Michael Stingl @neurostingl
Facharzt für Neurologie ME/CFS ▪ Long Covid ▪ Nervenultraschall ▪ ENG/EMG ▪ Hirngesundheit ▪ Telemedizin neurostingl.at Garnisongasse 7/13, 1090 Wien Joined May 2018-
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Wenn man über Post Exertional Malaise was lernen mag, sollte man @sunsopeningband zuhören.
Wenn man über Post Exertional Malaise was lernen mag, sollte man @sunsopeningband zuhören.
Vor kurzem gab es einen hochkarätig besetzten Workshop von @theNASEM zu Infekt-assoziierten Erkrankungen, zB ME/CFS. Die ausführliche Zusammenfassung kann hier nachgelesen werden. nap.nationalacademies.org/catalog/27462/…
In dem Moment, wo dieses Faktum zu Post Exertional Malaise der common ground der medizinischen Diskussion über ME/CFS ist, wird man über Nuancen auch wirklich diskutieren können.
In dem Moment, wo dieses Faktum zu Post Exertional Malaise der common ground der medizinischen Diskussion über ME/CFS ist, wird man über Nuancen auch wirklich diskutieren können.
Spannende Studie, mit Hinweisen auf Viruspersistenz und Veränderungen des Immunsystems bei Long Covid, ~24 Monate nach Infektion.
Spannende Studie, mit Hinweisen auf Viruspersistenz und Veränderungen des Immunsystems bei Long Covid, ~24 Monate nach Infektion.
Die Awareness-Kampagne von @weandmecfs zeigt die Drastik von ME/CFS sehr gut. Der Schwung, der gerade mit Referenzzentrum und gesteigerter Aufmerksamkeit für ME/CFS entsteht, muss endlich zu einer besseren Versorgung der Betroffenen führen.
Die Awareness-Kampagne von @weandmecfs zeigt die Drastik von ME/CFS sehr gut. Der Schwung, der gerade mit Referenzzentrum und gesteigerter Aufmerksamkeit für ME/CFS entsteht, muss endlich zu einer besseren Versorgung der Betroffenen führen.
Interessanter Artikel über eine neue Methode zur Diagnostik bei Liquor Leak. link.springer.com/article/10.100…
Bei aller Kritik an der Methodik, wenige Leute sind es halt auch nicht, die in England noch an Long Covid (unpräzise Definition) leiden.
Bei aller Kritik an der Methodik, wenige Leute sind es halt auch nicht, die in England noch an Long Covid (unpräzise Definition) leiden.
Ein nationaler Aktionsplan - der auch umgesetzt wird - ist dringend notwendig. ME/CFS ist nämlich weiterhin eine höchst relevante Erkrankung ohne Versorgungsstruktur. science.apa.at/power-search/1…
Dieser Thread mit den Antworten von @sunsopeningband zu PEM und 2-day CPET bei ME/CFS ist lehrreicher als jede Fortbildung.
Dieser Thread mit den Antworten von @sunsopeningband zu PEM und 2-day CPET bei ME/CFS ist lehrreicher als jede Fortbildung.
Studie, wo Nachweis von SC2-RNA in verschiedenen Geweben sehr deutlich mit Long Covid (unpräzise definiert) nach milder Infektion verbunden war. Insofern wieder ein Hinweis, dass Viruspersistenz bei einem Teil der Betroffenen eine Rolle spielen könnte. thelancet.com/journals/lanin…
Dr.C.Werner @DrCWerner
31K Followers 1K Following #Familydoctor #GP #InternalMedicine @projecthalo #Niedriginzidenz , #MedicalTribune #nutritionalMedicine #O-TonAllgemeinmedizin @[email protected]
Ralf Wittenbrink @RWittenbrink
21K Followers 1K Following Es gibt immer noch eine große Lücke zwischen dem, was die Öffentlichkeit über COVID-19 weiß, und dem, was sie wissen sollte. Deshalb hier Infos über COVID-19.
