Bridget O'Shea @Bridget_OShea
Certified medical #writer, enthusiastic #journalist, cat mom, @UChicagoProEd, ME/CFS patient. Freelance journalist. Available for medical writing and editing. bridgetoshea.com Joined September 2021-
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I used to work 10 hour days including the commute. Sometimes I’d even hit the gym afterwards. Now I wake up feeling like I need to be in hospice care, but there’s never anywhere to go. #MECFS is truly a death in life.😢
Where are the urgent #LongCovid treatment trials? The immunotherapies? Every man & his dog seems to understand the desperate need for them but year after year, they never really materialise, save a few scraps. Millions suffering yet still so pathetically little real-world action.
Is this LC feet? I can’t tell. Blood seems to be pooling but I’m so darn used to this now. Just…Idk anymore. They look unusually red.
I actually looked at skorts online today. I was thinking how nice it would be to walk along the lakefront while wearing a pretty skirt, but not having my thighs rub together like a billion times. But then I thought, when am I going to walk by the lake? #MECFS #LongCovid #pwME
There really is no disease known to man that causes more suffering than #MECFS .😭 I feel like I’m being tortured every minute of everyday. Like I’ve died & gone to my own personal hell.
Lack of representation for the severe / v severe Lack of publicity They have money but noone knows what they spend it on Some are aligned with poisonous BPS Doesn't seem worth joining any Be wary of all of them? I wish it was a bit more reassuring End/
I'm new to dealing with ME (as caregiver to partner with v severe from LC). My first impression of the charities representing pwME is: Mostly silent Mostly useless Nobody seems satisfied with any of them Names are v similar (confusing!) They don't seem to collaborate 1/
I hate the idea of trying treatments bc I’m desperate. I’ve tried so many. Few have helped significantly or for long and I’ve lost so much health in the pursuit. But then, I’m desperate. I got projects in the wings. How’s a sick person supposed to resist a siren song like health?
BACME: ME/CFS charities work with psychologising organisation thecanary.co/uk/analysis/20…
So many! I'm sorry to be the bearer of more sad news this morning. Condolences to friends and family. 🕯️ #MyalgicEncephalomyelitis #MECFS
When Beth Mazur was visiting me just before she died, I said that I felt like being so sick for so long was like being pre-dead — having already died and yet still being alive. And I talked about how that experience struck me as interesting: What is life when you're already dead?
I have #MyalgicEncephalomyelitis . I also have: Diabetes, Small Fiber Neuropathy, POTS, Dysautonomia, Gastroparesis, MGUS, CAD, HOCM, an Aneurysm, DDD, Sjogren's, Endometriosis, Chronic Pain, PTSD & probably stuff I don't know/yet. I would rather have ALL of these than #MECFS.
Could even Orwell have thought of governments deliberately making their population ill, then denying mass illness and blaming it all on random shit? Seems too far-fetched even for satire.
It’s relentless & everlasting, with no breaks or relief. It’s impossible to enjoy anything when every cell in your body feels poisoned & like it’s suffocating… like you could collapse & die at any given moment. 2/
I’m terrified of death. I can’t bear the thought of it. But I also can’t bear the thought of spending the rest of my life, what could be 20-50 years, feeling like this. This is hell; pure torture. A sick fucking joke. 3/
What I ask myself now is.. what is it exactly that I’m holding onto? The memory of a life that is slipping through my fingers. Dreams that I am no longer capable of making come true. I don’t want this body or this life. 6/
I will always & forever want & desire to be my amazing, brilliant, beautiful, high functioning self. Nothing will ever compare to that. I will always wonder what would have happened, experiences I would have had, ppl I would have met & places I would’ve gone. 9/
