MND Australia @mndaustralia
Care, advocacy and research in support of those living with motor neurone disease (MND). mndaustralia.org.au Canberra Joined September 2009-
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#MowDownMND There's only three days left to sign Woz's petition to make MND a notifiable disease: aph.gov.au/e-petitions/pe… In order to find effective treatments for #MND, we need to better understand the disease, including what causes it and why.
We hope everyone in the #MND community is enjoying time with family and some delicious chocolates this Easter weekend! 🐣
🎮 🕹 Many people living with #MND like to play video games. But with MND, gaming can become more complex. In our latest blog post we share some insights from people living with MND about games and technology: bit.ly/4an0Dvm
The March edition of #MND Research Directions includes updates on: ▪️ RELYVRIO ▪️ TUDCA ▪️ SPG302 ▪️ Edaravone ▪️ Tofersen Read more: mndaustralia.org.au/articles/resea…
Getting the right type of support in the home can help people with #MND to keep living independently for longer. Learn more: mndaustralia.org.au/helpathome
We are looking forward to meeting Woz at Parliament House when he arrives next week! #MowDownMND abc.net.au/news/2024-03-1…
Today is Swallowing Awareness Day. People with #MND may experience problems with swallowing (also known as dysphagia), which can affect their ability to eat, drink, take medication and control saliva. Learn more: bit.ly/48Vf4p0 #SwallowAware2024
A former truckie living with MND, Woz has set off on his 12-day pilgrimage to Canberra on a ride-on mower to raise awareness of #MND and boost research funding: bit.ly/49UvGyM #MowDownMND
The federal government's new Age Care Act is currently out for consultation #auspol MND Australia has submitted recommendations on how the Act can best address the issues affecting older Australians living with #MND Read our full submission: bit.ly/49FezAy
Certain types of exercise can help people with #MND maintain strength, mobility, balance and overall wellbeing, for longer. MND Clinics and physios can help people with MND get started with a specially designed exercise program. Learn more: youtube.com/watch?v=IhBc3L…
#RareDiseaseDay It's vital to continue raising awareness of rare diseases, like #MND, so everyone understands the devastating impact of the disease and the urgency to advance treatments and improve care. #RareDiseaseDay2024
#FridayFact Over 400,000 people around the world are currently living with MND🌏 Learn more about #MND at: mndaustralia.org.au/mnd-connect
We're thrilled that research we've funded is showing early promising results as a potential treatment for #MND Congrats to Prof Yazi Ke and the @Macquarie_Uni team for making this breakthrough built on 15 years of research in this area #NeverGiveUp
We're thrilled that research we've funded is showing early promising results as a potential treatment for #MND Congrats to Prof Yazi Ke and the @Macquarie_Uni team for making this breakthrough built on 15 years of research in this area #NeverGiveUp
Our neuroscientists have developed a single-dose genetic medicine that has been proven to halt the progression of both motor neurone disease (MND) and frontotemporal dementia (FTD) in mice #MacquarieUniversity @MQ_DRC
We're delighted to welcome our new CEO, Clare Sullivan, who joined the MND Australia team this week. Clare has over 20 years’ of executive experience in advocacy and leadership and will be based in our head office in Canberra. Read more: mndaustralia.org.au/claresullivan
It's International Day of Women & Girls in Science👩🔬 and we're celebrating the 22 female MND scientists we're currently funding in their search for treatments, cure and improved care for people with motor neurone disease. #WomenAndGirlsInScience
🏃♀️⏰ Don't miss out -- applications for our #MND PhD Scholarship Top-up Grants close tomorrow! ✍️ mndaustralia.org.au/research/for-r…
#FridayFact Motor neurone disease attacks the nerves that communicate between the brain and the muscles. When these motor neurons die, people can lose the ability to move, talk, eat and breathe. Learn more: mndaustralia.org.au/mnd-connect/wh… #MND
Truly grateful to @mndaustralia & @MNDFoundation for their support in funding this exciting project focusing on #mitochondria and #metabolism in #MND/#ALS with @NgoShyuan @leanne_jiang and @SchiavoMNPlab.
Truly grateful to @mndaustralia & @MNDFoundation for their support in funding this exciting project focusing on #mitochondria and #metabolism in #MND/#ALS with @NgoShyuan @leanne_jiang and @SchiavoMNPlab.
