Carrino Foundation @CarrinoFSHD
The Chris Carrino Foundation for FSHD, a 501(c)(3) dedicated to curing #FSHD and inspiring others thru @ChrisCarrino. linktr.ee/CarrinoFoundat… NY/NJ USA Joined June 2011-
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A Brooklyn basketball legend joins the @VoiceOfTheNets Podcast. Coming soon. #Brooklyn #Pridemobility #Jazzyair2
My condition #FSHD is considered a rare disease. Today is #RareDiseaseDay2024 Thank you for all the support for @CarrinoFSHD #jazzycarbon #pridemobility
The Chris Carrino Foundation for FSHD | Donations #givingtuesday2023 chriscarrinofoundation.org/donations-2-2/
On #GivingTuesday2023 please consider a gift to the Chris Carrino Foundation for FSHD. Help us continue to fund critical research to treat and cure #FSHD. chriscarrinofoundation.org/donations-2-2/
NFL, NBA Announcer Trusts Carbon When Traveling the Country | Pride Mobility Experience @pridemobility experience.pridemobility.com/profiles-in-mo…
We are grateful that @GoodToday has chosen to spotlight FSHD as there cause today. And we are honored that they chose the Carrino Foundation as one of the organizations to support. Thank you to those who nominated us. Let’s keep fighting for those with #FSHD
We are grateful that @GoodToday has chosen to spotlight FSHD as there cause today. And we are honored that they chose the Carrino Foundation as one of the organizations to support. Thank you to those who nominated us. Let’s keep fighting for those with #FSHD
Today is World FSHD Day. A day to bring awareness and celebrate progress towards a treatment and cure. The Carrino Foundation is dedicated to the #FSHD community, supporting crucial research. The link below highlights where your donations go. chriscarrinofoundation.org/your-donations…
Brooklyn Meets Belgium. Eliot Krstic, a young man living with #FSHD, and his family visited NYC and met with Chris and Laura Carrino for a tour of @barclayscenter. An inspiring meeting for everyone involved. instagram.com/reel/Csb71xhut…
An inspiring conversation with @BrooklynNets announcer @ChrisCarrino who is using his platform to raise awareness for facioscapulohumeral muscular dystrophy (FSHD), a condition he was diagnosed with, but doesn’t let it stop him from doing what he loves. radio.foxnews.com/2023/04/24/one…
In sports and life, there comes a time when you must pivot. Play-By-Play Sports Announcer for the Brooklyn Nets, @ChrisCarrino sits down with @JaniceDean to share his journey living with facioscapulohumeral muscular dystrophy (FSHD). buff.ly/3vd3ep8
I am thrilled to announce that our paper on WDR5 regulating DUX4 is finally out! This not represent only the result of a great teamwork but also a step forward on understanding FSHD mechanisms!!! #teamwork #FSHD #NAR_open lnkd.in/dtCJs2tS
The only way to fight FSHD is research and the constant support of foundations! Give your support to @FSHDSociety @FSHD_China @CarrinoFSHD @FSHD @FSHD_spain
"Sometimes you have a plan to get somewhere – and then something will happen that makes you have to drastically change that plan." Muscular Dystrophy isn't slowing @ChrisCarrino's pursuit of new sports media opportunities. 📝 @derekfutterman buff.ly/3Rz7fyp
Brooklyn Nets' radio announcer Chris Carrino honored by NBA 7ny.tv/3Yl5IhG
Thanks to @fox5ny and @JenXperience for a wonderful piece on last night’s news spotlighting @ChrisCarrino and his Values of the Game Award from the @NBA mms.tveyes.com/MediaCenterPla…
NBA honors Chris Carrino with ‘Values of the Game’ award - NetsDaily netsdaily.com/2023/1/10/2354…
I was tricked into showing up, completely shocked by the announcement, and incredibly honored to receive this recognition from the NBA. My sincere appreciation to the @BrooklynNets for nominating me. I am so touched by the outpouring of support. Thank you!
I was tricked into showing up, completely shocked by the announcement, and incredibly honored to receive this recognition from the NBA. My sincere appreciation to the @BrooklynNets for nominating me. I am so touched by the outpouring of support. Thank you!
