shelley-lee waller @shellchat
Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), p/time worker in health - full time 🕵️♀️ sleuth of ME/POTS/MCAS/SjD Brisbane, Queensland Joined February 2011-
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MAHA gold-standard science. By @DGlaucomflecken
How cool is this?! 😍Spider-Man: Across the Spider-Verse @LEGO_Group minifigures have launched this month, featuring #SunSpider who has #EhlersDanlossyndrome (EDS). Created by @dayn_does_comix who has #EDS, Sun-Spider uses retractable crutches that shoot webs! 🕸️
This is smallpox You've never seen it Because of vaccines
In a new large retrospective cohort study of 624,000 overweight or obese adults, starting metformin within 3 months of COVID infection was linked to a 64% lower risk of developing #LongCOVID. Findings suggest the drug’s anti-inflammatory and metabolic effects may help prevent…
Chinese explore a protein the holds salivary gland cells together that get destroyed in Sjogrens. They created a mouse that lacks it & it looks like Sjogrens. Better yet there are small molecules that can treat it & restore lost salivary function. Link in tweet below ⬇️⬇️
Chinese explore a protein the holds salivary gland cells together that get destroyed in Sjogrens. They created a mouse that lacks it & it looks like Sjogrens. Better yet there are small molecules that can treat it & restore lost salivary function. Link in tweet below ⬇️⬇️
Clinician Spotlight. 👏👏👏 Dr. Jill Schofield has published about & cares for patients w multisystem diseases w an interest in dysautonomia & diseases often seen w it such as Sjogrens. She knows seronegative Sjogrens. She's written about IVIG for centerformultisystemdisease.com
🧵 HLA-B27 in Rheumatology: Tweet 1: “HLA-B27 — a genetic marker with a powerful reputation. From ankylosing spondylitis to reactive arthritis, it shapes how we think about SpA. But what does a positive result really mean? 👇” @IhabFathiSulima @DrAkhilX @CelestinoGutirr…
OMF has now received approval from the NIH to access plasma samples collected via the Chronic Fatigue Initiative, bringing the total number of samples for our large-scale ME/CFS biomarker project (BioQuest) to 1,000. 👉 Read the latest BioQuest update: omf.ngo/bioquest-updat….
Yes, the SjD clinical phase III trial had seronegative pts enrolled! Thanks for this update on #Ianalymab
Yes, the SjD clinical phase III trial had seronegative pts enrolled! Thanks for this update on #Ianalymab
“We really need to recognize how debilitating endometriosis is. How underfunded endometriosis is. And how hard investigators have to fight to be able to study this disease.” - KATIE BURNS UNIVERSITY OF CINCINNATI. Making discoveries, but at risk of being shut down by NIH cuts😩
“We really need to recognize how debilitating endometriosis is. How underfunded endometriosis is. And how hard investigators have to fight to be able to study this disease.” - KATIE BURNS UNIVERSITY OF CINCINNATI. Making discoveries, but at risk of being shut down by NIH cuts😩
“As busy clinicians, it’s easy to focus on more acute health issues in front of us. But if Sjögren’s disease isn’t on our radar, we don’t investigate for it, and we miss the chance to intervene before organ damage occurs…” MJAInsight
“As busy clinicians, it’s easy to focus on more acute health issues in front of us. But if Sjögren’s disease isn’t on our radar, we don’t investigate for it, and we miss the chance to intervene before organ damage occurs…” MJAInsight
Dear sjogren’s ppl - if u had new onset neck pain, base skull pain, TMJ/jaw pain + R knee hot, swollen (mri says severe degen changes in patellofemoral compartment + full-thickness chondral loss~> patellar facet n trochlea) - wld you think SjD related or something else? #sjogrens
🚨 BREAKING: Japan Post is cutting off mail service to the U.S. Joining Germany, Austria, Denmark, Italy, France, and Sweden. That’s not a shipping delay, that’s a diplomatic middle finger wrapped in a postage stamp.
