Mark Jordon @JoepopProds
Totally committed father of four, fiancé of @lawrencenotrin .I’m represented by @Wintersons. Trustee at https://t.co/BzSWZ4RUSr instagram.com/cureusher?igsh… United Kingdom Joined November 2012-
Tweets12K
-
Followers20K
-
Following339
-
Likes28K
Today is National BSL Day celerbating the 2nd anniversary of the BSL Act 2022 Here’s a throwback of the England Deaf Women’s Football Squad signing the National Anthem at the World Deaf Football Championships 2023 in Malaysia #nationalBSLDay #britishsignlanguage #GodSaveTheKing
Shes off to meet the King. So proud of @jomilne10 Founder of @CUREUsher devoted her lifes work to raising awareness of Usher Syndrome. A true inspiration. Thoroughly deserved recognition.
"Despite its significant impact, Usher syndrome remains underrecognized, with a misdiagnosis rate of 40%, underscoring the critical need for heightened awareness and understanding." cambridge-design.com/news/introduci…
It’s been such an amazing time for us @CUREUsher , having @coldplay agree to us using their song for our film, #DramaQueens highlighting our family’s journey with usher syndrome and then there’s the storyline in @bbceastenders. More news coming .. #ushersyndrome #touchablememory
@bbceastenders & @CUREUsher are raising awareness of #UsherSyndrome. Character Britney has been diagnosed with this #RareDisease where children are born with hearing loss & then lose their vision progressively from #RP in childhood. Read more: gene.vision/knowledge-base… #GeneVision
@bbceastenders & @CUREUsher are raising awareness of #UsherSyndrome. Character Britney has been diagnosed with this #RareDisease where children are born with hearing loss & then lose their vision progressively from #RP in childhood. Read more: gene.vision/knowledge-base… #GeneVision
This week @bbceastenders has aired episodes showing character Britney being diagnosed with Usher Syndrome. What a landmark for this community. Awareness on another level. Usher syndrome is rare. But as a community we are united. @CUREUsher @Usherkidsuk @mollywatttrust
What is Usher syndrome? EastEnders' Britney diagnosis explained radiotimes.com/tv/soaps/easte…
GBDF receive no central funding from the UK Government or any other sources and we need your help. Our fundraising page and sponsorship packages will be launched soon. If you are able to support in anyway, please message or email [email protected] Many thanks GBDF
Are you all watching @bbceastenders at the moment? First ever Usher Syndrome character in a soap. First few eps of this storyline have been so powerful. What a landmark for the Usher community. Visit us @CUREUsher if you want to know more! #ushersyndrome #EastEnders
Thank you @BBCNorthPR @Ladyannafoster for having us on the show today talking all things #UsherSyndrome @CUREUsher 🎧🎙️ Available to listen via bbc.co.uk/sounds/play/p0…
It's great when TV mirrors reality. We’re thrilled that EastEnders is highlighting Usher Syndrome, a condition causing both hearing and sight loss. Discover more about Usher Syndrome and the charity supporting those affected by it 🔗 ow.ly/j6wA50RkYRG
Laura Whitaker, one of our administrators, lives with Usher syndrome -a rare genetic condition combining hearing & sight loss. Watch this fantastic short film from @CUREUsher with her on their ‘touchable memory’ shining a light on the condition. youtu.be/SQXHR3sfoZw?si…
EastEnders character gets devastating diagnosis ahead of 'triple exit' mirror.co.uk/tv/tv-news/bbc…
EastEnders heartache for Whitney Dean as daughter diagnosed with rare condition ok.co.uk/tv/eastenders-…
EastEnders confirms Usher Syndrome diagnosis for major character metro.co.uk/2024/04/15/eas… via @MetroUK
The Cure Usher Ball 2024 is proud to announce our DJ , it’s the one the only, Michael Grierson House Poet . Tickets are moving fast so get yours now - thecureusherball.com. @CUREUsher