Carmen Scheibenbogen @C_Scheibenbogen
12K Followers 62 Following Immunologist and ME/CFS researcher MD @ChariteBerlin
Dr. Robert @Robert83563198
11K Followers 304 Following Ärztliche Kunst beginnt dort, wo evidenzbasierte Medizin endet.
Der Horizontale @derhorizontale
12K Followers 485 Following 🛌 Bettlägeriger Aufklärer 😁 Gelegentlich lustig ✊️ Tolerance is the answer! 🧠 Politik☆Gesellschaft☆Chron. Erkrankungen
KinderdocDr.med.NinaS.. @KinderdocNina
20K Followers 2K Following Mom/Wife/MD/Pediatrician with knowledge & heart/taki g SARSCOV2 serious/MaskUp
Cornelia Beeking 😷.. @CorneliaBeeking
12K Followers 6K Following Kinder- und Jugendlichenpsychotherapeutin, Bündnis KJP, Vorstand PtK NRW, KJP Ausschuss NRW, KJP Ausschuss der BPtK, DPT Delegierte, hier privat, views are mine
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Bettina Grande @GrandeBettina
7K Followers 1K Following Psychologische Psychotherapeutin, Praxis in Heidelberg. Aktiv in Aufklärung über und gegen die Psychologisierung von #MECFS. #PEM ist nicht verhandelbar!
Dr.med.Hank Schiffers.. @leanhealth
6K Followers 2K Following Physician exec, committed to measurable&transformative patient value-active in beekeeping charity, motivational speaker #leanhealthcare #start-up #patientvalue
Dr. Bettina Hohberger @Dr_B_Hohberger
8K Followers 48 Following PD Dr. med. Dr. rer. biol. hum. Bettina Hohberger
Juli Maëlle @julimaelle
7K Followers 3K Following Ex-Fotografin 📸 & Musikerin 🎶, jetzt 1 v #Millionsmissing wg #MECFS & #Fibromyalgie. Leidenschaft still on. #noAfD #wirsindmehr
Sibylle Dahrendorf �.. @sibylle_berlin
6K Followers 3K Following Once a filmmaker now stuck in horizontal hell | #SmallFiber #BigPain #POTS #MCAS #CCI #Lyme #FQToxicity #ME I Stop denial of #ComplexChronicIllnesses I
Claudia Ellert @claudia_ellert
7K Followers 239 Following Gefäßchirurgin, Autorin, Triathlon, medizin. Schwerpunkt Aufklärung und Prävention @LongDeutschland #Covid19 #LongCovid #mecfs #Leistungsdiagnostik
Trickywuh @Trickywuh
9K Followers 2K Following Physician, oder wie ein Twitter User schrieb... ein (Ex) rumdrostender, infamer Weißkittel. Komponiert für die Cancelorettes.
InViennaVeritas @yousitonmyspot
8K Followers 559 Following citizen journalist #OSINT | #ActuallyAutistic | #CovidIsntOver | #ZuExtremFürJohannesRauch
DMZ - News 🦉🗞�.. @NewsDMZ
18K Followers 1K Following DMZ - DIE MITTELLÄNDISCHE ZEITUNG - Online & Print seit 2019 https://t.co/MI9FlOWNKS / https://t.co/pSXT3UetNi @dmz.bsky.social / @[email protected]
Arschang Valipour @lungendoc
9K Followers 241 Following Pneumologe, Internist, Intensivmediziner, selbsternannter Beschützer der Lungengesundheit 🫁; private Tweets rund um Medizin und gesellschaftliches Miteinander
Dr.Glasspateldruck @glasspateldruck
7K Followers 1K Following Für Empathie, gute Ausbildung, Wissenschaft und etwas (schwarzen) Humor in der Medizin. Hautärztin, Mutter, Wissenschaftlerin
IchBin_RO @IchBin_RO
9K Followers 4K Following Einer der ersten LongCovid Betroffenen. Warnt seit Mai 2020 vor Spätfolgen. Inzwischen fast wieder gesund. Folge häufig zurück. BSKY @ https://t.co/oSwXDrAuQw
Mitodicure @mitodicure
13 Followers 24 Following Mitodicure’s mission is to cure Chronic Fatigue Syndrome (ME/CFS) and Fibromyalgia. Follow us on LinkedIn: https://t.co/KrQ7qyxX0f
Andrzej @Andreas01296239
65 Followers 190 Following
Melli Rennert @fluffy1008
973 Followers 2K Following Liberal, für Aufarbeitung rund um Covid und Eigenverantwortung, gegen Erziehungsmassnahmen von Staat & ÖRR, Anhängerin orthomolekularerer Medizin
Toni Luchner @amlautor
13 Followers 233 Following
Stangen Sellerie @SellerieStangen
0 Followers 6 Following
Isi @Isi81343424237
2 Followers 15 Following
Susan @Bea_Bettenberg
0 Followers 10 Following
Alberto Paniz Mondolf.. @Betopaniz
2K Followers 4K Following Internist/Pathologist/Microbiologist. Director of Molecular Microbiology at Mount Sinai. Addicted to books, good music and the jungle. Scout. Science official.
