Tess Falor, Ph.D. | @RemissionBiome @tessfalor
🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨ Denver, CO Joined January 2021-
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The mesmering effect of a bubble full of smoke floating over water, then popping (color edit by the author). [📹 Austin Lawrence]
ME/CFS Awareness Event May 14, 2024 1PM, MT Register: batemanhornecenter.zoom.us/meeting/regist…
Comprehensive #longcovid mechanism and treatment approach paper. Useful clinical details. Good links between symptoms and mechanisms and treatment approach - ones that can work now. @remissionbiome
Comprehensive #longcovid mechanism and treatment approach paper. Useful clinical details. Good links between symptoms and mechanisms and treatment approach - ones that can work now. @remissionbiome https://t.co/jrvt8FAXxJ
Recording available for the science roundtable with @imyoohealth focusing on @tessfalor single-cell immune profiling results.
Recording available for the science roundtable with @imyoohealth focusing on @tessfalor single-cell immune profiling results.
Me waiting for more people to watch this recording and get as excited about the results as I am. 😆
Me waiting for more people to watch this recording and get as excited about the results as I am. 😆 https://t.co/5Rtdl7z7a5
Research Roundtable recording! Single-cell immune profiling results from before, during, and after @tessfalor took Amoxiclav. youtu.be/182ddFFdfr0?fe…
These diagnoses fucked up my medical records and made it impossible for me to get care in time. Everyone wanted to keep rerouting me back to neurology or even worse, neuropsychiatry. PT, meditation, yin yoga, and talk therapy are NOT going to open compressed iliac veins.
Each time I train a new student or resident, I always say, “The way to lose my trust permanently is to pretend you know something that you don’t. That’s how you kill patients. If you don’t know, say ‘I don’t know.’” Being an excellent physician requires humility. #medtwitter
Each time I train a new student or resident, I always say, “The way to lose my trust permanently is to pretend you know something that you don’t. That’s how you kill patients. If you don’t know, say ‘I don’t know.’” Being an excellent physician requires humility. #medtwitter
Sign up for our April 24 webinar "Comparing Immunological Signatures Between #LongCovid and #MECFS" with Dr. David Putrino & Dr. Jamie Wood of @IcahnMountSinai. They'll discuss their ongoing research & current study. Learn more and register here: ow.ly/rs0R50Rcvz9
Honored to be listed alongside these amazing people! @U2Fight_World unitetofight2024.world @IsabelRamirezRD @sunsopeningband @MarieThereseBka @oonagh_cousins @KraterMartin @neurostingl
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Martin Hippe @pausedME
7K Followers 474 Following East Westphalia by Nature ⎮Lawyer by Profession | #Musikrecht | #MECFS | @Mirame_Arts | No medical advice!
Gez Medinger @gezmedinger
20K Followers 720 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Sidoy @Sidoy80em
0 Followers 18 Following
Carolyn Bridget Kenne.. @CarolynBKennedy
108K Followers 106K Following 🇨🇦 Actor/Filmmaker in LA @sagaftra @ACTRAnational @groundlings @ucbtla @SecondCityLA #StandUp Agents: @90210Talent @HeroArtists Publicist @WendyShepherd
Zing_Zone @ZoneZing82318
43 Followers 2K Following
Alisa Valdes, Novelis.. @AlisaValdesRod1
28K Followers 30 Following 📍NM I write. I coffee. I mogul. 1+ million novels in print. Environmental Justice Writer NMED.
