Fernando G Vieira @FGVoneforty
Dad. CEO & CSO at ALS TDI. Talk less, work more. Opinions expressed on this account are my own. Joined February 2013-
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The RV is parked for a week while Mike, Jan, and the dogs relax on the beach in Crystal Coast, NC! Even with this view, they're stepping out to meet new friends and introduce breweries to the program. Excited to say that @shortwaybrewing is joining Ales for ALS in 2024!
We’re grateful to @Pitt_MBB and @DukeMBB for shining a light on our efforts. Looking forward to Saturday’s Hoops4ALS game in Cameron Indoor Stadium at 8pm EST. @ALSTDI #als #hoops4als #H2P #alsawareness #alsadvocacy
It’s time! We are thrilled to officially announce the Ales for ALS Roadtrip Across America, and to FINALLY show off the @AlesforALS RV that has hit the road with National Director of the Ales for ALS program, Mike Shannon. als.net/news/announcin…
To all of our Las Vegas friends! Join Ales for ALS at HUDL Brewing Company for the kick-off of the Ales for ALS Roadtrip Across America this Monday 11/13!
Mike Shannon and his wife, Jan, are hitting the road for Ales for ALS. Stay tuned for updates as they travel across the country in their Ales for ALS RV. Have a favorite brewery who may wish to join our program in 2024? Let us know in the comments!
Study by @ALSTDI and MGH Reveals New Potential for Use of Accelerometers In Tracking ALS Disease Progression. These promising findings could have significant implications for the use of accelerometers as outcome measures in ALS clinical trials. nature.com/articles/s4146…
****ALS RESEARCHERS*** >If you are interested in presenting an abstract @ our 6th Annual #ALSResearchSymposium on Day 2, 11/17/23 about an #ALS treatment that you or your company has in dev, pls email [email protected] by 8/31 for consideration. alsoneresearchsymposium.org #ENDALS
We are so excited for the 3rd Annual @MLB-wide Lou Gehrig Day tomorrow! In honor of the day, we made some limited-edition Team @ALSTDI baseball cards. Meet some of your team working to #EndALS by flipping through the pack! #LG4Day #TeamALSTDI
New Research: Reduced C9orf72 expression exacerbates polyGR toxicity in patient iPSC-derived motor neurons and a Type I protein arginine methyltransferase inhibitor reduces that toxicity: Introduction Intronic repeat expansions in the… #neuroscience frontiersin.org/articles/10.33…
Today represents a significant advancement in our dedication to people living with amyotrophic lateral sclerosis (#ALS). Learn more about the U.S. FDA’s approval of our treatment for SOD1-ALS, a rare genetic form of the disease:
ALS TDI is thrilled to announce the launch of the ALS Research Collaborative (ARC) – an ambitious global initiative developed to significantly accelerate the discovery of ALS treatments. Learn about how you can be a part of ARC at als.net/news/als-tdi-u… #ARC #ALSresearch #EndALS
Here, I had a chance to talk a little bit about how Google Cloud and their Looker platform are helping to power the next evolution of our PMP ALS Natural History Study - the ARC Data Commons.
Here, I had a chance to talk a little bit about how Google Cloud and their Looker platform are helping to power the next evolution of our PMP ALS Natural History Study - the ARC Data Commons.
Augie was my leader, mentor, and friend. He changed so many lives - including mine - profoundly. He remains my inspiration. Through lessons learned from him, he still leads the way.
Augie was my leader, mentor, and friend. He changed so many lives - including mine - profoundly. He remains my inspiration. Through lessons learned from him, he still leads the way.
Happy birthday, Augie! We love you!
Happy birthday, Augie! We love you!
