Tweets @ChronicMyalgicE
Dutch | life derailed due to #IBD & #MECFS | sofa bound | on Twitter to raise awareness for post infectious diseases | one of the #MillionsMissing Joined October 2022-
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Following810
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Increasingly I've been realizing that the healthy world sees meeting with family and friends as my 'silver linings,' while it's actually the opposite. I go from PEM to PEM and I cannot wait to have an empty schedule again so I can return to my (shitty) baseline. #MECFS
It's been 3 months today since @dutchlauren passed away. A week later @ChronicMyalgicE @dievandinges @NeleHelena + myself were watching her funeral online. 4 candles were lit. They represented each one of us, so we were included. Sweetest things someone has ever done for me! 1/3
Or I sing ‘Het is een nacht’ to @ChronicMyalgicE, so she knows I was awake till late again. We all talk about Lauren a lot. About how she was the most loyal friend with the best humor. We miss her so much ❤️🩹 also on our twitter timelines… 3/3 #reMEmberLauren #DagLieveLauren
Rust zacht Loes 💙💫🕯️ Loes is op 22 april 2024 overleden door euthanasie vanwege een lang ziekbed met ME. Onze gedachten zijn bij iedereen die haar kende en iedereen dit raakt. Veel liefde en sterkte. 💙🌹 mecentraal.wordpress.com/2024/04/23/loe…
This is beautiful. Lauren is so deeply missed… I have no words 💛💛💛
This is beautiful. Lauren is so deeply missed… I have no words 💛💛💛
Feel a bit better Get so excited about life I can’t sleep Feel worse #mecfs #SevereMECFS #pwME #LongCovid
We need to share this as widely as possible #SaveCarlasLife Carla has now been having seizure-like events for over FIVE DAYS yet @WestMidHospital has STILL not sent a neurologist to see her, as of 10am today. She had NEVER had them before being admitted there #ExposeMENow WATCH
Everything that happens to Carla in the hospital right now is giving her serious physical suffering and makes her illness decline in horrible ways. Read this 🔋 from @dievandinges to understand ⬇️ #SaveCarlasLife #ExposeMENow
Everything that happens to Carla in the hospital right now is giving her serious physical suffering and makes her illness decline in horrible ways. Read this 🔋 from @dievandinges to understand ⬇️ #SaveCarlasLife #ExposeMENow
#MedTwitter What is so very misunderstood and underestimated, is just how intolerant #MECFS-patients can become for sensory input. It can cause unbearable suffering. Like in this case.
#MedTwitter What is so very misunderstood and underestimated, is just how intolerant #MECFS-patients can become for sensory input. It can cause unbearable suffering. Like in this case.
In a caring society people would not fear needing to be cared for.
⬆️⬆️⬆️⬆️⬆️ #BringMillieHome #DontLetMEDie #MECFS
#BringMillieHome 18 yo Millie is deteriorating rapidly in hospital due to the NHS’ continuous psychologising of her #SevereME. NHS hospitals must stop mistreating #SevereME patients and follow the #NICEGuidelines! #DontLetMEDie @gmcuk @RCPhysicians @rcpsych @VictoriaAtkins
Alexandra Alvida @Aelvidra
41 Followers 148 Following very severe ME CCI EDS mcas, insta: @alekpalek Gofundme: https://t.co/op7gGeiInu ⚠️please help if you can⚠️
Mariëlle Selser @Marielle___S
295 Followers 533 Following Passie voor onderzoeksjournalistiek & literaire non-fictie. Mijn boek ‘Landziek. Een medische geschiedenis’ ligt nu in de winkel. @Querido_Facto. ME/POTS
Fatigued_ind @FatiguedInd
227 Followers 382 Following In search of water. #MECFS #Dysautonomia #POTS #LongCovid #HRV #HR guided recovery experiments
leurah @leurah_
725 Followers 98 Following love love love 💜 March 2020...in USA LC'er IG: covid_longhaulers_supportgroup
Irum 🌻 @irumidk
3K Followers 3K Following ‘A complex case’ #madtwitter #pwME || Feminist || Peer/lived exp working (not a professional account, views + profanities my own) || she/her
Luce @LucevsME
1 Followers 20 Following Housebound with ME/CFS, along with many other things. ND. she/her 🏳️🌈♿️
Denise @Esinede_l
387 Followers 750 Following Leeft in 2 verschillende werelden. Een als fysiotherapeut en een waarin overleefd wordt met cptss, dis en adhd.~ }¡{ ~
