Cure SMA @CureSMA
Funding groundbreaking research for SMA. Determined to find a cure & support our community as the future of SMA is ever-changing. linktr.ee/curesma National Office - Illinois Joined January 2009-
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We’re happy to share our next recipient of Cure SMA’s basic research funding, Michael Tellier, PhD, at the University of Leicester! Dr. Tellier was awarded $114,000 for his research project, “Characterization of the SMN-7SK complex in the regulation of SMN1 and SMN2 expression
This weekend, the President signed into law a government funding bill that included a provision in support of new SMA research at the National Institutes of Health (NIH). Visit our news section to learn more: curesma.org/gov-funding-bi…
Scholar Rock recently shared new data showing treatment with apitegromab was linked to improved muscle strength and range of motion, while being safe and well-tolerated in those with SMA types 2 and 3. To learn more, visit out news section: curesma.org/scholar-rock-n…
We’re happy to share our next recipient of Cure SMA’s basic research funding, Allison Ebert, PhD, at The Medical College of Wisconsin! Read more about her project in our news section: curesma.org/ebert-grant-an…
Yesterday, Biogen announced interim 6-month biomarker data from the initial 29 participants in the open-label Phase 4 RESPOND study. To learn more, visit our news section: curesma.org/biogen-present…
“Most Likely Not To…”, a first-of-its-kind musical comedy developed, written and performed by members of the SMA community, in collaboration with @genentech. Check it out on February 29, Rare Disease Day mostlikelynotto.com
Melissa Bowerman, PhD, at Keele University was recently awarded $150,000 for her research project, “Defining the role of skeletal muscle in metabolic defects in SMA.” Learn more about Dr. Bowerman and her research project: curesma.org/bowerman-grant…
You did it! We’ve now reached our goal of 100 percent newborn screening of spinal muscular atrophy (SMA) in all 50 states, with the addition of Hawaii at the start of 2024. Thank you for everything you do to help improve the lives of everyone impacted by SMA.
Cure SMA Foundation o.. @curesmaindia
2K Followers 618 Following Making Spinal Muscular Atrophy treatment and cure accessible and affordable to Indians.
SMA News Today @SMANewsToday
2K Followers 11 Following We are a free digital publication dedicated to sharing the latest news, research, and spinal muscular atrophy (SMA) patient perspectives.
Melissa Bowerman @BowermanNMD
2K Followers 2K Following Senior Lecturer in Neuromuscular & Skeletal Disorders, Keele University. I research pathologies and new treatments in rare genetic disorders. Opinions my own.
SMA-Europe @SMAEurope
2K Followers 1K Following SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
Spinal Muscular Atrop.. @SMA_UK_
3K Followers 881 Following Supporting anyone living in the UK affected by Spinal Muscular Atrophy (SMA). On Twitter to raise awareness of the condition, our activity and related topics
SMA Benimle Yürü @smabenimleyuru
4K Followers 15 Following Biz bir yola çıktık, umuyoruz ki bu yolu hep beraber yürüyeceğiz...
Tom Gillingwater @GillingwaterLab
3K Followers 834 Following Professor of Anatomy, University of Edinburgh. FRSE, HonFAS, FRSB. Husband, Dad, owned by a Lakeland Terrier. My opinions (retweet≠endorsement)
Muscular Dystrophy As.. @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Ayça Şahin @MsGeneticist
8K Followers 223 Following Koç University | Molecular Biology and Genetics BSc🎓 and now doing PhD in Neuroscience | SMA warrior 💪 and doing SMA research 🧬 | Future geneticist
TREAT-NMD @TREAT_NMD
4K Followers 565 Following Advancing diagnosis, care and treatment for those living with neuromuscular diseases around the world
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
WMS @WorldMuscleSoc
2K Followers 663 Following We invite you to the 28th International Annual Congress of the World Muscle Society in 2023. This is the premier annual Congress on #neuromuscular disorders.
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
Brunhilde Wirth @BrunhildeWirth
629 Followers 169 Following Prof. of Human Genetics, Chair of the Inst. of Human Genetics, Univ. of Cologne, Gene Hunting, Dissecting disease mechanism, Neurogenetics, Modifying genes, SMA
RDI @rarediseasesint
5K Followers 699 Following Rare Diseases International - the global alliance of rare disease patients & families
Simon H Parson @NEAnatomist
1K Followers 71 Following Regius Professor of Anatomy, Aberdeen University: interests in education and spinal muscular atrophy. All views my own.
