ALS News today @alsnewstoday
We are dedicated to sharing the latest news, research, and Amyotrophic lateral sclerosis (ALS) patient perspectives. alsnewstoday.com Joined February 2015-
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Here is this week's most read article featured on our #ALSNewsToday website! Are you caught up? bit.ly/49Ml0Bb #ALS #AmyotrophicLateralSclerosis #ALSDisease #ALSTreatment #ALSResearch
Since 1954, firefighters have hit the streets with boots in hand to raise funds for the Muscular Dystrophy Association. This year’s goal is $2 million. bit.ly/3xI1GYJ #ALS #AmyotrophicLateralSclerosis #ALSDisease #ALSTreatment #ALSResearch
Did you that, in two-thirds of ALS patients, the disease first shows symptoms in hand, feet, calf, or forearm muscles? Explore other early signs: bit.ly/3xOvZNr #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Everyone deserves self-care, but especially those dedicating themselves to caring for others with chronic diseases. How do you prioritize yourself? #ALSNewsToday #AmyotrophicLateralSclerosis #LivingWithALS
Storing chemicals like paint and bleach in a garage attached to a house raises odds of developing ALS by up to 16% for every five years of additional exposure. bit.ly/49J4Vw8 #ALSDisease #ALSTreatment #ALSResearch #ALSAwareness
According to the latest trial results, the therapy had “a consistently positive effect in all clinical outcomes.” Learn more: bit.ly/3xYLNwM #ALS #AmyotrophicLateralSclerosis #ALSDisease #ALSTreatment #ALSResearch
Head over to our forums to share the biggest change you’re currently facing — after all, others may be experiencing a similar challenge. bit.ly/4b51gtL #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Our new resource explores all things cannabis and ALS, including treatment options and potential benefits. Check it out here: bit.ly/3U2y0Nj #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
The three-year grant comes from the National Institute of Neurological Disorders and Stroke and directly supports Silence ALS. bit.ly/3TXpMpG #ALS #AmyotrophicLateralSclerosis #ALSDisease #ALSTreatment #ALSResearch
Dagmar Munn has learned the importance of adaptability in life with ALS, but she knows how to resist change when it doesn't feel quite right. bit.ly/4aYTkdf #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Data from the PHOENIX trial were intended to confirm results from the CENTAUR trial. Now, one scientist explains why they didn’t. bit.ly/3w5JY0w #ALS #AmyotrophicLateralSclerosis #ALSDisease #ALSTreatment #ALSResearch
Researchers have identified new elements of the ALS exposome — this time, it concerns chemicals stored in garages. Learn more: bit.ly/4b0AbHV #ALS #AmyotrophicLateralSclerosis #ALSDisease #ALSTreatment #ALSResearch
Catch up on the #ALSNewsToday Column of the Week here: bit.ly/4cYozHo #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Here's a recap of the news and columns we featured this week. Head to our website to read them all: bit.ly/48achbj #ALSDisease #ALSTreatment #ALSResearch #ALSCommunity #ALSSupport
Did you know that ALS muscle twitches are often associated with a person’s dominant hand? Learn more about muscle twitching here: bit.ly/3U4vUg1 #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
The grant directly supports an initiative aimed at developing customized treatments for ALS patients whose disease derives from ultra-rare mutations. bit.ly/44j4Azn #ALS #AmyotrophicLateralSclerosis #ALSDisease #ALSTreatment #ALSResearch
Here is this week's most read article featured on our #ALSNewsToday website! Are you caught up? bit.ly/49IoTHc #ALS #AmyotrophicLateralSclerosis #ALSDisease #ALSTreatment #ALSResearch
Several formal scales exist to determine stages, but according to the Muscular Dystrophy Association, the disease can be more generally divided into four stages. bit.ly/49AaMnz #ALS #AmyotrophicLateralSclerosis #ALSCommunity #LivingWithALS #ALSAwareness
Do you have any upcoming summer plans you're excited about? #ALSNewsToday #AmyotrophicLateralSclerosis #LivingWithALS
Especially for men, participating in certain recreational activities like golfing, woodworking, and hunting can increase ALS risk. Explore the findings: bit.ly/4aTyJHt #ALS #AmyotrophicLateralSclerosis #ALSDisease #ALSTreatment #ALSResearch
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Hande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
BrainStorm @BrainstormCell
5K Followers 777 Following BrainStorm Cell Therapeutics, Inc. (NASDAQ: BCLI) is a clinical-stage biotechnology company developing autologous cell therapies for neurodegenerative diseases.
