Andrea Pauls Backman (she/her) @AndreaBackman05
ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures. Chicago, Illinois Joined December 2013-
Tweets5K
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Followers2K
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Likes19K
Do not miss the wisdom and clarity of @LyleOstrow speaking about #ALS at the @everything_als webinar next week.
Do not miss the wisdom and clarity of @LyleOstrow speaking about #ALS at the @everything_als webinar next week.
I can’t wait to read @SteveGleason’s new book. Over the years I’ve known Steve, “impossible” has not been in his vocabulary. He has made the impossible possible in his own graceful, humanistic way. Thank you, Steve and thanks to @nytimesbooks for covering his remarkable story.
I can’t wait to read @SteveGleason’s new book. Over the years I’ve known Steve, “impossible” has not been in his vocabulary. He has made the impossible possible in his own graceful, humanistic way. Thank you, Steve and thanks to @nytimesbooks for covering his remarkable story.
Kudos to @mda! I’m very excited by this initiative at the intersection of two causes I’m passionate about - the rights of the #neuromuscular community and #VotingRights. Learn more 👇
Kudos to @mda! I’m very excited by this initiative at the intersection of two causes I’m passionate about - the rights of the #neuromuscular community and #VotingRights. Learn more 👇
This has huge positive implications for residential nursing home patient care.
This has huge positive implications for residential nursing home patient care.
Just- announced, powerful, new drug development venture.
Just- announced, powerful, new drug development venture.
Fascinating discussion at @NorthwesternU alumni day with Dr. Neil Kelleher @NLKProteomics on the depth and breadth of The Proteome Project and its applications in oncology, neurodegeneration, cardiology, and immunology.
If you are impacted by inherited #ALS or #FTD, you won’t want to miss this meeting co-sponsored by @End_The_Legacy, @ALSHF and @LesTurnerALS. Info below.
If you are impacted by inherited #ALS or #FTD, you won’t want to miss this meeting co-sponsored by @End_The_Legacy, @ALSHF and @LesTurnerALS. Info below.
London-based gene therapy biotech @AviadoBio dosed its 1st patient in a first-in-human Phase 1/2 clinical trial of AVB-101 for Frontotemporal Dementia (FTD) w/ progranulin (GRN) gene mutations ASPIRE-FTD trial is enrolling patients at Europe & US sites. aviadobio.com/first-patient-…
Thoughtful commentary on how to better select cohorts in #ALS clinical trial design, including @everything_als’ new vocal biomarker. Listen Up: Emerging Vocal Biomarker Could Aid ALS Drug Development | BioSpace biospace.com/article/emergi…
Last night’s @LesTurnerALS’ Hope Through Caring Gala celebrated the advances in #ALS and honored the transformational accomplishments of @MeritCudkowicz. It was wonderful to see @KylanMorris1, Janie Gobeli, Tina Cascio and so many other friends. #EndALS
Generation of induced pluripotent stem cells (CSSi017-A)(12862) from an ALS patient carrying a repeat expansion in the C9orf72 gene sciencedirect.com/science/articl…
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Mandi @RunningMama0522
2K Followers 1K Following
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Nicole Cimbura @nicolecimbura
1K Followers 2K Following
joyerble @joyerble
531 Followers 211 Following proverbs 19:17 whoever is generous to the poor lend to the lord,and he will repay him for his deed❤️⚓️
Augustus Dodson @DodsonAugu42243
101 Followers 3K Following
handsomeburgundy @hndsomeburgundy
0 Followers 256 Following
Wolfie Wolf @WolfieWolf10
64 Followers 518 Following
alsHATER @HaterAlss
34 Followers 207 Following
Sheri Strahl @sheri_strahl
49 Followers 48 Following President & CEO | ALS Network Working tirelessly to realize positive change through excellence, collaboration, and leadership.
