Laura Hanson @lamhanson
Living with ALS since mid 2019. I carry the C9orf72 mutation. Living everyday with focus on the present. Grateful for the wonderful & powerful ALS community 💕 San Francico area, California Joined January 2011-
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Highly significant day for #mnd #als research. #united2endmnd
Highly significant day for #mnd #als research. #united2endmnd
I AM ALS will host a town hall with BrainStorm Cell Therapeutics on November 7th at 1pm ET to hear directly from BrainStorm about next steps, clarify any questions or uncertainty about their process with the FDA, & learn about the path forward for NurOwn. iamals.org/action/brainst…
The Senate Aging Committee hearing on the Promising Pathway Act is TOMORROW! We are so excited to hear from co-founder @bsw5020 and Board member Peggy Plews-Ogan in the hearing, and from advocate Tim Tobin at the press conference. Join us in DC if you can: iamals.org/action/promisi…
I call on @BrainstormCell to hold a Town Hall for the ALS community, so that it can explain why it withdrew the BLA before the PDUFA date. Also, please explain how this was the best decision for NurOwn and the ALS community. You owe this to us after we fought for a yes.
I call on @BrainstormCell to hold a Town Hall for the ALS community, so that it can explain why it withdrew the BLA before the PDUFA date. Also, please explain how this was the best decision for NurOwn and the ALS community. You owe this to us after we fought for a yes.
To the Project ALS Family: We are proud to announce that prosetin, a novel ALS drug candidate developed at the Project ALS Therapeutics Core at Columbia, has been acquired for commercial development by a new company, ProJenX. Read the press release here: prn.to/3JtRymM
we are #DyingWaiting and we need your help @JDVance1 @SenSherrodBrown @GregLandsman @bradwenstrup @POTUS
we are #DyingWaiting and we need your help @JDVance1 @SenSherrodBrown @GregLandsman @bradwenstrup @POTUS
InvestorNewsBreaks – Clene Inc. (NASDAQ: CLNN) ‘Innovates’ Investigational Drug with Patented Nanotechnology networknewswire.wordpress.com/2023/10/17/inv…
BrainStorm Cell Therapeutics to Meet with US FDA to Discuss Development Plan for NurOwn as a Treatment of ALS ir.brainstorm-cell.com/2023-10-18-Bra…
Time to hold a benefit concert so we can fund prolonged life for #ALS patients. Without the #NurOwn treatment, patients who saw benefit will decline faster and lose improvement in how they feel and function. @RollingStones @PaulMcCartney @BonJovi @eltonofficial @QueenWillRock…
Time to hold a benefit concert so we can fund prolonged life for #ALS patients. Without the #NurOwn treatment, patients who saw benefit will decline faster and lose improvement in how they feel and function. @RollingStones @PaulMcCartney @BonJovi @eltonofficial @QueenWillRock…
We want to share a powerful statement of support for Israel from our Founder and CEO, Dr. Michael R. Hayden.
Tell Congress about your ALS story, so they understand the urgent need for faster access to promising therapies: iamals.org/updates/senate…
Join Synapticure's co-founders Nov 10th to screen their documentary, NO ORDINARY CAMPAIGN, which shares how they transformed patient advocacy in #ALS & other #neurodegenerative diseases. Now that patient-centric vision is the cornerstone of our mission. vist.ly/dhhr
It's National "I Love You" Day, so we just wanted to say... we love you! ❤️ Pass it on -- tell someone you love them today.
This small real-world ALS case series demonstrates that combination therapy is feasible and beneficial. virtual.oxfordabstracts.com/#/event/4334/s… from 2023 NEALS Symposium
I will always be amazed at how much the @iamalsorg community has done in 5 years. I hope you will take a minute to read the impact report and see just how much a small nonprofit can do to change the world. iamals.org/updates/five-y…
I AM ALS is pleased to see that the National Institute of Neurological Disorders and Stroke (NINDS) announced three Expanded Access Program (EAP) grants to help people with ALS who do not qualify for clinical trials. Read our full statement: bit.ly/3LPzreA
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
ALS TX DAD @AlsDads
2K Followers 893 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
End ALS Now @EndALSNow
956 Followers 933 Following ▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
Sarah Parton (she/her.. @sarahkarpar
1K Followers 941 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
Troy Fields @Troy_W_Fields
674 Followers 238 Following Husband and father of 4 from PR #LIVINGwithALS in Tampa FL, Papi to 3 grandchildren and an ALS volunteer and advocate that bleeds USF green and gold.
