Brittany Mroczek 💜 @cherise77
My Dad was diagnosed with #ALS in July 2018. Please join me in the fight to bring awareness to this disease and #EndALS @ALSAction alsactioncanada.org/merch/ ~Vancouver, Canada 🇨🇦~ Joined April 2009-
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Tune in to hear Darryl, one of our members, bravely share his journey of living with ALS. Join us in our mission to #EndALS.
In fact, it shows how right they were to require a Phase III trial. Since the trial did not meet its endpoints, we have to wait to see the data to understand why. We owe it to the patients who believe that Relyvrio was helping.
The #Canucks and the @Canucksforkids Fund announced today that proceeds from the 50/50 jackpot on Saturday, March 23rd will support the ALS Super Fund to continue the fight to end ALS. DETAILS | vancanucks.co/3VujKiw
Join forces with us and all Canadian NHL teams in supporting the ALS Super Fund! Led by ex-NHL player Mark Kirton, tonight's 50/50 draw is making a difference for those battling ALS. 💙 BUY NOW | canucks.com/5050 FIND OUT MORE | alssuperfund.ca
The Canucks are raising money at tomorrow nights game to support the ALS Action Canada Superfund! This is part of an initiative by all 7 Canadian teams to support the fight against ALS! The proceeds of the 50/50 draw will go to support the ALS community in BC. @ALSAction @ALS_BC
Join Steve Dangle as he watches the Toronto Maple Leafs Vs the Edmonton Oilers LIVE. Go to alsactioncanada.org/merch/ to buy the shirt! Please post pictures of yourself wearing the apparel on social media, using #endALS to spread more awareness! youtube.com/watch?v=aLB7Rm…
Thank you Vancouver Canucks who will be supporting our ALS Super Fund during Saturday nights Game 50-50 raffle. Impressive how the 7 NHL Canadian teams have banded together to support finding a cure for ALS @DougMaclean @Ron_MacLean @NHLAlumni #endals @Canucks #nhl @JShannonhl
Thank you Vancouver Canucks who will be supporting our ALS Super Fund during Saturday nights Game 50-50 raffle. Impressive how the 7 NHL Canadian teams have banded together to support finding a cure for ALS @DougMaclean @Ron_MacLean @NHLAlumni #endals @Canucks #nhl @JShannonhl
After a death sentence @bsw5020 built @iamalsorg with a community fighting for their lives that led to a $1 billion increase in government funding for ALS. This is what today’s news from @mackenziescott felt like. Change in the face of impossible odds. #YieldGivingOpenCall
If you read about a failed drug trial please get that this is what that news feels like to families dying from these diseases. We are the faces of grief and suffering behind those headlines.
Brooke Eby, diagnosed with #ALS at age 33, delivered a powerful address at the 2024 #MDAconference as keynote speaker. Tune in to the full speech: youtube.com/watch?v=7gPSby… #MDAconference #EndALS @limpbroozkit
Mark Kirton’s (@KirtSpeaksALS) story isn't glossy or clean-cut; it's raw, profound, and far from over. The former @NHL player is battling ALS with unshakable determination. We sat down with Mark to learn about his story and his pursuit to #EndALS. Read: bit.ly/3HRp7jS
Phil Green exactly correct here in Canada too. Drain on bank account is outrageous. Not only need for ALS equip for each stage of journey but Meds can cost 10K + per month & cost for caregivers as one declines absolutely pushes the family to the brink. Where is Government help???
Phil Green exactly correct here in Canada too. Drain on bank account is outrageous. Not only need for ALS equip for each stage of journey but Meds can cost 10K + per month & cost for caregivers as one declines absolutely pushes the family to the brink. Where is Government help???
On behalf of the ALS Action Canada Super Fund, would like to thank the Montréal Canadiens for their participation in our 7 NHL Canadian team campaign to support finding a cure for ALS. Entire video f.io/EeCCNGlv
Join me in raising awareness and funds to help find a cure for #ALS Purchase merch through @ALSAction to fund life saving research to #EndALS alsactioncanada.org/merch/
Matt, you are a true inspiration! Despite facing the challenges of ALS, you've channeled the strength into creating amazing T-shirts and other merch to not only raise awareness but also funds for our cause. fatdave.ca/collections/al… #ALSawareness #EndALS
I was unlucky to be diagnosed with ALS, but I have been lucky to have a great family and friends. Here’s to playing the cards we are dealt in the best way that we can. Good night moon.