Betty’s Brigade Fou.. @No_More_ALS
346 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & funding
Terry R Suk @TerryRSuk
202 Followers 277 Following PhD candidate in the Rousseaux Lab @uottawa studying TDP-43 dysregulation in ALS | @westernu Alumni | 🧠🧬
Pedro Assed @pedroassed
1K Followers 3K Following Magnus est qui se vincit. MD, MSc-Endocrinology-Federal Univ. Rio de Janeiro/UFRJ 🇧🇷Tweets are my own. RT is not endorsement #MedEd
jenniferA86 @jenniferA86
798 Followers 398 Following ALS (Lou Gehrig's disease) Advocate. Boat owner. ALS TDI Board Member.
Emma_MacLennan @Emma_MacLennan
3K Followers 3K Following 💙 Director Eastern Alliance for Safe & Sustainable Transport - Opinions wholly my own. Lost our precious son Alex to MND. We need to #EndMND.
MND-SMART @mndsmart
1K Followers 980 Following Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.
Julie Suarez @epjjule
5 Followers 187 Following Wife,corgi mom,stepmother,aunt,baby sister,cousin and friend determined to help beat #ALS.Army brat! Texan (kinda).#ALSWarrior #EPSTRONG #GEAUXTIGERS
Cailin @CoTuCailin
172 Followers 2K Following Woman, Lawyer, FDA wonk, Engineer, Intellectual Explorer... Happy, Joyous, Free
𝙼𝚊𝚢𝚎 𝙼.. @Nowmaye
34 Followers 906 Following Bestselling International Author #AWomanMakesAPlan 📖Doctor of Dietetics 👩🎓 Supermodel 😉💃 #ItsGreatToBe75 Agents⬇️
Valerie T @Geminigemini356
4 Followers 98 Following
Wesley Ribeiro, PT @WesleyRibeiroBR
34 Followers 139 Following BSc PT | MSc Student at @ufrnbr | Post Graduate in Cardiorespiratory & Neurofunccional | Researcher in Neuromuscular Diseases with focus on ALS👨💻
ÆrØx @___aerox___
113 Followers 1K Following
Matt Disney @disney_lab
5K Followers 1K Following Walker of the earth RNA & Chemical Biology practitioner @J_A_C_S associate editor
Chris McNeil @mavrik2021
13 Followers 30 Following
Jan Millett @JanMillett2
449 Followers 2K Following
Jennie Starkey @StarkeyJennie
479 Followers 320 Following Mum of 4, educator, PhD student, diagnosed with MND Sept 2021. recently retired. Raising MND awareness through humour (sometimes dark) with my blog.
Ashling Giblin @AshlingGiblin
382 Followers 971 Following Postdoc researching genetic modifiers of C9orf72 ALS/FTD👩🏻🔬🧠 @adrianisaacslab @UKDRI
Daniel McIntyre @danielmcintyre
222 Followers 772 Following Healthcare public affairs guy, believer in baseball as a metaphor for life, or vice versa
Auburn Alan @SarcasmAndMore
4K Followers 5K Following AUBURN alumni. Army dad. Rarely reply to 🖍️Coloring Book U™️ fans. Made Bama fans cry more than 3rd grade math. You can be offended. I don't have to care.
Amy Lynn DelFratte @suzabella603
67 Followers 100 Following Experienced P2P fundraising professional with a demonstrated history of working in the non-profit organization management industry.
Brian Donovan @CheckBd
8 Followers 69 Following Diagnosed with ALS in 2024, but embracing hope. A proud husband, dad, and granddad, believe in future breakthroughs and cherish every family moment.
