NEALS Consortium @NEALSConsortium
The Northeast ALS Consortium (NEALS) is an international, independent, non-profit group of researchers who collaboratively conduct clinical research in ALS alsconsortium.org Joined March 2012-
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🗓️💻 Are you registered for our webinar May 8th? Join us for an overview of the ALS Better Care Act. REGISTER TODAY! ➡️ us06web.zoom.us/webinar/regist…
LIVE in 40 minutes! Register to join our webinar at 1:00pm ET! us06web.zoom.us/webinar/regist…
LIVE in 40 minutes! Register to join our webinar at 1:00pm ET! us06web.zoom.us/webinar/regist…
Have you registered for next Thursday's webinar? Join us 4/25 at 1:00pmET for "Constipation in People Living with ALS" Register today! ➡️ us06web.zoom.us/webinar/regist…
Introducing our ALS Research Publication Review series. In collaboration with @NEALSConsortium. This initiative is designed to connect the #ALScommunity w/the brilliant minds behind important #ALSresearch publications. Stay tuned for more details on Pub Review #1 coming soon.
As part of our weekly webinar series, we will dedicate one Thursday each month to a discussion about EAPs. Join us on 4/18 at 5pm for an overview of the new online resources to learn more about #ExpandedAccess Register:partners.zoom.us/webinar/regist…
🗓️ Join Us Thursday, April 25th for a Community Education Webinar with Dr. Ghazala Hayat as she presents, "Constipation in People Living with ALS: Does Autonomic Dysfunction Play A Role?" Register Here ➡️ us06web.zoom.us/webinar/regist…
🗓️💻Have you seen our upcoming webinar calendar? Join us for informative webinars on updates on clinical trials, best practices for clinical care, and current research efforts in ALS causes & treatments. Check out the schedule and register here: ➡️ neals.org/people-living-…
Are you registered for our webinar May 8th? Join Dr. Terry Heiman-Patterson, Dr. Sabrina Paganoni, and Dr. Kelly Gwathmey's discussion of the importance of multidisciplinary care and the role of the ALS Better Care Act. REGISTER TODAY!➡️ us06web.zoom.us/webinar/regist…
Missed our webinar? A recording is now available! Watch “The Science Behind ALS Treatments: Riluzole, Radicava, and Relyvrio” here ➡️ vimeo.com/926313713?shar…
@PaganoniMDPhD and @MeritCudkowicz will host another great #WeeklyWebinar this Thurs 3/28. Register here: partners.zoom.us/webinar/regist… @ALSTDI @alsassociation @iamalsorg @everything_als @alsone_official @MDAorg @LesTurnerALS @NEALSConsortium
Join us on 3/21 at 5:00pm EST for our #weeklywebinar! This week, we will be joined by Karen Parada from the University of Colorado Anschutz. @ALSTDI @alsassociation @iamalsorg @LesTurnerALS @MDAorg @LesTurnerALS @NEALSConsortium @everything_als @alsone_official
🗓️ Save the Date! Register for our upcoming 💻 NEALS Webinar: An Overview of the ALS Better Care Act Register Today ➡️ us06web.zoom.us/webinar/regist…
Please join us on 3/14 for our monthly EAP webinar series! Register: partners.zoom.us/webinar/regist… @ALSTDI @alsassociation @iamalsorg @everything_als @alsone_official @LesTurnerALS @MDAorg @NEALSConsortium
Have you registered for our upcoming webinar? ➡️ us06web.zoom.us/webinar/regist…
Have you registered for our upcoming webinar? ➡️ us06web.zoom.us/webinar/regist…
Missed our most recent webinar? A recording of “The Benefits of Macronutrients in People Living with ALS: What Should We Eat?” Is now available! ➡️ vimeo.com/919295822?shar… Be sure to visit NEALS.org for all our webinar updates!
