NF Bot @NFBot2
Neurofibromatosis\Schwannomatosis Bot-Looking to spread new publications, news, & social media (reddit\twitter). Welcome comments\suggestions to @DrezBoston a unix box out there Joined July 2021-
Tweets20K
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Followers778
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Following2K
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Likes46
Bea has #NF1 and is wonderfully supported by her school & head teacher Amanda. For #WorldNFAwareness Day, Fyling Hall School held a special awareness & fundraising day for NTUK, with everyone dressing up in blue & green, the colours of #NF. Read more: bit.ly/3oYo6Ro
"Neurofibromatosis Ribbon (black background)" Sticker for Sale by nfgirl33 - Redbubble news.google.com/rss/articles/C…
Refractory Hypertension Due to P... news.google.com/rss/articles/C…
Why Run - Eashan lost his eyesight at the age of 5, was then diagnosed with #NF1+ immediately started 18 months chemotherapy. His mother Jen tells his story, offers advice to others in the same situation & shares her experiences in her podcast. Read more: bit.ly/3oZBc0E
Nick Gilbert, son of Cleveland ... news.google.com/rss/articles/C…
@kevin_nealon My aunt had neurofibromatosis. It was the cause of her fatal cancer, her daughter’s brain tumor and her sons cancer. Her grandchildren have the same to look foreword too. Terrible disorder.
#ESHG2023 | Our colleague Sara Juárez, Genetic Diagnosis Specialist Analyst, has presented in Glasgow a poster about a neurofibromatosis type I case: patient who carry two pathogenic variants in trans🧬 View the poster here 👉 healthincode.com/wp-content/upl…
@DPhylomena @derrick_helton @kevin_nealon Neurofibromatosis.
Cupid's Undie Run draws thousands - pantsless - for charity - KUTV 2... news.google.com/rss/articles/C…
Ohana 2023 Rowing for great causes - WJXT News4JAX news.google.com/rss/articles/C…
Home > Soft Tissue - Webpathology.com news.google.com/rss/articles/C…
Janelle Miller en LinkedIn: Advanced Neurofibromatosis Resea... news.google.com/rss/articles/C…
(PDF) Multidisciplinary Outpatient Clinic of Neurocutaneous Diseases: Five-year Experience of a Pediatric Tertiary ...... news.google.com/rss/articles/C…
Pickin' 4 NF in Denton at Harvest House - Do214 news.google.com/rss/articles/C…
Important Topics in Dermatology for NEET-PG - PrepLadder news.google.com/rss/articles/C…
@women_could @AliceSLondon @fickleskittle @DrFrancesRyan I have a son with special needs. When my wife was carrying him, the doctors did a Down’s screening. There were inexplicable abnormalities - not Down’s. We know now why. He has a genetic mutation that caused Neurofibromatosis.
@ghastlydoctor @Sthanu5 ...sarcoidosis, xanthomatosis, histiocytosis X, juvenile and adult xanthogranuloma, generalized eruptive histiocytoma, familial histiocytic dermatoarthritis, and neurofibromatosis."
What is neurofibromatosis? Learn more about this nervous system disorder that can cause tumors which impact the brain, spinal cord and nerves that send signals between the brain and other areas of the body. uoflhealth.org/articles/what-…

NF2 BioSolutions UK &... @nf2biosolution1
466 Followers 457 Following Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
Nerve Tumours UK @NervetumoursUK
2K Followers 727 Following Formerly “The Neuro Foundation”. We fight to support those living with conditions that cause nerve tumours. T: 0208 439 1234
Brian Na, MD PhD @bnamdphd
1K Followers 787 Following pediatric & adult neuro-oncologist at @ucsfhospitals @ucsfchildrens via @harvard @drexelmedicine @uh_rbcresidents @ucla | #NF #SWN #AYA | 🌈🇰🇷🇺🇸
PhiOanh "Leia" Nghiem... @Leia_N_MD
448 Followers 213 Following Neuro-oncologist; Vice Chair of Academic Affairs; Director of Neuro-Oncology Fellowship @UCLANeurology #UCLABrainTumorCenter; NF and Schwannomatosis Clinic
NFIreland @NfIreland
432 Followers 288 Following At NF Ireland we aim to be a voice for NF patients, carers and their families. Reg Charity: CHY 6657
Vanessa L. Merker, Ph... @vlmerker
1K Followers 1K Following Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.