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Mandi @RunningMama0522
2K Followers 1K Following
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
End ALS Now @EndALSNow
962 Followers 930 Following ▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹
Fadila Guettar @FadilaGuet56996
0 Followers 2 Following
رجل @abdhali25
54 Followers 928 Following
Ivo Couto @lopespacheco
0 Followers 5 Following
Neil @Neil113849
17 Followers 110 Following
J T @jodie20144
2 Followers 77 Following
Daniel Warwick @KDanielWarwick
146 Followers 569 Following Just a dude in the NWO. Eternal enemy of tyrants wherever they live.
pRex @SeriousVein
183 Followers 69 Following
Irati Mitxelena @MitxelenaIrati
536 Followers 569 Following PhD student at CICbioGUNE and long jumper for Atletico San Sebastian Donostia,
Robbie R @Retzy87
458 Followers 3K Following Environmentalist, former grain shoveler, honey wagon driver, current grass cop and dad.
&Oじろう @qtarouaojirou
22 Followers 88 Following
Kathy Wozniak @kjaw89
5 Followers 121 Following
Depresif Espresso @cervezaytequila
28 Followers 458 Following Kötü yorum yapanları mola paspasına gönderiyorum
バイタル香港 @vitalhongkong
539 Followers 1K Following 読書、音楽、旅行にも関心があります。 あまちゃんにはまってます。→「あまロス」中→「あまナツ」（あまちゃん懐かし症候群）中です。のんさんを応援しています。
Laura Lee @Lauralee2003Lee
3 Followers 15 Following
Dr.Abdullah Almashan @Mash3ani
1K Followers 574 Following د. عبدالله المشعان Prosthodontist (Tufts University) D.M.D (Pitt University) @DerwazaDental عيادة دروازة (أسنان) @mangomania.kw مانجو مانيا -الكويت
Danijela @Danijela1262261
3 Followers 15 Following
Tanner Hockensmith @Tannerhock
213 Followers 241 Following
Courtney Cameron @Courtne97992242
3 Followers 11 Following
Kayla Wilder @Kayla_Wilder87
4 Followers 28 Following
Andy Greenspon @andyman344
333 Followers 2K Following Researcher in quantum physics. Interests in science, policy, philosophy, and anything that can amuse to no end.
brent beson @BrentBeson
0 Followers 4 Following
Jan @Phil45814Janice
4 Followers 92 Following
sebastien @sebastien0105
25 Followers 427 Following #2020 « Au milieu de l hiver, j apprenais enfin qu’il y avait en moi un invincible été », Albert camus. #FuckALS
PBosh @PBoshyk
47 Followers 100 Following
Alaa700 @Alaa7005
11 Followers 269 Following
Th Th @ThTh1780782
0 Followers 1 Following
Heike Maria Glöckner @MariaGlock32296
16 Followers 97 Following Fachkrankenschwester für den Operationsdienst OP/ Hygienemanagement Hygienebeauftragte Klinik/Praxis/Pflege Freiberuflerin
ThePinkWolf @ThePinkWolf_
25 Followers 89 Following The Pink Wolf of Wall Street 💕🐺#ES #Stocks #Swings Mostly invest in companies making a positive global impact.
Tihomir Ilic @tihoilic
23 Followers 405 Following D'où venons-nous ? Que sommes-nous ? Où allons-nous ? I never stand still. I want learning every day.