Green Light Delivery @_GreenLightD_
316 Followers 451 Following Since 2011 LA's Most Reliable Cannabis Delivery
👠🫖Dr. CAM She f.. @camcath
2K Followers 3K Following #🇺🇦 Ukraine #CeaseFireInGaza #WomenForBidenHarris
Jennifer @jenni3973
598 Followers 573 Following
Jenna Pratt @JLemon3324
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Tilda @Elizabe30064747
50 Followers 1K Following I am a lively and cheerful girl who would like to meet a good friend.
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197 Followers 474 Following LC, Class of late ‘23 after avoiding C until 11/23. Emergency response professional with geologist and camping "problems".
aspiring friend to lo.. @LarkBrains
296 Followers 712 Following feral cat. somehow survived to 33 so far. (he/him or they/them)
Loser @loser34987
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Diana @PharmphoodTM
466 Followers 939 Following ’Regulation of the partial pressure of oxygen by the 5HT nervous system in hypoxia’ https://t.co/ZbLWVkKmMs (pharm pH O2 diet)
Dark Humor @TwistedComedy1
440 Followers 6K Following Bringing the twisted humor that makes you cringe and chuckle at the same time. Get ready for a wild ride of dark humor and twisted tales. #FunnyFuckedUpStuff 😈
🍁Doug Snedden🦅 @dougsnedden
2 Followers 5K Following "When you give from the heart your gift becomes love." 🦠 🤧 🤢 📈 💊 💉 ☣ 🚑 🌍𝐏𝐚𝐧𝐝𝐞𝐦𝐢𝐜 𝐄𝐦𝐞𝐫𝐠𝐞𝐧𝐜𝐲 𝐀𝐥𝐞𝐫𝐭!🌐 🗣 💬 🗯 💭 🚐 ⏳ 🧪 🧬 ☠
Kevin Richardson @Lionwhisperer4
604 Followers 863 Following Animals might not speak, but they always remember . Say no to cruelty to animals
Joel Cyr @J0ELCYR
6 Followers 57 Following
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142 Followers 424 Following
Whesmee @whesmee44430
26 Followers 2K Following
alffindora!!! @alffindora
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Lea 🐝 @_lea35166
11 Followers 223 Following Postgraduate 2021 📑📚from Life Long Learning Centre at University of Leeds. Will always be a lifelong learner.
Keanu Reeves @KeanuReeve624
54 Followers 701 Following actor. Born in Beirut and raised in Toronto, he made his acting debut in the Canadian television series Hangin' In (1984), before making my feature film 🎥
herrywood @herrywood01
8 Followers 220 Following Love is not just a feeling; it’s my favorite adventure.❤️❤️❤️❤️❤️❤️🌹🌹🌹🌹🥰🥰🥰🥰
AI & Blockchain @AInBlockchain
3K Followers 4K Following Science | Technology | History | Invention | Travel | Art | Photography | Comedy | React JS/Native Fan | 🎼 Rust
Alexandra Alvida @Aelvidra
40 Followers 148 Following very severe ME CCI EDS mcas, insta: @alekpalek Gofundme: https://t.co/op7gGeiInu ⚠️please help if you can⚠️
Ryan @ryanlockwood7
41 Followers 284 Following
Bill Bennett @BillBen50947120
554 Followers 2K Following Proud to be a leftie! Pro EU, Anti Tory. Despise the Tories and what they’ve done to the country and the less fortunate. Dislike racism. No DM’s please.
Chris Michael @CMichael69951
113 Followers 1K Following
Dave Satterlee @dsatt5
64 Followers 275 Following
ptsdandillness @ptsdandillness
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Amanda Crowley @AmandaC78120397
14 Followers 162 Following
Olivia Fx (Forex trad.. @OliviaFAf823
60 Followers 509 Following 📊📊 SENIOR ACCOUNT MANAGER AT BITCOIN MANAGING PLATFORM📉🛠️ DM TO START EARNING... 🛠️ NO SCAM❌❌
Kelly D 07 @Daley07Kelly
993 Followers 3K Following I am a mum with EDS, Autism and complex physical and mental health issues. I have an adorable son who is my world. Please help me make a change in medical law.