Aadel Chaudhuri, MD P... @aadel_chaudhuri
3K Followers 832 Following Professor & Vice Chair for Translational Research @MayoRadOnc | Co-Director of Cancer Precision Medicine @MayoClinic | Co-Founder @liquidcelldx & @DropletBiosci
Yuan Pan @YuanPan3
2K Followers 2K Following Cancer Neuroscience, NF1, Neuron-glial interactions, Assistant Professor at MD Anderson, CPRIT scholar
Taylor Sundby, MD �... @rtsundby
516 Followers 801 Following 🎗️Ped-onc |#NF1, #cancerpredisposition, #raretumors, #EarlyDetection, #cfDNA & biomarkers|Proud dad|Opinions=own|#Nemours|PI@CancerInterception&TumorEvolution
Andrés Lessing ⭐�... @DrezBoston
378 Followers 1K Following 🇦🇷🇺🇲 Trying to navigate the craziness. Neurofibromatosis/Schwanomatosis advocate & Patient Representative. Sarcoma Survivor.
NF1 Project @Nf1Project
206 Followers 390 Following An international research project aimed at improving understanding of how genetics affects the number of skin neurofibromas a person with NF1 may develop.
Rakie Ayola💜 Still... @RakieAyola
13K Followers 3K Following Bafta Award Winner next in #MomHowDidYouMeetTheBeatles @ChichesterFT Patron @childhoodtt Trustee @actorschildren
💙 shelley herniman @insanemum1
690 Followers 479 Following mother of boys..train guard ..parent of a child living with an inoperable brain tumour,we need a cure .Dedicating my time to highlight awareness of NF #endnf
Melanie Saavedra @BFKCB
623 Followers 1K Following Our mission is raise awareness of NF1 and help Emilio be everything he wants to be. “ it’s not about seeing, it’s about feeling” said Emilio! ❤️
Dr Ihab Suliman @IhabFathiSulima
87K Followers 56K Following Cardiologist. Best medicine tutor. Abstract Grader ESC Cardiology Conference 2025. TikTok :https://t.co/oFMaeIlD0T
Andrea wadeson @mamawadey
387 Followers 699 Following Clinical Nurse Specialist #CNS for skull base tumours and conditions @MCRskullbase @MCCN_UK. Mum to 3 boys.
HumanFirst @Humanistplanet
406 Followers 5K Following Virtual Nomad. Techie. Encyclopedia. Philonoist. Humanity. Peace. Save Nature. Brain Tumor(Meningioma) Survivor/ScarEpilepsy. - Opinions/Retweets are personal.
Charles Marques Loure... @CharlesLourenco
35 Followers 340 Following Clinical Geneticist Neurogenetics and Hereditary Metabolic Disorders Specialist
熊佳佳 @BearBigger888
2 Followers 173 Following
Astrolog Cavidan Üns... @cavidanunsal
438 Followers 212 Following #astrolog #astroloji #karmaastroloji #oguzhanceyhanekolu #astrology
Gul Kaya @GulKaya12785119
0 Followers 7 Following
Flora Rivera @FloraRiver56734
265 Followers 2K Following
هناي @anm_199
86 Followers 493 Following في ظل رحمة الله ومعارك السعي ﴿ وٌقُلَ ربًيَ زٍدٍنِيَ عٌلَماً ﴾
Sidney Glasshoff @Sidneysnfstory
4 Followers 44 Following
Smesflo @Smesflo9iew
20 Followers 2K Following
Seasaunawn @Seasaunawnqb0b
40 Followers 2K Following
C. Boone Pickens @C_J_J_
209 Followers 832 Following
@_unspokenword @__unspokenword
36 Followers 59 Following
呃呃 @ee3109856275
8 Followers 256 Following
Ana Isabel @1W18HmCsx62we69
21 Followers 2K Following 現在、アルバイトの募集をしています。勤務時間:30~90分。日給7,000円~50,000円! ✨ すぐお金になる副業 今直ぐ即金で稼ぐ事が出来る在宅ワークになります🌈 副業相談LINE追加:【https://t.co/xtLbLpb4EO】
