Search results for #EhlersDanlosSyndrome
When you hear hoofbeats, think of horses not zebras. - Dr Theodore Woodward 📹 dailymail🎙️equestrian sound effects #EDS #Zebra #EhlersDanlosSyndrome
But, you know, it’s not #POTS, the cardiologist says so lol #chronicillness #heds #ehlersdanlossyndrome #disabled #disabilityawareness Video shows Bri’s heart rate going from 87 while sitting to 131 while standing in 54 seconds. Heart rate is being monitored on an Apple Watch
“Arthralgias, fatigue, paresthesias and visceral pain: can joint hypermobility solve the puzzle? A case report” …musculoskeletdisord.biomedcentral.com/articles/10.11… #Hypermobility #JointInstability #Pain #ChronicPain #Proprioception #Arthralgia #Fibromyalgia #Fatigue #Paresthesia #EDS #EhlersDanlosSyndrome
This happens every time someone with #EhlersDanlosSyndrome is finally diagnosed.
This happens every time someone with #EhlersDanlosSyndrome is finally diagnosed.
It appears that @TheEDSociety will be on the @Nasdaq billboard in NYC this May 4th 2024. You ONLY have a few days left to send me a job offer letter @intel @AMD @SAP @nvidia @Google @beatport The clock is ticking. Every minute counts. #EhlersDanlosSyndrome I'm on @LinkedIn:…
It appears that @TheEDSociety will be on the @Nasdaq billboard in NYC this May 4th 2024. You ONLY have a few days left to send me a job offer letter @intel @AMD @SAP @nvidia @Google @beatport The clock is ticking. Every minute counts. #EhlersDanlosSyndrome I'm on @LinkedIn:…
Portrait of the triggered #panicattack #meltdown #Burnout autist #crystalsgay whose shoulder blade went crunch and didn't crunched back right #EhlersDanlosSyndrome It's all my own doing. So...that. #Mutism kicked in, so catters is doing the chatter and chirp because he's my hero.
A succinct list of tests needed to confirm or exclude #POTS #PosturalOrthostaticTachycardiaSyndrome #PosturalTachycardiaSyndrome #EDS #EhlersDanlosSyndrome #dysautonomia #LongCovid #SUTP Thank you, Resia Pretorius @resiapretorius
A succinct list of tests needed to confirm or exclude #POTS #PosturalOrthostaticTachycardiaSyndrome #PosturalTachycardiaSyndrome #EDS #EhlersDanlosSyndrome #dysautonomia #LongCovid #SUTP Thank you, Resia Pretorius @resiapretorius
@JoannaNoBanana Hypermobile Ehlers Danlos Syndrome, asthma, aortic aneurysm, mast cell activation syndrome, inappropriate sinus tachycardia, arthritis, just to name a few. The first one is the underlying reason behind everything else tho. #EhlersDanlosSyndrome
It's going to be another long night without sleep. 😕😴 #insomnia #chronicpain #ehlersdanlossyndrome
This is a face of chronic pain, I'm at a 7 right now, with a migraine, back spasms, right shoulder subluxed, left sciatica flare, period cramps (that KO'ed me yesterday), & an oral abscess Still walking, going to appts, driving... #chronicillness #NEISvoid #EhlersDanlosSyndrome
Fff. Subluxed my wrist at the gym (yay hypermobile #EhlersDanlosSyndrome haha), and couldn't wheel myself home, but fortunately my partner was there and could. Unfortunately we got cussed out by a cyclist when we tried to cross the street to our house. Grump.
