Karen Lubell @karenlubell
ME/CFS is a connective tissue disorder caused/worsened by a virus. Ppl w/ ME/CFS & EDS often suffer from Craniocervical Instability & Occult Tethered Cord. Joined May 2009-
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As patients seek medical care for #LongCOVID some discover that they have underlying Ehlers-Danlos Syndrome - a group of 13 inherited connective tissue disorders that are characterized by abnormalities in collagen. Check out our blog to find out why! rthm.com/articles/what-…
As patients seek medical care for #LongCOVID some discover that they have underlying Ehlers-Danlos Syndrome - a group of 13 inherited connective tissue disorders that are characterized by abnormalities in collagen. Check out our blog to find out why! rthm.com/articles/what-…
Recent fluoroscopy and digital motion Xray confirmed atlantoaxial instability, lending support to the mechanical hypothesis of #MECFS, #LongCovid, & #PostVac. This finding underscores the profound insights of intuition—since the onset, I suspected a mechanical origin in the neck
Today! Free webinar with a neurosurgeon who listens. Spain's Vincente Gilete MD is star of @RenegadeRes 1pm EDT Clinician's Roundtable, #medtwitter & pts. CCI, Chiari, TC, Syringomyelia, spinal instability & deformation, esp + connective tissue disorders. us06web.zoom.us/webinar/regist…
Hey #longcovid- do y’all ever get weakness in your neck/base of neck that feels like it’s too hard to hold up your head? Or like you have been using your neck to lift weights?
Researchers found viral RNA in “the connective tissue where immune cells are located” up to 2 years post-acute infection. Could this have anything to do with the relationship between joint hypermobility and #longcovid? WHAT is causing our immune systems not to clear the virus?
Researchers found viral RNA in “the connective tissue where immune cells are located” up to 2 years post-acute infection. Could this have anything to do with the relationship between joint hypermobility and #longcovid? WHAT is causing our immune systems not to clear the virus?
This is actually the worst traffic I’ve ever seen in central Vermont
So I've got q a query for #PwME. I've been struggling to hold my head up. It feels too heavy and my neck feels so weak and painful. Has anyone else had this? In 2007, I was dropped out of a hoist and damaged my neck, so it's always been weaker but I'm at a loss of what to do!
Study finds COVID-19 worsens #POTS symptoms in most patients. They found that 93% of patients showed symptom escalation post-infection. The majority of patients recovered within 6 months of additional therapy, but 29% persisted with worsened symptoms. sciencedirect.com/science/articl…
I can't believe my eyes! 👏👏👏
Lead author Dr Jessica Eccles said "Our study shows, for the first time, that the presence of generalised joint hypermobility (GJH) is a risk factor for long COVID, and that those with hypermobility are likely to have even greater levels of fatigue." 2/ miragenews.com/joint-hypermob…
1999 article about possible relationship between ME and Chiari/spinal cord compression. It’s almost unbearable to think of the suffering that might have been spared if anyone in power has bothered to follow up on this. #MESpine
1999 article about possible relationship between ME and Chiari/spinal cord compression. It’s almost unbearable to think of the suffering that might have been spared if anyone in power has bothered to follow up on this. #MESpine
Except for this one. Multiple hundreds of ME/CFS patients diagnosed with Craniocervical Obstructions since 2019. pubmed.ncbi.nlm.nih.gov/32982905/. Infections can degrade connective tissue in a subset, esp those with connective tissue disorders. NIH session on this recently.
Except for this one. Multiple hundreds of ME/CFS patients diagnosed with Craniocervical Obstructions since 2019. pubmed.ncbi.nlm.nih.gov/32982905/. Infections can degrade connective tissue in a subset, esp those with connective tissue disorders. NIH session on this recently.
🩻Research shows that many patients with #LongCOVID and #MECFS are also diagnosed with 1 or more connective tissue or structural disorders. 🚨Are you a #pwLC or #pwME and think you might have one of these conditions? Click on the link to learn more! rthm.com/articles/conne…
After 4 long years of dealing with #LongCovid, I finally got the diagnosis from a specialist at UT Southwest in Dallas and it’s what I thought Ehlers Danlos Syndrome Quite surreal despite already “knowing”. #NotVaccinated so dont start
@RenegadeRes & @remissionbiome live webinar with Dr. Rowe on #MEspine #CCI #MCAS starts now! Follow below for live tweeting the highlights after some time for introductions!
