ALS United Orange County @ALSUOCC
ALS United Orange County supports patients and families living with ALS alsuoc.org Orange County, California Joined February 2009-
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Please join us today at 1:30pm for our Virtual Support Group meeting with Marilene Regaliza from ARCHANGEL Care Services. Marilene will be discussing the services and benefits of her company. See flyer for details. Hope to see you there!
Please join us tomorrow for our Virtual Support Group meeting at 1:30 PM. We will have Marilene Regaliza speaking about ARCHANGEL Care Services. See flyer for details. Hope to see you there!
Please join us for our Virtual Support Group meeting on Wednesday, February 21, 2024 at 1:30pm. We will have Marilene Regaliza speaking about ARCHANGEL Care Services, LLC and their benefits of service. See flyer below. Hope to see you there!
Join us for our Virtual Support Group meeting on Wednesday, February 21, 2024 at 1:30pm. We will have Marilene Regaliza as our guest speaker from ARCHANGEL Care Services LLC. See flyer for details. Hope to see you there!
Please join us today at 12:00pm for our Virtual "Ask the Expert Nutritionist" and ask anything you want about nutrition. Yi Min Teo, RD will be available to answer all your questions. See flyer for details. Hope to see you there!
Please join us tomorrow, Friday, February 9, 2024 for our "Ask the Expert Nutritionist" virtual meeting at 12:00pm. See flyer for details. Hope to see you there!
Please join us tomorrow, Wednesday, February 7, 2024, at 6:00pm for our February In Person Support Group meeting. We will have Marilene Regaliza from ARCHANGEL Care Services, LLC speaking to us about their services. See the flyer for details.
Please join us tomorrow, Wednesday, February 7, 2024, at 6:00pm for our February In Person Support Group meeting. We will have Marilene Regaliza from ARCHANGEL Care Services, LLC speaking to us about their services. See the flyer for details.
Please join us on Wednesday, February 7, 2024, at 6:00pm for our February In Person Support Group meeting. We will have Marilene Regaliza from ARCHANGEL Care Services, LLC speaking to us about their services. See the flyer for details.
Are you looking for a shower bed? We have one! Please email us at [email protected] or call us at 714-285-1088 if you are interested.
Breaking News: Health insurers will have to provide coverage decisions on urgent treatment requests within 72 hours for patients in Medicare Advantage, Medicaid or Affordable Care Act plans. Read more here: tr.ee/6h_8id2jAq and here: tr.ee/qYroNS6yST
Please join us today, January 17, 2024, for our Virtual Support Group meeting at 1:30pm. We will have Silvia Gonzalez from Tandem Care, Inc discussing their benefits and services. See flyer for details. Hope to see you there.
Please join us tomorrow for our January Virtual Support Group meeting at 1:30pm, January 17, 2024. We will have guest speaker Silvia Gonzalez discussing Tandem Care, Inc. See flyer for details. Hope to see you there!
Please join us tomorrow, Friday, January 12, 2024, at 12:00pm for our January Expert Nutritionist meeting. We will have Yi Min Teo, RD to answer all your nutrition questions. Please see flyer for details. Hope to see you there!
Please join us for our Virtual Expert Nutritionist meeting with Yi Min Teo, RD this Friday, January 12th at 12:00pm. She will be available to answer all your nutrition questions. Please see flyer for details. Hope to see you there!
Are you looking for a shower bed? This item was recently donated to our loan closet. Please contact us at [email protected] or call us at 714-285-1088 if you are interested or have any questions about this item.
Please join us this Friday, January 12, 2024 at 12:00pm. We will be asking Yi Min Teo, RD questions about nutrition. Do you have a nutrition question you have been wondering about? Ask the Expert Nutritionist! See flyer for details. Hope to see you there.
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Mary Kay Turner @MaryKayTurner1
1K Followers 716 Following Government Affairs | Health Policy| Mom| Dog Lover | Oregon Ducks Fan| Traveler| Defender of Biopharma | Innovation Matters | ALS Advocate| Opinions Are My Own
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier.