Sue Sutter @PinkSheetSutter
3K Followers 478 Following Senior Editor, Citeline's Pink Sheet, covering US FDA drug and biologic regulation and approvals. Views are my own. @PharmaPinkSheet
Zain Khalpey, MD, PhD.. @ZainKhalpey
3K Followers 4K Following Cardiothoracic Surgeon. Director Artificial Heart/ECMO Programs. Chief Medical AI Officer (Network Director). Follow @khalpeylab
s bo @samjbonny
0 Followers 197 Following
Debank @Debank007
87 Followers 431 Following
Ana Semeano @AnaTSemeano
6 Followers 59 Following Neuroscientist | CNS disease models | in vivo pharmacology | Neurodegenerative & Neuroinflammatory diseases | Brain cancer
Julie Breathnach-Banw.. @siobhannaspag
1K Followers 2K Following Sícfhile/Psych-Poet, Prose poet, Údar/Author of: Dánta Póca (2020), Ar thóir gach ní (2022) and Cnámha Scoilte (2023)
Readable Research @ReadableR
91 Followers 120 Following Clear, simple summaries of Neuroscience research hot off the press – read and reviewed by those who live beyond our labs at @sheffielduni & @SheffieldBRC
Ilayda Ulgenalp @ilaydaulg
320 Followers 682 Following Pronounced as: ill-eye-da | health policy, advocacy, #cdnpoli and @f1 nerd | Constantly learning and unlearning | #EndALS
Kathy @Kathy7483672148
105 Followers 434 Following Married to the love of my life who is dying from 100% Fatal ALS,mama, grandmama, full time caregiver. Counting everyday with my hubby as a blessing. #ALSsucks
Chris Barnette (Percy.. @cbbmlb7755
317 Followers 3K Following A Dad with 2 great sons & a Husband to my Hot Wife Amber. I’m a political junky, big Mountaineer Fan & a former football coach
#DucksforDementia @ducks4dementia
538 Followers 4K Following Ducks4Dementia was started in 2023 by a 5th grader to raise awareness about Dementia by donating toy ducks to Nursing Homes and $ for the Alzheimer's Foundation
WhisperWish_ @WhisperW11193
34 Followers 2K Following
Jaime Martin MD PhD @DrJaimeMartin
2K Followers 2K Following Director, Movement Disorders Neurology @Synapticure,Telemed, Research ❤️ #advocacy #teleneurology #telemedicine Tweets+views my own.
Beth Gabel @beth_gabel_27
74 Followers 53 Following #ALS warrior. Mom of 2 teenage boys. Diagnosed April 2023. ALS advocate and mentor. Love heavy metal music, painting and nature
iamthereseolsen @terricolsen
119 Followers 217 Following I will raise my voice until I can't. I was #Poisoned. Living with #ALS, #Ataxia #POTS #Dysautonomia #Fibromyalgia #ChemicalSensitivity. Connect the Dots.
martinez alberto @martine61286710
35 Followers 1K Following
NeurologyLive® @neurology_live
9K Followers 670 Following Delivering healthcare professionals treating neurological diseases quality and relevant information to help achieve the best patient care possible. #MindMoments
Martha Walsh @MarthaW77817
95 Followers 3K Following
steve Anderson @steveAn46633331
428 Followers 2K Following I love to discover new things, and see the surfaces of life,have the best of it all is so much joy and sweet to have a great mindset with a wonderful people.
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Sarah Nauser @SarahNauser
12K Followers 516 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Mandi @RunningMama0522
2K Followers 1K Following
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Mihir @terminal_coder
146 Followers 202 Following 36. Programmer, developer. Living with ALS (Amyotrophic Lateral Sclerosis). Grateful for each day.
Neil Kelleher @NLKProteomics
3K Followers 1K Following The official twitter acct for Dr. Neil Kelleher, the Faculty Director of Northwestern Proteomics & Director of the Chemistry of Life Processes Institute.
Zachary Tracer @ZTracer
12K Followers 7K Following Former investigations editor and healthcare editor at Business Insider, ex-Bloomberg reporter. Dad, husband to @marradcliffe. go duke! [email protected]
Foundation for FDA @reaganudall
1K Followers 494 Following The Reagan-Udall Foundation for the FDA is an independent non-profit created by Congress to advance regulatory science critical in supporting @US_FDA's mission.