Another night of no sleep. 😒😴 #insomnia #chronicpain #ehlersdanlossyndrome
I finally picked up another new leg brace today. Unlike my previous pairs, these are all-in-one knee ankle foot orthosis. And they are made of carbon fibre. Of course my dog Spot had to come and inspect! #EDS #EhlersDanlosSyndrome
#EhlersDanlosSyndrome #EDSAwarenessMonth #EDS #DinkyKtsEDSDiaries #WorldOfDinky #ClassicalEDS @ehlersdanlosuk What’s Coming Up On Dinkykts EDS Diaries During EDS Awareness Month youtube.com/shorts/6hMF5SP…
Learn more about genetics and inheritance in #EhlersDanlossyndrome here: ehlers-danlos.com/genetics-and-i… #DNADay
Learn more about genetics and inheritance in #EhlersDanlossyndrome here: ehlers-danlos.com/genetics-and-i… #DNADay
Martina @TheKingKogi
192K Followers 45 Following Captain Martina, of the King Kogi Airship 👑🐷 Find my adventures on YouTube ✨ Using #buildaladder to stay positive and to deal with Ehlers-Danlos Syndrome
EhlersDanlosSyndrome @me_and_my_EDS
3K Followers 1K Following Canadian Disabled Artist #EhlersDanlosSyndrome #Dyautonomia Hoping 2 help with awareness, information, and support for the #chroniclyawesome as I go!
NYIT Ehlers-Danlos Sy.. @nyitedscenter
1K Followers 47 Following Our integrated team works together across specialties to offer a variety of services to help evaluate and design individualized treatment programs.
Ehlers Danlos Syndrom.. @CooperativeEds
1K Followers 416 Following new group being formed around EhlersDanlos Syndrome email: [email protected] YouTube: https://t.co/XMM2J9YVzZ pronouns: they/them
EDS awareness page @Ehlersdanlos
6K Followers 519 Following Support page for Ehlers-danlos Syndrome sufferers.
Ehlers-Danlos Syndrom.. @ehlersresearch
267 Followers 33 Following We strive to promote evidence-based Neuromuscular and Musculoskeletal medicine for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder.
Ehlers-Danlos Support.. @ehlersdanlosuk
19K Followers 11K Following EDS UK is committed to changing the futures of people with Ehlers-Danlos syndrome (EDS) and HSD. With awareness and early diagnosis we can change lives.
Ehlers Danlos Syndrom.. @Ehlers_and_me
59 Followers 0 Following I am on a journey to connect to other people who have EDS and raise awareness of my disability
karmaliiicious @karmaliiicious
3K Followers 189 Following hypermobile ehlers danlos syndrome (hEDS)⚡️body equality advocate 💗 pansexual 🏳️🌈
chickpaints @chickpaints88
8K Followers 3K Following Warhammer 40k enthusiast living with Ehlers-Danlos Syndrome.
Only in this Head Lif.. @OnlyinthisHead
28 Followers 1 Following Blog Life with Ehlers Danlos Syndrome #EDS #chronicillness
Jenny Soppet-Smith @cheetahsinshoes
2K Followers 0 Following Living with imaginary friends, Ehlers Danlos Syndrome and my camera. Shortlisted in the ZSL Photography Competition 2014, 15 and 16
Kyle Jacob 'Teddy Bea.. @Bababooie42
10K Followers 6K Following 27 | Disabled (Ehlers-Danlos Syndrome) | Furry | Trying to make the world a better place for everyone - https://t.co/A0PoQ0BSc3
Deaf Bitch 🦻🦓 �.. @DeafBitch97
2K Followers 733 Following Deaf • Fibromyalgia • C-PTSD • Hypermobile Ehlers-Danlos Syndrome • Autistic She/Her | Previously @DisabledTimes
Rebecca Bradley @RebeccaJBradley
6K Followers 2K Following Crime writer with a love of sci-fi. Ex-detective. Ehlers Danlos Syndrome. Runs the Virtual Crime Book Club. FREE book on my website. Living A Year to Heal.
Ehlers Danlos Syndrom.. @EhlersDanlo4
42 Followers 46 Following Ehlers Danlos Syndrome Awareness. Knowldege and Support. Love, Connection and Empowerment. Based in Australia ~Reaching Worldwide.
