FulcrumTx @FulcrumTx
Clinical-stage biopharma focused on improving the lives of patients with genetic diseases in areas of high unmet need. Guidelines: https://t.co/gPiypRVuKZ fulcrumtx.com Cambridge, MA Joined October 2015-
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Last week, we were honored to join SCD warriors, advocates, legislators, and the Sickle Cell Association of Houston at their annual Houston Sickle Cell Symposium. There were panels ranging from access to SCD treatments in Texas to the importance of SCD patients' mental health.
Fulcrum was honored to be recognized for our sponsorship & partnership fighting SCD in Zambia at the recent Sickle Cell Community Consortium’s 8th Annual SCD Leadership Summit. Sub-Saharan African countries such as Zambia have the highest sickle cell disease burden in the world.
At the recent FSHD360 meeting in Calgary, Canada, a group of expert clinicians, allied professionals, & industry met to discuss the latest science, patient education, & pipeline developments focused on advancing care to make a difference in the lives of patients with FSHD.
At the recent Darling Dash in Houston, some of our FULcrew ran the 1K/5K/10K while others helped manage the Fulcrum Therapeutics booth. The Darling Dash is a race to end Sickle Cell Trait deaths. We were honored to attend and support the efforts of the @AsOneFoundation.
We are excited to welcome Pat Horn to the #FULcrew team as our new Chief Medical Officer! With his leadership and expertise, we’re another step closer to helping patients. Join us in welcoming Pat to the team! ow.ly/ATHX50QVzgG #ChiefMedicalOfficer #HealthcareLeadership
As Rare Disease Month comes to a close, we are honored to share Kadeem’s story, a remarkable Sickle Cell Warrior and advocate who we’ve had the pleasure of knowing since 2018. We were fortunate to have Kadeem speak with our Fulcrum team today as a lead up to Rare Disease Day.
We know our people are RARE because they choose to work on rare diseases. Today, Brooke explains why she is passionate about the work happening at Fulcrum to improve the lives of patients and their loved ones. #WeAreRare #FULcrew #raredisease #RDD
We had a blast at our recent All Hands Meeting with the FULcrew. We played an Island Survival game, focused on our 2024 goals, heard an amazing patient journey, and had a surprise celebrity guest 😉. Thank you to the FULcrew for giving 110% to make this day special.
In honor of Rare Disease Month, we highlight our mission to transform the lives of people living with rare neuromuscular and hematologic conditions. Join us and #LightUpForRare and #ShowYourStripes as we bring hope and awareness to rare diseases like SCD and FSHD.
The start of a new year is a time to reflect on past accomplishments and future ambitions. This recently published article in the Clinical Leader shares how the @FSHDSociety-Fulcrum Therapeutics partnership began, how it has evolved, and where we hope to go in the future.
At the 65th ASH Annual Conference in San Diego, we were thrilled to share information on our Pioneer study and Poceridir’s role as a potential HbF inducer. We connected with many colleagues and organizations actively working to improve the lives of people living with SCD.
Nola Juste, Danielle Branch, MBA, Christy Copeland, and Mel Hayes joined the Fulcrum table at the 2nd Annual @GASickleCell Year-End Gala. SCFG’s event reviewed the year’s successes throughout the state and celebrated the lives of those living with SCD. #scdawareness #scd
Tomorrow, Thursday, November 30th we’ll be at the Piper Sandler 35th Annual Healthcare Conference fireside chat at 11 am ET. Access the live webcast ow.ly/FCqs50Q9zpW or watch a replay following the event, and learn more via ow.ly/pmpc50Q9zpX #PiperHealthcare $FULC
Fulcrum’s Mel Hayes recently attended @FSHDSociety's Project Mercury special session in Banff, Canada, where members of an exploratory group of the Global Task Force met to discuss and develop plans on how to best ensure that promising therapies reach the global FSHD community.
