Elizabeth Smith #FBLC 💙 PREVIOUS ACCOUNT HACKED @IssyDublinNewAC
Long Covid long-hauler since January 2021 ❤️ #POTS. Advocate for Long Covid. Management Consultant @EY Animal Welfare Volunteer @Assisi Animal Sanctuary🐈 Joined May 2023-
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Translink say, 'booking, a standard class ticket does not guarantee a seat on the train'
Translink say, 'booking, a standard class ticket does not guarantee a seat on the train'
We believe children with ongoing symptoms of #LongCovid should be screened for #PoTS Symptoms consistent with #PoTS are commonly reported by families & those who access treatment for #PoTS report improved quality of life. Share your experience below. @NHSEngland #LongCovidKids
We believe children with ongoing symptoms of #LongCovid should be screened for #PoTS Symptoms consistent with #PoTS are commonly reported by families & those who access treatment for #PoTS report improved quality of life. Share your experience below. @NHSEngland #LongCovidKids
🇬🇧Latest Covid symptoms as new strain sees more than 800,000 people ill. The Zoe study says more than 50,000 people a day are contracting Covid, the disease spreading fastest in Northern Ireland, then Scotland. 1/2
"I say the same joke every time" @robbiewilliams talking about his comments on stage re having #LongCovid. Which he doesn't have. We are not laughing. You are not funny. Long Covid is no joke. How dare you. We await your apology. rtl.de/cms/robbie-wil…
CATENHEIMER
Anyone recognise this pup? They've wondered in to Lanyon Place & are safe with staff there. #LostDog 🐶
So are tiny blood clots the real cause of Long Covid? mol.im/a/12307841 via dailym.ai/android
Surround yourself with people who "get" your chronic illness and can support your journey. For those that don't get it, try not to waste your time and precious energy worrying about their perception of your #POTS. You have more important things to do! #SUTP #dysautonomia #spoonie
The tragedy is we could be treating so many more people. There are lots of #HBOT tanks in the private sector. These could be made available. #LDN could be prescribed by GPs. The studied disinterest in #LongCovid is shocking. Where are the #left @labour @SinnFeinn
Just lost my job for being ill for too long. Career potentially ruined by long covid! We need treatments!! #CovidIsNotOver
Petition: Urgent funding for research into Long Covid and ME/CFS treatments and cures petition.parliament.uk/petitions/6305…
Looking for Children with #longcovid to donate a blood sample for this important research, only study of its kind in the world for #longcovidkids. See below for eligibility. [email protected] for enquiries. #TeamClots
Simply outstanding contributions from both @BinitaKane & @Sunny_Rae1 for the APPG. I’m in awe of your passion, commitment & knowledge. I cannot tell you how impactful this evidence session has been. The gov must act to stop transmission & inform the public of covid harm.
Highlights from today's @AppgCoronavirus on #LongCovid. @BinitaKane and @Debbie_abrahams discuss similarities with #MECFS, lack of education despite post viral illnesses not being new, discredited and harmful Graded Exercise and how the biggest problem is a culture change.
Clip 1/2 - Dr Rae Duncan @SunnyRae1 at today's @AppgCoronavirus on #LongCovid 38-50% of patients, upto 1 Million, could have POTS. People are not being screened, one patient was told she had psychological fear of standing and referred for CBT.
Always a good day when new drugs arrive 🙏🥳👍😁#LongCovid #offlicense #LDN #lowdosenaltrexone #ME #chronicillness #NotRecovered #TreatLongCovid #CovidIsntOver #MCAS #microclots #Immunology #MEdTwitter #immunesystem #LongCovidAwareness #LC #drugs
"The spike protein has the capability to change your soluble clotting protein to insoluble little microclots and that's where everything starts…vascular damage in endothelial damage and you will have a micro cloud presence in some individuals” #longcovid npr.org/2023/05/10/117…
Hitting the road today for week 3 of #HBOT for my #LongCovid. Given the improvements it has made in my life I find it incredulous that we have several of these facilities sitting idol whilst our #HSE #LongCovid clinics dish out pilates and sleeping pills.