Congratulations to our @ChrisCarrino on being honored with the #NBA “Values of the Game” award for his career and work with @CarrinoFSHD
On this Giving Tuesday 2022 we ask you to please continue to support FSHD research and to help improve the lives of those touched by #FSHD app.donorview.com/WGAOy
“We will all find ourselves neck deep in mud someday. That is the time to sing loudly, to smile broadly, to lift up those around you and give hope that tomorrow will be a better day” - Admiral William McRaven (from the book “Make Your Bed” Please donate today (link in bio)
Chris Carrino @ChrisCarrino
5K Followers 512 Following Radio voice of the Brooklyn Nets. NFL on @CompassMediaNet. NCAA's for @Westwood1sports. Working to cure #FSHD with @CarrinoFSHD. Contact: @ifmanagement
FSHD News @mpcfshd
626 Followers 186 Following FSHD NEWS over the world. Research and patients networks #FSHD #FacioScapuloHumeral # #WorldFSHDDay = June 20th
FSHD Society @FSHDSociety
2K Followers 786 Following World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD
Nets Radio @BKNetsRadio
2K Followers 180 Following Official audio and info from @BrooklynNets radio with @ChrisCarrino and @TimCapstraw heard on WFAN (660AM/101.9FM) stream on the #Nets app or https://t.co/bRhcaMK8MB
Tim Capstraw @TimCapstraw
3K Followers 1K Following Brooklyn Nets Radio Analyst, NCAA TV Analyst, NBA TV, Olympic TV Analyst, Basketball Camps, Banquet Speaker and MC
Avidity Biosciences, .. @aviditybio
542 Followers 78 Following Avidity Biosciences is pioneering a new class of oligonucleotide-based therapies to address the unmet needs of the rare disease community.
Helen Walker @helenmwalker44
657 Followers 1K Following UK Myotonic Dystrophy and UK FSHD Patient Registry Manager and Curator (she/her) *Views my own* #neuromuscular #PatientRegistries #dm1 #dm2 #fshd #RareDisease
Anthony Puccio @APOOCH
27K Followers 981 Following views are mine & do not reflect my employers | content @meta | site manager @netsdaily |
Dawn M Risueño 🇵�.. @Jeannie2321
1K Followers 2K Following Yanks,Nets,Jets,Liberty,Rangers!Brooklynn! grandma to Paige,Isabella,Kaiden,Chloe,Cameron,Zoey,Grayson! #roadtrips #RepBX #NetsWorld #TakeFlight #LIGHTITUPNYL
Dyne Therapeutics @Dyne_tx
1K Followers 323 Following Advancing life-transforming therapies for serious muscle diseases. Community guidelines: https://t.co/0XslT2HWqg
Spencer S:Musican,NYY.. @Muzixndmd
3K Followers 2K Following Husband,father musician,songwriter 25YearNYYSeasonTicketholder Lids2020 UltimateHatCollection Finalist #UnitedByCaps NYY,Nets,Jets,Rutgers,ABL
Dumonceaux lab @MyologyLab
244 Followers 107 Following Our group focuses on the development of therapeutic solutions for muscle diseases and FSHD in particular.
FulcrumTx @FulcrumTx
787 Followers 159 Following Clinical-stage biopharma focused on improving the lives of patients with genetic diseases in areas of high unmet need. Guidelines: https://t.co/gPiypRVuKZ
FSHD España @fshd_spain
515 Followers 454 Following Asociación Afectados Distrofia Muscular facioescapulohumeral (FSHD) España. Declarada de utilidad pública. #SalvaNuestraSonrisa #fshd #EnfermedadesRaras
Bruce Beck @BruceBeck4NY
34K Followers 5K Following Lead Sports Anchor WNBC-TV; Host -Sports Final; Love life, JJ, sons, Daughters-in-law, Emmy, Savi, Ethan, Tyler, Kenzie Insta:@brucebeck4NY FB: BruceBeckSports
Brian Lewis @NYPost_Lewis
23K Followers 2K Following @nypost reporter covering the Brooklyn Nets and the NBA. Husband, father, traveler and lover of good books, movies & 80s/90s hip-hop and R & B.
Matt Kardos @mattkardos
7K Followers 2K Following @SOMPatriots Senior Writer & Editorial Producer for https://t.co/TbZGJg5eUL, @Yankees Double-A affiliate.