BrainStorm @BrainstormCell
5K Followers 777 Following BrainStorm Cell Therapeutics, Inc. (NASDAQ: BCLI) is a clinical-stage biotechnology company developing autologous cell therapies for neurodegenerative diseases.
Anthony Carbajal @carbajalphoto
14K Followers 3K Following
I’m Dying To Tell Y.. @LorrisPodcast
1K Followers 869 Following Midwest Momma & Wife. ALS Warrior for 20 years. Host of I’m Dying To Tell You Podcast. Living Faith Over Fear. Instagram: imdyingtotellyoupodcast
Les Turner ALS Founda.. @LesTurnerALS
4K Followers 575 Following The leader in comprehensive #ALS care in Chicagoland
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
Hope Loves Company @HopeLovesCo
2K Followers 3K Following HLC is the only nonprofit in the U.S. dedicated to supporting children and young adults who had or have a loved one battling #ALS. We provide Camp HLC & more.
Dr. Nadia Sethi @nadia_sethi
2K Followers 2K Following Director, Community Outreach and Engagement at ALS TDI. ALS we are coming for you. Widowed by ALS and still fighting it. Views expressed here are my own.
Amylyx @AmylyxPharma
3K Followers 451 Following Committed to one day end the suffering caused by #neurodegenerative diseases. See our community guidelines here: https://t.co/i5gqgm9S2l
Hande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
Gia Pates @gia_pates16277
50 Followers 5K Following
Ferne Heilman @FerneHeilm82250
38 Followers 5K Following
ᴊᴀɴɪᴇ🫧 @plainJaniexx
2K Followers 2K Following you can’t have everything, where would you put it? #GoTiges #FightMND #FuckALS #Fight4Jon 💛🖤
Cherish Brakeman @BrakemanCh489
59 Followers 5K Following
Genoveva Hausrath @HausraGenov
63 Followers 5K Following
Jonelle Weiner @wein_jone
69 Followers 5K Following
Margot Briel @BrielMargo23389
90 Followers 5K Following
Matilda Burga @BurMatild
9 Followers 2K Following
Amy Lynn DelFratte @suzabella603
67 Followers 100 Following Experienced P2P fundraising professional with a demonstrated history of working in the non-profit organization management industry.
Jinny Kneip @jinny62401
14 Followers 2K Following
Alyssa Deeken @DeekeAlyss
40 Followers 5K Following
The50PlusTalk! @LeighBroadway
2K Followers 5K Following On-Air Talk Show Host/#The50PlusTalk #EducateEquipInspire/#AARP Family Caregiver Advocate/Intercessory Prayer Ministry Volunteer/ #SaddlebackChurchLakeForest
Center for Medicare A.. @CMAorg
5K Followers 2K Following A national nonpartisan, nonprofit law organization working to advance access to #healthequity, comprehensive #Medicare, and quality #healthcare.
Charles Boesch @CharlesCha449
27 Followers 80 Following Recently widowed and diagnosed with Multiple Symptoms Atrophy, a degenerative neurological disorder similar to Parkinson’s. please get in touch.
Lena Reynolds @ReynoldsLe95457
24 Followers 5K Following
Soosisesh @soosisesh73543
53 Followers 2K Following
Danielle @Daniell15547524
27 Followers 2K Following
Fern Lapenta @lape_fer
40 Followers 5K Following
𝐘𝐚𝐬𝐢𝐧 .. @iamyasinpolat
1K Followers 4K Following 🔬 Science & Book Lover | Co-Founder at Bioengineering Global 🧬 | Founder at @UNILABGlobal & @UNILABTurkiye | #BioInformatics #Researcher #Neuroscience
