GettingUp.Org @GettingUpOrg
https://t.co/tIv3tuQcA1 #inclusionbodymyositis #raredisease #7000rarediseases #ibm #research #inclusionbodymyositis #gettingup.org #johnnyrocko gettingup.org Kansas City, MO Joined September 2020-
Tweets690
-
Followers56
-
Following168
-
Likes980
Want to see something a-maaaazing? Watch this video! cameo.com/recipient/6847…
GettingUp.Org is immensely grateful for the support of Wilsonart. From the very beginning of our quest to find treatments and cures for neuromuscular diseases, Wilsonart® Engineered Surfaces has been a steadfast partner.
GettingUp.Org is immensely grateful for the support of Wilsonart. From the very beginning of our quest to find treatments and cures for neuromuscular diseases, Wilsonart® Engineered Surfaces has been a steadfast partner.
Single Golfer, Team, or Sponsors Signup Here: gettinguporg-inc.missionpillars.com/events/2ceaf8c… There's also a Gala Dinner Sunday evening for all sponsors and available À la carte for individuals (see link above for details). GettingUp.Org, Inc. Is an all volunteer nonprofit Thank you!
Pay GettingUp.Org, Inc. using this link: paypal.me/GettingUporg?c…
RECORD STORE DAY - The First Family: Live At Winchester Cathedral 1967 recordstoreday.com/SpecialRelease…
Mark Your Calendar - Join Us in Supporting Rare Disease Research - Limited Spots Available. Gala Celebration for Neuromuscular Research Dinner. Featuring a Presentation by Dr. Mazen M. Dimachkie - Professor of Neurology - Executive Vice Chairman, Department of Neurology, SOM
Win a signed Patrick Mahomes jersey w/COA 🏈 Enter our digital raffle for just $5 and support vital medical research for neuromuscular diseases. 100% of your entry goes towards finding treatments and a cure. GettingUp.Org, Inc. 501(c)3 all volunteer nonprofit

kattie millerDOGE FAT... @kattiedogeX23
63 Followers 1K Following Manager To Elon Musk, CEO, and Chief Designer of SpaceX🚀 CEO and product architect of Tesla, Inc.🚘
Michael j weirsky @michaeljweir43
54 Followers 2K Following Mega millions jackpot winner, Michael j. Weirsky, jackpot winner of $273,000,000 giving away $50,000 to my first 2k followers be a winner today GOODLUCK
Micheal Schmidt @diamond_ib25067
43 Followers 752 Following Helping Trump supporters donate and stay involved in the movement. Let's stand together for America's future!
Hazel @Fwoufaw189748
30 Followers 658 Following Health is my gift to protect, love is my gift to give.
CEO DOGE FATHER {ELON... @CEO_TESLA_INC57
39 Followers 1K Following CEO, 👩💼 and chief engineer of Space X, CEO of Tesla, Inc, CEO of X 🚀🚘
Dworuilu @Dworuilu990655
29 Followers 2K Following
Ericka Muller @blondebellkc
0 Followers 7 Following
Maye @maye_5654
251 Followers 7K Following Bestselling International Author of A Woman Makes A Plan 📖 Doctor of Dietetics 👩🎓Supermodel 😉💃