Very interesting - not a coincidence!!
Very interesting - not a coincidence!!
Those who care for patients nearing the end of life, *please* explain to them & their carers what to expect during the final weeks. People think of death as an event instead of a progression, and unprepared families come to us terrified when symptoms of normal dying arise.
Speak up for CALD communities. If you're part of the CALD Community combating ME/CFS or long COVID, we need your help. Share your experiences through our survey to help improve our services. Take the survey: vist.ly/447iv
This is an urgent matter for all of us who are constantly gaslighted by HCPs. I am a strong advocate of this project, the only one in the world aiming to provide CME-accredited education to HCPs on ME/CFS and Long COVID. I am very optimistic about it, but it urgently needs…
This is an urgent matter for all of us who are constantly gaslighted by HCPs. I am a strong advocate of this project, the only one in the world aiming to provide CME-accredited education to HCPs on ME/CFS and Long COVID. I am very optimistic about it, but it urgently needs…
Rheumatologists need to step up. It is absolutely devastating to have all this duck-shoving between specialties like you and your illness is the “hot potato” or “stinky cheese” - while you deteriorate. Terrific Medscape article 👇
Rheumatologists need to step up. It is absolutely devastating to have all this duck-shoving between specialties like you and your illness is the “hot potato” or “stinky cheese” - while you deteriorate. Terrific Medscape article 👇
New ME/CFS paper finished, submitting in the next day or two. Fingers crossed. A collab with Chris Armstrong. Melbourne ME/CFS research firepower 💪💪💪💪 Sweeping differences at even just a glance in a particular aspect of the biology that we’ve looked at here. Stay tuned.
1/ 🧵 Most people think Sjögren’s disease means dry eyes and mouth—but did you know it can also affect your kidneys? Kidney problems in Sjögren’s are serious but often missed. Here’s everything you need to know. 👇 @IhabFathiSulima @DrAkhilX @CelestinoGutirr @JasmineNephro…
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Dr. Deepti Gurdasani @dgurdasani1
126K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
Lizzy H @hopefullizzy
7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Tracey Spicer AM GAIC... @TraceySpicer
55K Followers 2K Following Global keynote speaker. Multiple Walkley Award winning journalist & author. Former TV news anchor. Buy my book about AI bias here: https://t.co/SMrISiV0fZ
Eliza Charley | Actre... @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Winston Blick @winstoncb
3K Followers 822 Following
Sam Connor @criprights
18K Followers 5K Following human + disability rights activist | bolshy divas | trans rights = human rights | disability consultant | views are my own | sam-i-AM
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Alan Baxter ♛ @AlanBixter
53K Followers 25K Following @[email protected] Immunologist. Tweets represent personal opinions. Suggestions do not constitute medical advice. I’m here live, and I’m not a cat.
Todd Davenport @sunsopeningband
13K Followers 4K Following More magician than researcher. Husband. Dad x3. Upstreamist. Pracademic. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. DPT PhD MPH.
Tracey Burgess @TraceyABurgess
3K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Sue J @SMpwrgr
6K Followers 3K Following Our challenge: accept reality, then never stop working to change it *more thoughts at https://t.co/fxKpIr6JnQ
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Paula Knight @Paula_JKnight
6K Followers 4K Following Author Artist THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Words and pictures. Disabled. Bedridden 7yr v severe M.E. IG: @paulajkstudio
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
Julie Rehmeyer @julierehmeyer
8K Followers 1K Following Author of Through the Shadowlands: A Science Writer's Odyssey into an Illness Science Doesn't Understand. NYT; WashPost; Discover; Slate; Stat News… She/her.