Increasingly, big #data now is making inroads into rare #disease research. Numerous #databases — run by... Read more: alsnewstoday.com/news/big-data-… #BigData #healthdata #databank #biobank #ALS #research #health #database #Genomics #gene @FGVoneforty @ALSTDI @HawkenMiller @alsnewstoday
Was surprised to see the name of Lillys new experimental Alzheimer’s antibody — remternetug — didn’t end in “mab,” as all antibody drugs do Learned that, apparently, the 3-decade era of “mab” ended last year, as scientists just ran out of new names(???) ncbi.nlm.nih.gov/pmc/articles/P…
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Mandi @RunningMama0522
2K Followers 1K Following
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Jean C9orf72 @Jeanc9orf72
1K Followers 855 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy
I’m Dying To Tell Y.. @LorrisPodcast
1K Followers 869 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
Deb Paust @PaustDeb
1K Followers 724 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Becky Mourey @becky_mourey
634 Followers 318 Following Wife, mom, musician, lover of life, living with and fighting to end ALS.
Jaime Martin MD PhD @DrJaimeMartin
2K Followers 2K Following Director, Movement Disorders Neurology @Synapticure,Telemed, Research ❤️ #advocacy #teleneurology #telemedicine Tweets+views my own.
Alice @eelmu
21 Followers 389 Following Life is like a journey and we are all travelers on the way. There will be bumps in the road, there will be challenges, but it is these challenges that shape our
Gwen Miller @fatend
2 Followers 18 Following
Shireen Hormozdi Bowm.. @NorcrossLaw
949 Followers 724 Following Attorney/Former Prosecutor practicing Personal Injury Law & Estate Planning. I ❤️ getting justice for clients & fighting for human rights #Nonpartisan
Kurt Erauw @kurt_erauw
322 Followers 5K Following Kind of bald but very beautiful particularly on the inside.
Nguyen Tran Minh Duc,.. @DuckyM2
191 Followers 2K Following Co-First Author of "A Consensus-Based Checklist for Reporting of Survey Studies (CROSS)" in the Journal of General Internal Medicine.
Celia 🔞 @CeliaLyndsey227
4 Followers 564 Following Arousing sеductrеss that will lеave уou brеаthlеss
Sara Feldman @saritaapril
626 Followers 524 Following Physical Therapist, Assistive Technology Professional and Evaluator for clinical trials at the MDA/ALS Center of Hope.
Fernanda Cardoso @DrFeCardoso
437 Followers 520 Following Senior Research Fellow @IMBatUQ | PI @Cardosolab | Neuropharmacology | Pain | Neurodegeneration | Ion Channels | Venom research | Mentor | Mother and Wife
Briana Ondatje @calibri11941
122 Followers 746 Following Stem cell research, PhD student, traveling in my spare time, and trying to catch sports and concerts in between
Toby Ferguson @TobyFerguson20
32 Followers 74 Following
JC @JC75408607
557 Followers 449 Following Diagnosed with ALS 3/30/22. Living life day by day while I try and process this journey.
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
jonelo lo lo lo @LoJonelo
7 Followers 255 Following
sarahmaggied @sarah_maggied
2 Followers 49 Following
Sabrina @baker42sabrina
147 Followers 3K Following
Eikonizo Therapeutics @Eikonizo
158 Followers 305 Following Envisioning an end to neurodegenerative and other diseases
Ruben van Eijk @rpavaneijk
482 Followers 117 Following MND researcher interested in clinical trial methodology | MD | PhD | MSc | Parttime cyclist
Avril Mc Tague @avrilmctague
164 Followers 590 Following Physiotherapist interested in neurology and gerontology. PhD student in motor neuron disease. All views are my own. RT does not mean endorsement.
Corey McMillan (he/hi.. @PennBiNDLab
1K Followers 1K Following Bioinformatics in Neurodegenerative Disease (BiND) Lab - multimodal approaches to disease heterogeneity in ALS, FTD, AD and PART @ Penn. Tweets are my own.
Rob Ray @RobRay7
91 Followers 287 Following
Matt Wild @marinemattcda
579 Followers 2K Following Family Man, Husband, former Marine, disabled Vet w/ ALS, Matt's Place Founder, Advocate #Uncrushablespirit, Adaptive Gamer, Escape from Tarkov ADDICT
Bill P Fights @WilliamP_Sr
131 Followers 338 Following Love my family and God bless the USA 🦅. Whiskey on the rocks. In the fight of my life. I hate ALS!!!!