Fazlı @fazlibesli
12 Followers 228 Following
Suvankar Pal @suvankarpal
2K Followers 1K Following Professor of Neurodegenerative Disorders & Clinical Trials @mndsmart @AnneRowlClinic @EdinUniBrainSci #forthvalleyneurology @nhsforthvalley
Valerie T @Geminigemini356
5 Followers 98 Following
Laura Andreasen @Laumarie5
40 Followers 432 Following
Tami Anderson @TamiAndersonRD
129 Followers 255 Following ALS Advocate. Food enthusiast, dog & cat lover. Christ follower. Colorado native & life-long Denver Broncos fan.
valdemic @1curiousV
235 Followers 1K Following Angel Mom, Proud to be American, I ❤️ the USA Military, I am here to learn, #EndOverdose, #MAGA, #BacktheBlue
Cristian Correa-Arrie.. @Criscorrea_NMD
70 Followers 277 Following Neurologist #Neuromuscular_Diseases_Center - Instituto Roosevelt #ALS - #Myopathies - #Neuropathies - #Neuromuscular_Junction_Diseases - #Cerebellar_diseases
Ben Manthorpe @benmanthorpe
196 Followers 2K Following
Birgit Steng @BirgitSteng
0 Followers 6 Following
Performance Home Medi.. @PerformanceHom1
31 Followers 66 Following We specialize in Sleep Therapy, Home Oxygen Equipment, Respiratory Ventilator Services, and Continuous Glucose Monitoring (CGM).
Stefanie @stefsol
2 Followers 36 Following
Sarah Lépine @SarahLepine_
107 Followers 150 Following @McGill_MDPhD student. Studying TDP-43 #ALS with #iPSCs. Aspiring physician-neurobiologist. @CAWCIT co-President. (FR/EN)
Caroline Purslow @Caroline_Purs
4 Followers 79 Following Global Health & Innovation @Challenge_Works & @Nesta_UK, Former @UKHSA. Designing a global challenge prize for #MND #ALS.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
World Orphan Drug Con.. @OrphanConf
5K Followers 842 Following Get regular updates on the World Orphan Drug Congress! April 23-25, 2024 | Boston Convention & Exhibition Center #WorldOrphanUSA
AcuraStem @acurastem
147 Followers 68 Following AcuraStem is a patient-based therapeutics company advancing treatments for ALS, FTD and additional neurodegenerative indications.
Verge Genomics @VergeGenomics
2K Followers 166 Following Next-generation medicines from human genomics
Bruce Ramshaw MD @bruceramshawmd
1K Followers 5K Following CMIO, Caresyntax, Member, International Advisory Council, APCO Worldwide. Adjunct Professor, University of Tennessee- Knoxville. TEDx speaker.
Adam Murphy @adammurph
369 Followers 3K Following Believer, husband, dad, optimist. Accumulating lime topo chico. Discretion is the better part of valor.
Jon Cooper @joncoopertweets
1.3M Followers 85K Following Ex: National Finance Chair of Draft Biden; LI Campaign Chair for Barack Obama; Majority Leader of Suffolk County Legislature. Gay dad of five kids. Duke alum.
David Lichtenstein @LichtensteinNWF
750 Followers 2K Following Born in Georgetown and raised in Bethesda, MD. I have ALS, but ALS does not have me! No White Flags 💪
LANCER @mnsjguy
33 Followers 359 Following
Brenda B Simmons @BrendaBSimmons1
95 Followers 247 Following
Natalie Wiegand @nataliewiegand1
25 Followers 178 Following learner creator collaborator and friend :)
JP Pouliot @pouliotmn
90 Followers 671 Following
Leanne Jiang @leanne_jiang
244 Followers 398 Following Research officer (@AIBNatUQ) & PhD student (@uwanews) researching #ALS #mitochondria 🧠🔬🧬 Loves bubble tea unconditionally.
Patrick Kent @patrickkent617
38 Followers 658 Following Executive Director for Department of Psychiatry @ an Academic Medical Center in Boston, MA
Jennifer Mulvihill @jen_mulvihill
11 Followers 115 Following
Marlo Van Marck 🌎�.. @MarloVanMarck
1K Followers 4K Following Born 323ppm, gardener, lapsed beekeeper, #doomer & Geographer. We’re all downstream.