ดิมา @ya0oZjx0jsAfo
82 Followers 1K Following เข้าร่วมกับฉันและเชื่อมต่อกันผ่านโซเชียลมีเดีย อย่าลืมติดตามฉัน ฉันจะอัปเดตข้อมูลการติดต่อของฉันในหน้าแรก
Karin Bachl 🕊🕊�.. @BachlKarin
1K Followers 2K Following unverbesserliche Optimistin, wir machen die Welt ein Stückchen besser Politik mit❤️
Manu @Manu40352350
0 Followers 34 Following
Rudi304 @Rudi304176821
0 Followers 54 Following
jim faas 🍀 @JimFaas
4K Followers 2K Following zo nodig dwars | blogger @medischcontact | verzekeringsarts | jurist | phd | docent | schrijven | lezen | zingen | kunst & kunde | semper fi | @JimsMusicBox1
Bill @bugbuster55
989 Followers 5K Following Pediatrician, Democrat, Likes bugs and diseases, tweets are his own opinions
Thomas Agoritsas, MD .. @ThomasAgoritsas
3K Followers 3K Following ⚕️Physician & Prof🇨🇭🇬🇷🇫🇷 Geneva University Hospitals @Hopitaux_unige • @McMasterU 🇨🇦 • Chair of https://t.co/nYx7YNgtsg 🌍 • https://t.co/wdbuLA1nLM • Own 🐦
MANZI Ndamukunze @MNdamukunze
434 Followers 3K Following Renforcement des Capacités - AT en finance inclusive (capacity building-TA in i.f.) Engaged for Persons Living with a Rare Disease (PLWRD) with CENTRE-ALLIANCE
Moralaposteline @Moralapost12110
1 Followers 3 Following
Montag Dienstag @montag_die97865
16 Followers 232 Following Wollte mal sehen was hier so los ist… Alles voller Bots… Angezogene Fotos im Profil
Liquorunterdrucksyndr.. @CSFleaks
248 Followers 472 Following #Liquorverlustsyndrom #chronicPDPH #intracranialhypotension #SIH FB Group: https://t.co/7lR25K6vn8
Mel @Mel942557715463
1 Followers 16 Following
Dani Faucher RMT @DaniRmt
176 Followers 1K Following https://t.co/VNvAvyuFfW Registered Massage Therapist (she/her). Foodie, veggie grower. Learning #LongCovid #MECFS .