We have another great #weeklywebinar this week! Register for this week and future webinars here: partners.zoom.us/webinar/regist… @ALSTDI @ALSTDI @iamalsorg @MDAorg @LesTurnerALS @alsassociation @everything_als @alsone_official
➡️ Join us for the NEALS/NICE Webinar: “The Science Behind the Three FDA-Approved Drugs for ALS: Radicava, Relyvrio, and Riluzole,”. Gain insights from experts & learn the science behind these drugs. Save the date🗓️ March 18th ⏰ 4:30 PMET Register now! us06web.zoom.us/webinar/regist…
🗓️💻 Save the date! Friday, March 1st (12pmET)- Join us as Dr. ikjae Lee presents “The Benefits of Macronutrients in People Living with ALS: What Should We Eat?” Register today ➡️ us06web.zoom.us/webinar/regist…
We have another great #weeklywebinar coming up this week, featuring a discussion on genetics led by Dr. Mark Garret of MGH. @iamalsorg @MDAorg @NEALSConsortium @ALSTDI @alsassociation @alsone_official @everything_als @LesTurnerALS Register partners.zoom.us/webinar/regist…
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Hande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Mandi @RunningMama0522
2K Followers 1K Following
رجل @abdhali25
54 Followers 928 Following
Yasir Al-Khalili MD M.. @YasirAlKhalili
513 Followers 247 Following Georgetown University Neuromuscular Neurologist
ALS Northwest @ALSNorthwest
526 Followers 350 Following ALS Northwest provides support and resources for people living with ALS, their families, and caregivers.
Torsten Weidauer @ich_tori2105
0 Followers 23 Following
Cristian Correa-Arrie.. @Criscorrea_NMD
70 Followers 277 Following Neurologist #Neuromuscular_Diseases_Center - Instituto Roosevelt #ALS - #Myopathies - #Neuropathies - #Neuromuscular_Junction_Diseases - #Cerebellar_diseases
Frederick Kushner MD @KushnerMD
203 Followers 306 Following Clinical and interventional cardiologist and professor
Stefanie @stefsol
2 Followers 36 Following
Chunsu Xu @xuchunsu
101 Followers 321 Following Drug Development/Biotech Venture/Molecular Neuroscientist; Intermittent twitting/vent after toddler asleep; some opinions my own/mostly others'
Life with ALS @Ananbeh90S
0 Followers 13 Following
Brian Donovan @CheckBd
8 Followers 69 Following Diagnosed with ALS in 2024, but embracing hope. A proud husband, dad, and granddad, believe in future breakthroughs and cherish every family moment.
Caroline Purslow @Caroline_Purs
4 Followers 79 Following Global Health & Innovation @Challenge_Works & @Nesta_UK, Former @UKHSA. Designing a global challenge prize for #MND #ALS.
chuck johnson @chuckj32
19 Followers 387 Following
christine @Cris780195
1 Followers 44 Following
EVANGELOS KISKINIS @EKiskinis
43 Followers 157 Following
Melissa Sweeney @MissyASweeney
47 Followers 1K Following
Gishlaine Alfonso @GishlaineAlfon2
3 Followers 130 Following
Radiator Rick @radiatorrick1
128 Followers 187 Following
Emily Roberts @emilyk_roberts
915 Followers 996 Following @Iowa_Biostat Assistant Prof causal inference + clinical trials previous: @UMich Biostat @NSF GRFP running on insulin. go hawks!
Marissa @mari__wanna
8 Followers 80 Following Diagnosed with ALS at 31. Livin it up with terminal illness
Della Larsen's Class @LarsenClass
169 Followers 73 Following
Fernanda Cardoso @DrFeCardoso
437 Followers 520 Following Senior Research Fellow @IMBatUQ | PI @Cardosolab | Neuropharmacology | Pain | Neurodegeneration | Ion Channels | Venom research | Mentor | Mother and Wife
Matti Allen @Matti_D_Allen
102 Followers 490 Following Neuromuscular Medicine Fellow (2023-2024) at The Ohio State University; MD Queen's University; PhD The University of Western Ontario
SM @Dp8jy0nFemsLRY4
39 Followers 3K Following
PharmAust @PharmAust
2K Followers 5K Following PharmAust is a clinical-stage biotech company focused on repurposing monepantel (MPL) for human neurodegenerative diseases ASX: $PAA FSE: $ECQ
Alexander Goginashvil.. @Al_Goginashvili
12 Followers 390 Following
Loren Stuckmeyer @Lstuck7
232 Followers 430 Following ALS may take me, but will not take my life. Husband to 1, Dad to 2.
Mohamed amine Zr @AmineZerdo30585
12 Followers 105 Following
Hani Nadhir @NadhirHani5226
9 Followers 164 Following
philipmcgoldrick @_philmcgoldrick
98 Followers 265 Following ALS Researcher interested in C9orf72, nucleocytoplasmic transport, Importin β-1 and FG-Nups
Jordana Narin @JordanaSophie
1K Followers 4K Following I'm just a girl standing in front of a boy asking him to use the Oxford comma. (once: @columbia @princetoninasia @westwingwriters @girlswritenow @nygov et al)
Louise Rowe @louweezie5080
152 Followers 3K Following Do the right thing. It will gratify some people and astonish the rest.
sarahmaggied @sarah_maggied
2 Followers 49 Following
Dale Barker @DaleBar19817978
4K Followers 6K Following Married, Christian, Army veteran, retired employment specialist. Love our Republic and will continue to stand united with conservative leaders.