MDA Advocacy @MDA_Advocacy
2K Followers 316 Following MDA's Advocacy empowers the voice of the @MDAorg community & protects the interests of those we serve.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Alynn Kruse, LCGC @Alynn_Kruse
172 Followers 134 Following Genetic Counselor |SLC Alum| 🧬🌈 (she/her) Chronic illness Resistor 🥄🦓 #BLM opinions are my own
张宇杰 @fangyidageming
1 Followers 18 Following
Sportify-GlutenFree F.. @SportifyG
366 Followers 5K Following Working in the space - "Food Thy Medicine" via GFCFSF Innovations
rajnish kumar @rajnishkk506
0 Followers 86 Following
Joni @JRMcK913
2K Followers 2K Following Follow the call of the Disco Ball. 💙🇺🇸🍀🇨🇮Democrat, WOKE, BLM, LGBTQ, 🚫maga 🚫NO DM's #BlueCrew #stronglikeshane #CureSMA
꧁𝓔𝓷𝓮𝓼 �.. @HurMalik_005
815 Followers 1K Following
Elderly protective ge.. @jerseyszz
283 Followers 2K Following Elderly protective gear ，patient lift chair,patient transfer wheelchair ,
Michelle @MVarsoke
31 Followers 136 Following
Michael Tellier @Michael_Tellier
420 Followers 832 Following Group Leader and Lecturer @uniofleicester. Interested in transcription, RNA processing, and protein phosphorylation. Previously, postdoc @Dunn_School.
Mariwan H Sayda, PhD @MariwanSayda
234 Followers 416 Following Using mass spectrometry for disease diagnosis. @unad_research alumni.
Abdu El @AbduEL26383
34 Followers 881 Following
Annie Wilson @ajbwheels
6 Followers 16 Following
Jake Sande @sandeman2813
243 Followers 184 Following English Teacher ~ Alumni of the College of St. Scholastica ~ Former Thrower of Baseballs
MAAV @MARAV1992
0 Followers 30 Following
Joanne Ng 伍仲昕 @DrJo_Ng
650 Followers 650 Following UCL Gene therapy researcher developing new treatments for untreatable childhood brain disease.
Martha Palacio Z @mpalacio52
90 Followers 169 Following
Karen Wood @karenwo54892939
34 Followers 239 Following Long time Pharma industry involvement, special interest in oncology and future developments in personalised healthcare.
Cihan Taştan, PhD @CihanTastan_PhD
28K Followers 2K Following ¶Dr.Öğr.Üyesi @uskudaruni ¶Direktör @TRGENMER ¶CEO @hidnaco https://t.co/Qqf6upYo95 ¶ Genetik Tedavi Yarışması @RaDiChallenge https://t.co/k4y7WWVyZk ¶ @crisprvalley
Angelican Mary @AngelicanM51722
41 Followers 359 Following available for all kind of fun just to make my lovers happy 🌹🌹🌹❤️❤️
Layth Layth @LaythLayth38120
8 Followers 129 Following
Spinal Muscular Atrop.. @sma_me_deniz
201 Followers 250 Following Deniz was born on November 30, 2022 in Country of Turkey. He was diagnosed with SMA when he was 7 days old. He should go abroad for his treatment
UnclearRain🇻🇪 @UnclearRain
86 Followers 482 Following 16 - Rotting - I lub TSOL and King Crimson - Agnostic(seen god) - goated with all the sauce - Immortal Yukimura my glorious king
Sw2001 @Salahwattar01
51 Followers 234 Following
magdy khalifa @khalifa_magdy
392 Followers 321 Following د مجدى خليفة رئيس قسم الأطفال وحدبثى الولادة مستشفى بيلا ألمركزي
RV @RajanikanthVan1
60 Followers 209 Following
Matti Allen @Matti_D_Allen
102 Followers 490 Following Neuromuscular Medicine Fellow (2023-2024) at The Ohio State University; MD Queen's University; PhD The University of Western Ontario
gc-biotech @gc_biotech_ind
124 Followers 872 Following biotech startup investor contact : [email protected] #Biotech #Investor #CNRFund #Healthy #Who @Who
Nikhil Herur @nikhilherur
595 Followers 3K Following Public health always on my mind... constant learner by mistakes, experiences and exposure. My tweets are only my personal view.
