Dr. Stacy Lewin @FarberStacy
Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior Joined March 2015-
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Powerful in every sense of the word. Read this and pay attention.
Powerful in every sense of the word. Read this and pay attention.
Thank you to the Bellina family for fighting for #NurOwn! @johnthune @ChuckGrassley @SenJoniErnst @SenatorRounds @BartBaker @sabrevaya @dantate2 @RandyFeenstra
Finally, we will be joined by Maxwell Wright, Legislative Assistant, for Congressman @KenCalvert (CA-41), of the US House of Representatives.
Beautiful night for a Phillies win, and raising awareness for ALS! We made it onto NBC sports! We need to stay loud, and keep moving the needle forward! @Phillies @bsw5020 @sabrevaya @iamalsorg
So incredibly inspired by Brian, Sandra and their team and all of the amazing people we met in DC for ALS Awareness. I learned so much from everyone and am so grateful to have been in person with all from around the country that I have only known virtually. ❤️❤️
@buitengebieden Our new family member....❤❤
Inspired by @sabrevaya Not Today ALS!
.@FrankPallone thank you for your leadership today hosting a congressional hearing with the @US_FDA. We will continue to work alongside you until access to treatments and cures are made real for everyone living with ALS.
.@RepAnnaEshoo thank you for your leadership today hosting a congressional hearing with the @US_FDA. We will continue to work alongside you until access to treatments and cures are made real for everyone living with ALS.
European Commission: Early access to treatments for ALS chng.it/sZjQwGsG via @change_es
ナウル共和国政.. @nauru_japan
484K Followers 246K Following ナウル共和国政府観光局日本事務所の公式🇳🇷総人口 約一万人の南太平洋の国🇳🇷フォロバ100%（時間かかります）🇳🇷#ナウルが名売る #ナウラー #ナウルなう #ありが島ナウル島 #気にナウル 🇳🇷 https://t.co/kCai1b1kvy
S Elling @ellsbelles3
98 Followers 1K Following Girl mama, McCainiac, Arizona is home but I live in DC 🌵 tweets are rare & all mine.
ᴊᴀɴɪᴇ🫧 @plainJaniexx
2K Followers 2K Following you can’t have everything, where would you put it? #GoTiges #FightMND #FuckALS #Fight4Jon 💛🖤
Ashlie @Ashlie259371
7 Followers 122 Following
Julie Suarez @epjjule
7 Followers 189 Following Wife,corgi mom,stepmother,aunt,baby sister,cousin and friend determined to help beat #ALS.Army brat! Texan (kinda).#ALSWarrior #EPSTRONG #GEAUXTIGERS
Christian Marquez @Christianmarq77
223 Followers 3K Following
Andy Greenspon @andyman344
327 Followers 2K Following Researcher in quantum physics. Interests in science, policy, philosophy, and anything that can amuse to no end.
Brain & Environment S.. @BrainEnviro
107 Followers 482 Following A day long symposium to uncover the influence of environmental toxins on brain disorders. May 20, 2024 | Washington, DC
Elon Reeve musk xx @muks_xx27114
509 Followers 6K Following I'm Elon Reeve muks the owner of Twitter and CEO of Tesla motors 🚘 💰💰 investment 💬 space x☄️ just DM ME HERE 💬💬
Travis Kinsey @KinseyKin19985
2 Followers 11 Following
NURO CORP. @nuro_corp
687 Followers 3K Following One of the leading manufacturers of Neurotechnology.
MitoSense @MitoSenseInc
814 Followers 761 Following "Harnessing the Power of Mitochondria to Fight Disease" ™️ such as ALS, Alzheimer’s, and Parkinson’s.
