Pete Spencer @New_Spence
Retired educator. Current retailer at L.L.Bean and ALS advocate. Husband and dad who likes time on a trail, around a campfire and in a tent. Grosse Pointe Farms, MI Joined May 2021-
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I AM ALS’ Clinical Trial Team will host a monthly webinar to increase people’s understanding of clinical trials in general, as well as ongoing ALS clinical trials and trial finder tools. Join us for Clinical Trials 101, Thursday, May 9, 6 ET. iamals.org/action/clinica…
Lou Gehrig was quite a man with multiple legacies. Looking forward to this conversation. Thanks to Mr. Eig, Mr. Hopkins, and @iamalsorg for the opportunity.
Lou Gehrig was quite a man with multiple legacies. Looking forward to this conversation. Thanks to Mr. Eig, Mr. Hopkins, and @iamalsorg for the opportunity.
Lou Gehrig Day 2024. Plans are starting to shape up with the Detroit Tigers. If you want to be first to learn the what, when, and how to get tickets go to iamals.org/action/tigers2…. Join those in Michigan impacted by ALS for a fun day at @ComericaPark. Thanks, @tigers & @iamalsorg!
"Amylyx will continue to evaluate and share learnings from PHOENIX to help inform future ALS research." The work leading up to Relyvrio put cracks in the ALS rock. Things were learned. Thanks to all the staff at @AmylyxPharma. Keep it up! ⚒️🪨
"Amylyx will continue to evaluate and share learnings from PHOENIX to help inform future ALS research." The work leading up to Relyvrio put cracks in the ALS rock. Things were learned. Thanks to all the staff at @AmylyxPharma. Keep it up! ⚒️🪨
Thanks, Lorri!! Hope you and Jim have a great Opener!! Play ball!!
Thanks, Lorri!! Hope you and Jim have a great Opener!! Play ball!!
Great example of how new computer power and processes (call it AI) can be of tremendous benefit in ALS and other disease diagnosis. Careful access to and analysis of Electronic Health Records will help individuals and overall progress against ALS; i.e., Natural History Studies.
Great example of how new computer power and processes (call it AI) can be of tremendous benefit in ALS and other disease diagnosis. Careful access to and analysis of Electronic Health Records will help individuals and overall progress against ALS; i.e., Natural History Studies.
Women and men. Moms and dads. Grandmas and grandpas. Sons and daughters. Mountain climbers. Musicians. Cyclists. Baseball fans and players. From the country or the city. ALS doesn't discriminate. So many fine people lost to ALS in 2023. youtu.be/JKB8je-SFto?si…
#atriskalsftd #rarediseaseday The rare disease community , including ALS and FTD, needs support!
I agree, Michael. Insightful interview. He is not going to tilt at the ALS windmill but work to make the most of his journey. His delayed diagnosis struck me, too, because it's so common. His early Google search pointed in the right direction, but his docs just didn't think ALS.
I agree, Michael. Insightful interview. He is not going to tilt at the ALS windmill but work to make the most of his journey. His delayed diagnosis struck me, too, because it's so common. His early Google search pointed in the right direction, but his docs just didn't think ALS.
A lot to like. Consistency is critical. It’s important that she has more than a year to achieve her goals. Vote wisely this year.
A lot to like. Consistency is critical. It’s important that she has more than a year to achieve her goals. Vote wisely this year.
I lost a second good friend to ALS today. He wasn't an old friend, but he was a very good friend. I will miss his texts. I will miss our time sitting together chatting, getting to know one another. ALS brings caring to the surface and magnifies intimacy. For that I am grateful.
Participation in clinical trials may benefit the participant, but it WILL advance the science against ALS. Knowing what works, what doesn't, & what works for some is important. Clinical trials make that possible. Don't wait. Ask your neurologist.
Participation in clinical trials may benefit the participant, but it WILL advance the science against ALS. Knowing what works, what doesn't, & what works for some is important. Clinical trials make that possible. Don't wait. Ask your neurologist.
Looks like a wonderful resource for teachers to start young people on the path to career in science, or, equally important, an understanding and appreciation of how the process of science leads to greater understanding of the natural world and solutions to problems.
Looks like a wonderful resource for teachers to start young people on the path to career in science, or, equally important, an understanding and appreciation of how the process of science leads to greater understanding of the natural world and solutions to problems.