C. Zhang @Hansen_010101
15 Followers 81 Following
Vincent M Tedone MD @vmtedone
70 Followers 84 Following retired Orthopedic surgeon medical consultant WFND
Anna Jane Dreyer @AnnaJaneDreyer
150 Followers 266 Following Postdoc in the Department of Clinical Neurosciences @Cambridge_Uni | NIHR @ARC_EoE DEM-COMM Dementia Fellow | Neuropsychologist
justsaxxo @christiankipye1
1 Followers 12 Following
Joseph Shlipton @BardChatGPT
325 Followers 3K Following
Tom Parsley @TWP924
100 Followers 560 Following
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Steve Gleason - "Live.. @SteveGleason
199K Followers 247 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
ALS TDI @ALSTDI
10K Followers 6K Following The most comprehensive lab focused on ALS/Lou Gehrig's Disease. We are the Drug Discovery Engine discovering & inventing effective treatments for ALS. #EndALS
MGH Neurology @MGHNeurology
8K Followers 742 Following On a mission to find new treatments and cures to eliminate the devastating impact of neurological disorders.
Anthony Carbajal @carbajalphoto
14K Followers 3K Following
Les Turner ALS Founda.. @LesTurnerALS
4K Followers 575 Following The leader in comprehensive #ALS care in Chicagoland
PTC Therapeutics @PTCBio
2K Followers 311 Following PTC is a patient-centered biopharmaceutical company focused on discovering, developing & commercializing medicine for patients with rare disease
Tim Miller @TimMillerNeuro
243 Followers 7 Following Tim Miller, MD, PhD is a neurologist, neuroscientist with an interest in neurodegenerative diseases including ALS and dementias.
ALS Center Wash U @ALSCenterWashU
201 Followers 157 Following Our mission is to cure ALS, also known as Lou Gehrig’s disease. We treat patients, run clinical trials, and work in the lab to learn more about the disease.
Hope Loves Company @HopeLovesCo
2K Followers 3K Following HLC is the only nonprofit in the U.S. dedicated to supporting children and young adults who had or have a loved one battling #ALS. We provide Camp HLC & more.
Target ALS @TargetALS_fdn
2K Followers 525 Following Target ALS brings together the right people, funding, critical tools and resources to foster the creation of breakthrough therapies to treat people with ALS.
Project ALS @ProjectALSorg
6K Followers 696 Following Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and, ultimately, a cure for ALS.
CReATeRDCRN @CReATeRDCRN
232 Followers 8 Following CReATe is an NIH-funded clinical research consortium focused on therapy development for ALS and related disorders (PMA, PLS, HSP, FTD, MSP).
AnswerALS @AnswerALS
3K Followers 951 Following
Mayo Clinic @MayoClinic
2.0M Followers 2K Following An integrated clinical practice, education and research institution specializing in treating patients. Account maintained by @MayoClinic.
Johns Hopkins Medicin.. @HopkinsMedicine
639K Followers 805 Following Johns Hopkins Medicine–Improving the #health of the community and world by setting the standard of excellence in modern #education, #research and clinical care.
The Neuro @TheNeuro_MNI
13K Followers 3K Following Official account of #TheNeuro, Montreal Neurological Institute-Hospital. Follow for the latest on transforming research & care, improving lives via #OpenScience
Project MinE @_Makeityours
2K Followers 599 Following Groundbreaking genetic research for #ALS #MND by patients for patients. Mining your human DNA and ultimately find a cure!
Emory School of Medic.. @EmoryMedicine
13K Followers 967 Following Located in Atlanta, Georgia, Emory University School of Medicine is a leading institution with the highest standards in education, research, and patient care.
Cedars-Sinai @CedarsSinai
34K Followers 3K Following Global leader in patient-focused care & innovative treatments. Ranked a "Best Hospital" by U.S. News 8 years in a row. Shaping medicine’s future @CedarsSinaiMed
NeuroBANK™ @neurobank
262 Followers 250 Following NeuroBANK™ - a patient-centric, accelerated research environment for collaboration, research, clinical care improvement and best clinical practices
UMass Chan Medical Sc.. @UMassChan
14K Followers 4K Following Official X home of UMass Chan Medical School: pioneering education, research and health care delivery. See how we are advancing medicine together.
BarrowNeurological @BarrowNeuro
15K Followers 602 Following Minding What Matters Most™ | Preserving thoughts, memories, dreams, personalities, and movement.