Catherine NFTs @Catherine__NFTs
68 Followers 162 Following
P S @nextsummer246
5 Followers 333 Following
k. @magerancok
367 Followers 771 Following independent artist/designer. learner of classical astrology. 💫 they/them.
german cordoba @cordobita36
216 Followers 1K Following
Esther @greenesther20
239 Followers 3K Following
Carolyn @bounds_carolyn1
295 Followers 3K Following
Diary Of Bonita @SimmonsTan73290
87 Followers 331 Following we are talk on Google chat: [email protected] Or WhatsApp +16047278696
Yöly C 🇺🇸✝�... @YolsterC
2K Followers 7K Following Flo-Grown☀️305➡️407 . wife, mom of 3, teacher ❤️ Mötley ,beer, tacos, tattoos , Roman Reigns, horror. Sarcastic, easily amused . IFBAP and ignore DMs #HorrorFam
Margaret Sullivan @Margaret09961
269 Followers 4K Following INTERPOL Global Cyber Programme aims to reduce the global impact of cybercrimes and protect communities.
maryam karaminia @maryam1988k
89 Followers 504 Following Board-certified neurologist, Neuro-immunology fellow at Mayo Clinic, interested in, Multiple sclerosis, Autoimmune encephalitis, Paraneoplastic syndrome🧠
Alta @alta_haught_
294 Followers 3K Following
Patricia @patriciaflohr29
351 Followers 3K Following
Megan @megan_stoops_
377 Followers 3K Following
Maria @moore27maria
362 Followers 3K Following
Beth Cordiero @BethCordie28820
38 Followers 2K Following
JITENDRA DEV @Jitendradev01
5 Followers 148 Following 🌼 Embracing little moments & spreading positivity! 🌈 Let's grow together in kindness & simplicity. 💖 #GoodVibes #Gratitude #Growth
Rui @_Rui_Mu_
9 Followers 41 Following
Dympna G @dympna19
124 Followers 462 Following Neuro Research nurse. ☘️ Tyrone girl 🇮🇪 living in Wales 🏴 @CAV_Epilepsy
Hector Kroes 🐀 @DeadMouseMD
355 Followers 2K Following Aspiring physician-scientist at @FMUSPoficial • Tissue engineering, bioinformatics and genetics • Rock collector and #OpenScience enthusiast
Noely Larios Aguero @NoelyLarios9
74 Followers 455 Following MD-IMG 🇭🇳 //Radiologist 🧑⚕️🤓 God, family, gym & music. 🙇🏻♀️♥️ 🏋🏻♀️🎷Faith, discipline and consistency are the key.
Ed Port @edneedsamiracle
12 Followers 62 Following
Dr Jaya Krishna Reddy @iamdrjaykrishna
443 Followers 3K Following Consult us for any Orthopedics related issues. Shoulder, Hip, Knee - Replacement, Complex Trauma, Sports Medicine, Knee & Shoulder Arthroscopy, etc.
Laura Hogan @hoganl2
24 Followers 56 Following
John Roach @JREncore
222 Followers 518 Following I don't like to commit myself about heaven and hell - you see, I have friends in both places. -Mark Twain. Down to debate Music, Fantasy Football, and Tech
Shyenne guardado @Shyshy2122
47 Followers 381 Following Mommy Of 2 Beautiful Girls 💖🥺 Bina 10/21💚💙 Sammy 11/22💖💗 #endnf #shinealightnfwalk
Maverick @brianleetx
837 Followers 543 Following 54 yrs old and proud Huge wrestling fan. Hair metal for life 🤘Texas Longhorns 4 Life
NF2 BioSolutions @NF2BioSolutions
380 Followers 397 Following NF2 patient led nonprofit dedicated to funding research, and supporting those affected by NF2-related schwannomatosis
Da-Daa @v28626632
65 Followers 219 Following
Keri @Gray36Keri
452 Followers 2K Following Murrayfield Primary, Simply Play. Passion for making a positive impact and difference in the lives of our children. 💙💛
Samuel @SamuelBharti
44 Followers 241 Following Researcing NF1 and Breast Cancer associations | P.hD. student at @uabbme | President @club_uab
Kirsty Birney @BirneyKirsty
15 Followers 265 Following
asd asd @dnannajy1
10 Followers 362 Following
Razo @RazoGlobal
93 Followers 260 Following
Children's Tumor Fdn @ChildrensTumor
7K Followers 810 Following The Children's Tumor Foundation is the drug discovery engine pioneering more solutions, better options, faster for all NF patients.