Brian Fog @useless_priest
8K Followers 5K Following Mild LC/ME Apr 2022 | ME, when triggered by SARS-CoV-2, is a subset of Long COVID | Repeated triggering of PEM leads to lowering of baseline | 🏳️🌈 | 🇮🇪
Dana Herbert @danaherbert
4K Followers 3K Following Dx: #MECFS #Narcolepsy #hEDS #PTSD #ANA+ #PinealCyst #LC #AorticRootDilation Here for Q&A #MAHA How I escaped murder by dentist (so far) in CT, in link:
Tim @TimofejM77894
501 Followers 928 Following Severe myalgic encephalomyelitis triggered by mild COVID
KeepTalkingAboutSchoo... @sallyrussell124
5K Followers 6K Following We didn’t go back to school. Anti Brexit, covid and tories 🤬 Likes & RTs not endorsements. #SafeEdForAll #MaskUp #CovidIsAirborne
Douglas @Dough_sewetter
490 Followers 447 Following I’m my own voice ✨ No crypto 🚫 I share with heart ❤️ for those who value depth, truth & real connection 🤝 If that’s you, let’s make it count 🌿to 1k followers
Tina Katsaros @tinakatsaros
1K Followers 250 Following PhD candidate researching ME/CFS at La Trobe University
Sarah @SarahLizzyLou
3K Followers 2K Following She/her. Physio student with #longcovid #MEcfs since Oct 2021. #CognitiveDysfunction 🧠♿️ #FBLC
Karen Lubell @karenlubell
3K Followers 2K Following ME/CFS is a connective tissue weakening caused/worsened by a virus. This can lead to Craniocervical Instability, Venous Compressions, CSF leaks and more.
Neuro Sjogrens @NeuroSjogrens
3K Followers 957 Following 🔎 Search this profile for topic info. Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice.
Nicole on Wheels ♿�... @holyspacemonkey
4K Followers 5K Following GenX writer. 🎥 📺 🎶 sci, math, languages, history, art, 📷, law. neurodivergent amputee. #TeamPete #TCMParty #DisabilityInFilm #MECFS #MCAS @richarddcarlson
Carl Hindy, Ph.D. @DrCarlHindy
33K Followers 8K Following Clinical Psychologist. Marriage and relationship counselor. See my insecure love book on Amazon: https://t.co/6eUqhuQwHr. POSTS ARE NOT PROFESSIONAL ADVICE.
cloe @bella_cloe
361 Followers 2K Following Grade 3 teacher by day, bad influence by night. Brisbane, who's fun enough to keep up? 😈 DMs wide open if you're bold enough. 💌👈
John Bailey @JohnBailey95797
74 Followers 4K Following
05750xxxxxx @05750xxxxxx
56 Followers 2K Following Brilliant and intelligent CEO - Spacex 🚀 Tesla =🚘 Founder - The Boring Company Co-Founder 🚀
Qarbee @Qarbee3767510
7 Followers 510 Following
Aravind Palraj @Rheumat_Aravind
9K Followers 2K Following Senior Resident, Clinical Immunology and Rheumatology | MMC, Chennai | Making autoimmunity easy to understand | DM open | 🛑 Tweets ≠ Medical Advice |
Princess, The Tower @APainPrincess
28K Followers 27K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Eigenstatic @Eigenstatic
14 Followers 148 Following Human-centred AI, future of work, emergence, neurodiversity, optimism. Independent researcher, coach, speculative designer. https://t.co/jclZ0J90p0
Yaroslava Davis @yaroslava1davis
702 Followers 7K Following Proud Ukrainian citizen volunteering & defending my motherland’s land offensively Slava Ukraine 🇺🇦
Eric Conklin @EricConk32
751 Followers 3K Following Writer & researcher exploring how personal experience shapes belief Survey on belief + emotion: https://t.co/4mS7C3NInU
🌻kirbs @kirstymecfslife
1K Followers 2K Following one day at a time 🦋 | ME since 2009| drastically deteriorated after vaccination and a covid infection | not anti-vax
Manuella Figuerra @manuellafiguer2
515 Followers 1K Following “Plutôt que de maudire les ténèbres, allumons une chandelle, si petite soit-elle.” #Confucius
Vollker Wiieland @WielandvoIker
366 Followers 7K Following Money & macro, models & policy, German economy, formerly German Council of Economic Experts
Elisabeth Klaar | Oak... @lammas_leaves
2K Followers 5K Following Marketing for SMEs and NGOs. Mentoring & Tuition: WordPress, Marketing. Also @chronicliving1 - project built with WordPress
Gadget @Gadget440
18K Followers 4K Following Australian YouTuber covering Andrew Tate & influencer culture | Featured in 60 Minutes, The Australian, Vice News & The Advertiser | Long Covid & POTS
Misty @crescendomisty
192 Followers 1K Following Caregiver & Organizer. Following COVID, Long COVID, MCAS, ME/CFS, POTS, and other disabilities.