Angel Garcia Garcia @garcia2020aagg
4 Followers 127 Following
RowenaFennel @DevonRuthe87776
1 Followers 40 Following I love men who know how to hold a conversation. 🗣💬
Orkliquf @Orkliquf964
40 Followers 1K Following
Terslur @TerslurkF0NPI
58 Followers 2K Following
copy right @copyright587526
86 Followers 4K Following
Ray Fowler @RayFowl15005331
594 Followers 2K Following Common Sense Conservative. God, Family, Q MAGA - Country, And The Truth Shall Set You Free.
Fares @chevalier_82983
1 Followers 141 Following
Thewtore @Thewtoren60
104 Followers 1K Following
Nioxair @NioxairnW44RW
24 Followers 405 Following
Slothouth @SlothouthSR8b
33 Followers 408 Following
Sueson @SuesonGYCiDN
32 Followers 323 Following
John Muller @Mullerjohn0
9 Followers 112 Following
A. Muller @MullerAmy333
169 Followers 355 Following
Xenia @Xenia377172
30 Followers 3K Following
Thote @Thote267525
67 Followers 5K Following
OdeletteHobbes @L6396YqmfIZ09
64 Followers 7K Following
Darcy @u9T77JBk95XD85
56 Followers 2K Following
Nicole @terrazasp
759 Followers 466 Following You should do your best in everything you do, never give up halfway
Phillip @Phillip23550237
102 Followers 929 Following
CandisLaxen @CandisLaxe94754
27 Followers 2K Following
Amelia_Anders @amelia_and31885
2 Followers 406 Following
ZacheryLash @LashZacher42196
33 Followers 2K Following
Athena @athenasteese41
294 Followers 3K Following
Neleesh @Neleesh176632
20 Followers 1K Following
Lisa Fx @lisafxtrade231
32 Followers 351 Following Crypto/Forex trader💻Account manager 🔑winning assurance guaranteed💯Dm and start earning!💸
Hector Chinoy @drhectorchinoy
4K Followers 2K Following Professor of Rheumatology & Neuromuscular disease, University of Manchester/Salford Royal, UK. Interests in myositis, running, Newcastle United , views my own!
Deborah Bartoli @BartoliDeborah
2K Followers 7K Following As long as it is forward, I will go anywhere
JADEHAMMOND @JADEHAM41776839
13 Followers 173 Following I m fine 🔗 I’d appreciate it If anyone click my link 🥹🔗 https://t.co/GCIBUBy3qk
Jimmy Kimmel @OruamenI94125
22 Followers 223 Following I created this private page for my fans and well wishers 📽️🎥🎤🎤 I am here to carry five people along in my career🎥🎥🎤🎤
Esther Costabella @SterCostabella
495 Followers 1K Following Founder Costabella Sailing Events: experiencias singulares y sostenibles a bordo de un barco #wellbeing #networking #teambuilding #Costabella
高木恵子🍒 @gomhuzi264676
0 Followers 89 Following
Rohit Aggarwal @docrota
6K Followers 4K Following Rheumatologist, research in Myositis & Interstitial lung disease, medical director, Myositis Center, Professor of Medicine, @UPMC @pittrheum
SOD1 EndALS @CEHaddadNP
2K Followers 2K Following #ALS #fALS #SOD1 In the fight to save my family from ALS. Twin mom. Nurse practitioner. grieving daughter - 8/30/22 lost mom #33 in our family
Grant W Smith @GWSmith14
1K Followers 1K Following MUFC ! Proud Husband, Dad and GrandDad. Diagnosed with ALS in October 2020, I battle the BEAST everyday. #ENDALS #ALSLife
Lesha Jett @ImLolly713
598 Followers 318 Following FT ninja in the forest & dirt. I HATE ALS as hard as I LOVE MY SISTER (who had ALS). Jamie Rose Berry died waiting...💔🌹🌙
End ALS Now @EndALSNow
861 Followers 872 Following ▪Bri ▪I mainly amplify #ALS tweets ▪ALS=wretched, cruel, 100% fatal ▪RT=awareness, not agreement ▪🚫DMs🚫 ▪#EndALS ▪#SunflowerForSandy 🌻 ▪#RoseForJamie 🌹
Kathy Collier @KathyCo74123384
937 Followers 1K Following ALS Advocate. Proud Mom of an Autistic Son. NEVER Forget Richard my ALS ANGEL.
I am Ken @Ikennect
302K Followers 31K Following I am MAGA. Here, you'll find opinions shaped with sarcasm and humor
Not A Number @myhiddenvalue
259K Followers 88K Following Freedom Fighter, Truth Seeker, Anti Woke, Leave the children alone, Life Liberty & the pursuit of Happiness, Nuremberg 2.0, End The Fed.
lemonhead @KeithJLemmons
49 Followers 681 Following
Doug Galant @DougGalant
6 Followers 32 Following
Kathleen Edwardi @EdwardiKathleen
1 Followers 32 Following
Athena @athenasteese41
294 Followers 3K Following
Nicole @terrazasp
759 Followers 466 Following You should do your best in everything you do, never give up halfway
Xenia @Xenia377172
30 Followers 3K Following
John Muller @Mullerjohn0
9 Followers 112 Following
RowenaFennel @DevonRuthe87776
1 Followers 40 Following I love men who know how to hold a conversation. 🗣💬
Angel Garcia Garcia @garcia2020aagg
4 Followers 127 Following
A. Muller @MullerAmy333
169 Followers 355 Following
Neuralink @neuralink
1.7M Followers 1 Following Creating a general-purpose, high-bandwidth interface to the brain
Wide Awake Media @wideawake_media
806K Followers 565 Following Covering current events, globalism, technocracy, the climate agenda, health, and everything in between. Support us: https://t.co/YVlWNinTLl
Roaring Kitty @TheRoaringKitty
1.7M Followers 90 Following
ALS ACCESS @brainmatters10
2K Followers 2K Following Fighting for a cure for ALS/MND/ and it’s variants. Fighting daily for many years, for ALS drug access. Sod1 Gene carrier. Animals are my Love!!