Been reflecting on the 2022 I AM ALS Clinical Trials Action Summit. Many good ideas shared to improve diversity & equity in trial enrollment. Summary here: iamals.org/als-action-sum…. Action being taken by @alsassociation here: als.org/blog/breaking-… 2 ALS orgs striking the rock!
Want to help a friend with ALS who is homebound over the holidays? 🤫🤫 Conspire w/ them to make a list, shop for the gifts, sneak ‘em into the house & under the tree so their loved ones will have surprises to open Christmas morning. Be a #SneakySanta w/ your buddy. 🎅🎄🎁
It is difficult to change common scientific misconceptions in young students; harder still when they are carried into adulthood. But at least there didn't used to be as many people working to purposefully reinforce the misconceptions. Thanks to @theNASEM for pushing back.
It is difficult to change common scientific misconceptions in young students; harder still when they are carried into adulthood. But at least there didn't used to be as many people working to purposefully reinforce the misconceptions. Thanks to @theNASEM for pushing back.
The fact that it is a GLOBAL WAR against ALS really hits home when tweets, streams, and links start flowing from the International Symposium. No white flags in sight. Thanks to all attending and involved w/ @ALSMNDAlliance! Trying to keep up with all the #’s. 🥵🙂
This is pretty incredible & the result of many hammer strikes on the ALS stone, many of which came from people who are no longer with us. To honor their work we must ensure ALL people with ALS are welcome and able to contribute to the repository. We got this, advocates!! 🔨🪨🌻🌻
This is pretty incredible & the result of many hammer strikes on the ALS stone, many of which came from people who are no longer with us. To honor their work we must ensure ALL people with ALS are welcome and able to contribute to the repository. We got this, advocates!! 🔨🪨🌻🌻
At the risk of getting political, did you know you are a constituent?! We're all constituents of our local legislators, & that give us power. Put your constituentive(?) power to use for important legislation impacting those with ALS. We need you!!
At the risk of getting political, did you know you are a constituent?! We're all constituents of our local legislators, & that give us power. Put your constituentive(?) power to use for important legislation impacting those with ALS. We need you!!
When your daughter is host comic at the Detroit House of Comedy this weekend. 😁❤️😂#BreakaLeg #SplitaRib #AllGrownUp
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Mandi @RunningMama0522
2K Followers 1K Following
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
alsHATER @HaterAls
1K Followers 967 Following als hater MM lover Impossible is an option One woman army
Sarah Parton (she/her.. @sarahkarpar
1K Followers 940 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
Troy Fields @Troy_W_Fields
676 Followers 238 Following Husband and father of 4 from PR #LIVINGwithALS in Tampa FL, Papi to 3 grandchildren and an ALS volunteer and advocate that bleeds USF green and gold.
Shayla Luangrath @LuangrathS3749
65 Followers 5K Following
Angeline Cominsky @AngelineCo10074
76 Followers 5K Following
Krystal Correl @CorrelKrys11773
96 Followers 5K Following
Latisha Candia @LatishCand
33 Followers 5K Following
Carla Maclellan @CarlaMacle90099
86 Followers 5K Following
S Elling @ellsbelles3
97 Followers 1K Following Girl mama, McCainiac, Arizona is home but I live in DC 🌵 tweets are rare & all mine.
Norah Delzell @DelzellNor9072
116 Followers 5K Following
Annie Mudget @an_mudge
37 Followers 5K Following
Trinidad Schiffner @TrinidadSc83583
71 Followers 5K Following
Cyndi Guziak @GuziCyn
63 Followers 4K Following
alsHATER @HaterAlss
34 Followers 207 Following
ابو براهيم @HHfhBbb146417
4 Followers 102 Following
Amy Zuchowicz @amzuchowicz
37 Followers 74 Following
Paul Wicks @PaulWicks
5K Followers 4K Following Paul Wicks, PhD. Vice President of Neuroscience at Sano Genetics
Ginger Hase @ha_ginge
9 Followers 2K Following
Monica Llanez @MonLlanez
44 Followers 5K Following
Belinda 🍭 @Belinda9593
3 Followers 527 Following Sехuаllу-сharged woman уеаrning fоr еtеrnal еncоunters
Mckenna Rissanen @MRissanen95625
27 Followers 5K Following
Shaymmo @Shaymmo125004
32 Followers 2K Following
Charisse Marriot @charis_marri
23 Followers 3K Following
Pia Toeller @pi_toel
46 Followers 5K Following
_m_elody @elody_m76620
2 Followers 360 Following
Roisin Speich @roi_spe
30 Followers 5K Following
Sun Aleo @sun_aleo5379
35 Followers 5K Following
Spring Hellinger @HellingerS80336
60 Followers 5K Following
Halli Neja @HalliNeja16281
31 Followers 5K Following
Deb Bellina @BellinaDeb
98 Followers 155 Following Lean Six Sigma Black Belt. Matt’s mom, advocating for people living with ALS today and people who will be diagnosed tomorrow, and the next day, and the next
Antonio Coelho @homobulla
94 Followers 4K Following
Mila Corsini @CorsiniMil43721
45 Followers 5K Following
Jonathan Brent M.D., .. @DrJBrent
278 Followers 1K Following
Keesha Litka @keesha75748
35 Followers 5K Following
Patient Worthy @PatientWorthy
8K Followers 7K Following We're a resource for engaging, informative content and rare patient news, well done.