"Experts are getting nearer to producing a treatment" - Dr C Shepherd '92 Those of us who had ME then & never recovered have been in a perpetual cycle of having our hopes built up then smacked back down again, for decades 🔃💔🔃 #pwME
"Experts are getting nearer to producing a treatment" - Dr C Shepherd '92 Those of us who had ME then & never recovered have been in a perpetual cycle of having our hopes built up then smacked back down again, for decades 🔃💔🔃 #pwME
I haven’t seen you for ages, how are you? #ME
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
elle W @elleW902
3K Followers 5K Following Nature lover🌊⛰wx watcher🌪️❄️ Ally🌈 ♍️creative🖌#LongCovid Sept 2021 #Dysautonomia #LCPOTS #LCHashimotos KINDNESS is the #1 attribute in a human❤
Amy @alexandrite113
6K Followers 845 Following Long Covid to very severe ME/CFS to mod/severe ME/CFS. Tweeting into the void. DX'd autistic ✨
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Paula Knight @Paula_JKnight
5K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Tracey Burgess @TraceyABurgess
2K Followers 3K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Mark @longcovidman
3K Followers 5K Following On pause: management consultant, tech founder & powerlifter. Follow for smart answers to long cov*d as I find them
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
Sibylle Dahrendorf �.. @sibylle_berlin
6K Followers 3K Following Once a filmmaker now stuck in horizontal hell | #SmallFiber #BigPain #POTS #MCAS #CCI #Lyme #FQToxicity #ME I Stop denial of #ComplexChronicIllnesses I
Patricia Wozniak @PWoz1
0 Followers 231 Following
Bella @Chocnutties
20 Followers 136 Following Long Covid survivor. Two years and counting: CFS, Dysautonomia + Heart Arrhythmia. Still looking for a miracle. Legit only 15 followers, 19 now😊.
Carrie @carrie25anderso
120 Followers 3K Following
Dani Russell @DaniRussell16
724 Followers 5K Following Bond geek, Foodie, ex-Arsenal player and true Gooner
singkepe @singkepe
2K Followers 3K Following 𓁹 Reminding you of your power • Awakening your mind and body to your healing potential and purpose • Certified Quantum Healing Hypnosis Tulum #QHHT #Hypnosis
vix @Vix666Vicky
285 Followers 2K Following
Mindy Stephens @MindySt19576212
86 Followers 1K Following
User101m @User101m158164
48 Followers 115 Following
cha @charlottehvrn
10 Followers 25 Following 23 - life on pause bc of severe Pots / ME / possible Autoimmune Encephalitis
Anna-Suzanna @Suesuzannesuzie
121 Followers 553 Following
Justin_Struble @Justin_Struble
395 Followers 2K Following
MyVaccident @MyVaccident
57 Followers 228 Following #LongVax #LongCovid Dx: Post Vaccination Syndrome via #Yale neurologist 2021. #Pfizer Lot #EW0169 &7 #ER8736. Disabled American ♿️ #Dysautonomia #Polyneuropathy
Nicole #KeepMasksInHe.. @chronicoley_me
150 Followers 1K Following PhD in biomedical physics. Disabled, chronically ill: endometriosis, severe ME/CFS, probably more. Mixed race, acespec, avid knitter, former dancer.
Scott Hilbert scotthi.. @ScottHilbe85976
1 Followers 68 Following
LouiseBellamy @D3D8n1JpZQFXT0
4 Followers 265 Following
traumedyking @traumedyki31915
17 Followers 91 Following when comedy and trauma align, call it Traumedy. that is the genre of my life.
Soughez @soughez66829
0 Followers 35 Following
Morrison @Morrison130915
10 Followers 126 Following
Ayman Fanka @fanka308
79 Followers 583 Following Join us in helping Ayman and his family escape the turmoil of Gaza before the Israeli incursion on Rafah. Ayman, a devoted father, is tirelessly seeking assista
herrywood @herrywood01
8 Followers 219 Following Love is not just a feeling; it’s my favorite adventure.❤️❤️❤️❤️❤️❤️🌹🌹🌹🌹🥰🥰🥰🥰
Bill Bennett @BillBen50947120
554 Followers 2K Following Proud to be a leftie! Pro EU, Anti Tory. Despise the Tories and what they’ve done to the country and the less fortunate. Dislike racism. No DM’s please.