Still Ill @shitthatzsays
377 Followers 7K Following #neisvoid I often delete old posts. Nothing personal.
Jack | amatica health @JackHadfield14
5K Followers 1K Following ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth https://t.co/BvmsOvch0p - email [email protected] questions
Kite @Kite260262
0 Followers 48 Following
Kyle Busch @KyleBuch36
45 Followers 3K Following Samantha's Husband. Brexton & Lennix's Dad. Driver of the No. 8 @RCRracing Chevy. 🏆🏆 2X Cup Series Champion
Linda S @WritePaintDraw
733 Followers 754 Following Making art, writing and editing in Brooklyn, NY. Indie/dance music fan. Into science, technology and nature. Seriously silly. Sometimes. (Anche parlo italiano.)
Richmond Joshua @dongluevenry
215 Followers 7K Following Entrepreneur - GL 🌎 Real Estate Investor 🏠 Car Enthusiast 🏎️ Travel 🏝🛩 Family Man 👨👩👧👦 Believer ✝️ ⬇️⬇️⬇️
Reeve Musk @elonmars471
70 Followers 7K Following 🚀I SpaceX CEO & CTO🚀 🚘I Tesla CEO & Creator 📊l Angel investor📈🪙 👽I Occupy MARS🌖 🌏I Multiplanetary Life✨ 🚝I Hyperloop Founder
Cheryl @quiet_yesterday
166 Followers 574 Following tired mom. used to teach. long covid since March 2020.
Ydwoutui @Ydwoutui31447
71 Followers 1K Following
T @Yrrepmot
874 Followers 2K Following Barely living with #MECFS, and #ComplexChronicIllness including #PAIS #IACCs #CIRS #EDS #POTS #PSSD #TooTiredToThink #MUFC #Socialism
