lori andre @loriandre3
Mother of 3 boys, wife of Brian Andre who was diagnosed with ALS in 2016. Chicago, IL Joined October 2018-
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Every flag has a name and the three letters ALS written on it. 6,000 flags! #endals
Sometimes it is the quietest power that brings a ray of hope to the room. #EndALS #SundayMorning
Sometimes it is the quietest power that brings a ray of hope to the room. #EndALS #SundayMorning
what an incredible community this is. big thanks to @SteveMadden @loriandre3 @CarolineTredwa1 Brian Andre, and all of the people behind the scenes for a beautiful event and daily commitment to @iamalsorg’s mission.
what an incredible community this is. big thanks to @SteveMadden @loriandre3 @CarolineTredwa1 Brian Andre, and all of the people behind the scenes for a beautiful event and daily commitment to @iamalsorg’s mission. https://t.co/P6DTmbaCq2
Found this yesterday on the beach. Life is so precious and the ALS community is reminded of that every day. This was a difficult few days for the ALS community, and I can’t help thinking about what @kelsieswrites said, “ hug your people”.
Today, I’m proud to share an exciting new resource that I helped build — Roon — an invaluable guide for people navigating ALS. Check it out:Roon.com.
Shout out to the flight attendants on @united flight 2008 from Chicago to Atlanta. The crew was exceptional. Bravo!
Meet the woman who’s determined to show the world what it is really like to live with ALS by sharing her journey on social media with grace and laughter. @SavannahGuthrie shares her story.
If only Becky were here with us today. #endals.
When living with #ALS, there are many assistive devices and strategies that can help you transfer safely either with or without caregiver assistance. Watch how-to videos and learn more on our new Transferring page: youralsguide.com/transferring-w…
In today's blog post, Dr. Geraldi Samara (@DGeeEss1) discusses anxiety, a widely experienced but little discussed symptom associated with #ALS. synapticure.com/blog/creating-…
Hey Chicago White Sox Fans! 52 Days until the 3rd Annual Lou Gehrig Day! Come join us for another amazing day! @iamalsorg @loriandre3 @ALongSwim @DrOzdinler @LesTurnerALS @AndreaBackman05 @annemcintosh241 @conniembecker @sairysays @joshvons iamals.org/join-us-for-lo…
For those who could not make it, the recording of last week's ARC Town Hall is now available on our YouTube Channel. For those who attended, what did you think? Comment below and share the video to help us spread the word about ARC. als.net/als-town-hall/…
Join @limpbroozkit and I next week as we chat about Family & ALS with @youngfacesofals 🤗 #heralsstory #youngfacesofals #knuckleheads Posted @withregram • @youngfacesofals Although family dynamics are always different, one thing most of us have in common is wanting to find
ALS TDI is thrilled to announce the launch of the ALS Research Collaborative (ARC) – an ambitious global initiative developed to significantly accelerate the discovery of ALS treatments. Learn about how you can be a part of ARC at als.net/news/als-tdi-u… #ARC #ALSresearch #EndALS
*ALS life* A post from 12 days after I was diagnosed with ALS (2021). It took almost 3 years to officially say what I already knew. 1 year after diagnosis I started Toferson. I can't help but wonder if my 1st or even 2nd doctor took me serious about ALS, where would I be today?
Sometimes patients ask us what it means when we say that we work hand-in-hand with their existing care teams. It's a fair question--so, @DGeeEss1 wrote a blog post demystifying the process. synapticure.com/blog/the-art-o…
"Speed." "Hope." "Discover." "Something new." We think we're onto something when patient feedback sounds like this.
The services of the multidisciplinary clinic are irreplaceable. But they also don’t need to only be accessible in the clinic or all together at one time. Digitally led outpatient care is already dramatically improving care quality in every major disease, filing gaps in care.
The services of the multidisciplinary clinic are irreplaceable. But they also don’t need to only be accessible in the clinic or all together at one time. Digitally led outpatient care is already dramatically improving care quality in every major disease, filing gaps in care.

Brian Wallach @bsw5020
143K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
Kelsie Snow @kelsieswrites
58K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
AZ Latina ☮️🌊�... @aVoice4ALS
4K Followers 5K Following Advocate for Amyloidosis, ALS & Rare Diseases. Enviro Justice, Foster Care & Gun Safety. Love LA sports. @EndRareDiseases on bsky
Jamie Smith @JamieLW8
4K Followers 535 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
I AM ALS @iamalsorg
26K Followers 736 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
Mayuri Om Saxena @Mayuri_Saxena
9K Followers 574 Following 40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Seth Poling @SethPoling10
4K Followers 374 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_seth
Sarah Nauser @SarahNauser
13K Followers 557 Following Dominating ALS one day at a time since 2018. Retired Police Officer. “Love the life you live and live the life you love” Go Royals! 💙#FightLikeAGirl
Sandra W. Marlowe @sandrawmarlowe
3K Followers 933 Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
ALS TX DAD @AlsDads
2K Followers 840 Following
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 872 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
Stew @jonstew1982
2K Followers 184 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!