Alisa Brownlee ATP, C.. @ALSAssistiveTec
3K Followers 4K Following RESNA Certified #AssistiveTech guru-ALS United, Mid-Atlantic. Founder, alsAThome, virtual home assessments. Opinions my own.Proud @trisigma & @ESUniversity alum
ALS WORLDWIDE @ALS_WORLDWIDE
1K Followers 113 Following Nonprofit organization that provides FREE guidance and support to people with ALS in over 150 countries. We seek to help people live better and longer with ALS
Brian Parsons @BrianJParsons
281 Followers 296 Following Love family, U2, summer, beaches, palm trees, garden, Ruffles Salt & Vinegar Chips (bring'em back) & Canada. Dont like ALS. Trying to make the most out of life.
alsnorthcarolina @alsncchapter
1K Followers 651 Following The ALS Association North Carolina Chapter is now ALS United North Carolina. Same mission, same services, and the same great staff, with a new name.
Nancy Frates @momfrates
4K Followers 1K Following
ALS United Chicago @ALSUnitedChi
2K Followers 2K Following The ALS Association Greater Chicago Chapter is now ALS United Greater Chicago. Visit our new website at https://t.co/cnJAQNLFSJ.
ALS Hope Foundation @ALSHF
3K Followers 610 Following The mission of the ALS Hope Foundation is to make a difference in the lives of people living with ALS through Care, Research and Education.
TheALSAssociationNNE @alsaNNEchapter
146 Followers 38 Following Serving people with ALS and their families in Maine, New Hampshire, and Vermont. http://t.co/vD1no6Sx0T
MDA of Connecticut @CTMDA
275 Followers 248 Following MDA is the nonprofit dedicated to curing muscular dystrophy, ALS and related diseases. MDA also provides health care, advocacy and education.
MDA Boston @MDABoston
629 Followers 865 Following MDA is the nonprofit health agency dedicated to curing muscular dystrophy, ALS and related diseases by funding worldwide research.
WalkToDefeatALS MA @WalkToDefeat_MA
230 Followers 212 Following Walk to Defeat ALS is the ALS Association's signature event, raising funds for those who have been affected by Lou Gehrig's disease. Walk for those who can't.
MrsJQuinn @_JFlynn13_
331 Followers 358 Following Love never gives up or loses faith it is always hopeful and endures through every circumstance Staying strong & encouraging ALS awareness for my husband PQ!
Pat Quinn @PQuinnfortheWin
3K Followers 529 Following ALS Patient/Advocate, Co-Founder of the #ALSIceBucketChallenge. Diagnosed at 30 yrs old. No treatment or cure is unacceptable. Everyday I fight! #Quinn4theWin
Muscular Dystrophy As.. @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Suzanne Malveaux @SuzanneMalveaux
101K Followers 13K Following Mom,CEO Malveaux Global Media,Fmr CNN Anchor&White House Correspondent,Marathoner,Triathlete,ALS fighter. My passion:finding peace through storytelling.
ALS Canada @ALSCanada
7K Followers 2K Following We work with the ALS community to improve the lives of people affected by ALS through support, advocacy and investment in research for a future without ALS.
ALS Association Wisco.. @ALSAWisconsin
1K Followers 251 Following Leading the fight to cure and treat ALS through global, cutting-edge research and local care.
ALS Assoc LA-MS @ALS_Assoc_LA_MS
1K Followers 478 Following Providing patient and family support on a local level to those living with ALS and their families.
Walk to Defeat ALS @WalktoDefeatALS
4K Followers 1K Following The ALS Association Greater New York Chapter | Fighting Lou Gehrig's disease
ALS United Orange Cou.. @ALSUOCC
2K Followers 494 Following ALS United Orange County supports patients and families living with ALS
ALSUnitedGNY @ALSofGNY
2K Followers 2K Following ALS United Greater New York. Fighting ALS on every front. Walk to Defeat ALS: @WalktoDefeatALS
ALS United Mid-Atlant.. @ALSMidAtlantic
3K Followers 681 Following Caring for ALS families in eastern Pennsylvania, southern New Jersey, and all of Delaware. Donate at https://t.co/GSSyNM8I0X
Augie Nieto @AugieNieto
3K Followers 579 Following Pioneer of the fitness industry and founder of Augie's Quest. Raising awareness and funds to end ALS.
Pete Frates @PeteFrates3
28K Followers 930 Following ALS patient...Advocate for a cure. #StrikeOutALSIntroducing our ALS Research Publication Review series. In collaboration with @NEALSConsortium. This initiative is designed to connect the #ALScommunity w/the brilliant minds behind important #ALSresearch publications. Stay tuned for more details on Pub Review #1 coming soon.