Hey Alberta! 👋 There's still time to buy your tickets for tonight's @EdmontonOilers 50/50 to join the fight to #EndALS and support the @ALSAction 💜 🎟️: nhl.com/oilers/communi…
Watch our board member and former NHLer presenting the backstory of this incredible initiative. Repost, share, and participate by purchasing tickets: nhl.com/oilers/communi… @NHLAlumni @RealKyper @DarrenDreger @DougMaclean @PR_NHL #EndALS
Watch our board member and former NHLer presenting the backstory of this incredible initiative. Repost, share, and participate by purchasing tickets: nhl.com/oilers/communi… @NHLAlumni @RealKyper @DarrenDreger @DougMaclean @PR_NHL #EndALS
Get ready to score big and make a difference! Join the Edmonton Oilers in their exciting new 50/50 raffle! Your ticket isn't just a chance to win big prizes—it's a direct assist to our ALS Super Fund. Purchase your tickets now and let the fundraising frenzy begin!
I am so honoured to share my story. Let's #Fight2EndALS ♥️ @iamalsorg @bsw5020 @sabrevaya @SantiagoWeek13 @ObispoSouth
I am so honoured to share my story. Let's #Fight2EndALS ♥️ @iamalsorg @bsw5020 @sabrevaya @SantiagoWeek13 @ObispoSouth
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Shah Minokadeh, M.D. @MinoShah
4K Followers 730 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Mandi @RunningMama0522
2K Followers 1K Following
Mike Harrington @Shankapotomas
3K Followers 930 Following Just a dude with ALS. Not dead yet, though.
I’m Dying To Tell Y.. @LorrisPodcast
1K Followers 869 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
ナウル共和国政.. @nauru_japan
484K Followers 245K Following ナウル共和国政府観光局日本事務所の公式🇳🇷総人口 約一万人の南太平洋の国🇳🇷フォロバ100%（時間かかります）🇳🇷#ナウルが名売る #ナウラー #ナウルなう #ありが島ナウル島 #気にナウル 🇳🇷 https://t.co/kCai1b1kvy
Julie Suarez @epjjule
5 Followers 187 Following Wife,corgi mom,stepmother,aunt,baby sister,cousin and friend determined to help beat #ALS.Army brat! Texan (kinda).#ALSWarrior #EPSTRONG #GEAUXTIGERS
Grace D'Amore @Kahalaonapua
567 Followers 1K Following ALS supporting, cat loving mother of a beauty. I bleed BLUE, Biden 2024. I love dark & stormy days. Voracious reader, small friend circle. Hawaii no ka oi
LaurenCissie @264p154762njF
10 Followers 1K Following
Coach Linda @Linda223333
56 Followers 2K Following ⛪️ God first 👩💻 Business Magnate 📈 Stock, Crypto,Fx & options 🔍 Market Research Analyst ⏱ Over 8 years Trading Experience 📥 Dm to Get Started
Deb Bellina @BellinaDeb
98 Followers 155 Following Lean Six Sigma Black Belt. Matt’s mom, advocating for people living with ALS today and people who will be diagnosed tomorrow, and the next day, and the next
Melissa Sweeney @MissyASweeney
47 Followers 1K Following
Excursion_Eliza @ElizaExcur2498
28 Followers 2K Following
SKYROS MALDIVES @SKYROSMALDIVES
18 Followers 400 Following Maldives Island Tour Operator Specialized in TRAVEL & TOURISM Leading International Tour Operator and Travel agent in the Maldives.
Nora Schaeffer @NoracSchaeffer
69 Followers 1K Following
Sherbet Lemon @belindavidal_
815 Followers 679 Following Raising awareness for Motor Neurone Disease after losing my Dad in 2007 #MND #ALS #LouGehrigsDisease #MotorNeuroneDisease
James Rainey @STownsend35024
117 Followers 794 Following
Jonathan Brent M.D., .. @DrJBrent
278 Followers 1K Following
María Teresa García.. @MaraTer55802755
795 Followers 3K Following
Sonia Owchariw, B.A. .. @NJPAJournalist
130 Followers 3K Following Betrayal: #BurnedByBrodsky;🚫AAMDS&IF✋Boston Systems v Alexion Pharmaceuticals Inc.; #Soliris #DangerAssessment 🆘 #NightmareNeummann ⛔️#DomesticViolence💜#SAAM
150MND @150mnd
120 Followers 371 Following we are a team of friends aiming to raise £150k by walking 150 miles inspired by our great friend Rob who was recently diagnosed with MND. A Big Rugby fan
