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I🖤 @inadarkroom247

25, UK and Dying from covid induced severe ME. POTS + mild MCAS Joined April 2015
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I🖤 retweeted
TheChronicColab Profile Picture

@TheChronicCollaboration @TheChronicColab

4 days ago

WESTMINSTER HALL DEBATE ON #MEcfs As promised please find below an open letter everyone can sign asking @sajidjavid to raise #BringMillieHome #SaveCarlasLife & more during 1 May's debate We will send it on 30 April. So get involved and get signing. LINK with a CW - suicide:…

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

6 days ago

#SaveCarlasLife #MEAwarenessHour

TheChronicColab Profile Picture

@TheChronicCollaboration @TheChronicColab

6 days ago

#SaveCarlasLife #MEAwarenessHour

I🖤 retweeted
kirstler31 Profile Picture

Kirst @kirstler31

6 days ago

#MEAwarenessHour I am bed-bound with severe ME. I am terrified of going into hospital & would refuse as I can’t even imagine how much worse I’d end up. This is the biggest medical scandal of the 21st century. Our cries are falling on deaf ears. #SaveCarlasLife #ExposeMENow

CBMEgroup Profile Picture

Cambridge ME group @CBMEgroup

6 days ago

#MEAwarenessHour I am bed-bound with severe ME. I am terrified of going into hospital & would refuse as I can’t even imagine how much worse I’d end up. This is the biggest medical scandal of the 21st century. Our cries are falling on deaf ears. #SaveCarlasLife #ExposeMENow

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

6 days ago

NHS hospitals are extremely dangerous places for #SevereME patients. Carla, Millie and Karen are just the cases we know about, there could be so many more being abused without us ever knowing about it #MEAwarenessHour #SaveCarlasLife #BringMillieHome

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

6 days ago

The NHS are going to kill yet another severe ME patient #SaveCarlasLife

TheChronicColab Profile Picture

@TheChronicCollaboration @TheChronicColab

6 days ago

The NHS are going to kill yet another severe ME patient #SaveCarlasLife

I🖤 retweeted
phi_psd Profile Picture

Phi @phi_psd

a week ago

I only want L O N G C O V I D C U R E I N B I O

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

a week ago

To all pwME who menstruate: what are we doing about periods? Has stopping them lead to improvement? If so what are you taking? (Especially curious if you're severe)

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

2 weeks ago

This is horrific. Carla is having frequent seizures and yet the hospital STILL this her condition is psychosomatic! #SaveCarlasLife #Severe

TheChronicColab Profile Picture

@TheChronicCollaboration @TheChronicColab

2 weeks ago

This is horrific. Carla is having frequent seizures and yet the hospital STILL this her condition is psychosomatic! #SaveCarlasLife #Severe

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

2 weeks ago

Carla is having seizures and repeatedly losing consciousness while in hospital. She's lost the ability to speak and move yet still isn't being believed. Her case has been taken over by psychiatry and she's at risk of death. She has #SevereME #SaveCarlasLife #ExposeMENow

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

2 weeks ago

Yet another young woman with #SevereME is being harmed in an NHS hospital who refuse to follow NICE guidelines. The worst part is that @gmcuk let them get away with it every time #SaveCarlasLife #ExposeMENow #DontLetMEDie

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

2 weeks ago

What is the point of NICE guidelines if hospitals refuse to follow them for #MECFS ? Severe patients are at risk of dying in hospital because psychiatrists are taking over their care and ignoring advice from experts @rcpsych @RCPhysicians @gmcuk #SaveCarlasLife #ExposeMENow

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

2 weeks ago

thecanary.co/uk/analysis/20… #SaveCarlasLife #ExposeMENow #MECFS The abuse of severe ME patients in NHS hospitals has to stop!

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

2 weeks ago

Imagine being so ill it’s agony to eat, going into hospital for help, instead doctors cancel all your referrals, ignore experts & NICE guidelines leaving you having seizures & losing consciousness because they think #MECFS is psychological #SaveCarlasLife #ExposeMENow

I🖤 retweeted
TheChronicColab Profile Picture

@TheChronicCollaboration @TheChronicColab

2 weeks ago

UPDATE on #SaveCarlasLife #ExposeMENow - we've been involved with the family for a week, now - and she has been deteriorating since then. The video we put out earlier showed she could still partially speak. This has now stopped.

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

2 weeks ago

This is so so cruel. The NHS tortures #SevereME patients. WHERE IS THE NEWS COVERAGE??! #SaveCarlasLife #ExposeMENow

TheChronicColab Profile Picture

@TheChronicCollaboration @TheChronicColab

2 weeks ago

This is so so cruel. The NHS tortures #SevereME patients. WHERE IS THE NEWS COVERAGE??! #SaveCarlasLife #ExposeMENow

I🖤 retweeted
franhaddock_ Profile Picture

Fran Haddock @franhaddock_

2 weeks ago

Toolkit for Carla’s Twitter storm on Thursday! Huge thanks to @fionarh289 for putting this together using the one I made for Millie, I’m severe & pretty burnt out but the community comes together! Pls suggest edits in the comments 👇 #SaveCarlasLife docs.google.com/document/d/1Ny…

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

2 weeks ago

This is absolutely horrifying. PSYCHIATRY HAS NO PLACE IN TREATING ME! #SaveCarlasLife

TheChronicColab Profile Picture

@TheChronicCollaboration @TheChronicColab

2 weeks ago

This is absolutely horrifying. PSYCHIATRY HAS NO PLACE IN TREATING ME! #SaveCarlasLife

inadarkroom247 Profile Picture

I🖤 @inadarkroom247

2 weeks ago

#SaveCarlasLife

TheChronicColab Profile Picture

@TheChronicCollaboration @TheChronicColab

2 weeks ago

#SaveCarlasLife

I🖤 retweeted
tenacious_mumma Profile Picture

KarenG @tenacious_mumma

2 weeks ago

Living with very severe ME is an ongoing daily grieving process. Grieving all the things you have lost, the things you are slowly losing and the things you know you are about to lose.

I🖤 retweeted
TheChronicColab Profile Picture

@TheChronicCollaboration @TheChronicColab

2 weeks ago

PROTEST #SaveCarlasLife #ExposeMENow Carla is extremely ill in West Middlesex Hospital. Doctors are ignoring NICE guidance on severe ME & ignoring her severe POTS You know what to do THURS 18 APRIL 11am-1pm BST EVERYONE ONLINE USE THE HASHTAGS We'll be at the hospital too 1/

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