James Bennett | Agenc.. @Jamesbcontent
543 Followers 737 Following Agency Founder building the #1 content system for marketing agencies | UndergroundEcom, ConversionWise, Grip, VersionTwo & more. https://t.co/SM7fvFtNGU
Maddox @Zelti_moon
119 Followers 701 Following WEAR A MASK 😷| #LongCovid Since 2022 | #ME #POTS #MC #ABDL #Hirschsprungs | Autistic, Anxiety Ridden, Somehow Managing🌻 | they/them 🏳️🌈
Hazel Storey @spikeyspooney
112 Followers 467 Following
Karla Fisk @KarlaFisk
3K Followers 7K Following #BLM Green bldg pro (LEED AP), Organizer: @InwoodLegal Action, member: NMN4$. Grateful to be living with my husband & dog Belle in Inwood, Upstate Manhattan.
John Dutton @JohnDutton67754
36 Followers 363 Following
🌺 Allison Shapiro .. @ARShapiro68
981 Followers 559 Following Special educator disguised as a first grade teacher; closet techie; wino & foodie.
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
S Blitshteyn MD, FAAN.. @dysclinic
20K Followers 1K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
GeoCK @GeoEduOne
6K Followers 954 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Dysautonomia Intl. @Dysautonomia
26K Followers 344 Following Dysautonomia International is a 501(c)(3) non-profit that raises funds for research and promotes awareness of disorders of the autonomic nervous system.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Mosaic Diagnostics @mosaic_dx
2K Followers 1K Following At Mosaic Diagnostics, our mission is crystal clear: Reveal the complete picture. Empowering you to deliver personalized therapies for each patient’s unique cha
OpenNotes @myopennotes
5K Followers 1K Following We study the effects of transparent communication among patients, care partners & clinicians through open progress notes. Located @BIDMC_GenMedRes. #opennotes
Amos Stern @AmosGnux
400 Followers 462 Following Entrepreneur and investor. Co-Founder & CEO of cyber security company Siemplify (Acquired by Google Jan'22)
Ryan Falor @ryanfalor
390 Followers 353 Following Mapping the world, one tech company at a time. Cruise, Uber, Google, NASA and lifelong Michigan Wolverine. Mentoring product pros via https://t.co/H5fpHtDsqe
Valentina Puntmann @v_puntmann
441 Followers 62 Following Consultant Cardiologist and Senior Clinical Research Investigator @GoetheCVI, Expert in COVID&Heart, CardioRheumatology, CardioOncology, Cardiac Imaging
Annie McCasland-Pexto.. @anniesorganics
1K Followers 1K Following Author. Podcaster. Craniosacral Therapist. Check out my new podcast "the baby in the bathwater" and my book "Invisible Work: An Ex-Lawyer's Guide to Self-Care.
She Who Copes @SheWhoCopes
800 Followers 1K Following Rocket scientist with a keen interest in public policy and social justice #Resist #MEcfs #SaveTheNHS #ToriesOut
Zeb needs help! see p.. @alien_zeb
321 Followers 1K Following Very severe ME • helping ppl crowdfund • 21+ y/o • 🔞 will block • respect my cf'ing boundaries in my profile link • add me to weird list = block
Mary Wanja Thuo @marywthuo
9K Followers 4K Following I am an Entrepreneur, Mentor, and Author from Nairobi Kenya championing decent work, decent pay, Human rights, and economic growth for vulnerable groups.
Michelle Miyagi @MichelleMiyagi
250 Followers 1K Following Former RN. Feminist. LGBTQIA Empowering us to choose self-compassionate boundaries. LOVE 🌈✌🏽🤗 The Logical Heart Knows Best #LongCOVID #MdDS
Unlearn.AI @UnlearnAI
2K Followers 898 Following Advancing AI to eliminate trial and error in medicine. Read our substack blog: https://t.co/2CiSTTHlwm
bramkoers @bramkoers_tweet
148 Followers 89 Following Scientist but not following The Science TM; into data science, AI, and computer programming. Primum non nocere.
Michael Eisen @mbeisen
77K Followers 15K Following I science & try to make science open. Tweets do not represent my employer's views, but are always correct. My conflicts of interest https://t.co/bZ7I9oSJe0.
