 Followers 748 Following
Dr LG @subversivepsych
4K Followers 5K Following 🇮🇪➡️🇪🇸Dr(MD/MRCPsych) BSc(Hons)Pharmacol. Not medical advice. Life on hold. SARSCoV2 04/20 #LC #MECFS #CH #coagulonaut p/t #sloth 🦥 #endmedicalgaslighting
MEFreaKlarA 🦥 🛌.. @MEFreake
746 Followers 538 Following ME/CFS, PoTS u.a. nach Covid 2021. Zuvor Wissenschaft/ Praktikerin Gesundheitswesen. Support für biomedizinische Forschung https://t.co/NcAdjpUYbz
NOH8 Campaign @NOH8Campaign
792K Followers 426K Following Putting a face to the fight for equality! Join us in taking a stand against bullying and discrimination. #NOH8 #NOH8Worldwide
Michael Collins Morto.. @MCM54321
8K Followers 7K Following Writer. UK native/US resident. Opposed to capitalism, politics, war. Advocate of life, nonviolence, human rights. Resist Covid-19, wear a respirator mask.
MtnBiker @Mtnragu
3K Followers 3K Following Democrat because, I'm not insane. Are you republican? I'll still follow back and try to respond to comments.
lyn @lynia80
3K Followers 6K Following it’s becoming very obvious that we 🇺🇸s are under attack! I’m here to help stop that one comment at time🤓 #humor #LongCovid #politics #VoteBlue 🌊🇺🇸
G R A C E 🌸 @withgrace___
89 Followers 292 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Lowri - Poverty Survi.. @lowri_lowri
2K Followers 5K Following Single 🏴Mum fighting Poverty after Losing my Business. Abandoned by Sunak in Pandemic #ExcludedUk ; Anti Corruption in Politics; Use Your Voice‼️
Leonie Potgieter @Despicable_M_E
883 Followers 2K Following Living with M.E. as best I can. Love nature, humans not so much.
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Hrefna @hrefnask
1K Followers 869 Following #Mecfs & #Pots since 2012. Currently moderate/severe and mostly housebound. 🏳️🌈 She/her From the river to the sea, Palestine will be free 🇪🇭
MirandaNick @iocKwptM5ui5y
20 Followers 342 Following
carlos perez @Carlosfreedom10
66 Followers 2K Following
𝙺𝚒𝚖𝚋𝚊�.. @kim_bal_10
390 Followers 2K Following Entrepreneur, Chet, Philanthropist | board @tesla| Founder @ TheKitchen @ BigGreen NovaSkyStories Order my cookbook!DA
Kool Karyn ☮️ �.. @koolkaryn
108K Followers 104K Following #ResisterSister 💕 #49ers4Life ❤️#BLM #VoteBlue #GoodTrouble Speak your mind even if your voice shakes! RBG
Carbonara - #ME/CFS #.. @BettinafightsME
2K Followers 3K Following 18ys+slowly dying from #verysevereMECFS #pots #MCAS #heds #migraine #ClimateChange #ClimateCrisis #StopAnimalcruelty #EndSpeciism #GoVegan #FuckRacism #FuckAfD
Dawnell Cook @CookDawnell
36 Followers 66 Following
Lisa Segel @Lisasegel3
656 Followers 1K Following cat & dog rescue, human rts advocate, retired attorney/discrimination. 💙down with #ME but not gone.
Terry Field @AlongsideME
289 Followers 213 Following Interested in evidence-based science, ME/CFS awareness & research. One of #MillionsMissing, 33 yrs, #pwME bed/housebound. Love of nature & wildlife.
Kimberly Jordan @KimberlyJo71034
12 Followers 751 Following
Jalen Brown @itsJalenB
6K Followers 5K Following Congressional Health Care Reporter @InHealthPolicy | Past: @BGOV, @CNN, @Forbes | @NABJ | ❝The people must know before they can act...❞ — Ida B. Wells
Pete LaPlace @hothotcocoa05
3K Followers 3K Following math and physics teacher, lover of all things French
Lisa *COVID is capita.. @LisaR3121
89 Followers 3K Following #LongCOVID First Wave Surviving out of spite.
Briana Murphy @BrianaMurp27822
135 Followers 3K Following
TradeMonday @TradeMonday
1K Followers 4K Following AI powered Retail Experimental Platform turns consumer’s transaction, social, in-store behaviour into simulation for actionable retail insight
AniGer11 @AnigerNebenan
480 Followers 2K Following War nix mit "Et hätt noch immer joot jejange". 1 of the #MillionsMissing since 2013. Buried alive. #verysevereME #SFN | #vaccineinjured 2021 Podcastliebe! 💕