Why is Hyperbaric oxygen therapy #HBOT not being made available to Irish people with #LongCovid? In just two weeks I have had a reduction in tinnitus and most importantly malaise. My last session was yesterday morning at 9am. While I feel exhausted today it is not that awful
Phil Prydderch 🏴�.. @PJPrydderch
1K Followers 2K Following Dad of two | EVs | Born at 332 ppm CO2 | ME, FMS, POTS | @wrexham_AFC ex part-owner⚽️ | M.CIWEM | Flood Defence & Hydrometry
Sunshinesideoflife77 @Sunshineside77
842 Followers 878 Following Devoted mom, proud USAF vet 📸 #GenXSwiftie advocate for 🏳️🌈 chronic illness, disabled. #LongCovid #GenX be kind, spread love ❤️
Gaby @gabypsilonGaby
494 Followers 2K Following former blue check @[email protected] #EBV #LongCovid #severeMECFS #PoTS #MCAS
Kimberly Lane @Kimber_Timber1
460 Followers 639 Following Host of the Long Covid Made Short podcast #Longcovid since March 2021 #FBLC
Flora @FloraEllyllon
71 Followers 360 Following I'm here to sprinkle magic, amplify the voices of the abandoned and stricken, and do all things with Love. #Love #MutualAid #Disability
Beatrice Egli @BeatriceEgli38
8 Followers 373 Following
Dr LG @subversivepsych
4K Followers 5K Following 🇮🇪➡️🇪🇸Dr(MD/MRCPsych) BSc(Hons)Pharmacol. Not medical advice. Life on hold. SARSCoV2 04/20 #LC #MECFS #CH #coagulonaut p/t #sloth 🦥 #endmedicalgaslighting
Beth @bethstuckey86
226 Followers 3K Following
MignonMarshall @k8006X6gV60G3F1
121 Followers 167 Following
cpg @HorseNutmeg
23 Followers 129 Following 3 1/2 years of the brutal Long Haul Covid, something I didn’t ask for, but some people share their germs, knowing they were exposed. Need a cure ASAP.
CINDY WOLF @cynthia95606126
519 Followers 507 Following NEVER LET SOMEONE ELSE TELL YOU WHO YOU SHOULD BE
N Rog @Nc_Rog
1K Followers 2K Following Once highly active. Now mostly housebound due to Long Covid and resulting ME/CFS and POTS. First waver March 2020. Yes BEFORE the vaccine.
Meschelle Matthews @MeschelleM98344
127 Followers 3K Following
Jamie @jamie42gary
212 Followers 3K Following
Emily @emsea_squared
2K Followers 561 Following Animal lover, former over-achiever. ⭐️ Long Covid hell since March 2020
Verna @west_verna52
211 Followers 3K Following
April Brooks @AprilB52832
134 Followers 3K Following
OT_Skiff 💚 @OT_Skiff
3K Followers 4K Following Occupational Therapist on pause due to #LongCOVID & #POTS (March 2020). @LongCovidPhysio AHP committee #FBLC
Diana @salas74diana
177 Followers 3K Following
Vital Reaction® @h2vitalreaction
791 Followers 5K Following Full Body Rejuvenation! Vital Reaction® is a #health and #wellness company specializing in molecular #hydrogen. #LongCovid #MECFS #CKD #Fatigue #millionsmissing
Tracy Wells @TracyWells76791
108 Followers 3K Following
Kaila Cabrera @kaila91730
107 Followers 3K Following
Vicki @witherspoon_vic
199 Followers 3K Following
… Dear UNIVERSE… @pberrini
1K Followers 5K Following VOTES BLUE! OLD! Savvy! #LongCovid caretaker. (I USED to be OPTIMISTIC about our SPECIES !!!) #CovidSurvivors #longhauler #FBLC #NOVAVAX
Karine @koat71
699 Followers 2K Following Teacher.Longhauler.Currently on pause. French-Welsh 🇨🇵🏴 #CovidLong March 2020. #TreatLongCovid #LongCovid #apresJ20
Marie @kirchausen_mari
182 Followers 3K Following
Usui Spiritual Lernej.. @UsuiSpiritual
2K Followers 1K Following Our non-profit organization specializes in hands-on healing to improve well-being. #SelfHealing #Spirituality #Meditation #LifeForce
Kate @strandofgo
487 Followers 573 Following Feminist. Mother. Lover of Books, Nature, Politics and Humour. First Wave 🌊 #LongCovid #FBLC
Billy Hanlon @bhanlon15
12K Followers 11K Following Director of Advocacy & Outreach, Minnesota ME/CFS Alliance | Long COVID Ally
Rana Barua @catlover_page
2K Followers 5K Following Cat lover dedicated to promoting cat welfare and conservation. Devoted to rescuing and caring for animals in need, advocating for their rights
Joanna Bracey @gtcjo
1K Followers 1K Following Long Covid nonsense since March ‘20. Hopeful normal service will resume someday. Staunch 🏳️🌈🏳️⚧️ ally.