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
Jayne Halhead 🌹 @Jaynes__World
6K Followers 4K Following In memory of my Dad, a burly #Lancashire dairy farmer, I'm raising awareness of motor neuron disease #MND/#ALS #MND #MoreNeedsDoing! Championing #Lancashire
F I G H T M N D @FightMND
8K Followers 922 Following FightMND exists to champion hope and lead the fight against the Beast that is #MND/#ALS. Join the fight & donate today: https://t.co/Jrbp90Mq0d
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
Brad Turner @turnerMNDlab
986 Followers 867 Following Head of ALS/MND Lab | Florey Institute | University of Melbourne | Australia | Passionate ALS researcher striving for a cure
MND Research Australi.. @MND_RIA
2K Followers 397 Following Motor Neurone Disease Research Australia has built & sustained MND research nationally for 40 yrs. MNDRA is the research arm of MND Australia.
Sally Light @sallylight17
3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
Dr Rachelle Balez👩.. @chellebalez
3K Followers 2K Following Stem cell alchemist exploring the world of neuroscience through mass spec imaging | she/her | @MolHorizons @UOW (HB2) | opinions mine
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Andrea Pauls Backman .. @AndreaBackman05
2K Followers 1K Following ALS strategist, former CEO @lesturnerals, board member various ALS orgs. lost mom to ALS in 2010. passionate about people w ALS/MND & fighting for cures.
Lee Millard @onein300
2K Followers 899 Following 1/300 is the lifetime risk of developing #ALS #MND. My living with Motor Neurone Disease blog.
Walker Neuro Lab @WalkerNeuroLab
1K Followers 1K Following Neurodegeneration Pathobiology Lab studying TDP-43, on a mission to cure #MND #ALS & #FTD. Led (and most tweets) by @adamkeithwalker. @QldBrainInst, @UQ_News.
Lezanne @NeuralOoi
1K Followers 590 Following Group Leader Neurodevelopment and Neurodegeneration Lab. She/her
David Setters @dsetters
2K Followers 2K Following Got slowly progressing MND. Luckier than most so have to make extra days count. I intend to! Making memories with family. Campaign, raise awareness & funds.
Hande Ozdinler @DrOzdinler
27K Followers 716 Following Neuroscientist, Scientist, Mother, Poet, Press member, Inventor of OzdinART Our research will help end ALS, HSP and PLS.
MND Campaigns @mndcampaigns
8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX
Nick Goldup @NickGoldup1
1K Followers 1K Following Chair and Chief Operating Officer of the Wheelchair Alliance CIC
Lorenzo Odierna @lorenzo_odierna
1 Followers 12 Following
Daphne Velinos @DVelinos
115 Followers 150 Following cultural end of life educator ~ dignity in life and end of life / diversity,equity & inclusion /addiction harm reduction. Views My Own ( she/her)
Apedis Senegal @apedissenegal
1K Followers 2K Following Association pour la promotion de l’éducation, le developpement inclusive et solidaire.
Betty’s Brigade Fou.. @No_More_ALS
345 Followers 530 Following We Are… the Betty’s Brigade Foundation ________ We Are… Fighting ALS Together _________________ - to raise ALS awareness & funding
Ability To Empower @ability2empower
10 Followers 22 Following Through collaboration we empower each other with a personalised service tailored for all individuals
Stephanie Howe @StephanieHowe98
18 Followers 38 Following
Shana Taubert @ShanaTaubert
19 Followers 236 Following
Mark Byers @selfdrivenMark
1K Followers 3K Following Passionate about creating inclusive systems leading to agency - co-founder of https://t.co/vFCL5HvqXK | https://t.co/mZ3EOKMA9k
Caitlyn @CaitlynMcPhysio
4 Followers 67 Following
Yougang Zhang @Trent_Yougang
1 Followers 68 Following
clare baker @clarebaker8888
1 Followers 53 Following
Masahide Yagi @yagimasa_
14 Followers 90 Following Kyoto university/PhD(Human health sciences)/physiotherapist/biomechanics/osteoarthritis
Taylor Dick @TaylorJMDick
2K Followers 1K Following Scientist & Senior Lecturer @UQMedicine Uni of Queensland | lover of all things that move | bio+neuro+mechanics | wearable tech | @BRInCprogram 🇨🇦in🇦🇺
Mizaura @mizaura
54 Followers 288 Following
C. Zhang @Hansen_010101
12 Followers 78 Following
Jane Nosworthy @JaneNosworthy
272 Followers 760 Following she/her. diversity, inclusion & governance specialist. reformed lawyer. social work student @uni_melb. VAD advocate & DWDV board member. views my own.
