Littlest Tumor @LittlestTumor
Our mission is to increase understanding of Neurofibromatosis (NF), empower affected families, and advance research of preventative therapies. littlesttumor.org Appleton, WI Joined February 2010-
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Our message is simple:tumors in children, we do NOT like them. #NFmonth2025
NF impacted young adults advocate for NF Research. #fundNFresearch
Littlest Tumor retweeted
Meet the individuals living with NF2. A rare disorder affecting around 1 in 35000 people across the world. Today we meet Hannah, her NF2 journey started aged 14. Hannah has suffered severe, life changing side effects from Avastin infusions. #endNF2 #NF2awareness #NF2SWN
Another successful NF Congressional Briefing in the books. We had a full room of staffers listening to the wonderful panel. The clinicians and researchers gave exciting updates in research. Many NF impacted Young Adult lent their voices. So much to hope for #fundNFresearch
Attention! This November we are looking for 10 people to support our important work. Choose to donate $22 or more as a monthly donor and you will score a cool tote. Click here and sign-up today!! littlesttumor.org/donate
This Saturday, August 27th, at 1:30 pm ET, Dr. Shern will speak about his important NF research at the NFYA International Summit. Join in person at St. Barts, 109 E. 50th St, New York, NY, or Zoom in from anywhere in the world. Register today (it's free): bit.ly/NFYAIntlSummit
The NF Young Adult International Summit is Saturday, 27th, and Sunday, 28th. Free designed for YAs 18-30. It is to be held in person: St. Barts 109 East 50th Street New York, NY-- 10002 Or Zoom in from anywhere in the world. Register here: bit.ly/NFYAIntlSummit
Littlest Tumor retweeted
Hannah Kim @LittlestTumor –I think the NFRP community is not afraid to take risks (high-risk), so that they can make the largest impact in the communities. go.usa.gov/xtjjF #NF1 #NF2 #NFTCommunity
Tomorrow, tomorrow! This event is open to the NF community. Register to hear NF research updates. bit.ly/NFcongressiona… Call your rep & senators and let them know you want a staffer to attend. Find you reps here: house.gov/representa.../…
NF Congressional Briefing this Friday, January 7th@ 1pm ET. Annette Bakker of CTF will be speaking! Register here: bit.ly/NFcongressiona…
Woot woot sooo excited to have Dr. Rhodes as a panelist @ the NF Congressional Briefing. January 7th @ 1pm ET. Register today: bit.ly/NFcongressiona…
Kicking off the NF Congressional Briefing, Tammy O’Brien. Register here: bit.ly/NFcongressiona…
Register fir the NF Congressional Briefing today! bit.ly/NFcongressiona… @RepGallagher @SenatorBaldwin @RepMarkPocan
Want to change an NF child’s life? We sure do. Support compassion & joy - littlesttumor.org/donate
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