Girl Travelin Alone @CathyStandish
4K Followers 5K Following
Mandi @RunningMama0522
2K Followers 1K Following
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier. Animals are my Love!!
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
Aumwararfaw @Aumwararfaw827
16 Followers 1K Following
Keira Warren @Ywheqag695926
0 Followers 44 Following
ALS News Today @alsnewstoday
2K Followers 1K Following We are dedicated to sharing the latest news, research, and ALS patient perspectives.
Dakota Gleason @GleasonDak73296
128 Followers 4K Following
Drada @Drada902
19 Followers 2K Following
Quonpep @Quonpep206
31 Followers 2K Following
Orxapaux @Orxapaux463463
30 Followers 2K Following
Blawapie @Blawapie131557
23 Followers 663 Following
Bret Domrose @domrose_br88251
279 Followers 6K Following Musician, Film & TV Composer, Songwriter https://t.co/VKICNPf6tG
Auwucse @Auwucse382532
26 Followers 2K Following
Searteau @SearteauIy4opk
45 Followers 2K Following
babysbreath @babysbreat44868
41 Followers 4K Following
Dean @funatahisa56430
71 Followers 7K Following
Frances @Laundarphd7aqO
3 Followers 368 Following
june @HauneE6Cp2
4 Followers 332 Following
TETSUNAGI Consulting @tetsunagiconsul
5 Followers 97 Following Tetsu Yung: Biopharma PhD, Polyglot 🇯🇵🇨🇦🇹🇼🇲🇽🇫🇷, Finance MBA. Topics: Japan pharma/VC, Multilingual technical careers, and...anything you want to know!
Brian Heaney @BrianH991
125 Followers 341 Following Husband, father, sports fan, have ALS since 2009, use a wheelchair, go habs!
Suzan Cheng @SuzanCheng
41 Followers 451 Following
Olive @Olive738542
30 Followers 3K Following
Shessloo @ShesslooPQwV
9 Followers 586 Following
Shirley @TolothevL0
34 Followers 3K Following
Lyle Ostrow MD PhD @LyleOstrow
708 Followers 1K Following Neuromuscular doc/researcher @TempleNeurology @ALSHF. Director, ALS Postmortem Core collab w CDC ALS Registry. Chair, DoD ALS Res. Prog Panel. Views my own.
NEALS Consortium @NEALSConsortium
3K Followers 97 Following The NEALS Consortium is an international, independent, non-profit group of researchers who collaboratively conduct clinical research in ALS
Emily @SoneighthOGF2K
41 Followers 3K Following
MarciaCarllyle @5s6Z2xzg1AV93
77 Followers 6K Following
Teapan @teapan35415
82 Followers 7K Following A strong woman is one who is determined to do what others are determined not to do.
daniel alonso @danialonsoiel
947 Followers 7K Following
Michael Reynolds @MichaelRey44072
77 Followers 361 Following Spreading awareness about my daily struggles, living with ALS.
joyerble @joyerble
502 Followers 666 Following proverbs 19:17 whoever is generous to the poor lend to the lord,and he will repay him for his deed❤️⚓️
Roxanne @kishoumari44462
48 Followers 3K Following
Adream @Adream277315996
44 Followers 4K Following
DominicChurch @U5m8lc2108cwxR
57 Followers 7K Following
notthatcute @sparktime1
57 Followers 324 Following
ALS Clinic Advisor @ALSClinicSurvey
22 Followers 61 Following Provides ALS-patient reviews of ALS clinics.
Oumar Telly Bah @oumartellybah19
72 Followers 572 Following
Alyssa Nash @alyss21775
1K Followers 3K Following Strange and Unusual... but... Familiar🌻✨ 💖 She/Her... C9orf72 carrier... #EndtheLegacy 29. but feel 367 -stream of consciousness
Frederick Kushner MD @KushnerMD
208 Followers 301 Following Clinical and interventional cardiologist and professor
Debby @kanmonmaya27839
32 Followers 2K Following
HazelRosa @Zbr8i5R8527H1
27 Followers 3K Following
Benjamin Stephens @WayneStephens77
1K Followers 597 Following If you ain't tryin you're dying. ALS warrior and advocate!
