PolyBio @polybioRF
501(c)3 transforming how #LongCovid, #ME/CFS & LongLyme are studied, diagnosed, and treated. Leading the #LongCovid Research Consortium. polybio.org United States Joined October 2020-
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Researchers provide an important clue to Long Covid, finding viral proteins in the blood of 25% of people > 1 year after infection. Team at UCSF led by @MichaelPelusoMD and supported by Amy Proal @microbeminded2 of @polybioRF #LongCovid #LongCovidkids bit.ly/4aRTG5M
🧵 A new study published in @LancetMicrobe unveils significant advancements in understanding post-COVID-19 condition, also known as "long COVID." Let's dive into the key findings of this research. #LongCOVID #COVID19 1/8
🧵 A new study published in @LancetMicrobe unveils significant advancements in understanding post-COVID-19 condition, also known as "long COVID." Let's dive into the key findings of this research. #LongCOVID #COVID19 1/8
The story of frequent persistence of #SARSCoV2 in multiple organs after mild Covid keeps getting stronger, and correlates (odds ratio >5) with symptoms of #LongCovid 🆕@TheLancetInfDis thelancet.com/journals/lanin…
Also so proud that @kathrynsbach is on our PolyBio Board of Directors. She does an amazing job organizing our team and helping us strategize action-oriented decisions!
Also so proud that @kathrynsbach is on our PolyBio Board of Directors. She does an amazing job organizing our team and helping us strategize action-oriented decisions!
Seconded. @microbeminded2 has been studying viral persistence as a driver of complex chronic disease for a long time — even in the face of skepticism from some. She’s a brilliant and empathetic scientist, and her persistence is paying off.
Seconded. @microbeminded2 has been studying viral persistence as a driver of complex chronic disease for a long time — even in the face of skepticism from some. She’s a brilliant and empathetic scientist, and her persistence is paying off.
The PolyBio is Symposium is one month away! Register now to hear updates on our #LongCovid, #ME/CFS and related chronic illness projects & clinical trials: us02web.zoom.us/webinar/regist…
Boosting this early paper from @microbeminded2 and @MBVanElzakker on #LongCovid viewed over 391k times.👏 frontiersin.org/journals/micro…
Boosting this early paper from @microbeminded2 and @MBVanElzakker on #LongCovid viewed over 391k times.👏 frontiersin.org/journals/micro…
I know #LongCovid twitter has been buzzing today bc @NIHDirector has unambiguously named viral persistence as a driver of LC pathobiology. I’m thrilled to see this too and I view it as an historic moment. However, today I’d like to do a little @microbeminded2 appreciation post 1/
I know #LongCovid twitter has been buzzing today bc @NIHDirector has unambiguously named viral persistence as a driver of LC pathobiology. I’m thrilled to see this too and I view it as an historic moment. However, today I’d like to do a little @microbeminded2 appreciation post 1/
The virus can persist and replicate long term in tissue reservoirs, not just at autopsy. This includes in the brain, GI tract and the lung, possibly for months even years. We need to develop new antivirals. NIH Director Bertagnolli MD #LongCovid #ViralPersistence 👇
The virus can persist and replicate long term in tissue reservoirs, not just at autopsy. This includes in the brain, GI tract and the lung, possibly for months even years. We need to develop new antivirals. NIH Director Bertagnolli MD #LongCovid #ViralPersistence 👇 https://t.co/FoiVKu6fRL
Once you get past all the “it’s just a cold” bluster, it’s amazing to consider how many people who will tell you they still have a cough/ wheeze/ are taking an inhaler/ fatigue/ are “not back to normal” long after they’ve had Covid. I know I’m not the only one who hears this.🤷🏽♂️
Glad to see Dr. Mao acknowledging the fact that Bartonella is very prevalent and often asymptomatic until the immune system is impaired due to a second infection (eg COVID, Lyme, etc.) Psych symptoms often improve w/ antimicrobial treatments.