Ali Nasser @BioMedAli
18 Followers 152 Following عالم أحياء طبية يشارك الاكتشافات ويساهم في تقدم الأبحاث الطبية.
Jungkook BTS JK BTS @bts_jk76063
233 Followers 5K Following
Heeqiv @Heeqiv91290
0 Followers 347 Following
Harry Moore @moore_harr24348
6 Followers 194 Following
Dr Claire Taylor @drclairetaylor
65K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Prof. Akiko Iwasaki @VirusesImmunity
213K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Eric Topol @EricTopol
678K Followers 605 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
S Blitshteyn MD, FAAN... @dysclinic
21K Followers 2K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Putrino Lab @PutrinoLab
36K Followers 398 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Christoph Ströck @cstroeckw
8K Followers 606 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
Bhupesh K Prusty @BhupeshPrusty
15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Dr. Deepti Gurdasani @dgurdasani1
126K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
ME/CFS News @MECFSNews
14K Followers 687 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Dr Kerryn Phelps AM @drkerrynphelps
69K Followers 2K Following GP, Adj Professor NICM, author, fmr MP for Wentworth, fmr Sydney Deputy Lord Mayor, health & civil rights advocate,Past President AMA,past pres @AIMA_Au
Janet Dafoe @JanetDafoe
16K Followers 225 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
Raina MacIntyre @Globalbiosec
38K Followers 516 Following Physician. Field Epidemiologist🔎 Expert in prevention, detection and response 2 epidemics and pandemics. Founder of @Epiwatch_BSP 🇦🇺
Prof Brendan Crabb @CrabbBrendan
30K Followers 1K Following Medical researcher & Director & CEO @BurnetInstitute & Chair @ausglobalhealth & @PacificFriends | also @BrendanCrabbAC & https://t.co/5BaDvLZ2Tw
David Joffe MB BS (Ho... @DavidJoffe64
18K Followers 2K Following Respiratory Physician with expertise in NIV Sleep and Respiratory Failure. Visiting Medical Officer. Intelligence Group Respiratory ACI. Advisor to WHN for LC
Dana Herbert @danaherbert
4K Followers 3K Following Dx: #MECFS #Narcolepsy #hEDS #PTSD #ANA+ #PinealCyst #LC #AorticRootDilation Here for Q&A #MAHA How I escaped murder by dentist (so far) in CT, in link:
Tina Katsaros @tinakatsaros
1K Followers 250 Following PhD candidate researching ME/CFS at La Trobe University
Simon Maechling @simonmaechling
23K Followers 2K Following PhD Organic Chemistry | Debunking myths | Science not ideology | Follow for facts! 🧪🧬 🌾 Opinions are my own.
sikandar adwani @SikandarAdwani
4K Followers 451 Following 🧠 Neurologist ( Gold Medalist) | 📺 Host of "Grey Matters" on you tube | Advocate for Brain Health and Awareness 🌟 Inspiring Minds, Empowering Communities
Tobias Hadlich @TobiasHadlich
198 Followers 52 Following General practitioner. Theories didn’t make sense. So I built one—with AI, neurodivergence, and resonance. #HFRT #Mind #Neurodiversity #AI
Complex Disorders All... @CODA_research
337 Followers 151 Following The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit dedicated to accelerating research for complex conditions.
Spinal CSF Leak Canad... @SpinalCSFCanada
947 Followers 380 Following 🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.
CSF Leak Association @csfleakuk
960 Followers 838 Following The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.
Aravind Palraj @Rheumat_Aravind
9K Followers 2K Following Senior Resident, Clinical Immunology and Rheumatology | MMC, Chennai | Making autoimmunity easy to understand | DM open | 🛑 Tweets ≠ Medical Advice |
ME/CFS San Diego @MECFSSD
266 Followers 97 Following ME/CFS San Diego are patients and/or caregivers sharing information, support for each other, and education about Myalgic Encephalitis/ Chronic Fatigue Syndrome
Tweets @ChronicMyalgicE
1K Followers 800 Following Dutch | life derailed due to #IBD & #MECFS | sofa bound | on Twitter to raise awareness for post infectious diseases | one of the #MillionsMissing
Jack | amatica health @JackHadfield14
5K Followers 1K Following ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth https://t.co/BvmsOvch0p - email [email protected] questions
T @Yrrepmot
874 Followers 2K Following Barely living with #MECFS, and #ComplexChronicIllness including #PAIS #IACCs #CIRS #EDS #POTS #PSSD #TooTiredToThink #MUFC #Socialism
Dianna Cowern @thephysicsgirl
212K Followers 2K Following Science Video Creator, Tweeting about #LongCOVID as @diannahaze, MIT Physics, Forbes 30u30 https://t.co/BT5fDLf0LO
Autoimmune List @AutoimmuneList
10K Followers 4K Following #Autoimmune diseases: information and worldwide medical news updates. https://t.co/zp6PHneZxj
Meiners PT, PhD @KellyMMeiners
2K Followers 871 Following *Physical Therapist, Athletic Trainer, CSCS, dedicated runner and mom. *disabled since 10/2021. Advocate for #LongCOVID, #POTS, #MECFS as able.