Coralie Bouillot @CoBouillot
5K Followers 5K Following Passionnée par la médecine...donc la santé...et forcément l'innovation qui va avec :-) Pro vax, pro masques et antifakemed 😎#Eular #ERNReConnet #EMA
gitte67 @67Gitte19
0 Followers 60 Following
Becky A Robertson @AnciraBecky
4K Followers 6K Following Survivor. Proud mother. Teacher. Philanthropist. Activist. Trying to make a difference. #maskup #longcovidawareness #LCDC #March15 #ValueCognition
Sofia Newton @newtsofia
2 Followers 36 Following Medical student and researcher interrupted by severe ME/CFS #MECFS #severeMECFS
Tannef9 @tannef916264
3 Followers 18 Following
Karla Fisk @KarlaFisk
3K Followers 7K Following #BLM Green bldg pro (LEED AP), Organizer: @InwoodLegal Action, member: NMN4$. Grateful to be living with my husband & dog Belle in Inwood, Upstate Manhattan.
Jochen Toebe BiolMed @JochenToebe_Med
6 Followers 91 Following
an1ma an1ma @AAn1ma
72 Followers 128 Following
Susanne Rothe @sanerothe
14 Followers 120 Following Autodidakt, Techniker, Sport #mcas #pots #sfn #FF0900 Aber: Nach 1,5 Jahren zu 90 % wiederhergestellt
Jody Weymouth 🇺�.. @JodyWeymouth
476 Followers 732 Following Photographer, avid reader, army wife, mom to 2 rescue dogs
Georg Schräder @D003454
1 Followers 55 Following
Glitter Resist 🏴�.. @Glitterresist
37 Followers 147 Following Improving healthcare for autistic people & others #autistic #actuallyautistic [email protected]
Ulrike Apel - she/her.. @UlrikeDesi
2K Followers 4K Following Wienerin im hohen Norden, Leseratte, Hundehalter, HIV Prävention, queer Pronomen 🙌 she/her
Dave Satterlee @dsatt5
65 Followers 275 Following
aiadh @aiadh575922
32 Followers 8 Following
Jenny Blacksmith @JennyBlack38451
1K Followers 941 Following Follow me to see me nude😋 📢 Want nudes?Follow me😈 😜
Mala @Mala_Enya
0 Followers 13 Following
Wunschkind_Freiburg @WunschkindFR
1 Followers 23 Following
Kann die Kresse halte.. @octonurse
228 Followers 654 Following Mütterrechte sind Menschenrechte Mansplaining=Block #ProNordischesModell #nurjaheißtja #wirsindmehr #keinMilimeternachRechts
Mel @melwin7777
75 Followers 1K Following
Dr.C.Werner @DrCWerner
31K Followers 1K Following #Familydoctor #GP #InternalMedicine @projecthalo #Niedriginzidenz , #MedicalTribune #nutritionalMedicine #O-TonAllgemeinmedizin @[email protected]
Carmen Scheibenbogen @C_Scheibenbogen
12K Followers 62 Following Immunologist and ME/CFS researcher MD @ChariteBerlin
Dr. Robert @Robert83563198
11K Followers 304 Following Ärztliche Kunst beginnt dort, wo evidenzbasierte Medizin endet.
Der Horizontale @derhorizontale
12K Followers 485 Following 🛌 Bettlägeriger Aufklärer 😁 Gelegentlich lustig ✊️ Tolerance is the answer! 🧠 Politik☆Gesellschaft☆Chron. Erkrankungen
Dr. Daniel Loy @loy_daniel_de
6K Followers 1K Following Ehemann, Jurist. #MECFS. Team #SIGNforMECFS. Team #GOfundMECFS. One of the #MillionsMissing.
Bettina Grande @GrandeBettina
7K Followers 1K Following Psychologische Psychotherapeutin, Praxis in Heidelberg. Aktiv in Aufklärung über und gegen die Psychologisierung von #MECFS. #PEM ist nicht verhandelbar!
