Search results for #hEDS
De partner ging vorige week zondag door beide enkels heen dus nu is míj́n dyautonomie ontregeld en zie ik wazig. Het gaat allemaal wel, zolang alles voorspelbaar is en ik binnen mijn grenzen blijf. Als ik er ook maar een teen buiten zet stort alles in. 🫠👌 #hEDS
In case you want to know more, it is a collaboration between several universities in Scandinavia, 80 hours over 13 weeks. #Sustainability #TeachingforSustainability kau.se/en/calendar-ev… #HEDS #HEDS241
But, you know, it’s not #POTS, the cardiologist says so lol #chronicillness #heds #ehlersdanlossyndrome #disabled #disabilityawareness Video shows Bri’s heart rate going from 87 while sitting to 131 while standing in 54 seconds. Heart rate is being monitored on an Apple Watch
Interesting. Film being produced by @LDNRTrust about #MCAS #POTS #hEDS triad. Family member and I are both affected by this triad and they have been helped enormously by LDN over the past year when nothing else had helped significantly in previous 10 years. I’m going to try it🤞.
Interesting. Film being produced by @LDNRTrust about #MCAS #POTS #hEDS triad. Family member and I are both affected by this triad and they have been helped enormously by LDN over the past year when nothing else had helped significantly in previous 10 years. I’m going to try it🤞.
Since contracting #Covid I’ve become disabled with #hEDS , #MCAS & #Fibromyalgia. This means that I can’t walk far without pain, exhaustion & sometimes fainting, so I use a mobility scooter or chair. Short distances and standing, I use a stick.
@AaronGoodman33 -How are you combating medical gaslighting & doctors who do not listen to their patients, esp for #BPOC, women & those w/ complex illnesses like #mecfs, #hEDS, #dysautonomia, #chiarimalformation, #craniocervicalinstability @btfoundation
@DisabilityRtsFL @AnnaForFlorida @CRFoundationUK @EricTopol @covidisairborne @CortDoesScience @AshHultman @VanessaBritoMia @Tinu @Imani_Barbarin #chronicillness #hEDS #LongCovid #MECFS #NEISvoid #Disability #universalhealthcare #BasicHumanRights #Moonshot #ExpandMedicaid
As if I’m not busy enough, I have to do my personal training CEU’s. I love how this course directly discusses the crap I’m going through with my body right now 😂 I guess it can only help! #personaltraining #corestraining #heds #anatomy
@JoannaNoBanana I would like to see my son grow up #t1D #POTS #hEDS
@Watt_ya_want @NerdyInNOLA Did you know there is real tiredness though chronic tiredness but people always call it autism burnout. It’s really real #heds
I think my 16 is a #hEDs baby too. They git their first knee brace this month. Have said their pain has decreased dramatically and can play floor hockey and stuff again. Sadly it’s nearly impossible to be diagnosed as they simply just send you to physio now.
@broadwaybabyto Same here. After 10 years with ME Dx I saw a woman Consultant Allergist who did only thorough physical examination I’d had and took detailed notes. She recognised #MCAS #POTS #hEDS that no one else had even mentioned. Her report to my GP was best and most detailed I’ve ever seen.
A t-shirt for people with PoTS & hEDS (play on the word pot head - PoTS hEDS) on Etsy as t-shirt, hoodie, and mug - tinyurl.com/2e9ukc57 #pots #potssyndrome #heds #ehlersdanlos #eds
👀 8 years ago, I had my diagnosis of #hEDS confirmed at the EDS clinic in Toronto. I apparently had signed up for physical therapy and mental health assistance from them. They called to know if I was still interested...wow! I thought they had forsaken me! 8 years!
Claire DB 🦓 (hEDS).. @hearthandmadeuk
5K Followers 1K Following I want you to Thrive, find your creative passion in this world, believe in You, *your* abilities to create & Spread Positivity through all that creativity
1stHeadlines @CruiseNewsHeds
607 Followers 1 Following Latest news stories about cruise travel from top online news sources.
Movie Heds @movieheds
1K Followers 68 Following Newspaper headlines ripped from movies (and occasionally TV). Print may be dead but we'll never pivot to video. #MovieNews
UKM DBI UNHAS @HEDSPublication
610 Followers 158 Following UKM Debat Bahasa Inggris Universitas Hasanuddin a.k.a HEDS a.k.a. EDS Unhas
SCHARR HEDS @SCHARRHEDS
2K Followers 215 Following The purpose of HEDS is to promote excellence in national and international health care resource allocation decisions. Part of @SCHARRSheffield at @sheffielduni
HEDS @hedsngo
255 Followers 5 Following Non-Profit Organisation. Committed to welfare and empowerment. Focus on public health, mental health and ecology.
1stHeadlines @StLouisNewsHeds
2K Followers 0 Following Latest news headlines about St. Louis Missouri.