Andrea Koval @jaxmadmom84
2K Followers 406 Following dereks widow :( , momma to 2 babes 2 angels raising ALS awareness and Retinitis pigmentosa awareness….
Mandi @RunningMama0522
2K Followers 1K Following
l65dxhu0kbkje @huo0kb14779lxg
15 Followers 1K Following Awesome, you can earn 500-5000 usdt every day here, join now telegram:https://t.co/j6BbMhRZSD
alsHATER @HaterAlss
29 Followers 201 Following
Smeetees @smeetees44958
65 Followers 2K Following
Michael realgan @MRealgan85370
99 Followers 404 Following
Florence @florence_roark8
165 Followers 3K Following
Nicole Miller @miller_nic57795
64 Followers 3K Following
彼岸 @hongxu113917
31 Followers 215 Following
Kelly Hurlburt @khurlb8115
260 Followers 1K Following
Catherine Dold @CatherineDold
2K Followers 2K Following Freelance science writer/editor #health #biopharm #addiction /Coauth @TheRecoveryBook @LifeinRecovery2 /ASJA Outstanding Book Award /NYU SHERP /SWARM /RVer
Linda Coffey @spog729
1K Followers 4K Following retired Wisconsin state employee. partnered with a wonderful man for 24 years. Liberal democrat. resister
My MND Mates @MyMNDMates
43 Followers 105 Following An online community for those living with MND/ALS. We’re passionate in raising vital awareness of those diagnosed in the younger generations.
Wanda Lee @mindswithmotion
170 Followers 491 Following Socially Engaged Artist. using music, art, drums, movement as our tools, mental health, community, connection join me!
Alli Anthony @AlliAnthony2
150 Followers 218 Following Proud to be working for the Motor Neurone Disease Association
gemofhighlands @gemofhighlands
6 Followers 60 Following
Angela Kocot @GailaonEarth
371 Followers 743 Following mom of 3, geographer, community volunteer, humanist. Wife of ALS as of Fall 2021 / Winter 2022
Jessica Smith @joysmith77a
43 Followers 286 Following
Katlove @kloving96_kathy
23 Followers 359 Following
Sherbet Lemon @belindavidal_
815 Followers 679 Following Raising awareness for Motor Neurone Disease after losing my Dad in 2007 #MND #ALS #LouGehrigsDisease #MotorNeuroneDisease
Kerr @Kerr087
28 Followers 54 Following
Francisco jose Ribago.. @RibagordaAvila
32 Followers 307 Following En proceso…. preparándome mentalmente!
Karen Ho @picturewing
469 Followers 567 Following Working toward safer, more effective treatments for neurological diseases. Tweets are my own. #BlackLivesMatter #lovealwayswins
Ajay Sampat, MD @Sampat_md
474 Followers 37 Following Father, husband, son, and brother. Clinical educator and neurologist. Person living with ALS.
Paula M. Zimlicki @PMZimlicki
256 Followers 1K Following Author and poet. Interested in doctor-patient communication; creative arts-healing therapy; medical poetry, fiction & nonfiction.
Newby @BNSFNewby
199 Followers 740 Following “Of course it's possible to love a human being if you don't know them too well.” #CharlesBukowski
Jonathan Brent M.D., .. @DrJBrent
271 Followers 1K Following
Augusta @Augusta1163658
0 Followers 4 Following
#EndALS @PSerrinha
37 Followers 502 Following
Rod Malloy @how916ofyou
1K Followers 3K Following Creating films to empower intergenerational healing using my natural strengths: Catalyst, Futurist, Belief, Empathy, Relator, Command and Woo.
Rachel Doboga @RachelDoboga
777 Followers 133 Following Writer, teacher. Dx w/ALS age 28. I advocate and raise awareness by blogging to show the reality of #ALS with humanity, vulnerability, and unflinching honesty.
Ken Kowalski ❎ @ALSSurvivorKen
667 Followers 574 Following #ALSsurvivor Since 2007 & Super-Cool (kidding) 😎 ALS Activist/Influencer/Futurist/Non-Victim "Never give up!" https://t.co/zWZjLU5Kmi 🏄♂️🚵♂️🏂🤙
Farhana Islam Riba @farhana92789
25 Followers 173 Following I am an affiliate Marketer, CPA Marketer, Freelancer, Content writer, Article Writing, Make Money Online, etc.