NF2 BioSolutions UK &... @nf2biosolution1
466 Followers 457 Following Volunteer, patient led charity. Dedicated to NF2 Research. Raising awareness through advocacy, support & hope. Fundraising for new treatments or a cure to NF2.
Gutmann Laboratory @GutmannLab
4K Followers 683 Following Studying the genetic, cellular and molecular causes for #braintumors and #neurodevelopmental deficits in #children
Nerve Tumours UK @NervetumoursUK
2K Followers 727 Following Formerly “The Neuro Foundation”. We fight to support those living with conditions that cause nerve tumours. T: 0208 439 1234
Brian Na, MD PhD @bnamdphd
1K Followers 787 Following pediatric & adult neuro-oncologist at @ucsfhospitals @ucsfchildrens via @harvard @drexelmedicine @uh_rbcresidents @ucla | #NF #SWN #AYA | 🌈🇰🇷🇺🇸
PhiOanh "Leia" Nghiem... @Leia_N_MD
448 Followers 213 Following Neuro-oncologist; Vice Chair of Academic Affairs; Director of Neuro-Oncology Fellowship @UCLANeurology #UCLABrainTumorCenter; NF and Schwannomatosis Clinic
NFIreland @NfIreland
432 Followers 288 Following At NF Ireland we aim to be a voice for NF patients, carers and their families. Reg Charity: CHY 6657
Vanessa L. Merker, Ph... @vlmerker
1K Followers 1K Following Health services researcher at @MGHNeurology passionate about #PatientEngagement in research, #RareDisease and the working woman. Trained @BUSPH & @VA_CHOIR.
Neurofibromatosis Net... @nfnetwork
4K Followers 143 Following Neurofibromatosis (NF) Network is the national non-profit serving individuals affected by neurofibromatosis. Leading NF Advocacy, Building NF Community.
Nf2UK @Nf2UK
323 Followers 88 Following Dog-eared advocates still hoping for a cure ..... general NF2 info: https://t.co/3GbobMCGk0
Journal of Neurosurge... @TheJNS
45K Followers 725 Following Journal of Neurosurgery (JNS), the world's leading journal in #neurosurgery & the official journal of the @AANSNeuro
Aadel Chaudhuri, MD P... @aadel_chaudhuri
3K Followers 832 Following Professor & Vice Chair for Translational Research @MayoRadOnc | Co-Director of Cancer Precision Medicine @MayoClinic | Co-Founder @liquidcelldx & @DropletBiosci
Grace Gregory @GraceGregory_
222 Followers 168 Following Postdoc in Computational Biology • Investigating the tumour microenvironment of vestibular schwannoma and meningioma.
Jennie Taylor @JennieWTaylor
850 Followers 106 Following Division Neuro-Oncology Associtate Professor Neurology and Neurological Surgery
Yuan Pan @YuanPan3
2K Followers 2K Following Cancer Neuroscience, NF1, Neuron-glial interactions, Assistant Professor at MD Anderson, CPRIT scholar
Taylor Sundby, MD �... @rtsundby
516 Followers 801 Following 🎗️Ped-onc |#NF1, #cancerpredisposition, #raretumors, #EarlyDetection, #cfDNA & biomarkers|Proud dad|Opinions=own|#Nemours|PI@CancerInterception&TumorEvolution
Adam Pearson @Adam_Pearson
42K Followers 5K Following Presenter / Actor / Campaigner. Bookings - . [email protected] #ADifferentMan (He/Him).
SNO @NeuroOnc
11K Followers 477 Following A multidisciplinary society of healthcare professionals dedicated to promoting advances in neuro-oncology through research and education.
