Long & Tired Road #FBLC @LongTiredRoad
Trying to find a way out of the LC haze, hopefully with a little help #FBLC Wirral Joined February 2022-
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Save Karen Gordon from Dying of Malnutrition and Dehydration due to NHS Failings. - Sign the Petition! chng.it/qWHdLNsw via @UKChange
#LongCovid #pwme who take Magnesium, can you recommend the brand/amount you take? I've been using generic supermarket ones. Ran out recently which has shown me how much I really benefit. Just wondering if I can benefit even more from a better brand/type. Thanks 🙏
Hopefully one day people with ME/CFS will have their #PostOfficeScandal moment. #pwME #MECFS #MyalgicEncephalomyelitis #horizonscandal #C4News #r4today #MedTwitter #BBCBreakfast #bbcnews #NHS
From our school's NHS improve attendance email... I would be fascinated to know what science this is based on 🤪 #Covid
Just reading a #LongCovid article on BBC news website. Links to similar stories below. The "sad woman with hand stuck to face" vibe is strong 🙄🤣
I read a book for the first time in 3 years!!! I was an avid reader before getting #LongCovid. It was terrifying to go from that to not being able to finish a paragraph. So thankful for the improvement and to @RealBobMortimer for writing such a fun book to start me off again.
Thank you BBC Breakfast news for featuring a bit about post viral illnesses with absolutely NO mention of psychological 'causes'. So refreshing to hear a GP say that most MUS are probably caused by the after effects of viruses 👏👏👏
Today's mood - sick and tired of feeling sick and tired 😫
theguardian.com/society/2023/j… Ugh. These people just will not give up will they?
bbc.co.uk/news/health-66… 🧐🧐🧐🧐🧐🧐🧐🧐 In the previous 2 years, child type 1 diabetes diagnoses are up 14% and 27% respectively 😥 #LongCovid #LongCovidK
100,000 excess cardiovascular deaths since March 2020 🧐 At least there is one line in there that mentions Long Covid as a possible contributor... theguardian.com/society/2023/j…
32 months in and still noticing new symptoms 😔 I have a painful knee joint (from previous fracture made worst by Covid). Had a covered hot water bottle on it for a bit which always helps. 3 hours later my leg still looks like this 🧐
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Debbie Seymour @debbie_seymour
2K Followers 779 Following This account can no longer be managed at this time due to Debbie's deteriorating condition. She is okay, but not improving. #LongCovid #MECFS #POTS
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
elle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
T@Sunset @TeiaSunset
6K Followers 6K Following #LongCovid 2003/2020 / Cancer survivor. 🎵🎶Humming music, writing under trees watching sunsets.🏝️😻
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Mormolykeia @Mormolykeia
2K Followers 2K Following Electric witch, limp in society's ditch. Visually fine, oh yes, but mentally dying. #LongCovid #ME
Ippokratis @IpLongCovid
7K Followers 1K Following Physical education and sport science BSc #LongCovid
Sam🐟❤🌈😷�.. @CounsellingSam
43K Followers 42K Following #LongCovid #POTS #actuallyautistic #POC lover of beauty and art, hater of bigotry and racism Pro-EU. #FreePalestine No #Ableism Country Not Party No Freeports
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
David Christopher �.. @MLS_Dave
54K Followers 18K Following #FreePalestine #DoNoHarm #CancerAwareness #EndTheDuopoly We only have one planet 🌍🐋🐅🦏🦋🌳 🚫 War 🚫 Hate
💛Lady w/ LongCovid.. @TheExtraFiles
4K Followers 4K Following ~ #LongCovid 2/2020 ~ International #LongCovidAwareness ~ Long Covid Zoom Chat (DM for link) ~ #FBLC ~ Hater of #COVID ~ #Mask it up~✌🏼💛😷
Second Foundation @oldhorse_jordan
5K Followers 6K Following Improve relations and diseases(e.g. #LongCovid) hard to deal with for you, At least 1000 baht/person. Follow God's commandments, you'll be blessed.