Kelley Cyr @ToInfinity9008
10 Followers 100 Following Veteran, photographer, astronomer, cat whisperer, living with ALS.
Elin Adcock @elin_adcock
86 Followers 263 Following An ALS/FTD advocate and a vintage VW enthusiast, I am here to amplify voices, support caregivers, change healthcare policies and hoping to #endALS #fight2endALS
Debbie Dickerson @debnc76
523 Followers 817 Following Wife, Mom, Stepmom, Dog Mom, GRANDMA and ALS Warrior
Smoothes @Smoothes170908
180 Followers 3K Following
Stasmay @Stasmay186924
135 Followers 3K Following
Jessica Smith @joysmith77a
42 Followers 286 Following
DEB-MNDWARRIOR @DEB_MNDWARRIOR
941 Followers 909 Following https://t.co/k61gquuj0Z Hairdresser,Mother of 3 World just tipped upside down with a diagnoses of MND/ALS 💔
DD Frederick @af_chief1970
2K Followers 3K Following Retired AF CMSgt. Husband, Father, Brother. Traditional Catholic, Constitutional Conservative Trump supporter. Please,🚫 DM, 🚫Porn.
MSWarriorHNYPT4HTSCT�.. @jakemar711
1K Followers 2K Following 🧡HEALTHisWealth🧡🥃 Sassenach 🥃 ITTY BITTY WEE ONE. MS: no one gets it until they get it. Want my beautiful life back💋😘#NervGen #EBVcausesMS
Deanna Protocol @deanna_protocol
375 Followers 128 Following Around the globe, ALS warriors have found hope with the Deanna Protocol’s™ revolutionary approach to all-natural symptom reduction.
Milli Atturdor @atturdor32888
251 Followers 1K Following
Lauren @laurenrogers357
22 Followers 99 Following
Neil Stevens - theals.. @thealspoet
114 Followers 207 Following Beautiful family, beautiful life, Hit with ALS! Down but not out! Aim to maintain, I'll be the same, And my profile pic jersey tells you what I'm all about.
Lori Heller @HellerLori2018
63 Followers 189 Following “The thing I hated the most has become my purpose.” ALS Widow and advocate. Fighting for a cure.
Eileen Berlin Ray @ebgbray
116 Followers 602 Following
MND-SMART @mndsmart
1K Followers 989 Following Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.
Sarah Parton (she/her.. @sarahkarpar
1K Followers 940 Following A very proud Mom and Gigi. Married to the love of my life. Living with #ALS C9orf72. GenX, liberal AF, rock and roll is boss. Football is my favorite season.
Bill P Fights @WilliamP_Sr
131 Followers 338 Following Love my family and God bless the USA 🦅. Whiskey on the rocks. In the fight of my life. I hate ALS!!!!
Kristen #endals @titan1ium
229 Followers 227 Following Quiet but Loud. Educator| fuck als | I fight for sensible gun laws | trying to stick to my personal values on this platform.
TruthFreedomJustice17.. @kycountrygirlie
246 Followers 1K Following Conservative Christian✝️Master's of Social Work🗃⚖ Animal Lover & Advocate🐶🐱Singer🎤 Writer ✒ Artist🎨 Love & Honor all those who Protect & Serve 🫡
Shelley Baumgartner @6baums
87 Followers 276 Following Army Veteran, Nurse Practitioner, Wife, Mother of 4, Patriot!
Betty’s Brigade Fou.. @No_More_ALS
347 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & funding
Tavares Speer @TavaresSpeer
432 Followers 197 Following Husband, Dog Dad, Former Business Analyst & FSU Alum. I was dx w/ #als 10/4/18. Still fighting. #alsfighter #alsawareness #Endals
Jim Foot @JimfightsALS
446 Followers 822 Following Retired Engineer. Worked for the TSB of Canada. Now living with ALS but have a wonderful caregiver and 3 grandsons who take our minds off other problems.