Fantastic read - raising awareness of #UsherSyndrome #CureUsher
Fantastic read - raising awareness of #UsherSyndrome #CureUsher
Huge thank you to @maisiespackman and @MetroUK for helping us to raise awareness of the condition Usher Syndrome. Together with @CUREUsher @lawrencenotrin and myself are dedicated to the search for a cure. metro.co.uk/2024/03/21/emm…
I had the absolute pleasure of talking to the gorgeous @lawrencenotrin and @JoepopProds yesterday about all things CUREUsher. Please do have a read about why this is such an important cause🫶 metro.co.uk/2024/03/21/emm… via @MetroUK
This film from @CUREUsher and @HAVASLYNXEU harness technology to help people feel memories again. hubs.la/Q02qft4n0
Michelle Hardwick @ChelleHardwick
117K Followers 2K Following Mummy, wife, actress. Vanessa the vet in Emmerdale. Agent Amanda Beckman @ABA_Agent Personal Management @NGMManagement @MelanieBlakeUKLISA RILEY (BLUE TICK.. @Reallisariley
141K Followers 8K Following Actress loving what i do each and everyday!!!! playing MANDY DINGLE in @emmerdale @itvMark Charnock @markcharnock
186K Followers 675 Following Freakishly tall northern fictional chef. Actor in #Emmerdale . All opinions my own. Soz. Agent: Belinda Wright: [email protected]Nicola Wheeler @nicola_wheeler
103K Followers 313 Following actress, dancer, singer song writer... ok just actressjames hooton @jamhoot
30K Followers 413 Following Actor on Emmerdale as Sam Dingle since 1995, dad of 2, climber, gamer, proponent of freedom of choice and expression. Enquiries: [email protected]Dominic Brunt @dominicbrunt
114K Followers 5K Following That Paddy off of Emmerdale Farm..oh you doo…the vet! Filmmaker, Archaeologist, Technical Sheet Metal Developer, Welder, Land Rover Enthusiast..really boring.Samantha Giles (blue .. @sammeegiles
61K Followers 385 Following Actress and author. represented by https://t.co/2fcb1UUsOH Literary agent: https://t.co/0aEEX8roGyDan Ryan @_DanielRyan
45K Followers 2K Following Acting - Zoe Stoker @TheAPartnership Voiceover - Anthea Woodus @AntheaRepresenttamzin outhwaite @mouthwaite
271K Followers 7K Following Agent : John Grant,Conway Van Gelder Grant/Kate Plumpton, Q Voice for voice overs -SCOTT MASLEN @RealScottMaslen
235K Followers 39K Following Official & Genuine Scott Maslen Twitter: Updated by Scott himself...but I do dictate to my wife sometimes! And have Obsessive Carp DisorderHeartbeatTV @TvHeartbeat
6K Followers 999 Following Celebrating the best TV show; the cast/crew, guests, writers, cars & scenery! Heartbeat car owner &memorabilia collector. Clips shared under the Fair Use Law.Chris Bisson @ChrisBisson
108K Followers 828 Following Actor - #Emmerdale - Jai #Corrie - Vik #Shameless - Kash * East is East - Yes, I made the f@nny! *** Moss Side Manchester Trinidad. Views are my own. 🇺🇦hayley tamaddon @hayleysoraya
134K Followers 4K Following single mum to jasper. Actress. northern. Persian. writes. sings. [email protected] [email protected] voice overs - QVoice - voice over galleryTommy Cannon @TheTommyCannon
39K Followers 8K Following Entertainer/Actor/Father/Husband /Half of Cannon and Ball⭐️ management: [email protected]Katherine Dow Blyton @BlytonDow
34K Followers 619 Following Actor. Represented by TAP The Artists PartnershipKym Marsh @msm4rsh
741K Followers 3K Following Actress, singer, proud mum to David, Emilie, angel Archie and little Polly ❤️ wife to Scott 💙 Loli to Teddy 💙 all enquiries contact [email protected]Gaynor Faye @MsGfaye
100K Followers 641 Following Just keep smiling & things will turn out alright! NMRKNatalie Ann Jamieson @nataliejamieson
16K Followers 3K Following Actor: Amy Wyatt @Emmerdale @ITV. Podcast: @adlibbingpod.Moorfields Eye Hospit.. @Moorfields
15K Followers 879 Following We are a world-class centre of excellence for eye health services, research, and education. This account is monitored Mon-Fri 9am-5:30pm.Gina Bowie @GinaBowie555955