HT Burbridge @BurbridgeHt
633 Followers 1K Following Writes stuff. Having fun with the randomness of #LongCovid since 2020.
Long Covid Kids Choir @LCKChoir2022
463 Followers 3K Following 🎶We are the Long Covid Kids Choir 🎶 We explore sound, learn songs, practise breathing exercises, have fun&make choir friends from all over the world!
James @James5996699914
7 Followers 42 Following
Amanda Burleigh @optimalclampin1
2K Followers 3K Following
Dr. Lang Covid #FBLC @DrLangCovid
613 Followers 1K Following Existing with #LongCovid. Tweeting in Dutch and English.
Mary @miller_mary91
146 Followers 3K Following
Untame @UntameYourSpace
208 Followers 409 Following 🌿Curating botanical beauty for your space 🌱Lovingly nurtured 🌿Follow for lush inspiration 🪴Untame your space! #FBLC- A Long-hauler-run small business.
Laurel @ginn76laurel
223 Followers 3K Following
Faithless @FaithOxenbridge
2K Followers 3K Following Tired of defending my reality. Vax induced ME (still pro Vax) Bedbound. Not tired; sick. Used to write & teach. Here for the research and outrage.
Amp @SickofSelfish
409 Followers 2K Following 🇭🇲 😷 Spec.Ed.Teacher & advocate for ALL kids. HSP, ADHD, ME/CFS. Crazy about animals. Zero tolerance for anti-mitigation idiots. #SafeEdforAll #LongCovidKids
Colin Pidgeon #CleanA.. @baldypidge
2K Followers 1K Following Above ground. Mostly upright. Ireland Cricket fan. Poet. Painter. #LongCovidAdvocate Professional member of the #NerdCircle. Views not those of my employer.
Dr Jenny Ceolta-Smith.. @JCeoltaSmith
3K Followers 3K Following Not always X active & #NotWorkingWithLongCovid #OT PhD activist & advocate on health, well-being, welfare and work #LongCovid #FBLC #DWP +at:@WorkingWithLC
Cat @Catinmyfamily
842 Followers 1K Following Long Covid since 6/22 | Treatment Seeker | #FBLC | A new account for privacy
Nadine 🇨🇦 Long .. @NS_Beachbum
798 Followers 1K Following Long Covid/ME, POTS and MCAS since 2020 Nova Scotian, collects beach glass, cat mama (2), retired Comments are MO @[email protected] - Mastodon
Clark D Aiden @ClarkAiden65930
138 Followers 598 Following Marine engineers 👷 are responsible for the design, construction,and maintenance of ships, boats, and other 💼
Medical Gaslighting @MedGaslighting
1K Followers 1K Following Screenshots & stories of #medicalgaslighting/#medicalabuse. I’ll RT screenshots & your stories. #NoMoreMG #MyalgicEncephalomyelitis #LongCovid #ChronicIllness
Cristi (Ducky) Harvey @ReeshaHasha
407 Followers 840 Following Writer, Comedy writer, cleaner, errand runner, memer and trying to be a piano player 💪 #longcovid #teampulte #art #comedy #music
cpg @HorseNutmeg
23 Followers 129 Following 3 1/2 years of the brutal Long Haul Covid, something I didn’t ask for, but some people share their germs, knowing they were exposed. Need a cure ASAP.