Katharina Divers @DiverKathari
49 Followers 5K Following
Izzie Fallago @fallago1837
39 Followers 5K Following
Hani Nadhir @NadhirHani5226
9 Followers 164 Following
Isobel Hinch @hinch_iso
44 Followers 5K Following
Gianna Arntzen @gia_arntz
37 Followers 5K Following
Maisie Lench @MaiLench
49 Followers 5K Following
Amelia-grace Woollard @woollard_g80870
30 Followers 5K Following
Kelley Cyr @ToInfinity9008
10 Followers 100 Following Veteran, photographer, astronomer, cat whisperer, living with ALS.
Virginia Barrera @VirginiaB59396
91 Followers 3K Following
penny hughes milner @pchmilner
52 Followers 159 Following
Celeste @celeste_geralds
220 Followers 3K Following
Julie @reed44julie
138 Followers 3K Following
Angela @nosnowzone
11 Followers 433 Following
jai prakash Mishra @1986jaiprakash
7 Followers 140 Following
Archangel Care Servic.. @MyArchangelCare
6 Followers 42 Following Archangel Care Services is dedicated to helping you and your loved ones achieve a comfortable and secure life with the help of our Archangel caregivers.
Natasha @natashahill95
185 Followers 194 Following
JV V @JVV84854313
0 Followers 4 Following
user @user35137
0 Followers 1 Following
Ismael Hernandez @jagleyman
23 Followers 177 Following
Alon Ben-Noon @NoonAlon
1K Followers 3K Following Leading NeuroSense Therapeutics (Nasdaq: $NRSN), a Clinical stage Biotech company, accelerating therapies for ALS and Neurodegenerative diseases.
RaiseMore - Nonprofit.. @goraisemore
171 Followers 890 Following The Website Builder made for Nonprofits! 💜 50+ Nonprofit Templates 💙 FREE to Get Started 💻 Custom Websites #nonprofit #website #design #raisemore
@dellwayft.bsky.socia.. @dellway_FT
102 Followers 173 Following Moving the move while Xitter continues to be in the process of becoming a toxic quagmire of RWFWs
I AM ALS @iamalsorg
26K Followers 799 Following I AM ALS is a patient-led movement revolutionizing how to end disease with our sights set squarely on ALS.
Steve Gleason - "Live.. @SteveGleason
199K Followers 247 Following New Instagram - @stevegleasonofficial Dad. Husband. Inspiring all people to live purposefully, despite tragedy. I tweet with my eyes. Embracing ALS.
Nicole Cimbura @nicolecimbura
1K Followers 2K Following
Sandra W. Marlowe @sandrawmarlowe
3K Followers 1K Following Married to the love of my life. Christ follower. Mom of five. Mimi to 14! Entrepreneur. Diagnosed with Bulbar ALS 3/30/2020. Fighting to live.
Lisa's Legacy for ALS @LisaLegacy4ALS
2K Followers 909 Following Lisa Stockman Mauriello fought for Expanded Access to an ALS treatment. Lisa passed away 8.4.21. Honor Lisa’s legacy by advocating for change for ALS.
No More Excuses ALS W.. @als_now
4K Followers 1K Following ALS advocate fighting for transparency, access to effective therapies, and ensuring ALS patients aren't victims of weak drug pharma gouging. YT: ALSNewsNow
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Augie's Quest @augiesquest
3K Followers 1K Following Join the Quest. It's time to cure ALS. All funds support ALS research and drug development taking place at ALS TDI.
