shelley-lee waller @shellchat
Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), p/time worker in health - full time 🕵️♀️ sleuth of ME/POTS/MCAS/SjD Brisbane, Queensland Joined February 2011-
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Ever since this disorder was found, I have wondered how many people (hundreds? Thousands? More?) diagnosed perhaps with FND, or dementia, or psychosis, actually have this and no one knows…without testing spinal fluid it’s a completely undetectable B12 deficiency.
Ever since this disorder was found, I have wondered how many people (hundreds? Thousands? More?) diagnosed perhaps with FND, or dementia, or psychosis, actually have this and no one knows…without testing spinal fluid it’s a completely undetectable B12 deficiency.
🚨 I am very excited to share our new paper on #immunotherapies in #POTS, other common autonomic disorders and #LongCOVID. Congrats to @Jacobs_Med_UB medical students, Gabriela, Anna and Meagan, for their hard work on this comprehensive review! 👏👏👏🧠👩🔬 frontiersin.org/journals/cellu…
Advancing Digital Precision Medicine for #MECFS through Longitudinal Large-Scale Multi-Modal Biological Omics Modeling with Machine Learning and Artificial Intelligence PhD Thesis by Ruoyun Xiong arxiv.org/abs/2506.15761
"Why Rheumatology Must Prepare for Infection-Associated Chronic Conditions (IACCs)" batemanhornecenter.org/why-rheumatolo… New @BatemanHorne blog suggesting the rheumatology specialty should expand to include Infection-Associated Chronic Conditions (IACCs) such as ME/CFS & POTS. #MEcfs #POTS
Me on LI this morning
Wanting to not catch a virus that has killed 40 million and caused long term disability in 400 million people already is not health anxiety. Pretending that virus doesn't exist: That's health anxiety.
If you have ever been diagnosed with cancer at any point in your life-- Prevent COVID infections. 😷 If your child has ever been diagnosed with cancer at any point in their life-- Prevent COVID infections. 😷 ▶️Protect yourself! ▶️Protect your children! #Cancer
If you have ever been diagnosed with cancer at any point in your life-- Prevent COVID infections. 😷 If your child has ever been diagnosed with cancer at any point in their life-- Prevent COVID infections. 😷 ▶️Protect yourself! ▶️Protect your children! #Cancer
At least 2 vaccines significantly reduce your risk of getting cancer. These 4 vaccines may reduce your risk of developing dementia. washingtonpost.com/wellness/2025/…
As a doctor for 25 years, I agree. When someone tells me they take precautions to avoid #COVID19, I don’t think they have health anxiety, I think they have health literacy. (My better half @gleeson_md, who is an infectious diseases doc, also concurs). #MedTwitter #LongCovid
As a doctor for 25 years, I agree. When someone tells me they take precautions to avoid #COVID19, I don’t think they have health anxiety, I think they have health literacy. (My better half @gleeson_md, who is an infectious diseases doc, also concurs). #MedTwitter #LongCovid
Yes, muscle fasciculations was a huge constant problem for my son when severe ME. Affecting sleep at night, cld be seen in legs, buttocks. As he also had eye drooping (one eye whenever tired), poor pallor + flat/inexpressive face when in PEM, I thought he had MG for long time.
Yes, muscle fasciculations was a huge constant problem for my son when severe ME. Affecting sleep at night, cld be seen in legs, buttocks. As he also had eye drooping (one eye whenever tired), poor pallor + flat/inexpressive face when in PEM, I thought he had MG for long time.
Dr Barnden and team have completed the first year of their study tracking changes in the brain in people with ME/CFS. Having scanned more than 50 participants so far, the study is well on track and we look forward to seeing their first findings. bit.ly/barnden067
High-Resolution CT in CTD-Interstitial Lung Disease A systematic review and meta-analysis examined the role of high-resolution computed tomography (HRCT) in diagnosing and characterizing interstitial lung disease (ILD) associated with connective tissue diseases (CTDs).…
Great vid - I actually wasn’t aware of researcher Maureen Hanson’s personal connection to ME/CFS. Sadly, most researchers only get into the field when there’s some kind of personal link. We have to wait 4 great scientists or their kids 2get sick - what a horrible thing to say.
