Deb Paust @PaustDeb
Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble Chicago Land Joined June 2019-
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Come join us! 👇 @Shankapotomas @KickenALSAss @Troy_W_Fields @LorrisPodcast @MACAngelsNY
Come join us! 👇 @Shankapotomas @KickenALSAss @Troy_W_Fields @LorrisPodcast @MACAngelsNY
Part 2 of CEO Howard Berman's recent interview with @PharmExec's Don Tracy is live now on their website where they talk about next steps for Coya 302. Watch the video at this link: pharmexec.com/view/coya-ther… $Coya #Coyatherapeutics #ALS #neurodegenerative
Do nothing for one minute. Take a minute, turn up the volume as we leave you this Sunday amid icebergs in the Southern Ocean off the Antarctic peninsula – icebergs rapidly melting as ocean temperatures rise. Videographer: Lee McEachern. cbsn.ws/4bmQOxZ
This month's Social Hour is coming up on April 30th! Social Hour is a great way to meet other ALS advocates without the pressure of an agenda or meeting goals. Come hang out, bring a friend -- and leave with some new ones! iamals.org/action/april-s…
Our paper is accepted. Please be on the lookout. We need to develop personalized medicine approaches for rare and heterogeneous diseases.
Come join us as we kick off ALS Awareness Month with two incredibly talented writers ! 📚 &🎶 #IAA4Lou #believeinacure💙
Come join us as we kick off ALS Awareness Month with two incredibly talented writers ! 📚 &🎶 #IAA4Lou #believeinacure💙
Lou Gehrig Day 2024. Plans are starting to shape up with the Detroit Tigers. If you want to be first to learn the what, when, and how to get tickets go to iamals.org/action/tigers2…. Join those in Michigan impacted by ALS for a fun day at @ComericaPark. Thanks, @tigers & @iamalsorg!
The Healey & AMG Center for ALS at Massachusetts General Hospital is thrilled to announce the completion of enrollment for Regimen F of the HEALEY ALS Platform Trial evaluating ABBV-CLS-7262 from Calico Life Sciences Read the full announcement: massgeneral.org/neurology/als/…
We are thrilled to share that @ALSTDI's CEO @FGVoneforty has been invited to join this year’s Termeer Fellows! He will join a group of 15 visionary leaders that the Termeer Foundation has identified as "poised to transform patient care through groundbreaking discovery."
Calling all medical, PT, and OT students and instructors: the Tim Lowrey Panel Series wants to bring people living with ALS to your classroom (virtually)! Don't miss this one-of-a-kind educational opportunity. Request a panel today: iamals.org/action/request…
AFFECTED BY ALS?@iamalsorg will display 6,000 flags with the names of those with ALS, those we’ve lost to ALS, & ALS gene carriers on the National Mall in D.C. in May. Link to submit name for flag: iamals.org/action/2024fla… Names need submitted each year! @ALSTDI @HopOnACure #als
Congrats Dan!! So well deserved. We ❤️ you!
Congrats Dan!! So well deserved. We ❤️ you!
The Peer Support Initiative is in need of current caregivers to serve as mentors within the program. If you are actively caring for someone with ALS and would like to share your knowledge with another caregiver who is new to ALS, apply to be a mentor: surveymonkey.com/r/IAA-Mentor
Join us at our Final Four Behan Strong Social at Blanco Cocina + Cantina in Phoenix. Come support @CoachBehanSJC in his fight against ALS. Can’t make it? See ways to support below. GoFund: gofund.me/29f510a1 Amazon list: amazon.com/registries/gl/… #EndALS
Know someone in the ALS community who goes above and beyond for the movement? Nominate them for the Sandy Morris Outstanding Advocate Award! Learn more about this award and several others: iamals.org/action/2024-co…
Please join me Wednesday at @Georgetown. Really excited to be in discussion with Paul Elie on #MLK and faith. georgetown.edu/event/faith-an…
Join me Thursday at the Princeton Theological Seminary for the 2024 Dr. Martin Luther King, Jr. Lecture patch.com/new-jersey/pri…
Congratulations to the phenomenal company of THE PENELOPIAD on the tremendous run of this special play. We are in awe of your talent & dedication to this production. We'd also like to thank our word-class staff & audiences for ensuring the success of this show. 📸: Liz Lauren
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Sarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Mandi @RunningMama0522
2K Followers 1K Following
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Seth Rotberg @Srotberg15
2K Followers 1K Following I help infuse the patient voice throughout drug development | #HuntingtonsDisease advocate | @Tedx Speaker | All views are my own
𝙼𝚊𝚢𝚎 𝙼.. @nowmayemusk9
39 Followers 1K Following Bestselling International Author #AWomanMakesAPlan 📖Doctor of Dietetics 👩🎓 Supermodel 😉💃 #ItsGreatToBe75 Agents⬇️
Andy Greenspon @andyman344
334 Followers 2K Following Researcher in quantum physics. Interests in science, policy, philosophy, and anything that can amuse to no end.