Ken Menkhaus @kemenkhaus
5K Followers 440 Following Professor of Political Science, Davidson College; Observer of Somali and Horn of Africa affairs; ALS advocate and person living with ALS
Kimberly Jayne @kimbo_jayne
1K Followers 2K Following Running, Wine, #BloonWatch. Doing another trot for #MND Victoria. Donate ⤵️
Gerry kidd @kidd_gerry
4 Followers 14 Following
DEB-MNDWARRIOR @DEB_MNDWARRIOR
929 Followers 909 Following https://t.co/k61gquuj0Z Hairdresser,Mother of 3 World just tipped upside down with a diagnoses of MND/ALS 💔
Lynda Brooks @lyndadot33
485 Followers 995 Following Mother , Grandmother, 33 years in the NHS , Remainer and lefty 🏴🇪🇺 . Mufc and grassroots football. My husband has just been diagnosed with MND .
Beverley Gray @Beverle71060917
24 Followers 38 Following
Shane Hartmann @shadohrealm
44 Followers 231 Following Father of two boys and Program Manager at Kyndryl. Love my Parramatta Eels, Sci-Fi and all things Food. Opinions are all my own
Emma Windebank @elwindebank
0 Followers 28 Following
Clare-Anne Magee @forummum
1K Followers 1K Following Head of Regional Care Partnerships- devolved nations MND Association and mum of 2
DrMRamsay @DrMRamsay1
55 Followers 162 Following
Gabriel Fernandes @gabephysio
228 Followers 666 Following Senior Physiotherapist, PhD candidate @spring_qut (Achilles tendinopathy in runners), Senior Research Assistant (QUT)
Petra Sola @PetraSola72
577 Followers 1K Following
TraderFactor @TraderFactor
851 Followers 2K Following Financial Market Analysis, Trading Education, And Reviews Of Only Regulated And The Most Trusted Forex, CFD, Crypto Brokers and Exchanges.
Sean White @SeanWhi00489566
421 Followers 620 Following Dietitian/NIHR doctoral fellow in Sheffield. Interested in decision making and the nutritional management of people with MND. Any views expressed are my own.
Nathan Pavey @nap1611
44 Followers 71 Following
Nitesh Sanghai, PhD C.. @Sanghai_MedChem
163 Followers 574 Following Medicinal Chemistry, Drug Discovery. Doing Science to bring meaningful impact in human life. Let’s come together to bring “Hope” in People’s Lives. Love you God
Giao Tran @GiaoTran_UK
1 Followers 57 Following
Alli Anthony @AlliAnthony2
150 Followers 218 Following Proud to be working for the Motor Neurone Disease Association
Mandy Hunt @willowmandy
259 Followers 752 Following Therapist, Writer, Funeral Celebrant. Expert in being myself and encouraging others to do the same.
My MND Mates @MyMNDMates
43 Followers 105 Following An online community for those living with MND/ALS. We’re passionate in raising vital awareness of those diagnosed in the younger generations.
The Hodgeman 🦸🏻.. @AwesomeAntho91
451 Followers 1K Following Anthony. 33. #ActuallyAutistic. He/him. 🇦🇺 AFL & NRL footy fan. Proud member of the '@rustyjacko blocked me' club. #QLDer Backup account - @AwesomeAntho_91
Tom Ph @TomPh24
11 Followers 23 Following
我的责任 @zhangwe01730822
593 Followers 2K Following PCB&SMT 工程师 声乐爱好者 喜欢诗词歌赋 理性思维的杠精 翻墙学习的造反者 对于一切分享垃圾信息者拉黑 对于一切五毛 大外宣 拉黑
Pedram Parnianpour @PParnianpour
93 Followers 369 Following PhD Candidate in Neuroscience | ALS Neuroimaging Research Unit @UAlberta | MRI, texture analysis, and machine learning
Hani Nadhir @NadhirHani5226
10 Followers 164 Following
Jessica Barlogie @BarlogieJessica
1 Followers 39 Following
Laynie Dratch, ScM CG.. @LayniedratchC
202 Followers 361 Following Licensed, Certified Genetic Counselor 🧠🧬 Neurogenetics nerd. All views are my own.
Sclerosis MDPI @SclerosisMdpi
39 Followers 347 Following Sclerosis is an international open-access journal on sclerosis and related diseases, published quarterly by @MDPIOpenAccess.