yogita @yogita_trilok
1 Followers 25 Following
NUALA DEVLIN @NUALADEVLIN17
896 Followers 596 Following RN SeniorLecturer(Ed) SFHEA Programme Lead ANCCP. PhD Researcher #lovenursing @QUBSONM. https://t.co/ONx5QdV206
Labakumar Basumatary @LabakumarB45271
0 Followers 22 Following
Kathleen Soderstrom @kath3209
2 Followers 26 Following
Ajay Saroj @saroj_ajay29322
8 Followers 152 Following
Lyudmyla @lyudmylabernyk
3 Followers 55 Following
Ebrahim Hassan @Ebrahim15474086
0 Followers 95 Following
BHAWANI SINGH @BHAWANI16861382
0 Followers 7 Following
kyle @kyhansen6621
216 Followers 499 Following Electrical Engineer ⚡️UIC ALUM⚡️ FLL 💛 SAH 💙 The ships of theory are sunk on the seas of reality 🌊⛵️
Claire Munro @clairefmunro
447 Followers 2K Following Scottish South London pedant, yoga lady, piano-learner, member of the cancer club and devotee of NHS. Founder of @dovetail_health
COO Forum @COOForum
1K Followers 141 Following The COO Forum® is where busy operations executives have turned to for support for 20 years!
Melissa Smith, DPT @MilestoneDocMel
1K Followers 947 Following Developmental Peds & Neuromuscular | Doctor of Physical Therapy & Board Certified Peds | Peds Residency c/o ‘22 | She/her/hers | Views & tweets my own
Mark Baran @Waking_Self
0 Followers 26 Following
dr saima patel @psam1298
11 Followers 105 Following
Stories of SMA 0 @storiesofsma0
0 Followers 8 Following #sma0 #smatype0 #type0sma #spinalmuscularatrophytype0 #smaawareness
Cure SMA Foundation o.. @curesmaindia
2K Followers 618 Following Making Spinal Muscular Atrophy treatment and cure accessible and affordable to Indians.
SMA News Today @SMANewsToday
2K Followers 11 Following We are a free digital publication dedicated to sharing the latest news, research, and spinal muscular atrophy (SMA) patient perspectives.
SMA-Europe @SMAEurope
2K Followers 1K Following SMA Europe is a non-profit umbrella organisation of spinal muscular atrophy (SMA) patient organisations from across Europe. All together. One goal.
Spinal Muscular Atrop.. @SMA_UK_
3K Followers 881 Following Supporting anyone living in the UK affected by Spinal Muscular Atrophy (SMA). On Twitter to raise awareness of the condition, our activity and related topics
Muscular Dystrophy As.. @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Ayça Şahin @MsGeneticist
8K Followers 223 Following Koç University | Molecular Biology and Genetics BSc🎓 and now doing PhD in Neuroscience | SMA warrior 💪 and doing SMA research 🧬 | Future geneticist
Rare Disease Day @rarediseaseday
44K Followers 3K Following 29 February 2024 is Rare Disease Day. Raising awareness for patients, families and carers around the world that are affected by rare diseases. #RareDiseaseDay
NORD @RareDiseases
41K Followers 3K Following National Organization for Rare Disorders (#NORD) is the voice of the #RareDisease community. Official US sponsor of #RareDiseaseDay.
Beacon for Rare Disea.. @RareBeacon
12K Followers 11K Following Beacon is a UK-based charity that is building a united rare disease community with patient groups at its heart. Previously known as Findacure.
RDI @rarediseasesint
5K Followers 699 Following Rare Diseases International - the global alliance of rare disease patients & families
Simon H Parson @NEAnatomist
1K Followers 71 Following Regius Professor of Anatomy, Aberdeen University: interests in education and spinal muscular atrophy. All views my own.