Albert H. Kim @AlbertHKimMDPhD
3K Followers 988 Following Director, The Brain Tumor Center, @WashUBTC @WashUNeurosurg @WUSTLmed @BarnesJewish @SitemanCenter WashU Medicine
Andrés Lessing ⭐�... @DrezBoston
377 Followers 1K Following 🇦🇷🇺🇲 Trying to navigate the craziness. Neurofibromatosis/Schwanomatosis advocate & Patient Representative. Sarcoma Survivor.
Andre Heisler @andreheisler
12 Followers 250 Following Biology Engineer 🧬| Science enthusiast 🧫🔬 | Plant lover 🪴 | Cooking aficionado 🧑🏼🍳 | Seeking knowledge & sharing discoveries | 🏳️🌈🇫🇷🇧🇷 🇪🇺
🇨🇦Lise🇨🇦 @lise121967
1K Followers 1K Following just a happy Grandmother raising a chromo cutie and making custom cakes !! no dm’s
Papa's Bull @papasbull
327 Followers 166 Following I like talking shit, but I ❤ $SAFEMOON. I like hos, but I ❤ $SAFEMOON. I like stupid shit, but I ❤ $SAFEMOON. Don't follow me... #notfinancialadvice
(((Thay-Lee)))😼�... @SirRianna
420 Followers 268 Following Geek. Scientist. Vegetarian. Atheist. Metalhead. Ailurophile. Antifascist.
Chris Chapman @ChrisChapman81
11K Followers 933 Following BAFTA-nominated, 6-time RTS-winning documentary-maker, Big Finish writer, geek. Boss of Moon Balloon Productions.
𝙉𝙖𝙩𝙚 @Hamilton_DPOY
9K Followers 7K Following James 4:11-12🙏🏻✝️ | Ravens fan | Owner of two pugs | Madden enjoyer | Weather fanatic | @Hamilton_DPOY2
Nikoli Scharin 🟧 @MidNikalee
18 Followers 158 Following dance teacher, choreographer, home chef(ish), and ardent lover of wine, fuzzy critters, and travel.
Holly Pec 🌞🌴�... @SandraButtocks2
1K Followers 2K Following #BillsMafia #CrohnsWarrior Likes nice people, loves my dog & kids.
Luís Camargo @_lfmc
21 Followers 197 Following Medical student at Federal University of Santa Maria interested in psychiatry and psychedelics
Dermapixel @dermapixel
9K Followers 9 Following Intento que éste sea el Twitter de mi versión dermatológica, pero no me sale. De momento todos mis tuits en @rosataberner
@Kannavico @kannavico
4K Followers 5K Following CBD al 10 %. CBD al 5% ND. Fórmula 10 A 1. Fórmula 1 A 1. Sueños relajantes. CBD Uso Veterinario Vapeadores CBD y CBN. Línea cosmética. WhatsApp 313 4165911
Dr. Luis A. Cruz @luiscruzrd
4K Followers 225 Following Subdirector General de Clínica Cruz Jiminián & Fundación Cruz Jiminián Gerente Médico de Atención Primaria de Salud (UNISAF) / Director de CEOM (Oncología).
César Rodríguez @cesarielrp
2K Followers 2K Following Cambiando la Cultura de Don { a } cción 🩸• IT • Software Engineer • Co-Founder of @donantescomdo • Cibaeño • Certified Barista ☕️ • Instagram: @cesarielrp
Dr. AP | Action Poten... @action_ap
15K Followers 5K Following Vascular Surgeon - I help med students crush the USMLE, get research pubs, and match into their goal specialty. Tweets = personal opinions
Shari Eberts @sharieberts
5K Followers 3K Following Advocate, Author, Speaker, Yogi Founder: https://t.co/62xPDNKwGA Exec Producer: @WeHearYou_Doc Book: https://t.co/jSkAxys8xE
Frontiers - Neurology @FrontNeurol
11K Followers 843 Following Research and updates from all @FrontiersIn journals in the field of neurology. #openaccess
Lexx @GalexieTweets
404 Followers 2K Following // TTV Affiliate // Trans Woman with ADHD and Dyslexia // 🏳️⚧️ she/her 🏳️⚧️ // Soon-to-be Cosplayer //
Rosa Taberner @rosataberner
23K Followers 1K Following En el fondo soy buena dermatóloga, por eso me paso el día buceando. Vegetariana consorte. Una vez gané un premio.