Jojow Garcia 🌾 @jojologist_
53 Followers 231 Following INTP-A, he/him. Here for the nerdy stuff. (Mostly D&D ehe)
MND Association @mndassoc
48K Followers 13K Following Our vision is a 🌎 free from 𝐦𝐨𝐭𝐨𝐫 𝐧𝐞𝐮𝐫𝐨𝐧𝐞 𝐝𝐢𝐬𝐞𝐚𝐬𝐞 #MND
MND Research @mndresearch
13K Followers 511 Following Research Development team at the Motor Neurone Disease Association of England, Wales & NI. We fund and promote cutting-edge #MND research & organise #alsmndsymp
F I G H T M N D @FightMND
8K Followers 922 Following FightMND exists to champion hope and lead the fight against the Beast that is #MND/#ALS. Join the fight & donate today: https://t.co/Jrbp90Mq0d
Ammar Al-Chalabi @AmmarAlChalabi
5K Followers 4K Following Professor of Neurology and Complex Disease Genetics, King's College London. Co-Director UK MND Research Institute https://t.co/CR2sIAKgHI #MND #ALS Specialist.
Brad Turner @turnerMNDlab
986 Followers 867 Following Head of ALS/MND Lab | Florey Institute | University of Melbourne | Australia | Passionate ALS researcher striving for a cure
MND Research Australi.. @MND_RIA
2K Followers 397 Following Motor Neurone Disease Research Australia has built & sustained MND research nationally for 40 yrs. MNDRA is the research arm of MND Australia.
Sally Light @sallylight17
3K Followers 421 Following Previously Chief Executive of the MND Association. Ongoing supporter of the MND community. Pond swimmer and yoga student. Views my own.
MND Scotland @MNDScotland
8K Followers 2K Following Making time count for people with motor neuron disease (MND).
ALS Advocacy @alsadvocacy
12K Followers 2K Following ALS = Lou Gehrig's Disease Thought it had been cured by now? Still no known cause. Still no cure. Still no treatment. Still quickly fatal. Still outrageous.
Walker Neuro Lab @WalkerNeuroLab
1K Followers 1K Following Neurodegeneration Pathobiology Lab studying TDP-43, on a mission to cure #MND #ALS & #FTD. Led (and most tweets) by @adamkeithwalker. @QldBrainInst, @UQ_News.
Brian Dickie @DrBrianDickie
2K Followers 293 Following Director of Research at the UK MND Association
MND Campaigns @mndcampaigns
8K Followers 2K Following Campaigning with people with motor neurone disease #MND @mndassoc Want to help raise awareness? Find out more here: https://t.co/pNRGqk2pLX
Dr Isabella Lambert-S.. @BellaAnnLambert
747 Followers 973 Following Motor Neuron Disease researcher | @UOW Prioritising Emerging Research Leaders (PERL) Fellow | @ihmri | (she/her)
David Taylor @VPResearch_ALS
1K Followers 1K Following ALS Canada VP, Research. Passionate ALS research nerd since 2001. Science brain, advocate heart. Opinions are my own. he/him
Shyuan Ngo 🧠🔬�.. @NgoShyuan
911 Followers 691 Following MND researcher @AIBN @UQ 🇦🇺 Group Leader. FightMND MCR Fellow. Working for a cure. Enjoys food. Cat enthusiast. [email protected]
Perron Institute @PerronInstitute
613 Followers 272 Following We conduct research and develop treatments to improve the quality of life for people with Parkinson's, MS, motor neurone disease, stroke and muscular dystrophy.
Tammy Moore @temerityTM
2K Followers 2K Following Digging in. ALS Canada CEO. Finding adventure and appreciation in the everyday - seize the day because life is too damn short. Be bold.
Queensland Brain Inst.. @QldBrainInst
7K Followers 645 Following Working to understand the development, organisation and function of our amazing brains in health and disease. 👇👇 Newsletters: https://t.co/Uj4rkaqX9O
Ngo Lab Group @Ngo_Lab
363 Followers 282 Following Ngo Lab at UQ. Investigating mechanisms of neurodegeneration and ageing. Researching across the clinic and the lab.