John Schmeelk @Schmeelk
22K Followers 2K Following I host radio pre/postgame & podcasts for @Giants. PBP/Sideline for @necsports. Brooklyn born/bred. Knicks/Yanks fan. Likes/retweets NOT endorsements. Cranky.
carden ♿️ @cardenonwheels
2K Followers 2K Following transit and accessibility 🚇 Board @MARTAarmy 🚌 @letspropelatl 🚴♀️ @disabledsouth 🍑 Chair ATL HR Commission 👷🏻♀️@midtownatl DRC 😺meow 🤓 CPWA
Dan Jefferson @jeffers8004
8 Followers 15 Following
Barry Schein @barry_schein
42 Followers 36 Following
Rohit Singh ( मो�.. @Rohit17677697
272 Followers 1K Following
Sheryl Spain @SherylSpainHere
599 Followers 4K Following Kicking and screaming through middle age. Also, @ChrisCarlin groupie. 🐶🌲🛡⚔️🌉🇺🇸🗽
Steve @Poppa0418
34 Followers 148 Following
DequoiJemeMèle @CommentIsOpt
17 Followers 96 Following
Manuel Sánchez @TicManolo
738 Followers 1K Following #GoogleET #GoogleEC Coordinador TIC Colegios BVM Irlandesas. Google Reference Schoool Network
JMick2 @MindfulMik2
0 Followers 7 Following
martysiederer @martysiederer
340 Followers 3K Following Fundraising consultant and Rutgers fan, with a passion for the game of life
Wolf Mueller @wcking78
12 Followers 18 Following
Charl Cilliers @CharlCilliers11
11 Followers 39 Following
【Cell Healing 】 c.. @cell_healing
62 Followers 33 Following We can cure it is called incurable diseases like ALS, muscular dystrophy and others. Probably,as of today, we are the only one can give good results for those
Seth Gottman @sgottman07
37 Followers 136 Following
Project Mercury @ProjectMercury_
22 Followers 18 Following The global initiative to speed the delivery of therapies for FSHD
Toatha @Toatha196990
216 Followers 4K Following
Mark Christman @FSHDSocietyWPA
15 Followers 42 Following FSHD Society, Western PA Chapter Director. Ensuring no one has to face Facioscapulohumeral Muscular Dystrophy (FSHD) alone.
Sonay Boyuneğmez @SonayBoyunegmez
6 Followers 288 Following
Yaz @yaz_690
13 Followers 390 Following
Bilal Bayazıt @BilalByzt
103 Followers 305 Following Postdoc #EVs @nationwidekids 🇺🇸, previously PhD #pancreaticislets @unil 🇨🇭
FSHD Japan @fshd_japan
35 Followers 37 Following FSHD(顔面肩甲上腕型筋ジストロフィー)の患者団体。FSHDに関する情報を発信しています。日本筋ジストロフィー協会FSHD分科会が運営しています。
Ana Isabel Alvarez Ba.. @BarbastroAna
0 Followers 9 Following
Monsters in the Libra.. @monstersinthel1
113 Followers 627 Following Medievalist, vampirologist, reader
emi.gc.snapdragon (Ms.. @browneyes11788
77 Followers 954 Following linguist (🇮🇩/🇲🇽), aspiring editor-in-chief, (literal) world traveler, EGMMS SPED ECS #WeGoHardBrooklynNets #jakartaalumni #lakeforest2011 MI+KY=VA
Anthony Mussolino @antmussolino
193 Followers 321 Following
Gloria Dwight @DwightGloria
81 Followers 489 Following
Eleanor Northam @EllieNortham
465 Followers 586 Following Living life on the edge of hysteria with four fabulous kids & a long suffering husband who keeps breaking into a run. Lifeline is Noah's Ark childrens hospice.
Matheus José De Lima @MatheusJosDeLi1
0 Followers 20 Following
Alex Garrett @AlexGNYC1
1K Followers 3K Following views and opinions expressed are my own! inbox me at [email protected] follow podcast and blog info @ @alexgpodcast
fredrick Robert @natasha1_nice
175 Followers 644 Following give a direct message I help most people in needs❤️
Emanuele Mocciaro @EmaMocciaro
35 Followers 80 Following Researcher in FSHD muscular dystrophy @SanRaffaeleMI former @utmbhealth #texas #neuroscience #neurogenesis #stemcell. @MSCAction and @FSHDsociety recipient
Christy Gottman @christy_gottman
9 Followers 64 Following Jesus, Josh, Kids, FBC Trenton, Classical Conversations, orphan care...
Gabi Gill @Gabi_L_Gill
0 Followers 64 Following
Kat @kat_schug
6 Followers 120 Following
Daniel Hartnett @dhartnettcsw
454 Followers 1K Following Social Worker, Advocate, Theologian, Teacher, Musician, Pray-er, Dad
Sam DeWitt @SamDe1023
361 Followers 2K Following
Raed R Mukheef @stickmanstickm1
88 Followers 105 Following
Nic Olo @SicilianOlo
0 Followers 29 Following
Jake @RealJakeAlpert
82 Followers 395 Following Scrappy, crafty, hard-nosed gym rat. Does the little things & has a lot of heart. High motor. Deceptively athletic. A real locker room guy.