Dr.med.Hank Schiffers.. @leanhealth
6K Followers 2K Following Physician exec, committed to measurable&transformative patient value-active in beekeeping charity, motivational speaker #leanhealthcare #start-up #patientvalue
Dr. Bettina Hohberger @Dr_B_Hohberger
8K Followers 48 Following PD Dr. med. Dr. rer. biol. hum. Bettina Hohberger
Claudia Ellert @claudia_ellert
7K Followers 239 Following Gefäßchirurgin, Autorin, Triathlon, medizin. Schwerpunkt Aufklärung und Prävention @LongDeutschland #Covid19 #LongCovid #mecfs #Leistungsdiagnostik
InViennaVeritas @yousitonmyspot
8K Followers 559 Following citizen journalist #OSINT | #ActuallyAutistic | #CovidIsntOver | #ZuExtremFürJohannesRauch
Arschang Valipour @lungendoc
9K Followers 241 Following Pneumologe, Internist, Intensivmediziner, selbsternannter Beschützer der Lungengesundheit 🫁; private Tweets rund um Medizin und gesellschaftliches Miteinander
Dt. Ges. für ME/CFS @dg_mecfs
6K Followers 273 Following ME/CFS ist eine schwere körperliche Erkrankung, die bisher kaum erforscht ist. Wir setzen uns für die Interessen der Erkrankten und mehr Forschung ein.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Marc Brupbacher @MarcBrup
14K Followers 705 Following Co-Leitung Daten & Interaktiv, Redaktion @tagesanzeiger
Michael Wagner @MichiWagner4
14K Followers 2K Following Microbiologist, Professor at University of Vienna, Austria Distinguished Professor at Aalborg University, Denmark @michiwagner4.bsky.social
Dr. med. Armin Philip.. @ArminPh
9K Followers 2K Following @[email protected] Teil d Mediziner Bubble. Impfluencer! Derma ist das schönste & abwechslungsreichste Fach. Privater Account. 1200 RS Fahrer!
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Martin Hippe @pausedME
7K Followers 474 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Friedemann Weber (@fr.. @Friedemann1
12K Followers 2K Following Basic researcher on viruses and innate immunity. Professor and Chair JLU Giessen Opinions are my own
Ulrich Elling @EllingUlrich
14K Followers 314 Following @ulielling.bsky.social Genetics, CRISPR, stem cells, Covid-19 testing and sequencing. | Private Twitter Account reflecting my thoughts.
Coralie Bouillot @CoBouillot
5K Followers 5K Following Passionnée par la médecine...donc la santé...et forcément l'innovation qui va avec :-) Pro vax, pro masques et antifakemed 😎#Eular #ERNReConnet #EMA
1999 Live @25YearsAgoLive
22K Followers 25 Following Live-tweeting as a reporter embedded in history. Follow 1990s life! Curated by @MannyMarotta. Companion to @100YearsAgoLive and @50YearsAgoLive. DM for contact.
Robin McNelis Physiot.. @robinthephysio
133 Followers 110 Following Cardiorespiratory Physiotherapist working in private practice with a special interest in Breathing Pattern Disorders and Long Covid Recovery
Valentina Puntmann @v_puntmann
441 Followers 62 Following Consultant Cardiologist and Senior Clinical Research Investigator @GoetheCVI, Expert in COVID&Heart, CardioRheumatology, CardioOncology, Cardiac Imaging
WorkingAndNotWorkingW.. @WorkingWithLC
315 Followers 499 Following All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler
Dr Jenny Ceolta-Smith.. @JCeoltaSmith
3K Followers 3K Following Not always X active & #NotWorkingWithLongCovid #OT PhD activist & advocate on health, well-being, welfare and work #LongCovid #FBLC #DWP +at:@WorkingWithLC
Dr Susan Mollan @DrMollan
2K Followers 533 Following Neuro-ophthalmologist interested in improving patient care through engagement and research.
Dryostradamus MD MPH .. @dryostradamus
104 Followers 43 Following Getting my 💔 by the NY Mets. Sometimes I push propofol and write a research paper. Sometimes chat about medical stuff. I am back from a North Korean gulag!
Jesus H Christ! @ThatBloke_Jesus
214K Followers 8K Following Influencer, magician, totally real. I only want 12 followers. Ricky Gervais fan, don't tell Dad. Amen!