Macquarie University @Macquarie_Uni
35K Followers 590 Following Macquarie is renowned for its interdisciplinary research and teaching, highly skilled graduates and first-class facilities. CRICOS code: 00002J
Rosemary Kayess @RosemaryKayess
2K Followers 128 Following
Fiona Bright @DrFionaBright
256 Followers 446 Following MNDRA Bill Gole Research Fellow @sahmriAU #neuroscience #dementia #MND #FTD #childhooddementia |Lab for Human Neurophys, Genetics & Stem Cells | Bardy Lab
King's MND Centre @kingsmnd
2K Followers 334 Following MND Care & Research Centre. Motor Nerve Clinic at Kings College Hospital. Internationally renowned for research & excellence in care. Contact us [email protected]
Frances Quan Farrant @Aus_Advocate
1K Followers 542 Following #Neurodivergent RT or Follow does not equal approval.
Chi Li @Dr_Chi_Li
2K Followers 2K Following 🇦🇺 #PalliativeCare #RuralHealth #PsyOnc @Palliverse Views my own (he/him)
Lyle Ostrow MD PhD @LyleOstrow
691 Followers 1K Following ALS clinician scientist @TempleNeurology @ALSHF. Director, TUHS NM Path Lab & ALS PM Core collab w CDC. Chair, DoD ALS Research Programmatic Panel. Views my own
palliAGED @palliAGED
2K Followers 2K Following palliAGED is an online evidence-based guidance & knowledge resource for palliative care in aged care. Free to use and now available. Managed by CareSearch
ELDAC @ELDAC_agedcare
2K Followers 2K Following End of Life Directions for Aged Care (ELDAC) is a project funded by the Aust Govt Depart of Health and Aged Care to support quality care at the end of life.
Palliative Care WA @PallCareWA
1K Followers 985 Following Palliative Care WA is the Western Australian peak body for palliative care
Angela Laird @AngelaSLaird
632 Followers 366 Following Neuroscientist searching for treatments for neurodegenerative diseases #MJD and #MND #ALS. Researcher, educator & mum @mnd_mq @macquarie_uni she/her
Neurological Alliance.. @NeuroAllianceAu
41 Followers 88 Following An alliance of not-for-profit peak organisations representing adults and children living with neurological or neuromuscular diseases in Australia.
Rohan Greenland @RohanGreenland
462 Followers 443 Following CEO, MS Australia. Chair, Neurological Alliance Australia. Former Vice President, Public Health Association of Australia. Fellow, National Heart Foundation.
Dr Sophia Luikinga @_Soph_89
244 Followers 357 Following | posdoctoral researcher | motor neurone disease | science | neuroscientist | Amyotrophic lateral sclerosis
ANZSPM @ANZSPM
2K Followers 957 Following Australian and New Zealand Society of Palliative Medicine: medical practitioners interested in #palliative #medicine #hpm #palliativecare #ANZSPM
東邦大学 脳神�.. @Neurology_Toho
350 Followers 276 Following 東邦大学脳神経内科の公式アカウントです。学生、研修医や専攻医の方の見学希望、入局相談はいつでも大歓迎です。https://t.co/WDoPO1h3ed
MNDatUQ @mndatuq
68 Followers 46 Following Scientists and clinicians working together to pioneer scientific and clinical discoveries in MND and FTD.
Medicines Australia @MedicinesAus
3K Followers 996 Following We represent the discovery-driven medicines industry in Australia. Our industry invent, manufacture & supply innovative medicines. CEO @LizdeS_MedAus.
peter chambers @pedrochambo
155 Followers 771 Following Community advocate for MND awareness, retired finance professional, happy husband & dad, Tigers nut & sports and popular culture nuffie
Ashley Crook @Ashley__Crook
466 Followers 420 Following Certified Genetic Counsellor in Sydney. Co-host of @gcchatpodcast. PhD candidate at UTS (University of Technology Sydney) #ALS #MND #FTD Opinions are my own
DementiaSupportAustra.. @DemSupportAu
444 Followers 23 Following Dementia is experienced differently by each person and our work seeks to recognise and respond individually to these changes.
Able Foods @ablefoodsau
109 Followers 134 Following At Able Foods we are 'a little different' and we provide great quality food and opportunities for people with disability to lead healthier and happier lives.