ariadne @baroquebobbin
123 Followers 1K Following here for the gossip. eldest daughter. neurodivergent. she/her(s)
TedFoxx @ttedtrading
557 Followers 3K Following Just A Normal Guy Who Just Keeps Livin'. Alright, Alright, Alright.
Steffi @MECFSHawaii
152 Followers 638 Following Patient Advocate / pwLC / 25y Caregiver to pwME 🦓🦒 #MECFS #POTS #MCAS #LongCOVID #MEActionHawaii
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Merve Tepe, PhD @mervetepePhD
1K Followers 3K Following Microbiologist//Biomineralization, AMR, Biofilms//@remissionbiome team//Defend science, resist ignorance https://t.co/RJG8x9Xeat @mervetepephd.bsky.social
Anna Wood @Annakwood
3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
Jessica Taylor-Bearma.. @jayletay
5K Followers 2K Following Author of A Girl Behind Dark Glasses and A Girl in One Room. and A Girl Beyond Closed Doors Winner of Best Non-Fiction at The People’s Book Prize She/her
BreizhPowerGirl @BreizhPowerGirl
789 Followers 3K Following Bretonne #CovidLong depuis le 13/03/2020… Une vie suspendue… Omicron 29/01/2022 et 07/12/2022 #Covid19 #covidlong #longcovid #ApresJ20 #EM #SFC #pwME #MPE
Support Fibromyalgia .. @teamfibro
4K Followers 3K Following We educate, advocate, research & empower. No one fights fibromyalgia alone! Taking action!💜 501(c)(3) for impact organization #Fibromyalgia #SupportFibro
Catherine Harris @oovChirrupvoo
2K Followers 5K Following Christian, socialist. 🏴🇹🇹. Long Covid, ME etc. Kidney cancer survivor. Sometime HA NED, former Chair Haringey Pensions Committee.DV survivor.
fastenhealth @fastenhealth
125 Followers 2K Following Fasten Health lets you collect and store your medical record on your device. No cloud, no cost, no fear of data brokers selling your medical history.
Melissa Red Hoffman, .. @RedMDND
4K Followers 5K Following TEDx Speaker | Trauma Surgeon | Board certified Hospice Doctor | Podcaster (The Surgical Soul with RedMD) | Writer | @surgpallcare #chronicillness #violentloss
Chronic Fatigue Barbi.. @FatigueBarbie
173 Followers 452 Following 💕 I’m a barbie girl in my chronic fatigue world 💕 Current: #mecfs #pots Previously: lawyer + actor Trying to find joy in the void 💖
Conor Browne @brownecfm
36K Followers 3K Following Biorisk consultant specialising in COVID-19 business continuity, forecasting / analysis.
Rick Bright @RickABright
48K Followers 3K Following Practical, Innovative, Hyper-focused on saving lives. Immunologist, Virologist, Pandemic Nemesis. Posts are mine.
Nate Bear @NateB_Panic
28K Followers 1K Following Disease, covid, ecology, empire, other stuff. I write about these things at the link below. Email me tips: [email protected]
Tara Hulen @TaraHulen
248 Followers 1K Following writer, editor, one of the #MillionsMissing from ME/CFS
Michael Collins Morto.. @MCM54321
8K Followers 7K Following Writer. UK native/US resident. Opposed to capitalism, politics, war. Advocate of life, nonviolence, human rights. Resist Covid-19, wear a respirator mask.
MEFreaKlarA 🦥 🛌.. @MEFreake
746 Followers 538 Following ME/CFS, PoTS u.a. nach Covid 2021. Zuvor Wissenschaft/ Praktikerin Gesundheitswesen. Support für biomedizinische Forschung https://t.co/NcAdjpUYbz
Fire Is Born 🇵🇱.. @FireIsBorn3
2K Followers 5K Following Always Independent Scholar #Americas #CPP #ME #LongCovid #EBV #PEH #OpioidHysteria #RxOpioids i♡Men #WithLongBlackHair #Fanyu #cdrama #kdrama #jdrama tango
Niklas Klümper @niklas_kluemper
1K Followers 3K Following Uro-Oncologist, Interested in precision oncology for ADC! NECTIN4 in met.UC? 🎯 Clinician Scientist and PI @IEO_HolzelLab @UniklinikBonn Tweets are my own
lyn @lynia80
3K Followers 6K Following it’s becoming very obvious that we 🇺🇸s are under attack! I’m here to help stop that one comment at time🤓 #humor #LongCovid #politics #VoteBlue 🌊🇺🇸
Virpi Veräjänkorva @v_virpi
2K Followers 2K Following poliittisesti sitoutumaton. medical freedom 🐭. human rights . Never Again. sotelainen. 💜. 🇫🇮🇮🇱🕊️ https://t.co/31J3mNqypl
Joel Cardwell @joelcardwellX
12K Followers 3K Following DJ on https://t.co/y3Q2dp7HiG, #SpacesHost and #Cypherpunk - 💻 and 🎸and🤖 Follow me on 𝕏 and all socials @ https://t.co/xVTXnWeDqY!