We recently had the opportunity to interview Michele, a dedicated FSHD advocacy member. When asked about advice for newly diagnosed people with FSHD, Michele emphasized the importance of connecting with an advocacy group. #voicesofrare #projectmercury #fshdawareness #fshd
We’re looking forward to participating in Stifel Healthcare Conference fireside chat today, Tuesday, November 14 at 3:00pm ET. Access the live webcast wsw.com/webcast/stifel… or watch a replay following the event, and learn more via ir.fulcrumtx.com/events-and-pre… #$FULC
Cold and flu season 2023 is officially here, and those living with FSHD must proactively safeguard themselves due to their added vulnerabilities. Our friends at the @FSHDSociety shared fall vaccine recommendations by @dr_kkjetelina to guard against the most common viruses.
The FULcrew celebrating Halloween in the office! Check out this year's creative costumes, pumpkins and fun. We hope everyone had as much fun as we did 🎃👻
Today, as part of our #VoicesofRare project, we highlight the incredible journey of Kevin, a courageous individual who has not only lived with sickle cell disease but has also become a beacon of hope for those facing this challenging condition. #SCDawareness #fulcrumtherapeutics
Tricia Gooljarsingh & William Engelman, MD, represented Fulcrum at the 18th Annual Sickle Cell & Thalassaemia Conference (ASCAT). At the conference, @TheLancet Haematology Commission's recommendation for SCD was released, setting a path to safe & accessible cures by 2040. #SCD
FSHD Society @FSHDSociety
2K Followers 786 Following World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHDFSHD News @mpcfshd
626 Followers 186 Following FSHD NEWS over the world. Research and patients networks #FSHD #FacioScapuloHumeral # #WorldFSHDDay = June 20thHelen Walker @helenmwalker44
657 Followers 1K Following UK Myotonic Dystrophy and UK FSHD Patient Registry Manager and Curator (she/her) *Views my own* #neuromuscular #PatientRegistries #dm1 #dm2 #fshd #RareDiseaseDyne Therapeutics @Dyne_tx
1K Followers 323 Following Advancing life-transforming therapies for serious muscle diseases. Community guidelines: https://t.co/0XslT2HWqgFSHD España @fshd_spain
515 Followers 454 Following Asociación Afectados Distrofia Muscular facioescapulohumeral (FSHD) España. Declarada de utilidad pública. #SalvaNuestraSonrisa #fshd #EnfermedadesRarasMatthew S. Alexander @Matt_Muscle_Guy
5K Followers 4K Following Geneticist, Skeletal Muscle, Drug development, Gene therapies. Non-coding RNA, and Zebrafish Aficionado. All tweets are my own. Instagram @thealexanderlabDumonceaux lab @MyologyLab
244 Followers 107 Following Our group focuses on the development of therapeutic solutions for muscle diseases and FSHD in particular.Veronica Hood @Science_Hood
759 Followers 1K Following Scientific Director at the Dravet Syndrome Foundation; PhD from CU-AMC. Views and opinions are my own. Science & advocacy with a splash of puppies and TheOfficeEveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.Carrino Foundation @CarrinoFSHD
601 Followers 179 Following The Chris Carrino Foundation for FSHD, a 501(c)(3) dedicated to curing #FSHD and inspiring others thru @ChrisCarrino.rich treonze 🦁 @richtreonze
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0 Followers 395 FollowingSaeed Anwar @SaeedAnuj
173 Followers 597 Following Bengali sci-fi writer | Trynna damage my head permanently for genetics & musculoskeletal/neuromuscular disorders @UAlberta | Sometimes overcaffeinated | 🇧🇩Content Ed Net @ContentEdNet
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3 Followers 15 FollowingBraden Parker @bradencparker
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177 Followers 997 Following Left for awhile. This is just to retweet things I want to save/re-read/enjoy/share later.jpou @jpoufeb
49 Followers 254 Following Electrical/Software Engineer | Living with FSHD | Eternity is in love with the creations of time… 🇵🇷Satoasea @satoasea39862
45 Followers 2K FollowingRyan Flinn @RS_Flinn
4K Followers 5K Following Comms consultant with 20+ years of experience in PR & journalism. Formerly at Resilience, J&J, Bloomberg. Bylines w/NYT, SFGate, AJMC.Watson Genomics @WatsonGenomics
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0 Followers 24 FollowingMuhammad Nurudeen @babsdegentle
