lori andre @loriandre3
Mother of 3 boys, wife of Brian Andre who was diagnosed with ALS in 2016. Chicago, IL Joined October 2018-
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I will be leaving X and will no longer be posting on this social platform until a public apology is forthcoming. Mr. Musk, your comments are offensive.
Sometimes it is the quietest power that brings a ray of hope to the room. #EndALS #SundayMorning
Sometimes it is the quietest power that brings a ray of hope to the room. #EndALS #SundayMorning
what an incredible community this is. big thanks to @SteveMadden @loriandre3 @CarolineTredwa1 Brian Andre, and all of the people behind the scenes for a beautiful event and daily commitment to @iamalsorg’s mission.
what an incredible community this is. big thanks to @SteveMadden @loriandre3 @CarolineTredwa1 Brian Andre, and all of the people behind the scenes for a beautiful event and daily commitment to @iamalsorg’s mission. https://t.co/P6DTmbaCq2
Found this yesterday on the beach. Life is so precious and the ALS community is reminded of that every day. This was a difficult few days for the ALS community, and I can’t help thinking about what @kelsieswrites said, “ hug your people”.
Today, I’m proud to share an exciting new resource that I helped build — Roon — an invaluable guide for people navigating ALS. Check it out:Roon.com.
Shout out to the flight attendants on @united flight 2008 from Chicago to Atlanta. The crew was exceptional. Bravo!
Meet the woman who’s determined to show the world what it is really like to live with ALS by sharing her journey on social media with grace and laughter. @SavannahGuthrie shares her story.
If only Becky were here with us today. #endals.
When living with #ALS, there are many assistive devices and strategies that can help you transfer safely either with or without caregiver assistance. Watch how-to videos and learn more on our new Transferring page: youralsguide.com/transferring-w…
In today's blog post, Dr. Geraldi Samara (@DGeeEss1) discusses anxiety, a widely experienced but little discussed symptom associated with #ALS. synapticure.com/blog/creating-…
Hey Chicago White Sox Fans! 52 Days until the 3rd Annual Lou Gehrig Day! Come join us for another amazing day! @iamalsorg @loriandre3 @ALongSwim @DrOzdinler @LesTurnerALS @AndreaBackman05 @annemcintosh241 @conniembecker @sairysays @joshvons iamals.org/join-us-for-lo…
For those who could not make it, the recording of last week's ARC Town Hall is now available on our YouTube Channel. For those who attended, what did you think? Comment below and share the video to help us spread the word about ARC. als.net/als-town-hall/…
Join @limpbroozkit and I next week as we chat about Family & ALS with @youngfacesofals 🤗 #heralsstory #youngfacesofals #knuckleheads Posted @withregram • @youngfacesofals Although family dynamics are always different, one thing most of us have in common is wanting to find
ALS TDI is thrilled to announce the launch of the ALS Research Collaborative (ARC) – an ambitious global initiative developed to significantly accelerate the discovery of ALS treatments. Learn about how you can be a part of ARC at als.net/news/als-tdi-u… #ARC #ALSresearch #EndALS
*ALS life* A post from 12 days after I was diagnosed with ALS (2021). It took almost 3 years to officially say what I already knew. 1 year after diagnosis I started Toferson. I can't help but wonder if my 1st or even 2nd doctor took me serious about ALS, where would I be today?
Sometimes patients ask us what it means when we say that we work hand-in-hand with their existing care teams. It's a fair question--so, @DGeeEss1 wrote a blog post demystifying the process. synapticure.com/blog/the-art-o…
"Speed." "Hope." "Discover." "Something new." We think we're onto something when patient feedback sounds like this.
The services of the multidisciplinary clinic are irreplaceable. But they also don’t need to only be accessible in the clinic or all together at one time. Digitally led outpatient care is already dramatically improving care quality in every major disease, filing gaps in care.
The services of the multidisciplinary clinic are irreplaceable. But they also don’t need to only be accessible in the clinic or all together at one time. Digitally led outpatient care is already dramatically improving care quality in every major disease, filing gaps in care.
Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswritesSandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.AZ Latina ☮️🌊�.. @aVoice4ALS
4K Followers 5K Following Political Junkie. Advocate for Enviro Justice, Foster Care, Gun Safety, DEI, Amyloidosis, PD, ALS & Rare Diseases. Love LA Sports. I block disrespectful people.Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4Seth Poling @SethPoling10
5K Followers 392 Following Wild & Wonderful WV. FSU grad. Married to @erika_poling , Father to Liam & Bayler, ALS Warrior & advocate. #EndALS Founder of @project_sethSarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirlSandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.ALS TX DAD @AlsDads
2K Followers 894 Following USAF Vet, Father of 4, background in Healthcare Management and Disaster Response Management, ALS (pALS) Advocate (views & comments are my own)ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.Stew @jonstew1982
2K Followers 193 Following Living with ALS, “If you’re not part of the solution then you are the problem.” Love my wife & kids more than ANYTHING!Mandi @RunningMama0522
2K Followers 1K FollowingALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.Tee to Green @BlueFairways7
834 Followers 3K Following Golfer-Cannabis-MJ/MMJ advocate. Making better medicine.Andrea Rudnik @speductr
148 Followers 829 Following Mom to 5, Grandma to 7, Episcopalian, retired VI teacher, #TeamBrownsville co-founder , serving asylum seekers in our border cities of Brownsville/MatamorosDeepaK Kumar @Deepak13900
15 Followers 141 Following A Father & Husband..... symptoms onset since 2021 waiting for my DxStephen Finger @srfinger
620 Followers 474 Following YHS '95. Princeton '99. Duke '08. Father of two, husband of 1. Former Econ prof at U. South Carolina. USMNT, Atlanta United, Gamecock fan. Living with ALS.LaVonne Roberts @LaVonneRoberts
4K Followers 2K Following Health, Tech & Science Journalist. Forbes 30 Under 30 Tech Reporter. Trustee Scott-Morgan Foundation. ALS Advocate.RD @RSD2024
965 Followers 4K FollowingC Lewis @cml86
2 Followers 2K FollowingMelissa Sweeney @MissyASweeney
47 Followers 1K FollowingFelicity @Felicit55315671
21 Followers 2K FollowingBritt Massei @brittmassei
178 Followers 417 Following Founder & CEO Whole in One Health. Bringing Health to the Information Age. Started with brain health @AlzMeterApp Seeking investor partners for The Big Build!Holley Broughton @holleybb
542 Followers 3K Following “You play the game in front of you.”-Nick Saban.#livingwithALSC. Zhang @Hansen_010101
15 Followers 81 FollowingTiger23 @Blayton1970
2K Followers 3K Following Auburn Alum living in Texas. America First!!! ALS Advocate. Lover of bourbonL Brielmaier @BrielmaierL
481 Followers 464 Following Engineer, @IEEEBrain, IEEE EMB, PLWALS, prog-rock, “Scientists investigate that which already is. Engineers create that which has never been.” Albert EinsteinKelley Cyr @ToInfinity9008
10 Followers 100 Following Veteran, photographer, astronomer, cat whisperer, living with ALS.Maddie Fowler @FowlerMadd12272
14 Followers 120 FollowingElin Adcock @elin_adcock
86 Followers 263 Following An ALS/FTD advocate and a vintage VW enthusiast, I am here to amplify voices, support caregivers, change healthcare policies and hoping to #endALS #fight2endALSLisel Fundichely-Cox @lfuncox
243 Followers 1K Following Authentic and enthusiastic Cuban girl raised in NJ. Love, work, travel! Female vocalist Epic Soul and Bus. Development Assoc, Mental Health and Substance AbuseDD Frederick @af_chief1970
2K Followers 3K Following Retired AF CMSgt. Husband, Father, Brother. Traditional Catholic, Constitutional Conservative Trump supporter. Please,🚫 DM, 🚫Porn.Liz text LOVE to 644-.. @makerisafer
3K Followers 3K Following Mom of 3 one with FUS-ALS P525L, RN BSN, art lover, @MomsDemand, hobby photographer, blood donor🩸 cyclist 🚴🏻♀️,#endals, grandma 💙 ♥️ #jacifusen #nurownChristian Rubio @ichristianr_