Fragile X Australia @FragileXAus
1K Followers 512 Following Connections, information, support & advocacy for the Fragile X community - those living with Fragile X syndrome or Fragile X Premutation-Associated Conditions.
Sandrine Chan Moi Fat @SandrineCMF
47 Followers 85 Following PostDoc @BlairMNDgroup @Macquarie_Uni Interested in #Genetics #CellBiology #MND #ALS
Courtney Clark @Courtneymclark
148 Followers 168 Following Post-doctoral reseach associate with the Alberini lab at the Center for Neural Science | New York University | She/Her
Laura Reale @LauraReale12
213 Followers 235 Following Postdoctoral research fellow | Menzies Institute for Medical Research, University of Tasmania | Researching the role of excitability dysfunction in ALS
The Stephen Hawking F.. @HawkingFound
11K Followers 10 Following The Stephen Hawking Foundation was established on the initiative of Professor Stephen Hawking to facilitate research into Cosmology, Astrophysics and Physics.
Nick Geraghty (He/Him.. @DrNickGeraghty
435 Followers 822 Following UOW 🦆 post-doc | Flow Cytometry | Neuroscience | Immunology | Purinergic Signalling | Succulent Obsessed 🌵 | Political views all my own
Blair Genomics and Ce.. @BlairMNDgroup
181 Followers 68 Following
Emily @emily__mccann
70 Followers 67 Following Geneticist 🧬 working to solve #MND #ALS with @BlairMNDgroup @mnd_mq 👩🔬👩💻
Thomas Shaw @thomcat992
446 Followers 585 Following Research Fellow at @UQ_EAIT @UQ_CAI. MRI enthusiast. MND researcher. 🧠 🏳️🌈
Bec Sheean @BecSheean
311 Followers 296 Following Researcher Director at FightMND, travel, wine and music enthusiast, coffee lover, huge Hawks and AFL fan and one of those annoying morning people!
Motor Neuron Disease .. @mnd_mq
567 Followers 82 Following Australia's largest Motor Neuron Disease ( #MND ) Research Centre based @Macquarie_uni 🔬International neuroscientists with a goal to find a #CURE4MND
SpeakUnique @SpeakUniqueVB
847 Followers 287 Following In your own words. Personalised synthetic voices for use in communication aids.
Rare Voices Australia @RareVoices
3K Followers 523 Following Rare Voices Australia (RVA) is Australia’s national peak body for Australians living with a rare disease. RVA Privacy Statement: https://t.co/yDNTESfH39
Amylyx @AmylyxPharma
3K Followers 451 Following Committed to one day end the suffering caused by #neurodegenerative diseases. See our community guidelines here: https://t.co/i5gqgm9S2l
Guðjón Sigurðsson @Gaui_mnd
814 Followers 1K Following
Wellcome @wellcometrust
224K Followers 2K Following Supporting research to transform life, health and wellbeing. We’re taking on three urgent health challenges: mental health, climate change & infectious disease.
Sunny Brous @sunnystrongals
2K Followers 623 Following I have ALS but it does not have me. No apologies, no excuses, no regrets, just me.
MND Genies @mnd_genies
43 Followers 32 Following MND Genies is a support group for people who have a positive MND related mutation. Follow MND Genies as they aim to SUPPORT, INFORM and FIGHT for familial MND
Jonathan Jenson @jensonje
71 Followers 209 Following Husband. Father of 7. CRNA. Member of The Church of Jesus Christ of Latter-Day Saints. LIVING with ALS since 2016.
Susan Seipel PLY @susanseipel
2K Followers 6K Following 2 x Paralympic medallist & Triple Paracanoe World Champion. Interested in #sports🥇 #animals🐾 #travel🌏 #inclusion ♿ Proud Ambassador for @rspcaqld
Gethin Thomas @GethinThomas17
53 Followers 46 Following MND/ALS; Cycling; Welsh; Rugby; Family and other stuff. Show me the evidence. My views!
Helen Haines MP @helenhainesindi
22K Followers 2K Following Independent Member for Indi. Authorised by H Haines, Wangaratta.Our neuroscientists have developed a single-dose genetic medicine that has been proven to halt the progression of both motor neurone disease (MND) and frontotemporal dementia (FTD) in mice #MacquarieUniversity @MQ_DRC
James, who is living with motor neurone disease (#MND), understands how important your support of the MND Association is. He's shared his story with you. Click below to find out how you can help us #TakeOverMND for people like James this January.
