Shaney Wright @ShaneyWright
@WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC London Joined February 2021-
Tweets27K
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Followers15K
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Following492
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Likes99K
@LongCovidSOS @drsimonwilliams @guardian @Daltmann10 @BinitaKane @SGriffin_Lab @trishgreenhalgh @amibanerjee1 @sivanmanoj @LongCOVIDPhysio @LongCovidKids @long_covid "We need to continue to invest heavily in research" This bit irritates me because we haven't actually invested in research at all. We funded some garbage in 2022 and nothing since. We need to start funding real biological research heavily starting 4 years ago!
I’d forgotten the caveat mentioned by @trishgreenhalgh - because few now do LFD to confirm #COVID19 breakthroughs, many GPs are reticent about using #LongCovid diagnosis or codes..so we under-estimate
I’d forgotten the caveat mentioned by @trishgreenhalgh - because few now do LFD to confirm #COVID19 breakthroughs, many GPs are reticent about using #LongCovid diagnosis or codes..so we under-estimate
@CovidSolidarit1 waiting on the BBC dropping a story about patients finding hope in Long Covid clinics or a story about someone extremely mild and improving with time. Any minute….
2 million in UK estimated to have #LongCovid. Think how many there are on top of that number misattributing Long Covid – chronic ill-health effects of Covid – to other things because they don't know they were infected with SARS-CoV-2 specifically due to universal lack of testing.
2 million in UK estimated to have #LongCovid. Think how many there are on top of that number misattributing Long Covid – chronic ill-health effects of Covid – to other things because they don't know they were infected with SARS-CoV-2 specifically due to universal lack of testing.
👀 We need research into “long long covid”. In a significant proportion of people this condition goes on for YEARS.
👀 We need research into “long long covid”. In a significant proportion of people this condition goes on for YEARS.
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
This change in the immune system may be behind many of the symptoms experienced by people with Long COVID, as well as those receiving Guillain-Barre or other immune disease diagnoses following SARS-CoV-2 infection.
🦠One theory behind autoimmunity is a viral infection causing confusion within the immune system. When it comes to the SARS-CoV-2 virus, researchers are finding that people with COVID-19 are producing many different autoantibodies.⏩ #LongCOVID rthm.com/articles/autoi…
BBC: “To get people off long-term sick leave the government is "providing the NHS with record funding of nearly £165bn a year by the end of this Parliament"”. How about we have a few £bn invested in research to #CureLongCovid… just saying. #LongCovid bbc.co.uk/news/uk-politi…
Long COVID symptoms adversely affected the day-to-day activities of 1.5 million people (74.7% of those with self-reported long COVID). 381,000 (19.2%) reported that their ability to undertake their day-to-day activities had been “limited a lot”.
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
Dr. Grubb and colleagues recently published this review of the literature on autoimmunity in #POTS and #OH. They highlight the mounting evidence that autoimmunity plays a role in both conditions. See more details in comments below. Read the article at mdpi.com/2075-4426/14/4…
Two things can both be true 1) viral persistence as a cause of #longcovid is a worthy hypothesis and deserves more funding and attention 2) the evidence for viral persistence as a cause of #longcovid is constantly overstated ‘on here’
Zurich Insurance’s responsible investment head resigns because of long Covid citywire.com/ch/news/zurich…
The gut microbiome and #LongCovid: "Gut microbiome-based multi-label machine learning accurately predicts upcoming long-term symptoms after acute COVID19." cell.com/cell-host-micr… @cellhostmicrobe by @Siew_C_Ng @CUHKMedicine and colleagues
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Putrino Lab @PutrinoLab
34K Followers 380 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
GeoCK @GeoEduOne
6K Followers 952 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Daniel Brittain Dugge.. @dbdugger
15K Followers 6K Following HIV+ #LongCovid Advocate. Software Development. CJR Reform. SAND Scan.