Corine Witvliet @CorineWitvliet
116 Followers 248 Following Biomedicus, Long Covid (2020). Ik houd van de natuur, cijfers, katten en fantasy games.
Emma - Fighting 4 Jus.. @DA_Survivor_
3K Followers 4K Following Mother fighting for Children's Rights & Justice, Raising awareness of #FamilyCourt crisis, Supporting Survivors of #DomesticAbuse & #PostSeparationAbuse, #MECFS
Marloes Letteboer @_marlette_
490 Followers 1K Following Head of Educational Strategy & Policy @UTwente - MSc in Physics - PhD in Medicine - #longcovid since April 2022 - supporting @KinderenLC
G R A C E 🌸 @withgrace___
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Hannah 🥀😷💚�.. @PipsMiniTwee
4K Followers 4K Following M.E(Over24Years so far🐦🔥🪫🙄)🥄Depression,Millennial,Vegan🌱Sloth🦥Magpie✨Love:Animals🐾Piercings,Tattoos,Soaps,Crystals💎LipBalm💄J2🖤1R🎵TT🎵+More🫶She/Her
Sarah @SarahLizzyLou
2K Followers 2K Following She/her. Physio student on hold since #longcovid #MEcfs Oct 2021. 💙 our NHS. Former neuro-rehab assistant. #CognitiveDysfunction 🧠♿️ #FBLC
innocent @innocent1915968
818 Followers 2K Following Nothing interesting about me just living life 🤛
#IngeborgVraagt🍀�.. @Ingeborgvraagt
25K Followers 21K Following Mijn leven met IIH🍀#IngeborgVraagt: brengt mensen samen🍀Radio sidekick @Groningen1R🍀Mama van Sophia en Thijmen💗💙#GezichtAchterHetAccount
Diana 😻 @Diana_M42
5 Followers 689 Following In sеarсh оf раssiоnаte еncоunters, а woman's аррetitе knows nо bounds
Supervisor Kingsley B.. @SupervisoBarela
24 Followers 88 Following
AroundScotlandWithME @scotlandwithme
806 Followers 970 Following Basking in the pleasure of ME/CFS, I ramble physically, verbally and mentally around Scotland. Lost forever in the Scots Mist of my mind.
Renate-new account�.. @Renate834601
83 Followers 423 Following Myalgic Encephalomyelitis since -87,severeME,Bedbound, diagnosecriteria /name matters!separate ME from ME/cfs; use ICC -G93.3 for ME❤️#Enterovirus
Cheri @mamahaugen
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Chronically Illumise .. @ChronIllumise
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Frostyleo @Frorstyleo2424
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Barry Cooke @cookebazzer1000
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LisaE @LisaE92853661
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Jacqueline 😻 @Jacqueline5902
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Mary........ @covideducated
111 Followers 804 Following Home carer, wife, 4 cat lover, photographer and Photoshop enthusiast, all comments/ideas are my own. If you don't like them well bad luck.
#NotJustFatigue @njfatigue
582 Followers 656 Following We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue
Debbie Filippaki, BSW.. @filippakid
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Ciprian Mihai Marin @Ciprian20Marin
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Jade Savoca @JadieIsTired
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Coyote @Coyote
1K Followers 318 Following Mother of many. Admirer of arthropods. Carrier of cameras. Pursuer of peace. Life is short. Be nice.