Mindy Uhrlaub @MindyUhrlaub
159 Followers 169 Following https://t.co/4uNkZvnKfp. Author, Unnatural Resources. Familial ALS Warrior.
Milli Atturdor @atturdor32888
242 Followers 1K Following
DonnaD @DonnaD31974714
12 Followers 107 Following
Tabes538 @tabes538
35 Followers 156 Following
Brittany Mroczek 💜 @cherise77
1K Followers 961 Following My Dad was diagnosed with #ALS in July 2018. Please join me in the fight to bring awareness to this disease and #EndALS @ALSAction
Katy Golightly @chalked_farm
318 Followers 678 Following wife, mom, lawyer, CALS. everything I own to #endals and bring about the #energytransition.
Hasan Agcagül @AgcagulA
100 Followers 690 Following
Ron Leuty @rleuty_biotech
11K Followers 2K Following #Biotech reporter @SFBusinessTimes; hardcore @Tigers fan; once rolled a 288. Tip me: [email protected], Signal or 415-722-2678. Also find me on Post.
Patti Bruinsma @PattiBruinsma
506 Followers 5K Following wife of 25 years. mother. sister. animal lover. MSU Spartans fan. huge sports fanatic. obsessed with Broadway shows. Upper Peninsula of Michigan is my home
iamthereseolsen @terricolsen
111 Followers 217 Following I will raise my voice until I can't. I was #Poisoned. Living with #ALS, #Ataxia #POTS #Dysautonomia #Fibromyalgia #ChemicalSensitivity. Connect the Dots.
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
ALS TX DAD @AlsDads
2K Followers 893 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
End ALS Now @EndALSNow
956 Followers 933 Following ▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Bill P Fights @WilliamP_Sr
127 Followers 338 Following Love my family and God bless the USA 🦅. Whiskey on the rocks. In the fight of my life. I hate ALS!!!!
Corey Polen 🧑🏽�.. @CoreyPolen
2K Followers 227 Following Very Blessed husband and father. Rolling w/ #ALS. #LetItBe #PromisingPathwayAct @venmo: ALSfund Tweets expire. Get'em while hot. (King/My Royal Majesty)
Tom Fitz 👨🏻�.. @_wobblewobble
516 Followers 427 Following I’m just a guy fighting ALS the best I can, tweeting about all things programming 👨💻and my toddler 👼
Tavares Speer @TavaresSpeer
442 Followers 204 Following Husband, Dog Dad, Former Business Analyst & FSU Alum. I was dx w/ #als 10/4/18. Still fighting. #alsfighter #alsawareness #Endals
iamthereseolsen @terricolsen
111 Followers 217 Following I will raise my voice until I can't. I was #Poisoned. Living with #ALS, #Ataxia #POTS #Dysautonomia #Fibromyalgia #ChemicalSensitivity. Connect the Dots.
Kpeterson @kpDodgers
8K Followers 8K Following Living With ALS, #ALS Advocate, Love the Dodgers & beach life,#Resistance #nostraws, #FBR,#BlueWave2024 #Vaccinated, #bluecrew
Grace D'Amore @Kahalaonapua
596 Followers 2K Following ALS supporting, cat loving mother of a beauty. I bleed BLUE, Biden 2024. I love dark & stormy days. Voracious reader, small friend circle. Hawaii no ka oi
O.J. Brigance @OJBrigance
14K Followers 410 Following Son of the Most High God, Husband of the Queen B, Super Bowl and CFL Grey Cup Champion, ALS Survivor and Brigance Brigade founder.
Joanne @didyegethealed
93 Followers 986 Following
Andrew Heath-Richards.. @HeathRic1
1K Followers 3K Following Motor Neurone Disease/ALS campaigner, Mental Health Awareness Champion. Private Equity, Real Estate and Construction Industry Specialist. Tweets + views my own
Michelle McKenzie @Dr_McKenzie
139 Followers 155 Following Loving my job as an Optometrist for over 25 years in Caledon. Living life to the fullest with ALS.
ALS Hope Foundation @ALSHF
3K Followers 610 Following The mission of the ALS Hope Foundation is to make a difference in the lives of people living with ALS through Care, Research and Education.
Neil Stevens - theals.. @thealspoet
114 Followers 207 Following Beautiful family, beautiful life, Hit with ALS! Down but not out! Aim to maintain, I'll be the same, And my profile pic jersey tells you what I'm all about.
Sam & The Bucket List @SJHH32
552 Followers 1K Following #MNDWarrior diagnosed 5/3/22, aged 35. Living with MND and living my BEST life! Husband ~ Daddy ~ Son ~ Brother ~ Friend.