Karin @Gweeds
741 Followers 2K Following . . give me some words I can dance to or a melody that rhymes. . .
Team Drea Foundation @TeamDreaFdn
513 Followers 222 Following Nonprofit & team of 200 athletes who have raised $750k to defeat ALS. Andrea is aiming to be the 1st person w/ ALS to do a marathon in all 50 states on a trike.
Jason Ford @JasonFord6
613 Followers 2K Following I help Biotechs, Pharma’s, & related nonprofits build successful organizations. Executive Search 🔁 Management Consulting. Former Korn Ferry & LEK.
Tee to Green @BlueFairways7
661 Followers 3K Following Golfer-Cannabis-MJ/MMJ advocate. Making better medicine.
Brian Wallach @bsw5020
143K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease. #ALSisHere #SoAreWe
Kelsie Snow @kelsieswrites
58K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswrites
Sandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama. Caregiver. CEO @synapticure providing medical care for Alzheimer’s, Parkinson’s and ALS. Co-founder @iamalsorg. EP @noc_film.
Jamie Smith @JamieLW8
4K Followers 535 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.
I AM ALS @iamalsorg
26K Followers 736 Following I AM ALS is the largest community movement made up of the very people living with, impacted by, and highly motivated to end ALS.
Mayuri Om Saxena @Mayuri_Saxena
9K Followers 574 Following 40yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4
Sarah Nauser @SarahNauser
13K Followers 557 Following Dominating ALS one day at a time since 2018. Retired Police Officer. “Love the life you live and live the life you love” Go Royals! 💙#FightLikeAGirl
Chris Snow @ChrisSnowCGY
24K Followers 188 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary Flames
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Girl Travelin Alone @CathyStandish
4K Followers 5K Following
Mandi @RunningMama0522
2K Followers 1K Following
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier. Animals are my Love!!
Steve Gleason - "Live... @SteveGleason
194K Followers 291 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
No More Excuses ALS W... @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
Mike Harrington @Shankapotomas
3K Followers 920 Following Just a dude with ALS. Not dead yet, though.
I’m Dying To Tell Y... @LorrisPodcast
1K Followers 861 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
Deb Paust @PaustDeb
1K Followers 691 Following Blessed mom, lover of snow, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Senator Sara Feigenho... @SenatorSara6
7K Followers 2K Following Proudly representing Illinois 6th Senate District on Chicago's north lakefront
Hillel Fuld @HilzFuld
189K Followers 972 Following Proud Zionist/Jew, Global Speaker (50+ cities), Tech Columnist, Advisor (Google, Microsoft, Oracle), Dad x5. Banned from Australia. We will dance again! 🇮🇱💪
Aviva Klompas @AvivaKlompas
273K Followers 4K Following Co-founder of Boundless 🌍 Former Head of Speechwriting at 🇮🇱 Mission to UN. Author. Speaker. Write on.
Jake Wallis Simons @JakeWSimons
65K Followers 3K Following Columns: @Telegraph. Podcast: @The_Brink_ (with @Mr_Andrew_Fox). Book: ‘Never Again? How the West Betrayed the Jews and Itself’. Also on Substack, radio and TV
Mark Cuban @mcuban
9.0M Followers 1K Following Dunking on the pharma industry with @costplusdrugs.com, the lowest prices on meds anywhere. check it out !
Rabbi Shmuley @RabbiShmuley
249K Followers 3K Following Rabbi Shmuley whom Newsweek & Wash Post call ''the most famous Rabbi in America'' is a world-renowned author of 31 books, broadcaster & relationships expert.
Mayim Bialik @missmayim
661K Followers 240 Following Mom, Actor, Author, Neuroscientist, #bialikbreakdown host, Lactation Educator Counselor
Captain Allen @CptAllenHistory
25K Followers 3K Following Lawyer & Historian with Passion for Jewish History/Identity Seeking to Empower Jews and the Curious from all Backgrounds with Knowledge and Analytical Skills
Noa Tishby @noatishby
269K Followers 705 Following 2x NYTimes best-selling author. Former Special Envoy for Combating Antisemitism. 📲 Text me 818-408-4344
Dr. Stacy Lewin @FarberStacy
504 Followers 413 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
Nate Methot @a_life_derailed
2K Followers 729 Following Author of "A Life Derailed: My Journey with ALS", a memoir 40 y/o living with #ALS since 2011. #EndALS #empathy Memoir and blog at https://t.co/lSqWxLqUXm
Anne McIntosh @annemcintosh241
155 Followers 554 Following Mom, Retiree, ALS widow. Leg Affairs Volunteer with https://t.co/uM0LQqcIJB
Troy Fields @Troy_W_Fields
629 Followers 226 Following Husband and father of 4 from PR #LIVINGwithALS in Tampa FL, Papi to 3 grandchildren and an ALS volunteer and advocate that bleeds USF green and gold.