DreamWeaver Serenity @DrmWvrSerenity
859 Followers 145 Following Traditional Witch, Mother, Grandmother, Proud Army mom! Idiopathic Intracranial Hypertension, Polycythemia, Ehlers Danlos Syndrome, Auto Immune Disorders
Jasmine 😅 @ohheythereblog
2K Followers 2K Following Blogger. Food Enthusiast. Ehlers Danlos Syndrome & Charcot Marie Tooth Disease. MA History of Design & Material Culture. Instagram || ohheytherejasmine
EDS_hub @eds_hub
916 Followers 132 Following Site dedicated to patient resources for Ehlers-Danlos Syndrome & Associated Conditions. See pinned tweet for site pages during update #Patient #Resources
Sapphire @ScotiaSapphire
2K Followers 412 Following Scottish not British . Ehlers Danlos syndrome . TST. Human rights/Animal rights. Vegetarian. Gluten free. Socialist. SNP/SSP. History+Politics
Oh TWIST! @H2OhTwist
9K Followers 4K Following Oh, That's Why I'm So Tired! Ehlers-Danlos Syndrome survivor & writer. She/her. Co-author #EDSToolkit for doctors. EDS / HSD isn't rare, just rarely dxed. PDX.
Jessღ @KogansxDimples
4K Followers 1K Following 27||Still a BTR stan||living life with Ehlers-Danlos Syndrome, Gastroparesis, & Dysautonomia||I love Drag Queens🖤
FreeFromFavourites @FreeFromFavour
2K Followers 1K Following A blog full of my #glutenfree and #dairyfree recipes, dining out/products reviews and my thoughts on life, enjoy! Ehlers Danlos Syndrome
#Hypermobile Ehlers D.. @GouldShaughan
15 Followers 0 Following Hypermobile Ehlers Danlos Syndrome doesn't mean you can't enjoy life. I've lived with it for 60 years.
Heather 🎃👻🕸 @theatrezebra
334 Followers 0 Following Proud Theatre Nerd! I'm an Ehlers Danlos Syndrome/fibromyalgia Warrior! Proud ally of the LGBTQ community Romans 8:38-39
EhlersDanlosProblems @EhlersDanlosPro
2K Followers 886 Following Ehlers Danlos Syndrome isn't an obstacle, nor is it something you can push aside. It's a way of life. You have no choice, but to follow it's lead.❤
Andy Husky🦉 @andyhusky
1K Followers 778 Following Struggling along with Ehlers-Danlos syndrome. - @officialoafc @ChaddertonFc @realoviedo - @OviedistaNW - @theCourteeners - @Ashofficial - @MclarenF1
Lynda Lynch @LyndaALynch
799 Followers 602 Following Former Chair of NHS Grampian Health & Social Care Ldrship Neurochem PhD: Dementia carer: Ehlers Danlos Syndrome: Recurrent CSF leaker: Romano-Ward Syndrome
bathroom-zombie @BathroomZombie
1K Followers 76 Following Myalgic Encephalomyelitis Ehlers Danlos Syndrome https://t.co/APhiyb1EAR
EDSAwarenessIreland @EDSIreland
2K Followers 2K Following Irish support group for Ehlers-Danlos Syndrome, and related conditions. Please send us a message to join our private support group! #eds #hms #ehlersdanlos
Brian - tecnobrat �.. @tecnobrat
893 Followers 850 Following Father, baseball fan, software engineer, Ehlers-Danlos Syndrome/PoTS sufferer and gamer. I tweet about geeky stuff, disability stuff and baseball.
