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Natalia @NataliaHodgins

Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle nataliahodgins.com Whadjuk Noongar land Joined June 2015
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Natalia retweeted
SEPfieldPatient Profile Picture

Jo @SEPfieldPatient

3 months ago

@AustralianPots is “pleased” Andrew Lloyd will be presenting at their conference in March. But not pleased with the patient outcry at this gross lapse in judgement. facebook.com/share/p/8fH4vg…

Natalia retweeted
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@TheRealMcCoy aka Meghan @RipperMD41

3 months ago

Yet another person with Myalgic Encephalomyelitis (ME) left this earth. I’ve lost track of how many that is now. The posts appear every week or two. This person died by suicide. That person is setting a date for euthanasia. #MECFS

Natalia retweeted
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Dr. Julie Gurner @drgurner

7 months ago

To operate effectively through a crisis: Focus sharply on the *one thing* you can do next. Paralysis comes when people sit in emotion & overwhelm. "One thing" mindset begins motion - with a simple, clear foot forward. Do one thing...recenter, do another & keep going.

Natalia retweeted
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charlos @loscharlos

7 months ago

@POTUS This is probably the best insight and update I’ve read on #LongCovid in a number of months — I think what is absolutely clear is that the political dynamics of our situation are not going to change until we make it so. nejm.org/doi/full/10.10…

Natalia retweeted
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PZ @pzneedsrest

8 months ago

I had a scan through submissions to the Australian #DisabilityRoyalCommission looking for #pwME #MECFS Unsurprisingly, the narratives are around misunderstanding, disbelief, difficulty in getting funded supports (& fear of losing them), and abuse. Here are some excerpts 🧵

Natalia retweeted
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Christoph Ströck @cstroeckw

7 months ago

The degree to which #MECFS patients are engaged with the intricate science of their disease is, in large part, a direct result of institutional and medical neglect and a trauma response.

Natalia retweeted
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Nele @NeleHelena

7 months ago

Where can I read about hyperadrenergic #POTS and norepinephrine? I'm looking for things to show my doctor. So not just a list of types of POTS but more information on what happens in the body. I'm stuck in an even higher constant adrenaline rush after another med gone wrong.

Natalia retweeted
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elle carnitine 🍉 @elle_carnitine

7 months ago

I am planning to try LDA. Those of you who’ve tried it: at what dose? How did you titrate up? How severe were you when you tried? What effects did you see, positive and negative?

Natalia retweeted
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Todd Davenport @sunsopeningband

7 months ago

Today is a reminder of how far behind we are in providing treatments that work for ME. People with ME may be faced with the choice of little effective medical assistance to live but very effective medical assistance to die. The fact this is a decision at all should be shameful.

Natalia retweeted
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Anil van der Zee © @AnilvanderZee

7 months ago

In loving memory of Céline Corsius. #pwme #myalgicE #severeME #millionsmissing

Natalia retweeted
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Tess Falor, Ph.D. | @RemissionBiome @tessfalor

8 months ago

Jake has chiari, CCI, and possibly other #MEspine issues. It's heartbreaking to think of them being homeless, without any support. 💔😭 I don't want them to get worse. Please help, if you're able. 🙏 gofund.me/f922448e #MECFS #pwME #LongCovid #NEISvoid #EDS #hEDS #CCI…

IsabelRamirezRD Profile Picture

Isabel Ramirez-Burnett @IsabelRamirezRD

8 months ago

Jake has chiari, CCI, and possibly other #MEspine issues. It's heartbreaking to think of them being homeless, without any support. 💔😭 I don't want them to get worse. Please help, if you're able. 🙏 gofund.me/f922448e #MECFS #pwME #LongCovid #NEISvoid #EDS #hEDS #CCI…

Natalia retweeted
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Tweets @ChronicMyalgicE

8 months ago

Dear ME community, this thread is from a dear friend who needs our help. Does anybody know what to do? It’s a post from @NeleHelena and I’m posting this for her because she’s not able to respond right now. Please RT if you can 💙 #MedTwitter #pwME 👇🏼

Natalia retweeted
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Harriet Carroll: Long Covid Scientific Consultancy @angryhacademic

8 months ago

A town has no shoe shops so a new shoe shop opens up. Whenever the townspeople complain of hurty feet, they get sent to the shoe shop. The problem is that the shoe shop is run by people who are not shoe experts. They have no clue about making good shoes 🧵

Natalia retweeted
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a tired human @saffronandsky

8 months ago

What are your favorite writings on the spiritual & mythological aspects of severe illness/disability & mortality? Poetry or short form essays preferred, can't read for any length of time but hungering to connect with writings in these topics. #chronicillness #neisvoid #writers

Natalia retweeted
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Evan Young @evanb_y

8 months ago

This is something I've tried explaining to people again and again over the years. So I finally wrote about it: Why #MECFS is nothing like everyday tiredness #ChronicIllness @EmergeAus @MEActNet #MillionsMissing #pwME #LongCovid abc.net.au/news/2023-09-0…

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