542 Followers 2K Following PhD @Salford;Research fellow@KWASU Interests - Anatomy/Cell & Mol. Biology/Genomics of Blood Cancer & SCD) Advocate @scaf-ng @haima_health Genetic counsellorTracy Blackwell @tlb_tracy
50 Followers 208 Following Healthcare creative strategist. Wife and mom. Passionate about helping homeless families. BE THE CHANGE...Fofi 🇪🇸 @ajpuga
93 Followers 246 FollowingBreathe with MD, Inc. @BreathewithMD
897 Followers 3K Following We are a 501(c)(3) nonprofit public charity raising awareness and educating about breathing muscle weakness in Neuromuscular Disease. Our focus is NIV.Scott Sawa @sawa_scott
10 Followers 166 FollowingAsifa Lalji ❤️�.. @Asifa604
2K Followers 2K Following Live. Learn. Adapt. Repeat. Loves randomness even though nothing is. *Do good because you can*Charl Cilliers @CharlCilliers11
11 Followers 39 FollowingLucyAveline @AvelineLuc61322
83 Followers 2K FollowingGuoqiang Yi @GuoqiangYi
96 Followers 3K FollowingIFMRS @IFMRSGlobal
825 Followers 405 Following We aim to advance MSK research globally in order to prevent and treat MSK diseases through sharing resources, raising public awareness, and providing education.Eric T Wang @EricTWang
1K Followers 795 FollowingProject Mercury @ProjectMercury_
22 Followers 18 Following The global initiative to speed the delivery of therapies for FSHDDaniel Sternfeld @drsternfeld
25 Followers 173 FollowingMark Christman @FSHDSocietyWPA
15 Followers 42 Following FSHD Society, Western PA Chapter Director. Ensuring no one has to face Facioscapulohumeral Muscular Dystrophy (FSHD) alone.StoriTel @bbStoriTel
52 Followers 236 Following StoriTel helps bring culture to life for biotech companies. #biotechusa #humanresources #marketingtips #cambridgemassFSHD Japan @fshd_japan
35 Followers 37 Following FSHD(顔面肩甲上腕型筋ジストロフィー)の患者団体。FSHDに関する情報を発信しています。日本筋ジストロフィー協会FSHD分科会が運営しています。Jairo Pardey @jairopardey
8 Followers 167 Following Biotech | Pharmaceuticals | Strategy | Growth & Transformation | Early innovationGiulio Gadaleta @GiulioGada69274
5 Followers 43 FollowingGiada Mele @_giadamele
15 Followers 76 FollowingFrederic Thys @fredthys
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87 Followers 178 FollowingMatt Rao @MadeWarReady87
829 Followers 5K Following Maneuvering through life dealing with it as it unfolds!!!DoaaSalman @Drdoaasalman
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24 Followers 94 FollowingRozet Remedies @rozetremedies
99 Followers 243 FollowingFSHD Society @FSHDSociety
2K Followers 786 Following World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHDAdam Feuerstein ✡�.. @adamfeuerstein
114K Followers 750 Following Reporter @statnews. The Harry Kane of biotech. Dog ❤️er. Polk Award winner. #COYS. Said one analyst: The likes of Adam Feuerstein attack viciously.Matthew Herper @matthewherper
111K Followers 3K Following Writing and events at STAT. This is biology's century; Every data point has a face. ‘21 Polk Award. Mastodon: @[email protected]FierceBiotech @FierceBiotech
101K Followers 649 Following The dominant B2B news brand for biotech. Delivering news, revealing insights straight to your inbox.EveryLife Foundation @EveryLifeOrg
7K Followers 3K Following Nonprofit org. dedicated to advancing the development of treatment & diagnostic opportunities for rare disease patients through science-driven public policy.Muscular Dystrophy UK @MDUK_News
18K Followers 3K Following We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.Carrino Foundation @CarrinoFSHD
601 Followers 179 Following The Chris Carrino Foundation for FSHD, a 501(c)(3) dedicated to curing #FSHD and inspiring others thru @ChrisCarrino.Sickle Cell Consortiu.. @SCCConsortium
4K Followers 907 Following a collective of community-based organizations, patient-advocates, community partners and research/medical advisers.Sick Cells @SickCells
3K Followers 661 Following National Advocacy Organization, Official Nonprofit.Tristan Lee @DiVoStar615
355 Followers 2K Following I'm Tristan aka DiVo! I am a Sickle Cell Warrior & advocate for Sickle Cell Disease. As a Fashion designer I created a clothing line for Sickle Cell Awareness.Sickle Cell Fund @WEPSCF
1K Followers 852 Following To support sickle cell awareness, education, state-of-the-art treatment and research, and to bring hope to families affected by this devastating diseaseSickle Cell Mobile @SCDAAMobile