Chien-Hsiung Alan Yu @AlanCHYu
331 Followers 199 Following Head of Neuroinflammation Laboratory | ALS-FTD | The Florey Institute of Neuroscience and Mental Health | NeuFlam Lab 🧠
Theresa Gaffney @_gaffknee
783 Followers 1K Following award-winning audio producer, no-awards-but-lots-of-heart health reporter @statnews ~ she/her ~ [email protected]
Terry R Suk @TerryRSuk
202 Followers 277 Following PhD candidate in the Rousseaux Lab @uottawa studying TDP-43 dysregulation in ALS | @westernu Alumni | 🧠🧬
UMichNeurosciences @UMneurosciences
2K Followers 747 Following The University of Michigan Clinical Neurosciences center is at the forefront of patient care, education and research in neurology and neurosurgery.
Medscape Neurology @MedscapeNeuro
45K Followers 370 Following Medscape Neurology provides you with breaking medical news; reference on drugs,diseases,and procedures; and free CME.
Damian Garde @damiangarde
17K Followers 2K Following @business reporter covering pharma / [email protected] / Signal/WhatsApp: 202-780-9154
Martina de Majo @MartinadeMajo
212 Followers 411 Following Alien with Extraordinary ability, Neuroscientist, love singing & eating. Opinions are mine.
Daniel Ack @meadowcopse
1K Followers 2K Following Meadow, Orchard, Woodland. Conservation, Landscape History, etc. Goth & Folk music. Crohn's Disease & ALS / MND... Also @WurthympWood
Jordi van Unnik @jordivanunnik
15 Followers 22 Following Enthusiastic about trial methodology and statistics for ALS
Every Cure @EveryCure
2K Followers 229 Following We leverage #ai to unlock the power of each and every drug to treat each and every potential disease they possibly can. Inspired by @DavidFajgenbaum
NeuroWoodworks @NeuroWoodworks
7K Followers 1K Following Developmental neurobiologist / artist. I sculpt biology in wood.
DNAstack @DNAstack
2K Followers 2K Following Our mission is to save and improve lives by unlocking the power of the world’s genomics and health data through a software suite called https://t.co/UN8y6pnogY.
Social Security Works @SSWorks
54K Followers 7K Following We're fighting to address the retirement income crisis by protecting and expanding our Social Security system.
Jason Mast @Jasonmmast
4K Followers 3K Following Writing about science, medicine & business for @statnews Email me: [email protected]
Matt Disney @disney_lab
5K Followers 1K Following Walker of the earth RNA & Chemical Biology practitioner @J_A_C_S associate editor
Nader Al Ayaseh @NaderAlAyaseh
280 Followers 221 Following ALS warrior For my wife and all ALS patients
Jan Millett @JanMillett2
449 Followers 2K Following
NATA - Nucleic Acid T.. @NATA_MRC_UK
353 Followers 169 Following Advancing the development of nucleic acid therapies and associated technologies through high-quality science, collaborations and interdiscplinary research
Dr. Jonathan N. Stea @jonathanstea
45K Followers 178 Following 🇨🇦 Clinical Psychologist. Adjunct Assistant Professor @UCalgary. Movement: @ScienceUpFirst. Bylines: @Sciam, @CBCNews, @Slate, @Globalnews, @PsychToday et al
Ashling Giblin @AshlingGiblin
382 Followers 971 Following Postdoc researching genetic modifiers of C9orf72 ALS/FTD👩🏻🔬🧠 @adrianisaacslab @UKDRI
alsnorthcarolina @alsncchapter
1K Followers 651 Following The ALS Association North Carolina Chapter is now ALS United North Carolina. Same mission, same services, and the same great staff, with a new name.
Daniel McIntyre @danielmcintyre
222 Followers 772 Following Healthcare public affairs guy, believer in baseball as a metaphor for life, or vice versa
Auburn Alan @SarcasmAndMore
4K Followers 5K Following AUBURN alumni. Army dad. Rarely reply to 🖍️Coloring Book U™️ fans. Made Bama fans cry more than 3rd grade math. You can be offended. I don't have to care.