Jürgen E. Holzinger @j_holzinger
196 Followers 166 Following Obmann und Gründer des Vereins ChronischKrank Österreich, Autor, Keynote-Speaker im Sozial-und Gesundheitswesen & Berufsunfähigkeit/Pflege, Lektor
Daniel Martins (MD, P.. @DanielArturAM
502 Followers 573 Following Institute of Psychiatry, KCL; NIHR Maudsley BRC | Psychiatry - Experimental medicine, Neuroimaging, Biomarkers
Bettina Figl @BettinaFigl
2K Followers 2K Following Journalistin @sn_aktuell / Ressort: Wissenschaft & Medien / @aufmacherM-Co-Organisatorin / @risj_oxford-Stipendiatin 2018
Dr Tim Robinson @LongCovidDoctor
79 Followers 68 Following Long Covid specialist Doctor Physician. Education for patients - to help understand, validate and recover from Long Covid. @LongCovidDoctor on #YouTube #Podcast
longcovidstudies @lcstudiesdotnet
287 Followers 0 Following Long Covid Studies makes it easy to find Long Covid research studies near you.
Christopher Latella @clatella1
774 Followers 568 Following Post-doctoral researcher in exercise neuroscience/sports science. Interested in muscular fatigue, recovery and adaptation from resistance training.
Myoflame-19 @Myoflame19
105 Followers 44 Following The Institute for Experimental and Translational Cardiovascular Imaging is dedicated to translational clinical research of cardiovascular imaging biomarkers.
Austrian Neuroscience.. @AustrianNeuros1
639 Followers 429 Following The Austrian Neuroscience Association (ANA) was founded in 1993 for the advancement and public representation of the neurosciences in Austria.
Luis Del Carpio Orant.. @CarpioOrantes23
710 Followers 585 Following Internist, virologist and researcher
derek guy @dieworkwear
833K Followers 963 Following Menswear writer. Editor at @putthison. Creator of @RLGoesHard. Bylines at The New York Times, The Washington Post, The Financial Times, Esquire, and Mr. Porter
Derya Unutmaz, MD @DeryaTR_
290K Followers 4K Following Professor, medical scientist, immunologist @jacksonlab research in aging & cancer immunotherapy. Interests: #longevity #robotics #AI #Scifi #tech #space🇺🇸🇹🇷
Franziska Dzugan @franziskadz
160 Followers 110 Following Journalistin beim Nachrichtenmagazin profil
Bingel Laboratory (Bi.. @bingellab
626 Followers 144 Following Prof. Ulrike Bingel's Laboratory of Clinical Neurosciences on Pain and Cognition Interactions at the @medessen in Germany | Speaker of @sfb_trr289
Michal Tal, PhD @ImmunoFever
13K Followers 10K Following Immunoengineer @MITdeptofBE captivated by #inflammation, #SexDifferences #Lyme, #COVID, and planetary health. prev/ @Yale, @Stanford. @immunofever.bsky.social
Sevda Sarıkaya @drsevdasarikaya
87K Followers 420 Following Neurologist, Behavioral Neuroscience and Dementia 🧠Alzheimer’s School #MECFS Advocate
Brain Inflammation Co.. @BrainInflCollab
811 Followers 47 Following We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
Petter Brodin @BrodinPetter
13K Followers 9K Following Professor of Pediatric Immunology • Pediatrician • Human Systems Immunology • Experiments • Computation • @MRC_LMS • @imperialcollege • @karolinskainst
Fen, MD @FvRhijn
3K Followers 2K Following 💉*5 | MD w/ #ME due to #LongCovid | rheumatology resident | regenerative med | vascular inflammation | scleroderma | harpist | they/them 🌈 views are mine
𝚃𝚑𝚎 𝙻𝚘.. @lostsupper
9K Followers 520 Following Author Taras Grescoe's quest for ancient flavors. Words @SmithsonianMag @NatGeo @guardian Option: @veltre https://t.co/VHH6ooa0Qp https://t.co/IY68jagrHX
Nia Luxton @NiaALuxton
2K Followers 5K Following PhD (Macq), MAppSc (USYD), BScHons (Ulster). She/her. Senior lecturer (FHEA). Physiotherapy, digital health, health policy, climate change, Long COVID
FENS @FENSorg
35K Followers 996 Following The Federation of European Neuroscience Societies is the voice of European #neuroscience. FENS Forum 2024: See you in Vienna (AT)! | 25-29 June 2024 #FENS2024
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Michael Mitterwallner @Mit48218Michael
2 Followers 14 Following Postdoc | Medical University of Vienna | All things neuromodulation, happiness and psychotherapy
Joanne VanDerNagel, M.. @JoannekeVDNagel
2K Followers 3K Following Psychiatrist, researcher eHealth equity @UTwente & @tweettactus Center for Addiction & Intellectual Disability. #proud2beScout. Blue Sky?