Ashley Young @AshleyY00486870
260 Followers 2K Following Hardcore beer evangelist. Tv ninja. Typical student. Future teen idol. Bacon geek.
NeuroSense Therapeuti.. @NeurosenseT
539 Followers 269 Following A Clinical stage Biotech company. Advancing novel therapy for ALS and neurodegenerative diseases. Nasdaq: NRSN $nrsn
Kaylei Lee @Kaylei0219
18 Followers 55 Following
car128 @crayne128
231 Followers 317 Following homesteader, lover of sustainable living, hater of ALS for stealing it all away from me, and for threatening to steal my family from me. We need NurOwn now!
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.
Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Leanne Yacyshyn @leanne_yacyshyn
9K Followers 1K Following Wife. Mom of 2 teens. Former elementary school teacher. Canucks fan. Living with ALS and waiting for the day it is no longer terminal.
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.
AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.
Sarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirl
Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
Shah Minokadeh, M.D. @MinoShah
4K Followers 730 Following Anesthesiologist -Johns Hopkins Hospital Pain Management -UC San Diego Now battling ALS & FDA regulatory rigidity for 100% fatal ALS
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
ALS Uncensored 🏴�.. @ScottsFight
2K Followers 1K Following Scott Craig. ALS Uncensored podcast. Digital Artist. AI Student. Typing with my eyes. Living Impossible! #ALSUncensored #ALS #EyeGazeArtist #AI
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
Chris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)
Elizabeth Irving @Miss_Elizabeth5
2K Followers 1K Following 🎼YOUR TIME new release Singer | Songwriter | Actor | VoiceOvers Vancouver Canucks & Whitecaps Anthem Singer https://t.co/EwXlviXwCJ
VirginRadioVancouver @VirginRadioVan
28K Followers 351 Following 📻 Vancouver's #1 Hit Music Station |🎙 #HollyNira weekdays 5:30am-10:00am | 💰 Virgin Radio Pays Your Way
Tavares Speer @TavaresSpeer
432 Followers 197 Following Husband, Dog Dad, Former Business Analyst & FSU Alum. I was dx w/ #als 10/4/18. Still fighting. #alsfighter #alsawareness #Endals
Ken M @kjmark
131 Followers 688 Following Chiefs, Yankees and golf fan. Hoping ALS patients get access to needed treatments.
BusbyFoundation @BusbyFoundation
64 Followers 13 Following Supporting Central Texas Families who are faced with the challenges of ALS.
Laura Hanson @lamhanson
714 Followers 495 Following Living with ALS since mid 2019. I carry the C9orf72 mutation. Living everyday with focus on the present. Grateful for the wonderful & powerful ALS community 💕
Kristen #endals @titan1ium
229 Followers 227 Following Quiet but Loud. Educator| fuck als | I fight for sensible gun laws | trying to stick to my personal values on this platform.
Melanin Children Matt.. @ChildrenMelanin
365 Followers 322 Following Serving children, healing families and educating society; while enhancing awareness surrounding childhood rare diseases pedi-ALS/sptlc2 & resources for autism
Ales for ALS @AlesforALS
718 Followers 2K Following Since 2013, the #AlesForALS program has raised over $6,000,000 for ALS research at @alstdi. Cheers to beer and to helping #EndALS!
Mia Tretta @mia_tretta
20K Followers 802 Following Brown University freshman, School Shooting Survivor, Gun Violence Prevention Advocate, Community Builder, Researcher. Opinions are my own -#BeTheChange
Zak Williams @zakwilliams
153K Followers 2K Following Mental Health Advocate. Co-Founder & CEO @youcanpym. Chairman @BC2M. Trustee @UnitedGMH.
Nick✌🏻❤️ @NickMayerik
15K Followers 5K Following #Eddiesinfantry #CHD #BillsMafia #IUBB Mike McCready enthusiast! #PearlJam… ACE certified fitness coach