MAC Angels @MACAngelsNY
423 Followers 394 Following MAC Angels Foundation supporting families w/ ALS.
Dorsey Kate Barron @DorseyKateBarr2
489 Followers 2K Following
rich crocker @richcrocker
188 Followers 130 Following A while ago I rode bikes and did CrossFit. Ex Cop diagnosed with MND in July 2020 making the most of ill health retirement. Tweeting my adventures with #MND
MND Research Australi.. @MND_RIA
2K Followers 397 Following Motor Neurone Disease Research Australia has built & sustained MND research nationally for 40 yrs. MNDRA is the research arm of MND Australia.
Rita Sattler @RitaSattler
626 Followers 338 Following Professor of Translational Neuroscience, studying mechanisms of neurodegeneration in dementias and related disorders using human model systems
Lori Heller @HellerLori2018
63 Followers 189 Following “The thing I hated the most has become my purpose.” ALS Widow and advocate. Fighting for a cure.
Eileen Kelley @Eileen123Kelley
77 Followers 989 Following
Mike Fleming @mfleming143
572 Followers 5K Following 19 years of buy side experience. Now investing for my own account. CFA charter holder. Goldbug. Hobby = AvGeek. ALS advocate.
Jason Mast @Jasonmmast
4K Followers 3K Following Writing about science, medicine & business for @statnews Email me: [email protected]
Valerie Cullen @ValCulKol
2 Followers 26 Following
Andrew Lewis @AndrewL19437969
1K Followers 817 Following
Betty’s Brigade Fou.. @No_More_ALS
346 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & funding
Lauren Webb @webblauren
59 Followers 769 Following
Jess Lee @JessicaLee_RD
37 Followers 78 Following Director of Research @MNDoddie5. All views are my own.
CVV, PhD @cvandevelde75
461 Followers 901 Following Professor, ALS Researcher, #womeninSTEM, boy mom, and gin drinker. Working for the cause, not the applause. ECM.
NeuroSense Therapeuti.. @NeurosenseT
538 Followers 269 Following A Clinical stage Biotech company. Advancing novel therapy for ALS and neurodegenerative diseases. Nasdaq: NRSN $nrsn
Liza Birch 🚌 #Save.. @_holyspokes
4K Followers 4K Following Making policy on getting places @VolpeUSDOT. Building the human infrastructure that changes physical infrastructure at @pvdstreets. God is change.
Rachel Doboga @RachelDoboga
774 Followers 133 Following Writer, teacher. Dx w/ALS age 28. I advocate and raise awareness by blogging to show the reality of #ALS with humanity, vulnerability, and unflinching honesty.
sm @svrg72
11 Followers 124 Following Husband, part time engineer, full time ALS patient. Still hopeful about the future.
All is Well: Lessons @AllsWell333
619 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Mandi @RunningMama0522
2K Followers 1K Following
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Jean C9orf72 @Jeanc9orf72
1K Followers 855 Following C9orf72 gene carrier - advocate and leader for our community. Founding Chair, Genetic ALS & FTD: End the Legacy
I’m Dying To Tell Y.. @LorrisPodcast
1K Followers 869 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
Deb Paust @PaustDeb
1K Followers 724 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Becky Mourey @becky_mourey
634 Followers 318 Following Wife, mom, musician, lover of life, living with and fighting to end ALS.
Jaime Martin MD PhD @DrJaimeMartin
2K Followers 2K Following Director, Movement Disorders Neurology @Synapticure,Telemed, Research ❤️ #advocacy #teleneurology #telemedicine Tweets+views my own.