✞ Trisha June 3 ♡.. @trisha_june3
10 Followers 100 Following #LongCovid patient 4 yrs. & still counting due to #Pfizer 's so-called safe vaccine~I Love The Lord, Music, Sunrises/sets #JohnnyDeppIsLoved
Gerard Moreau @GerardMore11934
613 Followers 3K Following
geraldwalter @geraldwalt30785
7 Followers 385 Following
Olivia Fx (Forex trad.. @OliviaFAf823
61 Followers 509 Following 📊📊 SENIOR ACCOUNT MANAGER AT BITCOIN MANAGING PLATFORM📉🛠️ DM TO START EARNING... 🛠️ NO SCAM❌❌
Becky A Robertson @AnciraBecky
4K Followers 6K Following Survivor. Proud mother. Teacher. Philanthropist. Activist. Trying to make a difference. #maskup #longcovidawareness #LCDC #March15 #ValueCognition
John Dutton @JohnDutton67754
36 Followers 363 Following
Krystal Gault @Kitschmonkey
3K Followers 3K Following Former Film & Video Director/Producer, Dir. Cinematopia Film Events. One of the #MillionsMissing Artist & dreamer ME/CFS | Medical Science | Politics | Art
sean stidston @seanstidston
230 Followers 978 Following
Sally can't wander ri.. @WanderingSally
783 Followers 2K Following Sally wanders and wanders DOB 330ppm
Joan Crawford @joan_crawford1
281 Followers 1K Following
Meg Samuelson @coastalthinking
329 Followers 903 Following i used to read think write teach (literatures of the South/Africa/Indian Ocean & environment littorals oceans women’s stories). #LongCovid #MECFS
Pet lover @MbabaziJoy5433
1 Followers 113 Following
Q🔥Kelly🦁🦋�.. @Qkellycsk
2K Followers 5K Following 🔥 God’s Ambassadoress 🔥~ Every Knee Will Bow ~ Every Tongue Confess ~ 👑 Christ JESUS 👑 ~ Hosea 4:6
Covid Caution KP.2 Va.. @CovidCaution
4K Followers 1K Following Collection of news, resources, and discourse related to the ongoing COVID-19 pandemic & health advocacy. Occasional venting, hot-takes and memes.
brush B @brushb__
12 Followers 44 Following
‽ @HowNotToADHD
155 Followers 1K Following 28F / #ankylosing spondylitis warrior Spacex fangirl also #chronicpain #switchfoot #NF
Gail Rule-Hoffman @grulehoffman
15 Followers 80 Following
Vitamins Vites @VitaminVites
249 Followers 5K Following offer quality vitamins https://t.co/FpS0B7ROzi https://t.co/R5o58MgFsg https://t.co/MeUNk0lgWA keep https://t.co/b0MYawvs7c https://t.co/pmLhaPqrL1 https://t.co/S9HW8km1Km https://t.co/KDQ5Di4616 https://t.co/cqlfYNbWMe
Baby Ruthless 🗡️ @babyrelentless
571 Followers 192 Following Your friendly neighborhood plague victim. Unwilling early adopter of #LongCovid. Solidarity from the void.
Save Liz Nevra @SaveLizNevra
486 Followers 794 Following A place to receive updates and support Nevra Liz on her journey with Ehlers-Danlos Syndrome, PMDD and ME/CFS to get the health care she needs. #ME #EDS #PMDD
Nathan Luna @NathanLunaAKTN
2K Followers 2K Following Visual Artist | Writer | Queer 🏳️🌈 | AuDHD | Activist | Long Covid | ME/CFS | POTS | NR-AxSpA | Fucking Tired | (he/him)
Germain Kyle 🍄 @microdosingpsy
2K Followers 7K Following Profession grower® & vendor of psychedelics products also a psychotherapist been treating many people suffering from anxiety, depression, PTSD,adhd,pain & more.
DawnAandcatcrew @OrangeCatsRule1
570 Followers 1K Following Humanist, animal lover, science enthusiast, ally, SARS-CoV-2 dodger, ISFJ. Fear of dangerous viruses is normal and adaptive. https://t.co/B5pNcpdRZd
Max Nits @MaxNits
315 Followers 337 Following Physics grad, programmer, entrepreneur. Life on pause due to ME/CFS.
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Shaney Wright @ShaneyWright
15K Followers 494 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Candace D. @DiaryofaSickGrl
12K Followers 1K Following Wife. Mother. Dog mom. Chronic illness advocate. 🥄♥️ #hEDS, #MCAS, #POTS, #foodallergies, #cornallergy, etc.