Join us on 3/21 at 5:00pm EST for our #weeklywebinar! This week, we will be joined by Karen Parada from the University of Colorado Anschutz. @ALSTDI @alsassociation @iamalsorg @LesTurnerALS @MDAorg @LesTurnerALS @NEALSConsortium @everything_als @alsone_official
Please join us on 3/14 for our monthly EAP webinar series! Register: partners.zoom.us/webinar/regist… @ALSTDI @alsassociation @iamalsorg @everything_als @alsone_official @LesTurnerALS @MDAorg @NEALSConsortium
➡️ Join us for the NEALS/NICE Webinar: “The Science Behind the Three FDA-Approved Drugs for ALS: Radicava, Relyvrio, and Riluzole,”. Gain insights from experts & learn the science behind these drugs. Save the date🗓️ March 18th ⏰ 4:30 PMET Register now! us06web.zoom.us/webinar/regist…
Join us on 2/8 for a presentation about Expanded Access and EAP opportunities in the ALS space. @NEALSConsortium @ALSTDI @alsassociation @LesTurnerALS @alsone_official @MDAorg @everything_als Register: partners.zoom.us/webinar/regist…
💻 Join us for the upcoming NEALS webinar on Tuesday, February 13th at 4:00PM ET. Register today for "Bridging the Gap: The Crucial Role of Collaborative Pre-Clinical Research" Register here!➡️us06web.zoom.us/webinar/regist…
We have another great #WeeklyWebinar on 1/25! Clene Nanomedicine will discuss CNM-Au8, the investigational product studied in Regimen C. @alsassociation @ALSTDI @alsone_official @everything_als @MDAorg @LesTurnerALS @NEALSConsortium Register: partners.zoom.us/webinar/regist…
Join us for another great #WeeklyWebinar on 1/18! This week, we will hear the latest updates regarding Pridopidine from @PrileniaTx @alsassociation @ALSTDI @everything_als @alsone_official @LesTurnerALS @MDAorg @NEALSConsortium Register: partners.zoom.us/webinar/regist…
If you haven't already checked out the #ALS resources on Roon, now is your chance! It's an easily navigable platform w/useful info on care, clinical trials, caregiver support & more. Shameless plug: I was honored to add my voice on Roon. roon.com/als/home
Roon (roon.com) has created a free, centralized platform for people navigating ALS. Roon consists of short-form Q&A videos from ALS experts, patients and caregivers answering thousands of the top questions that come up during the ALS journey. Check it out!
Sharing an exciting new resource, Roon (roon.com), a free platform helping people navigate ALS through thousands of short-form Q&A videos from 50+ ALS experts, patients and caregivers. Roon features the most common questions doctors get in clinic, + many more!
More carriers having fun! #nealsmtg
Ozdinler Lab celebrates the Sunset after a long day at NEALS. Congratulations to all Ozdinler Lab members and the Turkish doctors at the international site.
Congratulations to Briana Ondatje @calibri11941 for presenting her PhD thesis project @NEALSConsortium @BarrowNeuro @ASU
That moment at a conference you realize that 2 out of 700 of you are wearing the same blouse! #NEALSMtg.
Experimental data presented at the @NEALSConsortium Meeting further support the potential of COYA 302 (LD IL-2 & CTLA4-Ig) to address the multiple pathways involved in the progression & severity of #ALS. See summarized main results of the study: bit.ly/46yDhkk $COYA
The @NEALSConsortium meeting starts today and you can join us virtually free of charge. Link below (and note new agenda link in the comments).
The 22nd NEALS Annual Meeting is going virtual, and we're thrilled to invite you to join us. Register now docs.google.com/forms/d/e/1FAI… #NEALSMtg #VirtualEvent
We’re looking forward to attending the 22nd annual @NEALSConsortium Meeting on Oct. 4 – 6. Read more about our presence at the meeting:
Day 1 of NEALS Conference; A great opportunity to get an update on clinical research and trials on ALS and other motor neuron diseases. #als @NEALSConsortium @alsadvocacy @iamalsorg @alsassociation @ALSResForum @ProjectALSorg @TargetALS_fdn @AANmember @LaheyHospital
Day 2 of NEALS #conference with an exciting morning session on updates on clinical #trials on #ALS. #NEALSmtg @alsadvocacy @iamalsorg @LaheyHospital @TargetALS_fdn @alsassociation @AANmember @AANEMorg @AANmember @NEALSConsortium @ALSResForum @ProjectALSorg
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