C-Sense #FiiToo @CSense7
Passionate about fighting against injustice especially for families. England, United Kingdom Joined February 2019-
Tweets63
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Followers64
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Following173
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Likes10
C-Sense #FiiToo retweeted
BBC News - Children in care targets irresponsible, Anglesey councillors say bbc.co.uk/news/uk-wales-… Big business these days! Complete reform is long overdue.
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C-Sense #FiiToo retweeted
Dr Kalamchie told Gigi it was pervasive refusal syndrome (there is no such thing). Goslighting patients is a common thing in #MEandPEM. Their lack of understanding is directly due to @NICEComms who have all CBT and GET brigade on the committee. Doctors protected by @gmcuk
@RetractionWatch @schneiderleonid @gmcuk @crystalsandbut1 @agirlandme If @gmcuk had taken action would Merryn Crofts treatment been a little better and her parents saved the awful vindictive treatment? Now we have a new young person who is battling against her mother being blamed on not the staff looking for biomedical cause. This is another case
C-Sense #FiiToo retweeted
#SaturdayThoughts 🤔 When Social Services make monumental mistakes they go straight into damage limitation mode, wrongdoers get retired, moved out and some get promoted, they try to cover their tracks and hope the family will fade away. Complaints ignored, MPs ignored. #injustice
C-Sense #FiiToo retweeted
New Video: Children with ME 1 in 5 parents face child protection proceedings. ME is not taught in medical school and is often mistaken for Fabricating or Induced Illness. The impact has been devastating. youtu.be/EyihXLvz1hY
@robyndarcey5 I can not count the amount of times I post the link to the toolkit every week
C-Sense #FiiToo retweeted
BBC News - Slough Children's Services Trust: Foster children 'not protected' bbc.co.uk/news/uk-englan…
C-Sense #FiiToo retweeted
Tamsin Grundy died by suicide, aged 23. The Coroner has written a Reg. 28 Report to Prevent Future Deaths. Tamsin had seen more than 25 members of the crisis team in just 14 months before her death. edp24.co.uk/news/coroner-s…
@Moam20191 Please secretly record, you have the legal right. Only answer the questions you are asked. Lots are good but some aren’t protect yourself.
C-Sense #FiiToo retweeted
If you are a parent advocate of disabled child(ren) you must follow disabled advocates I see parents advocating for inclusion of 'parent voice' yet they forget to say the 'disabled voice' is also needed If disabled people are in your twitter feed you wouldn't forget
C-Sense #FiiToo retweeted
@TwinsplusTwo @bennessb @fiightback @LouFiightback @TwinPeaks01 @CSense7 @31mornings @TinaRodwell1 @MumScots @scousemama1 @Shona_Mu @sunsupport_SEN @C4ZZ41973 @AndCarer @nfis_tweets @LizzieCernik @MikeAmesburyMP @Andy_Bilson @DrEReinhold @KayJulier @HMSACharity thereciperesource.blogspot.com/2018/04/a-post…
C-Sense #FiiToo retweeted
Investigations for medically unexplained symptoms are often now focusing more on safeguarding rather than rare disease. With fantastic projects such as 100,000 Genome we are seeing a rare disease focus from DoH yet a child protection focus at local level #raredisease #FiiToo
@robyndarcey5 @BadgleyLaurence @fiightback @LouFiightback @TwinPeaks01 @TinaRodwell1 @31mornings @scousemama1 @LaraBloomEDS @DrEReinhold @HMSACharity @TheEDSociety @MumScots @sunsupport_SEN @AndCarer So if your Doctor asks you for a double appointment does that portray him ill informed and poorly trained because he can diagnose in the time slot?
@jvsimmonds01 Great news congratulations
C-Sense #FiiToo retweeted
Thank you!
🏆Jane Simmonds, Departmental Graduate Tutor @UCLchildhealth is being awarded for her outstanding commitment to education #TheEducationAwards @UCLPopHealthSci
C-Sense #FiiToo retweeted
Have been told radio feature @bbc5live and article @BBCNews has now reached over 1 million people! Listen to me for @fiightback at 7:00. Well done to all @Andy_Bilson @CMonaghanSNP @GoldbergRadio @Paul_Grant1 @actionforme @AndCarer #EDS #ME #Autism #FiiToo bbc.co.uk/programmes/m00…
C-Sense #FiiToo retweeted
Thank you Jill Brook for this hilarious #MCAS comic! #mcad #mastcellDiseaseAwarenes #mastcell #eds #somedocs @DrEReinhold @MaggieBuckley1 @LoveInYourTummy @tal7291 @IsobelKnight2 @JBOccyTherapy @tal7291 @DrAsifQasim @H2OhTwist @HMSACharity @LaraBloomEDS
C-Sense #FiiToo retweeted
Professors Rodney Grahame and Ian Chikanza are pleased to announce the inauguration of a new clinic. The clinic is a new concept of care offering world-class #rheumatology care for adults, children and adolescents. ehlers-danlos.org/news/new-londo… #EhlersDanlosSyndrome #HSD
C-Sense #FiiToo retweeted
Funding has been awarded to the EDS National Diagnostic Service at Northwick Park Hospital and is an important step towards undertaking future research into #vEDS buff.ly/304xsd1 #vascularEDS #EhlersDanlosSyndrome #Reds4veds
C-Sense #FiiToo retweeted
Consultant rheumatologist Dr Alan Hakim announced yesterday that he will be taking a 12 month sabbatical from clinical work to focus on education, training new colleagues and research. buff.ly/2LVCoOv
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