Pea @Psayer5
1 Followers 322 Following
Adv.Physics 2024 @Adv_Physics_24
59 Followers 265 Following
Pekka Puupää 🇺�.. @Raichu_pokem0n
510 Followers 3K Following
OQ @Nnwwzz124
1K Followers 4K Following
Dormouse @DormouseDoodles
307 Followers 207 Following Nocturnal species known for long hibernation. Drinks tea and draws things. Learning to live with #LongCovid since 2020
M @maryhum82842507
84 Followers 1K Following
Nick Frapple @NFrapple
76 Followers 1K Following
Tommy Dellwo @DellwoTomm41467
66 Followers 5K Following
Madeline Bertelson @BertelsMadeli
31 Followers 5K Following
Katharina 🍀 @katha.. @katha1970
885 Followers 2K Following Here for research + info on #ChronicMigraines #MECFS #LongCovid #MCS #MCAS #ChronicPain #Neuroscience #Psychology #MedicalGaslighting, posts German & English 🎶
Kam Ostby @KamOstby20941
46 Followers 5K Following
carlos perez @Carlosfreedom10
66 Followers 2K Following
Ramona Cicciarelli @RCicciarel26847
87 Followers 5K Following
Abrianna Gnatek @AbriannaGn17758
94 Followers 5K Following
JesusIsComing @JesusIs91940818
88 Followers 386 Following Mat 24:7 For nation shall rise against nation, and kingdom against kingdom: and there shall be famines, and pestilences, and earthquakes, in divers places.
Russell Bittenbender @RussellBit88716
63 Followers 5K Following
Royal Fugit @roy_fug
58 Followers 5K Following
Jazmin Jorrisch @jorri_jazm
64 Followers 5K Following
Fransisca Blyther @FransiscaB20019
62 Followers 5K Following
Diane 🌻🇺🇦�.. @YardFairy
2K Followers 4K Following #LongCovid Gardens, children, dogs, #maker, #woodworker, always learning. #BLM #VOTE she/her
Rema Kirylo @KiryloRema75501
92 Followers 5K Following
Alicia Quaker @ali_quake
63 Followers 5K Following
Humans Rights for All.. @OChenault
2K Followers 3K Following it's everyone's business when it comes to Human Rights, Equality, Environment from war genocide & racism for corrupt greed. Step up, call it out, and vote.
Olivia-rose Viscarra @ViscarraRo71451
84 Followers 5K Following
Life Is A Mirage; Let.. @liamliago427
737 Followers 5K Following It's about the blood. ____________ Trump is the forerunner antichrist. I mute Magats.
Julian @Julian443083097
76 Followers 2K Following
Richard Lewis @Z3R0Gravitas
1K Followers 2K Following Extropian sci/tech geek. 'Moderate' #MEcfs, #ADHD-PI, #AuDHD, #dyslexic, #non24-hour sleep. 'ZeroGravitas' in PC gaming. He/him. 41. Please correct my blunders.
Walter Donaho @walt_dona
59 Followers 5K Following
Gustav @Gustav96277031
715 Followers 3K Following
Fatih @fatihnomad
434 Followers 1K Following #LongCovid #Dysautonomia #POTS patient since November 2020 #BC007
Michelle Miyagi @MichelleMiyagi
251 Followers 1K Following Former RN. Feminist. LGBTQIA Empowering us to choose self-compassionate boundaries. LOVE 🌈✌🏽🤗 The Logical Heart Knows Best #LongCOVID #MdDS
יוסי פרס @Yosiperes
178 Followers 2K Following
Idoia Mujika Altuna @MujikaAltuna
209 Followers 3K Following
8K.Nunes 🌍🌏🌎.. @seldnac
706 Followers 5K Following 🇧🇷 🇵🇸🌿🙏 #UseMáscaras #MáscarasPff2/N95 #Ventilação #ArLimpo #Pandemic #SARS-CoV-2 #LongCovid #COVIDisAirborne #CovidLonga /Desde 08/22 #DavosSafe2024