New from Kyle Fargen and his colleagues at Wake. “Characterizing a new clinical phenotype: the co-existence of cerebral venous outflow and connective tissue disorders” #MEspine pubmed.ncbi.nlm.nih.gov/38269002/
”COVID-19 may exacerbate…fibromyalgia & connective tissue diseases such as Ehlers Danlos syndrome, Marfan, & other hypermobility syndromes…These conditions are known to be associated with… ME/CFS, mast cell activation syndrome, and dysautonomia.” publications.aap.org/pediatrics/art…
I can't believe I'm actually here. In the fall of 2020, 15 yrs into undiagnosed chronic illness, I came across @jenbrea's TEDx talk & I felt 🤯. I met the criteria for #MECFS. I looked up how Jen was doing & found out about her remission after surgery for #CCI & #tetheredcord
I can't believe I'm actually here. In the fall of 2020, 15 yrs into undiagnosed chronic illness, I came across @jenbrea's TEDx talk & I felt 🤯. I met the criteria for #MECFS. I looked up how Jen was doing & found out about her remission after surgery for #CCI & #tetheredcord https://t.co/3x5MXqMawx
@k1llstreakz lolol I’m just thinking about this again bc like, does she think where the head & neck meets is not a joint? The atlanto-occipital is literally the most mobile joint in the human body even if you don’t have EDS/HSD
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Chris J. Maddison @cjmaddison
18K Followers 2K Following Asst. Prof. in Machine Learning at UofT and #LongCOVID patient.
Dan Wyke 🦠➡️�.. @Dan_Wyke
13K Followers 6K Following M.E. patient, advocate, person-centred counsellor (see link), recovering poet
Binita Kane @BinitaKane
31K Followers 4K Following #LongCovid interested Lung Doctor | [email protected] | YouTube channel @LCCWYCD | Co-founder #southasianheritagemonth @SAHM_UK |
Austin Robert @ar_pnw
2K Followers 490 Following always tired | analyst | turning on the lights to the connection between #longcovid #mecfs #pots #mcas and connective tissue disorder related conditions #eds 💡
Prof Doug Kell CBE #F.. @dbkell
14K Followers 10K Following Liv Uni. ENTJ. CBE. Against brexit and Govt lies. #FBPE https://t.co/Z2XFPIxkfi https://t.co/F5o0wIMw1H. Nothing I say is medical advice @[email protected]
Jeffrey Lubell (EDS, .. @JeffLubell_C19
3K Followers 511 Following I am exploring treatments for my daughter's EDS & ME/CFS & implications for people with #EDS, #MECFS, and #LongCOVID. Not an MD or professional scientist.
Pam Bishop, PhD @pamelarbishop
10K Followers 3K Following Was research professor, now disabled by #LongCOVID (12/5/20) & subsequent #POTS #MECFS #MCAS #SFN #cSVD Patient advocate when able. Tell your story if you can.
Eliana Uku @ElianaUku
3K Followers 531 Following #LongCovid patient (mar '20) incoming @StanfordGSB | ex @37angelsny @paypal @inturnhq
Brian Fog @useless_priest
6K Followers 5K Following Struggling to live, laugh, love in the midst of a global mass disabling event | #LongCOVID Apr 2022 | #MECFS #PostVac ally | 🏳️🌈 | 🇮🇪
Jess Plant @IAmJessPlant
6K Followers 7K Following (They/She). 5w4, Autistic & Neurodivergent, Carer, ✝️, ♿, Fat, INFP, 🏳️🌈, Left-liberal progressive socialist, Mentally ill.