DerHogland 🏳️.. @StefanHogland
4K Followers 5K Following We can change the world. LGBTQI+ activist since 1983, polyamory, ,HSP🇩🇪🇸🇪🇬🇧 spoken 🏳️🌈🇪🇺 #fckafd #fcksd #notjustsad #MECFS-Betroffener
Stine Mari Lyngseth @Stinelyngseth
61 Followers 248 Following On the hunt for causes and cures for Myalgic Encephalomyelitis and Long Covid
Linda @thereallindakw
34 Followers 561 Following
Martje de Voogd @vrijezangvogel
814 Followers 1K Following thuis in zang, adem en beweging. #zangles #sopraan #vocalcoach #evt #mensendieck #mindfulsinging
Sally can't wander ri.. @WanderingSally
783 Followers 2K Following Sally wanders and wanders DOB 330ppm
🌱 katski 💙 @katkatski
15 Followers 808 Following
Lou💜 @LouNicholls
436 Followers 566 Following Homeowner, Brighton Marathon finisher 2017 & 2018. Civil Servant, Auntie & friend 🤗 Recovering CFS/ME 🙏🏻🏳️🌈
Medical Gaslighting @MedGaslighting
1K Followers 1K Following Screenshots & stories of #medicalgaslighting/#medicalabuse. I’ll RT screenshots & your stories. #NoMoreMG #MyalgicEncephalomyelitis #LongCovid #ChronicIllness
Otte-Marijn @OtterlyFoxed96
64 Followers 397 Following 🦦🦊 Just a queer neurodivergent chronically ill person living in a not so functional world. ME/CFS, AuDHD, CPTSD:the whole alphabet. They/Them 🐶🐱📚🧶🌈
Jo Greer @DrJoGreer
879 Followers 2K Following Educational Psychologist. Personal account. All views my own.
Marcel Mccall @MarcelMcca26737
79 Followers 3K Following
Danielle Peruffo @danni_peruffo
335 Followers 814 Following Ecologist interrupted by myalgic encephalomyelitis.
WE&ME Foundation @weandmecfs
3K Followers 50 Following WE&ME Foundation funds and supports collaborative research projects to combat #MECFS and related disorders.
Sarah @SarahLizzyLou
2K Followers 2K Following She/her. Physio student on hold since #longcovid #MEcfs Oct 2021. 💙 our NHS. Former neuro-rehab assistant. #CognitiveDysfunction 🧠♿️ #FBLC
AroundScotlandWithME @scotlandwithme
806 Followers 970 Following Basking in the pleasure of ME/CFS, I ramble physically, verbally and mentally around Scotland. Lost forever in the Scots Mist of my mind.
ME/CFS Research Found.. @MECFSResearch
1K Followers 226 Following Für mehr biomedizinische ME/CFS Forschung. Foundation for biomedical research on #MECFS (Myalgic Encephalomyelitis / Chronic Fatigue Syndrome).
Grieving ME Caregiver.. @mecaregiver
1K Followers 1K Following Caregiver of patient with severe Myalgic Encephalomyelitis & one son died of very severe ME. Hope for BC007 IMPORTANT INFO: ME IC PRIMER: https://t.co/tnfTPKyIGj
#NotJustFatigue @njfatigue
582 Followers 656 Following We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue
a person w/ Long Covi.. @RandomNWild
898 Followers 2K Following #LongCovid from the first wave diagnosed with cancer 2 years later #FBLC
@TheChronicCollaborat.. @TheChronicColab
4K Followers 2K Following A resistance movement for chronically ill & disabled people. Joining the dots between conditions. Resisting psychologisation. Fighting for justice & equality.