Mary Kay Turner @MaryKayTurner1
1K Followers 716 Following Government Affairs | Health Policy| Mom| Dog Lover | Oregon Ducks Fan| Traveler| Defender of Biopharma | Innovation Matters | ALS Advocate| Opinions Are My Own
Deb Paust @PaustDeb
1K Followers 724 Following Blessed mom, lover of snow, I AM ALS Organizing Associate, old fashion enthusiast and trying to be the change I wish to see in the world. #GoodTrouble
Anthony Carbajal @carbajalphoto
14K Followers 3K Following
Les Turner ALS Founda.. @LesTurnerALS
4K Followers 575 Following The leader in comprehensive #ALS care in Chicagoland
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
Hope Loves Company @HopeLovesCo
2K Followers 3K Following HLC is the only nonprofit in the U.S. dedicated to supporting children and young adults who had or have a loved one battling #ALS. We provide Camp HLC & more.
alsHATER @HaterAls
1K Followers 967 Following als hater MM lover Impossible is an option One woman army
小央 @kimnaying
14K Followers 13K Following Welcome to Discover Jilin! We're here to help you discover the magic of this amazing province. We're gonna love having
Melissa Newton { Miss.. @MjNewton76
32 Followers 168 Following
car128 @crayne128
231 Followers 317 Following homesteader, lover of sustainable living, hater of ALS for stealing it all away from me, and for threatening to steal my family from me. We need NurOwn now!
Genmab @Genmab
8K Followers 99 Following We're a leader in harnessing the power of antibodies. Our purpose is to improve the lives of people with cancer & other serious diseases. https://t.co/gRtD8JTIFk
Lisa Martinez @LisaMar17763916
457 Followers 685 Following supporting @jamieroseberryy 💙ALS community 🐺🌹#ENDALS a wise woman once said “ you can’t scare me I have ALS “@sandymorris333
Ag Apparel @agapparel
913 Followers 2K Following Universally designed clothing with the ultimate goal of making fashion accessible &functional for everyone let fashion set you free, and the rest will follow!
NURO CORP. @nuro_corp
685 Followers 3K Following One of the leading manufacturers of Neurotechnology.
Meg McTaggart @believearmy
111 Followers 132 Following The @Believearmy is an organization trying to fight the war against #ALS based out of St. Thomas ON, Canada. To get involved, check out http://t.co/7Iv5EIW7ZM
Davina Rivers @DavinaRivers
3K Followers 5K Following My beloved Eric lived, loved,inspired, died from #MND 07/11/2015 aged 49. Widow navigating all things grief, solo parenting with 3 remarkable young daughters.
Marq Massengale @marqmass
760 Followers 1K Following
Mandi Sonnenfeld, PhD.. @SonnenfeldOT
533 Followers 2K Following Health Professions Education Evaluation and Research (HPEER) Advanced Postdoctoral Fellow | Academy Health Delivery System Science Fellow | OT
Anthony Dohrmann-Entr.. @AnthonyDohrman
320 Followers 604 Following Anthony Dohrmann | Founder & CEO Electronic Caregiver Inc. | Health Care Technology | Pilot | Addison Care | Inc. 5000 CEO | Entrepreneur |#healthtech #medtech
Dr. Chaim B. Colen @MyNeurosurgeon
2K Followers 2K Following Entrepreneurial Neurosurgeon; bringing healthcare closer to your fingertips...
Ontario Hospital Asso.. @OntHospitalAssn
34K Followers 2K Following Serving Ontario’s hospitals to build a better health system.
Ink to the People @inktothepeople
4K Followers 2K Following T-Shirt Obsessed. Fundraisers. Partners. Storytellers. Contact the team at [email protected] !
MaryHahnWard @MaryHahnWard
582 Followers 739 Following Caregiver to my husband w/ALS dx 2010, Photographer, Writer. Elizabeth Dole Fellow.
Joshua Cohen @JoshuaBCohen1
760 Followers 210 Following Co-Founder | Co-CEO Amylyx Pharmaceuticals @amylyxpharma https://t.co/UWzh0oH10T Opinions are my own
MGH Neurology @MGHNeurology
8K Followers 742 Following On a mission to find new treatments and cures to eliminate the devastating impact of neurological disorders.
Robert Luongo ALS Fun.. @wefightals
319 Followers 926 Following Our Mission: To alleviate the financial burden of individuals and their families that have been victimized by ALS including assistance and research.