Squiffy The Clown @Squiffy2
1K Followers 428 Following Clown, general jokester, & DJ on MFM Radio, has Ehlers Danlos Syndrome, Chiari Malformation & Osteopenia. My joints go out more than I do, but hey, Shit Happens
Wobbly Cyclist @CoxandClan
897 Followers 155 Following Mother of 3, wife of 1, autistic cycling spoonie with Ehlers-Danlos Syndrome, fibro, ADHD. Fundraiser for @OutfitMoray & supporter of @FSFDP. Opinions all mine
Brittany ✨Taylor’.. @ChronicallyBri
1K Followers 2K Following Swiftie since 2006 | 24 | Ehlers-Danlos Syndrome + | Hugged Taylor Swift 6/1/18 | TN Followed 9/15/18 | Eras Tour 6/2/23
Angie 🐈⬛🐾�.. @chattycalico
370 Followers 367 Following Ehlers Danlos Syndrome & breast cancer survivor. Former nurse. My sole purpose is to ensure the comfort and happiness of the cat.
Dani ✨ @_DanielleMonet
3K Followers 175 Following dani adventures on tiktok (ew lol) • ♐︎ ☉ ♐︎ ☽ ♒︎ ⇡• travel • activist • (vascular ehlers-danlos syndrome) ♿️
Little Miss Bendy™ @LilMissBendy
1K Followers 2K Following Loves purple, GSOH. I have Ehlers Danlos Syndrome & POTs and Gastroparesis. Loves anything Apple
CycleHackney @112KWren
669 Followers 1K Following East London NHS keyworker/Art Therapist. Interests include: Ehlers Danlos Syndrome, Fibromyalgia, Dyslexia, Autism, school refusal +Film & Art
Barbara Tomlinson @beachton
1K Followers 1K Following Hermit in the longleaf woods. Tiny house, tiny lab, and a big shed where I make things. Coping with Hypermobile Ehlers-Danlos syndrome. she/her
🦋AmazinAdrielle�.. @AmazinAdrielle
2K Followers 713 Following 🌈🌼🎨 Art | Craft | Animation | Games | Science | Nature | Animals | Writing | Bead Collecting | I have severe Ehlers-Danlos Syndrome, & other things 🌸😻🦋
Tori @skatothecore
2K Followers 2K Following Reptile keeping, free thinking, video game playing, comic book collecting, music appeciating, Ehlers-Danlos Syndrome living, cause fighting, nature nerd.
Kayla | Author and Re.. @kaylagracereads
1K Followers 2K Following 💙 Kayla (she/her) 💚 Canadian Author and Reviewer 🧡 Ehlers-Danlos Syndrome 💜 Join my Productivity Lives on YouTube Tuesdays at 4pm EST
Patricia Murray @Mastocytosis
1K Followers 2K Following Raising Awareness For Mast Cell Diseases, Ehlers Danlos Syndrome, POTS, Chiari Malformation. I will follow you and retweet your tweet.
Kelly Duffort @kellyduffort
789 Followers 836 Following Digital marketing strategist. Dyslexia awareness advocate. Seeker of answers for Dysautonomia, Ehlers-Danlos Syndrome. Lover of pugs.
Shannon DeForno @shanndeforno
436 Followers 142 Following M.S. Meteorology ‘23 // Lover of Storms // (Former) Dancer // Ehlers-Danlos Syndrome
Kirby @KirbyTheAD
363 Followers 183 Following I’m an Assistance Dog working to help my girl @briannasbell with her Ehlers Danlos Syndrome and associated conditions. I love nappings, munchings, and zoomies.
Rachel @rachelracing
815 Followers 789 Following Mega LOTR geek 🧝🏻♀️ Gamer & sim-racer 🎮 Trying to be greener 🌱 Living with Ehlers-Danlos Syndrome 🦓
Jessica Love @ladylovestead
482 Followers 381 Following Books. Homesteading. Pets. Gardening. Nature. Ehlers Danlos Syndrome. That kinda sums me up.
suzanne illingworth @suzanneburkill
1K Followers 2K Following has ehlers danlos syndrome.married with two grown up sons+ finn the family dog.loves her family, reading and being kind to others... always pay it forward💙💛🙏
Ex-NOVID Petty Prince.. @Melonious_Petty
768 Followers 1K Following Autistic,Princess of Petty, Law Student, Expat, Cancer Survivor and Spoonie Warrior ( Ehlers Danlos Syndrome), super literal. https://t.co/mr8N2gWuOG
Christina Cerqueira @cerqueic
1K Followers 1K Following artist, digital media journalist, dyslexic, Ehlers-Danlos Syndrome-haver Commissioning editor on the 52 Documentary series at VOA. Tweets are my own.