Karen Ho @picturewing
469 Followers 567 Following Working toward safer, more effective treatments for neurological diseases. Tweets are my own. #BlackLivesMatter #lovealwayswins
Mehdi Ghasemi, MD, MP.. @MehdiGh18235459
237 Followers 184 Following Director of ALS Center @ Beth Israel Lahey Health, Assistant Professor of #Neurology @UMass, @Harvard Trained #Neuromuscular Subspecialist @Harvard Trained #MPH
Kimberly Cotzias @kimbrolyclaire
611 Followers 323 Following Caffeine addict, music junkie, writer, former cALS for the best dad a girl could’ve asked for. #endALS
caf@apsk @grillchef62
315 Followers 2K Following
Michael Wilson @MichaelWheelson
126 Followers 260 Following Husband and Dad. Mechanical Engineer. Jedi in Training, but still can't master art of itching my own face. ALS'ing since Feb. 2017.
Dave Whittum @DaveWhittum
1K Followers 636 Following Interested in objective news, facts, numbers. Like/RT ǂ agreement. Opinions are my own and a work in progress.
Lori Heller @HellerLori2018
63 Followers 189 Following “The thing I hated the most has become my purpose.” ALS Widow and advocate. Fighting for a cure.
TJ Welches @tjwelches
807 Followers 473 Following
Garrett May @rett_may
244 Followers 878 Following Latter-day Saint & disciple of Christ, ALS advocate, BYU Humanities alum, GW Law grad. Immigration lawyer. I think video essays are cool.
Tokyo_Tengu @Tokyo_Tengu
4K Followers 5K Following Happily married patriot grandpa, USN vet, and VFW Life Member. I'm on a life journey with ALS and learning to deal with it. Idiots are blocked without warning.
Ajay Sampat, MD @Sampat_md
474 Followers 37 Following Father, husband, son, and brother. Clinical educator and neurologist. Person living with ALS.
Cecilia Aguirre-Crow @CeciCrow
530 Followers 471 Following ALS Warrior, fighting for expedited treatment
Tri-State Trek @TriStateTrek
980 Followers 2K Following We can't wait to see you June 22-23, 2024 for the Tri-State Trek! #EndALS #WeAreTrekFamily🚴♀️🚴♂️ Raising funds for ALS research at @alstdi.
Amy Stiens @StiensAmy
75 Followers 197 Following Battling a Terminal Illness. ALS. Trying to spread awareness about this awful disease . A wife, mom of 3 amazing kids. I love watching @Bengals @Reds . ❤️
janine culshaw @culshawsuperj9
86 Followers 155 Following my biggest fight is with MND. I’m trying to stay well enough until a cure is out there. I would love my voice back.
Carol Hamilton @chamtdi
418 Followers 552 Following Fighting ALS while loving the people who live with it. All thoughts and tweets are strictly my own.
C Donato @CDonato16
164 Followers 85 Following #ALSWARRIOR,Son, Father, Grandfather. Dx 9/14/20, Baseball Fan, Golf Freak,
Senator Mike Braun @SenatorBraun
49K Followers 349 Following Main Street businessman & Hoosier U.S. Senator for Indiana Newsletter signup: https://t.co/itGCdTNjna
Mahamat @Mahamat21076700
172 Followers 798 Following
LG4 @LG4HAT
62 Followers 188 Following The LG4 Hats seeks to both spread awareness about the disease and pay tribute to Gehrig’s legacy. Every hat you purchase, ALL the proceeds
Shelley 🇨🇦 @Shines2017
619 Followers 962 Following 🇨🇦 Mom, ALS Warrior for 30yr old daughter diagnosed in Jan 2018
Dr Puja R. Mehta 🩺.. @DrPujaM
1K Followers 2K Following Wellcome clinical PhD fellow at Queen Square Institute of Neurology @FrattaLab 🧪 • Motor neuron disease researcher 🧠 • Neurologist 🩺 • @Cambridge_Uni alumna
Darren CC Wong @DazzimusP
787 Followers 2K Following Biotech professional. BIG Geek. Luvs astronomy, Star Wars, MCU, DC, 80s music, wing chun, bodybuilding. Now living with ALS and fighting for my life!
Skip @WcornettIII
491 Followers 2K Following Lutheran clergy; political science Marshall-Virginia Tech German Shepherd is Ziva; Have a Navy daughter. Busy with US politics and Israel Palestine ALS patient
Michael Rieder @ALSWARRIORSA
423 Followers 120 Following Just a regular guy, fighting #MND / #ALS. My tweets are my own, sometimes serious, sometimes funny. #VoetsekMND
Lee Morrison @LeeMorrison2022
347 Followers 887 Following Disabled, ALS fighter, power chair, USMC & Army Veteran, Book seller on AbeBooks @ https://t.co/pFVnC80NOW NO DM!!!!! You WILL be blocked!!