RARE Revolution Magaz.. @RareRevolutionM
12K Followers 8K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
Muscular Dystrophy Ca.. @MD_Canada
5K Followers 1K Following MDC's mission is to help people with neuromuscular disorders live life on their own terms. #WalkRollMDC #MuscularDystrophy FR: @Action_Musclee
Fundación Fundame @FundameNet
3K Followers 3K Following La atrofia muscular espinal (AME) es una enfermedad grave que causa pérdida de fuerza progresiva. FUNDAME es la Fundación nacional de afectados #StopAME
Biogen @biogen
46K Followers 251 Following Official global newsroom account for Biogen, a leading biotech company pioneering innovative science since 1978. Community guidelines: https://t.co/56frPQHf74
Global Genes @GlobalGenes
30K Followers 6K Following Empowering the Next Generation Rare Disease Advocate Merged with RARE-X Dec. 2022. #CareAboutRare
Robert Muní Lofra @rmunil
637 Followers 981 Following PT PhD, Consultant Physiotherapist, Honorary Clinical Senior Lecturer at @jwmdrc John Walton Muscular Dystrophy Research Centre-Newcastle Upon Tyne
Madison (Kendall's Fu.. @princessmadiro
2K Followers 3K Following I LOVE Big Time Rush and Shawn Mendes! I LOVE Disney! I have Spinal Muscular Atrophy type 1 and I'm trying to raise awareness and funds for SMA!
Ionis @ionispharma
5K Followers 488 Following Delivering innovative medicines to patients where no others have proven effective or existed. See our community guidelines: https://t.co/HWH9JQR41u
dermRounds @dermatology
35K Followers 15K Following dermRounds Dermatology Network is a professional & social networking site for #dermatologists, skincare professionals, & anyone interested in #dermatology!
Your HHRS News @YourHHRSnews
63 Followers 124 Following New Jersey Health, Medical, Fitness, Nutrition News and Events
Mike Belcher @MikeBelcher4
2K Followers 291 Following Husband & Father of 3. Avid golfer. SVP, BD & Partnerships @ T-Mobile. Co-creator T-Mobile Tuesdays / Magenta Status.
My Gene Counsel @MyGeneCounsel
6K Followers 4K Following Digital genetic counseling reports for patients and providers that keep you up-to-date.
Rare Disease Advisor @RareDisease_Adv
5K Followers 1K Following Trusted knowledge base of practical information and resources focused on treating and diagnosing #RareDisease.
LifeWorks Wellness Ce.. @LifeWorksWC
137 Followers 33 Following One of the foremost alternative health clinics in the US. Established in Clearwater, FL, in 1997, and now renowned for its wide range of cutting-edge protocols.
Revvity for Diagnosti.. @RevvityDX
50 Followers 2 Following Expanding the boundaries of human potential through science. Learn more at https://t.co/AHnnVr9zyf
Sarah Wilson @auntierarer
1K Followers 1K Following Single mum to Sam and Alex who have type 2 spinal muscular atrophy 👩👦👦Twin mum 😺 cat mum ❤
Permobil USA @PermobilUSA
3K Followers 80 Following Permobil is the world leader in developing and manufacturing powered wheelchairs.
Performance Home Medi.. @PerformanceHom1
30 Followers 66 Following We specialize in Sleep Therapy, Home Oxygen Equipment, Respiratory Ventilator Services, and Continuous Glucose Monitoring (CGM).
Permobil Foundation @PermobilCares
589 Followers 82 Following The Permobil Foundation is dedicated to enhancing the quality of life by empowering strength and independence through community support. #PermobilCares
Neotech Products @neotechproducts
2K Followers 2K Following Innovative Neonatal & Pediatric Medical Device Manufacturer Helping Clinicians World-Wide | RT & Follow ≠ Endorsement
MobilityWorks @mobilityworks
1K Followers 266 Following MobilityWorks is dedicated to satisfying the transportation needs of mobility-restricted individuals. #bethere
Ultragenyx @ultragenyx
697 Followers 41 Following At Ultragenyx, our vision is to lead the future of rare disease medicine. Community Guidelines at: https://t.co/SmbtrpYkpS
DonorDrive @DonorDrive
17K Followers 4K Following DonorDrive is the fundraising platform that turns everyday people into powerful fundraisers for your cause.
Sibs @Sibs_uk
10K Followers 3K Following UK charity for brothers and sisters of disabled children and adults.
World Health Organiza.. @WHO
12.3M Followers 2K Following We are the #UnitedNations’ health agency - #HealthForAll. ▶️ Always check our latest tweets on #COVID19 for updated advice/information.