Ruth Mutch @phoebemonkey
611 Followers 1K Following I love drawing penguins and sell my artwork. Plus I'm autistic and I have Hypermobile Ehlers Danlos Syndrome (hEDS). I try to raise awareness of both :) she/her
whats all this, then @jenryannyc
904 Followers 1K Following cat food machine, Hypermobile Ehlers-Danlos Syndrome (HEDS) haver & advocate, good egg, silly person, F1/IRL 4x ACL club. made of glass& wet cardboard
pamela 💛🦄 🦓 @pamelaguinevere
930 Followers 1K Following just a northern girl with Ehlers-Danlos Syndrome and Aspergers, who loves Harry Potter, Disney, Theatre, KJS, TS and @girlguiding
Debbie Spencer @Debbiemade
608 Followers 639 Following I make stuff, garden lots, obsessively watch cycling, am a newly formed dog addict & have a thing for hens. For fun I have Ehlers Danlos Syndrome (I'm bendy).
Hitman Zero Six Actua.. @jlovendusky
1K Followers 2K Following Lions/Tigers/Wings - Wife fighting EDS (Ehlers-Danlos Syndrome). Pro-God/Gun/Military- Proud Army dad, Proud father of 3 daughters.
Emma Hunt @HealingNetwork
1K Followers 2K Following Tweet your healing request and we shall all send remote healing. Ehlers-Danlos Syndrome sufferer, looking to manage company twitter a/c
Echo2themoon ♿ ☭ .. @Echo2themoon
577 Followers 2K Following ML - Ehlers danlos syndrome, organizer, writer, freelance artist. learning Pan-Africanism - Solidarity in the United fight against imperialism. ✊🏾
A Creation Myth: me @TheSoleilfox
483 Followers 653 Following 40 yr old adopted from Colombia raised in MI living w/ Ehlers-Danlos Syndrome w/ passion for life & human/children's rights. they/them she/her
aka Pilotte @terpkristin
543 Followers 1K Following Rocket scientist. Gamer. Part bionic. Knitter. Reader. Ehlers-Danlos Syndrome. I post pictures of my cats and sometimes my travels. She/her.
Justin Jackson @justag33k
398 Followers 955 Following Not a creep, just a geek! He/Him I'm an indiscriminate Geek. Always down for a good debate. Husband, father, shoulder. Ehlers-Danlos syndrome zebra
Amber Schlessiger🌪 @amburr_nicold
425 Followers 406 Following NWS Meteorologist 🌪 Ehlers Danlos Syndrome 🦓, Opinions are my own, TX-VA-TN
Rabecca Primeau @EDSAwareness
261 Followers 284 Following Here to Promote Truth & Accuracy about Ehlers Danlos Syndrome Awarness
Hattie McCall Davies @HattieMcD
347 Followers 494 Following Musical Chameleon. TV Producer & folk musicologist. Can be found wielding cello & bagpipes. Ehlers Danlos Syndrome🎶💃🎥
Lana Blitstein @LanaReade
199 Followers 343 Following She/Her. Domestic violence & sexual assault advocate. Intersectional radical feminist. Crazy hockey fan. Carbon Leaf listener. Ehlers-Danlos Syndrome warrior.