148 Followers 710 Followingkaren armstrong @ashkarmstrong
2K Followers 2K Following former house maid dresser buckingham palace royal household...Rebecca Harland @RebeccaHarland_
1K Followers 3K Following Actor 🎭🦻🏻 South East London Based | Ellie in BBC Casualty's First Ever Improvised Ep 'Thin Green Line'UK Eye Genetics Group @UKEyeGenetics
810 Followers 119 Following UK Eye Genetics Group represents all gene-based topics in the eye #Genetics #Genomics #Education #Research #InheritedEyeDisease #GeneTherapy #GeneticCounsellingStefan Follows @StefanFollows3
61 Followers 406 FollowingCharlie Stubbs @CharlieStu13681
209 Followers 278 FollowingJo @poppyjo
38 Followers 179 FollowingBeAware, the d/Deaf A.. @BeAware4Deaf
53 Followers 102 Following BeAware, crafting tech products for the Deaf & Hard of Hearing: DeafAssitant ConferenceCaptioning HealthScribe FamilyTalk #DeafTech #AgeTech #MedTechkindness cost nothing.. @Andrearyan1973
23 Followers 116 FollowingStasia Taylor @StasiaTayl76967
46 Followers 1K FollowingChris Lewin @ChrisLewin
905 Followers 2K Following Passionate about radio/journalism along with Daytime TV. My Twitter interactions do not represent those of my employer(s).Emily Rankin @emcon16
65 Followers 1K FollowingEntsSouthWales @EntsSouthWales
2K Followers 3K Following 🏴 Entertainment News for South Wales 🎼 Music 🎭 Theatre 🎞️ Arts ✉️ [email protected] #EntertainmentKevin Rae @KevinRa34013276
5 Followers 112 Following🌈Lincs Xmas Market.. @LincsXmasMarket
10K Followers 10K Following Lincoln Christmas Market. Was the best four days of the year. Memorable - Nostalgic - Traditional #LincolnChristmasMarket 🎅🌲🎁☃️ ❄Tracey Corbett @TraceyC92404727
0 Followers 300 FollowingLeigh @leigh_busu
143 Followers 1K Following💫Shannon Robyn Mur.. @TheAnimeRobyn
17 Followers 369 Following Meme Queen ・ Owner of confused instrumentventure & space tech @Kaiowen207
30 Followers 425 Following https://t.co/YlFE6sbRh5 https://t.co/gG55ajzxVeMike @Mike29538051
40 Followers 195 Following Chairman of Stockport blind/partially sighted 10 pin bowling clublisa easton @lisaeaston
135 Followers 991 Following mum of 3 kids 2 of whom have cystic fibrosis i have 4 grandkids who i love to the moon n back so proud of my princess aimee married to wolfman we still strongThe QT @TheQTonline
2K Followers 2K Following A New Voice for the North East. Quality journalism from quality journalists. Meaningful news that matters. A new edition every Thursday.Retina UK @RetinaUK
5K Followers 840 Following We support people affected by inherited sight loss and invest in medical research to ensure people affected can lead a fulfilling life.Ellie Cain @ELClennon
4 Followers 39 FollowingSharon Susan Marie st.. @SharonSusanMar5
21 Followers 557 Following I like watching the V8s supercars championship _emmerdale_coronation Stree_eastenders _hollyoaksSharon Steinhardt @SharonStei81192
2 Followers 1K FollowingLuna @uby_r71367
5 Followers 791 FollowingLuna @aj827s65018
4 Followers 791 FollowingRED DEVIL MUFC @REDDEVILMU29328
228 Followers 2K FollowingLuna @HarperHila45824
3 Followers 757 FollowingAmy Mason881 @NOWPOP2023
26 Followers 132 Followingyes @coconut_watr
129 Followers 2K FollowingTerry Sinclair @TerrySinclair17
118 Followers 1K Following Renal Patient On Haemodialysis Muddling Through. “Imagine What Life Would Be Like If Humans Never Evolved”Courtney wardle @wardlecourts16
0 Followers 193 FollowingJJKG Official @OfficialJJKG
108 Followers 181 Followingtrader Elizabeth @TraderEliz30340
243 Followers 4K Following BINARY ACCOUNT MANAGER Forex trader📈 Binary trader📉 Crypto Investor Bitcoinminig💰 Serious client only 🚫 Shoot me a DM now📩PTM Events @ptmevents
6 Followers 55 Following Small events company, based in Yorkshire. Providing lighting, sound and full production services to your next event or show! Get it touch! [email protected]Ruth Waterhouse @WaterhouseRuth