Hannah Shorrock @DrHKShorrock
299 Followers 395 Following Postdoctoral researcher at the RNA Institute - University at Albany. European living and working in the USA 🇪🇺
Reilly Allison, PhD @reillylallison
47 Followers 84 Following Researching glial cells and neurodegeneration. Happy to be here!
Neuromuscular Disease.. @NMD4Canada
1K Followers 504 Following Canadian network connecting clinicians, scientists, patients, and industry to improve neuromuscular disease outcomes.
Chicago Cubs @Cubs
2.6M Followers 1K Following The official Twitter home of the Chicago Cubs. #YouHaveToSeeIt
rareLife solutions @rarelifetalks
707 Followers 548 Following building custom communities with integrated knowledge libraries
INFORM RARE @INFORMRARE
274 Followers 101 Following INFORM RARE is a Canadian research network that provides evidence to improve outcomes and health care for children with rare genetic diseases.
Gene Therapy @GeneTherapy_SN
3K Followers 902 Following Scientific journal providing peer-reviewed research and commentaries on gene and cell therapies
We Carry Kevan @WeCarryKevan
456 Followers 31 Following Believing in the inherent value of all people, we are redefining accessibility as a cooperative effort.
Beyond the Diagnosis @BeyondtheDx
9K Followers 5K Following Beyond the Diagnosis unites art and science to inspire research and innovation of treatments for people living with rare and neglected diseases.
Journal of Neuromuscu.. @journal_nd
2K Followers 600 Following JND | Dedicated to expediting our understanding & improving treatments of neuromuscular diseases | Editors: Carsten G. Bönnemann & Hanns Lochmüller
Scholar Rock @ScholarRock
517 Followers 113 Following Biopharma leader in the biology of the #TGFbeta superfamily of protein growth factors. Community Guidelines: https://t.co/VU9mLWhf59
SanfordCoRDS @SanfordCoRDS
4K Followers 2K Following CoRDS is the world's only cost-free, international #RareDisease #PatientRegistry - Enroll today and share your #data! https://t.co/DOIhiNxbbF
Rare Disease Report @RareDR
16K Followers 1K Following Breaking news, patient stories & FDA updates within the rare disease community. Listen to our podcast: https://t.co/xUkFDfCDUV, hosted by @GiulianaGrossi
Derby Chukwudi @MissNJUSA
3K Followers 290 Following Miss New Jersey USA 2023 Inquiries: [email protected] Instagram: @missnjusa @derbychukwudi__
StoryMD @StoryMDHealth
3K Followers 1K Following StoryMD weaves your medical data into a contextualized, all-encompassing story that empowers you to track, understand, and reclaim control of your health.
Powerchair Football M.. @PowerchairMx
2K Followers 5K Following Cuenta Oficial de Powerchair Football México A.C. / Official Account of Powerchair Football Mexico
Wahooie @Wahooooooooooie
590 Followers 864 Following Dad, Husband, Wastelander, Builder, VP, Running, awful twitch streamer, Baseball, Football, Cleveland. https://t.co/FESiVIMvcw
Lucia Chehade @luciachehade
36 Followers 44 Following MD/PhD Candidate @OttawaHospital studying Spinal Muscular Atrophy in the Kothary Lab. (She/Her)
Biohaven @biohaven
2K Followers 751 Following Biohaven is a modern pharmaceutical company that is guided by science and inspired to change the lives of people with unmet medical needs.
Anna Kerr @DrAnnaKerr
264 Followers 415 Following PhD | Healthcare Communication | Medical Education | Rare Disorders | she/her | Ohio University, University of Cincinnati, and University of Kentucky Alum
Roche @Roche
246K Followers 1K Following We advance science so that we all have more time with the people we love. Read our community guidelines: https://t.co/7k1HdbdrYL
Arkansas Children's @archildrens
18K Followers 1K Following At Arkansas Children's, we champion children by making them better today and healthier tomorrow.
Lurie Children's @LurieChildrens
24K Followers 3K Following Ann & Robert H. Lurie Children's Hospital of Chicago is ranked nationally in all 10 pediatric specialities by U.S. News & World Report. We Tweet for the kids.