Nick Vasilescu @thenickgene
145 Followers 388 Following Advancing diagnostics for Long COVID. Founder @ Testkey | Medtech, Innovation & Design.
Luke Brack @LukeBrack250330
44 Followers 97 Following
Trust_God_bro @TrustBro79807
81 Followers 2K Following I will deliver you out of the hand of the wicked and redeem you from the grasp of the ruthless. Jeremiah 15:21🙏
Aoife Walsh @Aoifs93
105 Followers 103 Following
Long COVID is a mass .. @lhaztknup
5K Followers 7K Following One of Millions Missing, had severe LC. Now its getting better. I want to help reaching attention f this TERRIBLE illness. No medical advice.
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Shaney Wright @ShaneyWright
15K Followers 494 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Covid Solidarity @CovidSolidarit1
13K Followers 4K Following We are people, not numbers. Across the world 🌎 “Alarm bells only ring in the ears of the powerless.”. “Normalisation is the disguise of complacency.”
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Dr Elisa Perego @elisaperego78
33K Followers 2K Following #LongCovid | Covid || researcher || inequality, health, disability in present | past || patient-led research || medicine history || MA PhD | ≠ MD || views own
Debbie Seymour @debbie_seymour
2K Followers 779 Following This account can no longer be managed at this time due to Debbie's deteriorating condition. She is okay, but not improving. #LongCovid #MECFS #POTS
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Gez Medinger @gezmedinger
20K Followers 720 Following Author of The Long Covid Handbook with @daltmann10, published by @penguinUKBooks (see link). Represented by the Blair Partnership @TBP_agency
elle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Richard Lewis @Z3R0Gravitas
1K Followers 2K Following Extropian sci/tech geek. 'Moderate' #MEcfs, #ADHD-PI, #AuDHD, #dyslexic, #non24-hour sleep. 'ZeroGravitas' in PC gaming. He/him. 41. Please correct my blunders.
Brandon Gilles @BrandonGilles
4K Followers 1 Following Curious about everything. Documenting recovery from Long-COVID (myalgic encephalomyelitis).
Maya Lindemann @MayaLindemannRN
1K Followers 1K Following RWJF ClinicalScholars Alum, School Nurse, scientific diver/ocean lover stranded by #longcovid 3/2020 & #MECFS, #POTS, #MCAS #hEDS #Chiari. #healthequity
Ruby E...w/ LC & ME �.. @RubyEngel1
1K Followers 2K Following Surviving Covid is NOT the same thing as recovering from Covid #FBLC #LongCovid #LongHaulers #CountLongCovid #MECFS
Sof Strang @sofiastrang
61 Followers 735 Following NHS worker with #longcovid since March 2020. No longer able to cycle, walk far, wild camp or do the many things I used to enjoy #IamLongCovid
Madelinenerdfighter f.. @Madelinenerd
2K Followers 3K Following Yes @IamMADELINEpod is me! Media links in it's pin tweet. I'm 43yr+ #postviral #EBV #pwME. Fighting to live but I can't do it alone! Please #DontLetMEDie
Long COVID Newsletter @LongCOVIDemail
203 Followers 281 Following A free weekly email newsletter featuring Long COVID topics and research. #LongCOVID #LongCOVIDkids
Helen M @TM2Helen
381 Followers 871 Following Long Covid since March 2020 -healthcare worker on pause #FBLC
Sarah @SarahLizzyLou
2K Followers 2K Following She/her. Physio student on hold since #longcovid #MEcfs Oct 2021. 💙 our NHS. Former neuro-rehab assistant. #CognitiveDysfunction 🧠♿️ #FBLC
Ginny @MsGinnyGirl
1K Followers 2K Following Mostly here for #LongCovid Twitter. Just a homebound executive, disabled by “minor omicron” in 2022, here to figure out how to kick long covid’s ass.