98 Followers 350 Following Counsellor,Married,mum to two grown up children.I love to travel and walk.Ramona Ramroop @flutevienna
137 Followers 1K Following B Mus (Hons) Cardiff University. Pianist & lover of tea.David Barry @barrydavid1962
201 Followers 4K FollowingDuckmomma @Duckmomma371915
43 Followers 502 FollowingMichelle Hardwick @ChelleHardwick
117K Followers 2K Following Mummy, wife, actress. Vanessa the vet in Emmerdale. Agent Amanda Beckman @ABA_Agent Personal Management @NGMManagement @MelanieBlakeUKLISA RILEY (BLUE TICK.. @Reallisariley
141K Followers 8K Following Actress loving what i do each and everyday!!!! playing MANDY DINGLE in @emmerdale @itvNicola Wheeler @nicola_wheeler
103K Followers 313 Following actress, dancer, singer song writer... ok just actressjames hooton @jamhoot
30K Followers 413 Following Actor on Emmerdale as Sam Dingle since 1995, dad of 2, climber, gamer, proponent of freedom of choice and expression. Enquiries: [email protected]Dominic Brunt @dominicbrunt
114K Followers 5K Following That Paddy off of Emmerdale Farm..oh you doo…the vet! Filmmaker, Archaeologist, Technical Sheet Metal Developer, Welder, Land Rover Enthusiast..really boring.Dan Ryan @_DanielRyan
45K Followers 2K Following Acting - Zoe Stoker @TheAPartnership Voiceover - Anthea Woodus @AntheaRepresenttamzin outhwaite @mouthwaite
271K Followers 7K Following Agent : John Grant,Conway Van Gelder Grant/Kate Plumpton, Q Voice for voice overs -SCOTT MASLEN @RealScottMaslen
235K Followers 39K Following Official & Genuine Scott Maslen Twitter: Updated by Scott himself...but I do dictate to my wife sometimes! And have Obsessive Carp DisorderBBC EastEnders @bbceastenders
2.4M Followers 5K Following Official BBC EastEnders with the latest news and gossip from Albert Square.Chris Bisson @ChrisBisson
108K Followers 828 Following Actor - #Emmerdale - Jai #Corrie - Vik #Shameless - Kash * East is East - Yes, I made the f@nny! *** Moss Side Manchester Trinidad. Views are my own. 🇺🇦hayley tamaddon @hayleysoraya
134K Followers 4K Following single mum to jasper. Actress. northern. Persian. writes. sings. [email protected] [email protected] voice overs - QVoice - voice over galleryKatherine Dow Blyton @BlytonDow
34K Followers 619 Following Actor. Represented by TAP The Artists PartnershipKym Marsh @msm4rsh
741K Followers 3K Following Actress, singer, proud mum to David, Emilie, angel Archie and little Polly ❤️ wife to Scott 💙 Loli to Teddy 💙 all enquiries contact [email protected]Gaynor Faye @MsGfaye
100K Followers 641 Following Just keep smiling & things will turn out alright! NMRKNick Miles 💙 @Nick_Miles_
68K Followers 2K Following Actor currently in Emmerdale playing Jimmy King, tweets are my own, retweets are not endorsements. Proud to have been blocked by Piers Morgan.AlisonHardcastle @AJ_Hardcastle
482 Followers 129 Following Professor Of Molecular Genetics, Deputy Director, UCL Institute of Ophthalmology. Likes genomes and the natural worldShaw Trust Accessibil.. @ShawTrusta11y
1K Followers 1K Following Accessibility Services is a charitable enterprise by @ShawTrust, specialising in digital accessibility, disabled user testing, training, and consultancy. #a11yVision Foundation @Vision_Fdn
3K Followers 2K Following Changing lives and saving sight since 1921. Merging with @FightForSightUK from April 2023. Find out more via the link below 🔗UK Eye Genetics Group @UKEyeGenetics
810 Followers 119 Following UK Eye Genetics Group represents all gene-based topics in the eye #Genetics #Genomics #Education #Research #InheritedEyeDisease #GeneTherapy #GeneticCounsellingFight for Sight @fightforsightUK
13K Followers 2K Following The UK’s leading charity funding pioneering research into sight loss that saves sight and changes lives! Merging with @Vision_Fdn from April 2023.Hear The Picture @HearThePicture
