Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

I’m just a guy fighting ALS the best I can, tweeting about all things programming 👨‍💻and my toddler 👼 iot-blogger.com All thoughts are my own👇 Joined April 2020

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

2 months ago

I’m the opposite. I love hugging my friends. I was always told I give the best hugs. But being touched is not the same as a mutual embrace. It’s very different now. I need a firm handshake in my life lol.

Brooke Eby @limpbroozkit

2 months ago

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

3 months ago

Today is 4 years since I was diagnosed with #ALS. I still have decent function in my right arm. I still work full time. I don’t know what makes me a slow progresser. I just thank God for that.

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

3 months ago

The sun doesn’t ask for permission to shine. Neither should you

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

3 months ago

It is critical to the #ALS community that #NurOwn is included in thus listening tour because we don’t know what the next administration will do to @SecKennedy and @DrMakaryFDA and the necessary changes made to @FDACBER We must save #NurOwn now

Shah Minokadeh, M.D. @MinoShah

3 months ago

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

4 months ago

Do any #pALS use a portable shower or know any trustworthy brands/suppliers i should use? I’m not able to safely get into my shower. #ALS #showering #HandicappedShowers

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

4 months ago

Me and my nephew over the years. I always wanted to be a father and have this type of bond with my kids. ALS robbed me of that.

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ALS TDI @ALSTDI

4 months ago

"ALS forces a confrontation with mortality. While others shy away, we face it daily. Yet, amidst this reality, I cherish the 35 years of life I've had.” - Brandon Conley, Living with ALS since 2020

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

5 months ago

If Pete Hegseth can keep his job then we can find a cure for #ALS

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

6 months ago

I had a visit from the @GoNumotion 🐐 Jeff Cupps today to fix my wheelchair. I broke the joystick and backrest and he even added a few more gizmos to make my life easier! I’ve had this for a year and never realized all I can do in it! Let’s see how I break it this time🧑‍🦼‍➡️

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

6 months ago

I’m getting an Obi robot feeding device!! meetobi.com

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

6 months ago

I just saw @limpbroozkit post about #ALS and acid tears. That’s crazy because I also started having burning tears. It only happens in one eye at a time and it usually hits me laying down. Maybe this is payback for all the girls i made cry. 🤫 to anyone who knows that # is 0️⃣

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

7 months ago

“Don’t bite the hand that feeds you" Is much easier said than done #ALS #BeingFed #SorryIBitYou

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

8 months ago

I’m doing a lot of reminiscing in my head of past relationships and failures. I was a pretty big jerk in my early twenties. I wonder if karma played a role in why I got #ALS.

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

8 months ago

My wife gave birth right after I was diagnosed with #ALS. I think the reason I’m still here is because of my #ALS dad strength. 🧑 💪

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

9 months ago

My feed today is filled with Pittsburg Steelers fans complaining about every little thing 🤦‍♂️ Don’t fall apart now 🤣🤣

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

9 months ago

True love will pick your nose when you don’t have enough lung power to clear it

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Tom Fitz 👨🏻‍💻💡🔌 @_wobblewobble

9 months ago

I just stood up from the toilet by myself. My wife opens the bathroom door to see me standing there holding onto a grab bar. My son then runs up, sees me, and shouts “Daddy! You so strong!” Kids are the best! ❤️❤️😊 #ALS #KidsOfALS #WhatIFightFor

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AZ Latina ☮️🌊🟦 @aVoice4ALS

10 months ago

As the President-elect is choosing his Cabinet Secetary for HHS, what cannot get lost in the mix is why people with terminal rare diseases desperately need DISRUPTIVE policy change at HHS. We need the new HHS Secretary, a new FDA Commissioner, the White House and all Republicans…