Jo Hunt (activism, also @JoElizaHunt for papers) @HealthHubris
Disabled psy therapist, researcher & activist. #MECFS #Chiari #CCI #EDS #longCovid. she/her. Animal lover. Here for intersectional social justice healthcarehubris.com Stroud United Kingdom Joined October 2020-
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❓📣Who are the academics and researchers living with energy limiting conditions working in social sciences, Disability Studies, medical humanities or related fields? I know there are many of you out there! Please reply if this is you And RT to get the word out 🙏
Sunak’s misleading sick note numbers The PM implied that 1.35 million were off work because of depression or anxiety. That’s not true More than 1 million of them – had depression or anxiety as a secondary condition, rather than the reason for which they were signed off Link ⬇️
Britain is sicker and poorer than it used to be. Sunak’s response? Attack disabled people | Frances Ryan | The Guardian theguardian.com/commentisfree/…
BREAKING: UN committee finds thats the UK government has "failed to take all appropriate measures to address grave and systematic violations" of the human rights of disabled people. me for @TheCanaryUK #CRDP24 thecanary.co/global/world-a…
‘conditions that could be framed as psychological or psychosocial in nature, and thus amenable to psychosocial interventions, could be exempted from welfare provision and health insurance pay-outs.’ #ME @HealthHubris Brilliant piece on #BPS 👇 healthcarehubris.com/post/summary-s…
With this ridiculousness making the rounds again, it feels like a good time to re-share this excellent summary by @HealthHubris of the biopsychosocial model's "political underbelly" x.com/HealthHubris/s…
With this ridiculousness making the rounds again, it feels like a good time to re-share this excellent summary by @HealthHubris of the biopsychosocial model's "political underbelly" x.com/HealthHubris/s…
Journalists reporting on #SickNoteSunak and all that garbage would do well to learn from this excellent piece by @HealthHubris and report on the fundamentals of what’s really going on here! @Channel4News @GranadaReports @BBCNews @TheNewsAgents @BBCRadio4
Journalists reporting on #SickNoteSunak and all that garbage would do well to learn from this excellent piece by @HealthHubris and report on the fundamentals of what’s really going on here! @Channel4News @GranadaReports @BBCNews @TheNewsAgents @BBCRadio4
Fortunate to be working with excellent people with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome and @JessicaRunacres @DannyLeeHerron @HealthHubris
Fortunate to be working with excellent people with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome and @JessicaRunacres @DannyLeeHerron @HealthHubris
A great example 👇 as to why any #DWP covert surveillance of people claiming #Benefits with #EnergyLimitingConditions #MECFS #LongCovid #PEM #PESE is not fit for purpose : You may see us doing something, but you won’t see us ill and doing nothing … @LongCOVIDPhysio @long_covid
A great example 👇 as to why any #DWP covert surveillance of people claiming #Benefits with #EnergyLimitingConditions #MECFS #LongCovid #PEM #PESE is not fit for purpose : You may see us doing something, but you won’t see us ill and doing nothing … @LongCOVIDPhysio @long_covid
The problem is, as we have discovered, the charity's don't want to collaborate. Hence, @TheChronicColab. Otherwise this is exactly what needs to happen...👇✊️
The problem is, as we have discovered, the charity's don't want to collaborate. Hence, @TheChronicColab. Otherwise this is exactly what needs to happen...👇✊️
We saw @GeorgeMonbiot's calls for an ME Inquiry. This got @h_sharland thinking: who could possibly stand in the way? Well, there's one weasely person who could - & here, Hannah dissects his track record. Important read #BringMillieHome #DontLetMEDie: thecanary.co/opinion/2024/0…
"Research into [#MECFS] is lagging decades behind because society doesn't take it seriously enough" Professor Chris Ponting Highlights also include the brief introduction not available in the videos being shared.
"Research into [#MECFS] is lagging decades behind because society doesn't take it seriously enough" Professor Chris Ponting Highlights also include the brief introduction not available in the videos being shared. https://t.co/t9gfKDPLXP
We are thrilled to announce that we have secured funding for a research project looking at vagus nerve stimulation for people with ME 🥳 More details in our newest blog post. This project is in early stages and not yet recruiting - updates will follow physiosforme.com/post/funding-s…
I really admire how Jo Hunt (@HealthHubris) manages to produce a stream of interesting papers despite serious disability. This is her most recent.