Kathy Mac @thekatthoughts
105 Followers 3K Following
Linzi @linzi_mcintosh
388 Followers 5K Following Mother of multiple disabilities including Hypermobility, fibromyalgia, to mention a few. All daughter health struggles. EDS. Autism. Gillian Barre' syndrome
🌻Kirsty @Kirstycfsmelife
586 Followers 713 Following CFS/ME 15+ years and POTS 🐼 trying to improve my health and one day fully recover
Ton @Earthynerd
774 Followers 4K Following Redheaded carbon-based lifeform of the female variety. Science rocks, rolls, strikes, slips. Fmr USMC brat. Kindness is the best! 🤗😊Opinions are my own 🌻
Gaye @Eliza345192
23 Followers 1K Following I am a lively and cheerful girl who would like to meet a good friend.
McDosme @MDosme14155
45 Followers 2K Following
Trinette Alonzo @TrinetteA75140
82 Followers 3K Following
Karla Fisk @KarlaFisk
3K Followers 7K Following #BLM Green bldg pro (LEED AP), Organizer: @InwoodLegal Action, member: NMN4$. Grateful to be living with my husband & dog Belle in Inwood, Upstate Manhattan.
FOR Nature @JacquelynHedden
300 Followers 1K Following I've got questions about this thing we call life. Neurobohemian.
Justarandomuser @Justara45072675
80 Followers 430 Following
YuBo @wangjia1983
26 Followers 410 Following
Tiffany Dages @TiffanyDages
1K Followers 4K Following Lifelong vEDS warrior🦓Proud wife of an OIF combat veteran🇺🇸7th gen Floridian🍊lil’ swiftie & teen boy mom x3💐hospice volunteer🙏🏼 Democrat💙🌊🗳️
Brutus Berserk @BrutusBerserk
300 Followers 3K Following
Chronically Illumise .. @ChronIllumise
22 Followers 242 Following Lily. #pwME, pwPOTS, Pokémon fan (she/her).
Rete Long Covid Press @ReteLongCovid
148 Followers 1K Following Benvenuti nella Rete Long Covid Italia 💙 https://t.co/T6NThQfoQL
Lizzy Jones @LizzyJo28790489
0 Followers 28 Following
Neuroimmune Scout @neuroimm_scout
11 Followers 62 Following
Elizabeth Ansell @elizansell
686 Followers 2K Following Founder @njfatigue. Previously at Showtime and ABC News, among other places. Quit career due to #MECFS. This is #NotJustFatigue.
Charles Clark Lawrenc.. @Sedon1_
652 Followers 5K Following ⁂ Life Is Worth Uplifting . Striving With Excellence ♿ Dedicated To Life, Jaime, & Solutions #Healing #IatrogenicHarm #LongCovid #LongLyme #TBI #UnseenIllness ⁂
♥ Sarah ♥ @SaZzzby
799 Followers 3K Following Mum of two, disabled by a chronic illness and ignorance, just trying to make the most of life! Passionate about equality issues, inclusion, access.
WhiteAngels @CardosoPedroMi1
65 Followers 738 Following
shelley-lee waller @shellchat
870 Followers 629 Following Former journo/editor, advocate for health equity, mother of two teens (Korean adoptees), part time worker in health - full time 🕵️♀️ sleuth of ME/POTS/MCAS.