CINDY WOLF @cynthia95606126
519 Followers 507 Following NEVER LET SOMEONE ELSE TELL YOU WHO YOU SHOULD BE
Sick and Tired,,, �.. @LyddPlant
280 Followers 564 Following ✨making stuff 24/7✨ sewist, larp, music and ~chaos~ ♿️🏳️🌈 🇬🇧 🇨🇦 (I’m an adult) They/He
Emily @emsea_squared
2K Followers 561 Following Animal lover, former over-achiever. ⭐️ Long Covid hell since March 2020
Kate @strandofgo
487 Followers 573 Following Feminist. Mother. Lover of Books, Nature, Politics and Humour. First Wave 🌊 #LongCovid #FBLC
Joanna Bracey @gtcjo
1K Followers 1K Following Long Covid nonsense since March ‘20. Hopeful normal service will resume someday. Staunch 🏳️🌈🏳️⚧️ ally.
MeditateNI @BuddhaBelfast
1K Followers 251 Following Offering meditation classes and retreats across Northern Ireland. Open anyone with interest in meditation or buddhist teachings, made relevant to modern life.
Enterprise Train @EnterpriseTrain
6K Followers 97 Following Enterprise Service links Belfast & Dublin and is jointly operated between NI Railways & Iarnród Éireann. We’re here 7am-8pm Mon-Fri - Sat & Sun 8am-6pm
Department of Health @healthdpt
50K Followers 929 Following News and information from the Health and Social Care Sector. Account maintained by the Department of Health in Northern Ireland.
Belfast Trust @BelfastTrust
25K Followers 361 Following Belfast Trust delivers integrated health & social care to Belfast and NI. Twitter monitored 9-5, Mon-Fri. Any questions email: [email protected]
Plushie Dreadfuls @PlushieDreadful
50K Followers 34 Following Peculiarly patched friends #PlushieDreadfuls #creepycute #plush #emotionalsupportplushies #dyspraxia
cats with jobs 🛠 @CatWorkers
2.2M Followers 172 Following Good cats being workers • Unionized • Mascot @JobertTheCat • Takedown/credit/submissions: [email protected]
Darren Barnes @Daz1976UK
62 Followers 169 Following Father of 2. Covid + Oct 8th 2023 #LongCovid. Had it mild but suffered fatigue in legs,spasms in calfs, backache, HR higher than before Covid on exertion.
Stephanie Grach MD MS @GrachStephanie
946 Followers 811 Following @MayoClinicGIM Physician specializing in ME/CFS, Long COVID, & associated complex disease | Assistant Professor of Medicine | She/Her/Hers
Nicola Tallant @nicolatallantsw
52K Followers 1K Following Investigations Editor, Sunday World. 🥇 Author, producer, podcaster. @CrimeNicola. @thewitnesspod Mail me: insta nicola_tallant_1 [email protected]
Police Lisburn and Ca.. @PSNILisCreagh
7K Followers 68 Following Official @PoliceServiceNI account. You cannot report crime via X. This account is not monitored 24/7. To report an issue call 101 or in an emergency 999.
Guus @guustweet
3K Followers 1K Following #LongCovid since jan’21 ♿️ - tweets with brain fog, so pls bear with me - 📣 tries to advocate @NietHersteld - eager to learn - she/her - tweets in 🇬🇧 & 🇳🇱
Conor Browne @brownecfm
36K Followers 3K Following Biorisk consultant specialising in COVID-19 business continuity, forecasting / analysis.
Sharon Eyre @ShazE1312
2K Followers 549 Following Retired after 40 years in NHS. Vaccine Injured which nearly killed me. AZ caused VITT and damaged my life forever. Batch #PV46671. Am I bitter? You bet I am!
IrishCvClan @irish_cv_clan
987 Followers 837 Following Irish based support group for people who have suffered adverse reactions to C19 vaccines. https://t.co/9JQNQnjwj2
JanetM @JanetM77746994
770 Followers 519 Following #vaccineinjured, johnson&johnson #vaccineinducedlongcovid.#canwetalkaboutit #dysautonomia #pots #smallfibreneuropathy
annie m @Annie07sunset
475 Followers 403 Following 2023 and the world seems very different, LC since sept 21. arty, foodie and love nature.
Søs @SosNielsen66
1K Followers 1K Following #FE2090 🤕Vaccineinjuried by Pfizer. July 2021. Son 24 hurt by Pfizer Aug 21 💔Mum of 4 kids. Used to hike,run,dance and be outdoor.