Workwell Health @4wwhealth
12 Followers 1 Following
Dr Kelly Jones #clean.. @DrPops3
5K Followers 3K Following Epidemiologist. PolSci, MPH, PhD. Clean Air Activist, Socialist, applied epi, vulnerable children. Sailor. Adj. Senior Research Fellow
João Malato @jtmalato
167 Followers 584 Following Biomedicine PhD Candidate @IMMolecular, LGraca Lab and Immune-Stats Group
DeSci Mic @DeSciMic
764 Followers 245 Following Doing science without permission 🧪🏴 (fka banklessDeSci) A town square for scientists and builders interested in #DeSci
destiny unknown @Wyndhamville
380 Followers 1K Following Held hostage by #ME 24 yrs. Very Severe, bedbound but clinging on. Aus needs updated ME Diagnostic & Treatment Guidelines now.
Astera Institute @AsteraInstitute
3K Followers 14 Following We empower visionary, high-leverage science and technology projects with the capacity to create transformative progress for human civilization.
Ivo Grigorov @OAforClimate
2K Followers 2K Following #GlobalCitizen, exploring #OpenScience & #OceanLiteracy as means for #OpenInnovation & UN #SDG14 for upcoming “Decade of the Ocean”. https://t.co/FPGaT57Lfr
Jared Espley @JaredEspley
266 Followers 275 Following I work for NASA exploring the Solar System, occasionally get paid to write D&D adventures, and whitewater kayak when I can.
Teri RN L&D 🩺☮�.. @Terihaynes
5K Followers 6K Following (No DM’s ) #NurseTwitter L&D ☮️💕🫶🏻⛈🌊🤰🏼🤱🏼 👶🏼🏨🩺🌻🌸🌼🌺
ResearchHub @ResearchHub
14K Followers 1 Following A modern day preprint server that incentivizes the open publication of transparent research. Let's accelerate science!
CEO, Chief Epistemolo.. @EnactJohnny
265 Followers 238 Following Philosopher of Psychology ☯️Team Non-Dual Philosophy, DeSci, Semi Conductors. Co-Inventor Enlightenment Therapy🌈 Sci-Comms Lead @ResearchHubF 🌐
Jeffrey Koury @jeffyfish9
522 Followers 401 Following Director at @ResearchhubF | PhD Biomedical Science @UCRiverside | All opinions my own
Lennart Björneborn @connecto
793 Followers 233 Following »Connecto ergo sum«; I connect therefore I am • Researching how #serendipity connects people & ideas across physical/digital spaces • And I do like #haiku :-)
Steven Johnson @stevenbjohnson
1.1M Followers 374 Following Editorial Director, NotebookLM and Google Labs. Author of 13 books. Latest: Extra Life. Speech inquiries email: wesn at leighbureau dot com
Michael Nielsen @michael_nielsen
96K Followers 6K Following Searching for the numinous 🇦🇺 🇨🇦, home in 🇺🇸 Research @AsteraInstitute https://t.co/maezekzRUb
Rufous McKinney @MckinneyRufous
448 Followers 221 Following Plant Ecologist Graduate of the Thomas Fire Dec 2017-it all came down Typos common- apologies in advance...(vision problems)
metejt @metejtme
573 Followers 2K Following Health, Government, Politics, Wellness, Classic Rock, Pop, Country & "I BELIEVE PARENTS" "Never underestimate the power of stupid people in large groups."
Pirate Wires @PirateWires
59K Followers 8 Following technology, politics, culture get the free daily newsletter 👉🏻 https://t.co/eAh13J2v0f
Trent @trentlapinski
5K Followers 5K Following I help Entrepreneurs and startups grow and market technical products. Husband. Father. Pro-humanity technologist. Yogi. Author.
🦺 Breonna Taylor's.. @JibMonkey
2K Followers 2K Following I don't have time for religion or nazis. I have a soft spot for all humans. Even if you're stupid. No judgement. Fight for someone you don't know.