Dave Stanley @TheSteemer
936 Followers 992 Following Rest in Peace my Queen. Lost my wife of 27 years to ALS on Jan 6, 2020. Advocate for ALL people battling this shitty disease. My heroes are Warriors and cALS.
Unite ALS @unite_ALS
1K Followers 4K Following Unite is developing an all-in-one platform to bridge the gap between the #ALS community & researchers to accelerate the development of treatments & cures.
Stephanie Duguez @sduguez_lab
530 Followers 827 Following Working on #MND & #NMD and the of role muscle communication - Senior Lecturer in Stratified/Personalized Medicine @StratifiedMedicineNI @UlsterUniversity
Roman Harper @Harp41
189K Followers 18K Following Former Strong Safety for the @nfl @saints and @panthers ... brought to you by @AlabamaFTBL #RollTide follow me on instagram here: https://t.co/HulM4fLO1Q
wayne thomas @nwaynet
570 Followers 1K Following ALS Warrior! World Trvlr - 38 countries, Joanna.Foodie.Xmas.Fur kids:Callie & Skye. FCPHR, CMC, MBA, Sr. Leader. LIVING LIFE NOT WAITING TO DIE.🇨🇦🇺🇸🥂🍽
ABM Respiratory Care @AbmCare
49 Followers 92 Following we offer intelligent, clinically differentiated and innovative respiratory care solutions to help people breathe better inside and outside the hospital.
The Joe Martin ALS Fo.. @foundation_joe
147 Followers 318 Following We believe that with the help of family and a caring community people with ALS can live with purpose, joy, and hope. Our services are provided absolutely free.
JulieDoyleCullen @JulieDoyleCull
555 Followers 821 Following Business woman and caregiver turned #author. Doing what I can to fight #ALS
MedicAlert @MedicAlert
2K Followers 740 Following MedicAlert 501(c)(3) nonprofit. Original creator of the medical ID, the only one backed by 24/7 emergency response services. Since 1956, 4 million lives saved.
Neurology Today @NeurologyToday
64K Followers 3K Following The official news source of the American Academy of Neurology, published by Wolters Kluwer.
John Otto Knoke @chapin4u
2K Followers 739 Following
Iron Phi @IronPhi
2K Followers 927 Following To strengthen Phi Delta Theta Fraternity and the impact it has on the fight against Lou Gehrig's disease through the fundraising and athletic efforts of members
Chris James (he/him) @ChrisJamesMND
2K Followers 814 Following Director of External Affairs at the Motor Neurone Disease Association @mndassoc.
ALS_MND-info @ALS_MND_info
452 Followers 790 Following #ALS amyotrophic lateral sclerosis/ #MND motor neurone disease/ Lou Gehrig's disease/ #ELA/ #SLA/ Know too much—not enough. RT,❤≠E / @RunRichRun tweets
Gary Galerne @FlyinFrenchie
56 Followers 75 Following
West Sussex North @MNDwestsussex
2K Followers 2K Following West Sussex North Branch of the MND Association. We support people living with MND, their families & their carers. https://t.co/dY75vHnmd6
Kevin Swan @KevinSwan_
1K Followers 1K Following #dad #husband #ALS #Writer #Cubs #Bucs #Sundevil #Jewish #creativity #politics #NYC #entrepreneur Founded @A_Life_Story_ Writer for @medium
Robert Miller @svequuleus
106 Followers 521 Following
Control Bionics @Control_Bionics
1K Followers 2K Following Control Bionics offers a suite of speech generating devices and AAC accessories to give people living with complex communication and physical needs their voice.
South Yorkshire MNDA @SYMNDA
978 Followers 258 Following Supporting people affected by MND throughout South Yorkshire http://t.co/t58Stav62Z
MND Australia @mndaustralia
3K Followers 440 Following Care, advocacy and research in support of those living with motor neurone disease (MND).