LongCOVID Patients Al.. @pwlcAlabama
139 Followers 224 Following Patient-Centric community platform for long Covid patients based in Alabama #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
Curly @curly4
716 Followers 4K Following Happy, Curly, Wife, The luckiest Mummy in the world, Giver of good hug. #T1D. #LongCovid March 2020
🦇 Jennifer 🐁�.. @Jenn030303
929 Followers 2K Following The creation of the world did not occur at the beginning of time, it occurs every day. Marcel Proust
Kelly Keeney @kellykeeney3
59 Followers 175 Following Long Covid Patient (3 years 4 months), Advocate, Public Speaker and lover of life.
Alex Bahram @alexanderbahram
805 Followers 1K Following CEO of @pathizehealth. Working on helping people manage Long COVID and other chronic illnesses. ME & POTS for 8 + years. No one gets left behind.
angela mv/p 💁🏻�.. @ItsAngInLA
4K Followers 3K Following 🦠 personal #LongCOVID clinical research social acct | she.he.ella.èl| Los Angeles 🐦🙋🏻♀️ #NEISvoid #MCAS #hEDS #HyperPots #MECFS #UCTD #MigraineChat
BBC News (UK) @BBCNews
15.3M Followers 85 Following News, features and analysis. For world news, follow @BBCWorld. Breaking news, follow @BBCBreaking. Latest sport news @BBCSport. Our Instagram: BBCNews
Sick Hebrew @ZionistJoe
2K Followers 1K Following aka Angry Joe. Proud Zionist. COVID fucked me. #LongCovid #IStandWithIsrael 🇮🇱🇮🇱🇮🇱
Anne 🌊 @searose2012
1K Followers 3K Following Still trying to level up #FirstWaveCovid (Mar 6) #LongCovid
The impatient patient @HalfThePerson
910 Followers 476 Following Ultramarathoner, triathlete & #LongCovidAdvocate I never wanted to be
#LongCOVID Patients N.. @pwlcNewzealand
289 Followers 855 Following Patient-Centric community platform for Long Covid patients in New Zealand #longcovid #healthequity #healthjustice #dataprivacy. Part of @CareConnectlc
Beni @Benshi_11
409 Followers 276 Following
Nick Melia @arta_semita
1K Followers 1K Following Systems biochemist, researcher @RenegadeRes Studying the etiology and pathogenesis of Long COVID and Myalgic Encephalomyelitis (ME)
Eureka Health @EurekaHealthApp
4K Followers 211 Following We're on a mission to accelerate the discovery of new treatments and cures for chronic disease.
Brandon Gilles @BrandonGilles
4K Followers 1 Following Curious about everything. Documenting recovery from Long-COVID (myalgic encephalomyelitis).
SSAFA Northern Irelan.. @SSAFA_NI
91 Followers 91 Following We are the Northern Ireland branch of SSAFA, the Armed Forces charity, providing lifelong support to our Forces and their families.
Why you should have a.. @ShouldHaveCat
3.9M Followers 258 Following The perfect account to show to your parents when you want a cat 😺❤
Ellen Toole 🦞 @ellentoole
528 Followers 2K Following Finance Director at Partners for Peace. Teacher of English as a Second Language. Now living with Long COVID since March 2020. Opinions are my own
Helen Goss @HelenMMGoss
2K Followers 953 Following 🏴 @longcovidkids ❤️🔥 Parent/carer #LongCovidKids 🤘🏼 Advocate #LongCovid 🐾 Cat spam 🪐 Space nerd 🌪️ Chronically persistent force of nature
Patrick Gallagher @patrickG731
2K Followers 3K Following Post-Doc Researcher SETU. HECAT 2020. Political Economy of Finance, Financialisation, Soc of Development, IPE, CPE, Labour Markets. #LongCovid
Mellifluous 💙 #Res.. @YooHooHippyLady
2K Followers 3K Following When the Power of Love Overcomes the Love of Power the World Will Know Peace- Jimi Hendrix 🐾🐈 #FBLC 💙🩵💙 🚫No Tories
🏴 Penelope 🚩 @LaRougeAbeille
2K Followers 5K Following analog photographer, perfumer,visual artist, bibliophile, heliophobe. Invisible Kingdom dweller 🚫 kyriarchy #FreePalestine She/They. #LongCovid 12/2020Giant Military Cats of the French resistance blow up trains so Nazis can't use them in 1943 occupied France. Colorized.