Great vid - I actually wasn’t aware of researcher Maureen Hanson’s personal connection to ME/CFS. Sadly, most researchers only get into the field when there’s some kind of personal link. We have to wait 4 great scientists or their kids 2get sick - what a horrible thing to say.
This exploratory study identifies autoantibodies directed against EBV mimicking arginine-rich sequences in human proteins, suggesting a potential role for molecular mimicry in the pathogenesis of PCS and ME/CFS.
This exploratory study identifies autoantibodies directed against EBV mimicking arginine-rich sequences in human proteins, suggesting a potential role for molecular mimicry in the pathogenesis of PCS and ME/CFS.
I don't think people even vaguely understand how profoundly serious this is. It's ironic that while we were thinking that it was the CO₂ in the atmosphere that was going to doom us, it could actually be the CO₂ in the water. 👀
Poor science literacy among the general public is a major problem. In a large U.S. national survey, only 64% of Americans understood the statistical concept of probability, only 51% correctly defined a scientific experiment, and only 23% were able to correctly describe the…
Leaders who “run away from major challenges risk being trusted by no-one.” Aust is a small nation, but glad most support cutting emissions & that our PM is pushing back on high-profile science-deniers over climate change. apple.news/ARTh2CfbsQrCt8…
Healthy indoor air is a human right! To get clean air infrastructure everywhere, we need organizations, universities, schools, healthcare facilities, communities, etc, to sign the document below. Please spread the word! Global Pledge for #CleanTheAir: aas.eventsair.com/healthy-indoor…
Healthy indoor air is a human right! To get clean air infrastructure everywhere, we need organizations, universities, schools, healthcare facilities, communities, etc, to sign the document below. Please spread the word! Global Pledge for #CleanTheAir: aas.eventsair.com/healthy-indoor…
The NIH in the US have highlighted a recent ME/CFS study they funded: "Overactive immune responses in ME/CFS" nih.gov/news-events/ni… #MEcfs #CFS
This reflects my own experience (I do circa 130 hours of care the average week), but somehow I still found this shocking. Carers for v severe ME carry HUGE responsibility, with little to no support. The support we have often comes at a cost, which adds financial pressure 🤯
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Dr. Deepti Gurdasani @dgurdasani1
126K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
Lizzy H @hopefullizzy
7K Followers 3K Following 30y/o creative, with complex health issues🤞🏼ME/CFS biomedical research. Passion for the wild, for kindness, and helping all people have a voice. Co-author✨
Tracey Spicer AM GAIC... @TraceySpicer
55K Followers 2K Following Global keynote speaker. Multiple Walkley Award winning journalist & author. Former TV news anchor. Buy my book about AI bias here: https://t.co/SMrISiV0fZ
Eliza Charley | Actre... @ElizaCharley
6K Followers 2K Following 🎥 ✨Australian Actress in Italy. Care about #mecfs #longcovid #climate #dv #auspol 🎭co-founder Mi Casa Theatre 📚Words in SoulTread & RoutledgePress She/her
Winston Blick @winstoncb
3K Followers 819 Following
Sam Connor @criprights
18K Followers 5K Following human + disability rights activist | bolshy diva | trans rights = human rights | disability consultant | views are my own | sam-i-AM | antifa
Tess Falor, Ph.D. | R... @tessfalor
10K Followers 6K Following Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome
Alan Baxter ♛ @AlanBixter
53K Followers 25K Following @[email protected] Immunologist. Tweets represent personal opinions. Suggestions do not constitute medical advice. I’m here live, and I’m not a cat.
Todd Davenport @sunsopeningband
13K Followers 4K Following More magician than researcher. Husband. Dad x3. Upstreamist. Pracademic. Storyteller. It’ll be ok in the end. If it’s not ok then it ain’t the end. DPT PhD MPH.