878 Followers 2K Following Digital strategist, community veteran, advocate for education to improve health outcomes working to advance treatments in CNS diseases. Tweets are my own!Lori Heller @HellerLori2018
63 Followers 189 Following “The thing I hated the most has become my purpose.” ALS Widow and advocate. Fighting for a cure.Seth Rotberg @Srotberg15
2K Followers 1K Following I help infuse the patient voice throughout drug development | #HuntingtonsDisease advocate | @Tedx Speaker | All views are my ownAndrea Goodman @andreaSgoodman
293 Followers 406 Following CEO @iamalsorg, formerly @ccalliance, dc mama, patient & social justice advocate. opinions are my own.Janine Galante @JanineGalante
1 Followers 55 FollowingBill P Fights @WilliamP_Sr
131 Followers 338 Following Love my family and God bless the USA 🦅. Whiskey on the rocks. In the fight of my life. I hate ALS!!!!Michael Wilson @MichaelWheelson
127 Followers 258 Following Husband and Dad. Mechanical Engineer. Jedi in Training, but still can't master art of itching my own face. ALS'ing since Feb. 2017.KEMAL OZ2023 @kemaloztly
10 Followers 382 Following Sadece önem verip takip ettiklerim için açtığım bir hesaptır. Takip ettiğim kişilerin dışında gelen istekleri kabul etmiyorum.Live Like Lou @LiveLikeLou4
785 Followers 446 Following Leaving ALS better than we found it #ONWARD #LiveLikeLouShelley Baumgartner @6baums
87 Followers 276 Following Army Veteran, Nurse Practitioner, Wife, Mother of 4, Patriot!Michael Campbell @ObispoSouth
122 Followers 255 Following 'Life is What Happens To You While You're Busy Making Other Plans.' John Lennon #EndALS #Fight2EndALSJim Foot @JimfightsALS
446 Followers 822 Following Retired Engineer. Worked for the TSB of Canada. Now living with ALS but have a wonderful caregiver and 3 grandsons who take our minds off other problems.Betty’s Brigade Fou.. @No_More_ALS
347 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & fundingCarol Elsen Godfrey @caroljgodfrey
313 Followers 604 Following cares intensely about making lives better ... thru education, thru inclusion & thru advancing treatments & cures for ALS! Wife to Gary Godfrey, @garygodfrey25Eileen Kelley @Eileen123Kelley
77 Followers 988 FollowingAmy Stiens @StiensAmy
75 Followers 197 Following Battling a Terminal Illness. ALS. Trying to spread awareness about this awful disease . A wife, mom of 3 amazing kids. I love watching @Bengals @Reds . ❤️SeanBoss @Humbl4now
203 Followers 475 Following Mostly here just to follow stocks and news. Also quickly becoming a passionate ALS advocate. Google Nurown - Approval needed ASAP along with more treatments.LG4 @LG4HAT
63 Followers 188 Following The LG4 Hats seeks to both spread awareness about the disease and pay tribute to Gehrig’s legacy. Every hat you purchase, ALL the proceedsアラフォーALS @ALS7693636895
1K Followers 5K Following 2023年にALS(筋萎縮性側索硬化症)という難病の確定診断を受けました。同じ病気を持つ方々や、難病、障がいをお持ちの当事者及び支援者へ向けて、色々と発信していこうと考えています。All is Well: Lessons @AllsWell333
619 Followers 4K Following “All is Well: Life Lessons from a Preacher’s Father” by Kevin Martin Jr, a story of love and lessons from his dad. All profits to #ALS. #Deacon #CPATri-State Trek @TriStateTrek
983 Followers 2K Following We can't wait to see you June 22-23, 2024 for the Tri-State Trek! #EndALS #WeAreTrekFamily🚴♀️🚴♂️ Raising funds for ALS research at @alstdi.Laura Hanson @lamhanson
714 Followers 495 Following Living with ALS since mid 2019. I carry the C9orf72 mutation. Living everyday with focus on the present. Grateful for the wonderful & powerful ALS community 💕Brian Wallach @bsw5020
159K Followers 3K Following Dad, husband, activist, entrepreneur, unlikely movie star, living with ALS, a currently fatal disease.Kelsie Snow @kelsieswrites
61K Followers 1K Following Storyteller, writer, podcaster @sorryimsadpod, ALS advocate, widow, mom, dual citizen (🇨🇦🇺🇸). Instagram & TikTok: kelsieswritesSandra Abrevaya @sabrevaya
21K Followers 4K Following Wife to @bsw5020. Mama to spunky girls. Caregiver. CEO & Co-founder @synapticure. Co-founder @iamalsorg. Executive Producer @noc_film. All in on curing ALS.Jamie Smith @JamieLW8