Did you know when you standup quickly from a seating position and feels dizzy, is known as I Orthostatic hypotension. Which is form of low blood pressure.
I had to declare my #LongCovid for a trip this year. But what’s even more interesting is that my insurer had a drop-down menu for various conditions directly relating to Long Covid, including heart inflammation, lung damage & blood disorders. Oh, they so know. #CovidIsntOver
I had to buy travel insurance for an upcoming trip. Guess what? Insurers want to know all about one's #LongCovid. The insurance sector knows the sheer scale+ cost of Sars-2. When public health is deliberately silent on the harms, let's follow the money and listen to insurers.
@Translink_NI @LilyPinkBaker Here Translink why don't we all start travelling like this?
Lambeg phantom crocheter smashes it again 🤩 just absolutely love these! They really cheer up the whole community 😊🐙🐠🪸🐡
@LilyPinkBaker @Translink_NI Belfast's Grand Central Station Opening Day.
@LilyPinkBaker @Translink_NI .@williamcrawley read this thread....😳
@LilyPinkBaker @Translink_NI Please please share with journalist from utv or bbc. This needs to be told truth about translink!
@LilyPinkBaker @Translink_NI This service has been a joke for years. They have heard it all before and nothing changes. Take one of the bus services ( not Translink) next time they are much better.
@LilyPinkBaker @Translink_NI When I have friends from other (actually functional) places, come here & say, let's goto Dublin for the craic & a few drinks & I say 'I'll just sort out a hotel & somewhere to park car' & they're all like 'Why, we'll just get the train sure' - in future I'll point to this thread.
@LilyPinkBaker @Translink_NI That is some response from Translink. We sell tickets for our trains but dont be thinking that gets you on! Outstanding customer focus as usual. Seriously guys - get your act together.
So if you’re heading to Dublin today on the train get here VERY EARLY
Simply obsessed with translink being like babe, a ticket is just vibes. It’s the ether, merely a concept. It’s the thought of a journey. You have a ticket but we might sell it ten times over and it doesn’t mean you can get on the train. It’s the essence of a ticket.
@LilyPinkBaker Hi Claire, apologies for any inconvenience caused. As per the Ts & Cs agreed to upon booking, a standard class ticket does not guarantee a seat on the train - all seats would be on a first come first served basis. ^PD
Turned up 20 mins early for @Translink_NI train to Dublin and it’s over sold. Booked 4 tickets a month ago, they said did you book a reserved seat? I said no I booked a ticket she said “a ticket is just a ticket” what? That’s what a ticket is!!
Translink say, 'booking, a standard class ticket does not guarantee a seat on the train'
Turned up 20 mins early for @Translink_NI train to Dublin and it’s over sold. Booked 4 tickets a month ago, they said did you book a reserved seat? I said no I booked a ticket she said “a ticket is just a ticket” what? That’s what a ticket is!!
Good morning to everyone, but especially the @Translink_NI driver who waited a minute for a frazzled mum and her school child daughter to get on. The kid does *not* want to go to school. #BackToSchool
“All aboard” @Translink_NI @TranslinkNIR Biscuit enjoying her training this morning. @guidedogsni @AntrimLens @gymforthesoul @iamfifig @RobbieButlerMLA @WeatherCee @taramillstv @DermotNCosgrove @stephenblevins9 @CllrGlennBarr @RobinNewton4MLA @Maidenbelfast
On the cat walk… (Photo @PoliticalPics)
Don't wake the giant military cat
Unfortunately I had reason to be in the ED at my local hospital yesterday. While staff did have masks on (the flimsy blue ones 🤦♀️), I'd say 50% had them down on their chin. We should be doing better. It's not solely about covid, either. #Wexford
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