Morgan Stephens @morganstephensa
14K Followers 2K Following chasing around the White House @business, poet debuting TILT (Aldrich Press 2024), previously @cnn, #LongCovid advocate
Billy Hanlon @bhanlon15
11K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Long Covid SOS @LongCovidSOS
27K Followers 936 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Nancy Ferguson @NancyF7688
2K Followers 4K Following Constitutional Conservative Patriot, America First!! #1A #2A, Proud Texan 🇨🇱, Dog Lover. NO DMs! NO PORN!! IFBAP
Happy Octopus @HappyOctopus11
0 Followers 21 Following
Mohammad Saleem @saleemMMH
4K Followers 5K Following Research Instructor, AHA-CDA recipient, @annetkiraboc1 lab @VUMCClinPharm Immune cells & salt-sensitivity of blood pressure @UH_pharmacy alumnus, My views only.
Soughez @soughez66829
0 Followers 19 Following
Paylz @paylzdig
86 Followers 2K Following
tracie lee @tracileahy
333 Followers 2K Following
Lea 🐝 @_lea35166
5 Followers 157 Following Postgraduate 2021 📑📚from Life Long Learning Centre at University of Leeds. Will always be a lifelong learner.
Deborah 🙏🌊💙�.. @daxplace
3K Followers 5K Following #FBR Freedom, equality, peace, joy, humor, golf, storm chasing, reiki, Cubs, Bears. MBA Northwestern #BlueWave #Resist #Lyme #LongCovid #CancerAwareness
lovidia @lovidia_net
0 Followers 7 Following
Kuldeep Raj @KuldeepBarna
9K Followers 9K Following Exploring, Learning, Sharing. Technology and life lessons. Building advanced software technology platform for manufacturing, supply chain, services. #Followback
sharri bowers @SharriBowers
5 Followers 323 Following
R.grid @researchgrid
1K Followers 718 Following The automation engine for admin-free clinical trials
Frau𝕏ausNRW @FrauXausNRW
2K Followers 1K Following MomOf2 mit #LongCovid #MECFS #POTS #SFN - Werde 2024 (vielleicht) gesund ! #UniteToFight2024
Pastor Bob Joyce Hous.. @BobJoyce011
274 Followers 747 Following
Forge ahead🇺🇸 @dead3101
182 Followers 202 Following Chase your dreams and achieve extraordinary results Optimistic, grateful, sincere, patriotic 🇺🇸 Skiing🏂🏻 Golf⛳ Diving🤿 Red wine🍷
Mickster @MikeyMacMick
232 Followers 1K Following
The Vigilant Fox🦊 @VigilantFox34
497 Followers 479 Following Editor-in-Chief @VigilantNews. Writer, video clipper, and pro-freedom citizen journalist with 12 years of healthcare experience. Inquires: My backup Account
Jimmy Blue A Musical .. @JimmyBlueMusic
267 Followers 1K Following Jimmy Blue: A play featuring the music and lyrics of Del Amitri. I'm over here if anyone needs me. https://t.co/gjAzACTIZa
Sue Marsh @SueMarsh48826
0 Followers 13 Following
m @oolong_covid
11 Followers 69 Following #longcovid since summer 21 / angry and tired with a heavy heart
Joe Connolly @joec_chicago
421 Followers 5K Following
サンキュー栄光.. @gomenne_eiko
1K Followers 3K Following 皆様と明るい未来に向け栄光の架け橋を創造する場所。日常、アニメ&ゲーム/政治/小ネタ等をお届け。真の日本を取り戻す活動を支援。政治投稿が苦手な方はフォロー注意⚠ 🈲禁止行為 ・攻撃・暴力的発言は禁止 ・禁止事項へ抵触した際は第三者運営の判断により厳正に対処。悪質な場合は法的処置を行う事もあり。予めご留意下さい
John Doe @TheLastJohnDoe
49 Followers 619 Following You'll find us everywhere. We raise the crops, we dig the mines, work the factories, keep the books, fly the planes and drive the buses. We make the world tick.
Hil @Hil934363758822
1 Followers 22 Following
Giovanni Angiolini @GiovanniAn1445
4 Followers 412 Following
Trump Century @slimslime1357
1K Followers 3K Following It’s TIME! Full blood armor protection from Christ Jesus; eternally grateful and blessed. NO DM’s!
Beat Bard @BardBeat81642
563 Followers 3K Following
ELON MUSK @ElonMusk0811
57 Followers 3K Following The aspiration of 𝕏 CEO, Tesla, SpaceX, & X. . . . . #noviolence #nobullying #nohate #noimpersonation Follow all guidelines.