4K Followers 567 Following Mother I Widow I Pediatric Respiratory Therapist Fighting for reform in health care and research for ALS.I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.Mayuri Saxena @Mayuri_Saxena
9K Followers 607 Following 39yo living with ALS on Life support. Author. Creative Director. Advocate. Dreamer. Public Servant. ALSFRS 1/48 https://t.co/vibJSKdIl4Sarah Nauser @SarahNauser
12K Followers 517 Following Dominating ALS one day at a time. “Love the life you live and live the life you love” Go Royals! #FightLikeAGirlChris Snow @ChrisSnowCGY
26K Followers 194 Following Husband & Dad | Walking science experiment | Determined to beat ALS & win a Stanley Cup | Citizen of both 🇺🇸🇨🇦 | Assistant General Manager, Calgary FlamesALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.Mandi @RunningMama0522
2K Followers 1K FollowingALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.Steve Gleason - "Live.. @SteveGleason
199K Followers 247 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNowMike Harrington @Shankapotomas
3K Followers 930 Following Just a dude with ALS. Not dead yet, though.I’m Dying To Tell Y.. @LorrisPodcast
1K Followers 869 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcastDeb Paust @PaustDeb
1K Followers 724 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTroubleAviva Klompas @AvivaKlompas
313K Followers 4K Following Co-founder of Boundless 🌍 Former Head of Speechwriting at 🇮🇱 Mission to UN. Author. Speaker. Write on.Jake Wallis Simons @JakeWSimons
45K Followers 2K Following Editor, Jewish Chronicle. Author of Israelophobia (Telegraph book of the year). Columns for Sunday Telegraph and Spectator. Sky broadcasterMark Cuban @mcuban
8.8M Followers 2K Following Dunking on the pharma industry with @costplusdrugs.com, the lowest prices on meds anywhere. check it out !Rabbi Shmuley @RabbiShmuley
248K Followers 3K Following Rabbi Shmuley whom Newsweek & Wash Post call ''the most famous Rabbi in America'' is a world-renowned author of 31 books, broadcaster & relationships expert.Mayim Bialik @missmayim
701K Followers 231 Following Mom, Actor, Author, Neuroscientist, #bialikbreakdown host, Lactation Educator CounselorOli London @OliLondonTV
390K Followers 3K Following 📖Author | 📺 News Contributor | 🗣️Public Speaker |📚Get Gender Madness⬇️Captain Allen @CptAllenHistory
18K Followers 3K Following Lawyer & Historian with Passion for Jewish History/Identity Seeking to Empower Jews and the Curious from all Backgrounds with Knowledge and Analytical Skills(((noa tishby))) @noatishby
239K Followers 375 Following Former Special Envoy for Combating Antisemitism and Delegitimization of Israel. Mom. Author. Acting. Producing.Dr. Stacy Lewin @FarberStacy
469 Followers 438 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS WarriorNate Methot @a_life_derailed
2K Followers 777 Following Author of "A Life Derailed: My Journey with ALS", a memoir 39 y/o living with #ALS since 2011. #EndALS #empathy #awareness Memoir and blog at https://t.co/lSqWxLqUXmAnne McIntosh @annemcintosh241
128 Followers 550 Following Mom, Retiree, ALS widow. Leg Affairs Volunteer with https://t.co/uM0LQqcIJBTroy Fields @Troy_W_Fields
676 Followers 238 Following Husband and father of 4 from PR #LIVINGwithALS in Tampa FL, Papi to 3 grandchildren and an ALS volunteer and advocate that bleeds USF green and gold.heavy_sara @heavy_sara
1K Followers 235 Following ģ𝕒Mέ𝐑 * ALS fighter * twitch streamer * ĤⓊмⓐ𝐍 & 𝕕𝕠𝕘 mom * whiskey drinker * 𝖒𝖊𝖙𝖆𝖑𝖍𝖊𝖆𝖉Your ALS Guide @YourALSguide
386 Followers 64 Following A user-friendly website where people living with ALS, caregivers, and professionals can find educational guides, expert video clips, resources, and more...Luke Rosen @lukebrosen
2K Followers 432 Following Dad of 2 amazing kids. Founder of https://t.co/M8dxuYqmgL. Works with families affected by rare neurological diseases and cancer. Baseball and hockey. Firefighter.HopOnACure @HopOnACure