twaa2221 +mastodon +b.. @twaa22111
296 Followers 599 Following Pro: Rationalität, Wissenschaft, Diversität, Solidarität mit 🇺🇦 und 🇮🇱
NMCB | Nederlandse ME.. @NMCB_studie
88 Followers 1 Following
Carlo Cervia-Hasler @carlo_cervia
1K Followers 255 Following Physician-Scientist, MD, PhD. 🔍Drug Development & Strategy. 🧩Immunology, Data Science, Long Covid. 📜Views are my own.
Young European ME Res.. @YoungEmerg
215 Followers 39 Following A European forum formed with EMERG to support and encourage early career researchers to pursue a career in ME research
WouterSchievink @WouterSchievink
2K Followers 81 Following #CSFleak expert #neurosurgeon #spinalCSFleak @CedarsSinai Los Angeles #SIH [email protected]
David S. Goldstein @DavidSGoldstei2
395 Followers 22 Following More than 50 years of patient-oriented research about stress, catecholamines, and autonomic medicine.
Rebecca Ryan @DrRebeccaRyan
1K Followers 1K Following Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS and hEDS.
Richie Goulding @RichieGoulding1
909 Followers 547 Following Assistant Professor at Vrije Universiteit Amsterdam. Interests: exercise and muscle physiology under the conditions of training, ageing, disuse and disease.
Braeden Charlton @BraedenCharlton
541 Followers 554 Following VU PhD Candidate, mitochondrial and long Covid research, occasional athlete
Christian Haberhauer @c_haberhauer
155 Followers 189 Following Journalist, APA - Austria Presse Agentur, Ressort Innenpolitik
Carbon Health @CarbonHealth
12K Followers 2K Following We’re a human-centered hybrid healthcare provider using the power of technology to make great care more accessible to everyone.
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Vox Jo Hsu, PhD MFA @voxjohsu
2K Followers 661 Following Writer. Troublemaker. Rhetoric Professor @UTAustin 🏳️⚧️🏳️🌈🥄#pwME Words in @HuffPost @TheHill @BostonGlobe Author of Constellating Home https://t.co/MRhE1rgTwM
Prof. Dr. Nils Kroemer // @cornu_copiae @UniklinikBonn @uktuebingen on “Targeting motivation with vagus nerve stimulation” scheduled lecture on Thursday, 29.08; 2 pm – 3 pm #CSSBP2024 @UniCologne @joseph_kambeitz
Thrilled to be part of the #CSSBP2024 summer school with a focus on focus on transitions & frontiers. Thank you for organizing this @koeniglab and @joseph_kambeitz
Prof. Dr. Nils Kroemer // @cornu_copiae @UniklinikBonn @uktuebingen on “Targeting motivation with vagus nerve stimulation” scheduled lecture on Thursday, 29.08; 2 pm – 3 pm #CSSBP2024 @UniCologne @joseph_kambeitz
Reminder: This Friday, 5/3 at 1:00pm ET - @RenegadeRes & @MEActNet bring you this Clinican's roundtable with @sunsopeningband - Clinican's can earn 1 CME credit. Register at: us06web.zoom.us/webinar/regist… #MedTwitter #MECFS #longcovid #IACI
Would you like to ask Prof. Akiko Iwasaki (@VirusesImmunity) a question? You can do so during her session at #UniteToFight2024 ! Register now for free or send the link to people who should attend
I'll also point out there's a lot of daylight between No PEM and Mild (50% impairment). This is a challenging population requiring special monitoring and education, because they feel lousy but are good enough at faking being well that we clinicians may assume there's no problem.
