Prof Manjit Matharu @Manjit_Matharu
Professor of Neurology and Consultant Neurologist at UCL Queen Square Institute of Neurology & National Hospital for Neurology and Neurosurgery, London London, UK Joined May 2011-
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@SayalParag @spinalCSFleak @csfleakuk @csfleakinfo My son is proof of this, @SayalParag @Manjit_Matharu @csfleakuk multiple Venous Fistulas identified, fixed 🙏 Dr Parag & Prof Matharu and team in London listened to my son, his body, now slowly getting his life back & hopefully his career as a Jump Jockey, thanks to them all 🙏
🎥 Bern looks forward to the EANS–Hydrocephalus Society–CSF Leak Association Joint Session on SIH at #Hydrocephalus2025 📣 Bern will advocate and connect with clinicians driving change in SIH treatment
🆕️📃 Syrinx in spontaneous intracranial hypotension treated by surgical disconnection of CSF venous fistula ⬇️ (🔒) ✒️ @_davidrowland et al. via @PracticalNeurol #spinalCSFleak #CSFVF #SIH #CSFVenousFistula #Syringomyelia #Syrinx pn.bmj.com/content/early/…
🎤 Prof Matharu opens #Session21 on CSF leaks at #Hydrocephalus2025 with a brilliant overview of SIH clinical presentations. We were thrilled he began by recognising the vital role of patient groups in driving change. Thank you for amplifying the patient voice! 💙 #CSFleaks #SIH
📊 Insightful talk from Tomas Dobrocky @TDobrocky🇨🇭—co-author of the Bern Score—at #Hydrocephalus2025. 🔁 Blind blood patching may improve symptoms, but only cures ~1/3 of patients. Follow-up imaging is essential. 🧠 Different types of CSF leaks need tailored treatment strategies
🎤 Engaging debate at #Hydrocephalus2025 with all speakers taking thoughtful questions from the audience. 💬 Collaboration, curiosity, and commitment to improving SIH care were on full display. Grateful to all participants @Manjit_Matharu @NeuroradLal @TDobrocky @JrgenBeck
💡 Excellent talk by Dr Amir El Rahel (Freiburg) at #Hydrocephalus2025 showing the economic power of surgical treatment for SIH. 📉 Most patients couldn’t work pre-surgery. 💼 Post-surgery, they returned to their jobs. Early investment in care = better lives + long-term savings.
💥🙌 Non-invasive diagnostic test for SIH? Dr Piechowiak presents exciting research at #Hydrocephalus2025 on CSF volumetry as a direct marker for SIH. 🧠 A safer more accurate way to diagnose and guide treatment. Big potential ahead! 📈🔬 #CSFleaks #SIH #Neuroradiology
This is perhaps the most important point. Trust the patient. They know their symptoms. Keep trying to find the #csfleak. Sometimes it will need many myelograms. Especially #CVFs. Develop resources to allow timely myelograms & multiple if needed. @csfleakuk @csfleakinfo
This is perhaps the most important point. Trust the patient. They know their symptoms. Keep trying to find the #csfleak. Sometimes it will need many myelograms. Especially #CVFs. Develop resources to allow timely myelograms & multiple if needed. @csfleakuk @csfleakinfo
Trustee Dr Bern Hard with all the literature she could fit in her suitcase! 💼✈️ 🙏 Huge thanks to Bern and Khadija for flying to Toulouse to advocate for CSF leak patients and share lived experience at #Hydrocephalus2025. 💙 #SIH #CSFleak
#SIH #CSFLeak artwork by @parnian_habibi vote now! rsna.wishpond.com/art-of-imaging…
🕯️ Today on #WorldSuicidePreventionDay, we light a candle to remember, support, and stand in hope CSF leaks cause overwhelming symptoms and mental health struggles. We’re committed to treatment and support for every patient You’re not alone 🌐 csfleak.uk/living-with-th…
Amazing work by Prof Matharu and Queen square CSF leak / CSF Disorders team . As always leading the way for a very important condition #SIH #csfleak @uclh @uclhCharity @QSNeurosurgery
Amazing work by Prof Matharu and Queen square CSF leak / CSF Disorders team . As always leading the way for a very important condition #SIH #csfleak @uclh @uclhCharity @QSNeurosurgery
💬 Prof Beck @JrgenBeck at #Hydrocephalus2025 reminds us: SIH is a severe disease with devastating impact on quality of life. 🚨 It's a tragedy that some patients can't access treatment. It’s known symptoms can cause many contemplate suicide. We must treat more patients.
Live from #Hydrocephalus2025 -#SIH is set for 2hours with major talks on diagnostics by @NeuroradLal, treatments by Tomas Dobrocky & @JrgenBeck, and clinical spectrum by @Manjit_Matharu
An excellent #hydrocephalus2025 World Congress presenting Queen Square CSF Leak Team’s minimally invasive surgery for disconnection of CSF venous fistula #csfleak #SIH @SayalParag @Manjit_Matharu @sanjay_cheema @csfleakuk @spinalCSFleak @hydrocephalusso
🧠 Final talk of the CSF leak session at #Hydrocephalus2025 How many myelograms are needed to find a CSF leak? 👉 Sometimes, it takes several. 🔍 Leaks often cluster around the top & bottom of the thoracic spine. 💙 Tests may be inconclusive, don’t give up hope #CSFleak
A fantastic talk by @Manjit_Matharu on SIH presentation and differential diagnosis at the Hydrocephalus World Congress #hydrocephalus2025 #SIH #CSFleak @csfleakuk @spinalCSFleak @hydrocephalusso @UCLIoN @QSNeurosurgery
New in Cephalalgia Reports! A cross-sectional study examines real-world data from patients with cluster headache (CH) referred to a tertiary headache center. Key findings: ✔️ 54% had chronic CH ❌ 34% lacked first-line acute therapy ❌ 55% had not received guideline-recommended…
Over on our Instagram, Facebook, & LinkedIn (links in bio) you can view the full set of the graphics. For further information - including more details around what a CSF Leak is, methods of donation, and the link to our Shop, please check out our website: csfleak.uk

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