longcovidtho(ugh)ts @longcovidthots
155 Followers 214 Following welcome to my inflamed brain | #longcovid (obviously) circa 2020 | I also have tshirts from that one spurt of energy several months ago
Alison loves math #FB.. @DrAlisonShelton
436 Followers 701 Following Loves Math and Statistics. #LongCovid #POTS #MECFS #ActuallyAutistic
Justice is like air @JusticeIsAir
198 Followers 2K Following Justice is like air; without it we cannot survive; We’re suffocating from lack of Justice! #DisabilityJustice #pots #ptsd #depression #migraines #mecfs etc
MEinSEATTLE @emmydugas
974 Followers 2K Following
Molly Gordon @shaboom
13K Followers 11K Following Elder starlet. Tough canary. Ecstatic cranky. Queer. Grandma. #LongCovid #MECFS @MollyBoom in various places.
Mikael Hans Nordströ.. @NordstromMik
129 Followers 933 Following
Long Covid Patient Ac.. @LC_UK_Action
4K Followers 2K Following @[email protected] https://t.co/DlgXF9BQSe
Farce @ForceFrog77
140 Followers 1K Following #LongCovid First Wave, February 2020. “There is no hierarchy of empathy.” —Holocaust survivor Edith Eger
Qiyra Marie @QiyraMarie
220 Followers 534 Following She/her, Mom of two amazing humans, nature lover, physical therapist, dancer/dance teacher, yoga, coach, teacher, friend, #LongCovid, #FBLC, #TREATlongCOVID
TheLastMaskers @TheLastMaskers
786 Followers 3K Following Couple of actors & 𝙙𝙚𝙩𝙚𝙧𝙢𝙞𝙣𝙚𝙙 𝘾𝙤𝙑𝙤𝙞𝙙𝙚𝙧𝙨 masking w/#N95s. Tweeting why (& finding our tribe) here & https://t.co/lRCUvUgE0b #CovidIsNotOver
SunsetWarrior @Namasteprecious
2K Followers 2K Following 💛Sunsets, light through trees.The moon,stars⭐Sea.Bird song💫Yoga/Nidra. LongCovid #Warrior 💙NHS Nurse 20 years🤝Residental Project Worker💙IWish for PEACE🤝🙏
Anne Vroegindeweij @thisistheillme
2K Followers 1K Following PEMfluencer | Author of 'De achterblijvers' about #longcovid (book & e-reader & audiobook out now) | Tweets in 🇬🇧 & 🇳🇱 | 🏳️🌈
LivaLavida Long-Covid @LivaLavidaLCov
173 Followers 132 Following Ireland ☘️❤️ - Education 👨🏻🏫 Year 3 living the crazy long covid life.🤯🥴 🤷🏻♂️Research/Investigate/Treat 🤷🏻♂️
LONG COVID Puerto Ric.. @PRicoLongCovid
662 Followers 2K Following Concienciar sobre #CovidPersistente/Raising awareness about Long Covid everywhere. Hard core deniers are silenced/blocked. 🇵🇸
Julia @julia_with_me
3K Followers 2K Following Zwischen Aufklärung und Alltag über #MECFS, #PostVac, #CRPS, #POTS & co.
Unable to Feel Loved @Nobdyluvsu
70 Followers 220 Following Middle-aged man NYC w/ #POTS #UC severe #depression #anxiety. Probably be homeless soon. Life is just a constant daily terror.
Larisa - living with .. @LarisaHockey
619 Followers 494 Following 🇳🇿 writer, horsewoman, traveler, mental health coach in training, homeschooling mama, Christian... and now ME/CFS / Long Covid sufferer #fblc #fbME