The #larazotide trial for pediatric #LongCOVID, as discussed in @ScienceMagazine. Happy to talk to families and providers. Contact me at [email protected] if interested in learning more for your child/patients! science.org/content/articl…
The #larazotide trial for pediatric #LongCOVID, as discussed in @ScienceMagazine. Happy to talk to families and providers. Contact me at [email protected] if interested in learning more for your child/patients! science.org/content/articl…
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQsHannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkedPutrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammationChristoph Ströck @cstroeckw
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20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]S Blitshteyn MD, FAAN.. @dysclinic
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28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKEDShaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLCME/CFS News @MECFSNews
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18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyAmy Proal, PhD @microbeminded2
29K Followers 5K Following Microbiologist at PolyBio Research Foundation: helping research teams collaborate on infection-associated chronic disease #me #longcovid #lyme #eds @polybioRFMartin Hippe @pausedME
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530 Followers 2K Following Retired Emergency Service Officer with Integral Energy. Retired Deputy Rescue Officer NSW State Emergency Service Sydney Western Division.bdft @bdft61540772
75 Followers 298 FollowingJonas Frost @soziojonas
77 Followers 728 Following Graduate student of sociology at @UniLeipzig Interests in #RationalChoice #stats #rprogramming #webscraping #networkanalysis #casualinferenceNAD6 @NAD618
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15 Followers 131 FollowingPirta Hotulainen @PirtaHotulainen
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0 Followers 20 FollowingJennifer Johnson ❤ .. @MizzouRunnerGal
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13 Followers 244 FollowingMelinda Hill @Dr_MHill
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1K Followers 687 Following Networking researchers, clinicians, therapists, practitioners, and philanthropists to advance the science and practical understanding of emergent phenomena.Carey Smith @CareyWorkingk9
9 Followers 165 FollowingLongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQsHannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checkedBhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammationChristoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founderIt'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med adviceDr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKEDShaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLCME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.Gez Medinger @gezmedinger
20K Followers 721 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agencyDysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID AllyAmy Proal, PhD @microbeminded2
29K Followers 5K Following Microbiologist at PolyBio Research Foundation: helping research teams collaborate on infection-associated chronic disease #me #longcovid #lyme #eds @polybioRFAnil van der Zee © @AnilvanderZee
9K Followers 823 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissingDan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poetMichael VanElzakker @MBVanElzakker
10K Followers 290 Following Neuroscience researcher @MGHMartinos / @HarvardMed and @PolyBioRF, researching #MEcfs, #LongCOVID, & #PTSD. (all opinions are my own)Dr. Alison Escalante @AEscalanteMD
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146 Followers 49 Following Compte de l'association belge francophone Long CovidJerome Adams @JeromeAdamsMD
88K Followers 651 Following Father, physician, author of Crisis and Chaos, Purdue Health Equity Director. Former IN Health Director and 20th US Surgeon GeneralNima SADAGHIANI @SadaghianiN
