ALS TX DAD @AlsDads
USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own) alstexasdad.com Castroville, TX Joined October 2018-
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"Walker, there is no path. The path is made by walking."—Antonio Machado
The only successful treatment for ALS at this time is... To live the F**k out of your life and disregard external negative influence. ALS is shitty enough. Therapies, treatments, and a cure will come. In the meantime, live your way as best you can.
From time time to time, I share this. More so, for those just beginning life with ALS.
There is something wrong in our nation when people have to resort to gofundme and spaghetti suppers and bake sales to provide care and dignity for people living with ALS.
The Write Stuff blog website is on fire! Catch up on the creative content being shared by some of our new contributors. Reflections, stories, observations, and poetry. Get a glimpse into the ALS mind and experience! alsthewritestuff.com
It’s not fair, This disease. its impact on you or me. My attendance at events, my ability to celebrate you, my simple presence at something not centered on me. My desire to be capable, autonomous, and the person I used to be. Believe me when I say I know it’s not fair,
Had a fantastic evening at @ReelAbilityHou for the screening of @noc_film catching up with friends! @ReginaBlye
A few weekends ago, I shared that I was included in an article in The London Guardian. Last week, I received a hard copy. Written by: Philippa Kelly theguardian.com/society/2024/j…
💯 👇👊
Catch up on the latest pieces written and contributed by those impacted by ALS. You are welcome to add your own stories! alsthewritestuff.com
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Sarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Shah Minokadeh, M.D. @MinoShah
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Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Mandi @RunningMama0522
2K Followers 1K Following
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
End ALS Now @EndALSNow
963 Followers 930 Following ▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
Candis Dam @CandisDam51552
66 Followers 5K Following
Naomi Olszewski @OlszewskiN98923
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Tom Golisano @tomgolisano2
348 Followers 991 Following Personal page of Tom Golisano. Founder & Chairman of @Paychex and @GolisanoFdn. Entrepreneur. Author of #BuiltNotBorn.YOU CAN WRITE TO ME FOR INVESTMENT IDEAS
Umaima Grumbles @GrumblesUm25390
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Clara Barry @BarryClara13236
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Gillian Sapia RN @GillianHSapia
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galcoolest @Galcoolest
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Rose Angel @nijoosh1711
54 Followers 295 Following 35 Single , No DM for $ 🚫Porn or nude = Blocked 🚫Rude and disrespectful = Blocked 🚫Fake and liar person = Blocked #USA🇺🇸
E Musk @BarristerS84208
201 Followers 3K Following Entrepreneur... ELON MUSK... Mars mission exploration... support the future of humanity and beyond... SpaceX mission... become part of this movement...
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Pa Cenat @PCenat57121
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Madalyn Wetklow @WetkMadal
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JoJo @Dereklee89
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ALS Northwest @ALSNorthwest
526 Followers 350 Following ALS Northwest provides support and resources for people living with ALS, their families, and caregivers.
Mika Wicklund @MikaWicklu85568
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Julian Edelman @EdelmanJul991
25 Followers 11 Following Anytime you think of chatting with a friend Julian is always there for you 🤹🤹🤹🤹🤹🤹🤹
Emma @Emma24712236548
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Monica luv @Monicaluv882422
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Eva Bibles @eva_bib
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Julie Suarez @epjjule
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Jared Asplundh @Jaredasplundh
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Alaa700 @Alaa7005
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Latashia Smolinsky @LSmolinsky20497
89 Followers 5K Following
Emily @BeauAlick1
34 Followers 461 Following Never regret your choice of road, whether it is a decade ago, is now.
🃏😈 Cassy Black .. @OracleOfTears
3K Followers 4K Following Poker player, model, pole dancer, kickboxer. Nose broke, rebuilt. Thx photoshop, botox! Humor black. Spades a spade I'll hit you with it! Blunt punchy tweets 💀
Hilma Valladao @HilmaValla5402
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Andy Greenspon @andyman344
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Edie Rinaldis @ed_rinald
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Marna Tondreau @mar_tondr
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valdemic @1curiousV
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Eura Kreiman @EKreima
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Laura Andreasen @Laumarie5
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Soon Thatcher @s_thatc
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Susan @Susan15160
134 Followers 564 Following In fact, being a photographer is not a special profession, it is you. How you see the world, what's in your eyes and heart, that's what the photo shows
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
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Mayuri Saxena @Mayuri_Saxena
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Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Sarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Shah Minokadeh, M.D. @MinoShah
4K Followers 730 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Mandi @RunningMama0522
2K Followers 1K Following
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
End ALS Now @EndALSNow
963 Followers 930 Following ▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
ALS Northwest @ALSNorthwest
526 Followers 350 Following ALS Northwest provides support and resources for people living with ALS, their families, and caregivers.