NLZorg @NLzorg1
15K Followers 399 Following Normaal elke week een andere zorgprofessional aan het woord, deze week Dina, mantelzorger en vrijwilliger bij ouderenzorg
Martje de Voogd @vrijezangvogel
814 Followers 1K Following thuis in zang, adem en beweging. #zangles #sopraan #vocalcoach #evt #mensendieck #mindfulsinging
Pia Dijkstra @ministerMZ
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Jo Greer @DrJoGreer
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KarenPhysioCoUk @karenphysiocouk
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Holly ✨ Eras Tour |.. @hoIIybassett
210 Followers 138 Following 26-year-old queer Picture To Burn stan, vinyl obsessed, neurodiverse moron 🍄🐋📚🐸 #FreePalestine 🇵🇸 #22HatsOffToLauren 💙
Matthew Hodson @Matthew_Hodson
50K Followers 21K Following Executive Director @aidsmap. Shamelessly #HIV+. These opinions, gym-selfies & choices are mine but you’re welcome to them. #UequalsU (he/him). 🏳️🌈🌱
rob @rob__i
2K Followers 2K Following PhD since 2016 Ill since May 2021 Recovery log: https://t.co/ccKnFAcEvJ
Martijn van der Linde.. @pmvdlinden
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Otte-Marijn @OtterlyFoxed96
64 Followers 397 Following 🦦🦊 Just a queer neurodivergent chronically ill person living in a not so functional world. ME/CFS, AuDHD, CPTSD:the whole alphabet. They/Them 🐶🐱📚🧶🌈
Thane Black @thane_black
7K Followers 187 Following 'Kindly let me help you or you will drown said the monkey putting the fish safely up a tree' #SevereME
Charlotte Nelck @CharlotteNDB
155 Followers 98 Following Werkzaam bij Rijksoverheid, life on hold since 2021 #longCOVID | Long Covid Nederland
Benny Touzine @Bennytouzine
10K Followers 2K Following Twitter is a bathroom wall. Arifi. Antwerpenaar. Amazigh. Ameghrabi. 80's baby. Geriatric millennial. 🇧🇪🇲🇦
Caroline van der Plas @lientje1967
256K Followers 7K Following ❤️ MIST @GrubenJan ❤️ | Lid Tweede Kamer | Member of Parliament 🇳🇱| @BoerBurgerB | #BBB | platteland | @SupCasper | [email protected]
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Marco Wetzel (is figh.. @Gmwetz
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Inspectie Gezondheids.. @IGJnl
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2.0M Followers 270 Following @newsnation 8p and 11p east M-F Instagram: chrisccuomo. TRY MY PODCAST. FREE. CHRIS CUOMO PROJECT. link:
A Tired Owl @aTiredOwl
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Elke Asen @ElkeAsen
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Nic Corr 🇬🇧🏴.. @Nic_Corr
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Post-Exertional Mayon.. @pempodcast23
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@ChronicMyalgicE I was trying to explain this to a family member recently-visiting the sick with ME friend should be very very short
@ChronicMyalgicE I had to give up socializing with friends and family, it causes PEM each time. Such an unimaginable loss when we have already lost so much. #SevereMECFS
@paulthedaid @dutchlauren @ChronicMyalgicE @dievandinges @guustweet Yes, and it feels both longer and shorter. Time is a strange thing. 😞💙
@guustweet @ChronicMyalgicE @dutchlauren @dievandinges @NeleHelena Lovely words Guus. I’m glad you all have each other. We also have our International Mourning Unlimited group where we share lichtpuntjes and remember Lauren fondly 🥰
@ZorayaTerBeek @NeleHelena 💙 Her parents didn’t really read it and some of her friends stepped in very quickly to contact the sources. It’s was wild, but I think we’re all doing okay on that part! I’m so so sorry you have to go through those horrible reactions as well and witness them yourself, 💔❤️🩹
Koningsdag in een vorig leven. (7 jaar geleden ofzo)
@NeleHelena @dutchlauren @ChronicMyalgicE @dievandinges @guustweet So sweet. Very touching.
@SarahLizzyLou @dutchlauren @ChronicMyalgicE @dievandinges @guustweet Yes she really was ♡
@NeleHelena @dutchlauren @ChronicMyalgicE @dievandinges @guustweet Lauren sounds like such an incredible person ❤️🫂
@guustweet @dutchlauren @ChronicMyalgicE @dievandinges @NeleHelena so sorry about this x
@guustweet @dievandinges @dutchlauren @ChronicMyalgicE @NeleHelena This is a beautiful picture! 💙
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