Jeff Strunk @Jeff_Strunk
269 Followers 748 Following
Luis francisco rodri @LwyzEzkovar
6 Followers 41 Following
Bill Parkhurst, MD @parkhurst42
532 Followers 737 Following #IRad, husband, father, free market thinker, former fellow/current attending @UAB_IR, Yalie, former hoop gym rat.
aprongoddess @kelmeier4
217 Followers 1K Following She/her! Birther of ladder kickers and heroes! Newly awakened woman struggling with the old and new. Desperately trying to get unstuck💜
Norbert Weiss @TheWeissLab
4K Followers 4K Following Neuroscientist @UniKarlova @CharlesUniPRG @3LFUK studying #calcium #ionchannels & #channelopathies | Associate Editor @tandfchannels | Free time @NWeissphotos
Brittany Mroczek 💜 @cherise77
1K Followers 961 Following My Dad was diagnosed with #ALS in July 2018. Please join me in the fight to bring awareness to this disease and #EndALS @ALSAction
SuperCare Health @SuperCareHealth
163 Followers 128 Following SuperCare Health is a comprehensive post-acute health care organization that provides innovative, industy-leading chronic respiratory care services.
Walk to Defeat ALS @WalktoDefeatALS
4K Followers 1K Following The ALS Association Greater New York Chapter | Fighting Lou Gehrig's disease
The ALS Association @alsassociation
33K Followers 890 Following The ALS Association / Fighting ALS on every front through research, care services, and advocacy. Community guidelines: https://t.co/Af1fOXYrBe
Alisa Brownlee ATP, C.. @ALSAssistiveTec
3K Followers 4K Following RESNA Certified #AssistiveTech guru-ALS United, Mid-Atlantic. Founder, alsAThome, virtual home assessments. Opinions my own.Proud @trisigma & @ESUniversity alum
SA2020 @SA2020
26K Followers 2K Following SA2020 drives progress toward a shared Community Vision for San Antonio through research, storytelling, and practice.
Allan Alderson @adsaalderson
42 Followers 94 Following I'm interested in weird stuff like gravity and merging toroidal flow inside poloidal flow. Great is God.
Edible Alternatives @PureedFoods
264 Followers 874 Following We offer pureed meals for individuals who are unable to eat solid foods. http://t.co/jMdYGISOrD
ALS Assoc. Indiana @ALSAIndiana
1K Followers 133 Following To discover treatments and a cure for ALS, and to serve, advocate for, and empower people affected by ALS to live their lives to the fullest.
Support Pete & ALS @pitch4pete
76 Followers 114 Following Advocacy site to help Pete, his family & thousands of others impacted by Amyotrophic Lateral Sclerosis #ALS, Lou Gehrig’s or Motor Neuron Disease #MND #BeachTO
Mike Moffatt @moff32
61 Followers 173 Following
Trece Porrata @trece_porrata
117 Followers 806 Following Mother of three, ALS Warrior living every day feeling blessed to be alive
ALS United Ohio @ALSunitedOhio
1K Followers 311 Following 1170 Old Henderson Road, Suite 221 Columbus, OH 43220 Toll Free: 866-273-2572 Email: [email protected]
Ancira Community @AnciraAutos
308 Followers 828 Following Ancira Auto Group is proud to be 17 dealer franchises strong. We are proud to serve the greater San Antonio, TX area.