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Boomslang Analytics I.. @BoomslangCreate
350 Followers 185 Following Boomslang Analytics Inc. is an independent, non-government funded, science-driven, evidence-based global health research analysis company.
Nicole #KeepMasksInHe.. @chronicoley_me
150 Followers 1K Following PhD in biomedical physics. Disabled, chronically ill: endometriosis, severe ME/CFS, probably more. Mixed race, acespec, avid knitter, former dancer.
Ror Preston @RorPreston
2K Followers 555 Following Lead Data Scientist @visible_health 💙 | Organiser @wecrunchme 🗺️ | #MECFS since 2018 | Own Opinions
NursingAmbulant @NursingAmbulant
852 Followers 3K Following Leben und arbeiten in der Pflege mit #MECFS #MCAS #hEDS #niewiederunsichtbar #teamvorsicht #diemaskebleibtauf
Natalie @Natalie6548
660 Followers 349 Following Accountant, artist, adventurer in a past life - now bedbound/housebound with severe #longcovid #MECFS #POTS 👩💼🎨🌲🏔️🥾
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Joan Crawford @joan_crawford1
281 Followers 1K Following
katiana mekka ❤️�.. @katiamek
1K Followers 571 Following 26. Former Architecture student dealing with severe LongCovid and ME/CFS , since 2021. . inst: k_aotic
puppygma I ❤️ bab.. @i_must_sing
573 Followers 5K Following
World ME Alliance @WorldMEAlliance
2K Followers 246 Following An alliance of ME organisations across the world, we want to see a coordinated public health response to ME from the WHO and together founded #WorldMEDay.
Roisin Keogh @RoisinKeogh4
597 Followers 375 Following Mother, wife, psychology, law and education graduate. Life on hold because of ME. Live in Dublin, Ireland.
heather — k1llstrea.. @k1llstreakz
1K Followers 1K Following 31. long covid since fall 2021. disabled. hEDS & co, MECFS, AuDHD, endometriosis, etc. human rights. no bigots v: h-dawg ca: $hdizzle420
Sally can't wander ri.. @WanderingSally
783 Followers 2K Following Sally wanders and wanders DOB 330ppm
_____________________.. @BaszkoM
2K Followers 5K Following ME-dically gaslit for 9yrs. Literal dopamine hit from blocking terfs, ableists and racists. Esos son Reebok o son Nike... @baszkom.bsky.social
♥️ 𝔉𝔯𝔞�.. @fragmented_ME
128 Followers 500 Following ❤️❤️❤️ - what the f**k have I got ... suffering with: ME, fibromyalgia, chronic daily migraine, neuropathic pain, MCS, TMJ, and so much more!
Bridgette Jones @biocultural13
657 Followers 2K Following ⬆️from @talilalewis! #DisabledOracle💫 #COVIDIsAirborne #QuarantineYear5 chronically gaslit #PwME/Lyme/POTS/longCOVID ambulatory ♿️user+herbdork #LandBack🌈🍉🎶
sawyer 🌪️ @idea_alchemist
3K Followers 1K Following LC July 2020 🧠 🌿 #LongCovid SARS-Cov-2 afflicted | virology & neuroscience nerd. 🩵☁️: idea-alchemist. 🅱sky.sociaI
Save Liz Nevra @SaveLizNevra
486 Followers 794 Following A place to receive updates and support Nevra Liz on her journey with Ehlers-Danlos Syndrome, PMDD and ME/CFS to get the health care she needs. #ME #EDS #PMDD
LA2LAGURL @La2Arceri
426 Followers 2K Following Questioning everything : 𝚖𝚎𝚗𝚊𝚐𝚎𝚛𝚒𝚎 𝚘𝚏 𝚠𝚑𝚊𝚝 𝚠𝚊𝚜: spiritual & narcissistic abuse survivor #CPTSD: severe #ME/CFS: POTS, CCI 20yrs
Pandemic A. Index @pan_accindex
5K Followers 3K Following A public archive of pandemic disinformation actors and biting commentary, supported by readers like you.
zedsrigil @sunsweptforest
430 Followers 852 Following forest.haven they/them autistic me/cfs and more nature music outer space
Başar SARIKAYA @basarsarikayamd
3K Followers 1K Following Associate Professor of Neuroradiology, University of Washington, PGY-24, G93.32
I feel ____ @ITEOTWAWKIAIF_
679 Followers 4K Following That’s great it starts with a heatwave, reefs & floods & Taylor’s plane. Donald Trump is not afraid. Eye of a hurricane listen to yourself churn.. It’s the end.