Jeff Cranmer @jeff_cranmer
3K Followers 1K Following Executive Editor, @BioCentury. Jersey boy happily ensconced in Cali. Dad. Failed poet. Devoted Iggles fan. Cats. @Princeton, @SAISHopkins alum. Opinions? Mine.
Annalisa Merelli @missanabeem
17K Followers 4K Following Reporter @statnews. Once/always: @qz @globalvoices, @narratively, @motherlandmag, @theballoon, @tumbuktumag, @fabrica ❤️: https://t.co/cMPorf3tEB she/her
Julie Breathnach-Banw.. @siobhannaspag
1K Followers 2K Following Sícfhile/Psych-Poet, Prose poet, Údar/Author of: Dánta Póca (2020), Ar thóir gach ní (2022) and Cnámha Scoilte (2023)
Ilayda Ulgenalp @ilaydaulg
320 Followers 682 Following Pronounced as: ill-eye-da | health policy, advocacy, #cdnpoli and @f1 nerd | Constantly learning and unlearning | #EndALS
Alex Ward MND Angel �.. @alexwardfund
522 Followers 895 Following Celebrates Alex Ward & supports #United2EndMND @MNDAEastKent. Alex aged 31 Councillor & road safety advocate lost to MND 22/7/20. https://t.co/nYlk7THMZm
Warren Schiffer @Wingsoverwallst
2K Followers 2K Following Join us 2 cure ALS (Lou Gehrig's Disease)! Cofounder of MDA's Wings Over Wall Street®, widower because of ALS (love & miss you Toni), recruiter of ALS Warriors.
Cure VCP Disease @CureVCPDisease
253 Followers 81 Following Rare-disease patient advocacy organization dedicated to driving the development of a cure for diseases caused by valosin-containing protein (VCP).
ARPA-H @ARPA_H
6K Followers 245 Following Official Twitter account of the Advanced Research Projects Agency for Health (ARPA-H). Privacy Policy: https://t.co/Z855rcfwXT Engagement ≠ endorsement
PharmAust @PharmAust
2K Followers 5K Following PharmAust is a clinical-stage biotech company focused on repurposing monepantel (MPL) for human neurodegenerative diseases ASX: $PAA FSE: $ECQ
Stella Sarraf @StellaSarraf
26 Followers 12 Following
Spinogenix @Spinogenix_Inc
204 Followers 457 Following Spinogenix is developing a new class of therapeutics to restore memory and motor functions lost in neurodegenerative and psychiatric diseases.
ᴊᴀɴɪᴇ🫧 @plainJaniexx
2K Followers 2K Following you can’t have everything, where would you put it? #GoTiges #FightMND #FuckALS #Fight4Jon 💛🖤
Beth Gabel @beth_gabel_27
74 Followers 53 Following #ALS warrior. Mom of 2 teenage boys. Diagnosed April 2023. ALS advocate and mentor. Love heavy metal music, painting and nature
Willy @WillyGrant
4K Followers 5K Following Digital Maven. Married to @GlennGGrant who is battling #ALS. Corgi mom, BBQ, art & books. Punk. KCBS Judge. Born in #YVR. Lives in #YEG #GoodTwitter
Michael Eisen @mbeisen
77K Followers 15K Following I science & try to make science open. Tweets do not represent my employer's views, but are always correct. My conflicts of interest https://t.co/bZ7I9oSJe0.
MRC PPU @mrcppu
3K Followers 1K Following The MRC Protein Phosphorylation & Ubiquitylation Unit is a world leader in finding the causes of neurodegeneration, cancer, hypertension & immune disorders
Nature Reviews Drug D.. @NatRevDrugDisc
38K Followers 479 Following Editorial team of Nature Reviews Drug Discovery.