Tracey Burgess @TraceyABurgess
3K Followers 4K Following Mum to a trans daughter 🏳️⚧️ who loves the natural world.🌿Degrees in Hist/Phil & Counselling/Psychotherapy. Unwell since 2007, worse 2016/17. Improved.🌼
Dan Wyke 🦠➡️�... @Dan_Wyke
13K Followers 5K Following M.E. inactivist; person-centred counsellor (currently not practicing); recovering poet (Rack & Waterloo Press)
Sabrina Poirier (On H... @Sabrina_Poirier
6K Followers 6K Following Community Builder / Passionate Collaborator / Chair - #MedicalEducation Group / #ResearchPartner / #MECFS #LongCovid Advocate / #PwME / #MCAS / #POTS / #Fibro
Sue J @SMpwrgr
6K Followers 3K Following Our challenge: accept reality, then never stop working to change it *more thoughts at https://t.co/fxKpIr6JnQ
Bea is Chronically Pe... @Be_Kinderr
10K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Paula Knight @Paula_JKnight
6K Followers 4K Following Author Artist THE FACTS OF LIFE (Myriad) Kidlit books x3 author. Words and pictures. Disabled. Bedridden 7yr v severe M.E. IG: @paulajkstudio
Katy B @KatyBruce108
6K Followers 6K Following Myalgic Encephalomyelitis ME + POTS 39 yrs Donor to @mecfsbiobank for 10 years & @DecodeMEstudy Please watch https://t.co/pUUJO34e5k #pwME
DarlingGirl @kbXf4CwmfCb2D0
1 Followers 1K Following Melb honey sticky lick my bits with your desire
SCAM PAYBACK @ScamPayback15
238 Followers 4K Following Have you been scammed before⁉️ CONTACT US TO RETRIEVE YOUR STOLEN FUNDS WHICH IS RIGHTFULLY YOURS 💰💸💸. Tracking down fake profiles 🎭💻
JuliaJames @mYSHQln0ZpLmsJ0
84 Followers 5K Following
LilithGilbert @xOs3n2y02Og5KX
2 Followers 944 Following
Amanda Crist @ZebraLoveCo
854 Followers 1K Following Writing about #hEDS 🦓, #muscle, health☕️, genetics, and how I’m trying to walk again🌱 #bedbound #homebound #calfproblems #zoology
CSF Leak Association @csfleakuk
974 Followers 856 Following The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.
Joyce @Joyce2043470
407 Followers 1K Following Faith is the daring of the soul to go farther than it can see.. Just wanted to wish a little sunshine back into the heart of someone who gives it away all year
Baby Alice @hvqyk41185556
1K Followers 4K Following
Keren Leah @KerenLeah
2K Followers 3K Following 💧Awareness of #spinalCSFleak #SIH • Volunteer & supporter @csfleakuk • Owner @nostellco • F1, motorsport, missing hiking & nature 🌿
Dana Herbert @danaherbert
4K Followers 4K Following Dx: #MECFS #Narcolepsy #hEDS #PTSD #ANA+ #PinealCyst #MTHFR #AorticRootDilation Here for Q&A #MAHA How I escaped murder by dentist (so far) in CT, in link:
Tim @TimofejM77894
513 Followers 945 Following Severe myalgic encephalomyelitis triggered by mild COVID
KeepTalkingAboutSchoo... @sallyrussell124
5K Followers 6K Following We didn’t go back to school. Anti Brexit, covid and tories 🤬 Likes & RTs not endorsements. #SafeEdForAll #MaskUp #CovidIsAirborne
Tina Katsaros @tinakatsaros
1K Followers 250 Following PhD candidate researching ME/CFS at La Trobe University
Sarah @SarahLizzyLou
3K Followers 2K Following She/her. Physio student with #longcovid #MEcfs since Oct 2021. #CognitiveDysfunction 🧠♿️ #FBLC
Karen Lubell @karenlubell
3K Followers 2K Following ME/CFS is a connective tissue weakening caused/worsened by a virus. This can lead to Craniocervical Instability, Venous Compressions, CSF leaks and more.