Dan Marlow @mung_nation
103 Followers 156 Following Trying to be the person I know I can be. ALS changed my life. Surrounded by girls.
NURO CORP. @nuro_corp
686 Followers 3K Following One of the leading manufacturers of Neurotechnology.
DottyJarels @DJarels56535
142 Followers 2K Following
150MND @150mnd
120 Followers 371 Following we are a team of friends aiming to raise £150k by walking 150 miles inspired by our great friend Rob who was recently diagnosed with MND. A Big Rugby fan
Kathy @Kathy7483672148
105 Followers 435 Following Married to the love of my life who is dying from 100% Fatal ALS,mama, grandmama, full time caregiver. Counting everyday with my hubby as a blessing. #ALSsucks
Stilethus @stilethus79832
14 Followers 555 Following
Willy @WillyGrant
4K Followers 5K Following Digital Maven. Married to @GlennGGrant who is battling #ALS. Corgi mom, BBQ, art & books. Punk. KCBS Judge. Born in #YVR. Lives in #YEG #GoodTwitter
Dawn Love @LoveDawn66616
74 Followers 3K Following
Elin Adcock @elin_adcock
86 Followers 263 Following An ALS/FTD advocate and a vintage VW enthusiast, I am here to amplify voices, support caregivers, change healthcare policies and hoping to #endALS #fight2endALS
Gwen Gotsch @MsGotsch
188 Followers 629 Following Writer, editor, singer, musician, thinker, theater director, mom, knitter. Mother of a son who died of ALS.
彼岸 @hongxu113917
34 Followers 215 Following
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Sarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Mandi @RunningMama0522
2K Followers 1K Following
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
Doug Butchart @butchart_doug
369 Followers 150 Following My wife has ALS. She was diagnosed in November of 2017. We are trying to stay informed about the disease and live our life the best way we can. Enjoy living.
Beth Gabel @beth_gabel_27
73 Followers 53 Following #ALS warrior. Mom of 2 teenage boys. Diagnosed April 2023. ALS advocate and mentor. Love heavy metal music, painting and nature
John Hartford @johnhartford_
466 Followers 192 Following Official Twitter account of https://t.co/H3JLehF0OX
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Greensky Bluegrass @campgreensky
31K Followers 2K Following Americana/Grass/Rock outfit est. 2000. New Album 'Stress Dreams' out now! ‘top notch songwriting and musicianship' - American Songwriter
Katy Golightly @chalked_farm
317 Followers 679 Following wife, mom, lawyer, CALS. everything I own to #endals and bring about the #energytransition.
Lee Millard @onein300
2K Followers 901 Following 1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
L Brielmaier @BrielmaierL
481 Followers 464 Following Engineer, @IEEEBrain, IEEE EMB, PLWALS, prog-rock, “Scientists investigate that which already is. Engineers create that which has never been.” Albert Einstein
Erika Poling @erika_poling
467 Followers 44 Following
TeamJacobWV @TeamJacobWV
805 Followers 307 Following Jacob Harper, 24, diagnosed with ALS in March, 2022! Fighting for a cure through a clinical trial at Ohio State University! "Genetic FUS-Gene Mutation" (P525L)
myTomorrows @myTomorrows
2K Followers 3K Following myTomorrows is a platform that links physicians and their patients facing unmet medical needs to treatments in development worldwide
Alexander S. Vindman .. @AVindman
952K Followers 2K Following Dad. Spouse to @natsechobbyist. Vet. NYT Best-selling Author. Ex NSC/WH Staff. Senior Advisor @votevets. Dr. & Senior Fellow, SAIS, JHU. 🧵 @alexander_s_vindman
Ruben van Eijk @rpavaneijk
482 Followers 117 Following MND researcher interested in clinical trial methodology | MD | PhD | MSc | Parttime cyclist
Andrew Weissmann (wei.. @AWeissmann_
364K Followers 2K Following Co-host of @MSNBC podcast "Prosecuting Donald Trump;” author of 2 NYT bestsellers "The Trump Indictments" and "Where Law Ends: Inside the Mueller Investigation”
JohnDriskellHopkins @johndhopkins
9K Followers 1K Following Musician, Actor, Husband, Daddy, Biker, Georgian, Water Lover, Founding member - Zac Brown Band - NEW Christmas Album available on my site.