Chris Carrino @ChrisCarrino
5K Followers 512 Following Radio voice of the Brooklyn Nets. NFL on @CompassMediaNet. NCAA's for @Westwood1sports. Working to cure #FSHD with @CarrinoFSHD. Contact: @ifmanagement
FSHD News @mpcfshd
626 Followers 186 Following FSHD NEWS over the world. Research and patients networks #FSHD #FacioScapuloHumeral # #WorldFSHDDay = June 20th
FSHD Society @FSHDSociety
2K Followers 786 Following World’s largest research-focused patient organization for facioscapulohumeral muscular dystrophy (FSHD). Empowering patients, accelerating therapies. #CureFSHD
Tim Capstraw @TimCapstraw
3K Followers 1K Following Brooklyn Nets Radio Analyst, NCAA TV Analyst, NBA TV, Olympic TV Analyst, Basketball Camps, Banquet Speaker and MC
Anthony Puccio @APOOCH
27K Followers 981 Following views are mine & do not reflect my employers | content @meta | site manager @netsdaily |
Muscular Dystrophy UK @MDUK_News
18K Followers 3K Following We connect a community of over 110,000 people living with muscle wasting and weakening conditions. Together we are stronger. Join us. Our #MusclesMatter.
FulcrumTx @FulcrumTx
787 Followers 159 Following Clinical-stage biopharma focused on improving the lives of patients with genetic diseases in areas of high unmet need. Guidelines: https://t.co/gPiypRVuKZ
Muscular Dystrophy As.. @MDAorg
21K Followers 2K Following MDA is the #1 voluntary health organization in the United States for people living with #MuscularDystrophy, #ALS, and related #neuromuscular diseases.
Jerry Carino @NJHoopsHaven
18K Followers 213 Following College basketball writer and news columnist for the Asbury Park Press & Gannett New Jersey. Associated Press Top 25 voter. Adjunct professor at Kean University
John Schmeelk @Schmeelk
22K Followers 2K Following I host radio pre/postgame & podcasts for @Giants. PBP/Sideline for @necsports. Brooklyn born/bred. Knicks/Yanks fan. Likes/retweets NOT endorsements. Cranky.
carden ♿️ @cardenonwheels
2K Followers 2K Following transit and accessibility 🚇 Board @MARTAarmy 🚌 @letspropelatl 🚴♀️ @disabledsouth 🍑 Chair ATL HR Commission 👷🏻♀️@midtownatl DRC 😺meow 🤓 CPWA
ArrowheadPharma @ArrowheadPharma
3K Followers 218 Following Arrowhead Pharmaceuticals develops medicines that treat intractable diseases by silencing the genes that cause them.
Debie Valentino @debie_valentino
86 Followers 395 Following Wife 😻 Mom 👩👧👦 ❤️Life 🔥Keto 🍴🍷 ⚾️ | Kickin' Muscular Dystrophy's Butt | Be Positive |
Justin Cohen @TheChair1130
121 Followers 42 Following Postdoctoral Associate at Yale School of Medicine working on FSHD. Views are my own.
Paul Kamras @PabloConQueso
90 Followers 1K Following Co-creator of Sam and Lily - former lamp salesman and radio exec trying to survive in the world of pro sports . . .
The Only Tana Zwart @TanaZwart
115 Followers 110 Following DAARB Chair, Rare By Design board, MDA National Ambassador 2019-2020, advocate, fashion geek, and a lot rock and roll. Facioscapulohumeral Muscular Dystrophy
Merrill Barr @MerrillBarr
5K Followers 594 Following 📝 Wordsmith & Entertainment Enthusiast 📺 | Disabled but Unstoppable 💪
Gracie Caggiano @GracieCaggiano
500 Followers 376 Following UMKC ‘23 • Stetson ‘21 • indie eclectic poet-composer • wheelchair enthusiast • she/her
The many Faces of FSH.. @facesoffshd
51 Followers 27 Following Tag your photos #facesoffshd or #facesofmd DM to be featured. Faces of MD is a place to show the world how truly strong we ALL are!!! Connect with us!