Maryanne Watson, Ph.D.. @MaryannefromPla
86 Followers 632 Following Board Certified Couple and Family Psychologist. Works at Maryanne Watson, Ph.D., PC
Amy Zuchowicz @amzuchowicz
37 Followers 74 Following
Melissa Sweeney @MissyASweeney
46 Followers 1K Following
Merit cudkowicz @MeritCudkowicz
1K Followers 875 Following
Tim Lowrey @gatortimbo
451 Followers 639 Following Grateful and blessed to be married to Emily Wester Lowrey, UF Pharmacy '92, Buffalonian, Diehard Gator, Home remodeler, Avid reader of various, living with ALS
Joan @joanmiller37
255 Followers 3K Following
Mutlu Kuyucu, MD, Neu.. @KuyucuMD
4 Followers 22 Following
Chris Scandaglia @ChrisScandaglia
941 Followers 5K Following https://t.co/VTII0I4qsa President, in memory my grandfather where I have worked w AROD&CANO other NYY raised $10310 ALS widow, $4612 ALS widower & $2505 for ALS widow.
Kathy @Kathy7483672148
108 Followers 435 Following Married to the love of my life who is dying from 100% Fatal ALS,mama, grandmama, full time caregiver. Counting everyday with my hubby as a blessing. #ALSsucks
Kelley Cyr @ToInfinity9008
10 Followers 100 Following Veteran, photographer, astronomer, cat whisperer, living with ALS.
Elin Adcock @elin_adcock
87 Followers 263 Following An ALS/FTD advocate and a vintage VW enthusiast, I am here to amplify voices, support caregivers, change healthcare policies and hoping to #endALS #fight2endALS
Lee @LeeWaab
16 Followers 721 Following
Cathy Santerre @catsanterre
102 Followers 756 Following Pro-choice!!! LGBTQ2+ supporter🏳️🌈. NOT a Trump fan🤢.🌼
JY @janemyorke
24 Followers 397 Following
garbanzo @Barefootlotus
951 Followers 1K Following Child of God - Protector of ALL children - MS stem cell recipient
𝔻𝕚𝕤𝕒𝕓�.. @PeterGalavan
1K Followers 2K Following Using humor to break the ice and make light of your situation can be a great way to put others at ease and help them feel more comfortable around ! #als #iamals
Dana Little @Dana_Little1
94 Followers 499 Following Real estate agent, Girl Scout Service Unit leader & Lifetime Girl Scout, Service Dog puppy raiser, proud wife & mom.
Michelle Thompson @MeeshThompson
111 Followers 830 Following
rebecca aaker @becky55906
29 Followers 611 Following
StampOutMND @StampOutMnd
315 Followers 1K Following Charity Fundraiser For The Motor Neurone Disease Association since 2015
ALS TX DAD @AlsDads
2K Followers 893 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Lzubach @Lzubach
96 Followers 1K Following
Peternenad @Peternenad44640
71 Followers 687 Following Prime Minister Of Defense 💯 Faithfulness And Honest 👏
Rebecca @Rebecca26340155
102 Followers 3K Following
Lincoln @Lincoln732609
0 Followers 15 Following Do not wait for opportunities, and to create opportunities
Ajay Sampat, MD @Sampat_md
474 Followers 37 Following Father, husband, son, and brother. Clinical educator and neurologist. Person living with ALS.
Jonathan Brent M.D., .. @DrJBrent
269 Followers 1K Following
Norman MacIsaac @NormanMacIsaac
1K Followers 1K Following #ALS / #MND ambassador, writer, advocate, TEDx speaker ... fighting for access to treatment and services. Author of "The Best of the Worst News"
Maceo Carter @MaceoCarter
929 Followers 553 Following Father, Husband, UNC Tarheels Fan, Sibling, Living with ALS. #MelanatedpALS&cALS
MitoSense @MitoSenseInc
814 Followers 761 Following "Harnessing the Power of Mitochondria to Fight Disease" ™️ such as ALS, Alzheimer’s, and Parkinson’s.
STAT @statnews
165K Followers 5K Following Reporting from the frontiers of health & medicine. Sign up for any of our 10 free newsletters here: https://t.co/CBx3GZBv31
Shirlyn Adkins @ShirlynAdkins
889 Followers 738 Following @AANEMorg Executive Director of the AANEM & American Neuromuscular Foundation- tweeting items related to neuromuscular and electrodiagnostic medicine.