Neuro Sjogrens @NeuroSjogrens
3K Followers 968 Following 🔎 Search this profile for topic info. Neuro damage is prominent in Sjogrens. NeuroSjogrens/Sjogrens/chronic illness info posted. Advocacy, not med advice.
Nicole on Wheels ♿�... @holyspacemonkey
4K Followers 5K Following GenX writer. 🎥 📺 🎶 sci, math, languages, history, art, 📷, law. neurodivergent amputee. #TeamPete #TCMParty #DisabilityInFilm #MECFS #MCAS @richarddcarlson
Dr. Carl Hindy @DrCarlHindy
33K Followers 8K Following Clinical Psychologist. Marriage and relationship counselor. See my insecure love book on Amazon: https://t.co/6eUqhuQwHr. POSTS ARE NOT PROFESSIONAL ADVICE.
05750xxxxxx @05750xxxxxx
55 Followers 2K Following Brilliant and intelligent CEO - Spacex 🚀 Tesla =🚘 Founder - The Boring Company Co-Founder 🚀
Qarbee @Qarbee3767510
6 Followers 504 Following
Aravind Palraj @Rheumat_Aravind
10K Followers 2K Following Senior Resident, Clinical Immunology and Rheumatology | MMC, Chennai | Making autoimmunity easy to understand | 🛑 Tweets ≠ Medical Advice |
Princess, The Tower @APainPrincess
29K Followers 28K Following Chronic Pain Healing Portal for everyone affected by severe #chronicpain & #chronicillness—by a princess with full body #CRPS #Fibromyalgia #PainSupport #CPP
Eigenstatic @Eigenstatic
19 Followers 170 Following Human-centred AI, future of work, emergence, neurodiversity, optimism. Independent researcher, coach, speculative designer. https://t.co/jclZ0J90p0
Yaroslava Davis @yaroslava1davis
788 Followers 7K Following Proud Ukrainian citizen volunteering & defending my motherland’s land offensively Slava Ukraine 🇺🇦
Eric Conklin @EricConk32
733 Followers 3K Following Writer & researcher exploring how personal experience shapes belief Survey on belief + emotion: https://t.co/4mS7C3NInU
🇳🇱🌻kirbs @kirstymecfslife
1K Followers 2K Following one day at a time 🦋 | ME since 2009| drastically deteriorated after vaccination and a covid infection | not anti-vax
Manuella Figuerra @manuellafiguer2
559 Followers 2K Following “Plutôt que de maudire les ténèbres, allumons une chandelle, si petite soit-elle.” #Confucius
Vollker Wiieland @WielandvoIker
360 Followers 6K Following Money & macro, models & policy, German economy, formerly German Council of Economic Experts
Elisabeth Klaar | Oak... @lammas_leaves
2K Followers 5K Following Marketing for SMEs and NGOs. Mentoring & Tuition: WordPress, Marketing. Also @chronicliving1 - project built with WordPress
Gadget @Gadget440
18K Followers 4K Following Australian YouTuber covering Andrew Tate & influencer culture | Featured in 60 Minutes, The Australian, Vice News & The Advertiser | Long Covid & POTS
Misty @crescendomisty
194 Followers 1K Following Caregiver & Organizer. Following COVID, Long COVID, MCAS, ME/CFS, POTS, and other disabilities.
Still Ill @shitthatzsays
369 Followers 7K Following #neisvoid I often delete old posts. Nothing personal.
Jack | amatica health @JackHadfield14
5K Followers 1K Following ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth https://t.co/BvmsOvch0p - email [email protected] questions
Kite @Kite260262
0 Followers 48 Following
Kyle Busch @KyleBuch36
47 Followers 4K Following Samantha's Husband. Brexton & Lennix's Dad. Driver of the No. 8 @RCRracing Chevy. 🏆🏆 2X Cup Series Champion
Linda S @WritePaintDraw
733 Followers 754 Following Making art, writing and editing in Brooklyn, NY. Indie/dance music fan. Into science, technology and nature. Seriously silly. Sometimes. (Anche parlo italiano.)