2K Followers 93 Following Sickle Cell Disease Association of America - Mobile Chapter. Our mission: Empowerment through knowledge, comprehensive programs, and services.Sickle Cell Society @SickleCellUK
11K Followers 2K Following The Sickle Cell Society supports and represents people affected by sickle cell disorder to improve their overall quality of life.SickleCellMN @SickleCellMN
2K Followers 2K Following Improving quality of life for individuals and communities affected by sickle cell disease. *We do not monitor this inbox.Sickle Cell 101 @sicklecell101
5K Followers 208 Following Non-profit organization specializing in sickle cell education through the use of social media. The Sickle Cell Podcast: https://t.co/fnVW8O6VCMNext Step @nextstepfund
905 Followers 776 Following 501(c)(3) - We offer free community, music and mentorship programs for young people, ages 16-29, living with cancer, HIV and rare genetic disorders.Owoeye David @davoshalom
770 Followers 2K Following God Lover. Infection Prevention & Control Specialist. Sickle Cell Warrior & Advocate. Author. https://t.co/9z1lvAfJYh…Rae Blaylark @RaeBlaylark
353 Followers 1K Following God-fearing woman, mother & fierce #SickleCell advocate. Founder of @sicklecellmn. Tweets are my own & do not represent SCFMN, our clients or my employer. #ADOSRDLA @RareAdvocates
6K Followers 3K Following A program of the EveryLife Foundation committed to growing the patient advocacy community and working collaboratively, thereby amplifying the patient voice!The Rare Disease Comp.. @RareCoalition
469 Followers 351 Following We are a coalition of life science companies committed to discovering, developing & delivering rare disease treatments for the patients we serve. #OneRareVoiceBiocom California @BiocomCA
8K Followers 2K Following We are California’s leading advocate for life sciences.Third Rock Ventures @ThirdRockV
6K Followers 203 FollowingRDDS @RareDiseaseSymp
58 Followers 88 Following The #RareDisease Desert Symposium #RDDS is a conference focused on the pre-clinical discovery of new therapeutics to treat rare diseases. #DrugDiscoveryDavid Fajgenbaum, MD @DavidFajgenbaum
11K Followers 3K Following @Penn physician-scientist-patient who 'cured thyself' | Advancing @CureCastleman + @EveryCure | National Bestseller #ChasingMyCure https://t.co/26OS13etrFEastern MA Fragile X @FragileXMA
398 Followers 304 Following Support group for families in Massachusetts who are affected by #FragileX.Fragile X Australia @FragileXAus
1K Followers 512 Following Connections, information, support & advocacy for the Fragile X community - those living with Fragile X syndrome or Fragile X Premutation-Associated Conditions.Michael Tozer @MichaelTozer
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165K Followers 5K Following Reporting from the frontiers of health & medicine. Sign up for any of our 10 free newsletters here: https://t.co/CBx3GZBv31Shirley S. Wang @ShirleyWang
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4.4M Followers 834 Following Awesome discoveries. Expert insights. Science that shapes the world.Blessed, Thankful, Grateful, & Full of Gratitude. Thank-you @FulcrumTx for allowing me to takeover your social media all month. The Sickle Cell Awareness representation has been everything.#sicklecellAwareness #sicklecell #life #ThankfulThursday #GlamFam #blessed
Sickle Cell Disease in years past has been labeled "The forgotten Disease." However, I feel that's changed in recent years. Read more here: bit.ly/43TSA60 - @DiVoStar615 #attitudeofgratitude #SickleCellWarrior #Life #ThankfulThursday
We’re so proud to partner with @FSHDSociety and others to launch Project Mercury, the global initiative to speed the delivery of therapies for FSHD. bit.ly/3Phq4qI
#Rarediseases, like FSHD, face unique challenges that often impede the delivery of new treatments. We applaud your work and are cheering you on as Project Mercury seeks to remove barriers to patient access of approved therapies for FSHD. 👏 @FSHDSociety @FulcrumTx #OneRareVoice
We’re so proud to partner with @FSHDSociety and others to launch Project Mercury, the global initiative to speed the delivery of therapies for FSHD. bit.ly/3Phq4qI
@FulcrumTx @kendallsqorch Thank you so much for joining us!
