Brian Donovan @CheckBd
Diagnosed with ALS in 2024, but embracing hope. A proud husband, dad, and granddad, believe in future breakthroughs and cherish every family moment. Canada Joined January 2021-
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Despite clear instructions not to roll over my GIC, it was done without my consent. I’ve requested a transfer to my @Manulife RRSP group retirement account 4 times via "Send Documents," but after weeks of delays and mismanagement, the issue remains unresolved.
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I have ALS, and my legs are giving out. I'm covered 100% for a walker from @SunLifeCA @SunLife , but they keep refusing my claim, calling it a transport chair. They're playing with semantics to deny coverage. medicus.ca/en/our-product…
MediciNova, Inc. @MediciNovaInc
173 Followers 172 Following A publicly traded (Nasdaq: MNOV) biopharmaceutical company that is developing novel therapeutics for disorders with unmet medical needs.
Tatoyp @TatoypAZnmoWt
79 Followers 4K Following
Luana @sevendayyyy
43 Followers 601 Following Life is best when you know how to overcome life's difficulties and also appreciate the warmth of time.
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Michael Wilson @MichaelWheelson
165 Followers 384 Following Mechanical Engineer. Star Wars better than Star Trek. Agnostic Atheist. ALS'ing since Feb. 2017.
jo baby 183 @183_jo
4K Followers 6K Following My father went in on OMAHA 2nd wave. Blue star mom 🇺🇸🇺🇸🇺🇸ER RN decades. No lists please
Mark Kirton @KirtSpeaksALS
2K Followers 1K Following Former NHLer (Tor, Det. & Van.), Married & father of 3. Diagnosed with ALS in 2018… Symptom onset 2015. Member of ALSAC and pushing for a cure.
FxFormularies @LiquidHope
3K Followers 6K Following World's 1st award-winning #organic #wholefoods #feedingtube formula. Doctor approved, RD recommended! Whole foods for the whole body since 2006♡
Farmstrong @farmstronginfo
1K Followers 4K Following Fan of good UX & #techcomm. Together we can save my husband & hundreds of thousands who TODAY battle #ALS. #EsriMaps #DyingWaiting #BLM #LGBTQIA #mirfanda
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
Lyle Ostrow MD PhD @LyleOstrow
707 Followers 1K Following Neuromuscular doc/researcher @TempleNeurology @ALSHF. Director, ALS Postmortem Core collab w CDC ALS Registry. Chair, DoD ALS Res. Prog Panel. Views my own.
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following ALS we are coming for you. Widowed by ALS and still fighting it.
Smeausm @Smeausm153049
112 Followers 2K Following
c le @ClaudiaBarnard8
2K Followers 3K Following I use this account to retweet things I don't want to forget.
Billie @hart_billie19
272 Followers 3K Following
Jennie Starkey @StarkeyJennie
620 Followers 408 Following Mum of 4, educator, diagnosed with MND Sept 2021. retired through ill health, Raising MND awareness through humour (sometimes dark) with my blog.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 872 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for ALS.
Longitude Prize on AL... @longitude_prize
6K Followers 2K Following Join us in bringing AI to the fight against ALS. Learn more about the Longitude Prize on ALS at our website, and follow us for updates.
Neuroscience News @NeuroscienceNew
505K Followers 5K Following Official Neuroscience News Twitter. Brain research news articles on neuroscience, psychology, AI, neurology, brain cancer, robotics, mental health & science.
CReATeRDCRN @CReATeRDCRN
217 Followers 8 Following CReATe is an NIH-funded clinical research consortium focused on therapy development for ALS and related disorders (PMA, PLS, HSP, FTD, MSP).
Neurizon @Neurizon_ltd
2K Followers 3K Following Neurizon Therapeutics (formerly PharmAust) is a clinical-stage biotechnology company dedicated to advancing treatments for neurodegenerative diseases. ASX: NUZ.
MND Research Australi... @MND_RIA
2K Followers 403 Following Motor Neurone Disease Research Australia has built & sustained MND research nationally for 40 yrs. MNDRA is the research arm of MND Australia.
Brad Turner @turnerMNDlab
1K Followers 852 Following Head of ALS/MND Lab | Florey Institute | University of Melbourne | Australia | Passionate ALS researcher striving for a cure
The Florey @TheFlorey
9K Followers 981 Following The largest brain research centre in the Southern Hemisphere.
Amprion @AmprionDx
17 Followers 45 Following Amprion is the global leader advancing diagnosis of neurodegenerative disorders like Alzheimer's and Parkinson's disease through seed amplification testing.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
uniQure @uniQure_NV
3K Followers 131 Following uniQure is delivering on the promise of gene therapy - single treatments with potentially curative result for patients with severe genetic diseases.
Robert Packard Center... @packardcenter
2K Followers 675 Following The Packard Center enables the best ALS scientists to collaborate and develop new treatments and find a cure for ALS, also known as Lou Gehrig’s disease.
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Wilfried Rossoll @RossollLab
1K Followers 669 Following translational Neuroproteomics Lab | We study protein (dis)aggregation in ALS/FTD, AD, and other neurodegenerative proteinopathies. (Views are my own.)
Devesh Pant @deveshcp
269 Followers 409 Following Dedicated to advancing research in rare human juvenile & adult neuromuscular disorders 🦓. Opinions are my own
UK MND Research Insti... @UKMNDRI
628 Followers 65 Following A national network of MND centres that work together to understand how #MND happens, what treatment works, and test possible treatments in clinical trials.