607 Followers 623 Following Hear The Picture is an actor-led audio description company. Pushing the boundaries of creative access for visually impaired audiences within theatre.Coldplay @coldplay
23.3M Followers 758 Following The official Twitter of the band Coldplay. Latest album Music Of The Spheres out now. Music Of The Spheres World Tour in 2024.UK Deaf Sport @deafsport
10K Followers 1K Following UK Deaf Sport launch our campaign for #FairPlayForDeafAthletes. Calling on the Government to #FundDeaflympicsGB & #EndDeafSportDiscrimination.Cambridge Design Part.. @CDP_innovation
1K Followers 2K Following We're a technology & product design partner working with the world's leading brands & businesses #Innovation #Healthcare #Consumer #Tech #DrugDelivery #ResearchClaire Stancliffe @clairels1989
4K Followers 3K Following England & GB Deaf Women’s footballer | 3 time Deaflympian & 4 time bronze medallist | Public Speaker | Sponsored by https://t.co/9Ip39rNkhVMatt Eagles ⚒️#CO.. @MattEagles
7K Followers 8K Following Head of Patient Voice @HAVASLYNXEU ⚒lifelong Hammers fan lived with parkinsons for 50 years - judge at the #BurberryBDA's 2023/24Rollem Productions @RollemProdCo
4K Followers 263 Following A production company with a difference. Independent - Female Led - Northern and Proud. Founded by Kay Mellor OBE.Ian-Lloyd Anderson @ianloydanderson
3K Followers 1K Following Actor. Dad. Dub. 🇮🇪 rep @LisaRichardsLtd UK rep 42. Hangmen @gaiety_theatre and The Long Shadow on @itv and @itvxSi Fern @siferneyhough
157 Followers 264 Following Assistant Director on Emmerdale/Cori/ Actor Represented by Lucia Victoria ManagementVictoria Elliott @VickyForShort
72 Followers 69 Following Actress. Geordie. Vegan. No relation to Billy.Eyes On Research @Eyesonresearch
108 Followers 106 Following Digesting the latest scientific innovations in ocular research using simple and understandable terms. A #podcast communicating science by @tacguimaraesJohn Bladen @DrJohnBladen
269 Followers 116 Following Consultant Ophthalmologist and Oculoplastic Surgeon at @KingsCollegeNHS, Dad and keen Beekeeper 🐝Graham Dutton @GrahamDutton5
49 Followers 115 FollowingAndy O’Halloran @Andyohalloran
89 Followers 431 Following Security & Safety Consultant, licensed close protection officer, NEBOSH safety officer, event security & logistics husband to Rachel & Dad to 4 boysmaisie spackman @maisiespackman
1K Followers 505 Following 24 | UK | she/her | soaps reporter for @metroUK | ur local soap detective🕵️♀️ ‘i like ur shoes with the bats’BBC Manchester @BBCRadioManc
153K Followers 3K Following Celebrating people and stories from across Greater Manchester 🐝 🔊 Listen to BBC Radio Manchester on @BBCSounds ⚽ Follow @BBCRMSport 👇 Tap for more storiesJames Aldred @jamesaldred99
745 Followers 3K Following 25. Broadcast Journalist for @BBC. Ex-@URN1350 & @LADBible Group. The Toffees & The Saints.Deaf Rave @DeafRave
2K Followers 1K Following Deaf Rave Founder & CEO - My life is into Music, Workshops, Events and Festivals.WAWA @diphopwawa
5K Followers 998 Following Rapper/Actor/Martial artist/Deaf and Proud/Dip Hop artist who'll make you hear him.. Did you catch the Super Bowl LV and LVI? Yup, this guy.BBCSeeHear @BBCSeeHear
6K Followers 813 Following Studio based chat show for Deaf & hard of hearing people. BBC's 5th longest running factual series.Yvonne Y Cobb @YvonneCobbYumma
2K Followers 417 Following Food & Lifestyle TV Presenter Celebrity Cook Deaf Advocate Breaking down barriers in the kitchen/on TV @bbcseehear @bbcmorninglive [email protected]Katie Littlejohns @KatielittleJ
476 Followers 672 Following Proud to be a parent ambassador for the British Deaf Association, campaigning for free BSL Courses for parents of deaf children.deafPLUS_UK @deafPLUS_UK