Dr Claire Taylor @drclairetaylor
65K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|long Covid clinic🏴Views my own
Hannah Davis @ahandvanish
56K Followers 4K Following Research, algorithmic music, machine learning, anti-bias in AI data. #LongCovid research & advocacy @patientled. DMs rarely checked
Prof. Akiko Iwasaki @VirusesImmunity
213K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII
Eric Topol @EricTopol
679K Followers 607 Following physician-scientist, author of SUPER AGERS https://t.co/ZEdooyyJpP and Ground Truths: https://t.co/YhatcBT0hA
LongCovidPharmD @organichemusic
35K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS researcher & clean air advocate. Here to share & learn. Tweets not medical advice. https://t.co/lKQezPwtQs
S Blitshteyn MD, FAAN... @dysclinic
21K Followers 2K Following Neurologist, Director of #Dysautonomia Clinic, Clinical Associate Professor @Jacobs_Med_UB. Trained @MayoClinic #LongCovid #POTS #EDS, tweets🚫med advice
Naomi Harvey PhD #Wea... @Naomi_D_Harvey
17K Followers 4K Following Zoologist. She/her. ME/CFS since 2002, now Severe. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Putrino Lab @PutrinoLab
36K Followers 398 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
Christoph Ströck @cstroeckw
8K Followers 611 Following Soon, people will look back in disbelief at what has happened to patients with ME/CFS | Godspeed 🙇🏼
Bhupesh K Prusty @BhupeshPrusty
15K Followers 66 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
Dr. Deepti Gurdasani @dgurdasani1
126K Followers 6K Following Clinical epidemiology, machine learning, NLP, global health. Intersectional feminist. she/her. Also on @[email protected] @dgurdasani1.bsky.social
ME/CFS News @MECFSNews
14K Followers 685 Following I used to post news and interesting information on ME/CFS but have retired to focus on other things.
Dr Kerryn Phelps AM @drkerrynphelps
69K Followers 2K Following GP, Adj Professor NICM, author, fmr MP for Wentworth, fmr Sydney Deputy Lord Mayor, health & civil rights advocate,Past President AMA,past pres @AIMA_Au
Janet Dafoe @JanetDafoe
17K Followers 224 Following Caregiver for very severe ME/CFS son, advocate and fundraiser for End ME/CFS PROJECT at OMF and CFSRC at Stanford. The rest of my life is on hold...
Dr. Alice 💕 @calirunnerdoc
27K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs 4 MED ADVICE! SARS-CoV-2=persistent vascular virus.Views expressed are my own,not my employers.
Raina MacIntyre @Globalbiosec
38K Followers 516 Following Physician. Field Epidemiologist🔎 Expert in prevention, detection and response 2 epidemics and pandemics. Founder of @Epiwatch_BSP 🇦🇺
Prof Brendan Crabb @CrabbBrendan
30K Followers 1K Following Medical researcher & Director & CEO @BurnetInstitute & Chair @ausglobalhealth & @PacificFriends | also @BrendanCrabbAC & https://t.co/5BaDvLZ2Tw
David Joffe MB BS (Ho... @DavidJoffe64
18K Followers 2K Following Respiratory Physician with expertise in NIV Sleep and Respiratory Failure. Visiting Medical Officer. Intelligence Group Respiratory ACI. Advisor to WHN for LC
Long Covid Physio @LC_Physio
1K Followers 273 Following Long COVID Physio is an international peer support, education and advocacy, patient-led association of physiotherapists living with Long Covid.
ME/CFS Science @mecfsskeptic
4K Followers 465 Following In-depth analysis of research on myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS).