520 Followers 61 Following Help us Hop On A Cure for ALS by donating at https://t.co/Gcrh1a8rOvDerek Swinnard @DSwinnard
131 Followers 201 FollowingSynapticure @synapticure
4K Followers 505 Following Personalized virtual clinical care is finally here for neurodegenerative diseases like Alzheimer's and related Dementias, Parkinson's, ALS, and Huntington'sMorris R1 Crew @R1_Crew
274 Followers 365 Following Faster & farther🌻 Share Your ALS Clinic Experience:https://t.co/C6jj5wYmQbPhil Rosenthal @PhilRosenthal
105K Followers 424 Following ‘Somebody Feed Phil’ Season 6 Now Streaming.... Creator: Somebody Feed Phil-Netflix, Everybody Loves Raymond, I'll Have What Phil's Having, Naked Lunch PodcastAshley Thombs @athombs
301 Followers 417 Following The past is prologue to a future. What it will be, I don’t know. END ALSKeep Talking Podcast @Keep_Talking
112 Followers 68 Following "Keep Talking" exists to have conversations that might help to make a better society and culture. Follow along!: https://t.co/DMPh1TossWKathleen Rooney @KathleenPRooney
32 Followers 4 FollowingMegan B. Miller @megbmiller
223 Followers 756 Following Neuroscientist, advocate, runner, traveler, mom. Tweets are my own.Tim Lowrey @gatortimbo
450 Followers 638 Following Grateful and blessed to be married to Emily Wester Lowrey, UF Pharmacy '92, Buffalonian, Diehard Gator, Home remodeler, Avid reader of various, living with ALSPete Spencer @New_Spence
392 Followers 212 Following Retired educator. Current retailer at L.L.Bean and ALS advocate. Husband and dad who likes time on a trail, around a campfire and in a tent.Jen Psaki @jrpsaki
1.4M Followers 1K Following Mom of 2, Host of @InsideWithPsaki on Sundays at Noon ET on @MSNBC. For more on Say More Book tour: https://t.co/uLFVqXDYXiPat Dolan @Team_Thriving
952 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmappingJill Brattain @MommaJillB
546 Followers 560 Following Love my family, love my life, but most of all, Love God. Victim of the ALS beast. Miss my best friend.Adam Grant @AdamMGrant
852K Followers 965 Following Organizational psychologist @Wharton. #1 NYT bestsellers: HIDDEN POTENTIAL, THINK AGAIN. Podcasts: Re:Thinking & WorkLife @TEDTalks. Diver.Dr. Jennifer Leip @JenniferLLeip
1K Followers 1K Following Teacher at @Windsor_CSD and @BroomeBOCES, science nerd, dog lover, lifelong learner. SWD/ELL SAR for @STANYSOrg & @NSTA member. Mental health and ALS advocate.Gia @giapolo86
610 Followers 169 Following hell hath no fury like a daughter fighting for her father's legacy #endALS #iamALS #actforALSKaren Flannery @marksfor20
260 Followers 391 FollowingHer ALS Story @HerALSStory
2K Followers 165 Following We are a group of women diagnosed with ALS before our 35th birthday who are challenging the stereotype that this is an old white man's disease.Michele Stellato @shellymckenna
1K Followers 540 Following Communicator. A fan of kindness and living in the moment. ALS advocate.Glennon Doyle @GlennonDoyle
316K Followers 2K Following ▫️Author of UNTAMED and LOVE WARRIOR ▫️Host of WE CAN DO HARD THINGS Podcast ▫️Founder of @togetherrising ▫️She/Her.Robin Kelly @RepRobinKelly
35K Followers 11K Following Official Twitter for Rep Robin Kelly #IL02 Member @EnergyCommerce, Co-Chair @CBWGCAUCUS & Chair of @TheBlackCaucus Health BraintrustBobby L. Rush @BobbyLRush
39K Followers 2K Following Father, Grandfather, Pastor, Activist, and former Congressman.Mike Quigley @RepMikeQuigley
51K Followers 2K Following Representing Illinois' 5th District. House Appropriator & head Dem on THUD Sub, amateur hockey player, proud Cubs fan. He/Him.Jan Schakowsky @janschakowsky
54K Followers 2K Following Official Twitter account for Rep. Jan Schakowsky, Illinois 9th Congressional DistrictWe have not forgotten. You are loved. Stay strong. Survive. #Bring_Hersh_Home #BringThemAllHomeNOW
My cousins planted this tree the year we were diagnosed. Today it’s blooming and I’m grateful that Brian is still alive to see another Spring.