1K Followers 2K Following Méd Gé #Alertiste masqué, #CovidIsAirborne #QAI #TreatLongCovid #AutoDefenseSanitaireSammie McFarland @SammieFMc
2K Followers 2K Following Founder @longcovidkids 🫀#LongCovid “Learn from yesterday, live for today, hope for tomorrow. The important thing is not to stop questioning.”Tatiana Prowell, MD @tmprowell
63K Followers 8K Following Oncologist serving people w/ #cancer in #MedEd/#bcsm clinic/#regulatory. #ASCO20 Ed Chair. Co-founder @HCWvsHunger. #LongCovid. Team hope/good trouble/go high.Carolyn Barber, MD @cbarbermd
3K Followers 562 Following Medical & science writer. Frequent contributor @Fortune @SciAm. 25-year Emergency Medicine physician. Book: Runaway Medicine. Pls send tips!Adam Van Bavel @AdamVanBavel
5K Followers 6K Following +Δ | 4X @City_Paper #DoGooder | @Baltimoremag @ProBuilderMag #40Under40 | ✊ #GoodTrouble | 🦠#LongCOVID @U2Fight_World | https://t.co/MFopsFZgUaThe Lancet Infectious.. @TheLancetInfDis
67K Followers 397 Following The Lancet Infectious Diseases is the leading clinical infectious diseases journal for peer-reviewed research and review, comment, and news.UniteToFight2024 @U2Fight_World
3K Followers 116 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global._____________________.. @BaszkoM
2K Followers 5K Following ME-dically gaslit for 9yrs. Literal dopamine hit from blocking terfs, ableists and racists. Esos son Reebok o son Nike... @baszkom.bsky.socialDr. Monica M. Bertagn.. @NIHDirector
183K Followers 122 Following Official account of the @NIH Director Posts prior to 11/9/23 were from former NIH Directors Engagement ≠ endorsement Privacy: https://t.co/GijpA0bFOxCoRE Mount Sinai @CoRESinai
503 Followers 2 Following The Cohen Center for Recovery from Complex Chronic Illness (CoRE) advances treatment and knowledge of Long COVID, Chronic Lyme, ME/CFS, and hEDS.Hadiya Roderique @hadiyaroderique
9K Followers 1K Following Bias fighting badass, Asst professor @UTSC, lawyer, writer, consultant, and speaker. JD/PhD. Jumpsuits always, ultimate frisbee forever, she/her.William Rand @rand_rand17
391 Followers 202 Following Interests: history, music, theatre. I research the causes of #LongCovid and treatments. I do research into depression and treatments. Views my own🐸 Froglet @froglet80
2K Followers 1K Following #LongCovid #ImmuneDeficiency #Homeless 4+ yrs w/o real treatment or gov't aid & #Crowdfunding 2 live, 📌 for #MutualAid boosting, #PwLC #FBLCCasanova Lab @casanova_lab
10K Followers 499 Following We're a research lab at Rockefeller University (NY) and Necker Hospital (Paris) studying human genetic and immunological determinants of infectious diseases.Broad Institute @broadinstitute
97K Followers 4K Following A unique, collaborative community pioneering a new model of biomedical scienceMark Painter @markmpainter
908 Followers 659 Following Postdoc immunologist with @EJohnWherry at Penn, studying immune responses to SARS-CoV-2, viral infections, Long COVID, and beyondPenn Medicine @PennMedicine
35K Followers 2K Following We are dedicated to the highest standards of patient care, education and research. Please allow up to 24 hours to reply to @ messages. https://t.co/ywUzQ9yGf3Clemens Marliani @ClemensMarliani
332 Followers 281 Following Nicht vergessen, 6. April 14:00 Uhr Zürich Helvetiaplatz #LiegendDemoMahan Ghafari | ما�.. @Mahan_Ghafari
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41K Followers 184 Following News from the Swedish medical university Karolinska Institutet (KI).Icahn School of Medic.. @IcahnMountSinai
30K Followers 1K Following An international leader in medical and scientific training, biomedical research, and patient care. It is the medical school for @MountSinaiNYC.Sarah Schafer MD MPH @SarahSchaferMD
3K Followers 2K Following Medical educator, Sjogren’s & spondylitis patient. I combat Sjogren's myths to improve diagnosis and care for this serious, systemic disease. No medical advice.Leon Warburton 🇦�.. @leonrwarburton
190 Followers 243 FollowingBen Krishna @BenjaminKrishn3