Vlad Vexler @VladVexler
22K Followers 1K Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Grew up in USSR, Isr, UK. Home is London | Living with ME since 2003. | 🔗 🎥
Nicholas Fabiano, MD @NTFabiano
102K Followers 629 Following Writing about science | ✉️: [email protected]
David Puder M.D. @DavidPuder
18K Followers 377 Following Full time therapist and psychiatrist. Host of Psychiatry & Psychotherapy podcast/youtube.
AnnaLea @Cockatoocoach
46 Followers 451 Following Artist, Scientist, constant gardener prefer reading to tweeting, I love conversations Block me if you like, no offence taken.
Kelly @broadwaybabyto
34K Followers 3K Following Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. When you know better - do better. 😷
Natalie @PSSD_Info
303 Followers 785 Following Raising awareness about post-SSRI sexual dysfunction (PSSD). & interested in the connection between upper airway resistance syndrome (UARS) & ME/CFS/fibro/etc.
KC Martin-Stone @KCMartinStone
3K Followers 5K Following Archaeologist. Comedian. Occasionally competent MF. Leaky bag of brain juice. GoFundMe for medical / survival. She/her
Sarah Larsen @fearless_rising
34K Followers 731 Following Nervous system educator. Trauma-informed coach. Tools to optimize brain health, build resilience & catalyze your self-healing journey.
CURE ID @id_cure
4K Followers 3K Following Treatment Registry for Repurposed Drugs. Share your treatment experiences-https://t.co/yVDMIyjeCy. This is an unofficial friends of CURE ID account. Views our own
Jane Bird @LindaLaHughes9
1K Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
Dr Sarah Myhill @MyhillNews
7K Followers 5K Following Pls do not use to report health concerns. Detailed questions about Dr Myhill's protocols not answered.
Hope @hopestardust20
2K Followers 3K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
Michael R Scoma MD @DrMichaelScoma
8K Followers 97 Following Infectious Disease Immunology physician specializing in complex chronic diseases. Views are my own; no medical advice given.
Dr. Phillip Alvelda @alvelda
4K Followers 859 Following NASA I DARPA | MIT AI Lab | Venture Capital | Biosecurity | Media (founded Brainworks, Infinite Entertainment, Medio Labs, MobiTV, WiseTeachers & MicroDisplay)
Hopkins ME/CFS & Rela... @HopkinsMECFSC
575 Followers 94 Following Our goal is to provide outstanding clinical care to patients with ME/CFS & related disorders and improve our understanding of these illnesses through research.
Eve Holt @evefrancisholt
15K Followers 13K Following Head of Policy & Implementation @GreaterMcr @MayorofGM 🐝 Navigating, connecting & galvanising systems. Public policy, service & participation. #SocialJustice🌍
Selin Lab @SelinLab
107 Followers 22 Following We study immune dysregulation in ME/CFS, Long Covid, and infection-associated chronic illness. Opinions are our own.
Patients with Power @PtsWithPower
2K Followers 973 Following A rogue neuroscientist fighting for medicine based on science; not bias.⚡️POTS, yet taking a stand against patient abuse since 2020.⚡️ I like solving puzzles.
Erin C. Sanders, MSN,... @ErinSandersNP
19K Followers 8K Following Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT/Stanford | Connector | Healing in my Garden | #JusticeAccomplice
maude @sheisartmoney
43K Followers 24K Following abstract painter • collage artist Be-bop • Dada • Pyramids • Fela #TransRights #LongCovidRuins
Scott Daniska @scott_scientist
3K Followers 542 Following Former ME/CFS researcher and current patient advocating for how environmental factors are driving these Complex Chronic Illnesses
Brain Inflammation Co... @BrainInflCollab
8K Followers 70 Following We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
Bookaholic Bex @BexBookaholic
28K Followers 6K Following Book-obsessed, theatre-loving feminist with a liberal outlook on life. Mental health champion. Award winning blogger.
Nathan Ballantyne @nathanballan
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