MND Research Australi.. @MND_RIA
2K Followers 397 Following Motor Neurone Disease Research Australia has built & sustained MND research nationally for 40 yrs. MNDRA is the research arm of MND Australia.
NeuroX1 Inc. @neurox_1
418 Followers 2K Following Creating the next generation of therapeutics for neurodegenerative diseases.
𝔻𝕚𝕤𝕒𝕓�.. @PeterGalavan
1K Followers 2K Following Using humor to break the ice and make light of your situation can be a great way to put others at ease and help them feel more comfortable around ! #als #iamals
StampOutMND @StampOutMnd
315 Followers 1K Following Charity Fundraiser For The Motor Neurone Disease Association since 2015
Bridging Voice @BridgingVoice
110 Followers 32 Following Non-profit enabling people w/ ALS to connect & communicate w/ family, friends & the broader world using assistive technology.
This Sunday I’ve been asked to run the “extra mile” in Kev’s 7in7in7!! 😮As a sufferer of MND myself I can’t run BUT my Son has offered to push me in my bright pink wheelchair!! 💖Bless him 🤣 raising funds for @mndassoc and awareness 💙🧡PLS RETWEET 🙏🏻 justgiving.com/page/jacobextr…
We all aspire to do something amazing with our lives. The truth is that by making someone feel loved we can do something pretty amazing everyday. Good night moon.
@sabrevaya Thanks for sharing Sandra. As a person living with als this is hard to read. I appreciate all that you do for @bsw5020 because he inspires me to keep going. I love you my friend. ❤
On the last day of National Family Caregivers Month, I want to share that being a caregiver has been the single hardest experience of my life. It is incredibly painful, overwhelming and I often feel like with Brian's illness I have lost my own identity, my freedom, my own life.
Movement-building is not for the faint of heart. It requires both perseverance and humility. It also requires the strength to weather a lot of up and downs. That being said, it has been the greatest experience of my life.
I am so excited for @synapticure to bring CNM-Au8 to those who never had access before. This will be the first virtual EAP and is a big moment for all of us living with ALS. If you want the chance to be a part of the EAP...
People ask me how @bsw5020 is doing so here is the answer! Much love to Brian, @sabrevaya and all of my ALS peeps. 🧡💙
Brian Wallach has beaten the odds after being diagnosed with ALS. Given six months to live, remarkably he has survived six years. Lee Cowan revisits Wallach after two years to find out how he and his grassroots organization I Am ALS helped pass a law (Act for ALS).
Good morning everyone I have my new bed companion for Christmas 🎅 I did ask @carolvorders but she declined me now she will never know what special gift I had for her in my sack 😄😄have a great weekend everyone ❤️ #MND #goodmorningEveryone #goodmorning
Is there any hope in the horizon for our loved ones suffering now?
Ahead of the anniversary of Doddie's death, we're proud to have committed over £11 million to 40 different research projects 🔬 A world free of MND will be Doddie's legacy & we won't stop until that's been achieved 💪 standard.co.uk/news/health/ch…
Just this year, Hop On A Cure will give $1.5 million in grants, have held hundreds of events and grown our incredible community united in the hope that a cure for ALS can be found sooner.
This year, I am grateful for my family, my friends, my amazing community, my colleagues and of course you. Good night moon.
It was another Toferson (qalsody) day. It went well, injection #20. Also, it was ALS clinic day. That always gets my nerves ramped up. The breathing test freaks me out, but we had good, and even better than last spring, results. So that was encouraging. 😊
One of the reasons why I get away with being genuinely happy is this: since my diagnosis 4 and a half years ago, 3 “healthy“ friends, considerably younger than me, have died unexpectedly. I also know of several people with #ALS that have died much younger than me. I’m 55. All of…
When Cohen scored this goal on Sunday my heart burst — with joy for my son and heartbreak that Chris wasn’t sitting next to me. After, I asked Cohen about it. He said, without hesitation, “I knew Dad was watching me.”
... Or me. We are building momentum. We are not aiming to tare down FDA, just closing a gap.
Calling all ALS advocates far and wide. Join us in getting PPA to the finish line! Message me if you’d like to do more than just send an automated email.
VectorY’s experimental drug, now in preclinical testing, is meant to target aggregates of a misfolded protein called TDP-43. Clearing these defective protein clumps from the cytoplasm of neurons could help preserve brain cells, according to the company. biopharmadive.com/news/vectory-f…
@BrainstormCell Nice. Let's go some more data with another trial and get this approved ! Patients are getting tired of waiting.
Here’s a little something nice for your feed 😀
Huge pod of dolphins seen off the coast of California
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