Meshproblems01 @Meshproblems01

Joined September 2015

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Meshproblems01 @Meshproblems01

2 years ago

These women need help now

Sling the Mesh NI @SlingtheMeshNI

2 years ago

These women need help now

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Shaun Lintern @ShaunLintern

2 years ago

If you're an NHS board doing this I can guarantee at some point you're going to end up dealing with a media enquiry from me when the 💩 hits the fan: kingsfund.org.uk/blog/2023/10/p…

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Meshproblems01 @Meshproblems01

2 years ago

The PSC's team doesn't even have the capacity to support pelvic mesh, or the IMMDS's recommendations-they've told us outright they don't have the capacity to work on all of them. The government should fund more staff for this office-the post can hardly be called a PSC at present

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Emma Murphy (INFACT) ☘️💕😘🦋 @Emma4facs

2 years ago

@JamesTitcombe DHSC “We have every sympathy with those harmed by Sodium Valproate”

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Sling the Mesh @MeshCampaign

3 years ago

Conflicts of Interest in medicine: taking money from industry without telling anybody, poses a serious risk to research integrity & #patientsafety Its rife & has been a MASSIVE problem in healthcare for decades. It played a huge role in #mesh #primodos scandals @PSCommissioner

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Meshproblems01 @Meshproblems01

3 years ago

What about the Cumberlege Review and its recommendations, many of which have still not been actioned? What is the purpose of the PSC role?

Patient Safety Commissioner @PSCommissioner

3 years ago

What about the Cumberlege Review and its recommendations, many of which have still not been actioned? What is the purpose of the PSC role?

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Meshproblems01 @Meshproblems01

6 years ago

@SlingtheMeshNI @MahonySharron @thismorning @theJeremyVine @loosewomen @vicderbyshire @BBCWomansHour @reallorraine So when the Bleeding Edge documentary said, of implant scandals, “reversibility is key”, apparently even that doesn’t work because doctors will just think it’s women being hysterical again

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Sling the Mesh @MeshCampaign

3 years ago

One of the 9 First Do No Harm recommendations was financial redress delivered using a non-adversarial process. NHS Resolution is NOT the answer as it’s a litigious process that’s stressful & relies on women proving blame @mariacaulfield @PSCommissioner @EmmaHardyMP @APPGFDNH

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Sling the Mesh @MeshCampaign

3 years ago

Thanks @mariacaulfield for meeting with #mesh campaigners today to discuss how to improve specialist mesh centres & tackling financial redress to improve the lives of women whose health has been irreversibly harmed @EmmaHardyMP

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Sling the Mesh @MeshCampaign

3 years ago

@chrisharding123 @MRvanBalken @Bekkenbodem4All @Uroweb @EauPatient @WFIP_Official Many are prepared to speak - however, were not invited I recall an RCOG conference in which a woman gave a patient’s perspective on Mesh yet she wasn’t even implanted with Mesh When I queried this, I was told she learnt by looking at my social media posts - how offensive

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Sling the Mesh @MeshCampaign

3 years ago

Terrible that women in NI @SlingtheMeshNI must get permission from their #mesh implanting surgeon to be seen in one of the 10 Specialist Removal centres in England or Scotland. Unsurprisingly many face a mighty battle @EmmaHardyMP questions-statements.parliament.uk/written-questi…

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Meshproblems01 @Meshproblems01

3 years ago

Yes and it made damn all difference. Besides, you guys only started letting patients report to the yellow card system as a result of a BBC investigation - the MHRA is about the least patient-facing medical org in the UK.

MHRAgovuk @MHRAgovuk

3 years ago

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Meshproblems01 @Meshproblems01

3 years ago

@InjuredMesh The Great and the Good in Scotland can sound like they're still living in 2011, "don't believe these irrational accounts on the internet". In reality, since the rise of social media, it's too hard to play down excess harm from e.g. Essure and mesh as accounts are so numerous.

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Mesh Rectopexy Support & Action Group @MeshAction

3 years ago

Music to our ears @AaronBell4NUL we want mandatory reporting conflicts of interest in a central base like other countries seem to manage. Transparency. Not run by trusts where its diluted and lost. Manufacturers to declare all monies paid to decision makers

Patient Safety Commissioner @PSCommissioner

3 years ago

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Lebby Eyres @LebbyE

3 years ago

I wrote a lot for the ⁦@Telegraph⁩ health section last month and this ran on Monday - continuing my mission to investigate mesh surgery & tell the story of how it has affected women’s lives. Thanks Jennifer for talking to me. ⁦⁦@ThompsonsLaw⁩ telegraph.co.uk/health-fitness…

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Sling the Mesh @MeshCampaign

3 years ago

Sling The Mesh has been successful in getting a clause into Health & Social Care Bill for 🇬🇧Sunshine Payment Act forcing industry to declare money given to Drs, teaching hospitals & research institutions. Such money was a key reason for #mesh #primodos #sodiumvalproate scandals

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Mesh Rectopexy Support & Action Group @MeshAction

3 years ago

@Meshproblems01 @TPFSuk @matthewhillbbc @hannahdev @MeshCampaign @LebbyE Where is the liason with rectopexy support groups & why are mesh centers not equipped yet to help us. We were told @NHSEngland were in talks with @TPFSuk. @PSCommissioner maybe you could facilitate so our many issues can be discussed @MeshCampaign