CSF Leak Association @csfleakuk
The CSF Leak Association is a registered charity in England & Wales (1210442) and Scotland (SC046319) working to raise awareness of cerebrospinal fluid leaks. linktr.ee/csfleakuk Scotland, England, Wales & NI Joined April 2016-
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📣 Help us bring your voice directly to GPs ✨ Share a positive GP story 🗣️ What do you want from your GP? ✨ What do you wish every GP knew about living with a CSF leak? pass on your thoughts in the comments 🤝 Let’s work together to make care better for everyone!💙 #RCGP2025
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CSF Leak Association retweeted
Read our latest #CSFleak paper on opening pressures and #CVF . Absence of low opening pressure should not be used to rule out #sih. Congrats @bposani , Dr. Robbins and Dr. Strauss. @WCMRadiology @WCMCNeurology Link: pubmed.ncbi.nlm.nih.gov/40992352/
CSF Leak Association retweeted
🆕️🔓AI-Augmented Quantitative MRI Predicts Spontaneous Intracranial Hypotension 🧠 ✒️ Yi-Jhe Huang et al. via @diagnostic_mdpi #SIH #CSFleak #NeuroX #spinalCSFleak #SpontaneousIntracranialHypotension mdpi.com/2075-4418/15/1…
CSF Leak Association retweeted
Chronic post-dural puncture headache exists! However, MRI in these patients is mostly negative, contrary to the tremendous symptom burden. Read the full article here ⬇️ Big thanks to @Niklas_Luetzen and the whole #CSF Team at Universitätsklinikum Freiburg! #PDPH @issclsociety
Chronic post-dural puncture headache exists! However, MRI in these patients is mostly negative, contrary to the tremendous symptom burden. Read the full article here ⬇️ Big thanks to @Niklas_Luetzen and the whole #CSF Team at Universitätsklinikum Freiburg! #PDPH @issclsociety
CSF Leak Association retweeted
My MRI scans showed the classical features of CSF leak youtube.com/shorts/liSRfcn…
CSF Leak Association retweeted
The weird symptoms that accompanied my CSF leak headache youtube.com/shorts/Phb4Vzo…
CSF Leak Association retweeted
❗️'Our findings highlight the unreliability of current MRI diagnostics to detect patients with chronic PDPH, which must not lead to a mitigation of the diagnosis or a refusal of treatment.' 👏 #cPDPH #PDPH #Anaes #Anes #OBAnes
🧠 Migraine Awareness: CSF leaks are often misdiagnosed as migraines 💡 Upright headache? Think CSF leak! 💙 Help us raise awareness and advocate for swift accurate diagnosis. 🔗 Read Donia's story: csfleak.uk/living-with-th… #MigraineAwarenessWeek #CSFLeaks #CSFLeakAssociation
CSF Leak Association retweeted
ONLY 1 DAY LEFT TO REGISTER Join us tomorrow for the second session of the National Subspecialty Lectures in Head & Neck Imaging REGISTER: bit.ly/BSHNI-RCRLectu…
CSF Leak Association retweeted
This #MigraineAwarenessWeek we’re proud to support our members @MigraineTrust. #MigraineMeans disruption, missed opportunities & being let down by systems meant to help. It’s so much more than “just a headache.” 🎥 Watch their new campaign film: youtu.be/19x0y14g8iI
This #MigraineAwarenessWeek we’re proud to support our members @MigraineTrust. #MigraineMeans disruption, missed opportunities & being let down by systems meant to help. It’s so much more than “just a headache.” 🎥 Watch their new campaign film: youtu.be/19x0y14g8iI https://t.co/Ks3IPKQ5lA
CSF Leak Association retweeted
How my CSF leak started youtube.com/shorts/1Dr5YyO…
CSF Leak Association retweeted
The dystopian workplace stress that set the stage for my CSF leak youtube.com/shorts/Ssn_9E4…
CSF Leak Association retweeted
@parnian_habibi inaugural member of the #MarkLab studying #SIH #CSFLeaks with important work to highlight the challenges in diagnosis @MayoRadiology @issclsociety @csfleakinfo ajnr.org/content/early/…
CSF Leak Association retweeted
The bizarre manifestations of CSF leak headache youtube.com/shorts/N_5S0_d…
CSF Leak Association retweeted
@SayalParag @csfleakuk @csfleakinfo @davagnanam1 @SayalParag @Manjit_Matharu very best in the business and treated me with unbelievable care so greatful for these amazing people! We will get there !
CSF Leak Association retweeted
New on The Neurology Lounge Podcast Episode 93. CSF leak with Bernadette Hard - Trustee of CSF Leak Association YouTube: youtu.be/2Scf9Giih2U Spotify video: open.spotify.com/episode/14zoHO… Spotify audio: open.spotify.com/episode/5IrtKI… Apple: podcasts.apple.com/us/podcast/the…
CSF Leak Association retweeted
In this episode, I am joined by general practitioner Bernadette Hard, to explore her experience of CSF leak, and her work as Trustee of the CSF Leak Association. She described how a workplace trauma resulted in PTSD, and how that was followed by spontaneous CSF leak. 1/3
In this episode, I am joined by general practitioner Bernadette Hard, to explore her experience of CSF leak, and her work as Trustee of the CSF Leak Association. She described how a workplace trauma resulted in PTSD, and how that was followed by spontaneous CSF leak. 1/3
CSF Leak Association retweeted
🆕️ The Diagnostic Burden of Spontaneous Intracranial Hypotension: Imaging Volume and Specialists Involvement Prior to Diagnosis ✒️ @parnian_habibi et al. via @TheAJNR 🧠💧 #spinalCSFleak #CSFleak #SIH #CSFVF #NeuroRad #NeuroX ajnr.org/content/early/…
💥 #AAC2025: Bern surprised to be asked to join the Q&A panel to share about her story and the charity 🎤 No script just heart, powerfully raising awareness of SIH and the guideline. 👏 Huge thanks to Bern #standupforleakers 🫶 & to the chair and delegates for the warm welcome 💙
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