I really admire how Jo Hunt (@HealthHubris) manages to produce a stream of interesting papers despite serious disability. This is her most recent.
With thanks to @Dailies54153708 @AlyFixit & @the_polyphony for this piece. In dialogue with Alec Finlay - thank you for inviting me into gentle conversation & giving me space to reflect on themes of witness & considering the process of creating #MovingMountains @WeAreFootnote
With thanks to @Dailies54153708 @AlyFixit & @the_polyphony for this piece. In dialogue with Alec Finlay - thank you for inviting me into gentle conversation & giving me space to reflect on themes of witness & considering the process of creating #MovingMountains @WeAreFootnote
A delegation of disabled activists will travel to Geneva this week to help the United Nations hold the UK government to account for its continuing breaches of the UN disability convention. buff.ly/4a7IXnL
‘An anthology to treasure and return to’ ELINOR CLEGHORN ‘Uniquely compelling, dynamic and powerful’ LUCY JONES ‘Deeply affecting’ TOM SHAKESPEARE ‘Promises to change the landscape of nature writing’ LIZZIE HUXLEY-JONES WITH A FOREWORD BY SAMANTHA WALTON footnotepress.com/books/moving-m…
‘An anthology to treasure and return to’ ELINOR CLEGHORN ‘Uniquely compelling, dynamic and powerful’ LUCY JONES ‘Deeply affecting’ TOM SHAKESPEARE ‘Promises to change the landscape of nature writing’ LIZZIE HUXLEY-JONES WITH A FOREWORD BY SAMANTHA WALTON footnotepress.com/books/moving-m…
#CRDP24 Evidence of #DWP harms to #DisabledPeople living with #LongCovid From our joint @The_TUC and @long_covid report : tuc.org.uk/research-analy… @BenClaimant @paulapeters2 @Dis_PPL_Protest @DPACSheffield @RachelCDailey @chronicinclude @ScribblerPen @crr7310 #PIP #WCA
#CRDP24 Evidence of #DWP harms to #DisabledPeople living with #LongCovid From our joint @The_TUC and @long_covid report : tuc.org.uk/research-analy… @BenClaimant @paulapeters2 @Dis_PPL_Protest @DPACSheffield @RachelCDailey @chronicinclude @ScribblerPen @crr7310 #PIP #WCA
It is hard to overstate how despicable the UK govt's performance was just now at the #CRDP24 #CRPD24. So, I've tried. Here's my look at what just went on in that meeting: gaslighting, lies, misrepresentation, & shame @Dis_PPL_Protest @TheChronicColab READ: thecanary.co/editorial/2024…
It's like we're almost exactly 4 years into a virus that is known to cause long term health problems or something
It's like we're almost exactly 4 years into a virus that is known to cause long term health problems or something
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Tom Kindlon @TomKindlon
14K Followers 578 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Mark Vink, MD @Huisarts_Vink
2K Followers 522 Following Huisarts n.p. en verzekeringsarts n.p. (genomineerd voor 2016 John Maddox Science Prijs). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth
Paula Knight @Paula_JKnight
5K Followers 4K Following Graphic memoir THE FACTS OF LIFE (2017) Kidlit books x3 author. Disabled. Bedbound 5.5yr v severe #pwME Submerging writer. Total Bedass. Print Disabled she/her
Dr Nicola Clague-Bake.. @ClagueNjc36
4K Followers 2K Following Physio @LivUni co-founder @physiosforme | PhD | neuro rehab/ex physiology/fatigue/healthy lifestyles/mental health/ME/Longcovid/EDI/all views my own she/her
Natalia @NataliaHodgins
7K Followers 1K Following Disabled writer with words in @Refinery29AU, @ABCNews, @PublicHerald | Activist | Feminist | MECFS | Follow on IG - same handle
Long Covid Advocacy �.. @LongCovidAdvoc
14K Followers 13K Following 📘Legislate ⚕️Investigate 🌬️Ventilate 👥Educate Advocacy4 #LongCovid #MECFS #COVIDisAirborne
Alisontomyradio @arisonsned