1stHeadlines Health @HealthCareHeds
1K Followers 0 Following
Video Game Heds @VidGameHeds
208 Followers 1 Following An Honest Video Game Website Headline Editor Ripping Off of @nottechmeme
We Are BLOK HEDS @weareblokheds
1K Followers 1K Following British Youth Culture Tribes inspired Wood Carvings, Urban Art, Paintings, Illustration & merchandise.
J @j_heds
60 Followers 8 Following
What the ADHD? | Sydn.. @WhatTheADHD
57K Followers 881 Following introverted extrovert • weird mom • 30, nerdy, & crying • recovering academic • always anxious • hEDS zebra • gamer • she/her 🇲🇽🇺🇸🏳️🌈
![The most compelling, informative and unusual stories you missed today. All in video. [videoheds@gmail.com]](https://pbs.twimg.com/profile_images/1201101895/2076651581_a0e1c7b1b8_m.jpg)
VideoHeds @VideoHeds
95 Followers 20 Following The most compelling, informative and unusual stories you missed today. All in video. [[email protected]]
HEDS @HEDSConsortium
159 Followers 112 Following Higher education | Research | Surveys| Community| Collaboration | Impact | When you don’t have the time and resources to do it all yourself!
🌻 Alex · ASD hEDS @AlexSpectrum128
699 Followers 1K Following they/he/whatever. autistic. 90% coffee, 9% migraine 1% nefopam 🏳️🌈🛡️🍳 also a dad.
Tanja Hester @our_nextlife
13K Followers 378 Following 📚 WALLET ACTIVISM and WORK OPTIONAL | Words @WaPo @Bloomberg @MarketWatch | Early retired Dem hack | ♿️ hEDS/CVID/POTS/ND | Dual 🇩🇪🇺🇸 | Gardener | she/her
Mark Thompson 🏳️.. @mustangsart
30K Followers 1K Following hEDS ♿ he/him, bi/ace banner/pfp @kroovv Combat Wheelchair creator, @GameTeeUK affiliate Writer/Game Des./Witcher for hire [email protected]
Heds Up @HEDSPIN
3K Followers 1K Following Friendly Canadian / Redbull 3 Style World Champ / Eh! Team Djs
HEDS Up! fka cpwp @h_edsu_p
740 Followers 1K Following visit our website to find the eviction defense handbook. reach out at hedsup (at) protonmail (dot) com "if we can't pay alone, then let's not pay together"
Oscar A. Lizarazo-Cor.. @OscarALizarazo
4K Followers 5K Following Prof full time Universidad Nacional Colombia @UNALOficial Fac Derecho @fdcps_unal Dir R&D group @grupoplebio Law Intellectual Property A2Meds Biodiv Cats Health
Sebastian Heds @sebheds
68 Followers 115 Following
Charlie LMSW Expert o.. @CharlieShrimp
535 Followers 2K Following Her/She/Mum of They/Them/Honey-Pie Lives in Splendid Isolation #GravesDisease #EDS sucks.
Heds327 🇺🇸 🇳.. @heds327
376 Followers 581 Following #CyclONEnation, #MAGA, #FTTB, #Jets, God, Patriot, Proud Iowan, Husband, Father
Kelly ASC hEDS ME �.. @Kelly_Denning21
145 Followers 274 Following Interested in: social justice/fairness, Autism, food as medicine, functional medicine, Su Doku, organising, categorising, collating, recycling.
heds @hsb1998
102 Followers 101 Following
wedonothave3heads.... @wedonothav3heds
217 Followers 256 Following #justafamily…broken…but still providing & sustaining 35 years on...battling through the life changing impact created by LA malpractice, bias & ignorance🥲
alfieLavaHeads @AlfieHeds
174 Followers 396 Following Official Mod/member @LavaHeads /CRYPTO INVESTOR-NFT COLLECTOR JOIN THE DISCORD HERE https://t.co/tqprTKXb4v…
RoryPlays (She/Her) @RoryPlays_
10K Followers 952 Following Twitch Partner: RoryPlays | Disabled w/ hEDS | #LogitechGPartner | Thoughts=My Own | Business: [email protected]
Village Hednesford @VillageHeds
119 Followers 284 Following The Village Community bar and fun pub of Hednesford
Victor Hedstrom @VictorHeds4075
1 Followers 5 Following
HEDS @ShiningLena
33 Followers 17 Following
Jamie L. Molaro @spacejammie
4K Followers 931 Following Planetary Scientist (@planetarysci & @NASAJPL), Artist, Musician, Maker, Dungeon Master, Epic Poet. hEDS ♿️🏳️🌈
Kabutowari Cat @HoopHeds18
29 Followers 23 Following We are a two-man DeFi team: Big & Mini Chungus. Early positions in $YFI, $SNX, $AAVE. Nonetheless, supporters of itcoin.