Buzz Williams @TeamCoachBuzz
94K Followers 515 Following Tweets by @AggieMBK Head Coach (& floor sweeper) Buzz Williams & my wife Corey (^CW) FB/Instagram: TeamCoachBuzz
Laura Hagerty @Hagerty_Laura
412 Followers 518 Following Interested in Neuromuscular Disease Research and Drug Development
Zach Gelb @ZachGelb
12K Followers 1K Following Host of The Zach Gelb Show || @InfSportsNet, @SIRIUSXM 158 & @Audacy app weekdays from 3-6 PM Eastern || Heisman Voter
Tony Mazzola @ninpmazzola
10 Followers 114 Following
TimCapstrawBballCamp @TCBC_
100 Followers 45 Following Popular Boys and Girls Basketball Camp located at the Wayne PAL in Wayne NJ. Brooklyn Nets Broadcaster
Stu @stugatzz18
212 Followers 212 Following Independent Sports TV Director /AD/Producer+Father & husband. Positive thoughts = positive results...just living the dream!
Steve Overmyer @OvermyerTV
3K Followers 2K Following Sportscaster CBS-2 NY. Snapshot NY feel good stories. Host of Fanalysis, Storyteller, living with an attitude of gratitude. GamerTag: KindofaB1Gdeal
steve farrell @capsbigbossman
725 Followers 415 Following Director of Ops and former Caps TV Producer for NBC Sports Washington. What goes around, comes around. Love is an action word. Just be...
Stephen Phillips @Stephen17748235
117 Followers 95 Following
Sean Maguire @smaguire9798
1 Followers 27 Following
Scott levine @honestactions
58 Followers 441 Following
saltaer @saltaer_Jax
4 Followers 1 Following SaltAer is Jax Beach circus school in Fl. Our ceilings are 26 feet.
Ron Lombardi @ron_lombardi
42 Followers 128 Following
Robert Potterton @PottertonRobert
1 Followers 3 Following
Rich Kopilnick @RichKopilnick
70 Followers 513 Following Baltimore guy living in New Jersey. WashU/McDonogh
Rich Hussey @hussey_rich
4 Followers 28 Following
Raymond Lewis @Raylewis71
2 Followers 27 Following
Peter Kosann @compasspk
20 Followers 52 Following
PerfectShotsShooting @PerfectShots1
47 Followers 22 Following
PeopleProBeautyTour @PeopleProBeauty
1 Followers 0 Following
Paul Herrera Jr @PHerreraJr
7 Followers 24 Following
Paul A. Bacigalupi @PaulBacigalupi
1 Followers 58 Following
PATTY JO FERRIS @PJFERRIS
13 Followers 82 Following
Nixon Dorvilien @ndorvilien
190 Followers 564 Following
Milt Lee @MiltLee2
4 Followers 0 Following
Mike Shapiro @MikeShapiro06
20 Followers 161 Following
Miguel Angel @MiguelLaBoy62
9 Followers 65 Following Retiree, relocated NY to FLA. Born to parents who migrated from Puerto Rico. Catholic grammar and public school educated. College boy. Raised by Mom.
Michael Webb @jckid60
32 Followers 26 Following
Michael Ianelli @MichaelIanelli1
7 Followers 9 Following
Michael Glantz @tvagent
521 Followers 708 Following Head of Broadcasting & Partner, ICM Partners; President, Headline Media Mgmt, NYC; Exec Producer, The Meredith Vieira Show; Dad to four great kids & Grandpa.
mcdermott @mcdermottrules
15 Followers 7 Following
Marshall Kramsky @KramTalksSports
11 Followers 0 Following The official twitter of the weekly podcast "Kram Talks Sports"
Mark Gheduzzi @MarkGheduzzi
86 Followers 142 Following
Lawrence @MrG_B206
23 Followers 118 Following
Kenny Albert @KennyAlbert
58K Followers 3K Following FOX Sports (NFL & MLB), MSG Networks (Rangers & Knicks), NHL on TNT, Olympics on NBC 🏒⚾️🏐🏃♀️, Westwood One 📻
joe handel @joehandel1
3 Followers 11 Following@richtreonze Dear Rich, we are doing our best to find a treatment! We show how the protein WDR5 is a druggable target that is required for DUX4 expression in patient derived cells. In vivo test are ongoing to further confirm our findings. WDR5 is not a biomarker but a possible target!
