Top Tweets for #Duchenne on Twitter.

Search results for #Duchenne

Jon @JonU235

8 hours ago

$SRPT 8. #Elevidys (delandistrogene moxeparvovec-rokl), that is with a severely restricted label and first commercial dose administered last August. 💪#Duchenne #GeneTherapy

Alex Philippidis @AlexWestchester

13 hours ago

$SRPT 8. #Elevidys (delandistrogene moxeparvovec-rokl), that is with a severely restricted label and first commercial dose administered last August. 💪#Duchenne #GeneTherapy

0 3 7 859 1

0 1 7 472 0

Jennifer Handt @JenniferHandt

a day ago

Since Charlie's diagnosis, #Duchenne is Always on My Mind—and it's a big comfort to know it's on theirs, too.

Eric N. Olson @Transactivator

a day ago

Since Charlie's diagnosis, #Duchenne is Always on My Mind—and it's a big comfort to know it's on theirs, too.

7 9 161 8K 0

Download Image

0 0 4 98 0

Parent Project Muscular Dystrophy (PPMD) @ParentProjectMD

a day ago

PPMD Together meetings are about coming together and shaping a future where every individual affected by #Duchenne and #Becker can thrive. Thank you to all who joined us for these important, heartfelt discussions in Cincinnati. Learn more: parentprojectmd.org/catch-up-on-pp…

0 0 0 121 0

Download Image

Defeat Duchenne Canada @defeatduchenne

a day ago

📆 2024 Annual General Meeting: Join us online on Monday, June 3, as we reflect on our collective efforts in advancing our mission to defeat #Duchenne #musculardystrophy. Let's come together to build momentum for the work ahead: bit.ly/3xeeaXy.

0 0 0 55 0

Download Image

ACTION @ACTION4HF

2 days ago

Read more about our plan to optimize care and improve outcomes for Muscular Dystrophy patients here: bit.ly/3wh5rDV! #PedsHF #ACTIONMuscularDystrophy #Duchenne #MuscularDystrophy #EndDuchenne

0 0 0 29 0

Parent Project Muscular Dystrophy (PPMD) @ParentProjectMD

2 days ago

PPMD is excited to announce a $250,000 award to Bo Hoon Lee, MD, from the @UR_Med to support the development of a clinical research network for #Duchenne babies identified through #newbornscreening efforts in New York State. parentprojectmd.org/ppmd-awards-25…

0 4 11 403 0

Defeat Duchenne Canada @defeatduchenne

2 days ago

This is the reality of a Duchenne diagnosis: Eventually, it takes all. At Defeat Duchenne Canada, we have hope for a brighter future for everyone with a #Duchenne #musculardystrophy diagnosis. Invest in a world without Duchenne: bit.ly/3IVF5dd.

1 0 0 105 0

Download Image

DMD Dayanışma Platformu @DMDdayanisma

4 days ago

#Solunum Fonksiyon Testi (#SFT) Nedir? Uygulama Nedenleri ve SFT Sonucunun Değerlendirilmesi #Duchenne #DMD #DMDAileRehberi #DMDdayanışma dmd.arti.net/2024/04/solunu…

1 4 6 65 0

Paul Melmeyer @PMelmeyer

4 days ago

Next Friday! We’re talking state bills, Federal RUSP efforts, and more. Join us #Duchenne community!

Muscular Dystrophy Association @MDAorg

5 days ago

Next Friday! We’re talking state bills, Federal RUSP efforts, and more. Join us #Duchenne community!

0 5 12 1K 0

Download Image

0 0 4 122 0

Terri Ellsworth @TerriEllsworth

4 days ago

His words, his bravery, his "ask", are etched in my mind forever ❤️ #Eteplirsen #pioneer #trailblazer #Duchenne #exondys51 #raredisease

3 4 26 593 0

Download Image

Hervé Nabarette @HNabarette

4 days ago

Résultats positifs pour la phase I/II de l'essai de thérapie génique mené par @GenethonFr dans la myopathie de #Duchenne @Myology2024 afm-telethon.fr/fr/actualites/…]

0 0 2 35 0

Defeat Duchenne Canada @defeatduchenne

4 days ago

Thank you to all who have submitted applications for our 2024 Research Grant Program! Our team is hard at work reviewing each submission focused on improving the lives of those with #Duchenne #musculardystrophy. Research funded by Defeat Duchenne Canada: bit.ly/3UbRRbF

0 0 0 85 0

Download Image

Centrobed @Centrobed

4 days ago

#lifechanging no more #sleepless nights. #Repositioning with ease. 24hr #handsfree #turning #independence #qualityoflife #Duchenne #MD @ActionDuchenne @MDAorg @MDI_Ireland @mndassoc #shareifyoucare #singlehandedcare #costsaving #comfort @ParentProjectMD #litigation #OT @otac_uk

0 0 0 339 0

Download Image

Terri Ellsworth @TerriEllsworth

5 days ago

#eteplirsen #pioneer #warrior #trailblazer #Duchenne #acceleratedapproval

0 4 39 10K 1

Download Image

Jon @JonU235

5 days ago

$SRPT maybe a good time to repost this for the newbies or #ICYMI #GeneTherapy #Duchenne #ThrowbackThursday x.com/jonu235/status…

Jon @JonU235

2 months ago

$SRPT maybe a good time to repost this for the newbies or #ICYMI #GeneTherapy #Duchenne #ThrowbackThursday x.com/jonu235/status…

2 3 19 5K 3

0 1 12 965 1

Defeat Duchenne Canada @defeatduchenne

5 days ago

Register by midnight TOMORROW to receive your FREE t-shirt delivered to your door for Walk day – Sunday, May 26. Support the fight to save the lives of all the boys we know and love living with #Duchenne #musculardystrophy. Register now: bit.ly/4bFYnR2.

0 0 2 86 0

Download Image

Jon @JonU235

5 days ago

$SRPT Professor Dr. Jerry Roy Mendell - Medicine Winner King Faisal Prize @nationwidekids @KingFaisalPrize💪💪💪#Elevidys #GeneTherapy #Duchenne #RareDisease youtube.com/watch?v=hn5RWP…

0 1 12 582 0

Jon @JonU235

6 days ago

$SRPT "As Luis and Manuela sighed in relief, they saw a new Lucas emerge." 💪💪💪#Elevidys #GeneTherapy #Duchenne #RareDisease @BostonChildrens Lucas receives gene therapy for DMD and finds his super muscles answers.childrenshospital.org/dmd-gene-thera…

2 2 18 913 0

NS Pharma @NSPharmaInc

6 days ago

Over the course of the next two days, we'll be at the 17th Annual Pediatric Neurology Symposium with @LeBonheurChild. We look forward to engaging in meaningful discussions on how to improve diagnoses and enhance treatment plans in #Duchenne and other nervous system disorders.