Mitsubishi Tanabe Pha.. @MTPA_US
2K Followers 59 Following Mitsubishi Tanabe Pharma America, Inc. seeks new solutions to the pressing needs of patients. Community guidelines: https://t.co/pRdlGcRQwp
Pat Dolan @Team_Thriving
949 Followers 1K Following Mapper who is Striving to be Thriving with #ALS Author of the ALS Geospatial Hub - https://t.co/Po3Z3KCvuS #nohandsmappingVIGNETTES: Please send information to Denise Greek at [email protected] for your loved one's vignette. We will be walking with these and they will be made on thick paper to last. support.alsaoc.org/site/TR?fr_id=…
Today is late friend @dogbomb1's birthday Hope you have endless beer fountain on tap and endless dogs to pet over there, miss your and your kind words ❤️ (Old photo from 2022 @ALSAOCC )
Hey @MarkHamill can I get a like from my childhood hero? I am walking for ALS on 9/8 with the @ALSAOCC! Try #3
Hey @MarkHamill can I get a like from my childhood hero? Just diagnosed with ALS and fighting for a cure through awareness! Support your local ALS Association! @ALSAOCC
Well I lost one more finger that I cannot lift up to Als yesterday. But I’m always looking on the bright side, I’ve got four fingers I can lift up on one hand. Maybe we will get some good news and we can finally get some treatment for Als. God is great, and I love you all
Heading to NYC baby! We are going to a few friends. I am pretty stoked!
Happy Easter friends! Here's to human spiritual resurrection from fear and suffering right now. Mental peace & freedom are available. Present moment salvation. We are all the Light of the world. This pic may not be the airbrushed Easter family pic. Just our wonderful life.
happy Easter from @opiesbbq mmm... BBQ rabbit!
Today we honor: Dr. Tahseen Mozaffar is a Professor of Neurology, Orthopedic Surgery/Pathology and Laboratory Medicine at UC Irvine. He is the Director of the UC Irvine-MDA ALS and Neuromuscular Center and the Director of the Division of Neuromuscular Diseases. #DoctorsDay
Sip & drink with independence. Fleximug!
Please join us for our monthly ALS - OC virtual support group Wednesday 9/2 @ 5:40p.
Tony was sure we’d forget him. We will continue to prove him wrong! Tony you were a gift of light to everyone that was fortunate enough to know you ❤️ #1yearwithoutDB #AToastForDogBomb #ALSCanKissMyFuzzyButt
We would like to thank our Furry community for their awesomeness. Even in the middle of this horrible pandemic they remembered and honored their friend, Tony Barrett, on the one year anniversary of his passing by donating and posting his pics on social media. Thank you all!
So that's where all the toilet paper went! #coronavirus
For Christmas we rescued this little guy from the shelter. His name is Sanchito! He’s too cute not to be newsworthy 🥰 #KTLATALKTOUS
Most drugs for ALS fail in testing. But this one, hatched by two fraternity brothers who came up with the idea in their Brown University dorm, worked, @PaganoniMDPhD says. A terrible disease, an unlikely drug discovery story. @AmylyxPharma wsj.com/articles/als-d…
@ALSAOCC @DemetriusTrader we miss tony each and every day
Happy birthday, @dogbomb1. You would have been 56 today. I think about you a lot and youre still an inspiration to many. --- On a related note: The @ALSAOCC walk is coming up on Nov 9th. Sign up or donate here. web.alsa.org/site/TR?fr_id=… so others with ALS can celebrate birthdays.
60-day count down and we're looking for some happy critters and handlers to join us for the Nov. 9, 2019 ALS walk in Irvine, CA this year! Im looking forward to walk in memory of @dogbomb1 and to help end ALS! Join our team or donate at web.alsa.org/site/TR?fr_id=… @ALSAOCC
I got to work on this animation for a very special moment @trapacivet & @CBallBadger ✨💍✨ Congrats once again for winnin the charity auction animation bid for @VancouFUR
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