Janet Stockley-Pollard @JanetSP1968
Mum of 5, 3 of my children have a diagnosis of Fetal AntiConvulsant Syndrome(inc Autism). janet4kidz.wordpress.com Bognor Regis, West Sussex Joined June 2011-
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@edwardjsault I thought about your meeting last year when I saw this, very sad x
@edwardjsault @jocuz1971 @VpaVictims @karenbuck1234 @OACSCharity @oacsireland @emmafriedmann
I have received an initial response to the recommendations on redress set out in my report three months ago and await a full response from the minister before the summer - see ministerial letter at patientsafetycommissioner.org.uk #redressnow
Research valproate by finding the lost children who are now in their 40’s. We can learn a lot from them & providing government do the right thing they will get redress @OACSCharity @oacsireland @ValproateUK @karenbuck197150 @JanetSP1968 @facsaware @Emma4facs
Alongside our Founding Partners, @EpilepsyInst is capacity building the research ecosystem to enable researchers to address the questions most important to the #epilepsy community: epilepsy-institute.org.uk/eri/research/r… Today's announcement is an encouraging sign the government share our goal.
Any redress, if it happens, needs to be managed by a completely independent trust, where no beneficiaries are involved in decisions around individual finance/support. #redressnow @OACSCharity @emmafriedmann @facsaware @oacsireland @edwardjsault @CLapidge @karenbuck1234
I came to a sad realisation today. I never thought my daughter having FVSD was my fault. I tend to be matter of fact about my epilepsy & my daughter’s FVSD. Today I realised I do blame myself. I have been in denial @OACSCharity @oacsireland @PSCommissioner
Thank you @AndyFriedmann you were brilliant! Thankyou @JasonFarrellSky @therealSophieH @ChloeKeedyITV for your #RedressNow reports on @BBCNews @itvnews @SkyNews Great to catch up with @jocuz1971 @CLapidge @JanetSP1968 @ValproateUK @rebbromley @DIBBody #valproate #facsaware
@SkyNews @JasonFarrellSky At c£244,000 for an *able child in care, families with a child age 20 have saved the taxpayer £4.88 million A child with a disability in a care home could cost twice that. #dothemaths @Jeremy_Hunt @fosteringnet @Boz_law @DIBBody @MeshCampaign @OACSCharity @Factor8Campaign
@LeoVaradkar @DonnellyStephen #oireachtas while Irish families continue to suffer. @RTE_PrimeTime Ministers must begin paying compensation to the families of children disabled by the epilepsy drug sodium valproate by next year, a report will say this week thetimes.co.uk/article/valpro…
@edwardjsault @loosewomen @BBCNewsnight @thismorning #valproate
Article in the @thetimes 1982 then nothing until 1996 @ShaunLintern @JasonFarrellSky @therealSophieH @PSCommissioner @DIBBody
@MsChopsy @HedyFletcher @BBCNewsnight @vicderbyshire Thank you for sharing route for pursuing #valproate #BirthDefects #AccessToJustice #KarenBuck Brigit was Test Case in the FAC GLO, Claimant V Sanofi, #Epilim Litigation #LegalAid was withdrawn Karen should've been in this 2011 photo but Brigit was ill youtu.be/Mi89I7qkCJ8?si…
Eleven years on and still fighting ....@PSCommissioner @ShaunLintern @edwardjsault @wesstreeting
@ShaunLintern @wesstreeting @BBCNewsnight
@BBCNewsnight oacscharity.org OACS Charity UK has been around since 1999, there's been other support groups before. How Politicians can sleep at night until families like @karenbuck197150 @karen_keely @JanetSP1968 @ValproateUK get #Redress #Valproate @BBC_CurrAff @therealSophieH
Well done @karenbuck1234 you were amazing. You made them listen. Watch here at 29.32 mins @PSCommissioner @edwardjsault @oacsCharity @oacs @wesstreeting @ValproateUK @ShaunLintern bbc.co.uk/iplayer/episod…
Well done @karenbuck1234 you were amazing. You made them listen. Watch here at 29.32 mins @PSCommissioner @edwardjsault @oacsCharity @oacs @wesstreeting @ValproateUK @ShaunLintern bbc.co.uk/iplayer/episod…
@DonnellyStephen @roinnslainte @conwaywalsh, many thanks for your ongoing support throughout. It is an absolute #Scandal that a chair has not been found for the #Valproate #Inquiry oireachtas.ie/en/debates/que…
Families affected by foetal valproate spectrum disorder to meet DoH on ‘delayed’ inquiry medicalindependent.ie/in-the-news/br… #sodiumvalproate @roinnslainte @DonnellyStephen @oacsireland
Things need to change families have been fighting for over 3 decades, this just adds to an already difficult situation...@wesstreeting @OACSCharity @oacsireland @CLapidge @edwardjsault @Jeremy_Hunt @PSCommissioner @ValproateUK
🚨 EXC: A generation of children left permanently disabled by epilepsy drug sodium valproate, are being hauled in front of degrading and barbaric DWP tribunals that has left some traumatised 1/8
🚨 EXC: A generation of children left permanently disabled by epilepsy drug sodium valproate, are being hauled in front of degrading and barbaric DWP tribunals that has left some traumatised 1/8
The scandal continues, not just in the UK..@ShaunLintern @PSCommissioner @edwardjsault @JaneFellner @OACSCharity
🔴 The Double #Victimisation of #Children #Affected by #Epilepsy #Drug Sodium #Valproate bnnbreaking.com/breaking-news/…
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