ALS United Mid-Atlant.. @ALSMidAtlantic
3K Followers 681 Following Caring for ALS families in eastern Pennsylvania, southern New Jersey, and all of Delaware. Donate at https://t.co/GSSyNM8I0X
Erin Mading @erin_mading
1K Followers 4K Following Bringing awareness of CMMRD, a genetic cancer Syndrome mimicking NF1. HOPE with immunotherapy. In honor of our children, Cody, Averi & Isabella Mading. #BMMRD
Hootsuite 🦉 @hootsuite
7.2M Followers 1.4M Following Social media tools, tips, news, and a shoulder to cry on for social pros since 2008. Support: @Hootsuite_Help
Buffer @buffer
966K Followers 57K Following Your small business' biggest fan 💙 Brand building products for small businesses and ambitious individuals. We're a fully remote team and work 4 days a week. ✨
In my recent episode, Tim Abeska & Juliet Taylor talk about their spouses they each lost to ALS. Juliet talks about the inspiration for her @alsnewstoday column,Thunder Road: alsnewstoday.com Check it out, very insightful! Our chat: bit.ly/ListenOnAppleP… @iamalsorg
We’re thrilled to share the initiation of our proof-of-concept study for VRG50635 for the treatment of #ALS. By leveraging our AI-enabled CONVERGE® platform & patient data, we're enabled to more efficiently develop drugs for deadly diseases like ALS: bit.ly/3HbVNEp
❤️❤️❤️
Shout Out @kelsieswrites is a freelance writer, podcaster and storyteller. She blogs about her family's life since her husband, Chris, was diagnosed with #ALS in June 2019 and shares their story and others' on her podcast, @sorryimsadpod. Visit here: buff.ly/3AetbGj
Some will say there is no hope for people living with ALS. F that. They don’t see what we see -- amazing communities fighting like hell to make hope real. And we won't stop until we find cures. #WhyIFight Retweet this post, use #WhyIFight, and tell us why you keep fighting.
We first conceived of @iamalsorg a year ago. Since then I’ve flow over 90,000 miles and been on the road 87 days. Today we start interviewing CEO candidates. I AM SO EXCITED!!!!!!
Cycling the Illinois prairie path was my favorite way to exercise. I would ride for hours, especially loved it in the fall. Hope NurOwn will give this back to me. bike 15 miles a day on my recombinant inside but so not the same
@CoreyPolen @bsw5020 I am right there with you Corey. What I would give for a day at the gym. ALS has made me more mentally strong than I've ever been before; but I sure miss the physical strength I used to have so very much! Access to NurOwn could be a real game changer. #IamALS #ALSplea
ALS-Like Disease in Mice Improves when a Protein Receptor's Activity Is Reduced alsnewstoday.com/2017/07/05/red… via @alsnewstoday
Inherited ALS May Be Caused by Mutation That Disrupts Genetic Instructions, Study Reports alsnewstoday.com/2017/06/27/stu… via @alsnewstoday
ALS-Like Disease in Mice Improves when a Protein Receptor's Activity Is Reduced alsnewstoday.com/2017/07/05/red… via @alsnewstoday
@alsnewstoday Colorado18yr ALS research shows enzymes are special categories of proteins. With ALS enzymes are attacking proteins. Get it.
@alsnewstoday Colorado18yr ALS research shows looking at ANY genetic "signposts" of ALS when 90% diagnosed carry no gene is pure desperation
ALS Worldwide Co-chief Calls Radicava, Edaravone, a 'Minor Miracle' for Some alsnewstoday.com/2017/06/29/als… via @alsnewstoday
We like to see uplifting articles from other orgs & media outlets. #ALS #ALSAwarenessMonth #May alsnewstoday.com/2017/05/04/col… via @alsnewstoday
9 Things to Know About the New ALS Drug Radicava - ALS News Today alsnewstoday.com/2017/05/18/thi… via @alsnewstoday
9 Things to Know About the New ALS Drug Radicava - ALS News Today alsnewstoday.com/2017/05/18/thi… käyttäjältä @alsnewstoday
McMorris Rodgers, Larson, Cassidy, and Klobuchar Introduce Steve Gleason Enduring Voices Act via #cathymcmorris mcmorris.house.gov/mcmorris-rodge…
COPD patients with other chronic conditions have a difficult time keeping up with their medications, but more so... fb.me/8k7lKyI9P
May is CF Month! Here are 5 videos that are a must see from people in the CF Community!... fb.me/ts0t6j4Z
Tomorrow is National #BiketoWorkDay and it will be a beautiful day to remind people about the Ride to Defeat ALS!... fb.me/7FAlefTSX
Help us make The ALS Association's website the best it can be by taking this 10 min survey! svy.mk/1X2GXEf
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