Peach 🍑☕️ @TywysogesTea
1K Followers 290 Following ✨Gwneud gwaith y diafol mewn sgert fach. ✨ 🍑Ehlers-danlos Syndrome Type 3🦓
EhlersDanlosSyndrome @EDSprobs
125 Followers 0 Following Ehlers-Danlos Syndrome. I'm a warrior. Stay strong, Zebras.
Ciara 🍉 🌈Toitū.. @CiaraArmstrong_
1K Followers 776 Following I do swears. Chronically ill with Ehlers-Danlos Syndrome. She/Her #ToitūTeTiriti #CrossStitcher #FreePalestine
Jenn Lloyd @JenneralMalaise
1K Followers 684 Following Comedy writer (The Barbarian & The Troll, KC Undercover, Shake It Up), traveler & blogger. I have Ehlers Danlos Syndrome. I also have a super cute frenchie.
Jacqueline Nicole @Jacquesun
353 Followers 723 Following Lover. Sagittarius. Advocate. Healer. Beekeeper. Food addict. Ehlers Danlos Syndrome. Cystic Fibrosis. Stem celled. Gluten free forever. Love. ∞ ૐ☮
Shandley McMurray @shandleysue
795 Followers 971 Following Health and travel writer. Children’s book author. Mother. Ehlers Danlos Syndrome advocate. SATW member. @GoPlanetWare @TheTravel_com_ @univhealthnews
sherry kennedy hickma.. @sherry5997
955 Followers 2K Following grief support facilitator, feminist, atheist, vegan, knitter, ehlers-danlos syndrome, pots, mcas, cci, she/her
elizabeth theriot @elizavacious
336 Followers 259 Following cat lady | poet & essayist | zoeglossia fellow | classic ehlers-danlos syndrome | decaying hag | she/hers 🌈🐊🔮
Norris Lab @NorrisLab
1K Followers 117 Following Research Lab at the Medical University of South Carolina #HeartValveDisease #MitralValveProlapse #EhlersDanlosSyndrome #Fibrosis
Jacey Dalton @dorkexposed
411 Followers 783 Following Freelance Designer | Comedian | Dork | Ehlers Danlos Syndrome | All Pronouns Fine Except Mam
Shruti Chopra @itstarot
2K Followers 497 Following I tweet about my two loves: #cricket and my #health. Fighting #Endometriosis, #adenomyosis #EhlersDanlosSyndrome, #MCAS
EDS Guardians, Inc.: .. @EDSguardians
6 Followers 56 Following World's 1st patient-to-patient "pay-it-forward" 501(c)(3) nonprofit charity that helps Ehlers-Danlos Syndromes patients who lack support and need vital care.
Boomerang Zebra @Br0kenC0mpass
343 Followers 117 Following Sometimes I say funny things, sometimes my body does funny things. 🤷🏻♀️ #spoonie #gumbylife #EhlersDanlosSyndrome ✈️ #adventurenerd #disneybound #dapperlife
Claire(PainPalsBlog)�.. @ClaireSaul1
2K Followers 2K Following Blogger: EhlersDanlosSyndrome, hypermobility, chronic pain, POTS, migraine; Chair for @KGS_friends, mum, an NHS nurse in a previous life
Tiffany Taber @TiffanyTaber
2K Followers 924 Following Chief of speechwriting for @SecCardona. Comms @usedgov. Formerly senior adviser to @JohnBKing, @EdTrust. Teacher @ ❤️. #EhlersDanlosSyndrome warrior. Views=mine
life of a spoonie @life_spoonie
1K Followers 2K Following lost in #brainfog #ehlersdanlossyndrome #addisonsdisease #pots #epilepsy #traumaticbraininjury #chronicpainsyndrome #avascularnecrosis #diabetes #lgbt 🏳️🌈🎗
Joanne Simmonds @JoanneCSimmonds
2K Followers 2K Following MA Creative Writing Bath Spa Uni 2020. Writing & Postgrad Cert Humanities (Philosophy). #ActuallyAutistic #EhlersDanlosSyndrome #Hypoglycaemia (((🇺🇦)))
Jane Kohuth @janekohuth
663 Followers 1K Following #Kidlit author #EhlersDanlosSyndrome haver #ChronicPain advocate Lover of picture books and all things literary. Rep'd by Teresa Kietlinski, Bookmark Literary
Brian Ray @slimray11
753 Followers 988 Following Licensed Social Worker. Father of 3 beautiful children and married to my lovely wife. Father to children with #EhlersDanlosSyndrome. One with Epilepsy & Chiari.