Sandra Herron @SandraHerron
119 Followers 170 Following Learner. Culture buff. Enthusiast. Occasional gadfly.
Sano Genetics @sanogenetics
2K Followers 262 Following Sano combines genetic testing, recruitment, and long-term engagement in one platform, accelerating enrollment and simplifying operations for precision medicine
Emerging role for sphingolipids in the genetics of #ALS | Neurodevelopmental & genetics combine into a multistep process to critically underlie the variability in phenotypes. Unravelling preclinical phases represents the next complex undertaking @magxcite jnnp.bmj.com/content/95/2/1…
Authors of this study show that recurrent de novo SPTLC2 variant causes childhood-onset amyotrophic lateral sclerosis (ALS) by excess sphingolipid synthesis jnnp.bmj.com/content/early/… @MuseerSphinx
May 1, 2024 (4PM PT | 7PM ET) Register: everythingals.org/events #EndALS #EverythingALS #ALS
Such a pleasure to have known @BarriFalk and to have her legacy in our movement continue with the activism of her husband the brilliant and insightful Ronenn.
Many cheers to Ronenn Roubenoff for representing ETL, our movement for the millions globally at risk for inherited ALS and FTD, and his late wife @BarriFalk at the #WorldOrphanUSA conference!
We salute Greg Browning, nationally recognized free surfer, filmmaker, and person living with ALS. Greg will be inducted into the @HermosaBchCity Surfers Walk of Fame on Sat 4/27. Greg’s personal journey with ALS & fundraising to find cures for the disease inspire us all.
Thanks, @nytimesbooks • The New York Times released an illuminating interview with Steve Gleason for their “By the Book” series! 🦋”To relive the most lacerating and vulnerable times of my life, then to share those experiences in a raw, truthful human way, rather than a heroic…
@AndreaBackman05 What we want is for Medicare to cover caregiving. My home health agency will only give me 4.5 hours per week. They say that Medicare reimbursement is poor and my catheter supplies are expensive
Authors of this study show that recurrent de novo SPTLC2 variant causes childhood-onset amyotrophic lateral sclerosis (ALS) by excess sphingolipid synthesis jnnp.bmj.com/content/early/… @MuseerSphinx
Spent the afternoon in lovely DC advocating for @NIH @NIHFunding on the Hill with @GeneticsSociety. Great experience, esp shared w/ past (Brendan Lee), current (Bruce Gelb) and future (@SarahTishkoff) ASHG presidents!
Just wanted to say, thank you all for making me feel so loved and appreciated. 🫶🏼 Nothing can take my smile away! #ALS #FightLikeAGirl
@MDA_Advocacy Your #vote is your voice, and it’s time to make it heard! Ready to join us? Head to MDA.org/Vote.
Join #MDA as we launch our #AccessTheVote campaign, designed to help educate and empower the #neuromuscular disease community and the broader #disability community to participate in the electoral process this November. Learn more: mda.org/press-releases… @MDA_Advocacy
What an incredible Neurology Grand Rounds by our very own Ben Murdock. He’s sharing about is important work: “ALS & Immunology: Sex, Drugs and Demographics.” @UMMicroImmuno
Proud to be working with a terrific team at the Wheelchair Alliance @rightwheelchair @Tanni_GT Bedford man takes the helm at The Wheelchair Alliance bedfordtoday.co.uk/business/bedfo…
.@BarriosIzamar, @rachael_king, and Carl traveled to D.C. in support of care and caregivers. We made a short video about the trip and the movement for care. Please watch and share. <3 #TheCareEconomy
Patient advocacy and drug development…
This ALS Awareness Month, join us for the Fight ALS Film Fest hosted by ALS TDI and @HerALSStory. Our emcee for the events will be @sunnystrongals and thank you to our event sponsor @MTPA_US!! Register to join us here: als.net/alsfilmfest
$1B+ in committed capital makes Xaira one of the biggest raises in biotech history endpts.com/in-biggest-eve…
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