Shireen Hormozdi Bowm.. @NorcrossLaw
949 Followers 724 Following Attorney/Former Prosecutor practicing Personal Injury Law & Estate Planning. I ❤️ getting justice for clients & fighting for human rights #Nonpartisan
Nguyen Tran Minh Duc,.. @DuckyM2
191 Followers 2K Following Co-First Author of "A Consensus-Based Checklist for Reporting of Survey Studies (CROSS)" in the Journal of General Internal Medicine.
Ken Menkhaus @kemenkhaus
5K Followers 440 Following Professor of Political Science, Davidson College; Observer of Somali and Horn of Africa affairs; ALS advocate and person living with ALS
HopOnACure @HopOnACure
520 Followers 61 Following Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOv
Fernanda Cardoso @DrFeCardoso
437 Followers 520 Following Senior Research Fellow @IMBatUQ | PI @Cardosolab | Neuropharmacology | Pain | Neurodegeneration | Ion Channels | Venom research | Mentor | Mother and Wife
Briana Ondatje @calibri11941
122 Followers 746 Following Stem cell research, PhD student, traveling in my spare time, and trying to catch sports and concerts in between
JC @JC75408607
557 Followers 449 Following Diagnosed with ALS 3/30/22. Living life day by day while I try and process this journey.
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
DISORDER: The Rare Di.. @DisorderRare
949 Followers 217 Following Two rare disease dads took their films for Menkes Disease and USP7 & built them into a festival for all films on rare disease. https://t.co/Qjsl21HRH4
Joao Pereira @jdpereira
6K Followers 5K Following Interested in neurodegeneration, deep learning, organoids and iPSCs! Also mentoring and science careers! Scientific Director iPSC NeuroCore Yale University
Avril Mc Tague @avrilmctague
164 Followers 590 Following Physiotherapist interested in neurology and gerontology. PhD student in motor neuron disease. All views are my own. RT does not mean endorsement.
Corey McMillan (he/hi.. @PennBiNDLab
1K Followers 1K Following Bioinformatics in Neurodegenerative Disease (BiND) Lab - multimodal approaches to disease heterogeneity in ALS, FTD, AD and PART @ Penn. Tweets are my own.
L Brielmaier @BrielmaierL
481 Followers 464 Following Engineer, @IEEEBrain, IEEE EMB, PLWALS, prog-rock, “Scientists investigate that which already is. Engineers create that which has never been.” Albert Einstein
Chris McDermott @profcjmcdermott
1K Followers 496 Following Professor of Translational Neurology, SITraN, University of Sheffield. Co-Director, Sheffield MND Care and Research Centre. #MND #ALS Specialist
Danique Beijer @BeijerDanique
127 Followers 148 Following Postdoctoral Research Fellow at University of Tübingen studying genetic causes of rare ataxias
JaffreyLab @JaffreyLab
1K Followers 112 Following Uncovering new principles in #RNA biology #epitranscriptome #aptamers. Tweets by grads/postdocs
Matt Wild @marinemattcda
579 Followers 2K Following Family Man, Husband, former Marine, disabled Vet w/ ALS, Matt's Place Founder, Advocate #Uncrushablespirit, Adaptive Gamer, Escape from Tarkov ADDICT
Your ALS Guide @YourALSguide
386 Followers 64 Following A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...
Hornstein Lab @HornsteinLab
604 Followers 347 Following HornsteinLab @WeizmannScience | Mechanisms of Neurodegeneration | #ALS | #noncodingRNA | #phaseseparation | #neurogenetics | #biomarkers | computational biomed
Clive Svendsen @CliveSvendsen
840 Followers 107 Following Neuroscientist, stem cell biologist, translational researcher. All thoughts here are my own.
Michael Ward (he/him/.. @Michael_E_Ward_
2K Followers 354 Following Physician-scientist at the NIH. Leads a research team studying the biological underpinnings of neurodegeneration. Co-leads iNDI, a large stem cell initiative.