Nina Schild 🍓Nerdb.. @EinMaedchen
1K Followers 836 Following Pressesprecherin bei Webedia - Ask me about LOOM | @GamePro_de | @GameStar_de | @MeinMMO | @moviepilot | @FILMSTARTS | @JoinTheAllyance | #EhlersDanlosSyndrome
💜Julie Digs💚 @Julie_Digs
1K Followers 902 Following Gardening, baking, and plant medicine. Medicinal cannabis patient and advocate. Breaking the stigma one vape at a time #ehlersdanlossyndrome #audhd #letusgrow
✨🐍Tortured Tiffa.. @trutiffany14
836 Followers 1K Following 34. Chronic illness/pain. Swiftie. INFP. 4w5. Opinions my own. folk lambda🩶 I'm just too soft for all of it. #EhlersDanlosSyndrome
Gamer Kitteh @MeriLizzie
2K Followers 1K Following She/Her ~ Disabled gamer trying to game the best she can. I don’t march to the beat of a different drum… I dance! #EhlersDanlosSyndrome #AutoImmuneDisease
AntheaMeetTaylor @Anthea_Taylor_
935 Followers 2K Following My goal is to get my sister who has #ehlersdanlossyndrome to meet Taylor Swift at the Brisbane, Aus concert #reptourbrisbane
Sophie Rickard @gluepotgluepot
285 Followers 586 Following Writer for hire. One half of the @RickardSisters graphic novel team. Northern, gentle intersectional feminist. Mostly indoors due to #EhlersDanlosSyndrome.
Harriet Yeo @shookyshiner
1K Followers 2K Following Former Chair Labour NEC. MSc Political Psych student. #EhlersDanlosSyndrome #Democracy #PR #MakeVotesMatter #IStandWithIsrael
Lonni Hurst Casswell @LonniCuriosity
1K Followers 1K Following Psych grad. Humanista nontheist. Vegetarian. Antique Dolls. EhlersDanlosSyndrome. Worked @JanusYouth nonprofit org. Medically retired, 2019. Black Lives Matter.
Anne-Maria Herbert @AnneMaria60
427 Followers 698 Following Senior Lecturer in Law @BathSpaUniversity #EhlersDanlosSyndrome advocate
Karina Sturm @KarinaSturm
2K Followers 2K Following Freelance #journalist and #chronicillness advocate living with #EhlersDanlosSyndrome besides others. She/her. Profile Pic: @ohrenflimmern
TrippyTrellis 🌈 �.. @TrippyTrellis
456 Followers 1K Following Likes a book.a show.cake.tea.chocolate.whimsy. Want a Shed Of My Own. I collect subpar bathroom graffiti #spoonie #ehlersdanlossyndrome can dislocate at will 😉
GumbyGal @GumbyGal
423 Followers 710 Following Backup account for @IsaJennie LGBTQIA & SJ activist & student w/#EDS 3/6 #EhlersDanlosSyndrome! #equality, #science, & #humanrights She/her
Marg ☮️ #secular_.. @secular_girl
1K Followers 2K Following #Science is my God, #EhlersDanlosSyndrome, #Zebra, #EatTheRich, #BurnTheirShit, #Human #Bendy
Susan 🖖🗽🧷�.. @mooncove
775 Followers 2K Following Character-actor fan,would-be author,#WaterIsLife,#EhlersDanlosSyndrome/#ChronicPain,#ADHD,#ASD,#NarcissisticAbuseAwareness,#CPTSD,#BenzoHell,NoDMs,🚫TrumplicansTrends for United States
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