We love you. We miss you. Stay strong. We're fighting for you. #BringThemAllHomeNOW #Bring_Hersh_Home
Letting my dad do my makeup #dad #fail #makeup #makeover #als @patricktabeauty @Weleda @drunkelephantjp @nudestix
Hostage Hersh Goldberg-Polin’s parents: “Seeing the video of Hersh today is overwhelming. We are relieved to see him alive but we are also concerned about his health and wellbeing as well as that of all the other hostages and all of those suffering in this region. We are here…
That was the perfect day to be the last time I golfed. Thank you for reminding me that I was athletic at one time. Love you Brother!
@pjgreen with a routine birdie! #TorreyPinesSouth 4-23-2018
A message from Rachel - "I wanted to share something that I learned with you. This is going to be the hardest Seder that we have ever had and we will use this Seder as a tefillah - a prayer for the hostages to get through another night of darkness and come home to us safe so…
@CollinRugg @luketress Instead of deactivating the ID’s of the pro-Hamas mob, @Columbia punished @ShaiDavidai, the one Jewish Israeli professor actually standing up for the Jewish students.
Tonight, Jewish families around the world will begin the celebration of Passover with the traditional seder meal. Michelle and I loved the seders we held in the White House, and the story of Passover – with its focus on resilience, redemption, and renewal in the face of…
A group of kids came to my door. I am used to this because of my daughter’s friends but this was different. They were here to give me the money that they had raised with a lemonade stand to fight ALS. I am amazed by their kindness and inspired by them. Good night Moon.
Dear Every ALS Neurologist, Look at the navigator below. It makes EAP requests easy peasy. Thanks, @reaganudall
#ExpandedAccess may be an option for patients with life-threatening diseases or conditions to try investigational medical products when there are no other options available. Learn more: navigator.reaganudall.org #physicians #healthcare
I’m super excited to be a part of Publication Review #1! Mark your calendar and stay tuned for more info!
Introducing our ALS Research Publication Review series. In collaboration with @NEALSConsortium. This initiative is designed to connect the #ALScommunity w/the brilliant minds behind important #ALSresearch publications. Stay tuned for more details on Pub Review #1 coming soon.
"The most important element is determination. It's knowing that while the disease has only one direction to go, so do you. We do not give up, not today, not any day. You accept every moment for what it is and the victory of perseverance that it represents." -Sundeep 2020 #EndALS
My osprey friend stopped by to grill out today!! Told him I needed a bigger grill …I love that bird 😂
What a remarkable evening at the @LesTurnerALS Hope Through Caring Gala honoring two ALS forces: @MeritCudkowicz & Dr. Anne Lidsky These incredible women have poured their unique expertise, passion & heart into the #ALS community for decades 🌻 #EndALS #NeverGivingUp
Dr Merit Cudkowicz received award at the Les Turner Gala. The NU-9 team had a chance to meet. Let’s move NU-9 forward with science, love and determination.
An incredible Sunday in Chicago w/ @DrOzdinler 🌻
Dear @sandymorris333 I was with your daughter this morning. You were here with us! I miss you, I love you.. let’s cure ALS!!