Eva Feldman, MD, PhD @EvaFeldmanMDPhD
1K Followers 333 Following @umichmedicine neurology, NeuroNetwork for Emerging Therapies, ALS Center of Excellence, Brain Health, Diabetes Complications-Views are my own
Tous En selles Contre.. @associationTECS
66 Followers 217 Following Association créée par 5 patients touchés par la SLA. French ALS research association created by 2 cALS and 3 pALS #als #microbiote #maladiedecharcot #sla
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
CaringGuide @CaringGuide
57 Followers 136 Following CaringGuide is a nonprofit organization that seeks to match caregivers with mentors and resources to help them find their greatness while caring for a loved one
layne oliff @layneo5
62 Followers 154 Following
@hart_thom @hart_thom
353 Followers 582 Following Health advocacy. #EndALS Raise #mentalhealth awareness. #FightStigma, be kind to each other. @wittenberg @MiamiLawSchool alum. Views entirely my own. He/him.
Margie Buck @MargieBuck15
247 Followers 40 Following Wife, Mom, Grandma, and an ALS advocate for my brother Matthew
American Neurological.. @TheNewANA1
11K Followers 2K Following ANA is a professional society of academic neurologists and neuroscientists. Interested in becoming a member? Visit https://t.co/PT9HNOkmsG to learn more!
Polyplexus.com @polyplexors
695 Followers 543 Following An open research acceleration platform that disrupts the innovation process to connect your organization to the future. © 2024 Polyplexus Holdings LLC | An H&S
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Randy Watt @jracoach
503 Followers 333 Following Husband/ dad with an amazing family and now an ALS warrior. #itsnotmytime. Do not go lightly into that good night. My dogs is a beauty.
Neurology Today @NeurologyToday
64K Followers 3K Following The official news source of the American Academy of Neurology, published by Wolters Kluwer.
American Academy of N.. @AANmember
43K Followers 1K Following The official account of the American Academy of Neurology.
HopOnACure @HopOnACure
520 Followers 61 Following Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOv
Hoxeyville Festival @hoxeyville
1K Followers 239 Following August 18-20 an epic music festival weekend held on 85+ acres surrounded by Manistee National Forest. Lineup, tickets & details at https://t.co/1FfbgfPTBu
Paul Wicks @PaulWicks
5K Followers 4K Following Paul Wicks, PhD. Vice President of Neuroscience at Sano Genetics
EndTheLegacy @End_The_Legacy
327 Followers 65 Following Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Dan Tate @dantate2
631 Followers 869 Following FTP OG, I Am ALS Board, fighting ALS, “Democratic Party” not “Democrat Party”, words matter otherwise why use them.
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
ALS Hope Foundation @ALSHF
3K Followers 610 Following The mission of the ALS Hope Foundation is to make a difference in the lives of people living with ALS through Care, Research and Education.
Morris R1 Crew @R1_Crew
274 Followers 365 Following Faster & farther🌻 Share Your ALS Clinic Experience:https://t.co/C6jj5wYmQb
Gia @giapolo86
610 Followers 169 Following hell hath no fury like a daughter fighting for her father's legacy #endALS #iamALS #actforALS
Molly Tuttle @mollytuttle
13K Followers 191 Following New album "City of Gold" out now!! https://t.co/yvRKnkpjyq