Your ALS Guide @YourALSguide
386 Followers 64 Following A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...
Jackson @lifewithALS
1K Followers 699 Following Mum of 2 wonderful boys. 3 cats. Diagnosed August 2022 with ALS determined to fight and stay strong until a cure is found. Forever hopeful 🧡💙🧡💙
Author Kris Francoeur.. @KFAnnaBelleRose
7K Followers 7K Following I'm Kris Francoeur - author, ghostwriter, educator, wife of an ALS warrior. Four published romance novels, one coming soon, and a memoir on grief. No DMs.
Susannah Fox @SusannahFox
40K Followers 1K Following Author, "Rebel Health: A Field Guide to the Patient-Led Revolution in Medical Care" (@MITPress 2024) She/her SusannahRFox on🧵
Tim Lowrey @gatortimbo
450 Followers 638 Following Grateful and blessed to be married to Emily Wester Lowrey, UF Pharmacy '92, Buffalonian, Diehard Gator, Home remodeler, Avid reader of various, living with ALS
Fernando G Vieira @FGVoneforty
559 Followers 867 Following Dad. CEO & CSO at ALS TDI. Talk less, work more. Opinions expressed on this account are my own.
Lara Garey @tomstroops
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PVA Texas Chapter @pva_texas
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Ursula Smack @SmaUrsul
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Zoë Atkinson @ZoeHR4You
260 Followers 504 Following MD of HR4You Ltd - an HR Consultancy helping SME's, predominantly in the Midlands region, providing practical, affordable HR advice and support.
Marwa Kenawy @MarwaEKenawy
686 Followers 4K Following PhD student #glasgow university #UoG_transpharm #GPCRS #FreeFattyAcidReceptors #pharmacology #Biochemistry #Libra #Egyptian🇪🇬❤️ #Muslim #Emeralda
Lacy Plattsmier @plattsmier28005
90 Followers 5K Following
Prabhleen kaur @KaurPrabh130
551 Followers 5K Following CSIR-SRF PhD Scholar at IGIB A Science enthusiast aspiring to explore and expand my knowledge in the field of biology.
Kedi kesavan @kesavaraja_phd
106 Followers 2K Following Research scholar in the field of Biomagnetism.
Bob Connors @_Bob_Connors
994 Followers 893 Following Husband to Barb and father of three wonderful kids -- Luke, Logan and Lakyn. Poppy to Rosie, Callen, Collins, and Millie.
Shawna Prince @shawna_prince
854 Followers 1K Following EMMY Award winning News Producer I Previously @ABCNews @CBSNews @FOXNews @NBCNews @Harpo I Currently Content Creator, Media Relations & Communication Strategist
glenn grant @glennggrant
258 Followers 1K Following married to a wonderful lady and father to Lucy the corgi, football and hockey fan(go Habs)...music lover... #ALS warrior
Dr. K.G.M. Biyabani @KGMSCIENTIST
809 Followers 3K Following MBBS, MD (USA), MS (Biol Sci), PharmD, FACP, FRCP; I'm a Bench-to-Bedside clinician with art and science of medicine Inc.; my tweets are not medical advice.
Peter Whitehead @peter_whit18612
110 Followers 183 Following Recently Diagnosed with MND/ALS, Father of 3, Estate Agent of 40 Years, love being on the sea power boating & huge Leicester City fan.
Anish Esteves @AEthejourno
3K Followers 1K Following Senior Content Editor @Pepper_Content Music Lover, Connoisseur of Books Occasional Universalist https://t.co/EkhJbxl0cP
Laura Jean Pulscher @PulscherLJ
114 Followers 169 Following ~ Quadriplegic and unable to speak due to ALS diagnosis in 2016, yet still sharing thoughts and faith thanks to technology ~
Mohammad Banazadeh @mbscientist1994
298 Followers 4K Following I am a Research Assistant at Kerman University of Medical Sciences. I perform research in different fields from neuroscience to bioinformatics.