These guidelines are from the International Consensus Criteria for ME. 50% reduction in pre-illness activity levels is required for mild. Moderate is housebound. These levels don't belong together in patient stratification for clinical decision-making. ncbi.nlm.nih.gov/pmc/articles/P…
We have a few more speakers if you like ?! ☺️ Please welcome Megan Fitzgerald @TheMegascope from @patientled ! Megan will provide insights into the reinfection study. She will talk about the effect of reinfections on self-reported measures of post-exertional malaise (PEM) 👍…
This is important, common and underecognised by neurologists. It can take different forms including feeling ill, symptoms worsening without explanation, brain fog and even momentary unrousability when sitting
33 years after our 1st joint paper, my mentor & friend Gert van Dijk (now retired) and I published new article together. Highly relevant: hypotensive “twilight zone”, often missed in persons with #Parkinson. Timely recognition is important: it is debilitating & treatable.
@bmsgpk Unterstützt uns z.B. am 12. Mai und helft uns, den Anliegen von #MECFS-Betroffenen mehr Sichtbarkeit zu geben! 👉mecfs.at/politik/#petit… 👉mecfs.at/unversorgtseit… 8/8
@bmsgpk Erschwerend für unseren weiteren Einsatz ist, dass eine Entschließung sich immer nur auf die aktuelle Zusammensetzung des Nationalrats bezieht und daher nach der anstehenden Wahl nicht mehr als politische Willensbekundung gültig ist. Wir bleiben weiterhin dran! 7/8
Anerkennung, medizinische Versorgung & Absicherung von Betroffenen sowie Forschungsförderung”. Die Entschließung war das Ergebnis eines 1,5-jährigen Petitionsprozesses mit enormem Engagement und führte zu viel Hoffnung bei den Betroffenen. 2/8
📍1 Jahr ME/CFS-Entschließung im Nationalrat: Viel Hoffnung, keine Umsetzung für ME/CFS-Betroffene📍 Vor einem Jahr wurde im Nationalrat einstimmig beschlossen, die #MECFS Situation verbessern zu wollen: “Entschließung des Nationalrates vom 27. April 2023 betreffend ME/CFS: 1/8
@U2Fight_World Thank you #UniteToFight2024 for including me in your speaker list. I am hoping to show you how ME/CFS differs from long COVID and how we can predict the severity of long COVID very early. Hopefully it will help us in developing better treatment strategies.
Quick reminder 🗣️ You may saw @johanvawe tweet today! Johan is speaking at #UniteToFight2024 next month. You can watch his session live and free of charge 👍
if there is someone that still doesn’t believe Long Covid is a real biological condition, and similar ME/CFS, in 2024, I can only say 1- I am sorry 4you 2- you should seriously consider how you study new literature 3- you should also reconsider your role if you are a doctor
#LongCovid is complex to diagnose and treat, so we need #biomarkers! 1. to confirm viral persistence, and 2. to map the failing/overactive immune response. So we tried to hit two birds with one stone using digital transcriptomics 👇👇 (1/n) thelancet.com/journals/lanmi…
This is a real-world #LongCovid cohort, based on general practice of Marc @jamoulle who has become a beacon of hope for patients in Belgium & beyond. From his practice 48 patients and 12 controls were carefully matched for age, sex, time since COVID, vaccination and comorbidities
We believe clinically useful #biomarkers should be non-invasive: while it is interesting to know what happens with #SARSCoV2 in muscle or colon/gut, these biopsies are too painful and laborious to integrate in daily care for #LongCOVID patients. Hence a blood test!
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