Gill @gillboast22
13 Followers 172 Following
Chermain Lin-Tay @lintaoadrena
64 Followers 371 Following
Dawn Galletly @DawnGalletly
66 Followers 434 Following
DysautonomiaME @DysautonomiaME
83 Followers 447 Following Dysautonomia for decades #PoTS #MCAS #hEDS
Marni Gold Creative @MarniRGold
7K Followers 2K Following Creator-Singer-Teacher-Mom-Skincare/makeup❤️ Long Covid-CFS-Dysautonomia🥄 ⬇️80glp1 @mgoldcreative on insta & TikTok
Kool Karyn ☮️ �.. @koolkaryn
108K Followers 104K Following #ResisterSister 💕 #49ers4Life ❤️#BLM #VoteBlue #GoodTrouble Speak your mind even if your voice shakes! RBG
cara @athingtoflout
91 Followers 2K Following ‘when I could speak again it was from a bath of cool water; but first: I was kept a long time in a flame.’ chronic pain person/anti-eugenics ❤️🔥
PennyLobos @LobosPenny51290
124 Followers 2K Following
Vitamins DK @DonkeyVitamin
231 Followers 4K Following offer vitamins and supplements https://t.co/6lX91v1au9 https://t.co/zo3V69PMED https://t.co/sQmtttMy3w https://t.co/4AsuEubyqN https://t.co/wNZJnwTH4t https://t.co/QTd4LCNYKe https://t.co/tlG6l5uHd5 https://t.co/P7PbTJ3ntJ 🌱
Shosha Capps 😷🎨.. @shoshacapps
280 Followers 3K Following Appalachian expat academic adjacent #environmentaljustice #disabilityjustice #COVIDisNotOver Caregiver to twin toddlers and/with #PwME
Shannon Donegan @shannondonegan
1K Followers 893 Following Chronic Illness/ Disability Advocate (Living with severe ME • POTS • Lyme) Lover of tea, naps, blankets, books
Sarah @BirbsAreReal
404 Followers 1K Following Forty-something retired biologist and ME advocate. Lover of birds and yarn. Former athlete. https://t.co/rBbNBTEspH
ChronicIllnessHumor @HumorChronic
995 Followers 3K Following Chronic Illnesses + Autoimmune Disorders R no laughing matter but my humorous posts will make U feel better for a while. #chronicillness #autoimmune #funny
relaxjolene @relaxjolene
117 Followers 834 Following And back to your regularly scheduled broadcasting.
fdg @fgtheodora
103 Followers 1K Following
JustMe @methoughtsandme
31 Followers 278 Following Linguistic loving centrist who lives for all things data. Will show cute pet videos to balance the non-stop data analysis.
Melissa Rose @MelRoBuilds
165 Followers 555 Following Unidentified critical illness (lyme+, EBV, dysautonomia, unstable spine, extreme fatigue) Severe ME/CFS (?) CCI (?) Connective tissue disorder(?)
Angela @toribio37angela
200 Followers 3K Following
The Black Box: Awaken @TheBlackBoxFilm
634 Followers 2K Following A new experimental short film about a young person with #ME/#CFS, trying to achieve his potential. Director @RHolbourn Producer @ThomJacksonWood
Annie5757 @herman_amalie
228 Followers 2K Following Surviving Sjogren’s (Neuro) patient w Dysautonomia, SFN, POTS, MCAS, Chronic Daily Migraines.
Annette Streich @AnnetteStreic10
34 Followers 150 Following
I am not a person but.. @pokeyepicfail
83 Followers 2K Following My life is literally just man made horrors beyond your understanding and cats.
S @karmicdragon
812 Followers 2K Following 🇺🇦Cancer slaying, heavy metal playing, knowledge seeking, truth speaking, tree hugging, nature loving, wolfdog rescuing, indigo being. No DMs. F TFG
jaguarlady47 @jaguarlady471
128 Followers 717 Following
Dr Claire Taylor @drclairetaylor
66K Followers 2K Following Doctor|Special interest in Long Covid,POTS,ME/CFS&MCAS| neuroscientist🧠Long Covid kids champion|WHN expert advisor|long Covid clinic🏴Views my own
LongCovidPharmD @organichemusic
37K Followers 1K Following Doctor of Pharmacy. Long Covid, EBV & ME/CFS research. Here to share & learn. Tweets not medical advice. https://t.co/jqc4g8cFLa https://t.co/lKQezPwtQs
Hannah Davis @ahandvanish
60K Followers 4K Following Research, algorithmic music, machine learning/AI, anti-bias in AI data. #LongCovid research & advocacy @patientled. they/them. DMs rarely checked
Bea is Chronically Pe.. @Be_Kinderr
11K Followers 3K Following Chronic Illness Researcher. Science of #MECFS #LongCovid #POTS #EDS #MCAS CCI SFN Lyme etc & How They Connect🕵🏻♀️Scientist/Advocate [email protected]
Dr. Alice 💕 @calirunnerdoc
26K Followers 1K Following Cardiologist,Advocate,🏃🏼♀️,✍🏻,Posts≠medical advice. NO DMs for med advice,SARS-CoV-2=persistent vascular bomb💣.Views expressed are my own,not my employers.