3K Followers 5K Following ME MCAS Lyme.Still with humour.Satire Music.Dream of life without illness. Wanna ride my bike. Cat & Dog Botherer.YP Counsellor retired. Retweet not endorsement
Richard Vallée @richardvallee
3K Followers 5K Following I play language. Mostly irreverent. Debugger. AI, global warming, integrity, healthcare & science. Chronically ill. #MillionsMissing #pwME #MEcfs
Sibylle Dahrendorf �.. @sibylle_berlin
6K Followers 3K Following Once a filmmaker now stuck in horizontal hell | #SmallFiber #BigPain #POTS #MCAS #CCI #Lyme #FQToxicity #ME I Stop denial of #ComplexChronicIllnesses I
PwME 4 bioMEdical res.. @ValeBodi
4K Followers 2K Following Surviving #MyalgicE #AAG to tell the story, patient&advocate w/ a JD, into: MEdicine, Social justice & the Arts, Human neutrino/MEdical apolide/gnarled Pacer
elle carnitine 🍉 @elle_carnitine
4K Followers 968 Following very sick with covid-induced myalgic encephalomyelitis • kept alive by my beloved @predi_cam_ents • she/her
@[email protected] @kenna_lindsay
622 Followers 3K Following Interdisciplinary Artist [email protected]
Bee 🐝🌼✨ @elbecp
1K Followers 4K Following Public Health student 🇦🇺 🇫🇮 Plant person. AuDHD. Chronically curious. Alphabet soup connoisseur. ♐⬆️ | ♃ in ♉ @elbecp.bsky.social
Krystal Gault @Kitschmonkey
3K Followers 3K Following Former Film & Video Director/Producer, Dir. Cinematopia Film Events. One of the #MillionsMissing Artist & dreamer ME/CFS | Medical Science | Politics | Art
G R A C E 🌸 @withgrace___
87 Followers 291 Following 🥀 severe ME/CFS mama to baby son ❤️ heart full, body broken 🌻 INFJ
Amber @amber_wilkins_
226 Followers 3K Following
Hans Christian Anders.. @HansChr52239198
884 Followers 5K Following I thought the story would have been enough, but no! And yes, to answer your question, Danny Kaye could be quite a handful when I was coaching him.
🦖ZonedOut KPSS Saf.. @ZonedTortoise
557 Followers 1K Following Am fed up of women & men in public eye not understanding male violence & sex offending at depth & signing away our rights. If u enable sex offending u are one.
Sarah Schafer MD MPH @SarahSchaferMD
3K Followers 2K Following Medical educator, Sjogren’s & spondylitis patient. I combat Sjogren's myths to improve diagnosis and care for this serious, systemic disease. No medical advice.
Hugo @mx__worldwide
591 Followers 1K Following They/them | 28 | ME/CFS since 2016, (very?) severe since 2022 after covid infection | Severe hyperacusis | Pro disability justice & pro Palestine 🇵🇸
Tan @tantasnot
84 Followers 910 Following
zedsrigil @sunsweptforest
430 Followers 852 Following forest.haven they/them autistic me/cfs and more nature music outer space
kate mellor @katemellor9
20 Followers 686 Following
LLLR @LLRLies
48 Followers 181 Following My name is Lies. From the Netherlands. Tweeting about my struggles with Long Covid (May 2021).
Jenny Bunker (PhD) @JennyBunker
770 Followers 2K Following Pepperaddict, Spinoza fan, glitter evangelist. Never knowingly underdressed. (Suffering from Long Covid since March 2020)
Lou Thornley @Lou_vs_ME
387 Followers 676 Following Public health, science communication. ME/CFS, Long Covid. Global research gems. Nearby nature pics.
Autisdick ☭ 😷 �.. @hiimjakekthx
1K Followers 2K Following @Remissionbiome n=50 Participant🍳🧠 🏳️🌈. Disabled by SARS2, Marxist, jew-ish. @hiimjakekthanks priv alt
ej @symptomhaver
95 Followers 573 Following brave sufferer with feel like shit all the time disease; heroically tweeting thru the pain for my 3 adoring fans. essentially a vent account 🫡
Rebecca C 🏴�.. @plantingforbees
2K Followers 4K Following Mum. Cat slave. Coffee, crime fiction, politics & plants. Animals ≠ food/sport. #ME & FM.🥄Ovarian Cancer - know the signs. 🏴🇪🇺🇵🇱🇮🇳 No DMs.