James C.Coyne @CoyneoftheRealm
10K Followers 3K Following Prof. Emeritus of Psychology @ UPenn Med Health and Science Critic Promotes robust debate and mere tolerance, allowing and promoting unresolved differences
Flutters and Strutter.. @FibroFlutters
4K Followers 5K Following Non Profit for chronic (FibroFlutters) & rare illnesses (ZebraStrutters) Patient Advocacy Organisation Reg. No. 14065901
Sunshine 🌵 @dlloyd26
2K Followers 5K Following COVID long hauler. Angels baseball fan. Pro-choice. Joe Montana is the true GOAT.
Sharrie Williams @SWMaybelline
39K Followers 37K Following I'm Maybelline Founder, Tom Lyle Williams, great-niece and Author of The Maybelline Story.
Xtina🌻 Ⓥ 🇺�.. @_atypicaltini
720 Followers 4K Following 🐇 🕳️ Radicalized by Truth | Centrist| Cherokee, Chickasaw, Choctaw| Women’s Rights| Patterns & Puzzles| Optimistic Doomer💫 | Current Loop: World Happenings
Christy Isham @isham_christy
872 Followers 559 Following I find great people and find them great careers. This all start with a conversation.
Dr. Daniel Swain @Weather_West
103K Followers 3K Following Climate scientist-communicator focused on extreme events like floods, droughts, & wildfires on a warming planet.
Linda Girgis MD @DrLindaMD
107K Followers 95K Following Family Doctor, Editor-in-Chief of @physicianswkly, Author, @PROWDwomen, top-ranked blogger, clinical assistant professor @RWJMS, #Coptic #VaccinesWork #COVID19
Phi @phi_psd
5K Followers 933 Following Australian/Greek/Cypriot nerdy visual designer, living in Berlin. 🇨🇾🇬🇷🇩🇪 end #prescribedharm #longcovid & #mecfs @berlinbuyers
Jalen Brown @itsJalenB
6K Followers 5K Following Congressional Health Care Reporter @InHealthPolicy | Past: @BGOV, @CNN, @Forbes | @NABJ | ❝The people must know before they can act...❞ — Ida B. Wells
Pete LaPlace @hothotcocoa05
3K Followers 3K Following math and physics teacher, lover of all things French
Faten Okda @OkdaFaten
720 Followers 5K Following DVM, PhD, K99/R00 NIH/NIAID-Postdoc-molecular and diagnostic virology-infectiousdiseasesdepart-#Webby’s lab-WHO collaboration lab-influenza viruses-CEIRS.
Merve Tepe, PhD @mervetepePhD
1K Followers 3K Following Microbiologist//Biomineralization, AMR, Biofilms//@remissionbiome team//Defend science, resist ignorance https://t.co/RJG8x9Xeat @mervetepephd.bsky.social
Anna Wood @Annakwood
3K Followers 2K Following STEM Ed researcher @UniEdinburgh (part-time). Physicist, digital education, bird photographer, #mecfs Author of 25 Birds: https://t.co/DcN0WiZVAy
John Peters @johnthejack
5K Followers 5K Following Unbeliever (political & relig), Wales rugby, #c4news, porridge, #MEcfs johnthejack.peters
Adam Lowe, AKA Beyonc.. @adambeyoncelowe
8K Followers 5K Following LGBT+ History Month Poet Laureate @SchoolsOUTUK Occasional drag queen in verse He/his (mostly) Debut Patterflash! 2023 @peepaltreepress Tweets all my own views
Kadda 😷 &📯 @Kadda0306
713 Followers 272 Following #pwME PostCovid, moderat-schweres #MECFS (Bell 20), #POTS, uvm. Zuvor im besten Beruf aller Zeiten tätig... @kadda0306.bsky.social
David Williams @DavidWi92752544
4 Followers 49 Following
katetwitchell @katetwitchell
68 Followers 806 Following
Mitzi Hollander @mitzi_ad
73 Followers 1K Following
Ingomar Gutmann 👨�.. @ingomar_gutmann
6K Followers 5K Following Nuclear Solid State Physics, NMR/MRI; Loves his marvellous daughter, science,open society;Hates racism,inequality&coriander 👉@[email protected]👈
Christian Haberhauer @c_haberhauer
158 Followers 190 Following Journalist, APA - Austria Presse Agentur, Ressort Innenpolitik
💎 diamond 💎 @di.. @diamond_qc
1K Followers 3K Following She/her・Optimistic Leftie・Meat Free Diet・GenX 80s Goth・Indie Music Tragic・Tech Geek・AAF・ADHD・cPTSD・MECFS・OCD・CSA survivor・too many letters!・ 💉💉💉💉
ME Accountability @No_ME_Denialism
56 Followers 269 Following Working to dispel myths & refute lies about Myalgic Encephalomyelitis. No harassment, doxxing, stalking, or threats. Don't care about your politics.