galcoolest @Galcoolest
66 Followers 1K Following
Ashlie @Ashlie259371
7 Followers 121 Following
Sea turtle lovers clu.. @seaturtle_uk
347 Followers 4K Following 1👉 Welcome @seaturtle_uk 2 🐢 We share daily #Seaturtle Contents 3 🐾 Follow us if you really love Sea turtle
Julie Suarez @epjjule
5 Followers 187 Following Wife,corgi mom,stepmother,aunt,baby sister,cousin and friend determined to help beat #ALS.Army brat! Texan (kinda).#ALSWarrior #EPSTRONG #GEAUXTIGERS
𝙼𝚊𝚢𝚎 𝙼.. @Nowmaye
40 Followers 219 Following Bestselling International Author #AWomanMakesAPlan 📖Doctor of Dietetics 👩🎓 Supermodel 😉💃 #ItsGreatToBe75 Agents⬇️
CallMeYoda @CallMeYoda1
391 Followers 1K Following Conversation this about. Label me not. I block those who can’t be civil. Block bimbo-bots and rage-aholics. Slava Ukraini 💙
Jesse Torres @jstorres
392K Followers 139K Following Husband - Dad - Author - Community Banker - https://t.co/d8wuSA7xN6 Contrib - Soccer Player - UCLA - Congressional Biz Person of Year - The Blockchain Banker ™️
alsHATER @HaterAlss
34 Followers 207 Following
Motor neuron disease @MND_ALS
354 Followers 276 Following
Anne Chen @AnneChenNeeNee
10 Followers 125 Following Active life, career, cheerful and optimistic personality
Chris Barnette (Percy.. @cbbmlb7755
318 Followers 3K Following A Dad with 2 great sons & a Husband to my Hot Wife Amber. I’m a political junky, big Mountaineer Fan & a former football coach
Clene Nanomedicine @CleneNano
762 Followers 165 Following Clene is committed to revolutionizing the treatment for people living with neurodegenerative diseases to restore and protect neuronal health.
Michael Johnson @summer88set
818 Followers 2K Following
Delia 🍭 @Delia__B5
3 Followers 607 Following Sеduсtive viхen seeks constаnt аnd fulfilling connесtions
Fernanda Cardoso @DrFeCardoso
437 Followers 520 Following Senior Research Fellow @IMBatUQ | PI @Cardosolab | Neuropharmacology | Pain | Neurodegeneration | Ion Channels | Venom research | Mentor | Mother and Wife
McTanea @TaneaMc33101
48 Followers 1K Following
Biohaven @biohaven
2K Followers 751 Following Biohaven is a modern pharmaceutical company that is guided by science and inspired to change the lives of people with unmet medical needs.
Beth Gabel @beth_gabel_27
73 Followers 53 Following #ALS warrior. Mom of 2 teenage boys. Diagnosed April 2023. ALS advocate and mentor. Love heavy metal music, painting and nature
martinez alberto @martine61286710
35 Followers 1K Following
Tokyo_Tengu @Tokyo_Tengu
4K Followers 5K Following Happily married patriot grandpa, USN vet, and VFW Life Member. I'm on a life journey with ALS and learning to deal with it. Idiots are blocked without warning.
Janet Stillhard @JanetStillhard
5 Followers 386 Following
SKYROS MALDIVES @SKYROSMALDIVES
18 Followers 400 Following Maldives Island Tour Operator Specialized in TRAVEL & TOURISM Leading International Tour Operator and Travel agent in the Maldives.
Tommy Maestas @tommym8
372 Followers 1K Following Obsessed with teaching others how the Central Nervous System controls movement.
Chris Tucker @Christuckeroff
55 Followers 670 Following This account was made by me @christuckerreal for my fans this account might go off soon it's mainly to acknowledge my fans for their love https://t.co/UDsLNbHDac
Britt Massei @brittmassei
177 Followers 417 Following Founder & CEO Whole in One Health. Bringing Health to the Information Age. Started with brain health @AlzMeterApp Seeking investor partners for The Big Build!