Derya Unutmaz, MD @DeryaTR_
320K Followers 7K Following Professor, biomedical scientist, human immunologist, aging & cancer immunotherapy. ALL IN ON AI. Interests: BioAI, robotics, Space Scifi Chess. Personal opinion
Dana Herbert @danaherbert
4K Followers 4K Following Dx: #MECFS #Narcolepsy #hEDS #PTSD #ANA+ #PinealCyst #MTHFR #AorticRootDilation Here for Q&A #MAHA How I escaped murder by dentist (so far) in CT, in link:
Tina Katsaros @tinakatsaros
1K Followers 250 Following PhD candidate researching ME/CFS at La Trobe University
Simon Maechling @simonmaechling
26K Followers 2K Following PhD Organic Chemistry | Debunking myths | Science not ideology | Follow for facts! 🧪🧬 🌾 Opinions are my own.
sikandar adwani @SikandarAdwani
4K Followers 457 Following 🧠 Neurologist ( Gold Medalist) | 📺 Host of "Grey Matters" on you tube | Advocate for Brain Health and Awareness 🌟 Inspiring Minds, Empowering Communities
Tobias Hadlich @TobiasHadlich
201 Followers 52 Following General practitioner. Theories didn’t make sense. So I built one—with AI, neurodivergence, and resonance. #HFRT #Mind #Neurodiversity #AI
Complex Disorders All... @CODA_research
342 Followers 150 Following The Complex Disorders Alliance is an innovative, patient-founded, patient-focused, nonprofit dedicated to accelerating research for complex conditions.
Spinal CSF Leak Canad... @SpinalCSFCanada
954 Followers 381 Following 🇨🇦 National health charity with a vision to improve the health and lives of those suffering from Intracranial Hypotension caused by Spinal CSF Leaks.
CSF Leak Association @csfleakuk
974 Followers 856 Following The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks.
Aravind Palraj @Rheumat_Aravind
10K Followers 2K Following Senior Resident, Clinical Immunology and Rheumatology | MMC, Chennai | Making autoimmunity easy to understand | 🛑 Tweets ≠ Medical Advice |
ME/CFS San Diego @MECFSSD
265 Followers 96 Following ME/CFS San Diego are patients and/or caregivers sharing information, support for each other, and education about Myalgic Encephalitis/ Chronic Fatigue Syndrome
Tweets @ChronicMyalgicE
1K Followers 804 Following Dutch | life derailed due to #IBD & #MECFS | sofa bound | on Twitter to raise awareness for post infectious diseases | one of the #MillionsMissing
Jack | amatica health @JackHadfield14
5K Followers 1K Following ex Aerospace Engineer, now ME/CFS & LC patient researcher and cofounder @amaticahealth https://t.co/BvmsOvch0p - email [email protected] questions
T @Yrrepmot
894 Followers 2K Following Barely living with #MECFS, and #ComplexChronicIllness including #PAIS #IACCs #CIRS #EDS #POTS #PSSD #TooTiredToThink #MUFC #Socialism
Dianna Cowern @thephysicsgirl
212K Followers 2K Following Science Video Creator, Tweeting about #LongCOVID as @diannahaze, MIT Physics, Forbes 30u30 https://t.co/BT5fDLf0LO
Autoimmune List @AutoimmuneList
10K Followers 4K Following #Autoimmune diseases: information and worldwide medical news updates. https://t.co/zp6PHneZxj
Meiners PT, PhD @KellyMMeiners
2K Followers 872 Following *Physical Therapist, Athletic Trainer, CSCS, dedicated runner and mom. *disabled since 10/2021. Advocate for #LongCOVID, #POTS, #MECFS as able.
Vlad Vexler @VladVexler
23K Followers 1K Following Philosopher - ethics, politics, music | Slowly writing a book on Isaiah Berlin | Grew up in USSR, Isr, UK. Home is London | Living with ME since 2003. | 🔗 🎥
Nicholas Fabiano, MD @NTFabiano
110K Followers 613 Following Writing about science | ✉️: [email protected]
David Puder M.D. @DavidPuder
18K Followers 377 Following Full time therapist and psychiatrist. Host of Psychiatry & Psychotherapy podcast/youtube.