Putrino Lab @PutrinoLab
34K Followers 382 Following We make people (and technology) better at Mount Sinai. Opinions are my own.
It'sME(Jaime) @exceedhergrasp1
20K Followers 5K Following Director of Sci & Med Outreach, #MEAction Stanford Med #ME, #EDS, #POTS, #LongCOVID Views my own [email protected]
Prof. Akiko Iwasaki @VirusesImmunity
220K Followers 2K Following We study antiviral immunity and viral disease pathogenesis. #COVID19 #longCOVID #vaccines @HHMINEWS @YaleIBIO @YaleMed @YaleCII President of @ImmunologyAAI
Shaney Wright @ShaneyWright
15K Followers 493 Following @WestHam Fan ⚒ | Accidental Centrist; Pro-Pragmatism/Science; Anti-Dogma. Fighting for Biomedical Research into, and Awareness of, #LongCovid. #FBLC
Naomi Harvey PhD #Wea.. @Naomi_D_Harvey
15K Followers 4K Following Zoologist. She/her. 22yrs with ME/CFS. Pro-vax but vaccine injured. Life on pause (views my own - unemployed) ♿️ https://t.co/YeMrEWwEg5
Resia Pretorius @resiapretorius
27K Followers 218 Following Distinguished Prof: Physiological Sciences, Stellenbosch Univ, South Africa; Honorary prof: Univ of Liverpool Research: coagulation, inflammation
Farid Jalali, MD @farid__jalali
24K Followers 1K Following Personal account. Tweets are not Medical Advice. Posts = personal opinions only, not professional opinions. RTs + likes ≠ endorsement.
Jonas R. Kunst (@kuns.. @KunstJonas
17K Followers 724 Following Professor of Psychology @UniOslo. Past @Yale @Harvard @UiB. Founder @Advances1n. Father. Views are my own. @kunstjonas.bsky.social @[email protected]
Christoph Ströck @cstroeckw
7K Followers 455 Following Soon, people will look back in disbelief at what has happened to patients with #MECFS and #PAIS | @weandmecfs co-founder
Tess Falor, Ph.D. | @.. @tessfalor
9K Followers 5K Following 🚀Space physicist➡️#MECFS researcher🧪 Founder - Renegade Research @renegaderes - RemissionBiome @remissionbiome ✨Serendipity Meets Preparation✨
GeoCK @GeoEduOne
6K Followers 953 Following MSc | AD | ICL, UCL, UOB alum | Geoscientist, cyclist, adventurer, athlete, dad | Sidelined after a “mild” Covid infection, Dec 2021 | #LongCovid #FBLC #Climate
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Bhupesh K Prusty @BhupeshPrusty
15K Followers 68 Following A passionate molecular virologist who believe in patient oriented scientific research. Using viruses to understand human existence. Science is for society.
That Carpenter Guy @that_carpenter
502 Followers 41 Following Master Carpenter-Founder/CEO of 7 figure custom finish carpentry business.
Yogi Jaeger 💙 @yog.. @yoginho
4K Followers 3K Following I'm on Mastodon: @[email protected] https://t.co/mRnP18fa1W https://t.co/IqWsdB5peb https://t.co/PhDSfK0bib https://t.co/Xoj4sYvs3d
UniteToFight2024 @U2Fight_World
3K Followers 121 Following 100% crowdfunded LC & ME/CFS conference project. community-driven. independent. global.
Virta Health @virtahealth
21K Followers 662 Following Helping people reverse type 2 diabetes, prediabetes, and obesity, while setting a new standard of medical care for those living with a metabolic condition.
Thomas N. Seyfried @tnseyfried
24K Followers 34 Following Author of Cancer as a Metabolic Disease. Boston College professor. #cancer will be managed with metabolic therapies.
Henry VIII @SussexHenryVIII
42K Followers 272 Following What the heart loves, the will chooses, and the mind justifies.