Rothstein Lab @Rothstein_Lab
974 Followers 429 Following Dr. Jeffrey Rothstein is a professor of neurology and neuroscience @HopkinsMedicine and is the founding director of @packardcenter. (trainee run)
Lori Heller @HellerLori2018
63 Followers 189 Following “The thing I hated the most has become my purpose.” ALS Widow and advocate. Fighting for a cure.
Rita Sattler @RitaSattler
626 Followers 338 Following Professor of Translational Neuroscience, studying mechanisms of neurodegeneration in dementias and related disorders using human model systems
Jason Mast @Jasonmmast
4K Followers 3K Following Writing about science, medicine & business for @statnews Email me: [email protected]
Andrew Lewis @AndrewL19437969
1K Followers 817 Following
CVV, PhD @cvandevelde75
461 Followers 901 Following Professor, ALS Researcher, #womeninSTEM, boy mom, and gin drinker. Working for the cause, not the applause. ECM.
NeuroSense Therapeuti.. @NeurosenseT
538 Followers 269 Following A Clinical stage Biotech company. Advancing novel therapy for ALS and neurodegenerative diseases. Nasdaq: NRSN $nrsn
Liza Birch 🚌 #Save.. @_holyspokes
4K Followers 4K Following Making policy on getting places @VolpeUSDOT. Building the human infrastructure that changes physical infrastructure at @pvdstreets. God is change.
Rachel Doboga @RachelDoboga
774 Followers 133 Following Writer, teacher. Dx w/ALS age 28. I advocate and raise awareness by blogging to show the reality of #ALS with humanity, vulnerability, and unflinching honesty.
sm @svrg72
11 Followers 124 Following Husband, part time engineer, full time ALS patient. Still hopeful about the future.
Joshua Elkington @elkingtonxy
25K Followers 4K Following Founder and General Partner at Axial @axialxyz
All is Well: Lessons @AllsWell333
619 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPA
Frontiers - Neuroscie.. @FrontNeurosci
74K Followers 3K Following Research and updates from all @FrontiersIn journals in the field of neuroscience. #openaccess
Matteo Pitteri @matteo_pitteri
83 Followers 177 Following PhD Candidate in the MND Lab @ The Florey 👨🔬
The Kobeissi Letter @KobeissiLetter
502K Followers 510 Following Official X account for The Kobeissi Letter, an industry leading commentary on the global capital markets. Email us: [email protected]
Raging Capital Ventur.. @RagingVentures
57K Followers 941 Following Commentary on investing, politics, tech, and start-ups. Not Financial Advice. Sign-up for free quarterly newsletter: https://t.co/6G64m7pEi0
Martina de Majo @MartinadeMajo
212 Followers 411 Following Alien with Extraordinary ability, Neuroscientist, love singing & eating. Opinions are mine.
Santiago @SantiagoWeek13
144 Followers 103 Following These 3 remain: faith, hope & love. The greatest is love. Love never fails. #photography #running #triathlon #refugees #EndALS
May Khanna @may_khanna
2K Followers 3K Following @UF Faculty & Assistant Dean of Innovation and Entrepreneurship. Mother of 3. Chemical biology. Member of @AcadofInventors. CSO Regenerix,CEO Eternum Analytics
Mindy Uhrlaub @MindyUhrlaub
159 Followers 169 Following https://t.co/4uNkZvnKfp. Author, Unnatural Resources. Familial ALS Warrior.
ITM Fundraisers @itmfundraisers
199 Followers 653 Following Hosting fundraising events in aid of Rob Burrow MBE & MNDA 💙🧡 email us for info and tickets: [email protected]
Elizabeth O'Leary @EROL637
86 Followers 414 Following ...love and peace... ...monica anne cecelia higgins...
lori andre @loriandre3
1K Followers 335 Following Mother of 3 boys, wife of Brian Andre who was diagnosed with ALS in 2016.
Many cheers to Ronenn Roubenoff for representing ETL, our movement for the millions globally at risk for inherited ALS and FTD, and his late wife @BarriFalk at the #WorldOrphanUSA conference!