ChronicIllnessHumor @HumorChronic
987 Followers 3K Following Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for a while. #chronicillness #autoimmune #funny
🦋 WOPR SysProg Hea.. @RealNickHodge
1K Followers 1K Following 🦋 username https://t.co/PK27uj0pVX Carer for a lovely ME/CFS hEDS POTS wife.
Sue Poncin @poncin_sue
68 Followers 212 Following Long COVID suffer and former overachiever, Calculus teacher, Mom Uber driver
Georgina coker @Georgina19000
187 Followers 323 Following BSC hons, psychology, sociology, economics & soc. history. University of Leicester. #ME #CFS. #Fibromyalgia. Small nerve fibre #peripheral neuropathy.
Donna @DonnaMerritt8
216 Followers 625 Following Ex Nurse Practitioner… 37 year career ended by #LongCovid #ME #Dysautonomia #POTS Nature 🍂 and Book 📚 Lover …Mum of one ❤️ Life on hold 🏡 🛌 since Sep 2020
Tim @TimofejM77894
130 Followers 236 Following Severe myalgic encephalomyelitis triggered by mild COVID
Charlie Park (she/the.. @MeanderingPark
3K Followers 1K Following Meanders about 🌈 Autism 🥄 Chronic illness 🐱 Cats ♿ Disability 😷 Avoiding COVID
Mike Z @MZ1YrCancerFree
1K Followers 3K Following Trying to be better & do good. “Power concedes nothing without a demand. It never did & it never will.”
AndyTobi @antoandtob
23 Followers 4 Following Severe #MECFS for 20 years. In August 2023, with a lot of help, I started my own research project. After 6 month we managed to grow muscle without PEM.
A Tired Owl @aTiredOwl
1K Followers 3K Following #MaskUp #MyalgicEncephalomyelitis LC ally. Networking with #pwME and other chronic illnesses. ⒶⓋ
Laura A. Pace, MD, Ph.. @LauraAPace
3K Followers 1K Following Physician-scientist | Neurogastroenterology | Microbiota-Neuroimmune Axis | Women's Health. Be a part of the solution. Tweets are my own.
Danielle Beckman @DaniBeckman
24K Followers 6K Following Neuroscientist 🇧🇷 at the @CNPRCresearch working with primates. I like taking pictures of weird things happening in the brain 🧠🔬. #NeuroCovid is real.
Molly Gordon @shaboom
13K Followers 11K Following Elder starlet. Tough canary. Ecstatic cranky. Queer. Grandma. #LongCovid #MECFS @MollyBoom in various places.
LC/DC (Awareness Day .. @LCDCmarch15
2K Followers 208 Following https://t.co/McGz8ndGEH We're going to DC for LC 3/15/25 Long Covid Awareness Day Demand action for Long Covid and Covid prevention!
Angie 🐈⬛🐾�.. @chattycalico
370 Followers 367 Following Ehlers Danlos Syndrome & breast cancer survivor. Former nurse. My sole purpose is to ensure the comfort and happiness of the cat.
🌻Kirsty @Kirstycfsmelife
587 Followers 712 Following CFS/ME 15+ years and POTS 🐼 trying to improve my health and one day fully recover
Dfrizz @Dfrizz007
301 Followers 214 Following 42y/o dealing with #longcovid #MECFS since May 9th 2021. Fucking A
LongHaulSolo @longhaulsolo
468 Followers 628 Following Attorney who got clobbered with #LongCovid #MECFS #POTS. Trying to find solutions. Currently trialing LDN.
Existential Bread @exist_bread
752 Followers 1K Following Mostly stuff about chronic illness, data, and Oxford commas.
Diko @DKoulian
257 Followers 426 Following BS in Business, suffering with #LongCovid since the beginning of 2021. #CovidTinnitus
Penny Bonds @pbonds747
246 Followers 488 Following I am a Christian, conservative Southern Lady and married. I Love nature. Any tweets are of my opinion and are not intended as medical advice.