Emma Chilvers @chilvers_emma
249 Followers 1K Following Mum of Long Covid warrior- opinions are my own.
International Long Co.. @LCawarenessInt
3K Followers 381 Following #LongCovid • #LongCovidAwareness -- #LongCovidAwarenessDay -March 15 -- #LongCovidAwarenessMonth -March -- Get profile pic frame @ link below⬇️
vicky power @power2609
434 Followers 5K Following
MissMona @PseudoMona_Lisa
39 Followers 267 Following D&CI med student in a pandemic 😷 | cool people wear N95s | #CovidIsAirborne
Just Jess @realjesslewis
5K Followers 2K Following CTO 🤖 | Cyberpsych🧠 | Data Sci 📊 | WomeninTech Mentor 🚀 | Regenerative Farmsteader🚜 | #MCAS #ADHD #LegalizeIt | In case of patriarchy, break glass
michelle Lynn myrda l.. @shell980907821
486 Followers 1K Following Retired RN of 28 yrs. grateful to be alive humble had severe Long Covid, ME/CFS, MCAS survivor and warrior! not a fan of POLITICS at all! loves nature way more!
Callisto/ LC WP @sueisstalking
1K Followers 744 Following aspiring autopsy study. former human overtaken by SARS. 4 year club. 'The sweary one' Cover your face & stop spreading BSL3 pathogens. 🏳️🌈
bri @briimii
2K Followers 3K Following former indie music lover and sunny weather seeker. #LongCovid #NotRecovered #CovidTinnitus
MumME @pamrosling
1K Followers 5K Following Mum & carer to severely Covid-vaccine-injured daughter desperate for treatment to get her life back :-( Also passionate about climate and biodiversity crisis.
janna moen, phd is st.. @jannamoen
3K Followers 1K Following postdoc @VirusesImmunity lab | neurobiology of #LongCOVID | patient-scientist | #pwLC #pwME #hEDS #CVID | ♿🏳️🌈 | she/her
Hazie Thompson @haziethompson
6K Followers 2K Following Long Covid/ME 2020, Mitigation Advocate, Founder @BIRcovidhealth
DynamicallyDisabled �.. @dynamicallydis
2K Followers 3K Following Disabled + exhausted public health professional. #AutisticAdult #Neurodiversity #LongCovid
Clustered Errors @ClusteredErrors
318 Followers 1K Following Working to get to the bottom of my “idiopathic” symptom cluster and help others in the process. #Myodesopsia #EyeFloaters #VisualSnow #FlammerSyndrome #Insomnia
R.J. Anderson,BA. #FB.. @rja77732
681 Followers 2K Following Psychology Major Graduate (c/o 2020), Focusing on Clinical/NeuroPsychology.32nd Deg. Freemason. Husband and Father of two boys. #LongCovid survivor Writer.
Key Workers Petition .. @KeyWorkerPetUK
671 Followers 630 Following We are a new advocacy and campaign group for Key Workers with Long Covid. You can email us at [email protected]
Covid Castaways @CovidCastaways
5K Followers 4K Following Covid Castaways focuses on helping those w/ #LongCOVID & COVID #VaccineInjury. LC - 3/2020. 💚💜“𝓢𝓾𝓻𝓿𝓲𝓿𝓮 𝓣𝓲𝓵 𝓨𝓸𝓾 𝓒𝓪𝓷 𝓣𝓱𝓻𝓲𝓿𝓮”
Long Covid Kids Rep.o.. @LCKIreland
2K Followers 2K Following LCK & Friends Ireland, Associate Acc @longcovidkids. Advocacy & support for kids with #PostViralKids #LongCovidKids #LCKfriends 🧡🧡
Long Covid Advocacy I.. @LCAIreland
2K Followers 3K Following The voice for Long Covid in Ireland. An advocacy group comprised of Long Covid patients fighting for awareness of LC & adequate services in Ire for all patients
Dr Alison Twycross RN @alitwy
6K Followers 4K Following Chair: @SupportingHH_UK. Hon Assoc Prof: @UniBham_Nursing. EiC:@EBNursingBMJ. FNF scholar. Views expressed are mine & do not necessarily reflect those of SHH-UK
Reflecting on a full week of feeling well. Concluded I feel well for me, not compared to a healthy person! But I’ll take it 😊 Hoping this post doesn’t jinx it because I’ve been cocky previously - right before something comes along to laugh in my face and feck it up 😬
@LongCovidAdvoc Even if you’re seen in neurology you’re not believed, likely given an FND diagnosis.