Sarah Betts @WromanticHistry
1K Followers 3K Following PhD student @YorkHistoryDept and @IPUPYORK researching memories and Public History of the English Civil War (Royalist Reputations) and Monarchy.
Andrea Pring @Andrea_Pring
8K Followers 7K Following Children’s author & PhD student (disability/illness in children’s Gothic) | Founder of @virtualwriters | #WriteMentor ‘21 mentee #eds #mecfs #pots #mcas she/her
Nicole Lee Schroeder,.. @Nicole_Lee_Sch
18K Followers 5K Following #Disabled and #FirstGen historian. Research on #DisHist, #HistMed, and #VastEarlyAmerica. Assistant Prof at Kean University. Tweets = my views alone
sharon askew @88888888881
83 Followers 1K Following
Amber🌻 @AmberRosina_
352 Followers 603 Following Coexisting with Chronic Illness🌻 @thelunaprojectt☀️ Currently studying MA Inclusive Education 📚 she/they
Dr Marie Allitt @MarieAllitt
2K Followers 2K Following Early Career Teaching & Research Fellow C20th Lit @LLCatEdinburgh MedHums| Life-writing| Chronic illness| Disability| Pain| Care spaces| she/her. Views own
Sally Greenway @salgreenway
735 Followers 361 Following Living with M.E for so long, now our eldest daughter also has M.E, this 'chronic fatigue' joke isn't funny anymore Our story of life for a family with M.E
SueG @SueGee30
46 Followers 117 Following ME/CFS long-hauler (1990); reader; cat and dog lover; politics watcher.
Catherine McCullough .. @CatherineMuseum
973 Followers 2K Following Museums, maps, social history; NB PhD UU/IMA: EU, cross-border museum projects; Author: IHTA Armagh; sailor;'enthusiastic maverick!'. Life interrupted/LongCovid
Lara Crowther @fillthewhole
5K Followers 5K Following BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
Jason Momoa @Jasonmomoa4958
15 Followers 142 Following
Lou @loulabelleHK
206 Followers 2K Following #pwME since 2020 | stuck in a venlafaxine tapering hell haze | lover of cats/animal/funny videos or anything else that makes me belly laugh
Jakob Juhola @s_jakke
768 Followers 1K Following
Tom Molmans, MD @Molbaas
2K Followers 885 Following Psychiatrist | Life on hold since Oct. '21 due to long Covid | LC foundation NL | Carpe diem sed non inpensa crastina | Tweets are my own | No medical advice
C.H. Romatowski @CHRomatowski
505 Followers 792 Following Account used sporadically to engage with research. Tweets delete.
Sazana Jayadeva @SazanaJayadeva
2K Followers 3K Following Researcher @SurreySociology| Education, student mobilities & social media | Associate Editor @sociologyjnl | Ed board @GlobalNetwrks @SocresOnline
chia @chiafanliang
397 Followers 2K Following Geriatrician with long COVID. Mum. Barefooter 👣 living a simple shabby life
Tamara Jade @xTamaraJadex
491 Followers 2K Following Aspie mama of 1 amazing aspie teen girl ♥️...& 2 nutty Staffies🐾😂
Kenny Loggs Off @interestingdan
673 Followers 3K Following Brain in jar thanks to ME/CFS https://t.co/j5mjZIhu7H
Massimiliano @Snipperspace
729 Followers 3K Following 52y/man/Nurse and Osteopath/#MECFS (Long Mumps, The only one in the world) from 13/08/2021.🇮🇹 Italy
ME/CFS News @MECFSNews
15K Followers 712 Following News, interesting information and commentary on ME/CFS. My bluesky account is @mecfsnews.bsky.social Looking for paid ME/CFS related work.
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Adam @ABrokenBattery
6K Followers 1K Following Severe ME patient currently on a 10% battery, the gas goes out more than I do. I also compile ME/CFS Awareness videos.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
davidtuller @davidtuller1
10K Followers 2K Following Senior Fellow in Public Health and Journalism, Center for Global Public Health, UC Berkeley. My academic position is largely funded by donations from patients.