Jenny Blacksmith @JennyBlack38451
1K Followers 1K Following Follow me to see me nude😋 📢 Want nudes?Follow me😈 😜
HatOnAHat @StinkInAScudpie
2 Followers 452 Following queer who doesn’t put the car in drive until the music is chosen and playing
Jones @Purple_poppy_
22 Followers 139 Following I not only use all the brains that I have, but all that I can borrow. Woodrow Wilson
GenNola @in4corners
148 Followers 1K Following Attorney & Legal Writer. Life derailed by #LongCovid, #EDS & #MECFS.
PalestiniansRPeople @PalestinaHope
40 Followers 514 Following
mwayne @mwayne444
76 Followers 158 Following
Elon Musk @EMusk84439
13 Followers 1K Following
Bowled Out1 @BowledOut1
1K Followers 3K Following
Es kotzt mich so an @susivili
2K Followers 2K Following #CovidIsNotOver #KinderdurchseuchungStoppen #ProtectTheKids #Masketairs #DieMaskeBleibtAuf
Darla Gregory @darla_gregory
3K Followers 6K Following Love all reality shows Especially BB love It. Blue wave 🌊🌊🌊💙💙💙👍
Marshalr @humbleprepper
1K Followers 2K Following #1A #2A #4A #Prepper #MAGA #Homestead #Christian #Survival and self reliant. Husband, father and grandfather (Papoo)
Bethen Thorpe🇪🇺.. @EdnaUnwelthorpe
5K Followers 5K Following Dawdling flâneuse. Multiple Sclerosis adventurer. #disablednotdisposable #NHS
Sara @sbhbc
347 Followers 1K Following Parent seeking a safer and enduring world/planet where all can thrive.
Angela @woollycat808
176 Followers 724 Following Local girl from O'ahu with a love of politics, animals, and the environment. Advocate for the rare disease, LGBTQ+, and chronic illness communities.
Nora Nageotte @NoraNageotte
19 Followers 585 Following
Vincent George @VincentG1093
43 Followers 252 Following Hi 👋 I am a highly skilled professional who successfully Aste crowdfunding campaign in achieving their fundraising goals.
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Putrino Lab @PutrinoLab
34K Followers 380 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 723 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Morgan Stephens @morganstephensa
14K Followers 2K Following chasing around the White House @business, poet debuting TILT (Aldrich Press 2024), previously @cnn, #LongCovid advocate
Long Covid SOS @LongCovidSOS
27K Followers 936 Following UK based charity advocating for those impacted by #LongCovid Recognition - Research - Rehabilitation Email [email protected]
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Marco Wetzel (is figh.. @Gmwetz
2K Followers 820 Following Founder of @U2Fight_world // #UniteToFight2024 // #LongCovid and #MECFS advocate // #longcovid patient
Long Covid Moonshot @LCMoonshot
3K Followers 316 Following 18 million Americans suffering with Long Covid, and ZERO treatments. We need a moonshot for Long Covid research funding!
UniteToFight2024 @U2Fight_World
3K Followers 112 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Amar Sharif @AmarSharif11
483 Followers 477 Following Consultant Physician Gastroenterologist and Hepatologist MBBS, MRCP, MD, FRCP.
Anne Maitland, MD @asktheallergist
2K Followers 291 Following Board certified Allergist-Immunologist Asst. Professor, Mount Sinai School of Medicine
Sam🐟❤🌈😷�.. @CounsellingSam
43K Followers 41K Following #LongCovid #POTS #actuallyautistic #POC lover of beauty and art, hater of bigotry and racism Pro-EU. #FreePalestine No #Ableism Country Not Party No Freeports
N Rog @Nc_Rog
1K Followers 2K Following Once highly active. Now mostly housebound due to Long Covid and resulting ME/CFS and POTS. First waver March 2020. Yes BEFORE the vaccine.
Marc Jordan @MarcJordanRef
402 Followers 1K Following Risk management bod, travel and football. Arsenal season ticket holder, FA Referee on a Sunday Views are my own and not that of my company or anyone else
Ben Krishna @BenjaminKrishn3
466 Followers 464 Following Wellcome ECA Fellow trying to understand metabolism and virology with @JamesNathanLab in @MedCambridge, University of Cambridge (he/him)
Sus Scrofa - CLEAN in.. @SusScro58355800
3K Followers 427 Following 🇨🇭 Bin KEINE Auskunftsstelle für alle Fragen hinsichtlich Pandemie oder Medizin. Wer solche Fragen an mich stellt, wird blockiert.