Dan Marlow @mung_nation
103 Followers 156 Following Trying to be the person I know I can be. ALS changed my life. Surrounded by girls.
Şükrü Koçak @krKoak99101
41 Followers 197 Following
Roseann Hickman @RoseannHickma15
16 Followers 14 Following Real Estate Agent, Hairstylist, Wife, Mom, Mema and ALS Warrior. #endALS
rebecca aaker @becky55906
29 Followers 611 Following
Kathy @Kathy7483672148
105 Followers 435 Following Married to the love of my life who is dying from 100% Fatal ALS,mama, grandmama, full time caregiver. Counting everyday with my hubby as a blessing. #ALSsucks
James Berry @JamesBerry53539
474 Followers 2K Following I love making friends here,and am here for a serious relationship,❤️❤️❤️❤️❤️❤️❤️❣️🌹
S/S @CS5135378048991
21 Followers 1K Following
James Copeland @Copel68400James
96 Followers 2K Following
Dale Barker @DaleBar19817978
4K Followers 6K Following Married, Christian, Army veteran, retired employment specialist. Love our Republic and will continue to stand united with conservative leaders.
150MND @150mnd
120 Followers 371 Following we are a team of friends aiming to raise £150k by walking 150 miles inspired by our great friend Rob who was recently diagnosed with MND. A Big Rugby fan
Muriel @muriel_elder_
161 Followers 3K Following
Lenore @Lenore688485
133 Followers 3K Following
Kelley Cyr @ToInfinity9008
10 Followers 100 Following Veteran, photographer, astronomer, cat whisperer, living with ALS.
Elin Adcock @elin_adcock
86 Followers 263 Following An ALS/FTD advocate and a vintage VW enthusiast, I am here to amplify voices, support caregivers, change healthcare policies and hoping to #endALS #fight2endALS
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Sarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Mandi @RunningMama0522
2K Followers 1K Following
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Chris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
ProJenX @ProJenX
36 Followers 31 Following
Derek Deprey @derekdeprey
23K Followers 16K Following I help you become the leader you’d want to follow | Author | Keynote Speaker | Leadership Coach & Facilitator | AAU Girls Basketball Coach @WisconsinLakers 🏀
Melinda S. Kavanaugh @MelindaSKav
174 Followers 125 Following Professor in social work at UWM, young caregiver/carer researcher and advocate, clinical social worker
Fernanda Cardoso @DrFeCardoso
437 Followers 520 Following Senior Research Fellow @IMBatUQ | PI @Cardosolab | Neuropharmacology | Pain | Neurodegeneration | Ion Channels | Venom research | Mentor | Mother and Wife
vicmaine #als @vicmaine05
58 Followers 55 Following Artist, lover, activist to the core, and and a newly minted wheelchair rights advocate who happens to have ALS.#ALSsucks
Johnathan CK @JohnathanCK1
254 Followers 60 Following Neurologist and Geneticist at University of Sheffield. Christian, climber, runner and chicken owner.
MND Research Australi.. @MND_RIA
2K Followers 397 Following Motor Neurone Disease Research Australia has built & sustained MND research nationally for 40 yrs. MNDRA is the research arm of MND Australia.
Motor neuron disease @MND_ALS
354 Followers 276 Following
Shawna Prince @shawna_prince
854 Followers 1K Following EMMY Award winning News Producer I Previously @ABCNews @CBSNews @FOXNews @NBCNews @Harpo I Currently Content Creator, Media Relations & Communication Strategist
Live Like Lou @LiveLikeLou4
784 Followers 446 Following Leaving ALS better than we found it #ONWARD #LiveLikeLou
Clene Nanomedicine @CleneNano
762 Followers 165 Following Clene is committed to revolutionizing the treatment for people living with neurodegenerative diseases to restore and protect neuronal health.
Ashley Lee @AshL1225
92 Followers 387 Following
Dan Marlow @mung_nation
103 Followers 156 Following Trying to be the person I know I can be. ALS changed my life. Surrounded by girls.
Roseann Hickman @RoseannHickma15
16 Followers 14 Following Real Estate Agent, Hairstylist, Wife, Mom, Mema and ALS Warrior. #endALS
Cal Ripken, Jr. @CalRipkenJr
40K Followers 34 Following Official Twitter of the Iron Man! Baseball Hall of Famer. Philanthropist. Entrepreneur. Tweets from CRJ Team are signed – CRJ, Inc.