Grandmama💝of10 @rcking51
62 Followers 517 Following schoolofhardknocks# never give up💪🏼love 💝 is all there is
Carmel Mahon @MahonCarmel
432 Followers 896 Following Retired Medical Scientist specialising in Clinical Chemistry. Plenty of time to enjoy my garden, baking, dabbling in art and enjoying my wonderful grandsons.
Sclerosis MDPI @SclerosisMdpi
39 Followers 347 Following Sclerosis is an international open-access journal on sclerosis and related diseases, published quarterly by @MDPIOpenAccess.
Dr. Stacy Lewin @FarberStacy
468 Followers 438 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
Her ALS Story @HerALSStory
2K Followers 165 Following We are a group of women diagnosed with ALS before our 35th birthday who are challenging the stereotype that this is an old white man's disease.
Tom Wallach, MD @md_wallach
5K Followers 1K Following Pediatric GI. Pain, EED, and intestinal barrier science. formerly of UCSF/Columbia. Ed board @jpgnreports . hater of ALS. tweets only represent me. he/him
Michael Wilson @MichaelWheelson
126 Followers 258 Following Husband and Dad. Mechanical Engineer. Jedi in Training, but still can't master art of itching my own face. ALS'ing since Feb. 2017.
Insource Services @InsourceSvcs
255 Followers 566 Following Expert Finance, HR, Technology and Training Consulting
Dr. Spartansamurai @lilspartansamu1
4K Followers 5K Following Associate Professor, neuropsychologist studying #MDD in late life, digital medicine developer, ANTI-racist, mom of humans and dogs, #BLM LGBTQ ally, views mine.
Mark Merrill @marklmerrill
836 Followers 3K Following I love helping educators & communities with tools to attend school, find their passions, and fund their future.
STAT @statnews
165K Followers 5K Following Reporting from the frontiers of health & medicine. Sign up for any of our 10 free newsletters here: https://t.co/CBx3GZBv31
iamthereseolsen @terricolsen
119 Followers 217 Following I will raise my voice until I can't. I was #Poisoned. Living with #ALS, #Ataxia #POTS #Dysautonomia #Fibromyalgia #ChemicalSensitivity. Connect the Dots.
Maggie @MaggieFlanagan
2K Followers 2K Following Neuropathologist🔬/Scientist👩🔬/Nun Study Director✝️/Brain Bank Director 🧠 @UTHealthSA 🤠. Proud alum of @tcddublin 🇮🇪⚕️@uwlabmedpath🔬& @stanfordpath 🧠.
Suck It Autism @spiritedpatriot
7 Followers 58 Following Veteran’s Wife 22 yrs. Mama Bear to 2 boys, 1 with Autism and 1 with Dyslexia, Conservative Christian
Roy North 🌊🌈�.. @RoyNorthT
12K Followers 12K Following #FBR On-Air Personality at WRDV-FM. Tune in to "The Groove"☮️the music of the 60s: Monday, 9PM-Midnight (Eastern). 🌊The Founders were Progressives.
tattooed goalie dad #.. @sandropacheco71
61K Followers 56K Following Cancer Survivor. Philadelphia Flyers & Lindros fanatic. Proud hockey goalie dad X2. Portugal, Ronaldo, Jays, Bills, Raptors fan. Proud Açoreano. I follow back
Anna @Crystal450791
2K Followers 5K Following Mountains have their peaks, lakes have their shores, and everything has its rewards. May we all live the way we want to be
orange @liuyuxin985
1K Followers 2K Following This is my second account, the old one was stolen by hackers. Here we need to distinguish between real and fake people. Both need to be careful.
Kuva-yi Milliye @Berk62452788
1K Followers 4K Following
Jeremy Shane @jeremylshane
877 Followers 5K Following Working to accelerate cures, end chronic disease & fix higher ed. https://t.co/gvm0kvisZP Formerly: @webmd @medscape @2UInc @exelon
Angel Lee @Rameshbhalla17
1K Followers 2K Following Engaged in the new energy wind power industry, personal team, have their own thinking, optimistic, cheerful, talkative, I hope we can learn from each other.