Donald J. Trump @realDonaldTrump
109.5M Followers 53 Following 45th & 47th President of the United States of America🇺🇸
Lee Morrison @LeeMorrison2022
413 Followers 1K Following Disabled, ALS fighter, power chair, USMC & Army Veteran, Book seller on AbeBooks @ https://t.co/pFVnC80NOW NO DM!!!!! You WILL be blocked!! NO MAGA!!
Matt Wallace @MattWallace888
2.4M Followers 12K Following WE WILL HOLD THEM ACCOUNTABLE ⚠️ Follow with the notifications on to see my hidden videos.
Phillip @Phillip23550237
102 Followers 929 Following
Tesla Optimus @Tesla_Optimus
567K Followers 11 Following A general purpose, bi-pedal, humanoid robot capable of performing tasks that are unsafe, repetitive or boring.
Julie L Devlin @MyositisDM
3K Followers 1K Following I was diagnosed with Dermatomyositis, Sjogrens,Celiac Disease,Neuropathy CVID. I bring awareness through social media and video production.
Vicky Susan @susannvicky0
6K Followers 36 Following A fun loving Mom with a naughty side, I could be your neighbor in X..?
Margart Conway @ConwayMarg57357
7K Followers 6 Following
Ken Moraif @KenMoraif
794 Followers 289 Following Sr. Advisor @RPofAmerica and host of Money Matters with Ken Moraif radio show. Provides financial planning, investment management & family legacy planning.
Dom Lucre | Breaker o... @dom_lucre
1.6M Followers 3K Following The World Stage Is Exposed Here, Let’s Break It. [email protected]
The Alliance for Resp... @ARC_Conference
63K Followers 53 Following ARC is being established as an international community with a vision for a better world where every citizen can prosper, contribute, and flourish.
Stella @Stella580977408
4 Followers 7 Following 🍜🍣 Sushi and noodle lover seeking someone to share my favorite Asian cuisine with. 🚨🔥 Don't miss out on love in my bio link! ❤️💘😍
Daniel Brennan @danieljbrennan1
146 Followers 305 Following Notre Dame/Psych, Social work, Northwestern Univ/MBA(Kellogg). Working at great small pharma startup out of Danish academic center, NMD Pharma. Opinions my own.
AmateurBeauties @AmateurGW
175K Followers 24 Following Watch, chat and be a part of the community ❤️👇
Sherry Quisenberry @sherryquis
2K Followers 1K Following A Kentuckian living in GA. Living with PLS/ALS and pissed that no access to real treatment exists. Love books, good jokes, my family and the changing seasons.
Republicans against T... @RpsAgainstTrump
962K Followers 5K Following Pro-democracy conservatives Republicans fighting Trump & Trumpism. Please support our work: https://t.co/FkmisNic4X
RARE Revolution Magaz... @RareRevolutionM
12K Followers 7K Following Digital magazine giving a voice to those affected by rare conditions and the charities that support them. Contact us: [email protected]
The Mighty @TheMightySite
50K Followers 2K Following Making health about people: When we ask how you’re doing, we actually want to know! Download our free app to join a community that gets it ✨
The Imperial Hotel, C... @ImperialCork
6K Followers 2K Following The Imperial Hotel is regarded by many as the 'Grande Dame' of Cork. Built in 1816 in the heart of Cork City, #Ireland
C.Spa Thai Massage @CSpaThaiMassage
96 Followers 81 Following C.Spa Thai Massage Cork - Authentic Thai Massage Treatments For Him And Her.
Jimmy Kimmel @OruamenI94125
22 Followers 223 Following I created this private page for my fans and well wishers 📽️🎥🎤🎤 I am here to carry five people along in my career🎥🎥🎤🎤
Deborah Bartoli @BartoliDeborah
2K Followers 7K Following As long as it is forward, I will go anywhere
Hector Chinoy @drhectorchinoy
4K Followers 2K Following Professor of Rheumatology & Neuromuscular disease, University of Manchester/Salford Royal, UK. Interests in myositis, running, Newcastle United , views my own!