Racing4Research™ @Racing4Research
948 Followers 642 Following
Don Draper @MadPlotkin
5 Followers 35 Following
Kevin Hussey @KevinHussey23
100 Followers 314 Following
Linda Yew @LyewYew
17 Followers 290 Following
david anstee @endingnf
183 Followers 754 Following
Neurofi. Info @neurofi_info
14 Followers 98 Following info scientifiques et sur les maladies rares pour plus d'informations sur la Neurofibromatose 1 et 2 voir : https://t.co/n4peOAAK2h
Cindy Hahn @hahnc15
26 Followers 57 Following
Alyssa Reddy @5Reddys
348 Followers 363 Following Pediatric Neuro-Oncologist. Passionate about helping sick kids get well. Mom to 3 amazing people. Married to the best. Tweets are my own.
Gautam Mehta, MD @GautamMehtaMD
1K Followers 653 Following Clinical Policy @FDAoncology | #trailrunning (when not injured) | Tweets = my own. Retweets/Likes/Follows ≠ endorsement.
Silvilizumab @DelgadilloSd
199 Followers 910 Following Oncóloga pediatra, melómana, chica Ye-Ye, caothic good, ciencia, playas, vinos y sarcasmo. En reparación disculpe las molestias. 🎗
Adam Goodkind @adamgreatkind
532 Followers 698 Following Postdoctoral Research Fellow @IRPatNIH. Interested in HCI, UX, NLP, and the social dynamics of dialogue.
Heather Marsden @MarsdenHeather
15 Followers 320 Following
Glumando 🇲🇽🏈... @dasderf_
666 Followers 601 Following «Tyranny requires constant effort. It breaks. It leaks. Authority is brittle. Oppression is the mask of fear». 勇者ダスデルフ 戦え! 守れ!
Tim - Originator to t... @itstimberger
211 Followers 104 Following 11,043 verifiable Stripe payments collected using systems + leverage. Not easy, but 100% doable if you want to escape a 9-5 in the next 90 days.
Aidan Pidgeon @patch1895
25 Followers 90 Following Following Shelbourne fc a long time, Celtic fc and the Dubs
Julieta Roxana @Julietaroxan
241 Followers 2K Following Soy una chica trans Tgirl 🏳️⚧️. Twitter personal. +18⚠️. Me gustan las Poesías, las historias de miedo.
John T. McDonald III ... @johnmcdonald108
6K Followers 1K Following Assemblymember for the 108th District in the NYS Assembly; Former Mayor of the City of Cohoes; Pharmacist - Marra’s Pharmacy.
Senator Jim Tedisco @JamesTedisco
8K Followers 2K Following New York State Senator -- A Strong Voice for NY
nature @Nature
2.6M Followers 3K Following Research, News, and Commentary from Nature, the international science journal For daily science news, get Nature Briefing: https://t.co/wGmQlQ8a4D
ERASEnf @ERASEnf
10 Followers 5 Following Elisabeth Raab Accelerator of Science to End Neurofibromatosis - dedicated to building collaborative teams to focus on research in neurofibromatosis
U of T Department of ... @UofTSurgery
4K Followers 319 Following The Dept of Surgery is a strong network of faculty & learners. It traverses 6 fully-affiliated hospitals & an expanding number of partially-affiliated hospitals
Princess Margaret Can... @PMResearch_UHN
3K Followers 547 Following Research arm of @pmcancercentre—the largest integrated #cancer research, teaching and treatment centre in Canada. @UHN
Synterex, Inc. @synterex
29 Followers 65 Following A woman- and disability-owned business that provides solutions for clinical research. We've moved to Bluesky: https://t.co/Bh2e7mC5C9
ISID2023Tokyo @ISID2023Tokyo
482 Followers 270 Following 1st International Societies for Investigative Dermatology Meeting, 10-13 May 2023 (Tokyo, Japan). Join us at the “Olympics” of skin science!