American Neuromuscula.. @AmNmFoundation
450 Followers 267 Following With your help, the American Neuromuscular Foundation (ANF) can fund research that will improve the lives of patients with neuromuscular diseases.
Hannah @radicavaqueen
1K Followers 558 Following Pretty obviously not affiliated with MT Pharma. Tweets are my own. (she/her)
Norman MacIsaac @NormanMacIsaac
1K Followers 1K Following #ALS / #MND ambassador, writer, advocate, TEDx speaker ... fighting for access to treatment and services. Author of "The Best of the Worst News"
Tim Shaw @TShawsTruth
12K Followers 283 Following NFL football player. Titans, Panthers, Jaguars, Bears. Award winning author - Blitz your Life & On Turf as it is in Heaven. ALS Warrior. MBA. Entrepreneur. TEDx
Sheree Paolello WLWT @ShereeWLWT
32K Followers 3K Following Cincinnati girl💗Mom💗Animal Lover💗News Junkie💗Emmy & Edward R. Murrow award winning Anchor📺 Links/RTs aren’t endorsements. Opinions are my own.
Warren Schiffer @Wingsoverwallst
2K Followers 2K Following Join us 2 cure ALS (Lou Gehrig's Disease)! Cofounder of MDA's Wings Over Wall Street®, widower because of ALS (love & miss you Toni), recruiter of ALS Warriors.
Prilenia @PrileniaTx
2K Followers 244 Following Clinical stage biotech company focused on developing novel treatments for neurodegenerative and neurodevelopmental disorders
Beth Davis @DavisFarmBeth
228 Followers 190 Following
gina Gibson @ginaGib68993499
104 Followers 87 Following
Grainne McAnee @grainnemcanee
918 Followers 2K Following Derry Girl, DCFC fan, mum & step-mum of 4 girls, 1 cat and 1 wee puppy, home schooling 1 teen, interested in joy, mental health, making the world a better place
Tavares Speer @TavaresSpeer
439 Followers 204 Following Husband, Dog Dad, Former Business Analyst & FSU Alum. I was dx w/ #als 10/4/18. Still fighting. #alsfighter #alsawareness #Endals
Carol Elsen Godfrey @caroljgodfrey
313 Followers 603 Following cares intensely about making lives better ... thru education, thru inclusion & thru advancing treatments & cures for ALS! Wife to Gary Godfrey, @garygodfrey25
Anne McIntosh @annemcintosh241
129 Followers 550 Following Mom, Retiree, ALS widow. Leg Affairs Volunteer with https://t.co/uM0LQqcIJB
Stacy Lindborg @StacyLindborg
97 Followers 124 Following
Matt Wild @marinemattcda
579 Followers 2K Following Family Man, Husband, former Marine, disabled Vet w/ ALS, Matt's Place Founder, Advocate #Uncrushablespirit, Adaptive Gamer, Escape from Tarkov ADDICT
Sara Feldman @saritaapril
625 Followers 524 Following Physical Therapist, Assistive Technology Professional and Evaluator for clinical trials at the MDA/ALS Center of Hope.
Jackson @lifewithALS
1K Followers 699 Following Mum of 2 wonderful boys. 3 cats. Diagnosed August 2022 with ALS determined to fight and stay strong until a cure is found. Forever hopeful 🧡💙🧡💙
Shelley Baumgartner @6baums
87 Followers 276 Following Army Veteran, Nurse Practitioner, Wife, Mother of 4, Patriot!
Ken Kowalski ❎ @ALSSurvivorKen
666 Followers 574 Following #ALSsurvivor Since 2007 & Super-Cool (kidding) 😎 ALS Activist/Influencer/Futurist/Non-Victim "Never give up!" https://t.co/zWZjLU5Kmi 🏄♂️🚵♂️🏂🤙
My ALS World @myalsworld
556 Followers 552 Following I was diagnosed with ALS / MND in May 2019. I'm 44. he/him. Now part time Software Developer due to #ALS #MND
Amanda Pardee @amandajpardee
1K Followers 2K Following Mother, friend and ALS Warrior....Raising Awareness for ALS ( also known as Lou Gehrig's disease) ~ What Would You Do While You Still Could~
Dave Stanley @TheSteemer
935 Followers 992 Following Rest in Peace my Queen. Lost my wife of 27 years to ALS on Jan 6, 2020. Advocate for ALL people battling this shitty disease. My heroes are Warriors and cALS.