Katy B @KatyBruce108
5K Followers 5K Following Myalgic Encephalomyelitis - M.E + POTS 38 years Donor to the @mecfsbiobank & @DecodeMEstudy Please watch https://t.co/rPfzhZQ6po #pwME
Anil van der Zee © @AnilvanderZee
9K Followers 824 Following Former professional ballet dancer | Bed/sofa-bound M.E. patient | Using Twitter to raise awareness for #MyalgicE | #art2cureME #pwme #millionsmissing
Tom Kindlon @TomKindlon
14K Followers 578 Following With ME 35 years (29 yrs severe). 95% of posts on #MEcfs/#LongCovid/#chronicillness. 26 publications in peer-reviewed journals. @IrishMECFSAssoc trustee 27 yrs
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Sten Helmfrid 🇺�.. @StenHelmfrid
7K Followers 205 Following Ph.D. in physics, also interested in mathematics and science theory. Loves to apply general knowledge of science to other fields, for example ME/CFS.
Dr Keith Geraghty @keithgeraghty
9K Followers 500 Following Research Fellow | Primary Care, Medical & Health Psychology | People-focused, evidence-based | @FBMH_UoM, @PrimaryCareMcr
Janet Dafoe @JanetDafoe
15K Followers 220 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 725 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Lizzy H @hopefullizzy
6K Followers 3K Following 29y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Carole Bruce @CaroleBruce17
6K Followers 5K Following Severe #ME for 32+ years. Ex- psychotherapist. Daughter, severe ME 38 years. Eldest son, MS. Apart from that ❤️Art, people,nature, books, some music.
Dr Asad Khan FRCP FRA.. @doctorasadkhan
28K Followers 3K Following Lung Dr on pause since Nov 20 #LongCovid #POTS #MCAS #HSD #pwME #Aotearoa Views my own; Retweets≠endorsements #freepalestine #TeamClots ZIONISTS WILL BE BLOCKED
Mark Vink, MD @Huisarts_Vink
2K Followers 522 Following Huisarts n.p. en verzekeringsarts n.p. (genomineerd voor 2016 John Maddox Science Prijs). Truth about #MEcfs #PACEtrial sounds like Hate to those who Hate truth
@[email protected] @kenna_lindsay
622 Followers 3K Following Interdisciplinary Artist [email protected]
elle carnitine 🍉 @elle_carnitine
4K Followers 968 Following very sick with covid-induced myalgic encephalomyelitis • kept alive by my beloved @predi_cam_ents • she/her
zedsrigil @sunsweptforest
430 Followers 852 Following forest.haven they/them autistic me/cfs and more nature music outer space
Sarah Schafer MD MPH @SarahSchaferMD
3K Followers 2K Following Medical educator, Sjogren’s & spondylitis patient. I combat Sjogren's myths to improve diagnosis and care for this serious, systemic disease. No medical advice.
Hugo @mx__worldwide
591 Followers 1K Following They/them | 28 | ME/CFS since 2016, (very?) severe since 2022 after covid infection | Severe hyperacusis | Pro disability justice & pro Palestine 🇵🇸
NickyProctor @NickyProctor
1K Followers 4K Following Writing up my #PhD in coach learning & development @LeedsBeckett and campaigning for better healthcare #MEcfs #POTS
Lara Crowther @fillthewhole
5K Followers 5K Following BSc, MRes Neuroscience, BMedSci, PhD Med Ed (& life) on hold due to covid caused #longcovid #pots #mcas #adenomyosis #hypothyroid Ex PT & yoga teacher 😷
Catherine McCullough .. @CatherineMuseum
973 Followers 2K Following Museums, maps, social history; NB PhD UU/IMA: EU, cross-border museum projects; Author: IHTA Armagh; sailor;'enthusiastic maverick!'. Life interrupted/LongCovid
Ana Sofia Pinho @AnaSofiaPinho
1K Followers 3K Following Building regenerative companies @3101co. Reimagining work @Humankind_Works. DEI and Health Equity Advocate.
