Les Turner ALS Foundation @LesTurnerALS
The leader in comprehensive #ALS care in Chicagoland lesturnerals.org Skokie, IL Joined April 2009-
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Many people living with #ALS find that their sleep is disrupted. But that disruption of their body’s 24-hour circadian rhythms might not just be a symptom of the disease. Read the full article. buff.ly/3Uu49yF
We're thrilled to share the special moments from the night, featuring honorees like Dr. Merit Cudkowicz, and Dr. Anne Lidsky. We also paid tribute to Steve McMichael for his extraordinary achievements and recent induction into the NFL Hall of Fame. buff.ly/49PbHAr
Join us for the End the Legacy Summit for those impacted by genetic ALS & FTD. This summit will foster vital connections among participants and enhance understanding through the NEALS Clinical Research Learning Institute and various skill-building panels. buff.ly/4d02g3Y
Today, on National Volunteer Recognition Day, we extend our deepest gratitude to everyone who volunteers with us at one of our many events. If you are interested in volunteering click the link to learn more! 💙 #VolunteerAppreciation buff.ly/3w4kkJy
Thank you for making our Hope Through Caring Gala a huge success! We raised nearly $700,000 toward care and support for people living with ALS, their caregivers and families, as well as research into the causes, treatment and cures for the disease. buff.ly/3xQGGib
Embrace the power of movement this #NationalExerciseDay! Want to learn more about the best types of exercises for those living with #ALS? Tune in to our webinar for expert insights and tips on maximizing mobility and well-being. buff.ly/4cYs8xc
Just 1 month until the Lew Blond Run! And less than 2 weeks until signup prices increase on May 1. 👟 So register at lewblondrun.org to walk, #run, volunteer or sponsor for a day of family fun May 18 @ Maple School in #northbrookil & help support @LesTurnerALS. #d30learns
This will be an amazing experience for anyone impacted by genetic or inherited ALS or FTD who wants to be more empowered. What a lineup of speakers and presenters! Learn more and register here: endthelegacy.org/communitysummit
Calling all runners! We're racing for a cure across three great events! Whether you're new to running or ready to set a new personal record, there's a place for you on our team. Click the link to sign up for a race today. buff.ly/3VXLk8m
Did you miss our webinar yesterday on Navigating Advanced Directives? Don't worry, it's not too late to take charge of your healthcare future! Watch the recording now and learn about the importance of advanced directives. buff.ly/4d08il9 #NHDD #AdvancedDirectives
In case you missed it, we still have a few auction items left! Now is your chance to score Blackhawks tickets or an amazing trip to Antigua. Click the link to buy now before everything is gone. buff.ly/3xBJ1xH
Recent studies from the laboratory of Evangelos Kiskinis, PhD, associate professor in the Ken and Ruth Davee Department of Neurology’s Division of Neuromuscular Disease and of Neuroscience, have discovered cellular mechanisms that are found in genetic ALS.buff.ly/3VPCCJc
Tune into our webinar tomorrow to have all of your questions answered by experts. They will go over the basics of advanced directives and help you learn how to navigate this process. Be sure to stick around for a Q & A after the presentation. buff.ly/49v3XDH
@LesTurnerALS @NorthwesternMed muscles in people with #ALS. Learn more about this study, which is being led by David Gate (@DGateLab), PhD, here: lesturnerals.org/understanding-…
Recent research conducted by the @LesTurnerALS Center at @NorthwesternMed explores a new hypothesis, suggesting that the #ImmuneSystem plays a role in the disintegration of the connection between the #brain and
Our own @MeritCudkowicz will be honored at @LesTurnerALS Hope Through Caring Gala tomorrow as the awardee of the 2024 Harvey and Bonny Gaffen Advancements in ALS Award for her contributions to #ALS research and treatment. lesturnerals.org/march-2024-fou…
It takes 10 to 16 months to diagnose amyotrophic lateral sclerosis , resulting in precious time lost in slowing down the disease progression. 🌐 Developed in partnership with @LesTurnerALS ➡️ ms.spr.ly/6010cfiyO
We’re excited to share that our “ALS + Mobility” and “ALS + Home Modifications” guides are now available in Spanish! These comprehensive resources, now accessible to a wider audience, offer invaluable insights and practical tips for those navigating ALS. buff.ly/3Q0aQG3
A heartfelt thank you to our incredible sponsors of the Hope Through Caring Gala! Together, we're making a difference in our community. @NorthwesternMed @AmericanAir @MTPA_US @AmylyxPharma @abbvie
National Siblings Day isn't just about celebrating the bonds we share, but also the strength and love that unites us in times of need. This year highlighted 2 sets of siblings who have come together to help care for their parents who are living with ALS. buff.ly/3UbGRh5
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PA Rare Disease Advis.. @PARareDisease
786 Followers 638 Following To improve the quality of life for all those affected by rare diseases in Pennsylvania.It’s a pleasure to plan and execute with the wonderful team @LesTurnerALS ! Every movement must start somewhere, and this is a formative point in our origin story that will end with the protection of our community and the eradication of the diseases that haunt our families!