Ajay Sampat, MD @Sampat_md
474 Followers 37 Following Father, husband, son, and brother. Clinical educator and neurologist. Person living with ALS.
Michael @mpabull
635 Followers 331 Following
Courtney D. Lynch, Ph.. @Doc_Courtney
4K Followers 2K Following Associate Prof of OBGYN & Epidemiology @OhioStateMed & @OSUPublicHealth. AE @PPE_Journal. @JohnsHopkinsSPH and @NICHD_NIH trained. Views are my own.
John Adams MND Warrio.. @JohnAda10163823
11K Followers 10K Following MND Warrior fighting to find a cure @mnd lifetime WBA supporter @WBA https://t.co/jGbYyoODnu?
MattsPlaceFoundation @JoinMattsPlace
984 Followers 4K Following Provide accessibility, housing and support to families battling ALS throughout ID, MT & WA #uncrushablespirit #als
Bart Baker @BartBaker
928K Followers 171K Following I stopped aging at 25 🛑 FUCK ALS 🛑 Crypto tweets & RTs are NFA DYOFR 🛑 I don’t do social media anymore anywhere so don’t email me 🛑 this app sucks ass
Julie Palekas 🇺�.. @jpalekas
475 Followers 565 Following Living, moving and having my being in Him. Wife, Mom and friend...
FU-ALS @APPROVENUROWN1
104 Followers 245 Following fdas-refusal-to-file-letter-nurown-recipients-call
AnneeK @anneek10s
375 Followers 457 Following God is bigger than #ALS, dx in 2022, Married to the love of my life, Mom and Grammy, Golden retriever lover #bourbonlover #FightlikeAGirl #ALS #ALSWarrior
Ted McDaniel @TedMcDaniel1
70 Followers 347 Following Coach and Co-founder of the Shenandoah Valley Mavericks Fastpitch Travel Softball Team. Retired from the day job! Widower because of ALS.
Tal Gazanda @Tal_Gazanda
137 Followers 363 Following
Carmel Mahon @MahonCarmel
431 Followers 896 Following Retired Medical Scientist specialising in Clinical Chemistry. Plenty of time to enjoy my garden, baking, dabbling in art and enjoying my wonderful grandsons.
Rep. Andy Harris, MD @RepAndyHarrisMD
31K Followers 810 Following Proud to serve MD-01 | Member of @HouseAppropsGOP + @FreedomCaucus | Co-chair of House Pro-Life Caucus | Physician, Navy Vet, Father and Husband
Amy Carraway @amychelle69
1K Followers 3K Following Music lover, college football fanatic. good intentions. Committed to saving the monarch butterflies. ink pen hoarder. Fight to end ALS. #hookem
Ken M @kjmark
137 Followers 689 Following Chiefs, Yankees and golf fan. Hoping ALS patients get access to needed treatments.
Bart Barker @BartBarker
479 Followers 2K Following Retired local government executive, elected official, technology executive, marketing specialist, and journalist. Utah football fan.
Charlie Bird @charliebird49
69K Followers 36 Following Journalist and Broadcaster. On April 2nd I am climbing Croagh Patrick for Pieta House and the Irish Motor Neurones Association.
Katy Golightly @chalked_farm
318 Followers 678 Following wife, mom, lawyer, CALS. everything I own to #endals and bring about the #energytransition.
CBS Evening News @CBSEveningNews
425K Followers 2K Following The official account of The CBS Evening News with @NorahODonnell, the longest-running evening newscast. Text Norah: (202) 217-1107
Jim Plews-Ogan @drjpo
398 Followers 251 Following retired house call doctor, living with Mr. ALS, advocate with https://t.co/d4uwDcoWRO, my blog "Offering Kindness" now at our website
Carmen @cespina_carmen
18 Followers 96 Following
I am so fortunate that most of my friends are still in my life. I know that is not the case for a lot of people with als. I have two friends visiting me from Calgary.. one today and one on Saturday. I am excited to see them but can't help but feel a little self-conscious.