Goaraner - Rave on �.. @Hottekoeln
144 Followers 196 Following
Lenka @tradergrl
398 Followers 5K Following
Jena Friedman @JenaFriedman
65K Followers 695 Following Stand Up, Borat 2 writer, Daily Show alum, Late Show alum, creator of Soft Focus on Adult Swim and Indefensible on AMC Plus. Don’t quote me 🤡
Sara Mariotto @SaraMariottoMD
397 Followers 233 Following
Johan Van Weyenbergh @johanvawe
4K Followers 4K Following Researcher in #HTLV #HIV #NTDs respiratory viruses and vaccine response. 'Nothing in #human #immunology makes sense outside the light of #clinical #evolution'
N of One @NofOneAutism
147 Followers 6 Following N of One: Autism Research Foundation is a non-profit that sponsors breakthrough autism research. Please See More at: https://t.co/M7yZkgT5YF
Katie Torrington @KKTorrington
199 Followers 2K Following Strategic partnerships expert working to build corporate and foundation relationships @SOME_DC. All views are my own.
Dr Mary Pearson @drmejpearson
2K Followers 1K Following Researcher | Place, memory, land, photography | Volcanoes & fragile landscapes | Working in college & university pastoral support & care | Views my own
Puff the Magic Hater @MsKellyMHayes
70K Followers 4K Following Organizer | Co-author of Let This Radicalize You | Hosts Movement Memos podcast | Newsletter: https://t.co/reEPh5xqgd | More: https://t.co/mS8uBZRaHR
WorkingAndNotWorkingW.. @WorkingWithLC
315 Followers 501 Following All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler
Dr Finlay's Private P.. @DrFinlaysGP
107 Followers 150 Following 🏆 Award Winning Private GP 🏡 Home Visits 💻 Online Consultations 💡 Specialist Long Covid Clinic
Meritxell Viciano @MerytKmt
427 Followers 618 Following Egyptologist ∞ #SíndromeRaynaud #SíndromeDeEhlersDanlos #SOP #Fibromialgia #SensibilidadQuímicaMúltiple #EncefalomielitisMiálgica #Disautonomía #EHS #POTS
Cancan12312 @Cancan12312
491 Followers 429 Following She/Her 🏳️🌈 🎗️🇺🇦🇮🇱✡️✝️🇺🇸Long Covid/PEM Retired biostatistician. Post: Cancan12312. BlueSky: cancan12312.
AMACOP | Asociación .. @covid_madrid
5K Followers 760 Following Asociación madrileña de #CovidPersistente #LongCovid. ✉️[email protected] Hazte SOCIO https://t.co/a2om4I8zpN For English @covid_madrid_e
What a talk by @jessapple have you seen it yet @ChrisPalmerMD ? Jess has a way with words.
Breathtaking is the word for @jessapple talk at @realDaveFeldman CoSci 2024 conference. It shows why his conference felt hopeful, joyful and a celebration all at the same time. It is a must watch. Jess got medical advice that defied common sense the rest is a story of recovery ❤️
This is very true: science will win. It always does. Don't give up. Sorry it is taking too long, but we will get there . #LongCovid #MECFS
@SawyerBlatz I’m an oncologist. At the start of my career, everyone told me cancer was hopeless & it would be too depressing. Everything changed because of research & advocacy. Science will win. Don’t give up. ❤️🩹
Teamwork makes the dream work ! A big thank you also to the rest of the core team @TeamPostX @FrauXausNRW @ungenesbar @ClausErnst + Our speakers who believe in this project + The whole international #LongCovid & #MECFS community which is spreading the word daily, both offline…
Unitetofight2024 @U2Fight_World Die internationale von Betroffenen @Gmwetz organisierte online Konferenz am 15./16.5. ist jetzt bereits die bislang größte zu #MECFS und #PCS. Mit einer Videobotschaft von @Karl_Lauterbach sn.at/panorama/oeste…
Reminds you of something, #pwME? 🤨#mecfs #LongCovid
Just got in Portland and ready to discuss some Neurochemistry! (no 😷 as I am in my hotel room 😊). @ASNeurochem #ASN2024
A crazy idea?? We develop a longitudinal LC and ME controls database for @RenegadeRes and other researchers. 1. This would help standardize measurements. 2. Increase the impact of trials. 3. Reduce the cost of research. 4. Follow a set group over years.