Phil Prydderch 🏴�.. @PJPrydderch
1K Followers 2K Following Dad of two | EVs | Born at 332 ppm CO2 | ME, FMS, POTS | @wrexham_AFC ex part-owner⚽️ | M.CIWEM | Flood Defence & Hydrometry
Ellie Hall @ellievhall
41K Followers 4K Following Senior Reporter, Royal Correspondent, and Investigator for hire. Previously @BuzzFeedNews. Very curious. Tell me things people should know: [email protected]
Meredith @Mere_Constant
11K Followers 1K Following Writer | Culture & Media Critic | Puller of Threads
Colin McCarthy @US_Stormwatch
129K Followers 216 Following Worldwide Extreme Weather | Storm Chaser | Atmospheric Science @ucdavis ‘26 | Contact: [email protected]
Christian Assad, MD @ChristianAssad
26K Followers 156 Following Interventional Cardiologist, ABOM, focusing on prevention and reversion of Cardiovascular Disease. Time Traveler, Sexiest man Alive as per GQ 2025
Morten @helifliMorten
32K Followers 4K Following Living in Arctic Circle in Norway..sharing our amazing country.Follow me for amazing pictures,not all mine, of beautiful scenes and things Norwegian.Heli Pilot.
Antonio Caramia @Antonio_Caramia
11K Followers 3K Following Ingegnere gestionale, Consulente di direzione, ICT Manager, Responsabile Organizzazione e Sistemi Informativi https://t.co/VQUfiKFqcv
StevenJSmithMD3 @j_md338936
42 Followers 232 Following
Wesley Yang @wesyang
137K Followers 9K Following Writing on Substack. Author https://t.co/XpCqfzGhUI. Tips accepted here: https://t.co/yOYgoS3FtN…
Ehlers-Danlos Syndrom.. @ehlersresearch
267 Followers 33 Following We strive to promote evidence-based Neuromuscular and Musculoskeletal medicine for Ehlers-Danlos Syndromes and Hypermobility Spectrum Disorder.
Andy @AndyBayo_
352 Followers 2K Following Chronic Fatigue. Orthostatic Hypotension. Heat Intolerance. Impaired Cognition. Possible CCI. Possible brainstem compression. #mecfs #mespine #severeme
Alba Azola, MD @AzolaAlba
3K Followers 801 Following Assistant Professor @RehabHopkins and @HopkinsKids, Long COVID/Chronic Fatigue Clinic. Human, mother, physician, dancer, and scientist! My opinions are my own.
SFR Investor @SFR_Investor
11K Followers 648 Following Seeking alpha in single family homes. $45 mil AUM. $500 mil RE transactions - 1 house at a time https://t.co/dDLOTZyHHS
Natasha 🐱🦠 @doyouseem_e_now
2K Followers 674 Following 29 & sick with Severe #LongCovid for 13 months 🛌 Part of the biggest mass disabling event in modern world history. #Millionsmissing
HopeStarMasacre @MscreStarHope
2K Followers 3K Following its alright… im just dying is all…// writer and performer of the theatric kind // disabled as fuck with #LC #ME #POTS #MCAS & more // antizionist ✡️ 🇲🇽🏳️⚧️
Metrodora Foundation @MetrodoraFdtn
369 Followers 414 Following Catalyzing scientific collaboration and discovery to find cures for chronic, multisystem disorders.
Rebecca Ryan @DrRebeccaRyan
1K Followers 1K Following Gastroenterologist & Hepatologist. Disorders of the Gut Brain Axis. Treating Long Covid, POTS, MCAS and hEDS.
Nick Norwitz PhD @nicknorwitz
59K Followers 294 Following PhD @UniofOxford, MD student @Harvard. Metabolic health enthusiast. #LMHR #LEM researcher. Lover of EVOO. Opinions are my own, but data are data
Douglas A. Boneparth @dougboneparth
269K Followers 625 Following President at Bone Fide Wealth • CNBC Advisor Council • Memelord • Posts ≠ Financial Advice • The Joint Account: https://t.co/CNtZzhgQMu
Pauline Castres @PaulineCastres
5K Followers 5K Following Award-whining climate, health & disability policy researcher. Food pun master & artist. 2022 @margaretatwood's #PracticalUtopias Founding Fellow. 🇪🇺 migrant
FDA Whistleblower @FDAWhistleblow1
749 Followers 106 Following Ron Kavanagh, Clinical Pharmacologist, Ex-FDA Reviewer. 7 yrs w Neuro/Psych. Fired 4 reporting felonies to FBI & 4 1st Amendment speech & petitions to Congress.