CDMRP @CDMRP
4K Followers 899 Following Transforming Healthcare Through Innovative and Impactful Research. Follows & Retweets ≠ Endorsement
King's MND Centre @kingsmnd
2K Followers 322 Following MND Care & Research Centre. Motor Nerve Clinic at Kings College Hospital. Internationally renowned for research & excellence in care. Contact us [email protected]
MND Research @mndresearch
612 Followers 183 Following We fund cutting-edge #MND #ALS research in the UK and worldwide. 🔬 Join us at the largest international conference dedicated to ALS/MND #alsmndsymp
Lizzie Dellar @LizzieDellar
614 Followers 904 Following Postdoc at @MNDOxford, working on protein biomarkers of MND and Extracellular Vesicles. Otherwise found water-colouring, board-gaming and tea-drinking.
Sarepta Therapeutics @Sarepta
6K Followers 62 Following Commercial-stage biopharma company focused on the discovery & development of precision genetic medicine to treat rare neuromuscular diseases. https://t.co/HFP4txOCxe
FrattaLab @FrattaLab
981 Followers 202 Following FrattaLab @UCLIoN working on #RNA biology of #ALS and #SBMA and #Kennedy's disease
Dr Ahmad Al-Khleifat @AhmadAlKhleifat
2K Followers 333 Following Clinician and Scientist interested in ALS genetics. King’s College London @kingsmnd
Dr. Stacy Lewin @FarberStacy
506 Followers 413 Following Wife to a loving husband, Mom to 2 awesome young men, Mom to one adorable doodle fur baby, Anesthesiologist and a lucky daughter, sister, & friend #ALS Warrior
Mark Kirton @KirtSpeaksALS
2K Followers 1K Following Former NHLer (Tor, Det. & Van.), Married & father of 3. Diagnosed with ALS in 2018… Symptom onset 2015. Member of ALSAC and pushing for a cure.
Athira Pharma @athirapharma
1K Followers 644 Following Restoring lives by advancing bold therapies for neuronal health, thoughtfully and urgently.
MND-SMART @mndsmart
1K Followers 968 Following Innovative UK MND clinical trial from Euan MacDonald Centre for MND research at @EdinburghUni. Designed alongside people with MND. Searching for new treatments.
ALS Society of BC @ALS_BC
806 Followers 326 Following To cure ALS through funding research, while advocating for and supporting people living with ALS.
L Brielmaier @BrielmaierL
551 Followers 479 Following Engineer, @IEEEBrain, IEEE EMB, PLWALS, prog-rock, “Scientists investigate that which already is. Engineers create that which has never been.” Albert Einstein
Foundation for the Na... @FNIH_Org
5K Followers 2K Following The Foundation for the National Institutes of Health (FNIH) builds and nurtures scientific partnerships to make important health discoveries possible.
MQ Dementia Research ... @MQ_DRC
392 Followers 183 Following Official Twitter account of the Dementia Research Centre @Macquarie_Uni. Follow for the latest news, publications and events happening within the Centre.
Ionis @ionispharma
5K Followers 464 Following Delivering innovative medicines to patients where no others have proven effective or existed. See our community guidelines: https://t.co/HWH9JQRBR2
Project ALS @ProjectALSorg
6K Followers 675 Following Project ALS identifies and funds the most promising scientific research that will lead to the first effective treatments and, ultimately, a cure for ALS.
EndTheLegacy @End_The_Legacy
388 Followers 61 Following Patient led organization providing education and support , and advocating for, those impacted by Genetic ALS and FTD.
Aclipse Therapeutics @AclipseOne
44 Followers 6 Following Aclipse Therapeutics develops novel and highly differentiated therapeutics to treat diseases with significant unmet medical needs.
Alopecia UK @AlopeciaUK
6K Followers 484 Following UK Registered Charity providing support, community, and education to improve the lives of those affected by alopecia.
National Alopecia Are... @NAAF_org
6K Followers 179 Following NAAF drives research to find a cure and accessible treatments for alopecia areata, supports those impacted, and educates the public about the disease.
Geoff Burrow @burrow_geoff
11K Followers 194 Following Husband to my beautiful wife, Irene, and Proud Dad and Grandad. Fighting to find a Treatment and Cure for MND - we are SO CLOSE 👍👊🤞
Darby Rimmer MND Foun... @DarbyRimmerMND
10K Followers 123 Following Email: [email protected] Website: https://t.co/k7QNaUrRlJ Instagram: darbyrimmermnd #AttackMND
Tammy Moore @temerityTM
2K Followers 2K Following Digging in. ALS Canada CEO. Finding adventure and appreciation in the everyday - seize the day because life is too damn short. Be bold.
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London Co-Director UK MND Research Institute MND ALS Specialist. @ammaralchalabi.bsky.social
Lyle Ostrow MD PhD @LyleOstrow
707 Followers 1K Following Neuromuscular doc/researcher @TempleNeurology @ALSHF. Director, ALS Postmortem Core collab w CDC ALS Registry. Chair, DoD ALS Res. Prog Panel. Views my own.
Calico @calico
8K Followers 41 Following Calico is a research and development company tackling one of life's greatest mysteries, the biology that controls human aging.
Prilenia @PrileniaTx
2K Followers 261 Following Clinical stage biotech company focused on developing novel treatments for neurodegenerative and neurodevelopmental disorders
Corcept Therapeutics @Corcept
249 Followers 7 FollowingTrends for United States
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