Andréa Andersson @som_andrea_
75 Followers 531 Following Kommunikatören som pga neurologisk sjukdom fick kliva in genom fönstret och försvinna. Hoppas på forskningen och mina (förhoppningsvis) vilande energidepåer.
fastenhealth @fastenhealth
125 Followers 2K Following Fasten Health lets you collect and store your medical record on your device. No cloud, no cost, no fear of data brokers selling your medical history.
Steamed Bun Invasion .. @BaoZiInvasion
1K Followers 5K Following Neuroscience Masters student. I am disabled by Autism
Melissa Red Hoffman, .. @RedMDND
4K Followers 5K Following TEDx Speaker | Trauma Surgeon | Board certified Hospice Doctor | Podcaster (The Surgical Soul with RedMD) | Writer | @surgpallcare #chronicillness #violentloss
Aziza @PrestigeCola
5 Followers 285 Following
Sarah Furlong @sfurlong22
38 Followers 47 Following
Sally can't wander ri.. @WanderingSally
784 Followers 2K Following Sally wanders and wanders DOB 330ppm
@sunsopeningband Most of us tried. It wasn’t pretty.
Never would have imagined being able to sit upright for an hour straight and being able to go for a short drive in my truck would have been a major accomplishment at 35 y/o…
@vipintukur @bhanlon15 CFS, now known as myalgic encephalomyelitis/chronic fatigue syndrome or ME/CFS, or just ME, is absolutely not a neuropsychiatric symptom. It is a devastating multisystemic disease, and is recognized as such by the CDC, NIH, and extensive research in prestigious journals.
Hi everyone, I am currently putting together a flyer for #mecfs awareness day/week. If you have any comments or suggestions about info that should be on there or word etc, please leave a comment.
We’re releasing an additional 10 short educational documentary style videos in 2024…stay tuned…
I am so honored by this award!My hope is that, when you see this award, you will remember the many advocates who have fought for justice for decades for those living with #MECFS as well as all who continue the fight. Details for the @meactionga #MillionsMissing event are below.🧵
ANNOUNCEMENT!📣 MEAction Georgia @meactionga is hosting a special #MillionsMissing Event: The Wilhelmina Jenkins ME/CFS Service Awards Join us in celebrating the champions who are making a difference! May 8th, 2024 from 7:00 pm to 8:00pm RSVP: linktr.ee/meactiongeorgia
Maureen Hanson, PhD, and I have written an op-ed for The Hill, a non-partisan Washington DC news publication with 31 million online views per month, about the seriousness of ME and the need for equally serious funding by Congress. thehill.com/opinion/461560…
This 👇🏽👇🏽👇🏽 @patientled @LisaAMcCorkell @C19LH_Advocacy @SenSanders @LCMoonshot & all leaders of the #LongCOVID Community: @minadjenkins has been living w/ M.E. & advocating for ppl w/ #MyalgicEncephalomyelitis #MEcfs for decades. #PwME helped & advocated for our allies w/ #LC.
@twoShaws @patientled @SenSanders @LCMoonshot @LisaAMcCorkell We won’t be included unless our allies within the Long COVID community stand up for #MECFS inclusion just as we stand up for you.
@twoShaws @patientled @SenSanders @LCMoonshot @LisaAMcCorkell We won’t be included unless our allies within the Long COVID community stand up for #MECFS inclusion just as we stand up for you.
We want to keep fighting for research and treatment for both #longcovid and #mecfs. If you would like to support what we do, please consider donating to our gofundme. gofundme.com/f/billboards-f…
@elizansell Thank you for sharing it, Elizabeth!
The amazing view here at @UCSF - the research center. Today I’m doing some tests for the NIH RECOVER study. The view is really soothing - whoever made this place happen with this vision was really considering the whole human in health. #LongCOVID
2/ Photo of Lucy Mayhew who passed away recently #MyalgicEncephalomyelitis #ChronicFatigueSyndrome
ALERT: Earthquake happened. This wasn’t my vertigo or nerves. Poughkeepsie, NY. Dutchess County. The bed felt like I slid a quarter in a machine. Sheesh. #longcovid #mecfs
Most people will never truly understand how gleefully cruel human beings can be... until they become the target of this cruelty. The best way to understand this is by getting a chronic illness that is largely mocked and disbelieved and which has no cure or treatment.
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