@CarrinoFSHD Thank you for all your hard work, Chris!!
@garyvee @nateS @CarrinoFSHD my kids have FSHD, just like the voice of the NJ Nets...so close to treatment --- the Chris Carino foundation is one of the best for this and MD.
Today is the day y'all! Getting a DNA test to see if there is a medicine treatment that matches my Duchenne Muscular Dystrophy mutation. The treatment can possibly make me stronger. Manifesting good results! Please keep me in your thoughts and prayers today. 🙏🏼❤️
Portrait of Drazen Petrovic | I can't believe it was 3 years ago that I painted this for my good friend @ChrisCarrino for his foundation @CarrinoFSHD . This might have been my last painting.
Please RT @CarrinoFSHD Founder Chris Carrino is @todayshonoree for Thursday April 15th, 2021 todayshonoree.wordpress.com/2021/04/14/chr…
Praying 🙏 to rid me of muscular dystrophy further validates we live in an #ableist society... forcing ur vision on me for what a non disabled body should look like and that PwD are “sick” & need to be cured. What if I told u I enjoyed running over people’s feet at 6mph? 🙃♿️
@CarrinoFSHD @wojespn @wojespn Thanks for your support! Luka woj bomb was so cool!
Just attended my amazing & inspiring friend, @ChrisCarrino's Virtual Gala for his amazing foundation @CarrinoFSHD. What an awesome set-up & turnout! Heard a lot of inspiring words from some incredible people. Please donate to Chris's cause to help find a cure for FSHD.
Inspired by @ChrisCarrino every day .. join Joe Harris, @SDinwiddie_25 & me at tonight’s @CarrinoFSHD Virtual Gala at 7p to support CC & the fight against FSHD : ccfgala.virtual-eventpro.com
Last year, we (@JagannathanLab) hosted individuals and families affected by #FSHD @CUAnschutz for an evening of learning and community for the #WorldFSHDDay. Though we can't get together this year, our research continues! (enabled by @FSHDSociety, @FSHresearch and @CarrinoFSHD)
We hosted the Colorado FSHers @CUAnschutz to celebrate the #WorldFSHDDay. Engaging with patients and families is such a powerful way of reminding ourselves why we do what we do. Big thank you to Amanda Hill (@FSHSociety) & Brittany Polson (@rnabioco) for helping us pull this off
Hoop voor m'n lieve nichtje Merel en al die andere mensen die aan deze spierziekte lijden dat er een medicijn komt ❤#WorldFSHDDay
Finally you will see how harsh this disease is. For those who will read, like, share and comment...Thank you. Education and awareness is the only way to stop this disease. Let's unite and find a cure and have an orange smile! #WORLDFSHDDAY
If you have experienced chronic loss of strength, inability to smile properly, weakness in the arms and winged scapula and also someone in your family may have that ... please, check about FSHD #WorldFSHDDay
Today is #WorldFSHDDay FSH Muscular Dystrophy is a crappy and horrible disease. It strips muscles away, stops the ability to walk, move your arms and to slowly waste away to bone. This apathetic disease can even rob you of your smile!!
Chris Stennett from Suffolk lives with #FSHD. In this blog post, he shares his daily routine, top tips for staying positive during the Covid-19 pandemic and updates on training for an Ironman. Read more here >> bit.ly/3ekPdLI #FSHDAwarenessDay #WorldFSHDDay
Fact #1 for #WorldFSHDDay FSHD is estimated to affect about 870,000 individuals worldwide, the actual number of individuals with FSHD could be significantly higher due to undiagnosed cases
Today is #WorldFSHDDay. We understand the everyday challenges of living with FSHD as well as the difficulties you may be facing during these uncertain times. We’re here to help with information, advice and support. Find out more and spread the message >> bit.ly/2NkmpHf
Fact #2 for #WorldFSHDDay Between 2,000-2,500 people in the UK have FSHD. Several generations of a family are often affected by the condition. It can be diagnosed at any age and can vary widely between individuals, even within the same family.
Today is #WorldFSHDDay！You are not alone with FSHD！Help us raise awareness for Facioscapulohumeral muscular dystrophy #FSHD
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