466 Followers 464 Following Wellcome ECA Fellow trying to understand metabolism and virology with @JamesNathanLab in @MedCambridge, University of Cambridge (he/him)J. Craig Venter Insti.. @JCVenterInst
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2K Followers 609 Following Yale Center for Customer Insights (YCCI). #behavioralscience + #bigdata learning lab for #marketing, innovation & #insights leaders.UCSF Health @UCSFHospitals
75K Followers 4K Following A world leader in health care, we're proud to rank among the nation's top hospitals. Follow our children's hospitals @ucsfchildrens @UCSFBenioffOAK.Jeff Gilchrist @jeffgilchrist
36K Followers 405 Following PhD Biomedical researcher, data scientist, and finder of large prime numbers. Views are my own. @[email protected] @jeffgilchrist.bsky.socialElaine T Lim @elimtt
180 Followers 206 Following Human genetics and genomics. Brain organoids. Assistant professor @UMassChan @umassmedbioinfo @UMassChanMCCB @UMassChanNeuroThe Sick Times @thesicktimes
3K Followers 281 Following Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJxSan Francisco Chronic.. @sfchronicle
308K Followers 468 Following Delivering the Bay Area’s best journalism every day. Subscribe and support the newsroom: https://t.co/p8tnyqwzKsrob @rob__i
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3K Followers 3K Following Professor Psychology & Digital Mental Health Care @TUM, Founder&CSO HelloBetter, life on pause since Nov 2021; #longcovid #mecfsEmmanuel @ejustin46
13K Followers 517 Following Never be afraid to raise your voice for honesty and truth and compassion against injustice and lying and greed. William FaulknerEvan Blake @EvanBlake17
7K Followers 3K Following Eliminate #COVID globally to save millions of lives | https://t.co/1uY2mgRc5X | https://t.co/1SI6zDmJCkJohan Van Weyenbergh @johanvawe
4K Followers 4K Following Researcher in #HTLV #HIV #NTDs respiratory viruses and vaccine response. 'Nothing in #human #immunology makes sense outside the light of #clinical #evolution'Oscar Teran @oterandi
2K Followers 2K Following Tech loving entrepreneur, engineer, MBA, consultant & occasional investor. Driven by positive impact innovation. Views my own. #LongCovidAdvocacy #ResearchCDN_Karma @cdn_karma
232 Followers 522 Following Canadian I collect vinyl records. I believe in Aliens. I'm Gay but not part of the mafia. Covid/ vaccine almost killed me. MAID is Murder.Researchers provide an important clue to Long Covid, finding viral proteins in the blood of 25% of people > 1 year after infection. Team at UCSF led by @MichaelPelusoMD and supported by Amy Proal @microbeminded2 of @polybioRF #LongCovid #LongCovidkids bit.ly/4aRTG5M
🧵 A new study published in @LancetMicrobe unveils significant advancements in understanding post-COVID-19 condition, also known as "long COVID." Let's dive into the key findings of this research. #LongCOVID #COVID19 1/8
🧵 Une nouvelle étude publiée dans @LancetMicrobe révèle des avancées significatives dans la compréhension de la condition post-COVID-19, aussi appelée "long COVID". Découvrons ensemble les principaux résultats de cette recherche. #LongCOVID #COVID19 1/8
The story of frequent persistence of #SARSCoV2 in multiple organs after mild Covid keeps getting stronger, and correlates (odds ratio >5) with symptoms of #LongCovid 🆕@TheLancetInfDis thelancet.com/journals/lanin…
Seconded. @microbeminded2 has been studying viral persistence as a driver of complex chronic disease for a long time — even in the face of skepticism from some. She’s a brilliant and empathetic scientist, and her persistence is paying off.
I know #LongCovid twitter has been buzzing today bc @NIHDirector has unambiguously named viral persistence as a driver of LC pathobiology. I’m thrilled to see this too and I view it as an historic moment. However, today I’d like to do a little @microbeminded2 appreciation post 1/
A big shout-out to foundations like @POTSActivist, Balvi Research Foundation (@VitalikButerin) and @polybioRF for funding research. These foundations play a fundamental role in patient advocacy and in supporting novel “blue sky” hypotheses.