13. I would like to see those who defended the bad science of the PACE Trial stepping up and accepting they made mistakes – it’s the least they owe the patients. There also seems to be a strong case for retracting the original PACE Trial papers.
@I_amMukhtar Finally gets the role of Batman
First night out in 5+yrs and it featured the incredible @Diversity_Tweet at @BristolHipp Their skill, dedication and talent is unreal👌🏼 so glad I got to experience it with my lovely mum after all the difficulties we get through together🫶🏻 Now to face the PEM & recovery #MECFS
Hi scientists … believe it or not, the clue is in the headline 🙄
For the 1st time since Nov'20 & losing my health to #LongCovid I ran! I managed 18 mins& im very proud. I remind myself often to slow down so that I keep continuing to win this battle! Going from my legs unable to find the strength to climb out of bed to this feels surreal 🐌
It's time that everyone stopped gaslighting ME and Long Covid patients. These are real and devastating conditions, however politically convenient it might be to deny them (and to deny benefit payments to the patients!). Those who attack and mock pile suffering upon suffering.
Myalgic encephalomyelitis: Lives devastated - and sufferers told it's made up
Last night I woke up laughing because in my dream people were pestering son about what he wanted to be when he was all grown up. I advised him to say “a young man” the next time, and we both thought that was hilarious. Anyone else write (crappy) jokes in their sleep?
@thenitinsawhney @KateCushing2 1 Don’t get a chronic illness 2 Don’t get a chronic illness 3 Don’t get a chronic illness 4 Don’t get a chronic illness 5 Don’t get a chronic illness 6 Don’t get a chronic illness 7 Don’t get a chronic illness 8 Don’t get a chronic illness 9&10 Don’t get a chronic illness
People say 'why roll out #LongCovid specific tests like transcranial doppler or T-cell tests if there are no treatments for the pathology they reveal?'. My answer: the gaslighting, FND absurdity & relentless ignorance LC patients face all rest largely on such tests not being done
Managed to get out for lunch for my wife's birthday. We had fish and chips and ate in a little hut... The perfect environment! Massively reduced the impact of sensory overload compared to a busy restaurant and enabled me to stay out for longer. There was even a little heater!
Had a 10 minute jaunt on Moby this morning. It was deliciously chilly and the wind made my eyes run and nipped at my nose. I felt alive. #Out #JoyInWinter
longer be coming to visit me anymore... Because as of last night they accepted her visa and she will be coming over to get married and live with me (gotta switch visas first) 😅 It's been sooo long coming, I will admit I wasn't sure it would ever happen. Such a weight lifted.
#LongCovid #Research planning with @BinitaKane and @RebeccaOwen13_ on behalf of all of our partners and patients. Lots of exciting projects underway and in the pipeline to help us understand how we can be better informed for diagnosis and treatments 🙏🏼
@NikkiS_MCSFS @CounsellingSam @HelenMMGoss @NHSGrampian @SammieFMc @PeteUK7 @long_covid @zalaly @rubyslippahs @Fionasstalker @_CatintheHat @ChrisCuomo @joaquinlife I would have thought being a generalist is a huge plus for a multi system condition as you say. And also- drs assessing themselves as superior based on specialty is not right anyway. It’s always been a ‘thing’. I could have done any specialty. I chose this one.
My 8 year old son has Down syndrome and has extremely limited speech. Today he asked me for “kissies” for the first time. Best day of my life.
#ExposeMENow @ITV @BBCNews @Channel4 @channel5_tv The time is right for an expose on the way people with Myalgic Encephalomyelitis (ME) have been ignored, vilified and damaged by people who have ££s/gongs/egos in their sights rather than treatments and cures.
If you have #LongCovid and are simply trying to connect with friends 'the hide and block functions' are like a gift from the gods. As much as there is no cure for #LongCovid there is also no cure for stupid. And I'm done engaging with stupid its H AND B from now on Baby!!!!
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