Asuragen @Asuragen
883 Followers 287 Following Global diagnostic products company providing industry leading solutions to drive better patient management in #oncology & #geneticdisease. #moleculardiagnostics
Alight Solutions @AlightSolutions
7K Followers 186 Following Alight Inc. (NYSE: ALIT) is a leading cloud-based human capital technology and services provider
UKSMArec @UKSMArec
127 Followers 59 Following UK SMA Research Conference, organised by a network of ECRs working on and related to SMA, September 10-11th, 1-5pm BST #UKSMAREC2020
Who wants good news? Now all 50 US states screen babies for #SpinalMuscularAtrophy at birth. With several treatment options available the babies can get treatment before they show symptoms. This is a life changer. Thanks to the SMA families and @CureSMA for their leadership!
Need it! 🙏
In a recent video, U.S. Transportation Secretary Pete Buttigieg highlighted the SMA community’s commitment to advocating for accessible air travel. Watch the video below and check out our action center to see how you can help make air travel more accessible to those with SMA
I don't think I had seen this before. Pete recorded this video a few weeks ago 👇
For Emma ❤️ @CureSMA #MyCauseMyCleats
Today we reached our $1000 fundraising goal for @CureSMA. I would like to give a special shout-out to @HistoryHeaders for this video promotion. Thank you all so much! youtu.be/RxB3BmKLBks?si…
Proud #supervisor moment @UniofHerts! @toni24r wishing you all the best of luck in your new adventures! Don't forget our #SMA community and the fun you had with #Celegans! Stay #passionate and keep in touch! @UniofHertslms @UHertsResearch @SMAEurope @SMA_UK_ @CureSMA @TreatSMA
WE ARE OVER HALFWAY! We have raised $649 for @CureSMA! Please donate, retweet, share, and support us so we can finish the job for Jack! walk-curesma.donordrive.com/index.cfm?fuse…
More than 350 organizations are coming together to support the #RallyMedRes, Sept 13-14. We thank our partners: @behcets_usa @alzfdn @CureSMA @fredhutch @InspireIsHealth @MSUMD @SEIU1199_NE University of Pennsylvania Science Policy Group @permedcoalition @theABTA @UsAgainstAlz
1 in 50 people carry the gene for Spinal Muscular Atrophy. If both parents are carriers, their child could be born with this serious neurodegenerative disease. Considering becoming pregnant? Reach out to us today for parental genetic testing: bassett.org/services/ob-gy… @CureSMA
We have made it to $749 for @CureSMA! We are so close to $1000! walk-curesma.donordrive.com/index.cfm?fuse…
August is #SMAMonth #SpinalMuscularAtrophy month. For more information: ninds.nih.gov curesma.org/sma-awareness-… #CureSMA #SMA #dysphagia #pediatricfeedingandswallowing #feedingdisorders #swallowingdisorders @CureSMA
“It’s not only for my family, it’s for the SMA community and everyone who needs access to medication.” How a grandfather picked up his bike to fight for his grandson and #SpinalMuscularAtrophy. @CureSMA @INFORMRARE healthing.ca/diseases-and-c…
SMA is treatable! Had a lovely interactive session with faculty and residents of CMC and the College of Physiotherapy. The talks were shared between the Departments of Pediatrics and Neurology. @CureSMA @CureSMAindia @Roche @NovartisIndia @biogen @pfizer @CMCLudhiana @SMAEurope
One of the joys of public service are those days when you are blessed with an opportunity to help someone. Today I learned of a 4-month old baby, Perrin, whose life was changed because of a resolution I passed several years ago to add SMA testing to the newborn panel. If it is…
We’re proud to support Cure SMA and @SMAEurope, who are on a mission to create a better world for people living with this #raredisease, and ensure those impacted are empowered to lead independent, successful, and fulfilling lives. Thank you for all that you do! #SMAAwarenessMonth
This #SMAAwareness Month, Breakthroughs Begin with YOU! Throughout August, we encourage you to spread awareness, participate in an event, and envision the next breakthrough for our #SMACommunity. Find out more about SMA Awareness Month today⬇️ curesma.org/sma-awareness-…
Time to learn about the paediatric patients' experience in cross-border #clinicaltrials in Europe + their preferences in the case that this opportunity arises. Questionnaire currently available in: ▶ English ▶ Spanish ▶ Italian ▶ French Link: lnkd.in/dg5aeM3E
August is #SMAAwarenessMonth 🧬 #SpinalMuscularAtrophy is a genetic and progressive neurodegenerative disease that affects motor nerve cells in the #spinalcord, impacting muscles used for daily activities. Check out @CureSMA for more information and resources 💜
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