Conversations around #illness and #dying are difficult, but it can be easier if you have a relationship with a #GP. Pressor Mark Boughey discusses the importance of talking with your GP and the conversations you may have. Read more in this #Carerhelp blog: carerhelp.com.au/News/CarerHelp…
Truly grateful to @mndaustralia & @MNDFoundation for their support in funding this exciting project focusing on #mitochondria and #metabolism in #MND/#ALS with @NgoShyuan @leanne_jiang and @SchiavoMNPlab.
@MND_RIA @NgoShyuan 🧵@AndrewTosolini: Connecting the dots between the powerhouse of the motor neuron and their vulnerability in MND: "This project focuses on how the functions of mitochondria (cell powerhouse) and metabolism (conversion of fuel to energy) are altered in motor neurons in MND" (2/4)
Today, we remember the indomitable spirit of @DoddieWeir5, who passed away a year ago. 💙 His courage in the face of #MND continues to inspire. Thank you, Doddie for raising awareness and vital funds for research. @MNDoddie5
Exciting news out of Canberra today. One step closer to robust consumer protection for Australians' genetic test results against discrimination by life insurers. abc.net.au/news/2023-11-2…
Great to work with @ntiaustralia and MNDandME in supporting @Rebecca_SanGlia
Dr @Rebecca_SanGlia from @QldBrainInst is the 2024 NTI MND Research Grant recipient, delivered through @MNDFoundation. Congrats to Dr San Gil, who will use the grant to continue working to find a treatment for #MotorNeuroneDisease #MND. Find out more: bit.ly/3GdHBKG
Great start to the week in Melbourne. Thank you @AuPhysiolSoc for the platform to present my #MND research
Super morning free communication session on neurophysiology at #AuPS2023
Read about how these brilliant scientists tackle #MND from different angles 💪🏼 Prof Roger Chung, Assoc Prof @Dr_KLWilliams, Dr @LyndalHenden, Dr Stephanie Rayner & Flora Cheng will use neuronal RNAseq, patient genomes, RNA-binding proteins and small molecules targeting TDP-43
Researchers from the Macquarie University Motor Neuron Disease (MND) Research Centre have been awarded more than $3 million in funding by Australian charity FightMND: macq.it/3qYzgGO
I’m working on a new and great project for @mndaustralia, “Game on With #MND". Our aim is to improve quality of life by making #videogames more fun and easier to play with people with MND. If you or someone you know wants to learn more, I'd love to chat! mndaustralia.org.au/articles/grant…
Join us for our Learning series on August 17. Professor Samar Aoun @mndaustralia will share key findings and advice on enabling social networks to support people living with ALS/MND, making palliative care more widely accessible. Click the link to sign up buff.ly/3rMjuyO
We are proud to announce a new funding partnership with @mndassoc & @MNDoddie5. 🤝 Together, we will be co-funding a new research project at @UofGlasgow, investigating whether there is a potential link between traumatic brain injuries and #MND risk. Full story below. 🔬
When you rock up at 8am and realise you have accidentally matched with your PhD student ... Team work makes the dream work ;)
Justin was a friend and colleague to many in our Centre. It is enormously sad personally and a huge loss to the field. Our thoughts are with his family.
A very sad loss of a giant of MND research abc.net.au/news/2023-07-3…
Thank you @jjyerbury for your passion, intellectual input and drive, a sad day for all - vale.
A passionate researcher and advocate - vale
In today’s @canberratimes, MS Australia President @desgraham_msa highlights the pressing issues surrounding the NDIS and, with just over 3 months until the @NdisReview's final report, the need for fearless leadership & concrete solutions for a stronger #NDIS. #betterNDISforMS
Did you know❓ Genes hold the instructions for making proteins, which are vital for all the tasks in every cell of the body. Changes in genes can happen in motor neurone disease. 🧬 These are most associated with families with a history of #MND but can occur in sporadic cases.
As an extremely complex disease, researchers must try to treat ALS from many different angles, addressing many different potential drug targets. What follows is a basic guide to some of the more common types of drugs in the ALS pipeline today. als.net/news/understan…
Most people with a terminal illness will need the assistance of a nonprofessional #carer to provide support. This review identified carer needs for practical & psychological support, along with education & strategies to improve communication #carerHelp link.springer.com/content/pdf/10…
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