Mind Matter Money @MindMatterMoney
161K Followers 49 Following X Growth Mentor | Grew my Twitter audience from ZERO to 500k in less than 2 years. 10x your X brand and online business ↓
Mind Money Notes @MMNotes_28
49K Followers 94 Following I'll help you transform your mind and build a life of health, wealth and happiness.
Wayne Larrivee @waynelarrivee
31K Followers 334 Following Play by play announcer, Packers Radio Network. Author #WallsPackers
Lance Allan @lanceallan
13K Followers 213 Following I work in the toy department. Proud husband, father of 3 and believer of 1. And yes wrestling is real to me!
Pete Spencer @PeteSpencer2
168 Followers 165 Following Director - Blue Water Middle College Academy. Fmr Principal - Academic Transitional Acad. Husband. Dad. Fan of 21st Cent. Learning and relevance in education.
Elin Adcock @elin_adcock
86 Followers 263 Following An ALS/FTD advocate and a vintage VW enthusiast, I am here to amplify voices, support caregivers, change healthcare policies and hoping to #endALS #fight2endALS
Tommy Maestas @tommym8
372 Followers 1K Following Obsessed with teaching others how the Central Nervous System controls movement.
Sue McMaster @QuestCommInc
635 Followers 1K Following Finding the beauty in every day. Living w/bulbar ALS since Sept 20. Proud Mom and kitty mama. #endALS
Michael Campbell @ObispoSouth
122 Followers 255 Following 'Life is What Happens To You While You're Busy Making Other Plans.' John Lennon #EndALS #Fight2EndALS
Vita Kalinsky @Vita_Victoria2
45 Followers 30 Following
Randy Rainbow @RandyRainbow
726K Followers 3K Following EMMY and GRAMMY Nominated Comedian, Actor, Singer, NYT Best Selling Author. Calm down, everything here is PARODY! TOUR tix link below! [email protected]
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
CDC @CDCgov
5.6M Followers 256 Following CDC's official source for daily credible health & safety updates from Centers for Disease Control & Prevention. Privacy/comment policy: https://t.co/9LbZmE3Wzg
Katy Golightly @chalked_farm
317 Followers 679 Following wife, mom, lawyer, CALS. everything I own to #endals and bring about the #energytransition.
The Nation @thenation
1.2M Followers 9K Following Founded by abolitionists in 1865. Committed to progressive journalism. Subscribe: https://t.co/iJh9hpMCwv.
Tom Fitz 👨🏻�.. @_wobblewobble
518 Followers 428 Following I’m just a guy fighting ALS the best I can, tweeting about all things programming 👨💻and my toddler 👼
Diana Rogers @DRogers0824
213 Followers 332 Following Proud mom to three, wife, sister, daughter, aunt, friend who is living with ALS.
Mara @mara_dolan
154 Followers 192 Following Fighting for my husband's life. Fighting for #NurOwn. Fighting to change the pattern of failure. ALS = same exact prognosis today as in the 1800s.
Mikko @MikkoLagerstedt
37K Followers 1K Following Photographer, capturing the emotion of places. Nikon Creator. Noble Artist • https://t.co/jXj04F4Q4W • https://t.co/ZbMiHtZwdk
Juliet Taylor @Julietworks
97 Followers 299 Following Passionate about ending ALS. Wife to an angel. Marketer, dog mom, equestrian, outdoor aficionado.
Megan Duffy @MeganDuffyPhD
4K Followers 5K Following Neuroscientist | @NIH NIA IRP ➡️ ERP | Aging & Neurodegeneration | Spartan PhD | Hoosier 🏀 | Neurospicy | Views: Mine/Personal Acct. | she/her
Matt Wild @marinemattcda
578 Followers 2K Following Family Man, Husband, former Marine, disabled Vet w/ ALS, Matt's Place Founder, Advocate #Uncrushablespirit, Adaptive Gamer, Escape from Tarkov ADDICT
Tina Cascio @tmcascio82
13 Followers 52 Following
Josh von Schaumburg @joshvons
127 Followers 621 Following Father, Husband, ALS Advocate, Accenture Technologist, Notre Dame / Chicago Sports Fan
Keith Mayl @DrMayl
537 Followers 659 Following MD, PhD. Expertise in neurodegeneration with a focus on ALS-FTD. Medical Director at Servier.
Lori Heller @HellerLori2018
63 Followers 189 Following “The thing I hated the most has become my purpose.” ALS Widow and advocate. Fighting for a cure.