Join us for the End the Legacy Summit for those impacted by genetic ALS & FTD. This summit will foster vital connections among participants and enhance understanding through the NEALS Clinical Research Learning Institute and various skill-building panels. buff.ly/4d02g3Y
Join us for another great #weeklywebinar on this Thursday 4/25 with Drs. @MeritCudkowicz and @PaganoniMDPhD @ALSTDI @alsassociation @iamalsorg @NEALSConsortium @LesTurnerALS @MDAorg @everything_als @alsone_official Register: partners.zoom.us/webinar/regist…
Just 1 month until the Lew Blond Run! And less than 2 weeks until signup prices increase on May 1. 👟 So register at lewblondrun.org to walk, #run, volunteer or sponsor for a day of family fun May 18 @ Maple School in #northbrookil & help support @LesTurnerALS. #d30learns
Absolutely thrilled for the invitation to join @End_The_Legacy and @LesTurnerALS to discuss genetic and inherited #ALS and how to talk to youth about it. The lineup is amazing- will be a powerful summit!
This will be an amazing experience for anyone impacted by genetic or inherited ALS or FTD who wants to be more empowered. What a lineup of speakers and presenters! Learn more and register here: endthelegacy.org/communitysummit
Thank you so much to all our speakers and two organizations helping @End_The_Legacy and our movement so much - @LesTurnerALS and @ALSHF !
This will be an amazing experience for anyone impacted by genetic or inherited ALS or FTD who wants to be more empowered. What a lineup of speakers and presenters! Learn more and register here: endthelegacy.org/communitysummit
This will be an amazing experience for anyone impacted by genetic or inherited ALS or FTD who wants to be more empowered. What a lineup of speakers and presenters! Learn more and register here: endthelegacy.org/communitysummit
What a remarkable evening at the @LesTurnerALS Hope Through Caring Gala honoring two ALS forces: @MeritCudkowicz & Dr. Anne Lidsky These incredible women have poured their unique expertise, passion & heart into the #ALS community for decades 🌻 #EndALS #NeverGivingUp
Thank you to @LesTurnerALS and presenters John M. Coleman, III, MD and Guilia LaBellarte, APN, for this very useful information.
Congratulations to @MGHNeurology's @MeritCudkowicz on your richly deserved Harvey and Bonny Gaffen Advancements in ALS Award! Thank you Merit, MassGen and @LesTurnerALS for all you do for the #ALS community!
Glad I had the chance to attend @LesTurnerALS gala last night where I met many amazing advocates in the ALS community.
Congratulations to @MGHNeurology's @MeritCudkowicz on your richly deserved Harvey and Bonny Gaffen Advancements in ALS Award! Thank you Merit, MassGen and @LesTurnerALS for all you do for the #ALS community!
Last night’s @LesTurnerALS’ Hope Through Caring Gala celebrated the advances in #ALS and honored the transformational accomplishments of @MeritCudkowicz. It was wonderful to see @KylanMorris1, Janie Gobeli, Tina Cascio and so many other friends. #EndALS
@LesTurnerALS @NorthwesternMed muscles in people with #ALS. Learn more about this study, which is being led by David Gate (@DGateLab), PhD, here: lesturnerals.org/understanding-…
Recent research conducted by the @LesTurnerALS Center at @NorthwesternMed explores a new hypothesis, suggesting that the #ImmuneSystem plays a role in the disintegration of the connection between the #brain and
Our own @MeritCudkowicz will be honored at @LesTurnerALS Hope Through Caring Gala tomorrow as the awardee of the 2024 Harvey and Bonny Gaffen Advancements in ALS Award for her contributions to #ALS research and treatment. lesturnerals.org/march-2024-fou…
It takes 10 to 16 months to diagnose amyotrophic lateral sclerosis , resulting in precious time lost in slowing down the disease progression. 🌐 Developed in partnership with @LesTurnerALS ➡️ ms.spr.ly/6010cfiyO
Save the date April 16!! Lou Malnati's in #northbrook, 1326 Shermer Rd, donate 20% of your order from 11 am- 10 pm to benefit the Lew Blond Run & @LesTurnerALS! Use code GPFUND24 on all takeout & delivery (No 3rd-party apps). loumalnatis.com/northbrook #d30learns #ALS
Congratulations Dr Lidsky and @MeritCudkowicz @MGHNeurology
Join us at the Hope Through Caring Gala as we honor Dr. Merit Cudkowicz, MD, the Julieanne Dorn Professor of Neurology at Harvard Medical School and Chair of the Neurology Service at Mass General Hospital, and Anne Lidsky, PhD, support group facilitator. buff.ly/3VyutZg
The Wolves are proud to support @christerry25 as he helps those with ALS and their families through Chris’ ALS All-Stars. The program invites families to attend a Wolves game this season. To nominate a family battling ALS, click here: bit.ly/3MDroC7 @LesTurnerALS
Join us on 3/21 at 5:00pm EST for our #weeklywebinar! This week, we will be joined by Karen Parada from the University of Colorado Anschutz. @ALSTDI @alsassociation @iamalsorg @LesTurnerALS @MDAorg @LesTurnerALS @NEALSConsortium @everything_als @alsone_official
We’re learning every session in my 1st @IMSA Michelin Pilot Challenge weekend & just the 2nd for @CzabokSimpson. @gordon_scully will qualify and start. Listen on @IMSARadio & watch Friday afternoon on @peacock from @sebringraceway
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