Game for Cures @GameForCures

Streaming for @CureRareDisease and our mission to develop medicines for kids fighting fatal diseases. #GameForCures cureraredisease.org https://discord.gg/NUE8pENdQ4 Joined August 2020

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Cure Rare Disease @CureRareDisease

2 years ago

Calling all #Whiskey Lovers! The Second Annual SETX Whiskey Festival tickets are on sale now. All proceeds will support CRD. Buy your tickets now before they sell out. #Whiskeylover #rarediseaseawareness #fundraiser #Whiskeyfest #setx #setxwhiskeyfest #cureraredisease #dmd

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Cure Rare Disease @CureRareDisease

2 years ago

October 7, the Baweja & Warner families hosted our inaugural Waves of Hope Wine Tasting event in California, raising more than $83,100! Thank you to our community who joined us for an evening by the ocean in support of our work & mission. #raredisease #genetherapy #dmd #adssl1

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Game for Cures @GameForCures

2 years ago

Thank you @Luwuaren for supporting @CureRareDisease! 🩵 #gameforcures #rarediseaseawareness #fundraiser

Luaren ✨ @Luwuaren

2 years ago

Thank you @Luwuaren for supporting @CureRareDisease! 🩵 #gameforcures #rarediseaseawareness #fundraiser

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Cure Rare Disease @CureRareDisease

2 years ago

We are grateful to our CRD community for your heartwarming gestures in remembering Terry, who left us a year ago yesterday. Special thanks to the Sharp family for their touching blog tribute to honor Terry's memory. #duchenne #duchennemd #cureraredisease #raredisease

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Cure Rare Disease @CureRareDisease

2 years ago

Check out this great TV interview featuring the inspiring Bryan Family and their unwavering fight against #Duchenne muscular dystrophy. Thank you to Dynamic Spine & Neuropathy for continuing to support Bryan Boys for Hope & @CureRareDisease. #rarediseaseawareness #genetherapy

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Cure Rare Disease @CureRareDisease

2 years ago

Here is a letter from Terry's Parents: liebertpub.com/doi/10.1089/hu…

Cure Rare Disease @CureRareDisease

2 years ago

Here is a letter from Terry's Parents: liebertpub.com/doi/10.1089/hu…

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Cure Rare Disease @CureRareDisease

2 years ago

One year ago, Terry Horgan’s life-long battle with #DuchenneMD ended. Every day since, our team has continued to move science forward for ultra-rare disease patients in his honor. His bravery & resilience remains the inspiration for our community & the patients still fighting.

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Game for Cures @GameForCures

2 years ago

Your continued support for @GameForCures helps @CureRareDisease continue to break down barriers in the #raredisease community. Thank you 🩵 #Duchenne #breakingbarriers #DuchenneMuscularDystrophy

Cure Rare Disease @CureRareDisease

2 years ago

Your continued support for @GameForCures helps @CureRareDisease continue to break down barriers in the #raredisease community. Thank you 🩵 #Duchenne #breakingbarriers #DuchenneMuscularDystrophy

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Cure Rare Disease @CureRareDisease

2 years ago

Last week, @SenBlumenthal visited CRD's lab space in Woodbridge, CT to see the impact of the designated federal grant on the renovations. We appreciate his support in helping to secure the critical funding for this project, which will help advance CRD's R&D. #rarediseaseresearch

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Cure Rare Disease @CureRareDisease

2 years ago

It's #WorldDuchenneAwarenessDay & today CRD is celebrating the community that inspires us - the researchers, families & boys that are breaking down barriers. Together, we will continue to create a better future for everyone impacted by #Duchenne. #WDAD2023 #WDAD #breakingbarriers

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Cure Rare Disease @CureRareDisease

2 years ago

Check out our first Researcher Spotlight as we take you through the Weisleder Lab at the @OhioStateMed with Dr. Noah Weisleder and explain how their collaboration with CRD is helping to advance life-saving therapies for rare and ultra-rare diseases.

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Cure Rare Disease @CureRareDisease

2 years ago

We're celebrating our awesome community with a MERCH GIVEAWAY! Sign up for CRD's Newsletter by clicking the link & tag 3 friends in the comments! One lucky winner will receive a CRD Merch Bundle filled with exclusive goodies! Giveaway ends 8/14 at 3 PM EST #rarediseaseawareness

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Cure Rare Disease @CureRareDisease

2 years ago

It's National #DisabilityIndependenceDay! 33 years ago today on 7/26/90, #ADA was signed into law that prohibits discrimination of individuals with disabilities. Today, while we celebrate milestones that have brought us this far, we recognize that we still have a long way to go.

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Cure Rare Disease @CureRareDisease

2 years ago

Have you purchased your tickets to our Waves of Hope Wine Tasting event? Join us for a night to remember while supporting our work to bring life-saving therapeutics to patients left behind. Visit our website in our link in bio for sponsorship opportunities & to purchase tickets.

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Cure Rare Disease @CureRareDisease

2 years ago

Happy #disabilityPrideMonth! The month of July is dedicated to celebrating #disability as an integral part of one's identity, and it provides an opportunity to share the unique experiences of the disabled community. Gain a better understanding of life with disabilities!

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Cure Rare Disease @CureRareDisease

2 years ago

The #ADA was signed into law 23 years ago turning July into Disability Pride Month. During #DisabilityPrideMonth, we raise awareness & reflect on the history of disability rights. What are you doing this month to help raise awareness for #disabilityrights?

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Cure Rare Disease @CureRareDisease

2 years ago

Nearly $300,000 was raised during the 33rd annual Mirabito Golf Classic in Syracuse NY. Thank you @Mirabito Energy Products for choosing CRD again as one of your beneficiaries! Check out some of the photos from the golf classic. #fundraiser #rarediseaseawareness #beneficiary

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Game for Cures @GameForCures

2 years ago

Check out @CureRareDisease's latest newsletter! #genetherapy #drugdevelopment #raredisease

Cure Rare Disease @CureRareDisease

2 years ago

Check out @CureRareDisease's latest newsletter! #genetherapy #drugdevelopment #raredisease

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Cure Rare Disease @CureRareDisease

2 years ago

Did you know in vivo testing plays a vital role in #drugdevelopment? By conducting tests within living organisms, we can better understand how potential treatments interact with biological systems & test their safety & efficacy before they reach patients. Read more in our blog.

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Cure Rare Disease @CureRareDisease

2 years ago

Have you checked out CRD's merch collection yet? From trendy apparel to stylish accessories, every purchase supports groundbreaking research. Don't miss out, head to our website and grab your favorites now! #ShopForACause #cureraredisease #rarediseaseawareness