Michael Wilson @MichaelWheelson
126 Followers 258 Following Husband and Dad. Mechanical Engineer. Jedi in Training, but still can't master art of itching my own face. ALS'ing since Feb. 2017.
Sue Sutter @PinkSheetSutter
3K Followers 478 Following Senior Editor, Citeline's Pink Sheet, covering US FDA drug and biologic regulation and approvals. Views are my own. @PharmaPinkSheet
Kpeterson @kpDodgers
8K Followers 8K Following Living With ALS, #ALS Advocate, Love the Dodgers & beach life,#Resistance #nostraws, #FBR,#BlueWave2024 #Vaccinated, #bluecrew
Yes we are gonna let the world know all about.@HopOnACure @zacbrownband
@robertrandolph I hope a lot of people hear about Johns ALS diagnosis to help spread the word. My older brother passed away a year ago after only a 2-1/2 year battle. It sounds like Johns progression is slower but he still needs a meaningful treatment which isn’t available to pALS right now.
It's here, it's here!! We just launched our Lou Gehrig Day 2024 landing page with everything you need to know about the festivities on June 2nd and beyond. Check it out and find an event near you: iamals.org/lou-gehrig-day…
🗓️💻 Are you registered for our webinar May 8th? Join us for an overview of the ALS Better Care Act. REGISTER TODAY! ➡️ us06web.zoom.us/webinar/regist…
May 1, 2024 (4PM PT | 7PM ET) Register: everythingals.org/events #EndALS #EverythingALS #ALS
Thank you @ALSTDI for an incredible discussion and tour this morning highlighting your work in ALS drug discovery and scientific research! We are thankful to partner in the quest to #endALS together. #livelikelou #alstdi #ALSresearch #lougehrigsdisease
My 4 week follow up appointment was today and I was able to take a peek at my new hardware. Big kudos to Dr. Villar and his team. I feel better than I have in a very long time! @SHHPENS thank you for the above and beyond care 😍
We got to see Good Together live in the flesh for the first time last week 😍😍😍 There are a limited number of signed vinyl and cds available for pre-order in our store so get em while they’re hot! And while the LP is hot PINK! 💗#goodtogether lakestreetdive.shop.redstarmerch.com
NYC what upppppp #goodtogether
I am honored to be part of this one of a life-time event. Chicago River Swim by A Long Swim!! @ALongSwim1 .@chicagoriver .@nbcchicago .@chicagotribune
Part 2 of CEO Howard Berman's recent interview with @PharmExec's Don Tracy is live now on their website where they talk about next steps for Coya 302. Watch the video at this link: pharmexec.com/view/coya-ther… $Coya #Coyatherapeutics #ALS #neurodegenerative
You won't want to miss next week's book talk with author Jonathan Eig and special guest John Driskell Hopkins! Tune in virtually on May 1st at 7pm. Sign up to attend and you'll get the Zoom link sent to your email: iamals.org/action/the-luc…
@alsadvocacy @HopOnACure @iamalsorg It’s pronounced Eye-g. 😅
@jonathaneig @HopOnACure @iamalsorg Thank you. You're a good egg.
I can’t wait for this conversation about Lou Gehrig with @HopOnACure and @iamalsorg. Sign up to join us via Zoom.
Breaking: this event will now feature special guest interviewer John Driskell Hopkins! Join us and @HopOnACure for this awesome book talk with Jonathan Eig and Hop about Eig's new book "Luckiest Man: The Life and Death of Lou Gehrig." #believeinacure💙 iamals.org/action/the-luc…
A Long Swim and Friends of Chicago River are about to make history in Chicago!! Swimming the Chicago River is going to be a reality again after 100 years! .@chicagoriver .@ALongSwim
Boston without Becky just isn’t the same. But we move onward.
Do nothing for one minute. Take a minute, turn up the volume as we leave you this Sunday amid icebergs in the Southern Ocean off the Antarctic peninsula – icebergs rapidly melting as ocean temperatures rise. Videographer: Lee McEachern. cbsn.ws/4bmQOxZ
baseball is the BEST
Logan Webb, in a Logan Webb giveaway jersey, signing for kids wearing Logan Webb giveaway jerseys
Seven-year-old Emouree Johnson from Scottsboro, Alabama, started a lemonade stand to fund a headstone for her mother, Karli, who died at 29. Amidst this tragedy, Emouree found her community rallying around her, turning life's lemons into hope. cbsn.ws/4aJiP2u
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