That was the perfect day to be the last time I golfed. Thank you for reminding me that I was athletic at one time. Love you Brother!
@pjgreen with a routine birdie! #TorreyPinesSouth 4-23-2018
@MattWallace888 The horse's owner puts a prosthesis on his foot. His happiness is priceless! ❤️
Note that people with ALS in the US on Relyvrio as of April 4 should have a discussion with their ALS providers to discuss risks/ benefits of continuing and if they want to continue, they should contact the AMYLYX Care Team ( ACT).
When asked for their reaction to the poor phase 3 results for the drug AMX005—which has since been pulled from the market—#ALS specialists responded almost universally with one word: disappointment: bit.ly/3vTbYo2 #NeuroTwitter @JinsyMd @PaganoniMDPhD
Honored for the invite to provide the Neurology Year in Review for ALS at the American Academy of Neurology. Tried to fit as much as I could but time was limited. Made me realize the field is going through transformation and more collaboration than ever before! #AANAM
After careful thought and discussion with my family, I have decided to enter the 2024 College Football Transfer Portal as a graduate transfer. NIL offers over $250k will be considered.
"The most important element is determination. It's knowing that while the disease has only one direction to go, so do you. We do not give up, not today, not any day. You accept every moment for what it is and the victory of perseverance that it represents." -Sundeep 2020 #EndALS
Detection of pTDP-43 via routine muscle biopsy: A promising diagnostic biomarker for amyotrophic lateral sclerosis onlinelibrary.wiley.com/doi/full/10.11…
We are thrilled to share that @ALSTDI's CEO @FGVoneforty has been invited to join this year’s Termeer Fellows! He will join a group of 15 visionary leaders that the Termeer Foundation has identified as "poised to transform patient care through groundbreaking discovery."
Well done to @AmylyxPharma. Throughout the entire approval process, Amylyx has set a terrific example. They were honest in the AdComs, committed to a P3 and OLE, and kept their word through decisive action. This is the example of a truly committed pharma partner. BZ Justin & Josh
Today we shared an update on our next steps, including a process we’ve initiated to remove our ALS treatment from the market and provide free access to therapy for those who wish to stay on. These decisions were informed by people who will be impacted and engagement with…
Team Gleason getting $6 million in federal funding for ALS patients klfy.com/louisiana/team…
If I could I would summon Sundeep from the afterlife to advocate for ALS. He progressed too quickly to do so when he was here... and now he's not. ALS colors my life every day still. 1/2
And I would hide from ALS now, except that I promised myself daily as I watched him lose functions, many of which then became my duties (except that damn breathing part), that nobody should have to live like this. 2/2 #EndALS
So happy to see my friend and collaborator @KaraSpillerLab inducted into @aimbe! Fabulous researcher, mentor, and advocate! Congrats!!
The world is a much better place with this guy in it. Happy Birthday @SteveGleason !
Had some father family time for my birthday this morning. Thanks for a beautiful birthday morning Gray and Rivers and Kyle and momma. I’m so grateful for our time together. I love yall, and I love this crazy wonderful Life! Heaven in our midst.
Happy St. Patrick's Day! Which brewery is your St. Patrick's Day go-to? Let us know in the comments. Sláinte and may the luck of the Irish be with you today!
Proud to support the work @ALSTDI is doing! 💙
Meet the newest addition to the ALS TDI freezer family, "Hop!" We are so thankful for the support of @HopOnACure as they help us push ALS research forward. . Swipe to see "Hop" next to his new freezer friend, "Chilly Nelson."
The ALS Therapy Development Institute (@ALSTDI), @AnswerALS, and @Microsoft are pleased to announce a collaboration that will bring together the two largest existing clinical and omics data sets relating to ALS.
@BrielmaierL Certainly more UMN-focused work & targeting for ALS/MND now than ever before but remains understudied. I love the message of understanding the ALS/MND-specific nuances of systems rather than generically enhancing or dampening. Immune/inflamm approaches in ALS need this too IMO.
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