HopeStarMasacre @MscreStarHope
2K Followers 3K Following its alright… im just dying is all…// writer and performer of the theatric kind // disabled as fuck with #LC #ME #POTS #MCAS & more // antizionist ✡️ 🇲🇽🏳️⚧️
fhronesis @fhronesis
336 Followers 2K Following #MECFS #EM😶🌫️ Sujet manquant EM = Encéphalomyélite Myalgique PEM/MPE= Malaise Post-effort
#NotJustFatigue @njfatigue
580 Followers 653 Following We are a 501(c)(3) sounding the alarm on ME/CFS through digestible, creative content. This is #NotJustFatigue
لا 🍃 @nuancednuggets
299 Followers 2K Following Clinical Psychology PhD. Lapsed academic. 🩵&🧠: Displacement. Fractured Arab homelands.Intersectional Feminism. Liberation. The medically maligned. 🇱🇧🏳️🌈
Larry Weis @LarryWeis7
404 Followers 1K Following #ME/CFS,#SFN,#Dysautonomia Owner-Commercial Insurance Agency
Khairani Barokka @mailbykite
6K Followers 5K Following amuk in link, ANNAH, INFINITE also in 2024 | Shortlisted Asn Wmn of Achievemt Award | Disabled, from JKT | Rep @AbiRFellows
shelley-lee waller @shellchat
869 Followers 628 Following Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), part time worker in health - full time 🕵️♀️ sleuth of ME/POTS/MCAS.
julie @justbeingjulie
200 Followers 1K Following
Jo D 💙 @JoD66
2K Followers 4K Following Trustee of @long_covid, Walk Wandsworth Walk Leader (on hold due to LC), Mason Bee Guardian, Vintage VDub van fan and owner, #FBLC #LongCovid #TreatLongCovid
Nancy Francis 🏳️.. @AthanasiaFr
724 Followers 3K Following @LivUni (trans)feminism & phenomenology, social anthropology, Basque studies, transnational movements.Ahizpatasuna. GBV survivor. Balkan immigrant, crip.she/her
Paul Keeble ME/CFS/LC @PaulRKeeble
2K Followers 302 Following ME/CFS since 2017 (Mild) Long Covid since March 2020 (V Severe) Currently Funcap55 = 2.13 (Severe)
Respect Yourself @RespectYourself
118K Followers 89K Following Charity believing in young people's future, supporting through positive messages. For daily information follow @RYDaily. #Ineedhelp123.
Fen, MD @FvRhijn
3K Followers 2K Following 💉*5 | MD w/ #ME due to #LongCovid | rheumatology resident | regenerative med | vascular inflammation | scleroderma | harpist | they/them 🌈 views are mine
Louis Strappazzon @frenchlouis4
111 Followers 726 Following 24. 🇬🇧 From Sheffield, born in🇫🇷. Politics, music and sports. MUFC and Miami Heat. UBI Lab Manchester.
fauzia @itsFauziaKhan
3K Followers 3K Following Still figuring out how to use Twitter… PsyD Trainee & Asst. Psychologist | Interviewer | Views own | Retweets ≠ endorsements
Radical Visions @radicalvisions_
2K Followers 1K Following Working with people at risk of exclusion to live life to the fullest and supporting the organisations these people rely on. #RadicalVisionsForSocialCare
Vera Kubenz she/they @Vera_Kub
1K Followers 1K Following PGR - Encounters with strangers in accessible parking spaces. Disability / queer / media studies. Views own. #BWithTheT
Kirstie Stage @StageKirstie
1K Followers 3K Following Researching histories of Deaf and disabled people 1970-2010. All views my own. @UKDisHistHub. Taking a break on here. Photo credit: Lloyd Mann.
Alternative Informati.. @AIDC_RSA
616 Followers 106 Following The Alternative Information and Development Centre is focused on fighting for a just transition to a low-carbon, wage-led, sustainable and equitable economy.
Nanna Hlín @NannaHlin
41 Followers 98 Following I'm often sick, I have studied a lot, I really love hugging my son, I finally have a good university job but need more fun.