Samantha @supernova202082
41 Followers 115 Following
Charles #ImWithNye fo.. @waltz_tales
3K Followers 5K Following 🚨THERE IS A LONG COVID CRISIS IN THE PERFORMING ARTS🚨https://t.co/BojFnh6Ip0 Founder: #ProtectTheHeartOfTheArts 💕@HeartOfThe_Arts
Jason Yeung @jayeung12
349 Followers 2K Following MD/PhD student @utmbhealth interested in emerging viruses and data science | Former ballet dancer using dance data for advocacy
Brian S. Kim @itchdoctor
5K Followers 434 Following Sol and Clara Kest Professor, Vice Chair of Research, Site Chair, Director of the Mark Lebwohl Center for Neuroinflammation and Sensation @IcahnMountSinai
Matthew Dalby @MatthewJDalby
7K Followers 5K Following
Lindsey 🩵🇨🇦 @LindseyMarie_xo
1K Followers 717 Following Life | Empathy | Love | Meditation | Health&Fitness | Music Festivals | Travel. MUA | Web/UX Designer. Disabled by #LongCovid & #MECFS since Jan/22 💔
Taelin @VictorTaelin
17K Followers 900 Following Founder of @HigherOrderComp Building the massively parallel future of computing Reaching AGI to cure all diseases and suffering is all that matters
Philosopher Jersey Fl.. @jersey_flight
988 Followers 2K Following Director of Interdisciplinary Research at the Institute for Advanced Dialectical Research, https://t.co/15VkKiXSam - views expressed here my own.
Lauren ✨ @dutchlauren
10K Followers 292 Following 28. Stay-at-home cat parent. Ex-YouTuber and book blogger. #ActuallyAutistic & severe ME. Passed away January 27, 2024 🖤 Media enquiries: [email protected]
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
Fewtrella @Fewtrella1
2K Followers 5K Following views my own #LongCovid #POTS #Dysautonomia #Cogcom @GivingVoiceUK winner Advocating for Cognitive Communication Disorder Post Covid
Gemma Banham @BanhamGemma
203 Followers 254 Following Nephrologist specialising in vasculitis/immune mediated kidney disease. Growing interest dysautonomia/MCAS. Translational medicine & therapeutics PhD. Views own
Danielle Beckman @DaniBeckman
23K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Stefan Kirchner🇺�.. @Dr_S_Kirchner
3K Followers 5K Following Author. Working as int'l law expert / gov't advisor. Formerly lawyer, law prof, firefighter, EMT. Private account. Fam:@brigitte_d
Helen Goss @HelenMMGoss
2K Followers 950 Following 🏴 @longcovidkids ❤️🔥 Parent/carer #LongCovidKids 🤘🏼 Advocate #LongCovid 🐾 Cat spam 🪐 Space nerd 🌪️ Chronically persistent force of nature
Elizabeth Haygreen Ph.. @LizHaygreen
157 Followers 1K Following Medical writer, specialising in immunology, vaccines and infectious disease • Neurodiversity • Mental health • Sci-fi/fantasy • Theatre
Catherine Chang @TCChangfox
2 Followers 24 Following
Herberto Dhanis, PhD @HerbertoDhanis
2K Followers 320 Following Biomed. Eng. and PhD in Neuroscience @EPFL_en | Interested in autonomic dysfunction in alpha-synucleinopathies and in #LongCovid | creator of @LC_ontheshort
Rob Wüst @RobWust
6K Followers 766 Following Assistant-Professor Muscle Metabolism at Vrije University Amsterdam, Netherlands. Interested in skeletal muscle function in health and disease
GC @ThePOTSPostman
5K Followers 1K Following Just a mailman with #POTS. Here to spread awareness and advocate for those with #dysautonomia #chronicillness
IleneRuhoyMDPhD @RuhoyMD
7K Followers 1K Following Neurologist treating chronic and complex disease #NeuroEDS Medical Director #ChiariEDS Center @MS_SouthNassau Book Release Spring 2025
MaiDoc @doc_maidoc
4K Followers 142 Following #GastroEnteroImmuno-logical #MCAS #LongCovid When the facts change, I change my mind. @VAEM_eV @LongDeutschland study physician & clinical research
Rebecca Ryan @DrRebeccaRyan
1K Followers 1K Following Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS and hEDS.