Jessica Taylor-Bearma.. @jayletay
5K Followers 2K Following Author of A Girl Behind Dark Glasses and A Girl in One Room. and A Girl Beyond Closed Doors Winner of Best Non-Fiction at The People’s Book Prize She/her
Klaus H. @DownloadArtAI
776 Followers 3K Following #MECFS, #POTS, chron. pain +PostC. Bell10. INFP. IQ151. Former highperformer now 24/7 bedridden in darkness and silence. Lang: DE-EN-NL #verysevereME #pwME
Lisa C *the C is for .. @mesteza1
2K Followers 2K Following 🗣🗣UNAPOLOGETICALLY committed to anti-racism‼️ Masking is my LOVE LANGUAGE 😷❤️😷. *I move like it's March 2020, cause y'all matter 2 me.
Natasha 🐱🦠 @doyouseem_e_now
2K Followers 673 Following 29 & sick with Severe #LongCovid for 13 months 🛌 Part of the biggest mass disabling event in modern world history. #Millionsmissing
K 🌻 @misshealing7
1K Followers 268 Following Severely injured by C-19 Infection since 2022 (no vax) THEY 🐍 poisoned me but I will not give up, God is with me ✝️
Why did I think that people would offer me and my mom a place to live when I’m this sick? I’m telling you that’s what I thought… Maybe because that’s what I would have done …
Needing a hand to pull me out of this hole
I was just thinking how f*cked all those with #Longcovid would be if #MECFS did not exist. Read this ridiculous title. Who is paying for this misinformation? We need to follow the money. This needs to be exposed. Imagine a world where the covid pandemic lead to a severe…
I got very ill yesterday morning and it's so bad. I hate this illness. You cannot plan anything. Here is a poem. The violence in my body is deafening. Everything is painful saturation. Thoughts are daggers. Skin feels like crumbling hot asphalt. Stomach is boiling lava.
All it takes is a healthy-looking person with a stupid smile on their face holding literally *anything* and I’m ready to buy it now like a dog after a chew toy hoping it will make an impact on my health. And Instagram knows it! 😂 #mecfs #SevereMECFS #pwME #LongCovid
Where are the urgent #LongCovid treatment trials? The immunotherapies? Every man & his dog seems to understand the desperate need for them but year after year, they never really materialise, save a few scraps. Millions suffering yet still so pathetically little real-world action.
Increasingly I've been realizing that the healthy world sees meeting with family and friends as my 'silver linings,' while it's actually the opposite. I go from PEM to PEM and I cannot wait to have an empty schedule again so I can return to my (shitty) baseline. #MECFS
I got a letter. So now that I'm 99% bedbound and can't even sit or leave the house, I finally qualify for free public transportation by bus. Lol. Those things are always too little too late. Help is always 1000 steps behind your basic needs when you're disabled/chronically ill.
Reciting the mantra that recovery is possible, delegitimises and gaslights pwME who have been sick past the point where recovery is possible. I know some need to believe this to stay mentally afloat but the fact is recovery is not possible for the majority after 5 years of #mecfs
It would be nice to live in a society where providing sick and disabled people with a decent quality of life was considered a desirable political objective. #r4today
I used to love waking up and getting my day started. Now I despise it. Facing another day while chronically ill is so fkin pointless
Many of us w post Cv illness, ME have been slowly declining over the years & yet still 0 urgency or serious attempts by our Gov to do anything abt it. They will gladly & ambitiously advocate & pass all kids of bills & money to propagate wars in foreign countries…no $ for the…
What things do u do for not getting (more) depressed when u are in bed? I wanna read books, write, play an instrument, whatever thing to make this shit better but I am too tired for anything. Social media and shitty shows are not good for my mental health but Idk what else to do
@Mary2bOptim @Bridget_OShea You’ll get the best image if you take the picture from the exact same angle and light – take it immediately after you stand up (the blood doesn’t pool immediately, so you’ve got a few seconds to get a baseline pic), and then again after a few minutes
Atleast when I’m better I will have a epic wardrobe
Happy Birthday to the smartest sweetest girl - someone who’s over come so much suffering and illness.. I love you so much and I’m so thankful were here at 12 years old with you 😭😭😭😭😭
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