Katy Golightly @chalked_farm
317 Followers 679 Following wife, mom, lawyer, CALS. everything I own to #endals and bring about the #energytransition.
Nate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXm
DriveBC @DriveBC
269K Followers 225 Following DriveBC official account BC Ministry of Transportation & Infrastructure highway info, events & weather. Monitored 24/7 Collection Notice: https://t.co/mszNphK6JA
Nicola Waters @AberdareNic
1K Followers 2K Following Valleys girl living in North Essex. Mother of two boys, age 12 and 9. Fighting MND one day at a time... #MND #ALS
Isaac @IsaacPolen
322 Followers 75 Following
Earthquakes Canada @CANADAquakes
113K Followers 17 Following BROADCAST NOTIFICATIONS of earthquakes significant to Canadians. Q?: [email protected] Terms of Use: https://t.co/gliJDfLttE Français: @CANADAseisme
Sam Ghali, M.D. @EM_RESUS
565K Followers 274 Following ER Doctor | Resuscitation | Airway | Cardiovascular Emergencies | ECGs | Emergency Radiology | Trauma | Critical Care | #FOAMed | Patient Advocate
Cecilia Aguirre-Crow @Ceecicrow
34 Followers 96 Following ALS Warrior,fighting for expedited treatment
David Lee Shadwell @lee_shadwell
15 Followers 91 Following
Christine Gilmore RN @KickenALSAss
2K Followers 2K Following ALS Bad-Ass. Registered Nurse. MHA . Married. ♿️. DM Scammers will be reported.
Ann @Ann58032824
332 Followers 1K Following Septic Shock Survivor. Caregiver to mom with Vascular Dementia/ALZ 15+ years. ALS Advocate for sister & all pALS/cALS #DrugsInBodies #Hope #CURE
End ALS Now @EndALSNow
963 Followers 930 Following ▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹
Robert Fletcher @RobertF75183389
221 Followers 369 Following Marching on together to beat MND/ALS. Where did all those yesterday's go? Fighting MND and other irritating illnesses.
Amber Salsberry @amber_salsberry
210 Followers 236 Following #hairstylist #salonowner #wrestlingmom #alshater #inthisfamilynoonefightsalone
Mloerzel123 @mloerzel123
203 Followers 342 Following Mom of 3 boys, professional healthcare provider, and average runner by day; metal head banger by night! 👩🏻⚕️🥃🎶🎵🤘
SOS 4 ALS @SOS4ALS
286 Followers 561 Following Advocate for people with ALS. This "rare" disease has taken 3 from my life. *Drugs in bodies, hope for souls NOW.* Opinions expressed are my own.
Racing for ALS @racing_als
831 Followers 636 Following An amazing group racing to make a difference... Praying for a cure!! 501c3 - Over $1.5 Million raised!! Donations & Merch via our website.
Mick Palmesano @mavericktattoo
220 Followers 523 Following Disabled Drummer & Tattoo Artist / Accounting Director Alkermes PLC / Determined pALS & ALS Advocate
Tim Lowrey @gatortimbo
450 Followers 638 Following Grateful and blessed to be married to Emily Wester Lowrey, UF Pharmacy '92, Buffalonian, Diehard Gator, Home remodeler, Avid reader of various, living with ALS
Pete Spencer @New_Spence
392 Followers 212 Following Retired educator. Current retailer at L.L.Bean and ALS advocate. Husband and dad who likes time on a trail, around a campfire and in a tent.
Mellow Minds🧠 @MentalCause
288 Followers 257 Following Mental Health Advocacy : Mental Disease Patients & Caregivers Support Network : Stopping Stigma In Mental Illness
Ashley Lee @AshL1225
92 Followers 387 Following
Andrea Koval @jaxmadmom84
2K Followers 406 Following dereks widow :( , momma to 2 babes 2 angels raising ALS awareness and Retinitis pigmentosa awareness….
PlantX @goplantx
4K Followers 747 Following Everything plant-based 🌱 | https://t.co/aFvnp8wylJ | Content Only - No Financial Advice | 🇨🇦 $VEGA.CN & 🇺🇸 OTCQB: $PLTXF & 🇩🇪: FSE: WNT1
Mara @mara_dolan
154 Followers 192 Following Fighting for my husband's life. Fighting for #NurOwn. Fighting to change the pattern of failure. ALS = same exact prognosis today as in the 1800s.
@drinkcava @drinkcava
101 Followers 226 Following Sip for a cure. Inspired by one friend’s fight against ALS, each bottle of pALS Cava gives back to ALS organizations.