heavy_sara @heavy_sara
1K Followers 226 Following ģ𝕒Mέ𝐑 * ALS fighter * twitch streamer * ĤⓊмⓐ𝐍 & 𝕕𝕠𝕘 mom * whiskey drinker * 𝖒𝖊𝖙𝖆𝖑𝖍𝖊𝖆𝖉
Your ALS Guide @YourALSguide
412 Followers 128 Following A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...
Luke Rosen @lukebrosen
2K Followers 423 Following Dad of two remarkable kids. Founder of https://t.co/GkrwXhfkoy & https://t.co/eWtcezWeJc. Works with families affected by neurological diseases & cancer. Firefighter. Baseball & hockey.
HopOnACure @HopOnACure
608 Followers 83 Following Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOv
Derek Swinnard @DSwinnard
114 Followers 205 Following
Synapticure @synapticure
4K Followers 485 Following Personalized virtual neurology care for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington's
Morris R1 Crew @R1_Crew
250 Followers 336 Following Faster & farther🌻 Share Your ALS Clinic Experience:https://t.co/C6jj5wYmQb
Phil Rosenthal @PhilRosenthal
94K Followers 399 Following Somebody Feed Phil Season 7 Streaming NOW on @Netflix | JUST TRY IT! Kids Book w/ Lily Rosenthal | Season 8 is coming!
Ashley Thombs @athombs
279 Followers 404 Following The past is prologue to a future. What it will be, I don’t know. END ALS
Keep Talking Podcast @Keep_Talking
100 Followers 68 Following "Keep Talking" exists to have conversations that might help to make a better society and culture. Follow along!: https://t.co/DMPh1TossW
Kathleen Rooney @KathleenPRooney
28 Followers 4 Following
Megan B. Miller @megbmiller
220 Followers 725 Following Neuroscientist, advocate, runner, traveler, mom. Tweets are my own.
Tim Lowrey @gatortimbo
479 Followers 635 Following Grateful and blessed to be married to Emily Wester Lowrey, UF Pharmacy '92, Buffalonian, Diehard Gator, Home remodeler, Avid reader of various, living with ALS
Jen Psaki @jrpsaki
1.3M Followers 1K Following Mom of two, proud politics and policy nerd, Host of @PsakiBriefing on @MSNBC, Tues-Fri at 9pm ET
Pat Dolan @Team_Thriving
866 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmapping
Jill Brattain @MommaJillB
563 Followers 551 Following Love my family, love my life, but most of all, Love God. Victim of the ALS beast. Miss my best friend.
Adam Grant @AdamMGrant
867K Followers 943 Following Organizational psychologist @Wharton. #1 NYT bestsellers: HIDDEN POTENTIAL, THINK AGAIN. Podcasts: Re:Thinking & WorkLife @TEDTalks. Former diver and magician.
Dr. Jennifer Leip @JenniferLLeip
1K Followers 996 Following Teacher at @Windsor_CSD and @BroomeBOCES, science nerd, dog lover, lifelong learner. Biology SAR for @STANYSOrg & @NSTA member. Mental health and ALS advocate.
Gia @giapolo86
546 Followers 163 Following hell hath no fury like a daughter fighting for her father's legacy #endALS #iamALS #actforALS
Karen Flannery @marksfor20
493 Followers 435 Following
Her ALS Story @HerALSStory
2K Followers 154 Following We are a group of women diagnosed with ALS before our 35th birthday who are challenging the stereotype that this is an old white man's disease.
Michele Stellato @shellymckenna
1K Followers 520 Following Communicator. A fan of kindness and living in the moment. ALS advocate.
Glennon Doyle @GlennonDoyle
283K Followers 2K Following ▫️Author of UNTAMED and LOVE WARRIOR ▫️Host of WE CAN DO HARD THINGS Podcast ▫️Founder of @togetherrising ▫️She/Her.
Christie Lightcap @c_lightcap
353 Followers 2K Following
Robin Kelly @RepRobinKelly
34K Followers 10K Following Official Twitter for Rep Robin Kelly #IL02 Member @EnergyCommerce, Co-Chair @CBWGCAUCUS & Chair of @TheBlackCaucus Health Braintrust
Bobby L. Rush @BobbyLRush
35K Followers 2K Following Father, Grandfather, Pastor, Activist, and former Congressman.