Cynthia Adinig @CynthiaAdinig
2K Followers 759 Following Patient Advocate & Equity Policy Advisor Co-founder BIPOC Equity Agency #LongCovid #MECFS #MCAS #EDS #POTS
Helen Lunt Davies @DaviesLunt
2K Followers 2K Following Jeweller 💍 Scientific Illustrator 👩🏼🎨 I ♥️dogs🐕 nature🍃 bugs🐞 art🖼️ skulls💀 first wave #LongCovid 🌊 Team member @longcovidsos 🛟
Prof. Karl Lauterbach @Karl_Lauterbach
1.2M Followers 322 Following SPD Bundestagsabgeordneter, Bundesgesundheitsminister, der hier selbst und privat tweetet.
Regina Anita @regina_anita_
378 Followers 634 Following She/her. #LongCOVID #MCAS #POTS March '20. #pwME #MECFS ally. #hEDS / hypermobile. MSc Neuroscience @KingsIoPPN. #MECFS #LongCOVID #hEDS research.
Lydia Goldman @lrgoldman92
62 Followers 227 Following Work in philanthropy, volunteer with kids in care, advocate for awareness of #AlphaGalSyndrome & #MastCellActivationSyndrome. Views are my own.
Brain Inflammation Co.. @BrainInflCollab
810 Followers 47 Following We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
Liz Jackson @LizJJackson1
714 Followers 2K Following Journalist @BBCLondonNews. Formerly @BBCNews Channel/News at One, #BBCJTS & @The_JDF. Invisible illness. Got a story? Email [email protected]
The Sick Times @thesicktimes
3K Followers 281 Following Non-profit news site chronicling the #LongCovid crisis. Founded by @betsyladyzhets and @mileswgriffis. Donate: https://t.co/YBFRSWzcJx
Paul Keeble ME/CFS/LC @PaulRKeeble
2K Followers 303 Following ME/CFS since 2017 (Mild) Long Covid since March 2020 (V Severe) Currently Funcap55 = 2.13 (Severe)
Emma Reinhold @DrEReinhold
7K Followers 4K Following Former GP/Research/Advisor on #EDS #MCAS #MUS #fatigue #EDI Disabled🌈ally #NHS #gardening #miniatures Often irreverent Never disrespectful Views are mine, obvs
John Haughton MD, MS .. @doc4care
3K Followers 613 Following Health better for all. Geriatric Rehab Physician, payer, patient, engineer, family, friend. WorkFocus: #longcovid/inflammation #pophealth #riskadjustment/HCC
Krister Kauppi - Long.. @KristerKauppi
3K Followers 380 Following 🚀 Lets 10x longevity research speed 🙏🏻 Vitalist & Founder of the Rapamycin Longevity Lab 💖 Big passion for living really long & well together with others
Dr. Christine Gibson @GibtrotterMD
3K Followers 3K Following author : GP psych : health equity : social innovation : trauma and resilience. Climate action. Storyseeking. tiktoktraumadoc (she/her) on 🧡Treaty 7 *ideas mine
MCAS Hope e.V. @mcas_hope
411 Followers 245 Following Deutschlands erster Verein für Patienten mit Mastzellaktivierungssyndrom (#MCAS). Impressum https://t.co/z8qF0nqRM3💜 Wer zwitschert? Sebastian/SeB
So many! I'm sorry to be the bearer of more sad news this morning. Condolences to friends and family. 🕯️ #MyalgicEncephalomyelitis #MECFS
BACME is even worse than I thought. Through their outdated and inaccurate guides for clinicians they are responsible for what is being done to Millie. I hope one day they will be held to account.