5K Followers 829 Following deafPLUS, formerly Breakthrough, is a registered charity working to encourage integration and equality between D/deaf and hearing people in all areas of life.Chris Barnes Ⓥ @BRUTALPosters
18K Followers 2K Following Universal | Warner Bros | Paramount | BBC | ITV | Ch4 | MGM | A24 | Fangoria | Vinegar Syndrome | Shudder & more | IG: brutalposters_Steph McGovern @StephLunch
429K Followers 1K Following Podcast @therestismoney Hosted 625 eps of BAFTA nominated ‘Steph’s Packed Lunch’ on @Channel4. Former engineer+retired Irish dancer [email protected]Steph's Packed Lunch @PackedLunchC4
27K Followers 815 Following 📺 #StephsPackedLunch @Channel4 🍴 Lunchtime fun with @StephLunch and the fam! 👉 How we use your data: https://t.co/OOjT4rbqG0 📧 [email protected]Dan Parr @DanParrActor
602 Followers 1K Following @CAM_London @sohovoices @HearThePicture https://t.co/aRCsmBDUi8 Northerner based in London xWayne Bamber @bamberwayne2023
4 Followers 10 Following No matter who you are in this world or what job you have or the money you have . we are all equals. cost nothing to be nice .Debbie Howard @Debbie_Howard1
7K Followers 2K Following Film & TV Writer/Director. @BigBuddhaFilms. Rep'd by @UKRevolution. @BAFTA & @BIFA_film member. #Emmerdale #Corrie #Doctors #Grandpa https://t.co/0yLsqMukr0Big Buddha Films @BigBuddhaFilms
3K Followers 2K Following Indie film co founded by @Debbie_Howard1. Rep'd by @UKRevolution. Latest BFI Network funded award winning short film ‘Safe’. Trailer https://t.co/aMWAf5anmvDavid Ashton @spiralvinyl3345
70 Followers 97 Following Proud Father of 3, Christian and an EDM vinyl collector.Lauren Laverne @laurenlaverne
497K Followers 5K Following Broadcaster. For professional enquiries please contact @ITG_360 and @AdVoiceOfficialJustin Moorhouse @justinmoorhouse
76K Followers 4K Following Comedian then Dog Walker then Parent. Undercover Vegan. Podcaster @3045podcast @rfipod #nopromises #benice Artwork by @stan_chowCindy @Cinderz0707
33 Followers 51 Following Mummy to two beautiful children Specialist Learning disability NurseThomas Pocklington Tr.. @PocklingtonHub
6K Followers 1K Following Thomas Pocklington Trust is a charity led by and for blind and partially sighted people.Paula_Lane @lane_paula
219K Followers 2K Following Actress Yorkshire 👊🏻 currently playing Ella in Emmerdale. Mummy x 2 + 1 🐾 Agent - Gardner Herrity. Voice Agent - Babble. Principal - Lane Shaw Academy🦻🏽Raymond Antro.. @RaymondAntrobus
3K Followers 387 Following Hackney Boy & Author of ‘To Sweeten Bitter’, ‘The Perseverance’ ‘All The Names Given’ & children’s picture book, ‘Can Bears Ski?’. He/Him.Samantha Baines👑 @samanthabaines
9K Followers 5K Following TV Actress | Bestselling Author | Broadcaster 📚Living with HL & deafness 📚 host @divorcepod 🎙 Bi 🌈 deaf 🦻@rnid ambassador 🧏♀️ tweets: Sam & teamSteve Keyworth @stevekeyworth
564 Followers 538 Following TV & radio #scriptwriter, #theatre director, occasional stand-up, frequent caffeine drinkerAlways delighted to be recognised on @OphthoMag #PowerList alongside my fabulous colleagues @Moorfields @UCLeye @GoshSight @lolaeyedoc @pearsekeane @anthonykhawaja Sobha Sivaprasad, Louisa Wickham @adnan_tufail1 & many more👏🏼Congratulations to all…powerlist.theophthalmologist.com #Top100
It was an honour to meet @3dadswalking this morning with @AndyBurnhamGM @TempleNewsam To hear their stories and to help support them and @PAPYRUS_Charity is a privilege. Please donate if you can at 3dadswalking.uk
Since @bbceastenders storyline featuring a 12-year-old girl with Usher syndrome, we’ve seen a significant increase in visitors to our website! This is fantastic as it really shows the impact this storyline has on raising awareness. 🔗 usherireland.org 👏🏼 to @CUREUsher
The Tomorrow People begins on this day in 1973 - a rare instance of the opening titles & music being more exciting than the actual stories.