Jim YellowHeds @YellowHeds
155 Followers 189 Following I spray paint, mostly for fun. Follow what I do here. #StencilArt. DM for commissions.
GDPR claims @HedsLaw
232 Followers 2K Following Litigation Solicitors based in the UK. Head over to https://t.co/JXqA2HxeBC… for a free claim assessment
Pyretta Blaze CCG ✝.. @thePyrettaBlaze
4K Followers 663 Following chronic illness advocate | ✨your diagnosis doesn’t define you 👩🏻🚒FF/EMT | hEDS • dysautonomia • ADHD feral Christian • gamer • lifestyle creator 🎙️🐾
ONE H’eds @ONE_Heds
312 Followers 305 Following 栄光の第18回開発バンド部門1位 & 2014北浦和Ayers 10代の部 観客動員数1位！Thank you！いつか絶対復活します。その日まで待っててね！！【Members】Vo.みっさん Gu.やきのすけ Gu.神園 Ba.わたる Dr.やまん
Undead Heds (Minting .. @TravieG_
214 Followers 90 Following Every soul will feel death and the life of this world is nothing but a pleasure just device
heds @hedprvqw
1 Followers 4 Following
Heds @LeosVedral
13 Followers 9 Following
HEDS Inc. @HEDSInc
143 Followers 277 Following Houston Energy Data Science, Data Science, Machine Learning, Hacking, Hadoop, Spark, Predictive Analytics, Data Conferences, Networking, Fellowships, Energy
HEDS @HEDS_dyslexia
12 Followers 10 Following HEDS (Higher Education Dyslexia Specialists) is a new and independent service providing specialist study advice and guidance for dyslexic students in Lincoln.
Liz Worthey @lizworthey
6K Followers 2K Following #AssociateProf #CompBio #Omics #WomenInScience #PrecisionMedicine #RareDisease #ME/CFS #hEDS #UndiagnosedDisease #SciFiNerd #Mama #Scottish #Texan
hedydd griffiths @HEDS1877
92 Followers 619 Following
Polly Atkin @pollyrowena
7K Followers 4K Following Writer, Lake-swimmer, Bookseller FRSL hEDS/Haemochromatosis/+ she/her rep @PortyLiterary Much with Body; Recovering Dorothy (2021) Some Of Us Just Fall (2023)
DizziHeds @DizziHeds
132 Followers 256 Following Musician, rebel, zebra (Ehlers Danlos) and now disability activist Bill 123 providing the accommodation of time #Bill123
Heds Up @Heds_Up
80 Followers 314 Following Producer John Hedlund hosts this crazy vlog in search of fame and fortune in the entertainment business. He will go anywhere and do anything for the Heds Up.
The BigHeds @TheBigHeds
11 Followers 22 Following The BigHeds introduce young children to important life lessons in a bright and engaging BigHed way.
微熱 @HEDS0214
189 Followers 150 Following 地方から中央まで競馬垢 穴馬探しに奔走･･･😏🤒 穴馬、狙い馬惜しみなく呟きます 三女の父リーマン！ 単、ワイド本線！ 😜 #地方競馬 #中央競馬 #虎党 #欧州サッカー
Otter Watch @OtterHeds
27 Followers 112 Following Cuddly sounding headlines about Idaho's 32nd governor.![neon nareul weonhae [WEONHAE!]
neon naege ppajeo [PPAJEO!]
neon naege micheo [MICHEO!]
heeonal su eopseo @uridb5k](https://pbs.twimg.com/profile_images/853618292065411072/GcKkYjSs.jpg)
[semi-hiatus] Heds. o.. @eych_key_areu
206 Followers 367 Following neon nareul weonhae [WEONHAE!] neon naege ppajeo [PPAJEO!] neon naege micheo [MICHEO!] heeonal su eopseo @uridb5k
Sonia Hedstrand @SoniaHeds
129 Followers 369 Following konstnär, konstkritiker & självutnämnd kulturpolitisk kommentator
D|ego™ @HedsTop
9 Followers 0 Following
Rozzy Heds @Rozzina2015
35 Followers 391 Following
Heds @HedsTukaylo
18 Followers 81 Following
heds medj @HedsMedj
7 Followers 34 Following
Alicia Kraft @theAliciaKraft
2K Followers 679 Following heds/features contributor @theonion fatty at large (get it) please add me to more crypto scam group chats or I will die
Hellman Davalos @Dj_Heds
14 Followers 12 Following
HEDS 北海道英語�.. @heds_parliament
445 Followers 1K Following Hokkaido English Debating Societyは、北海道大学を中心とした札幌の大学間を中心に英語での即興ディベート(パーラメンタリー形式)を行う団体です。リプ、DM等大歓迎です！/活動日:月木の18:30〜/Mail : [email protected]
Clínica Dental Heds @ClinicaHeds
5 Followers 1 Following
انفاس محدود.. @ICECnR2HedsBohe
9 Followers 98 Following
HEDS Askole @HEDS_Baltistan
142 Followers 741 Following Health and Education Development http://t.co/eAEjUMb1 is an international grassroots campaign that aims to mobilize a global climate movement.
itisallinmy_hEDS @itisallinmy
2 Followers 76 Following
Dark Knight HQ @Heds7X
16 Followers 1K Following
Hedvig Rosendahl @HedsR
2 Followers 2 Following