AnnaLea @Cockatoocoach
44 Followers 447 Following Artist, Scientist, constant gardener prefer reading to tweeting, I love conversations Block me if you like, no offence taken.
Kelly @broadwaybabyto
34K Followers 3K Following Disabled & chronically ill writer. Former theatre critic. Clean air is a human right & vulnerable people aren’t expendable. When you know better - do better. 😷
Natalie @PSSD_Info
313 Followers 806 Following Raising awareness about post-SSRI sexual dysfunction (PSSD). & interested in the connection between upper airway resistance syndrome (UARS) & ME/CFS/fibro/etc.
KC Martin-Stone @KCMartinStone
3K Followers 5K Following Archaeologist. Comedian. Occasionally competent MF. Leaky bag of brain juice. GoFundMe for medical / survival. She/her
Sarah Larsen @fearless_rising
34K Followers 734 Following Nervous system educator. Trauma-informed coach. Tools to optimize brain health, build resilience & catalyze your self-healing journey.
CURE ID @id_cure
4K Followers 3K Following Treatment Registry for Repurposed Drugs. Share your treatment experiences-https://t.co/yVDMIyjeCy. This is an unofficial friends of CURE ID account. Views our own
Jane Bird @LindaLaHughes9
1K Followers 1K Following Raising awareness of the paediatric conditions PANS and PANDAS
Dr Sarah Myhill @MyhillNews
7K Followers 5K Following Pls do not use to report health concerns. Detailed questions about Dr Myhill's protocols not answered.
Hope @hopestardust20
2K Followers 3K Following Raising awareness of Pans Pandas - brain inflammation triggered by a Virus or infection. B12 deficiency
Michael R Scoma MD @DrMichaelScoma
8K Followers 96 Following Infectious Disease Immunology physician specializing in complex chronic diseases. Views are my own; no medical advice given.
Dr. Phillip Alvelda @alvelda
4K Followers 862 Following NASA I DARPA | MIT AI Lab | Venture Capital | Biosecurity | Media (founded Brainworks, Infinite Entertainment, Medio Labs, MobiTV, WiseTeachers & MicroDisplay)
Hopkins ME/CFS & Rela... @HopkinsMECFSC
586 Followers 96 Following Our goal is to provide outstanding clinical care to patients with ME/CFS & related disorders and improve our understanding of these illnesses through research.
Eve Holt @evefrancisholt
15K Followers 13K Following Head of Policy & Implementation @GreaterMcr @MayorofGM 🐝 Navigating, connecting & galvanising systems. Public policy, service & participation. #SocialJustice🌍
Selin Lab @SelinLab
106 Followers 22 Following We study immune dysregulation in ME/CFS, Long Covid, and infection-associated chronic illness. Opinions are our own.
Patients with Power @PtsWithPower
2K Followers 971 Following Patient-scientist fighting for medicine based on SCIENCE; NOT BIAS⚡️ against patient abuse neglect & exploitation #StopThePANE & studying doctor behaviour 🧐✍️
Erin C. Sanders, MSN,... @ErinSandersNP
19K Followers 8K Following Mama & Wife | #Disabled ♿️ | #WomxnsHealth Nurse Practitioner & Clinical Scientist | Prev MIT/Stanford | Connector | Healing in my Garden | #JusticeAccomplice
maude @sheisartmoney
43K Followers 24K Following abstract painter • collage artist Be-bop • Dada • Pyramids • Fela #TransRights #LongCovidRuins
Scott Daniska @scott_scientist
3K Followers 548 Following Former ME/CFS researcher and current patient advocating for how environmental factors are driving these Complex Chronic Illnesses
Brain Inflammation Co... @BrainInflCollab
8K Followers 71 Following We are organizing a coordinated research effort to revolutionize the diagnosis and treatment of #neuroinflammation illnesses and #mentalhealth symptoms.
Bookaholic Bex @BexBookaholic
28K Followers 6K Following Book-obsessed, theatre-loving feminist with a liberal outlook on life. Mental health champion. Award winning blogger.
Nathan Ballantyne @nathanballan
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