jenilu @jeniluwho
258 Followers 351 Following PALS & ALS Advocate... Mom who wants to finish raising her daughter... Fighting for my life...join the fight
ALSvets @AlSvets
173 Followers 78 Following ALSvets are a team of US Veterans with ALS and caregivers
Pat Dolan @Team_Thriving
952 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmapping
JulieDoyleCullen @JulieDoyleCull
555 Followers 821 Following Business woman and caregiver turned #author. Doing what I can to fight #ALS
Constance Marie @conniembecker
339 Followers 1K Following ALS Advocate - SOD1 #PayneintheALS - Chicago Cubs fan
Tara Collazo @TaraCollazo1
407 Followers 706 Following Victim of #ALS, fighting for survival. You may see me struggle but you’ll never see me quit. #ALS is destroying my family. #DyingWaiting
Graham Braun @Graham_roasts
202 Followers 213 Following Ontario. Roaster of Coffee. Aspiring ALS warrior. He/Him
Meghan Mania @ManiaMeghan
217 Followers 230 Following Fighting ALS in memory of Dad, Development Manager ALS Therpay Development Institute #EndALS #TeamJimmysGirls #TriStateTrek all thoughts are my own
Life ain’t easy, for anyone. I’ve been sitting with, and working through, emotions of sorrow recently. We are resurrected through the love and care of others to see the light within us. Gray. Gratitude.
A group of kids came to my door. I am used to this because of my daughter’s friends but this was different. They were here to give me the money that they had raised with a lemonade stand to fight ALS. I am amazed by their kindness and inspired by them. Good night Moon.
If I've learned anything on this journey it's the truth and beauty of impermanence. Everything changes. Emotions like sorrow arise and unravel. And a great teacher of this wisdom of change is Nature. Today was first day I was kissed by the rising Sun as we move toward Solstice!…
Meanwhile, Gray and I are multi tasking. Opening gifts from the Bunny, and watching Liverpool. You'll never walk alone!
Happy Easter from my family to yours! ✝️🫶🏼🐰💛🩵🩷 #HeIsRisen #Easter2024 #Family #ALS #FightLikeAGirl #BecauseOfHimILive
Easter is the last day of March, & my memoir, A Life Impossible, will be released on April 30th. It has several anecdotes showing the love and support from friends, neighbors, strangers, caregivers, doctors & my family that have emotionally & even physically resurrected me. Love!
Thank you to the amazing @WhiteHouse team for making this possible ❤️❤️❤️
Thanks so much @iamalsorg for making it possible to go to the White House Easter Egg Roll today - so fun!
One of today’s highlights was meeting @bsw5020 and @sabrevaya . Thank you so much for taking the time to speak with me and for all the work you do!
Tune in to hear Darryl, one of our members, bravely share his journey of living with ALS. Join us in our mission to #EndALS.
Rivers just left to England on an epic adventure with his soccer. I probably won’t tell him this in a year or two… “Dude, I’m so bloody stoked, Rivers. Keep us posted, mate. Have fun. Be safe. If you have to choose between the two. Have fun, Mo Fo! I love you so much.”
This is a great advancement in ALS care: Using AI to detect early symptoms of the disease. My diagnosis was relatively quick, around 3 months, but others wait up to 2 years, delaying important treatments. This is progress. #EndALS theglobeandmail.com/life/adv/artic…
Congratulations, Donald. Quite the accomplishment.
Ask me what I learned from all of these years of trying to help people, Ask me what I learned from all these years of public attacks from people who don’t know what they are talking about, What I know is I am still here. Good night moon.
In fact, it shows how right they were to require a Phase III trial. Since the trial did not meet its endpoints, we have to wait to see the data to understand why. We owe it to the patients who believe that Relyvrio was helping.
🚨 DAWGLANDER 🚨 2-0 #Canucks at the 11:44 mark in the second period!
Thank you to Congress for providing $75 million for the ACT for ALS EAPs in FY24 appropriations and $40 million for DOD ALS research. Special thanks to the House ALS champions: @RepKayGranger @TomColeOK04 @KenCalvert @RepMikeQuigley @BettyMcCollum04 @Robert_Aderholt @rosadelauro
The #Canucks and the @Canucksforkids Fund announced today that proceeds from the 50/50 jackpot on Saturday, March 23rd will support the ALS Super Fund to continue the fight to end ALS. DETAILS | vancanucks.co/3VujKiw
Thank you @Canucks for being in the fight to #EndALS.
The #Canucks and the @Canucksforkids Fund announced today that proceeds from the 50/50 jackpot on Saturday, March 23rd will support the ALS Super Fund to continue the fight to end ALS. DETAILS | vancanucks.co/3VujKiw
Join forces with us and all Canadian NHL teams in supporting the ALS Super Fund! Led by ex-NHL player Mark Kirton, tonight's 50/50 draw is making a difference for those battling ALS. 💙 BUY NOW | canucks.com/5050 FIND OUT MORE | alssuperfund.ca
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