Michael R. Hicks, COV.. @Michael59503746
10K Followers 9K Following COVID-conscious advocate; masker; 222 nm far-UVC test pilot, exploring uses of the tech in the real world; just trying to stay alive.
Lindsay McAlpine MD @LindsayMcA
897 Followers 131 Following Neurologist Expert in Neurologic Post-COVID Conditions (Long COVID) Yale University School of Medicine
Lara Stanić @StanicMd
661 Followers 352 Following M.D., ENT specialist, IBCFPRS, LongCovid/ME/CFS patient. Hoping to get rid of the last abbreviation
Volcaholic 🌋 @volcaholic1
83K Followers 854 Following Passionate about volcanoes, extreme weather & wildfires. If it's exciting, informative, or unique, I'll share it. © to owners! DM for credit/removal/submission.
Bill McGuire @ProfBillMcGuire
30K Followers 3K Following Volcanologist, climate scientist, writer, broadcaster, activist, socialist, best-selling author of HOTHOUSE EARTH: AN INHABITANT'S GUIDE. Born @ 313
Benjamin Bikman @BenBikmanPhD
70K Followers 575 Following Endlessly fascinated by the scope of diseases caused by insulin resistance and what to do about it.
Simon Schama @simon_schama
200K Followers 4K Following The past is never dead. It's not even past (Faulkner) . Historian, writer, art critic, cook, BBC presenter but not necessarily in that order
Chris Palmer, MD @ChrisPalmerMD
94K Followers 740 Following Harvard #psychiatrist working at the interface of #metabolism and #mentalhealth. Author of Brain Energy, available now! https://t.co/bZ0wRxj2Yk.
Jonathan Rosenthal @rosenthal_jon
20K Followers 3K Following Africa Editor at The Economist. Also feeling my way onto the other place: @journalistjon.bsky.social
Oliver Alexander @OAlexanderDK
87K Followers 757 Following OSINT Analyst - Secret WEF Biolab Interior Decorator
Shayan Sardarizadeh @Shayan86
182K Followers 11K Following Journalist at BBC Verify | disinformation, conspiracy theories, verification, AI, open source investigations, extremism | [email protected]
Jonathan Landay @JonathanLanday
22K Followers 3K Following @Reuters DC National Security Correspondent, veteran war reporter, South Asia and Balkans hand, blues guitar slinger; Opinions? Who has opinions?.
Ulrich Speck @ulrichspeck
58K Followers 647 Following Foreign policy analyst and strategist. Columnist NZZ. Ex GMF Berlin, Washington; Carnegie, Elcano Brussels; RFERL Prague, PhD history
Evergreen Intel @vcdgf555
166K Followers 719 Following "Sharp-eyed aviation buff & flight tracker" ~ Brian Williams Cites: @UN @BBC @11thHour @newsweek @PopMech @thewarzonewire @TheAviationist @AirForceTimes She/her
Shashank Joshi @shashj
199K Followers 2K Following Defence editor at @TheEconomist, Visiting fellow at @warstudies King's College London.
Hananya Naftali @HananyaNaftali
429K Followers 798 Following I’m that Israeli who talks to the camera about peace in the Middle East 🇮🇱🕊️
Trey Yingst @TreyYingst
442K Followers 3K Following Foreign Correspondent: @FoxNews #FreeEvanGershkovich
a tired human @saffronandsky
1K Followers 1K Following disability justice💜 mod. chronic illness for decades+long covid in '22 =severe MCAS, ME+POTs= bedbound. Parent, mixed race, writer, former gardener ♿ 🏳️🌈☸️
SGM @234Sagyboy
224 Followers 2K Following
Austin Miller, OMS-II.. @Austin_PMR
395 Followers 327 Following OMS-III @ACOMEDU | Aspiring #Physiatrist | Snowboard Enthusiast | Education Committee Co-chair @AOCPMR | Georgetown University MS | James Madison University BS
Didn't really know what to expect from May Day in Oxford. From a choir singing up Magdalen College at dawn to raves at 8am in the city centre. Madness but tonnes of fun!