I’m very happy to see this sort of fundamental ‘basic’ pathology research being done in #MEcfs we need this! Important to note this research was inspired by reports from patients (well done to the team for listening) & at an institution helped by @patientled & @MEResearchUK
Low Vasopressin in Myalgic Encephalomyelitis/Chronic Fatigue Syndrome: Our findings suggest that deficiency of vasopressin secretion is a fundamental measurable part of the disease mechanisms, which may underlie a number of symptoms in #MECFS, including neurology.org/doi/10.1212/WN…
I want to write a paper on the weirdly large number of similarities between ME/CFS/long COVID and migraine. They keep stacking up: more likely in women, mitochondrial dysfunction(?), sensory sensitivity, pain, co-morbidity, etc...and now reduced vasopressin secretion?
New, interesting Swedish research: Low Vasopressin in #MyalgicEncephalomyelitis/ #ChronicFatigueSyndrome neurology.org/doi/10.1212/WN… "deficiency of vasopressin secretion is a fundamental measurable part of the disease mechanisms, which may underlie a number of symptoms in #MECFS"
This an interesting article on the negative effects of excess Fibronectin in Alzheimer's disease. Our data on high Fibronectin in the serum of ME/CFS and long COVID patients is getting more and more interesting. link.springer.com/article/10.100…
Paleo meatloaf about to go in the oven just like our ancient hunter-gatherer ancestors used to make
it’s the first time in my life i see, talk and i exist at the same place of people with ME or Long Covid instead of the virtuality. thanks @IsabelRamirezRD, @Drewhywhywhy, @arta_semita & @subversivepsych for reminding i am not alone. we are not alone in this hell. ❤️
My 9 yo Son was “mentally ill” until an underlying physical source of inflammation was considered. Given this could be a simpler solution to the impossible CAMHS route, does this not deserve a mention @thetimes @DrElaineLockha1 ? #pans #pandas
New speaker announcement 📣 Very pleased to have Dr. Valentina Puntmann (@v_puntmann) speak at our conference about post-acute sequelae of Covid 19 syndrome (#PASC)-Cardiovascular Involvement and the Myoflame-19 (@Myoflame19) randomized controlled trial - which is still…
@U2Fight_World @v_puntmann @Myoflame19 Amazing, you guys are really killing with this line of speakers. Cardiovascular risk with Covid-19 is HUGE. Everyone should watch this talk.
@tessfalor @CounsellingSam There's a charity called Fight Back for Justice which helps people with claiming and appealing various welfare benefits. Not specifically for long covid though
Lifelong absence of microglia alters hippocampal glutamatergic networks but not synapse and spine density | EMBO reports embopress.org/doi/full/10.10…
@uncfammed This is just the beginning. Our educational efforts at #MEAction this year are a big deal. We've got so many in-person and virtual events coming in April/May/June or later events that will be announced by May. Not to mention the groups that will work on #meded longer-term.
useless vegan bears
Are panda sex lives being sabotaged by the wrong gut microbes? newscientist.com/article/242677…
Here's a thought to simmer on your mental stovetop: Unconditional Basic Income isn't just about putting money in more pockets and security in more souls. It's about acknowledging that our greatest resource isn't gold, oil or data—it's human potential. Unleashing that? Priceless.
In a world that measures success by the relentless pursuit of MORE, it strikes me as odd for anyone to assume that everyone would suddenly stop striving for MORE simply because they were guaranteed ENOUGH to not go hungry or homeless. This is really basic Maslow's hierarchy stuff
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