Proinsias Ó Martain @FMM0179
90 Followers 262 Following
Merel @merelpianist
825 Followers 3K Following Freelance pianist/accompanist Choir Leader @lckchoir2022 Choir Leader @longcovidchoir Vocal Coach Piano teacher Film/TV 🇱🇺 in London Long Covid
Martin Arber @thearbers
104 Followers 476 Following
Independent Living @IndLiving
10K Followers 4K Following Tweets from Frances Leckie, editor of the Independent Living website & weekly newsletter
Crip Life™ @CripLifeTM
317 Followers 638 Following The UK's freshest online disability magazine dismantling disabling barriers one article at a time! ♿️🌈 | @BizBubbleUK Finalist 2024 ⭐️ | SUBSCRIBE NOW👇
WorkingAndNotWorkingW.. @WorkingWithLC
315 Followers 499 Following All about #LongCovid paid work/not being in paid work #Benefits including energy limiting conditions: Dr Clare Rayner, Dr Jenny Ceolta-Smith and Pen Scribbler
Yr buskined mistress .. @rhymeswithvery
2K Followers 4K Following Post-vaccine syndrome: Booster #2 05/22. Now orthostatic hypotension, Sjogren's, MCAS, pre-diabetic, fibromyalgia, #ME. Pro-vax but #FcktheNIH. Wear a mask FFS.
ALLFIE @ALLFIEUK
4K Followers 3K Following Led by Disabled people the Alliance for Inclusive Education campaigns for the right of all Disabled people to access & be supported in mainstream education
Guus @guustweet
3K Followers 1K Following #LongCovid since jan’21 ♿️ - tweets with brain fog, so pls bear with me - 📣 tries to advocate @NietHersteld - eager to learn - she/her - tweets in 🇬🇧 & 🇳🇱
Polly Atkin @pollyrowena
7K Followers 4K Following Writer, Lake-swimmer, Bookseller FRSL hEDS/Haemochromatosis/+ she/her rep @PortyLiterary Much with Body; Recovering Dorothy (2021) Some Of Us Just Fall (2023)
Alice Wong 王美華 @SFdirewolf
80K Followers 4K Following Disabled oracle. Founder, @DisVisibility. Editor, DISABILITY INTIMACY pre-order https://t.co/HUW0gq4JTd Available April 30, 2024
Ellen Samuels👩🏻.. @ehlastigirl
3K Followers 2K Following Words @MassReview @Colorado_Review @Brevity Books Fantasies of Identification @NYUpress Hypermobilities @the_OS_ Crip, queer, EDS. She/her.
John O'Brien @johnwobrien
1K Followers 121 Following Learner about supporting good lives for people with developmental disabilities.
Lawrence Alexander �.. @LawrenceAlxndr
126 Followers 403 Following My account for chronic illness and disability knowledge and networking. Tech/journalism: @LawrenceA_UK
Wilhelmina Jenkins @minadjenkins
2K Followers 1K Following@8Eevert @HealthHubris @JoElizaHunt All of the papers by @JoElizaHunt look absolutely amazing—thank you so so much for pointing me to them!!
@elle_carnitine @HealthHubris @JoElizaHunt >> I believe @HealthHubris / @JoElizaHunt might have exactly what you’re after. > All of the papers by @JoElizaHunt look absolutely amazing—thank you so so much for pointing me to them!! Wonderful! 😇🙏 For understanding structural & systemic injustices, I find them invaluable:
@threadreaderapp #Biopsychosocial constructions of [eg. #MECFS]: —satisfy society’s need to create and ascribe to a shared reality —dominated by belief in a just, meaningful & relatively predictable world —justify the status quo @HealthHubris 2022 tandfonline.com/doi/abs/10.108… #EpistemicInjustice
@HealthHubris @Channel4News @GranadaReports @BBCNews @TheNewsAgents @BBCRadio4 Thanks 🤩 will have a look in a bit. So great to have your work out there!
@HealthHubris I just don’t know what it will take Jo. It so frustrating. Seems to be a pattern world wide of a few powerful men, mostly men, just not listening to the people they profess to govern or help. Your pieces are awesome.