We are excited to announce that we have been funded by standinguptopots.org to study POTS (with/without LongCOVID).We will seek to understand coagulation dynamics and to characterize microclots and inflammatory molecules within them. @dbkell @BinitaKane Greg Lip @POTSActivist
Boosting this early paper from @microbeminded2 and @MBVanElzakker on #LongCovid viewed over 391k times.👏 frontiersin.org/journals/micro…
I know #LongCovid twitter has been buzzing today bc @NIHDirector has unambiguously named viral persistence as a driver of LC pathobiology. I’m thrilled to see this too and I view it as an historic moment. However, today I’d like to do a little @microbeminded2 appreciation post 1/
I know #LongCovid twitter has been buzzing today bc @NIHDirector has unambiguously named viral persistence as a driver of LC pathobiology. I’m thrilled to see this too and I view it as an historic moment. However, today I’d like to do a little @microbeminded2 appreciation post 1/
The NIH director clearly states COVID is a virus with persistence, with the agent being found in tissues & nerve cells. @jeremyfaust seemed to doubt initially. Will “experts” start taking 1-2x forced Covid infections annually in our children more seriously now?! @fitterhappierAJ
The virus can persist and replicate long term in tissue reservoirs, not just at autopsy. This includes in the brain, GI tract and the lung, possibly for months even years. We need to develop new antivirals. NIH Director Bertagnolli MD #LongCovid #ViralPersistence 👇
Oh my god, you guys- @NIHDirector just said #longcovid is live, replicating virus. "We see evidence of persistent live virus in humans in various tissue reservoirs, including surrounding nerves, the brain, the GI tract, to the lung." FINALLY. medpagetoday.com/opinion/faustf…
Skeptics - Explain to me how the virus persists in cells that are replaced every few days if it's not whole/live/replicating? This is a image of SARS-CoV-2 in the gut from non-vaccinated patients 3 months after acute infection in 2020. This was found in 7 out 14 patients.
@inkblue01 A virus is not alive or live. It can presist only in infected cells which it destroys. She doesn't say much more than that she sees it, but other than that her level of detail make it very doubtfull she's even a real medical doctor.
@microbeminded2 @BaszkoM @RorPreston @polybioRF I want to second that Amy is a great #MECFS ally, she is trying very hard to get pre-pandemic ME involved wherever she can. The fact remains: depending on how you want to count, LC receives up to 30-100X the funding of ME, an insane disparity, hence I hope Polybio keeps pushing.
What a pity that #SarsCov2 can infect them..
This brilliant new review of resident tissue macrophages and their outsized role for keeping us healthy is eye-opening science.org/doi/10.1126/sc… @SciImmunology @hernandezmsilva @MITBiology @ragoninstitute
Glad to see Dr. Mao acknowledging the fact that Bartonella is very prevalent and often asymptomatic until the immune system is impaired due to a second infection (eg COVID, Lyme, etc.) Psych symptoms often improve w/ antimicrobial treatments.
The #larazotide trial for pediatric #LongCOVID, as discussed in @ScienceMagazine. Happy to talk to families and providers. Contact me at [email protected] if interested in learning more for your child/patients! science.org/content/articl…
First patient enrolled in our Pediatric Long COVID study! 🥳
Last month, talking about microglia at the inaugural meeting of a new Infectious Disease Imaging Symposium. An important frontier: using noninvasive medical imaging to detect infections and their consequences. Meeting support from @UCSF, with research support from @polybioRF
@polybio 13/ But many more public/private stakeholders should join the space! Recently @NIHDirector you posted abt NIH investment in therapies for #HIV reservoirs. Can you also prioritize the development of #SARS-CoV-2 reservoir diagnostics & therapeutics?
“…that every new SARS-CoV-2 infection has the potential to become chronic is perhaps the single most concerning aspect of this virus…We have compelling data that viral persistence is much more common than recognized which could have major health implications.” - Dr. Amy Proal
It’s official: A new Lancet Infectious Disease paper solidifies evidence of long-term viral persistence after #COVID-19. Up to a quarter of people in the study harbored viral proteins indicative of persistent virus for up to 14 months after infection: polybio.org/covid-19-virus…
Only four samples had N antigen above the assay's lower limit of detection, and there was no difference in N antigen concentrations between #LongCovid and recovered. Tissue samples might be required. #ViralPersistence nature.com/articles/s4159…
@UCSF #LIINC study on SCV2 protein persistence up to 14 mon post-COVID in @TheLancetInfDis . Now need to study this systematically in larger cohorts to pin down what it means. Does it have consequences? #LongCOVID? Thanks @polybioRF @NIH for support thelancet.com/journals/lanin…