The two leading UK #MEcfs charities are linked to an organisation fomenting the psychologisation of the illness. As @h_sharland finds, from 'disordered eating' to ignoring NICE guidelines BACME are not acting in patient's interests #SaveCarlasLife. READ: thecanary.co/uk/analysis/20…
Seems like Australian GPs are still bonafide members of the GET cult. They have apparently learned nothing in recent years and continue to parrot nonsense--and even cite the fraudulent PACE trial as "evidence" for something. virology.ws/2024/04/25/tri…
About 2m people have long Covid in England and Scotland, figures show dlvr.it/T60mz9
New ONS data on Long Covid show that it is getting worse, not better Now 2m people in England and Scotland, compared with 1.9m in the whole of UK in Mar 23 The pandemic is not over and every day someone contracts an infection which will disable them
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
Hey @NickTriggle, the ONS are telling us that long Covid now affects an estimated 2M people in England and Scotland, an increase. So I’d really like you to explain why your article ‘Why are we so ill?’ doesn’t even mention COVID19 or long Covid? You’re lying to us.
Why are we so ill? The working-age health crisis bbc.in/4d0kvXf
@LongCovidSOS @drsimonwilliams @guardian @Daltmann10 @BinitaKane @SGriffin_Lab @trishgreenhalgh @amibanerjee1 @sivanmanoj @LongCOVIDPhysio @LongCovidKids @long_covid "We need to continue to invest heavily in research" This bit irritates me because we haven't actually invested in research at all. We funded some garbage in 2022 and nothing since. We need to start funding real biological research heavily starting 4 years ago!
“Long Covid is unfortunately a problem that cannot be ignored....We need to continue to invest heavily in research to better understand and treat #LongCovid, as well as to provide support for those suffering.” Well put @drsimonwilliams @guardian theguardian.com/society/2024/a…
Let’s remember this is a situation that was entirely overlooked at the start of the pandemic, largely dismissed & ignored in the middle of it, and now treated as if the cause is historical & not ongoing. So, yeah, it’s a public health failure. #LongCovid theguardian.com/society/2024/a…
I can see absolutely no reason why the UK would have the least Long Covid cases with no growth in 2 years out of the entire western world . I can explain however how the UK has the worst monitoring, testing and governmental denial of the Covid and Long Covid.
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
This number will be SIGNIFICANTLY higher because most people have absolutely no idea about the ways in which Covid can damage you. Their new heart condition. The repeat sickness. The new onset Musculoskeletal Issue. Their autoimmune condition. All these can be triggered by Covid
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
Bei aller Kritik an der Methodik, wenige Leute sind es halt auch nicht, die in England noch an Long Covid (unpräzise Definition) leiden.
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
I am one of the 2 million people with #LongCovid. It's an undercount. Perhaps now the media and our ableist politicians will take it seriously.
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
Oh look people aren't recovering on their own.
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
I actually believe the reality is much higher than this for these reasons - Stigma - Denial - No appropriate testing - Limited data collection @LC_UK_Action @LongCovidKids @long_covid @LongCovidSOS @LongCovidScot @LCNMUK @LCD4A @KeyWorkerPetUK @LongCOVIDPhysio @LCawarenessInt
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
Unsurprisingly, although we don't hear as much about it in the news and the numbers are not reported as often, Long Covid has not gone away.
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
Every article or speech about the record level of long-term sickness, that doesn’t mention long covid, is propaganda. They’re lying to you. Hiding everything from fatigue to depression to heart attacks to strokes. Most of these people have had long covid for two years.
2 million people living in private households in England and Scotland were experiencing self-reported long COVID Symptoms continuing for more than four weeks after a confirmed or suspected #COVID19 infection that were not explained by something else. ➡️ ons.gov.uk/peoplepopulati…
I’d forgotten the caveat mentioned by @trishgreenhalgh - because few now do LFD to confirm #COVID19 breakthroughs, many GPs are reticent about using #LongCovid diagnosis or codes..so we under-estimate
I’m neither a politician nor an economist, but finding it hard to see how it could be good to have 3% of the workforce long term unwell to #LongCovid, yet no moves to acknowledge, mitigate, research or treat?
Also my impression is GPs rarely diagnose Long Covid, unless urged to do so by the patient.
2 million in UK estimated to have #LongCovid. Think how many there are on top of that number misattributing Long Covid – chronic ill-health effects of Covid – to other things because they don't know they were infected with SARS-CoV-2 specifically due to universal lack of testing.
@AaronCa11 @CovidSolidarit1 Whatever it is its going to be Triggled.
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