Billy Strings @BillyStrings
69K Followers 1K Following
Sarah Parton (she/her.. @sarahkarpar
1K Followers 940 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
Brian Andre @BrianAn83164142
113 Followers 23 Following Living with ALS. Father of three, husband to one. Grandfather of Dylan. Wicked backhand.
Troy Fields @Troy_W_Fields
676 Followers 238 Following Husband and father of 4 from PR #LIVINGwithALS in Tampa FL, Papi to 3 grandchildren and an ALS volunteer and advocate that bleeds USF green and gold.Honest to Pete, I don’t understand the unconditional hatred some have for DEI programs. I just don’t get it. iamals.org/action/educate…
I AM ALS’ Clinical Trial Team will host a monthly webinar to increase people’s understanding of clinical trials in general, as well as ongoing ALS clinical trials and trial finder tools. Join us for Clinical Trials 101, Thursday, May 9, 6 ET. iamals.org/action/clinica…
Come join us as we kick off ALS Awareness Month with two incredibly talented writers ! 📚 &🎶 #IAA4Lou #believeinacure💙
Breaking: this event will now feature special guest interviewer John Driskell Hopkins! Join us and @HopOnACure for this awesome book talk with Jonathan Eig and Hop about Eig's new book "Luckiest Man: The Life and Death of Lou Gehrig." #believeinacure💙 iamals.org/action/the-luc…
Anyone going to the Pittsburgh Pirate's game in June for Lou Gerhig Day, my granddaughter, was asked to be on the field to say "Play Ball." We will be there with Live Like Lou. #ALS Awareness and baseball.
I can’t wait for this conversation about Lou Gehrig with @HopOnACure and @iamalsorg. Sign up to join us via Zoom.
Breaking: this event will now feature special guest interviewer John Driskell Hopkins! Join us and @HopOnACure for this awesome book talk with Jonathan Eig and Hop about Eig's new book "Luckiest Man: The Life and Death of Lou Gehrig." #believeinacure💙 iamals.org/action/the-luc…
Come join us! @LiveLikeLou4 @New_Spence @Shankapotomas @KickenALSAss @Bob @HopOnACure @tptobin @No_More_ALS @KylanMorris1 @JackSil24
The Lou Gehrig Day Team has been hard at work on their Library Awareness campaign, and they've partnered with @LiveLikeLou4 to bring an informative webinar to the Grayslake Library! Learn more & sign up: grayslake.librarycalendar.com/event/lunch-an…
@ScottDorsey @limpbroozkit @CaitlinClark22 @salesforce @IndianaFever @IndianaFever needs to have a @limpbroozkit End ALS night! I remember when @Catchin24 did a gr8 ice bucket challenge. And did you know that Larry Bird's mother died from ALS? As did @TeriMoren 's mom. See where we could go with this? Boom baby.
Listen Up: Emerging Vocal Biomarker Could Aid ALS Drug Development | BioSpace biospace.com/article/emergi… #jobs
Dear @sandymorris333 I was with your daughter this morning. You were here with us! I miss you, I love you.. let’s cure ALS!!
Is it just me, or does this entire page feel like it is cold & uncaring? clene.com/eap/ Last October they were granted $45.1mln to support an ALS EAP.
So beyond excited to have won best weathercast for market 3 from the Michigan Association of Broadcasters! It’s a tremendous honor and I’m forever grateful for the opportunities I have received.
Last night, my heart was so full ❤️. We had movie night at home. My son always wants mommy but he sat on my lap and we played together all night. #NotTodayALS #FatherSonTime #HappyDad
Read. Watch. Smile. 👇 Happy opening day Jim Scott! WTG @LorrisPodcast! Have a wonderful day & thanks for spreading ALS awareness and ❤️ today! ⚾️ @michaeliamals @New_Spence @melissamaria510 @No_More_ALS @GoGala__Games @LiveLikeLou4
Reds Parade ready! We love Jim Scott! Go @Reds! Join in: wlwt.com/article/reds-o… @700wlw @WLWT @iamalsorg @HopOnACure
Reds Parade ready! We love Jim Scott! Go @Reds! Join in: wlwt.com/article/reds-o… @700wlw @WLWT @iamalsorg @HopOnACure
Finally, after nearly a year since I first had measurements for a ramp and over 45 phone calls, it is scheduled to be installed tomorrow. #ALS has made stairs too challenging, and I have not made the 3 steps many times. I'm getting some dignity back tomorrow.
How a Canadian AI program is helping doctors detect early symptoms of ALS /via @globeandmail theglobeandmail.com/life/adv/artic…
@bsw5020 This is fantastic news! It’s well deserved.
This is the moment that we first found out about the amazing grant from Mackenzie Scott and her incredible foundation. I am so proud of the amazing IAA staff and community. As you will see, disbelief turns into happy tears. Today, I cannot stop smiling.
From time time to time, I share this. More so, for those just beginning life with ALS.
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