❓📣Who are the academics and researchers living with energy limiting conditions working in social sciences, Disability Studies, medical humanities or related fields? I know there are many of you out there! Please reply if this is you And RT to get the word out 🙏
Sunak’s misleading sick note numbers The PM implied that 1.35 million were off work because of depression or anxiety. That’s not true More than 1 million of them – had depression or anxiety as a secondary condition, rather than the reason for which they were signed off Link ⬇️
Britain is sicker and poorer than it used to be. Sunak’s response? Attack disabled people | Frances Ryan | The Guardian theguardian.com/commentisfree/…
BREAKING: UN committee finds thats the UK government has "failed to take all appropriate measures to address grave and systematic violations" of the human rights of disabled people. me for @TheCanaryUK #CRDP24 thecanary.co/global/world-a…
‘conditions that could be framed as psychological or psychosocial in nature, and thus amenable to psychosocial interventions, could be exempted from welfare provision and health insurance pay-outs.’ #ME @HealthHubris Brilliant piece on #BPS 👇 healthcarehubris.com/post/summary-s…
“Summary: Structural dimensions of the biopsychosocial model” healthcarehubris.com/post/summary-s…
With this ridiculousness making the rounds again, it feels like a good time to re-share this excellent summary by @HealthHubris of the biopsychosocial model's "political underbelly" x.com/HealthHubris/s…
Warning this slide may upset: please do read this one @RCPhysicians @bodgoddard Are physicains claiming ME/CFS patients gain from having ME/CFS? I think this slide should form the basis of some complaint on this @NICEComms. "unwanted sexual attentions" really?
Journalists reporting on #SickNoteSunak and all that garbage would do well to learn from this excellent piece by @HealthHubris and report on the fundamentals of what’s really going on here! @Channel4News @GranadaReports @BBCNews @TheNewsAgents @BBCRadio4
For #severeMEDay I'm sharing a new blogpost summary looking at the political underbelly (structural dimensions) of the #biopsychosocial model - I believe this explains why severely #disabled people are left to rot by the health & social system. #severeME healthcarehubris.com/post/summary-s…
@JennyWi04810918 @HealthHubris He will assume everybody else could recover if they just put in the effort he did…
@OnlyEnnui @HealthHubris I read he recovered 'with the help of his doctors, psychiatrists, and family'. He wrote he found it a horrible experience yet he is oblivious to being partly responsible for labeling people with a similar illness as shirkers and malingerers and denying them the support he had.
Fortunate to be working with excellent people with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome and @JessicaRunacres @DannyLeeHerron @HealthHubris
New UK research: Exploring the Experience of Healthcare-Related Epistemic Injustice among People with #MyalgicEncephalomyelitis / #ChronicFatigueSyndrome Free fulltext: nsuworks.nova.edu/tqr/vol29/iss4… #MEcfs #CFS #PwME
We're at a point where @NHSuk staff are using their refusal to follow the @NICEComms guidelines for #ME as a badge of honour now, it's at the point where they're bragging about it, knowing they'll be supported by @gmcuk & the Royal Colleges, whatever the impact is on a #pwME
2/2 NICE guide on #SevereME saying "they don't apply at this hospital". Dr Weir has assisted, & we've been liaising #MEAwarenessHour Point being we're going to see the family in a day or two, & then do another #BringMillieHome #ExposeMENow. But we'll need YOU to get involved.
A great example 👇 as to why any #DWP covert surveillance of people claiming #Benefits with #EnergyLimitingConditions #MECFS #LongCovid #PEM #PESE is not fit for purpose : You may see us doing something, but you won’t see us ill and doing nothing … @LongCOVIDPhysio @long_covid
When you wake up feeling really rough but don't know why and then you remember you actually went out yesterday. I don't think I'll ever fully accept how those of us #pwME are punished just for doing things that everyone else takes for granted.
Amid the horror, a glimmer of goodness: I'm more than excited that fabulous @RachelCDailey is penning a weekly column for @TheCanaryUK. My God she tells it like it is. HOLD ONTO SOMETHING PEOPLE Introducing: The Week In Ableist Bullshit 👇💚👇 MUST READ thecanary.co/opinion/2024/0…
The problem is, as we have discovered, the charity's don't want to collaborate. Hence, @TheChronicColab. Otherwise this is exactly what needs to happen...👇✊️
#BringMillieHome 1/9 🧵 There has been much recent media coverage/discussion about the case of Millie McAinsh. Millie is a young woman who has been diagnosed with #SevereME. She was admitted to the Royal Lancaster Infirmary some time ago as she was unable to ingest/digest food.
We saw @GeorgeMonbiot's calls for an ME Inquiry. This got @h_sharland thinking: who could possibly stand in the way? Well, there's one weasely person who could - & here, Hannah dissects his track record. Important read #BringMillieHome #DontLetMEDie: thecanary.co/opinion/2024/0…
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