As April comes to an end, we asked a few amazing DANC members having their say on Limb Loss and Limb Difference Awareness Month!
i'm getting really good at only eating one viennese whirl at a time instead of the whole multipack. unfortunately the same cannot be said for wotsits.
Amidst the rain, if you can get a chance to go for a walk in the woods- its #Bluebell season. I love the contrast of the deep purple and green on the forest floor #LoveSpring
DELIGHTED to receive an invitation to the Royal Garden Party at Buckingham Palace by command of His Majesty the King 👑 This has arrived "in view of your advocacy work for #UsherSyndrome on a national level, and for your outstanding services to @CUREUsher"
Catch up on @BBCiPlayer if you missed it 👍🎯
I’m behind the wheel for this evening’s episode of @BBCCasualty. Edited by a very nice genius called Joe @JoeJakeMarshall, written by the wonderful @islaeliza and produced by the inspiring @prendergast_lou. #Casualty
Today is National BSL Day celerbating the 2nd anniversary of the BSL Act 2022 Here’s a throwback of the England Deaf Women’s Football Squad signing the National Anthem at the World Deaf Football Championships 2023 in Malaysia #nationalBSLDay #britishsignlanguage #GodSaveTheKing
🚨🚨🚨Final day to submit your abstract!! Don't miss out!!
Register for the upcoming @UKEyeGenetics annual meeting @RCPhysicians, Liverpool June 10 2024! 👁️🧬 Abstract Submission Deadline Sunday April 28, 2024! Find more info and register at: ukegg.com/annual-meeting…
Invited to speak @FightBlindness meeting in London. Proud to be on a panel with strong female leaders @AJ_Hardcastle @UCLeye & Dr Azadeh Kia @BeaconTx_. Wonderful audience participation & so pleased to share our research into #InheritedRetinalDiseases with the patient community
Shes off to meet the King. So proud of @jomilne10 Founder of @CUREUsher devoted her lifes work to raising awareness of Usher Syndrome. A true inspiration. Thoroughly deserved recognition.
After completing last week's #LondonMarathon, a Deafblind student who has Usher syndrome is now set to make history to reach the summit of Everest. What an incredible achievement! Read the full story: zurl.co/toe3 #Deaf #VisuallyImpaired #Blind #Deafblind #Marathon
Unbelievable statistics. Please watch The Touchable memory. An information film about Usher Syndrome. ♥️
"Despite its significant impact, Usher syndrome remains underrecognized, with a misdiagnosis rate of 40%, underscoring the critical need for heightened awareness and understanding." cambridge-design.com/news/introduci…
"Despite its significant impact, Usher syndrome remains underrecognized, with a misdiagnosis rate of 40%, underscoring the critical need for heightened awareness and understanding." cambridge-design.com/news/introduci…
This month we celebrate #DeafAwarenessWeek and Yvonne and Julian are joined by @NYDeafSwimmer and Chris Beech from @deafsport to talk about their campaign #FairPlayforDeafAthletes to #EndDeafSportDiscrimination See the full story on Weds 1st May 8am BBC 2
@bbceastenders & @CUREUsher are raising awareness of #UsherSyndrome. Character Britney has been diagnosed with this #RareDisease where children are born with hearing loss & then lose their vision progressively from #RP in childhood. Read more: gene.vision/knowledge-base… #GeneVision
What is Usher syndrome? EastEnders' Britney diagnosis explained radiotimes.com/tv/soaps/easte…
Whitney is making it clear who is more important. #EastEnders
This week @bbceastenders has aired episodes showing character Britney being diagnosed with Usher Syndrome. What a landmark for this community. Awareness on another level. Usher syndrome is rare. But as a community we are united. @CUREUsher @Usherkidsuk @mollywatttrust