June 2023 something DiVo is happening. Be sure to follow @FulcrumTx to get a glimpse into my world & experience of living WELL w/ Sickle Cell Disease. #sicklecellawareness #livingwithsicklecell #fulcrum #goodmorningamerica #gma #TheView #oprahwinfrey #ownnetwork
We are excited to announce that Tristan Lee - an SCD advocate & warrior and Fulcrum Advisory Board member - will be partnering with us for a social media takeover through June! Follow along to get a glimpse into the world of @DiVoStar615 #sicklecellawareness #livingwithsicklecell
Thank you @FulcrumTx for your support!
Only 10 more days until the @FSHDSociety's 2020 New England Virtual Walk & Roll to Cure #FSHD! We are excited to participate in this year's event by committing to walk 100,000 steps. Learn more about it and register here: ow.ly/SNGs50BfKxu
@FulcrumTx So grateful (and excited!) to have you as a partner. That was a special day for sure.
Listen as @rahulc and @aloktayi speak with Robert Gould and Owen Wallace from @FulcrumTx as they discuss venture creation, partnerships with big pharma, and Fulcrum’s work on #genetic disorders in #rarediseases. Great advice #biotech and #pharma bit.ly/2SxZStN
@FulcrumTx @ThirdRockV @AcceleronPharma Congratulations!
@FulcrumTx The Zwickau's are an inspiration to us all! #CureFSHD
@FulcrumTx We loved having you! And thanks for bringing a big crew! #gratitude 2019 will be bigger and better...and keep training! @FulcrumTx @bjork5 @BiotechGames #FragileX #biotechgames #biotech 🏆🏆🏆
Thanks for sharing, @AnthonyAccorsi! And thanks to @FulcrumTx for participating in #WorldFSHDDay! #CureFSHD x.com/anthonyaccorsi…
What a fun day at the #Fraxa Biotech Games! Here we are, clearly beating @FulcrumTx at ladder golf. OK, maybe not. But it was fun anyway! (And we got awesome T-shirts.) fraxa.org/biotech-games/
So excited to kick off the @FRAXAresearch Biotech Games at @MIT! It’s been so fun helping plan this awesome events w/ our friends at @Shireplc @FulcrumTx @Safety_Partners @stratacuity. All funds go to #fragilex research! @MassBio
Another photo from the @FRAXAresearch games yesterday... @rjeselonis takes aim! Thanks to all who participated in raising money for a worthy cause, including @AgiosPharma @FulcrumTx @Rheosrx @PlateletBioGen @CueBiopharma @aldevron and many more.
Excited to see @FulcrumTx raise $80M as they continue to advance their pipeline for #FSHD and other rare diseases. Series B led by @ForesiteCapital. Congrats to the team! #trvportco bit.ly/2MPKpEw
#TBT throwback Thursday to a wonderful day at @FulcrumTx headquarters last year when Fulcrum employees hosted a family day for #fragilex families. It was a great experience for everyone @PierceFragileX @Slunger30 @bjork5 #gratitude #research #partnership 💙
So well deserved Kelly!
Congratulations to our own Kelly Moynihan on being named a 2018 40 Under 40 Honoree by the BBJ! bit.ly/2wpacsj
looking forward to working with you again Steve!