Happy May Day from Oxford. Been tradition since 16th century for the choir to sing at 6 am from the top of the tower. Beautiful to see and on a lovely misty morning. #MagdalenCollegeOxford #Oxford #MayDay @magdalenoxford
As patients seek medical care for #LongCOVID some discover that they have underlying Ehlers-Danlos Syndrome - a group of 13 inherited connective tissue disorders that are characterized by abnormalities in collagen. Check out our blog to find out why! rthm.com/articles/what-…
@RTHM_Health, this is also common anecdata. Do you have a post on how connective tissue is damaged in long COVID?
Slightly surreal and spellbinding at the same time. I had the privilege of seeing in May morning from the top of Magdalen tower. A once in a lifetime experience!
@useless_priest Yep, took 6 months though! It dramatically worsened my orthostatic intolerance. Where I could sit up for 3 hours before my TTT (not done often but for rare trips in my wheelchair), after I could barely sit for 1 hour without a severe migraine occurring and needing to lay down.
@JeromeAdamsMD @metmuseum Of the two, Guggenheim. You can barely get inside the overwhelming MET in 90 mins. But also consider the @MorganLibrary! They’re more bite-sized, but still an incredible collection.
@constans It’s also disingenuous. After the Allied firebombing, the Germans meticulously rebuilt the baroque city centre. I’ve been there myself. Dresden is perhaps one of the best examples of historic reconstruction after a war.
The conditions just pile up and your life becomes a constant battle to chase down your new symptoms and have them diagnosed and treated before they get so bad you can’t anymore. Like a never-ending game of medical whack-a-mole. That's Ehlers-Danlos syndrome."
@hankgreen @jrgmarwood @pr3cipitation ER doc. I see this all the time. It’s *not* dangerous. Pls let people know. People will be scared seeing yr initial tweet. It’s usually an drug or plant compound causing it. Scopolamine patches are notorious. But in any case almost always benign.
The saga of subsidized housing. I have a tenant on social security paying me $800/mo in desperate need of cheaper housing. This unit is worth $1300/mo at the market rate right now. I explained I could assist him with moving, money, whatever he needed, however, my only…
The New York Times Is Now Engulfed in the STAR*D Scandal By Robert Whitaker On April 25, The New York Times, rather than report on the critiques of STAR*D, has once again trotted out the fraudulent results as evidence of the efficacy of antidepressants. madinamerica.com/2024/04/the-ne…
@ar_pnw Years ago I was tested & was told I have torsion in artery’s or veins in neck. Can’t remember which. NHS not interested.
@ar_pnw I’m so so hoping I get a chance to see this for myself, I’ve seen so many say this for a decade, I have hope!
Starting to see a pattern in patients who undergo jugular decompressions and their #POTS symptoms are greatly reduced or go away all together (self reported, of course!) 😅
@dsethlewis Repeated arm movements that involve upper arm/shoulders will ALWAYS give me PEM, even if gentle/horizontal (Washing hair, hand sewing); but just involving hand/wrist I can get away with if lying flat. Bizarrely it means I can knit but not pull apart knitting!
@covidmecfshelp1 @dsethlewis Have you heard of Thoracic Outlet Syndrome? Because once I found out that was likely the cause of my arm being my trigger exertion, I have been able to adapt MUCH better. youtu.be/WaM2mPzR64w?si…
What has been the most ignorant thing someone has said to you since becoming chronically ill? Mine would have to be that i create my own reality and can manifest better health with my thoughts 💀 I don't think my thoughts can stop my vertebrae from compressing my brain stem lol
Close reporting on H5N1. bovinevetonline.com/news/industry/… Why do I think this article is worth promoting? It’s for the industry—written to inform people with skin in the game and who know their cows and farms well. Strong incentives for honest reporting.
@dr_kevinlee @karenlubell @JeffLubell_C19 in case you have not seen this.
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