Anyone with ALS who has a trach & ventilator, please make sure that you ALWAYS have an Ambu bag relatively close by. Have your caregiver practice attaching & using it in case of ventilator failure. My VOCSN ventilator failed yesterday & the MANY practice runs for my caregiver…
Thank you, @MinoSean. No comparison.
Thanks Liz. I don't usually like to compare diseases to avoid minimizing the suffering of anyone. I think that your statement really needs to be put in perspective when comparing #LongCovid to #ALS. The 1st reported case of COVID worldwide was in December 2019. #LongCovid is…
Proud to announce today with @MGHNeurology and the Sean M. Healey & AMG Center for ALS that we will be providing Expanded Access to pridopidine for people with #ALS enabled by a grant (U01) from NIH under the #ActforALS. Full press release here: tinyurl.com/zrxpy89a
In loving memory of our Chris. kelsiesnowwrites.com/2023/10/04/in-…
@sabrevaya That something like this has to have been a focus of my entire adult life without change is nothing short of astounding, goldwaterinstitute.org/sickening-fda-…
@dutchsmitty @sabrevaya Not just at an #ALS center but 48 hours in homes o people with ALS as they struggle to partake in Activities of Daily Living.
@limpbroozkit To tell patients that have experienced positive results from this treatment that their results are anecdotal is cruel and terribly unfounded. I am a physician, and I do have a science background. I would not hesitate to receive this treatment. Part 2
After a week I’m still in shock at how the #NurOwn AdComm played out. What I was expecting was a healthy debate. What I experienced was more like a parole hearing.
Please take the few mins to watch. Two #MamaBears, that I proudly stand beside. @BellinaDeb @Smithstrongmom1 wlwt.com/article/asl-tr… @US_FDA @iamalsorg @alsagoldenwest @ComCareALS @everything_als @klink52 @nicolecimbura @BridgetRebecca4 @kks69okie @aVoice4ALS @FarberStacy…
@LorriCav @BellinaDeb @Smithstrongmom1 @US_FDA @iamalsorg @alsagoldenwest @ComCareALS @everything_als @klink52 @nicolecimbura @BridgetRebecca4 @kks69okie @aVoice4ALS @FarberStacy Stand with the #mamabears with me please!!
A thread about inviting dying people to the party. When you are dying, people often assume you can’t make a gathering because it’s too difficult to attend and so they don’t include you. (1/4)
It turns out one of the most fundamental human desires is to feel included, to gather — to feel like you’re still counted among the living. (2/4)
If you have a friend like this, invite them. Even if they can’t make it, it will make them feel loved and still alive as so much of their human experience slips through their fingers. (3/4)
And if they can make it, no one cherishes the joy of a gathering more than someone who understands how limited their time is. Please. Invite the dying people to the party. (4/4)
Secondary endpoint may be a single, but singles win too 21 yo Kade's ALSFRS at baseline was 34/48 🔹34+ = avg loss 2.86 pts slower than placebo 🔹5+ pts/yr slower Don't let floor effect kill OK's Kade's chance Kandy's FDA Comment bit.ly/SinglesWinGames @FDACBER @TomColeOK04
If I had 1 wish, I would hug every person with ALS and tell them everything will be alright and NurOwn is coming for us. I love ya all.
A slight movement of just one finger (zero points gain on ALSFRS) would mean yes/no communication is re-established with a person with #ALS in full lock in syndrome who lost ability to eye gaze due to eyes musculature degeneration. It's EVERYTHING for the family Approve #NurOwn
@Markbedwell11 It takes me 26 minutes to open my eyes and sit on the side of the bed! One point would make a world of difference for me in any one category on the ALSFRS scale, and more importantly, in real life functioning
I am 42. I have been friends with the guys in this photo for 30 years. We have been through all of life’s ups and downs together. Here’s to having amazing friends.
I am beyonce always #als #salesforce #kickoff #corporatejet
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