Tracy Peters @bigTplays
7K Followers 7K Following #BlueCrew single father to 3 young blue adults, ready to retire destiny unknown. Always follows back. Go blue wave. No DM’s
Shelley Baumgartner @6baums
86 Followers 276 Following Army Veteran, Nurse Practitioner, Wife, Mother of 4, Patriot!
gustlparamedic @7gustl2
2K Followers 5K Following
Amy Carraway @amychelle69
1K Followers 3K Following Music lover, college football fanatic. good intentions. Committed to saving the monarch butterflies. ink pen hoarder. Fight to end ALS. #hookemThere is something wrong in our nation when people have to resort to gofundme and spaghetti suppers and bake sales to provide care and dignity for people living with ALS.
@AlsDads @AKJKLove4Ever Juan, you are one of my heroes! I would like to see 50% of funding (govt & private) go towards finding treatments & cures, and the other 50% supporting #ALS care. Invoking our friend @sandymorris333, “What we allow will continue.” We need to speak up to see the change we want.
It’s not fair, This disease. its impact on you or me. My attendance at events, my ability to celebrate you, my simple presence at something not centered on me. My desire to be capable, autonomous, and the person I used to be. Believe me when I say I know it’s not fair,
Juan is a Veteran, husband, and father, and he is living with ALS. The Elizabeth Dole Home Care Act will improve access to critical care for Veterans like Juan. Share Juan's story with your legislators and encourage them to support the Elizabeth Dole Act: iamals.org/action/juans-s…
The holidays can be a difficult time for many, including those impacted by ALS. The Many Shades of ALS team talked about navigating the holidays with ALS on the most recent installment of their Let's Talk About It series. Watch the full recording here: youtu.be/z6pRFti5ay4
Rob lost his battle with MND on the 19/11/2023 but asked for this account to remain in his memory to raise awareness.
@AlsDads Are they offering lessons for the culinary impaired, asking for a friend 😬
@AlsDads Dark, yes. And the truth. The Scream by Edvard Munch captures it for me, when I try to understand how horrible it is for Kristin & so many other PLWALS
.@marcorubio, watch Rebecca's story youtu.be/TzHelccX8J0, and make sure no other mother loses a child to ALS by cosponsoring the Promising Pathways Act (S.1644) #EndALS #Fight2EndALS - Elin Adcock, one of your constituents in NWFL and an ALS widow
Help us make sure no other mother loses a child to ALS by cosponsoring the Promising Pathways Act (H.R.3761) #EndALS #Fight2EndALS
BREAKING: The House just passed the Elizabeth Dole Home Care Act, 414 - 5! 🎉 Thank you to all 414 Representatives who supported this important legislation!
🚨ALERT🚨: The #ElizabethDoleHomeCareAct is on the House calendar today and will likely be up for a vote. Now is the time to show your support for this legislation by contacting your representatives. Find your rep. here: bit.ly/416jXcK
Patient Fellows Nothing about us without us. #alsmndsymp (A better pic coming manana)
@AlsDads @AKJKLove4Ever @CathyStandish @everything_als we have similar kids 3men, 1lady
@AKJKLove4Ever @CathyStandish @everything_als Nobody donates to losers. #1 rule of fundraising. A smile means hope. A frown means don't bother, so does terminal. Do you think progress will be free? Have you no interest in what happens after you are gone? Will your Legacy be "life sux and then you die?
This is what Perseverance and determination through hardship looks like!! #ENDALS
I am Lakeia Nard, Founder of Melanin Children Matter Inc, and a mother of five, has devoted my life to a cause born out of personal tragedy. My youngest son, King'Nazir, was diagnosed with the extremely rare SPTLC2 disease, a part of the pediatric ALS umbrella. In the face of…
@AlsDads Rest assured that they hear it. And it doesn't change that they have a job to do, bounded by Statutes.
@AlsDads You’re an amazing warrior Juan, but if you want to bring unjust into the discussion: - ostracizing those who want the data to support science is unjust - any pharma not unblinding 3 yrs after trial is unjust - blind advocacy without reassessing long term impacts is unjust
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